Might have just cried a bit - 5 1/2 months in and still experiencing new and increasingly mortifying symptoms. Since about 3 weeks I'm mostly bed-bound and don't have the energy anymore to sort through all the information myself, so your videos are a true blessing ♡ Keep up the brilliant work and have a speedy recovery!
@Annie Cober look at Wim Hoff's breath work. This person producing this video, is doing the work of Fear Mongering, nothing more and nothing less. Fear is the enemy to good health and your Breath is the solution
@@PBrofaith rubbish, hundreds of people across the UK and thousands, poss millions worldwide are in huge long-term pain..these are facts Gez is presenting; independently sourced from many people, who like me, spent night after night alone in lockdown, struggling to breathe but too scared to go to hospital .. you should at least take time to see more facts on more videos, news reports and harrowing personal testimonies
@@MoneypennyMedia There are always hundreds of thousands of people in world suffering from respiratory conditions since the beginning of industrialization and I have been one of them. However Covid 19 is a complete scam and this asshole is just fear mongering. There is not even any valid tests for covid 19 so you most certainly need to take your own advice and do some real research. You will never get factual information from the Mockingbird Media. They are paid to keep you afraid. Time to grow up
@@PBrofaith go to my channel, watch me interviewed, close to tears on national TV..for months I have been too scared to go to sleep for fear I won't wake up.. I have lost much of my eyesight, hearing, memory, mental ability..some days I cannot walk, for 8 months I have not been able to walk 300yds to take my own dogs out to the park..since February I have been found to have tumours on my liver and heart damage...think again...
This is so validating! I tested positive for covid on Nov 12, and was quite complacent after a fairly mild fever and quick ‘recovery’. Then it became clear my energy wasn’t returning, along with a squeezing pain in my chest after I pushed myself physically (e.g doing laundry), shortness of breath, as well as losing basic words and even forgetting what I’m talking about mid sentence. I do a very physical job with teenagers with special educational needs, and it’s out of the question, so I’ve lost my job. It feels as though people who aren’t experiencing this really don’t believe how debilitating it is. No doubt this is how people with ME have felt for decades.
Long Covid symptoms sound just like ME, chronic fatigue syndrome, Fibromyalgia, lyme, 911 patients, that have suffered for decades. Nobody believed them either. There is hope now that someone honest will figure this out.
@Bec I hope you've seen some improvement along this recovery journey. I tested positive on Nov. 19 around the same time but had a moderate case with more pulmonary impact than yours. I had the same long hauler symptoms you described but, thankfully, didn't lose my job. Many more months in and my symptoms keep evolving. Know that you're not alone in this! I've found there are a lot of people experiencing this who know just how debilitating it is and can be.
This is the best channel of information I've seen on long-haul. I can't tell you how uplifting it is to hear someone tell me I need to rest more. I do well when I rest, but I've been feeling so guilty about it that I don't always do it. Not any longer, after listening to you. THANK YOU!
Long time ME/CFS person here. I have had to learn not to care what those judgey voices in my head try to shame me. (Or those of "friends") If your body needs to rest you should rest. I learned the hard way.
@@paul2019monte would you like to heal your post viral condition it isnot difficult ,your weak immune system cant expel dead viral debris from your system thats whats robbing you ofa life ,i heal post viral conditions ona daily basis you could call it my bread and butter,no i am nota doctor they are useless i ama biological systems engineer trained on nutrition and the 5 box immune system,the root cause of all post viral conditions is low atp levels coming from low glutathione levels
@@Beekind799 If you really had a solution and cared about people you would tell us but instead youre a charlatin trying to pray upon people’s weakness and I’m sure if anyone was stupid enough to contact you they would be ripped off.
i put the protocol up for free ,its on many you tube channels in the messages ,would you like to know where it is ,first of all try being nice instead of being ugly and rude ,i have healed 1000s thats what i do ,i am a biological systems engineer if i cant fix you ,you are fucked ,or you can ask gez who has long covid and is vaccine injured
@@Beekind799 here where I live kind sir, the local hospital e r that I been to twice this year has basically treated and streeted. Me as fast as they could. Sorry for my misspelling and what not for I'm also legally blind. Doing my best. I didnt run fever so they didnt give me test. But that was a couple months ago like 2 or 3. Time gets away. I still feel weak. I suffer from painful conditions that it feels has amplified. Fibromyalgia neuropathy. I'm epileptic. But thankyou and I. Grateful for any suggestions you may indeed have.
Though i would share my experience: I've currently been having symptoms of Post Viral Fatigue for about 6 months now. Luckily the symptoms have died down enough now for me to return to some what normality and are now just an annoyance. I'm 21 and was at uni when i got ill in February (fatigue, myalgia, sore throat and tight chest), I'm not exactly sure what i got but from speaking to my GP it was likely EBV, covid or both (what I think). As i was at uni, i did not let my body rest properly and tried to exercise it off. Which lead to spending days in bed with relapsed symptoms (some of which were completely wacky and random). Eventually, after pacing myself, cleaning up my diet, sleeping (mostly lying in bed trying to sleep) and light exercise. I've got to the stage I'm at now. But the thing that helped me most was accepting that: For now, this is your life and there is not much you can do to change it. It's ok to just lie there doing nothing, it's ok you could only do so much today. An accepting mentality took stress out of the equation for me and made it easier to recover/inured the symptoms. Another big fix for me was finding out what i was deficient in and supplementing it (in my case OMEGA 3, this helped with the brain fog). So stick it out and you'll be ok, talking to professionals and a supportive family helps. If you have any questions i'll be happy to answer them!
@@doshpits I blood test at your local go may reveal something. In my case I have a very heavy meat base diet and im alegric to fish so my omega 3 to omega 6 ratio was way off. The only way to find out was right for you is a lost of research + trial and error
Thank you for sharing! I am down with "something" for at least 5 months Also infected by a tick. Blood tests not relevant but u have many of post viral infection. Accepting has helped indeed, and also taking omega 3, magnesium, b12, lactoferrin and glutathione. But my sleep and digestive issues are still a bother. Do you have any idea for these? I also see that eating little at a time helps, with no or little gluten, meat, animal fat, sugar, alcohol, spices, lactose. It is quite a ride though. ..
64 yr old grandma, covid in dec. 2019. Still suffering long haul symptoms. Hair loss, severe tiredness, off and on flu symptoms, muscle aches, fatigue, headaches, dizziness, weakness, cough, sinus problems, there are other symptoms, but I won't go on and on. I just want my life back! I have been in bed more than out of bed. Some days im fine then bam! Back in bed. But not sleeping. So I stay exhausted. Thank you for this video. Very informative.
EGCG found in green tea helps zinc into blood cells. Curcumin, CBD, both antiinflam work in reducing IL6. Recently published study shows it possibly has added benefit of binding with S Protein also blocking viral replication. Melatonin is also an anti inflammatory and IL6 inhibitor and created by human body for sleep. You can buy it online and its great if you have problems sleeping. NAC is another supplement getting a lot of attention.
Thanks for posting these supplements - people need to know. I've been taking all of these things and they help - yet it's still slow. I make ginger tea from scratch too. I'm determined to get back into excellent health again, as I was pre-covid.
@@barbarawarren9443 Im not a doctor but know a bit about certain herbs and supplements. It is being suggested by some that a possible factor in long covid19 is micro thrombie possibly in the brain. Also pockets of inflammatory conditions. Its unknown if that is Covid19 pockets in parts of the body that have not cleared. For the inflammation take Curcumin as well as L Cysteine. Some very good science for them reducing a bad covid infection. Always do your own research just for piece of mind. Some really good videos on RUclips from healthcare professionals explaining. Especially on L Cysteine. Currently in stage 2 trials in US against covid19. Also being moved on by FDA for reclassification as a medicine. Wish you all the best because long covid19 sounds awful.
@@barbarawarren9443 Hi you may be interested in link below .its about trails carried out on hospitalised covid 19 patients that were given intravenous vitamin D and the results were quite amazing. Atb. ruclips.net/video/V8Ks9fUh2k8/видео.html
your immune systems main power comes from vit a and vit d if them 2 levels are low and you get the coronavirus you are in big trouble,the immune system can only use cytokine storms
Great and supportive video! Had endless troubles for a whole year now, and the latest feeling is that my brain doesn't fit in my skull (4 weeks of it). This is the most dreadful thing I've ever experienced in all of my 46 years, but hang on the idea that everything must get better at some point! 💪 Thanks again!
@@janybekorozaliev9052 Morning & thanks for asking! It's funny, as the random issues continued to change shape and hinder life completely, and then last Easter (2022) I had Covid again. Felt terrible for around 6 weeks, and then after that....it all stopped - long, and short Covid!
thank you so much! i've just had another really bad relapse- and this explains it. i totally overdid it on too many levels. i really appreciate everything you are doing here. truly. thank you. 🙏🏼💜🙏🏼💜🙏🏼
I kept relapsing too. I just couldn't get better. I'm ok now. I don't know if it was just my time to get better or if what i did, did the trick. But i literally didn't do anything. I was lucky. My husband did everything. But i stopped straight away if i felt i was getting tired. I didn't finish what i was doing if i started getting tired. I stopped. I rested. I stayed in bed for days if I needed to. Only when i did this. Did i start to feel better. I hope you feel better soon. It's really horrible.
Amanda H thank you so much, Amanda! 🙏🏼❤️🙏🏼❤️🙏🏼 if only life allowed for more rest. i will try your method- i know I push too hard then pay the price. So grateful to you for reaching out, and I sure hope you've stayed well since your improvement. 🤞🏼🤞🏼🤞🏼 bless you, honey🦋🙏🏼🌿💜
@@casapilanola I'm ok. I have a slight thing in chest when i breath. Unsure what's going on there. But everything else is normal now. Let me know if my advice was helpful, then i will tell more people. It worked, i think, for me anyway. I really hope you feel better soon. I know (kind of) what you're going through.
Rest as much as possible. Just think of it this way, if you don't rest properly and recover, who is going to look after the next wave of people in long recovery. Have friends or family deliver food if you can't fetch it yourself. Ask your neighbors, or your church, or your co workers to do what you don't have the energy to do. If you sprained an ankle you wouldn't stand on it for hours on end everyday. Rest and recover. F everything else.
I had covid in April and drag myself from relapse to relapse. Additional to the debilitating fatigue I developed arthritis in both of my hands to such a degree, that I have problems with the most basic daily tasks, including closing zippers, pulling on and off socks, opening water bottles etc. I once worked as an artist. Now I barely can stand it to draw due to the pain in my hands. No help, no treatment and no relief here in the USA for those who are not wealthy. Supplements are something I cannot afford any longer due to the loss of income. If I have a meal - it is a good day for me. I'm living in a kind of tool shed at the moment, hoping not to get cut off from the electricity needed for my space heater and the toaster oven. The old coffee machine died today. I hope you are doing better than me and Happy Thanksgiving to all. Please do everything you can to protect yourself and your loved ones from this virus. Even if it might not be fatal for you, it has the potential to destroy lives.
This is EXCELLENT - after 14 years with ME/CFS (and now 6 months covid) I hope this becomes the norm of dialogue for recovery or management of chronic illness. Thank you
all of these conditions are easily healed,they are all being caused by the one problem,let me know if you want to know how to recover your health in less than a week please let me know
i study the 5 box immune system and its nutritional requirements,i know exactly whats keeping your condition firmly in place,you have a weak immune system that cant expel the virus thats whats keeping you sick,i can tell you how to recover your health safely in about a week you will feel much better by the end of day one,md doctors are useless they have no training on the immune system thats how they leave ypu totally undiagnosed for 14 years,they are pathetic i can wipe the floor with any md doctor,theres lots of them covid long haulers,they are clueless,let me know if you want the method for healing in less than a week,its safe
I still have long covid after 1 year and 3 months. I have been working on anti-inflammatory natural remedies: turmeric, ginger, minerals, vitamin c, vitamin d, etc. I noticed after 10 months, I was able to sleep through the night without feeling hyperinflammation/pain in my body. It comes and goes. I am nervous about having tachycardia, racing heart and I wake up to it, with my body heating up at the same time. I am trying to heal with vitamins, nutrients and a clean diet...lots of water, and rest. I have to take a nap in the afternoon. It is scary to think that so many of us suffer from this. Thanks for your videos! So appreciated. It makes me not feel alone with it.
@@rickyniemann3241 I am feeling better these days. Although, sometimes, I still feel heavy head, congestion to cough up, ..achy joints and muscles..I find that sleep and lower stress helps…I got omicron at Christmas,…but it wasn’t so bad because my body recognizes it…How are you feeling?
Thank you so much from South Africa. I am a 65-year-old, but was fit enough in my running years to run some of the hardest ultra marathons. I also had post-viral fatigue as a teenager after contracting glandular fever. I can't help but notice that many people were extremely fit and possibly very driven in their chosen careers. I contracted covid on the 7th March and would say that I am running at 60 % capacity. I am grateful that it allows me to still cope with keeping my bank balance kicking over enough to keep the wolves from the door. I wish you well and I cannot tell you how much I appreciate all the research that you have put into your understanding of the disease.
Thanks for sharing. I fit your description. Young, fit and used to train regularly. My cardio used to be really good, I could run 10kms up hills no sweat, but after getting covid, I'm feeling absolutely wiped out. I'm going on 3 months of my recovery and am still getting bad fatigue, brain fog and tingling in my extremities. How long did your last viral fatigue last? How are you feeling now after covid? I've only just gone back to work full time, but grind through the week. Hope you are on the up!
@@bennym1326 18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
Hi, I sufferd from covid in may, and I had a lot of symtoms for about 14 days and then I got much better. Started to work again (im a nurse) and it worked for 3-4 weeks. Then i felt weird, my brain didnt work at all, i forgot things all the time. I felt so much anxiety and had no idea why. Then the physical symtoms came back, the muscle pain, headache, dizzyness. The doctor said it was stress and i didnt agree with him. It felt different. My puls went from 60 to 100 when I rised up. I couldnt work anymore. I was home for 2 weeks and i started to take curcumin and garlic and other stuff like cbdoil to reduce the inflammation. And about 3 -4 weeks later i felt much better. I still get relapses. But i can work again. Im still a bit sensitive to caffein, training, alcohol and sugar. Im trying to avoid as much as I can to get better. The experts know nothing and have no treatment so we just have to learn from eachother I guess.
please address the reason the coronavirus made you sick in the first place low glutathione levels,low vit a levels and low vit d levels thats a weak immune system that can only use cytokine storms,the reason you are struggleing your weak immune system cant expel the coronavirus particles in your system that stuff you are taking is good but you have to be target specific to raise them critical 3 levels to regain your health heres a very safe way to raise them 3 levels take mon to fri - 2 caps n.a.c.morn/eve this is critical you cannot have a healthy immune system with low glutathione - 2 caps cod liver oil 1000mg morn/eve - 2 caps beef liver extract 750 mg morn/eve take that for a month then drop down to mon to fri - 1 caps na,c.morn/eve - 1 caps cod liver oil 1000mg morn/eve - 1 caps beef liver extract 750mg morn/eve thats how you recover your health as a nurse you are exposed to a high viral load all nurses should be taking 1000mg caps of liposomal vit c every hour they are on shift its very effective at killing the virus,it stops glycosylation thats how it makes you sick,i can tell you if you take 2 x 1000mg capsules of liposomal vit c every hour for ten hours a day every day until all the symptoms have gone,its quite safe to take that with the other stuff you cannot overdose on lipsomal vit c and its very powerful for boosting your immune system,if you take all of this you will recover your health fully,you didnot ask for this info,i hope it helps you tube dr shiva ayyadurai - vit c the power to save lives start the video 13 minutes in ,i had the coronavirus,i hada runny nose for 3 days,i study the immune system totally free of fake pharmasautical science bull shit on the immune system,this is real science
I have been dealing with this issue since recovering from the virus 4-5 months ago. Light-headedness, extreme fatigue, post exertion crashes, and headaches. Some days are better, some are bad. Nobody in the general public has any idea that so many people are suffering with this -- they know NOTHING about it, because it is not being discussed on the mainstream news (at least here in the US). Everybody is aware of the virus, and how many people have died. But the millions of us that are suffering, bed-bound, with these long-term after-effects are completely invisible and dismissed as being anxious or depressed.
@@RUNDMC1 I am from Pakistan and countires like ours the long hauler phenomenons are almost laughable in general public. I got it March and have been suffering from difficult symptoms till date. My Covid was mild but it is still bothering me. Initially it was much dizziness, then headaches. After that i got a little better but a month ago i had tight chest and uneasy breathing. So finally i went to doctor who said you are fine it's just anxiety but he also gave me a drug called Montelukast Sodium which helped the breathing a lot. One thing i am sure about now is that exertion makes it worse both physical and mental. Anyways, this is single most effective platform who is bringing us together. At least we don't feel alone here. In my personal case i have improved marginally. I hope it gets better completely as time goes by. Well wishes to all.
I've had long covid for a year now and have been booked into an ME specialist. This week I was told by a doctor that my insomnia is because I don't exercise. I went on a short walk on Monday, it is now Saturday night and I have been sleeping 16 hours a day and not being able to cope when awake because of the pain and fatigue. It's not as easy as just getting up or having a walk or a timetable. I've started thinking it'd be easier not to be alive. I don't want to die, and I'm very mentally strong but I'm so exhausted and it's effected my thesis profoundly
Don't give up! I am coming up on my year mark. I know how you feel. I have contemplated suicide many times. I have never had depression or anxiety but something this virus does to your brain seems to cause those symptoms, along with many others. Please do not give up. I have my ups and downs but I haven't had a flare up that I haven't temporarily recovered from. This is good! There is hope. If your symptoms are not permanent and persistent then it is likely something that can be fixed and healed. I have tried anti-inflammatory diets/keto/gluten free. These seemed to help a little but not much. Slowly increases my exercise has helped me but I know others seem to do well with lots of rest. I still don't know what causes the severe flare ups. I have a theory that drastic measures need to be taken to COMPLETELY clear the virus/issues from the body. I think this has to do inflammation, neurology, sympathetic nervous system. So many moving parts but I believe people are learning more and more. I am on day 2 of a fast. My lack of sleep, brain fog, headaches, and depression were getting pretty bad recently so I decided to go on a fast to clear my head and body. Long fasting puts your body in a state of repair and has many anti-inflammatory effects. One of the greatest reported benefits of long fasting is 'Mental Clarity'. I think that the issue resides in your brain and maybe this will trigger or aid in healing. (if you go on a long fast make sure to consume electrolytes(sodium chloride sodium bicarbonate, potassium, and magnesium)) Anyway, just want you to know you are not alone, and believe it or not, people are learning and making progress every day. Just don't give up and don't stop searching. After this fast, I have something else I'm going to try. And if nothing works, fuck it. At least I know what doesn't work. That is one step closer. Just do your best to hang in there. As the number of long haulers grows, so does the demand for knowledge in this realm.
@@NoesKicker thank you so much, I really appreciate this. I've been trying to do keto and taking supplements, I had a week where I was virtually normal, and now back to bed for three days. I'm glad it's slowly ceasing and that more research is being done. I'm sorry you understand, but I'm glad I'm not alone ❤️
@@rosiejennapsych I'm curious what supplements you have been taking! After I come off this fast (not sure how long I can last, I love food too much) I'll be starting a new supplement regimen to see if it has any impact on long covid. The plan is to take Liposomal Vitamin C every hour (I know it sounds crazy) 2x1000mgs per hour for 10-12 hours a day, every day, up to a week or until symptoms go away. Vitamin C has a very good safety profile and the risk is very low here. On top of this, Ill be taking N.A.C., Cod liver oil, and concentrated beef liver every morning and evening. This is a regimen I actually saw in the comment section of a long covid video (maybe this one?). Because the health risks of this regimen is very low, I'm going to give it a shot.
@@NoesKicker 18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
After watching this I felt the need to comment (again) -- I'm a 41 yr old living in the US who happened to find your channel while searching "Post Viral Fatigue" and this series you've done over the last several months has been one of THE BEST resources I've found to help manage what we're calling "Long Covid". All doctors I've seen / spoken to seem to deny/ignore most of this information so its been extra frustrating but now that I'm catching up on your older videos now realizing I should've followed along from before... All the info you're providing is extremely helpful and very well presented. For what its worth -- HUGE THANKS AGAIN! -- Mike O.
Totally true. Pacing has been massive for me esp being a mam to four kiddies including a six month old. It's taken such a hold physically and more psychologically . Every relapse brings it's symptoms and feelings of unease, anxiety, feeling of doom...the minute relapse passes it's like the old me back full of energy. But need to take good days with caution and conserve energy
Hey Sarah, what you have stated here is so true: unease, anxiety, feeling of doom.. This exactly how i feel ! I'm fine for a certain amount of time, the longest i lasted was two weeks four days and then boom it was back again. But you are correct when it kicks back in it really makes you feel uneasy and anxiety can creep in ! Take care and hope you recover soon ;)
Thanks so much for doing these, especially considering you are struggling yourself. As always informative and helpful both for those suffering and their families. I look forward to your future videos on covid or other topics!
As for treatment, I really think convalescent plasma is something that needs to be considered for those long haulers who still feel as if they are suffering from a persistent, active infection rather than an overactive immune response. I have heard some medical pros like Dr Putrino recommend this as a potential therapy as well. In all honesty I cant see myself getting better without medical intervention at this point, so I really hope advancements are made in the near future. Thanks for another well appreciated video, I hope things start improving for you and all those suffering. This sh*t sucks!
Start taking Curcumin or CBD or Melatonin. All immune modulators and anti inflammatory. Have been taking and switching between these for past two years as i suffered back pain for almost 20 years and im fine now. They work by reducing "IL6" inflammatory response. Since covid19 started all three have been touted as treatments in medical papers. Also drink green tea that contains EGCG. Do your own research as im just a random guy on the internet. When you suffer back pain for as long as i have then you keep looking for something that works. Remember that covid19 is really screwing with inflammatory system and regulation of it may help. Hope you feeling better soon. PS melatonin is great for getting a good nights sleep 👍
Thank you very much for your weekly information on COVID19, is really updated and has helped me on sharing recommendations with over 200 hundred colleagues i work with as a primary care physician in covid 19. You deserve waaaaay more views! Good luck on your recovery! Greetings from Peru.
@@RUNDMC1 oh yeah! But many practitioners are unaware of this group of patients and treat them as persistent COVID-19 or even tell them they still have the infection which does not help the mental health of the patients of course. Our Nationala healthcare system has not adressed this topic either. It is mandatory to keep sharing this info.
hola, saludos desde Bolivia, yo soy un long hauler, tengodolores usculares y de articlaciones por todo el cuerpo, ya voy 7 meses desde que di positivo en conoravirus por prueba pcr, nose si puedes ayudarme con algunas reocmendaciones o que debo hacer para vovler a sentirme bien
First of all, I would like to thank you for all your research. My hypothesis is...viruses especially long term viruses wreck havoc on your adrenal glands. Adrenal fatigue which is poorly named can cause long term symptoms identical to long haul covid. Your adrenals are responsible for over 225 bodily functions and hormones. Stressors whether viral, emotional, bacterial, fungal or physical can deplete your adrenals. And sadly your adrenals don’t bounce back quickly. In many cases it takes up to 6 years for a full recovery depending on the assault creating the problem. Histamine intolerance is adrenal based. Histamine intolerance alone causes dozens of symptoms. I believe there is a link with Mast Cell activation. I also believe there is a problem with methylation, MTHFR and COMT. People with poor methylation have problems breaking down and ridding the body of toxins, viruses, bacterial infections. Think about the link between comorbidity and the people that are affected the most from Covid. 95% of the population harbor an in active Epstein bar virus alone. Covid can reactivate dormant viruses. Viruses can affect your mitochondria. Your mitochondria is your powerhouse of your cells. Inflammation affects your mitochondria. I have recently had extensive lab work done because I believe I am a long hauler. What I have discovered are the best supplements to take are Ashwaganda for the adrenals, liposomal vitamin C, zinc, quercetin, garlic, methylated vitamins and minerals, Moringa, turmeric and ginger, Blackseed oil, berberine, omega 3, iodine and if your hormones are deficient have them replaced with Bio Identical Hormones. No steroids because there is nothing on the market that mimics Cortisol rhythm perfectly. Nutrition, nutrition, nutrition. Avoid inflammatory foods. Another thing to focus on is your gut, what’s going on with your micro biome? Your body is not going to heal unless your gut is healthy. There is my two bits, it has worked for me and my heart goes out to all of you you who are still suffering.
@@TheKayannh take a heaped tea spoon of slippery elm bark powder in a glass of warm water 15minutes before eating this plugs the holes in the gut ,most auto immune conditions are caused by leaking gut syndrome,food particles get into the blood stream through the holes in the gut that makes the immune system become over active,if after 7 days you dont feel the healing increase the dose to 2 heaped tea spoons 15minutes before food the holes in the gut will heal in days ,it can take up to ten days
I’m 71 and have been struggling with this since Dec 2019 then got nearly well and ill again 2 times. The third bout began in Dec 2021 and I’ve been so slow recovering and feeling so hopeless. If it wasn’t for my son taking me into his home I believe I’d have died. I’m feeling improvement each day finally by maybe .01 percent but still have many days where I’m just down for the count. I’m determined to recover and regain my active lifestyle. I’ve changed my diet and given in to the just rest advice but I know I have a long way to go. Thank you for this video. Sometimes I feel crazy because no one understands that yes I’m really this ill. And btw I have never received a positive covid test. Always false negative.
In 5 days time I will hit the 2 year milestone with LC. A brutal illness. Totally changed me physically and mentally. Still cannot work. Still cannot live with my partner and 5 year old.
Gez Big Thanks for your videos! I feel excited at the future for long covid research thanks, in no small part to some of the people you have interviewed over the last months ... If there is one aspect of your videos that helped me immeasurably it is that you have helped me with my concept of "humanity" and gifted me greater "dignity"! Looking forward to viewing more of your work! Many sincere thanks! Keith xxx ❤
So im not alone.... Neverending nightmare, soulcrushing terror.. plasma is our only hope . Yesterday i watched interview with Auschvitz survivor woman and she was speaking about her 5 months terrible "recovery" in camp's hospital , and that all she had was a two cups of water and piece of bread every day.. And after this terrible war trauma she managed lived long and stay normal person for almost 100 years .People are incredibly strong . But you cant be alone. We need each other We cant cry too much over ourselves. Everything will be good with the time. I send all of you a big hug.
I'm with you in most of it that. I have had ME for over 20 years now having tried to return to work on GP advice following a viral illness and become very much worse. I don't think it's possible to understate the importance of sleep, rest, pacing and proper convalescence for as long as it takes, potentially a year or two.. I'm worried that the dangers of exercise and pushing through haven't come across well enough nor the unrealistic nature of the government's suggested return to work schedule in this video, which is disappointing as it is otherwise mostly good. Any increase in activity must, must be sustainable and recovery-led or these poor people will just be back where they started with each crash; the difference being that it's what is done to rest and pace at the beginning of a post-viral syndrome that makes the biggest difference to prognosis if there is anything to learn from ME. I would stress for other readers that ME encompasses a constellation of symptoms rather like those found in long haulers and is in no way restricted to post activity exhaustion. I'm sure some will make a reasonable recovery in a few months while for others it will take longer and the way they manage their energy to avoid crashes will make a huge difference. You cannot start quickly zipping up the increments the moment you feel a bit better. The process really can take months but is so worth persevering with 💗
How do you not work for a year or two? I keep reading that people need to 'rest' but tell me exactly what you're supposed to live off? What if you're a single mom with 2 young kids? I'm 6 month post covid and I wish I could just stay home for a year or two and wait it out but I fail to see how this could happen realistically speaking
dmdm51100 that's the mistake I made and I got so sick I have been unable to work for over 20 years. All I can suggest is you ask for and accept all the help you can get. I sometimes wonder how things would have been if I hadn't caused myself permanent damage trying to return to work for exactly the kind of reasons you describe. Really we need the government to provide wrap around care for someone in your postion and support along the lines of the furlough scheme. It's not there now but it could be a campaign objective for long Covid groups. It's what is needed. Living on ESA is a nightmare even if you manage to get PIP too. Wishing you the recovery you need 💗
Thank you for sharing this video, brings me comfort to know I’m not alone. Recent covid long hauler, almost 2 months. Still suffering from shortness of breath and extreme fatigue. May time and research bring us a cure soon.🙏🏻💞
Those are my symptoms also. Was playing pickleball two to three times a week for 3 hours. Went to bed one night feeling great Woke up the next morning feeling really short of breathe. After 4 days without getting better got tested for covid and it came back negative. Well it's been over a year now and finally getting back close to normal. Still get the shortness of breathe once in awhile and still get tired at times but not to bad. Worse thing Ive ever had. Ended up in the hospital a couple of times but slowly started feeling better after about 10 months.
@@RUNDMC1 Can you please tell which SSRIs and for how long ? I have been suffering from insomnia for last 5 months after covid. Also on Ambien for last 2 months, still don't get proper sleep.
Thank you. Doctors in the US don't even believe us. I was almost all better but I over-exerted and it set me all the way back to zero, with new symptoms. I wish I had known not to jump into exericse.
Same case for me. I had covid in may. By july I was feeling fine and start again with my exercise routine. My heart did the job, but when I finished I feel like having a heart attack. The next day was the worse. I feel exactly like in those days when I was dying from Covid in the worse day. I fell in bed for 3 weeks and the recovery was slow as it was in the initial covid. Now, six months later I'm still very tired all the time, have always mental fog, when I eat my meals I feel like choking and I can't breathe. In my worst days I have migraine, back and chest pain. Whent to the doctor, EG. Was fine and the doctor said it is just anxiety. He give me fluoxetine and clonazepam for sleep. (With no good results). My blood test was right, white blood cells, neutrophils, everything seems to be ok, but I feel not ok..
Fellow long hauler since March, just watched and wanted to say thank you especially about the allergy stuff - I've had swollen itchy eyes like I've been cuddling a horse for the past couple of weeks which is a recent addition to the list! BUT.... Feeling better after a month-long relapse where was sofa/bedbound, even if 'better' these days means being able to stay awake 9am-9pm, take a short walk and do a half-day of work (from home)! 100% feels like a very long way off... but having the support group and great GP make all the difference. Good luck!
"that's what i've been harping on about for ages" bahahahahaha love it. i'm at almost 5 months. had a "relapse" this week where my fever got worse and my brain could not connect words together to form a sentence. it was almost like i was delirious. i could not work. only lasted a couple of days, though. i knew it was worse because i had a racing heartbeat and absolutely needed to nap. when i woke up from each nap, i had completely sweated through my clothes each time. i even had to order delivered groceries because was too exhausted to go myself. i feel the same way about planning my day. have you heard about the spoon theory? it definitely applies here. this time last year i would be working full time, doing wedding hair on the weekends, and gardening my flowers outside. sad. also, thank you for making these videos. it's really going to help a lot of people. the numbers of long-haulers are just going to get bigger as more people get sick.
@@adafridi no i will keep making a real fool out of md doctors,i just cant help myself they are so useless and pathetic they have zero diagnostic skills,lots of md doctors are covid long haulers,i wont be taking any advice from them,
@@surlespasdondine still having issues. Scared to eat incase my blood pressure spikes. Feel awful. There's no way I'll get help for it anytime soon either as the UK is so slow at these things.
@@metanoiabooks3729 your own weak immune system is keeping you stuck in sickness,your weak immune system cant expel virus particles from your system,its easily healed,md doctors cant heal your weak immune system,they have no training on your immune systems 3 main fuels,thats exactly why theres thousands of covid long haulers,md doctors cant tell you something they are not trained in,you have to kill the virus in you take 2 x 1000mg caps liposomal vit c every hour for 12 hours a day,its very very safe you cannot overdose and its very gentle on the stomache,high dose lipsomal vit c has incredable anti viral properties when given in high doses,by the end of day 1 you will feel much better, you take the high doses of liposomal vit c until all symptoms have gone,now you must heal your weak immune system safely,this is designed by a biological systems engineer fully trained on the immune systems main nutritional fuels,take this mon to fri - 2caps n.a.c. - 1caps cod liver oil 1000mg - 2caps beef liver extract,if you take exactly whats here you will quickly regain your health and go and tell the md doctor what with,they willnot congratulate you
I would like to thank you so much for this episode of yours as it has helped me tremendously. Was seriously getting to the point of depression frustration and unhealthy thoughts. So thank you again from Benoni South Africa best regards Irene
I appreciate your videos. Currently watching a young relative suffer. It's heart breaking. I have faith 'they' will figure it out, but the wait is taxing. Healing energy to you.
@@jjones7054 sorry my computer broke on christmas day morning,are you a covid long hauler or a post viral condition person that cant recover their health,m/e sufferers chronic fatigue suffererers covid long haul sufferers,these conditions are being kept in place by a weak immune system that cant expel the virus,i study the 5 box immune system and its nutritional requirementsthats how i can tell you how to heal this condition safely in a very short space of time,if you are an md doctor please say,i dont like md doctors,if you say whats going on i will tell you
Took loads of vitamins ,an antihistamine diet helped me regain energy after 14 months as the covid leaves the body with inflammation from mast cells , B12, B multiple ,loads of C, D ,zinc , bromelein and anything else I could think of.
Hi I have found the b vitamins and zinc helps me to. I am 2years down the line now and still have brain fog and very forgetfull. No more fiscal symptoms. All the best
@@janybekorozaliev9052 hi. Lots better but not as good as a was before a got s sick. Mostly brain problem. Memory lurning problems and brain fog some day's.
I'm still recovering after nearly 9 months of post-viral fatigue (probably not COVID as it was so early I contracted it); the diagnosis of which I am occasionally dubious about following the scepticism of my friends and colleagues and the suggestion of a reactive depression - I won't go into it. I actually contracted the virus sometime in October, and was a slow burner until Christmas, after which I went downhill with exams and celebrating perhaps. To be clinical my symptoms were profound debilitating exhaustion, post-exertional malaise, brain fog that inhibited my ability to think clearly, to understand/process information, and even affected my vision. My ability to multitask (even carry two things at the same time) was compromised. My sleep was grossly disrupted and I had muscle aches darting through my body for no apparent reason and no pattern. My appetite completely disappeared, I was weak and looked hungover/had the flu for months. I was bed bound for 5 months - I got up in the afternoon and went back to bed soon after, exhausted. Any push through a limit, be it walking 20 mins around a park, would land me back in bed for the night. I was so pale and sick looking, so weak, and my brain fog was terrifying. I forgot peoples' names, forgot my own phone number, spoke without making sense, mixing up the syntax of sentences and not evening noticing it. Of all years I was in my final year of Medicine in Ireland and so I had to defer my exams from March to just last week in August. Miraculously I recovered week by week, with plenty of crashes in between, which was emotionally devastating and disheartening and put doubt into every moment, but with time and with each crash, I realised that it was an upward, albeit tedious trend and each crash was less severe than the last. I also became more aware of the vague signs that a crash might be imminent (be that the next day even), and came to understand when I should stop, in my case, towards the end of my recovery, studying. I limited exercise completely so my main challenge was maintaining the balance with cognitive effort rather than physical, to allow me to focus on my exams. Thankfully, I have passed my exams and I am now a doctor. I've gone to the gym (lightly) twice this week, which in January I never thought I'd do again so it was something of a massive milestone today, and so I'm going to try and not overindulge in the idea that I'm almost completely well and take it easy - one wouldn't go running 20km after 9 months off the track either. The reason I'm saying this is to encourage people to keep the belief. I know mine wasn't or isn't as bad as others, but my fear at the start was that it would be, so if you're at the start, just take it easy - a few months sounds so so long from the start point but looking back, perhaps because it's so boring, or maybe due to the brain fog, it's really a blur and more of a blink of the eye. So just believe you will get better (what's the harm of hope in this case), and take it easy and be patient. My biggest turning point was a mental one - acceptance and relaxation into the idea of a gradual recovery, a blind faith at the time to be frank and reassurance granted by the slightest recovery every week or month, even when I thought I might be imagining a recovery. Even now, after coming so far, I have the fleeting rare pangs of doubt of a "full recovery", but I just have to will the rational part of my mind over the fearful emotional one. "Look how far you've come. You're at the last 100 yards". As the recovery progressed, it became almost exponential, with each level up building on foundations below, compounding my confidence that it was actually happening, exhilarated by even mundane things people took for granted like going out for dinner with friends. So I hope I offer some (long-winded) advise for people to believe in yourselves and stick it out. I'm not religious at all but have faith and try your best to be kind to your body, and especially your mind. It's astonishing how more ready my body was to recovery when I let go of the huge tension and despair that I would never recover. Maybe that says something of a neuro-psychiatric interplay in this condition (that doesn't mean 'all in your head', or that it's fictional). That's absolute poison for a recovery. Be good to yourself and celebrate every positive outcome on the way. I mean every single one. In my diary the first week, I had "Today was better, was able to get up for a sandwich and go back to bed." Just because you're like this now, doesn't mean it'll be forever. You'll learn more from this experience than you have in your whole life. Aim for progress not perfection, is a quote from some film probably. Best of luck. Text me on instagram if you need assurance, can't promise anything. You'll be typing this back to the world offering help sometime in the future. Be patient. P.S. at the start I was totally intolerant of alcohol - it would land be in bed for 3 days minimum. My tolerance has gone up a lot, which is somewhat of an indicator of my recovery in general. Still taking it easy though!
Hi Ferdia, if you’re in your 20s then this was *probably* EBV related PVFS - and the timing makes sense too. Took me a year when I had it before finally starting to feel better. Same intolerance to alcohol too!
Ferdia Browne I started trying to go for small slow jogs again too soon. I have now cut out all exercise, bar essential walks to the shop etc. I haven’t put my running shoes on in 2 months. Generally speaking, my overall fatigue/headache/brain fog levels are the same as they were months ago. No improvement yet.
@@RUNDMC1 and back when you had PVFS did you ease into it gradually? fair play for making the videos and doing the research, I could barely do that without any brainfog!
Thank you! This was extremely helpful, and like another commenter said... Validating! I appreciate your work on this topic. It also helps to know that you're going through it as well. Again, thank you!
I have been out of hospital for just over two weeks and have a lot of the long covid symptoms. Although I recognise that long covid is defined by symptoms after 12 weeks. I am putting myself on an anti inflammatory diet, a litre of green smoothies a day and a ton of anti inflammatory supplements. I don't know what else to do since there is no official advice or treatments. We all have to try something though! Keep looking for your own answers guys and if you find something that works, share it!
I take L-Tyrosine three times a day. It has changed my world. I will say, you are not well. It addresses the juicing of neurotransmitters by working on Dopamine. It lifts my fog, helps my memory, and smooths out my cognitive functions. Mt fatigue is greatly improved but, if I miss a dose... I am in the dirt. I am still suffering the headache and vision decline. I still have days where I am dizzy but, mostly that has improved on the supplement. My mood is improving and I don't know if that is movement and accomplishment or the L-Tyrosine. I would say in total it has a temporary effect on 50% of my symptoms. As always talk to your Dr. about interactions with anything else you are taking and any conditions it might affect. For me, I am grateful it works so well. I have not taken a fall since I began. Vertigo and weakness would tip me over unexpectedly. The mental benefit makes me cry tears of happiness because the exhaustion was induced by both physical and mental efforts.
Thankyou for continuing to advocate for us. Amazing to have voices heard. 5 months in definitely feel like one of those old batteries you can press the side and see it's nearly flat lol pacing is a skill to learn for sure, needs commitment and crucial acceptance.
@Liam Tytgat Had covid 4 times now, It's taken a year since the last bout to recover to be able to exercise again. Still have to pace but so much better. Now dairy free and take daily ViT D and B complex.
@@zoemac7676 that’s wonderful to hear. I’ve had it 3X myself. Been off work for 7 months getting better slowly. My recovery really started to happen once I began to intermittent fast. I had more energy clarity of mind and less anxiety. I then try prolonged fasts and it helped even more! I urge you to give them a shot in you are healthy enough to do so! Good luck
Here's the reality of 'pacing', for me. I have NO idea, how much energy anything will take. None. My energy level is, generously, 20% of what it used to be. On a Monday I might take a shower and make a phone call and be wiped out. On Tuesday, I can read a book for 5 minutes and that's all. On Wednesday, I feel my energy plunge just thinking about paying my bills and can't do anything at all. On Thursday, I can stroll in the garden, work on an art project and fix dinner and not incur any post exertional malaise. But. I. Never. Know. Same with symptoms. It's like the arcade game Whack-a-Mole - one day might be headache, nausea, and dizziness. The headache might run for several days. The next day it might be inability to focus and body pain. I even thought, at one point, that I'd reached that miraculous 'it will finally go away' - teased by three weeks of increased energy, lack of pain, brain fog, nausea, etc. I didn't overdo. I scheduled a few simple activities - maybe cooking a meal one day, paying bills another, watering the garden, or working on an art project, reading a book, but often not doing anything - mostly relishing the relief. Then it all crashed again. I think THAT's the cruelest of all.
Libby - you’ve described this perfectly. It’s the sheer cruelty of never knowing what will be too much. You have to live in a self enforced activity prison (a metaphorical glass box with spikes on the sides) to have any chance of not crashing - but to do so is not living at all
@@RUNDMC1 so I take chances. Walking around the garden or watering plants still releases those happy endorphins, and they are worth the price. But damn, it would be so wonderful to find a cure. I have fibro and dysautonomia on top of it all, so this took away even more. And in the US, the insane rules for pain medications make every month a grueling torture as to whether the pharmacist will argue about filling the prescription, or has completely refused to accept any from my pain management doc. The anxiety surrounding that exacerbates everything. The only people having a hard time getting pain medicine are legit patients. The laws have actually contributed to increase of drug related deaths 😒
I’ve had long covid for over a year and still suffering from fatigue, loss of smell, dry skin, receding gums and headaches Set off with flu type symptoms, headache, muscle ache, bed sweats. Not worked in over a year. Used to work hard, cycle to work, heavy weight training 4 times a week, now I’m a lump on the sofa who now has no patience when my infant children’s play gets too rowdy. I used to roll around the floor with them. I’ve tried light exercise, but that just sets me back, supplements, smell training, no alcohol, rest, fresh air, but nothing seems to work. Recovery is so slow it’s hard to tell if it’s stalled. Depressing, especially when ignorant people say I’m putting it on. Hopefully time is the answer, but after a year it’s hard to remain optimistic
RUN-DMC will take a look. Thank you for your videos, I’ve only just found your channel Really glad I did and have now Subscribed Had no idea about the low histamine diet. I’ve been getting it wrong with what I thought was a healthy diet The covid slack group I’m a member of hasn’t mentioned it
Now just under 4 years suffering from Long Covid. Dismissed all the way. Now my blood tests show antibodies for a rare autoimmune condition (systemic Scleroderma) Rest Syndtome on top of LC. I’m still waiting to see a Rheumatologist and my local GP seems to be unaware of the potential disastrous prognosis of SSc. I have lost faith in NHS acknowledging post viral sickness and the complications that causes long term especially when NHS care is so varied depending on what city, borough you live in.
did you take the product that came out in 2021? I haven;t heard of anyone getting AIDS from the 'wild' type, but common after the product. Before he passed away, Luc Montagnier told people who had taken 3 or more to get tested
18 months and still struggling though I feel most of the weird symptoms are leaving. still struggling with thick mucus sometimes blocking my throat, any advice on dealing with this?? I was so allergic, my mouth and lips were numb for the last 3 months low histamine diet definitely helping and research some good supplements to support your body and gut. My Gut and immune was totally messed up due to the horrible medicines and several anti biotics I was given. My healing and improvement is since I STOPPED going to Allopatic doctors. Did a parasite / worm cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice. gas lighting and gut destroying medicine I was given. be your own doctor. Support your body, naturally and allow it to heal... food and natural supplements, release the fear and a anxiety. This virus is like satan to me... wrecking havoc with our lives, our livelihoods and our sanity
I have had chronic pain and inflammation since April. I went gluten free after hearing about leaky gut syndrome and how protein particles can get into the bloodstream and cause an immune reaction. My symptoms definitely improve when I avoid gluten. I was already vegan so wasnt eating dairy (another key allergen). Worth experimenting with dietary changes.
If you suspect leaky gut (which is highly likely on a vegan diet) you should asap start consuming meat stock (not bone broth). The gelatin and collagen in meat stock are the main building blocks for your gut lining!! Please read about this.
thanks for this video, been battling through this since march, pre covid i was a high level cyclist, training 15/20 hours a week, i have managed to maintain a low level of cycling but the waves of fatigue, other the following few days, have had to continue to work full time as doctors & employers were unwilling to help/understand my issues as was previously such a fit person so i could cope/push through. currently waiting on electrocardiogram
18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
Stumbled upon this by accident and just wanted to say thank you for your informative videos. I ended up in hospital in middle of March and on a ventilator for 23 days. Ended walking up in the middle of April and then was discharged from hospital on 1st May. My body was in a lot of aches and pains but have now since subsided since I started taking magnesium and turmeric vitamin supplements. My body is however producing excess mucus which results in me coughing. I do steam inhalation every night and the doctor has prescribed me an inhaler and nasal spray to help clear up and airways.
@@notsogreen i have mild fibrosis at the moment. the respiratory consultant said if should disappear over time. doc friends have said that it is reversible and doesn't leave permanent scarring
@@SohailAnjum72 Lung fibrosis also called scaring, is permanent. The lung cannot reverse fibrosis. The liver is one organ that can sometimes reverse fibrosis or lessen it in some people, not so in the lungs. Fibrosis in the lung may not progress and stay stable, but not reverse.
@@SohailAnjum72 Hi with fibrosis do you suffer with difficulty breathing. I had Covid four months ago still suffering with breathing problem my ct scan is ok
@@manindermanku8667 I have scarring left in one side of my lungs. I don't have breathing problems as such but I still get shortness of breath when walking around. Will probably be put onto a stronger inhaler. Get your GP to organise a lung functional test so determine how much oxygen is getting into your lungs. I was told the airwaves lower down seem to be restricted
Angry with the response from my GP, I switched to another GP who is more sympathetic to what I'm dealing with 11 months after the infection. Today, I'm functioning maybe at 90% of what I was before the infection. What I'm finding helps is forced walks, long distance, a regimen of NAC, vitamin C, D3, Complex B, removing sugar and gluten from diet, and eliminate red meat totally. Using a CPAP helps with sleep and for covid somnia, I'm using Benadryl. It took months for the large muscle leg pain to vanish. I am part of a long-term COVID-19 recovery study, and participate in a support group for persons suffering with COVID-19.
My 30 year old (previously ultra fit and healthy) son has had long covid for over 3 months. The headaches have improved slightly but the heart palpitations have not. He has not been able to get a heart scan on the NHS as doctors know how expensive this is - so money comes before peoples lives. He cannot get cardiovascular treatment UNLESS he has the scan!
Just wanted to add a few person insights from my own experience. I first had Covid symptoms in February and it was labeled pneumonia, because there was no Covid testing. In June I was tested for antibodies and the test was negative, but still having long-haul complaints, and having retired because of not being physically able to work anymore in March. In mid-summer, I decided to see a Functional doctor, then the day before my appointment, came down with a fever and had to cancel. Symptoms quickly turned into gastric Covid that included respiratory symptoms also during the second week. Six weeks later, I am still dragging and finally saw the Functional doctor last week. The blood work she ran actually explained all of the symptoms, including an alarming calcium deficiency and very high autoimmune antibodies, indicating an autoimmune flare. My follow up visit is next week, so I don’t yet know what the treatment will be, if any, other than supplements, but at least I know the reason I feel so awful. Gez, the symptoms you describe and the treatment with steroids sound like an allergic reaction, and it is possible that you had an allergic reaction to the virus. Have your autoantibodies ever been checked? You may have an undiagnosed autoimmune disease. A flare can feel exactly the same as you describe, and any viral or bacterial illness can trigger a flare.
Ive had ME/CFS for 18 years, all your symptoms you describe i have, pacing i do all the time now, still end up in bed! it wont go away and has changed over time, it becomes more deep seated and nasty, i have lost my career, and my social life, lockdown has made no difference to me as that is how i live now. Lets hope with this we get some answers but i doubt it! they have ignored ME/CFS and will carry on doing so! good luck it seems that is how your life will be now, welcome to the ME/CFS community!
This is brilliant and made so so much sense to me. Thank you. I am pretty much recovered from long covid. At my worst there was no information and i was relying on talking to other people on here. My Dr was very unhelpful. I called every 3 weeks or so. Only to be told my breathing difficulty and fast heartbeat was anxiety. My fatigue was low blood sugar. I couldn't even have a shower or make a cup of tea without trembling and needing to lie down. If i tried to push through things, i would end up in bed for 3 days. I thought i was going mad. I too drank tons of water. I don't even like water.
@@jeanettevalencia1975 4 months. I was back to work soon after. Although i still experience breathing issues, they are very mild and i haven't seen a Dr. I'm really sorry to hear you are poorly. It's a bizarre thing to have going on. Its very up and down. But I'm certain that doing things. Even simple things made me worse. I'd think i was on the mend. Then I'd say, wash up, and I'd be ill the next day or 2. My recovery: My husband made me stay in bed. I was only allowed out to quickly shower and use bathroom. After 5 days i really felt I'd turned a corner. Then i was very very careful to do the bare minimum. I was mainly in bed. Then my recovery happened really quick. I would really love to know how you get on. I know everyone is unique with different lifestyles. I hope you're not too down.
@@amandah5478 thank you so much for responding! I’m 2 months in. Anything I do tends to set me back, no matter how much I sleep I still wake up fatigued and weak. I’m mainly in bed. It’s very up and down for sure. I started working from home 3 weeks ago and I think it was a big mistake. Im struggling to get work done. I’m going to take another 4 weeks off in hopes I’ll get better. It sounds like sleeping and eating well helps.
This is the second time I've listened to this video. Thank you so much. Your videos offer tremendous emotional support. I also listen to a couple of medical lectures by excellent physicians who "get it," and are trying to figure this out with us.
I have ME, rather than long-Covid but I am very interested in these videos as I see a lot of overlap with ME. I feel the advice offered is absolutely top-notch and I only wish I had known this at the onset of my illness. I would echo the concerns about steroids unless absolutely necessary to treat a specific symptom. I made the mistake of using them to support my return to work but I believe they gave me an artificial feeling of well-being and energy which led to me overdoing things and resulted in a serious, permanent decline in my condition. In my experience, pushing yourself to do more is counter-productive and short term gains will result in long-term, possibly permanent losses. Wishing you all, all the best for a good recovery. Following the advice in this video is, in my opinion, the best way to achieve that recovery.
I'm with you in most of it that. I have had ME for over 20 years now having tried to return to work on GP advice following a viral illness and become very much worse. I don't think it's possible to understate the importance of sleep, rest, pacing and proper convalescence for as long as it takes, potentially a year or two.. I'm worried that the dangers of exercise and pushing through haven't come across well enough nor the unrealistic nature of the government's suggested return to work schedule in this video, which is disappointing as it is otherwise mostly good. Any increase in activity must, must be sustainable and recovery-led or these poor people will just be back where they started with each crash; the difference being that it's what is done to rest and pace at the beginning of a post-viral syndrome that makes the biggest difference to prognosis if there is anything to learn from ME. I would stress for other readers that ME encompasses a constellation of symptoms rather like those found in long haulers and is in no way restricted to post activity exhaustion. I'm sure some will make a reasonable recovery in a few months while for others it will take longer and the way they manage their energy to avoid crashes will make a huge difference. You cannot start quickly zipping up the increments the moment you feel a bit better. The process really can take months but is so worth persevering with 💗
RUN-DMC I’m not sure where my original illness ended and ME set in. I had Sarcoidosis (Lofgren’s Syndrome) in 2001, which was only supposed to last 2-3 months. But after 3 months, I was still ill, so I was put on steroids. I was a self-employed training consultant and I went back to work feeling great. Over the next two years, I worked, eventually taking steroids for 5 days whenever I was running a course (2-3 weeks a month). It got harder and harder until, eventually, I had a major crash and was never well enough to work again. That was in 2003. In 2006 I moved to another area and, after more tests, I was told I had ME rather than Sarcoidosis. I suspect I went back to work with PVF rather than Sarcoidosis. Please let this be a cautionary tale to you all. Believe me, I know the pressures when you’re self-employed. It was 3 months without any income that sent me back. Start the benefits claiming cycle sooner rather than later (that will take plenty of energy!). I strongly recommend benefitsandwork.com to support you in this, as claiming benefits is a minefield and many people get wrongly turned down. Sign up for their free emails, then use the voucher they send you for cheaper registration, which allows you to access their brilliant guides. All the best!
@@ysbyttybedbug Taking some things like steroids can lead to a false sense of security when the tank is empty. It's a natural inclination to make up for lost time if you start to feel well. A slow paced healthy lifestyle without stress is the only way. Stress can be like a drug which means your body is taken out of recovery mode but you still feel ok then the stop is obligatory. I went on like this for years and the recovery will take just as long, so I've been reliably informed.
Me too! Im sorry youre still sick. Ive been reaching out to hospitals and educating them on long covid. In the ER some docs have NO IDEA AND THINK ITS ANXIETY. omg..
I’ve lived with all of these symptoms for 10 years after contracting a virus, there’s no let up in sight , people with m.e/cfs battle this everyday of their lives for decades, this is noting new , full systemic illness which effects every part of our bodies from cognition to mobility , renal to sensory , the list goes on
Some people have said they have gotten over me/cfs though with time. So I hope there is something to help everybody going through these terrible conditions. I hope theres something to help you and me too. 🙂
Btw I’m not a wishful thinker, the reason for me commenting is to try to find solutions to the problem, like maybe those people have done something we haven’t tried yet. I’m not saying it to be one of those people who argues with your own personal experience as people do that to me and it’s very annoying. I’m just saying if other people were able to recover maybe we can too.
Best video I’ve seen yet. I’ve got a to do list I keep in bed with me. Last week I tried to push went hard and by hard I mean a normal day. I was a beast before covid. I’ve been writing scripts, studying films, researching grants, running a resource group. So both cognitive and physical activity take me down. Here in the US we have problems getting unemployment. Right now I only get 181 a week and it took five straight months of calling 8-12 hours a day. Even during the throws of covid I had to call. I’ve been laid off cause I literally can’t work. Was crying today so thought I’d research RUclips see what’s out there and this is a very well put together video. Excellent info. I’m going to share in my support groups and continue to follow.
Thank you for your support. So sorry to hear you’ve been struggling too - best of luck with your recovery! And as for the crying - I think we all do that. I made a film about covid and mental health too - it messes you up.
RUN-DMC I’ll take a look. I wrote out a RUclips series but I can’t even film right now which is killing me. Boundless mental energy but there is where I’m at. I think acceptance. I’m worried about about not going back to baseline. Thought I could push myself there. Nope. Will search for your video. Just sent this one to other long haulers. Side note: got off Facebook again after watching this video. Have been back on for five days and have been bed ridden worse than the week I was off so deactivated again. Thank you for the video.
Thank you for all your efforts and research Jez! I am watching your videos intently to prepare myself if my symptoms continue. Chest pain, headaches, and fatigue for last two months to name a few, I wish you all the best for you to get back to 100% too.
Gez , I have been following you for a long time I have been suffering horrendously for 2 1/2 yrs and the last 8/9 months bed bound in this year 2022 Most if not all long Covid symptoms are caused by the Vagus nerve stuck on the Sympathetic side ( fight and flight ) causing all these symptoms Last Tuesday 14th Sept 2022 I started vagus stimulation on my ears Vagus nerve breathing exercises Vagus nerve eye reset techniques Everyday I started getting calmer Firstly I was not gasping for air during exertion Then my heart stopped racing on exertion Eventually on day 5 both symptoms ceased and my mind stopped racing especially at night which helped my sleep I noticed on my Fitbit that my deep sleep had increased by a long way which has helped my recovery On that 5th day I could feel a lot of movement in my head and then eventually a tap was turned on and my usually dry nose started pouring out snot I no longer had any long Covid symptoms at all I stupidly went for a walk the next day but suffered PEM and also from a walk the next again day All stupid on my part as I should have know that my body was still full of inflammation These last few days I have felt inflammation receding and I have had very bad “ cold” symptoms as my body is recovering , adjusting and repairing My glands are still fully swollen and my jaws are sore due to my body getting rid of whatever it is It is obvious that it takes a while for the body to recover even when you have fixed it I am now fully convinced that the Vagus nerve is fully responsible for the continuation of long Covid I urge everyone to set aside 10mins - about 3 times a days to do vagus nerve stimulation, vagus nerve breathing exercises and try the vagus nerve reset with eye exercise There are many tutorials on RUclips for all these Just a note to say I took Magnesium citrate 500mg (150mg of active elemental magnesium) each night which enhanced my sleep When doing the ear stimulation take slow deep breaths and when exhaling really let your body crumple down into relaxation while continuing to stimulate. Each for 5 mins - 3 times a day I know this is an old video but I hope that Gez picks it up and try’s for at least a week ( 5 days for me ) You can really feel it working as you go along the process I know this is long but I really want to share this success that I never ever thought would happen This really works and I hope Gez will give it a go and share his findings GET your VAGUS nerve sorted and good luck all
@@travisduran5718 11 months in. I had my worst flare up last month, but I now also feel better than previously. So strange. Bone aches, head aches, fatigue and chest pain are my main symptoms on rotation.
Very glad I found this channel. I first got ill back in March before testing was available. I've had severe symtoms since then and one relapse in November. It's been a long road. I've completely changed my diet and I am trying to do more selfcare.
I'm not an expert or amazingly well informed. But I have had fatigue for years - so I have first hand experience. It seems that maybe 1 in 10 of people with long covid are not even being taken seriously by their GPs - this is unfortunately my experience with fatigue as well... I've got to say that I don't think anyone will get really any help with long covid if my experience is anything to go by. What you say about corticosteroids makes sense from what I understand. However, what I have been doing for the last couple of years is taking 1g per day of L-Carnitine (a low dose) which is something you don't even need a prescription for - I'd love to tell you what the medical profession in the NHS has to say regarding my case, but I have been on a 3 to 4 year waiting list already to get treated (and this is my third attempt over the 20 years I have been struggling - so last couple of attempts took years as well and I just gave up trying). So I am self medicating - taking a gamble basically. L-Carnitine is generally used by fitness fanatics or people trying to lose weight, as it helps your body burn energy stores in the body and gives you a more lean physique - but it is also useful in combatting exercise fatigue. There are various studies into the effect of L-Carnitine on chronic fatigue that seem to suggest it works (though is a mixed bag) - it appears to boost hypothalamus activity as well as transfer of energy in your cells. But in some respects L-Carnitine does act like corticosteroids in terms of it's masculinizing effects: and fatigue and immune disorders is most common in women (and it appears men have naturally have higher levels of L-Carnitine in their bodies). As I say, I am not an expert. Before taking L-Carnitine I was in so much pain I was almost breaking down in tears just trying to walk half a mile - it was like having knives grinding into my joints. And consciously I was just like a video camera detached from the world. But within a week of taking L-Carnitine I was feeling so much better - the first couple of days I did feel like I was going to have a heart attack or something... But now I just feel fine. I've tried coming off L-Carnitine but within days I feel ruined.
That's interesting i was thinking the same with creatine, which aids with your recovery time. got some thing to do with converting ATP quicker from ADP.
I couldn't click on this fast enough. I'm terrified about recovery not being possible, as I'm sure many can relate to. I'd be happier if the fatigue lessened and I wasn't out of breath so easily. I could deal with everything else a lot easier if that were the case. I will be going to a pulmonologist soon so crossing my fingers he has an idea of what to do. I did have to go back to work. I live alone so not having a full income wasn't really an option. I'm on medication to help with the fatigue while at work. Then, depending on how busy work is (I'm a nurse) and how many days I work in a row, the next day will inevitably be spent sleeping, joints aching, hardly getting out of bed, sometimes only to go back to work and do it again until i get a day off. Even my days off, where there are things I HAVE to do (like grocery shopping) still end up being spent mostly sleeping. There's no such thing as a day without multiple naps anymore. I just can't.
I have been the same... and had ground glass inflammation changes on CT scan at 3months post infection despite being an athlete pre covid and no lung conditions. Pulmonologist review i hope will do respiratory function tests with you. I have been assigned respiratory physiotherapy as we develop dysfunctional breathing post lung infection esp. when residual pain. I have found NAC supplementation, to be helpful but have been advisd to do a course of steroids to help clear residual inflammation. I am tentative due to side effects but will take a low dose just 2.5mg prednisone and build to 15mg if tolerated. Wish you the best.
@@fabulousdoc I've had respiratory function tests done which show an extrinsic restrictive pulmonary issue. Hoping to get a plan to reverse that, if that's even possible.
@@MaxPlaysFIFA While I do have prescription medication, I can no longer say it work 100% of the time. I was taking half a caffeine pill before work, which did work 100% of the time but caffeine interacts with other medication I'm on so I had to stop. I guess I'm kind of back to the drawing board on staying awake at work.
Hi everyone. After having quite mild infection at the end of March , I became aware of the relapses in the second half of April when I tried to get back in shape with exercise. One of them at beginning of July I even mistaken for re-infection since it was rather strong after feeling great whole June . As I write this I'm hopefully at the end of another one. Last couple of weeks I've done my own research all over the net. I'm kind of confident now that it's indeed mostly the matter of elevated pro-inflammatory cytokines (probably IL1, IL6, IL8, TNF-alpha and maybe some other too) due to ''confused'' immune system. Gonna attach some links at the end but idea is to lower those with either homeopathy or Ayurveda and/or anti-inflammatory (super)foods. Also I have learned that some supplements that are good for acute infection are bad outside it cause they stimulate cytokines including pro-inflammatory ones. Elderberry extract, for example, does magic during most respiratory virus infections but can stimulate cytokines up to six fold. Some say careful with vitamin D3 too. Right now, cause I read in some study, experimenting with homeopathic preparation of Rhus Toxicodendron, but my sister who is just graduated homeopath says that my relapse symptoms resemble more Arsenicum Album , that also cured most people from acute Covid till now. Probably the smartest thing is to make appointment with either homeopath or Ayurvedic or even Chinese doctor. Stay strong everyone! We gonna kick this! www.homeopathy.ca/files/Post-COVID-19.pdf patents.google.com/patent/WO2011043735A1/en www.ncbi.nlm.nih.gov/pmc/articles/PMC5606136/ europepmc.org/article/pmc/pmc6269762 P.S. Oh, it's a kind of bummer, but orgasms also stimulate cytokine production ;)
I had chronic fatigue to begin with, Covid took me to a new low and I’m looking into getting an adjustable bed since I spend most of my time in bed. The fatigue and body aches are debilitating, headaches and one symptom I don’t hear mentioned is sweating in sheets, its like revisiting menopause.For me it’s been 6 months. Im not worse but not getting better, I’m terrified of getting it again.I’m glad that attention has finally been given to chronic fatigue, it’s a hell, really, and wasn’t taken seriously by doctors.
@@User98681 I’m open to anything, I’m drinking more water to avoid dehydration, take magnesium, vitamin D, and multiple vitamins, drink probiotic drinks.
@@Toolsmanufacturer Thank you for asking, it’s been 9 months and the fatigue, body aches and headaches persist, the fatigue bothers me most. Sweats and breathlessness have passed. I’m looking for a PCP and it’s a matter of combing through websites, looking at the limited info and pictures and randomly choosing, hoping to get a Dr who understands, It’s like needing 10 units of energy for bare maintenance but having -5 most days. My 3 year old grandson inspires me, I live to be the best nana I can be to him. I take him overnight one day a week and sleep for 2 days after trying to eep up with him, haha.
It's often said that "Hate" is a strong word, not for Covid! Thanks, for the video, ever since Covid my body is acting very strange, I have seen since doctors and nurses and none the wiser.
I just want to say thank you soooo much for making this video. I'm 1 year in and although I did go back to work but couldn't continue. I. Currently off work 3 months.
Thanks for this, my Dr won't see me,worried about covid, sent me to Er ,MRI stress test,blood work, Got sent home with meds for cholesterol,Something for the rash or the insomnia No They don't get it,or really listen, Sorry very emotional writing this.Its been 2 miserable month,
9 months here. Took me that long to walk 4 blocks. Was never in the hospital. No vent. But as of today i have many symptoms on thar list. Ugh. Just got insurance and going to see a primary care in Jan. Also getting high quality supplements. Trace minerals zinc magneseum brown sea weed. Vitamin D3 + k2 Breathing is weird and I get sudden random breaths out of nowhere. Ugh. I am grateful it wasn't worse but I want this GONE. THANK GOD I'm a day trader and can trade the Asian and NY sessions!!
@RUN-DMC any idea what the sudden breaths are and feeling in xyphioid process area? Have you experiences any sudden 'surges" or waves of a ticklish feeling thru thr chest or a "bottoming out" of your breath in the lower lungs followed by the need for a quick rapid breath? Also my breath issues are worst at night early AM like 3am and I have NOT been able to go to sleep until long after sunrise, like 9-11AM. and Ill sleep til 4pm-7pm.
500,000 long covid. That's not good. Edit, clearly remember the steroids from the Bells Palsy I had. Fairly high doses for around 4 months. That raging hunger is best avoided by eating small amounts every three hours, before the sick feeling comes. Don't bother with normal meal times, spread the normal meal into two and you'll get through. As for fatigue, have had it for years with an under active thyroid. Listen to your body. Don't be afraid of saying no if you aren't up to whatever was planned. Do the vital stuff first, that dust will wait until you are well enough to do it.
I have had a very, to my beliefs, different Covid experience. Oddly enough it has helped to improve some areas of my disorders, diseases with some unexpected results. Without too much discussion I have had significant improvements in sleep. After years (15 years) of only getting 3-4 hours of sleep I now wake up refreshed after 7-9 hours of sleep and am awake the whole day. Occasionally I have a nap of about 2 or so hours at my desk but not the entire day gone in sleep. Quite an improvement. My brain fog seems to have concentrated into short periods of time instead of all day, day after day episodes. There are other improvements but they are smaller and I am hopeful to complete the process of healing. One important improvement is inflammation and pain reduction. I have really painful arthritis and It still hurts but in a different way. More concentrated and mainly in points of injury. What did I add that seemed the most helpful was increased Vit.D, B a general vit for women. Nothing fancy over the counter stuff. So I am hopeful that some of these and other mild symptoms go away. If you wish some more info send me a safe method and I will comply. FYI, not including obvious ills, Hashmoto, MG and heart-lungs garbage are the regulars and about 7 friends (not) I don't recommend tackacarda, damned painful.
Since I could not regain my previously satisfactory health state after "crowning" and had symptoms resembling reactive arthritis, I went for a 7 day fast. Definitely improved the matters in my case. Good luck and thanks for your charming vids. :))
@@freenguellolo8657 Thanks for asking. I'm fully recovered now as good or even slightly better then before C19. But it was not as simple as just fasting - that was fun and did me good improvement but I still had some tachycardia and 90% of energy. The real break through came after I started (wait for it :)) to eat raw beef and saturated fat (I was on keto before and though the illness). It sounds silly but there is a light year between even slightly clocked meat and raw in terms of bioavailability. Maybe it was a coincidence and my slight arthritis, tachycardia and lack of energy would have cleared it self .. I don't know, but I have since stuck with this way of eating and I'm not planning to go back anytime soon. Raw beef, half (good quality anion, not soft or suspicions !!) and ghee - lots of it :)) + black pepper. There is something about it - magic tartar :)) It looks like mitochondria get real bashing from this virus and they need lots of TLC :)) How are you, what kind of simptoms do you experience? I still periodically supplement Zn, Cu, J, Se .. once a week or two to keep things right for periodic re-immunization with new variants while doing my grocery shopping :)). Vale! :)
I had a year of fatigue after getting mononucleosis when I was 19. I was in college and truthfully didn’t focus on health. I was at NYU Langone early in October while they ran tests since my bp stopped responding to Presc meds. I couldn’t walk a block without severe issues. They found nothing except some odd rheumatoid numbers. One of the Cardiac heads at NYU tried to get my numbers down with no success. I then tried herbal supplements like Hawthorne. Worked for a few hrs at a time but obviously not a success. I’m now using L Arginine and Ornithine. My bp dropped significantly, my rash cleared and I slept soundly and can now walk a few miles again. It’s early but I’m hopeful.
Have you heard of a condition known as 'leaky gut'? Might be worth looking into whether dietary adjustments could help to mitigate effects of leaky gut on an overactive immune system.
Might have just cried a bit - 5 1/2 months in and still experiencing new and increasingly mortifying symptoms. Since about 3 weeks I'm mostly bed-bound and don't have the energy anymore to sort through all the information myself, so your videos are a true blessing ♡ Keep up the brilliant work and have a speedy recovery!
@Annie Cober look at Wim Hoff's breath work. This person producing this video, is doing the work of Fear Mongering, nothing more and nothing less. Fear is the enemy to good health and your Breath is the solution
@@PBrofaith rubbish, hundreds of people across the UK and thousands, poss millions worldwide are in huge long-term pain..these are facts Gez is presenting; independently sourced from many people, who like me, spent night after night alone in lockdown, struggling to breathe but too scared to go to hospital .. you should at least take time to see more facts on more videos, news reports and harrowing personal testimonies
@@MoneypennyMedia There are always hundreds of thousands of people in world suffering from respiratory conditions since the beginning of industrialization and I have been one of them.
However Covid 19 is a complete scam and this asshole is just fear mongering. There is not even any valid tests for covid 19 so you most certainly need to take your own advice and do some real research.
You will never get factual information from the Mockingbird Media. They are paid to keep you afraid.
Time to grow up
@@PBrofaith go to my channel, watch me interviewed, close to tears on national TV..for months I have been too scared to go to sleep for fear I won't wake up.. I have lost much of my eyesight, hearing, memory, mental ability..some days I cannot walk, for 8 months I have not been able to walk 300yds to take my own dogs out to the park..since February I have been found to have tumours on my liver and heart damage...think again...
@@MoneypennyMedia you are gorgeous
same here, fatigue, brain fog, sleepiness, almost cannot work and focus
Same bud and I can't regulate my mood, I can snap in an instant, it's so frustrating
Soursop tea and Tulsi will help with that.
😊@@davidmc...80
This is so validating! I tested positive for covid on Nov 12, and was quite complacent after a fairly mild fever and quick ‘recovery’. Then it became clear my energy wasn’t returning, along with a squeezing pain in my chest after I pushed myself physically (e.g doing laundry), shortness of breath, as well as losing basic words and even forgetting what I’m talking about mid sentence. I do a very physical job with teenagers with special educational needs, and it’s out of the question, so I’ve lost my job. It feels as though people who aren’t experiencing this really don’t believe how debilitating it is. No doubt this is how people with ME have felt for decades.
Long Covid symptoms sound just like ME, chronic fatigue syndrome, Fibromyalgia, lyme, 911 patients, that have suffered for decades. Nobody believed them either. There is hope now that someone honest will figure this out.
@Bec I hope you've seen some improvement along this recovery journey. I tested positive on Nov. 19 around the same time but had a moderate case with more pulmonary impact than yours. I had the same long hauler symptoms you described but, thankfully, didn't lose my job. Many more months in and my symptoms keep evolving. Know that you're not alone in this! I've found there are a lot of people experiencing this who know just how debilitating it is and can be.
Any improvements ?? I feel exactly the same and i'm so worried
I suffer from long haulers covid. Many facebook groups of long haulers covid. We aren't alone!
Take. Co q10. Omega threes. Zinc. D 3. L carnitine. Neuro. Mag. Veggie diet. Olive oil.
This is the best channel of information I've seen on long-haul. I can't tell you how uplifting it is to hear someone tell me I need to rest more. I do well when I rest, but I've been feeling so guilty about it that I don't always do it. Not any longer, after listening to you. THANK YOU!
this condition is easily healed please let me know if you want to recover your health in lesss than a week
Long time ME/CFS person here. I have had to learn not to care what those judgey voices in my head try to shame me. (Or those of "friends") If your body needs to rest you should rest. I learned the hard way.
@@paul2019monte would you like to heal your post viral condition it isnot difficult ,your weak immune system cant expel dead viral debris from your system thats whats robbing you ofa life ,i heal post viral conditions ona daily basis you could call it my bread and butter,no i am nota doctor they are useless i ama biological systems engineer trained on nutrition and the 5 box immune system,the root cause of all post viral conditions is low atp levels coming from low glutathione levels
@@Beekind799 If you really had a solution and cared about people you would tell us but instead youre a charlatin trying to pray upon people’s weakness and I’m sure if anyone was stupid enough to contact you they would be ripped off.
i put the protocol up for free ,its on many you tube channels in the messages ,would you like to know where it is ,first of all try being nice instead of being ugly and rude ,i have healed 1000s thats what i do ,i am a biological systems engineer if i cant fix you ,you are fucked ,or you can ask gez who has long covid and is vaccine injured
I'm so sick and tired of being sick and tired! True true... God bless you lovely s...😊
Yes, we all know that feeling! Best of luck with your recovery :)
this condition is easily healed,please let me know if you want to recover your health in less than a week
@@Beekind799 here where I live kind sir, the local hospital e r that I been to twice this year has basically treated and streeted. Me as fast as they could. Sorry for my misspelling and what not for I'm also legally blind. Doing my best. I didnt run fever so they didnt give me test. But that was a couple months ago like 2 or 3. Time gets away. I still feel weak. I suffer from painful conditions that it feels has amplified. Fibromyalgia neuropathy. I'm epileptic. But thankyou and I. Grateful for any suggestions you may indeed have.
@@jenncrane8774 if you take exactly what i said in less than a week you will feel much better
@@Beekind799 thankyou have a wonderful holiday.
Though i would share my experience:
I've currently been having symptoms of Post Viral Fatigue for about 6 months now. Luckily the symptoms have died down enough now for me to return to some what normality and are now just an annoyance. I'm 21 and was at uni when i got ill in February (fatigue, myalgia, sore throat and tight chest), I'm not exactly sure what i got but from speaking to my GP it was likely EBV, covid or both (what I think). As i was at uni, i did not let my body rest properly and tried to exercise it off. Which lead to spending days in bed with relapsed symptoms (some of which were completely wacky and random).
Eventually, after pacing myself, cleaning up my diet, sleeping (mostly lying in bed trying to sleep) and light exercise. I've got to the stage I'm at now.
But the thing that helped me most was accepting that: For now, this is your life and there is not much you can do to change it.
It's ok to just lie there doing nothing, it's ok you could only do so much today. An accepting mentality took stress out of the equation for me and made it easier to recover/inured the symptoms.
Another big fix for me was finding out what i was deficient in and supplementing it (in my case OMEGA 3, this helped with the brain fog).
So stick it out and you'll be ok, talking to professionals and a supportive family helps.
If you have any questions i'll be happy to answer them!
I appreciate your story. I’m finding that I’m getting restless with resting but the reassurance that it’s necessary helps.
May i ask how did you find out what you was deficient in? Was there a particular service or just your GP?
Thank you!
@@doshpits I blood test at your local go may reveal something. In my case I have a very heavy meat base diet and im alegric to fish so my omega 3 to omega 6 ratio was way off. The only way to find out was right for you is a lost of research + trial and error
Thank you for sharing! I am down with "something" for at least 5 months Also infected by a tick. Blood tests not relevant but u have many of post viral infection. Accepting has helped indeed, and also taking omega 3, magnesium, b12, lactoferrin and glutathione. But my sleep and digestive issues are still a bother. Do you have any idea for these? I also see that eating little at a time helps, with no or little gluten, meat, animal fat, sugar, alcohol, spices, lactose. It is quite a ride though. ..
64 yr old grandma, covid in dec. 2019. Still suffering long haul symptoms. Hair loss, severe tiredness, off and on flu symptoms, muscle aches, fatigue, headaches, dizziness, weakness, cough, sinus problems, there are other symptoms, but I won't go on and on. I just want my life back! I have been in bed more than out of bed. Some days im fine then bam! Back in bed. But not sleeping. So I stay exhausted.
Thank you for this video. Very informative.
me too
Best to make sure your not deficient in any vital nutrients, such as vit d. Vit c. Zinc. Magnesium. Ect. Stay safe good luck.
EGCG found in green tea helps zinc into blood cells. Curcumin, CBD, both antiinflam work in reducing IL6. Recently published study shows it possibly has added benefit of binding with S Protein also blocking viral replication.
Melatonin is also an anti inflammatory and IL6 inhibitor and created by human body for sleep.
You can buy it online and its great if you have problems sleeping.
NAC is another supplement getting a lot of attention.
Thanks for posting these supplements - people need to know. I've been taking all of these things and they help - yet it's still slow. I make ginger tea from scratch too. I'm determined to get back into excellent health again, as I was pre-covid.
@@barbarawarren9443 Im not a doctor but know a bit about certain herbs and supplements. It is being suggested by some that a possible factor in long covid19 is micro thrombie possibly in the brain.
Also pockets of inflammatory conditions. Its unknown if that is Covid19 pockets in parts of the body that have not cleared.
For the inflammation take Curcumin as well as L Cysteine.
Some very good science for them reducing a bad covid infection.
Always do your own research just for piece of mind. Some really good videos on RUclips from healthcare professionals explaining.
Especially on L Cysteine. Currently in stage 2 trials in US against covid19.
Also being moved on by FDA for reclassification as a medicine.
Wish you all the best because long covid19 sounds awful.
@@barbarawarren9443
Hi you may be interested in link below .its about trails carried out on hospitalised covid 19 patients that were given intravenous vitamin D and the results were quite amazing. Atb.
ruclips.net/video/V8Ks9fUh2k8/видео.html
your immune systems main power comes from vit a and vit d if them 2 levels are low and you get the coronavirus you are in big trouble,the immune system can only use cytokine storms
Great and supportive video! Had endless troubles for a whole year now, and the latest feeling is that my brain doesn't fit in my skull (4 weeks of it). This is the most dreadful thing I've ever experienced in all of my 46 years, but hang on the idea that everything must get better at some point! 💪 Thanks again!
That pressure headache is probably a sign that you’ve been doing too much. Rest as much as you possibly can.
Wix how are you now?
@@janybekorozaliev9052 Morning & thanks for asking! It's funny, as the random issues continued to change shape and hinder life completely, and then last Easter (2022) I had Covid again. Felt terrible for around 6 weeks, and then after that....it all stopped - long, and short Covid!
@@wixwixy3025 maybe I need to get covid again lol
@@janybekorozaliev9052 You suffering also? How long, and what symptoms you getting?
thank you so much! i've just had another really bad relapse- and this explains it. i totally overdid it on too many levels. i really appreciate everything you are doing here. truly. thank you. 🙏🏼💜🙏🏼💜🙏🏼
I kept relapsing too. I just couldn't get better. I'm ok now. I don't know if it was just my time to get better or if what i did, did the trick. But i literally didn't do anything. I was lucky. My husband did everything. But i stopped straight away if i felt i was getting tired. I didn't finish what i was doing if i started getting tired. I stopped. I rested.
I stayed in bed for days if I needed to. Only when i did this. Did i start to feel better. I hope you feel better soon. It's really horrible.
Amanda H thank you so much, Amanda! 🙏🏼❤️🙏🏼❤️🙏🏼 if only life allowed for more rest. i will try your method- i know I push too hard then pay the price. So grateful to you for reaching out, and I sure hope you've stayed well since your improvement. 🤞🏼🤞🏼🤞🏼 bless you, honey🦋🙏🏼🌿💜
@@casapilanola I'm ok. I have a slight thing in chest when i breath. Unsure what's going on there. But everything else is normal now.
Let me know if my advice was helpful, then i will tell more people. It worked, i think, for me anyway.
I really hope you feel better soon. I know (kind of) what you're going through.
Same as me. I was better too! I wish I hadn't exerted.
Rest as much as possible. Just think of it this way, if you don't rest properly and recover, who is going to look after the next wave of people in long recovery.
Have friends or family deliver food if you can't fetch it yourself. Ask your neighbors, or your church, or your co workers to do what you don't have the energy to do.
If you sprained an ankle you wouldn't stand on it for hours on end everyday. Rest and recover. F everything else.
I had covid in April and drag myself from relapse to relapse. Additional to the debilitating fatigue I developed arthritis in both of my hands to such a degree, that I have problems with the most basic daily tasks, including closing zippers, pulling on and off socks, opening water bottles etc. I once worked as an artist. Now I barely can stand it to draw due to the pain in my hands. No help, no treatment and no relief here in the USA for those who are not wealthy. Supplements are something I cannot afford any longer due to the loss of income. If I have a meal - it is a good day for me. I'm living in a kind of tool shed at the moment, hoping not to get cut off from the electricity needed for my space heater and the toaster oven. The old coffee machine died today. I hope you are doing better than me and Happy Thanksgiving to all. Please do everything you can to protect yourself and your loved ones from this virus. Even if it might not be fatal for you, it has the potential to destroy lives.
This is EXCELLENT - after 14 years with ME/CFS (and now 6 months covid) I hope this becomes the norm of dialogue for recovery or management of chronic illness. Thank you
shit did you have me? how did you cope?
]
all of these conditions are easily healed,they are all being caused by the one problem,let me know if you want to know how to recover your health in less than a week please let me know
@@BenQotsa I still have ME. It's a journey - one day at a time.
@@Beekind799 I want to know
i study the 5 box immune system and its nutritional requirements,i know exactly whats keeping your condition firmly in place,you have a weak immune system that cant expel the virus thats whats keeping you sick,i can tell you how to recover your health safely in about a week you will feel much better by the end of day one,md doctors are useless they have no training on the immune system thats how they leave ypu totally undiagnosed for 14 years,they are pathetic i can wipe the floor with any md doctor,theres lots of them covid long haulers,they are clueless,let me know if you want the method for healing in less than a week,its safe
I still have long covid after 1 year and 3 months. I have been working on anti-inflammatory natural remedies: turmeric, ginger, minerals, vitamin c, vitamin d, etc. I noticed after 10 months, I was able to sleep through the night without feeling hyperinflammation/pain in my body. It comes and goes. I am nervous about having tachycardia, racing heart and I wake up to it, with my body heating up at the same time. I am trying to heal with vitamins, nutrients and a clean diet...lots of water, and rest. I have to take a nap in the afternoon. It is scary to think that so many of us suffer from this. Thanks for your videos! So appreciated. It makes me not feel alone with it.
Best of luck with your continued recovery Marian!
Yo how are you now ?
@@rickyniemann3241 I am feeling better these days. Although, sometimes, I still feel heavy head, congestion to cough up, ..achy joints and muscles..I find that sleep and lower stress helps…I got omicron at Christmas,…but it wasn’t so bad because my body recognizes it…How are you feeling?
I’m not scared of COVID. I’m scared of long COVID.
The recovery is a long on me 2 months
80% well not 100% yet, pushing to get better
@@DebbieStOnge ... I was in ICU back in April 2020.
10 months later I'm at about 65 / 70 %
@@DebbieStOnge do you feel any better now?
18 months. I just want my life back
Take proper diet our body is going to heal itself
Thank you so much from South Africa. I am a 65-year-old, but was fit enough in my running years to run some of the hardest ultra marathons. I also had post-viral fatigue as a teenager after contracting glandular fever.
I can't help but notice that many people were extremely fit and possibly very driven in their chosen careers. I contracted covid on the 7th March and would say that I am running at 60 % capacity. I am grateful that it allows me to still cope with keeping my bank balance kicking over enough to keep the wolves from the door.
I wish you well and I cannot tell you how much I appreciate all the research that you have put into your understanding of the disease.
Thank you Wendy! 60% isn’t too bad - I’d love to get up to that kind of level 👍😊
Thanks for sharing. I fit your description. Young, fit and used to train regularly. My cardio used to be really good, I could run 10kms up hills no sweat, but after getting covid, I'm feeling absolutely wiped out. I'm going on 3 months of my recovery and am still getting bad fatigue, brain fog and tingling in my extremities.
How long did your last viral fatigue last? How are you feeling now after covid? I've only just gone back to work full time, but grind through the week. Hope you are on the up!
@@bennym1326 18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
Hi, I sufferd from covid in may, and I had a lot of symtoms for about 14 days and then I got much better. Started to work again (im a nurse) and it worked for 3-4 weeks. Then i felt weird, my brain didnt work at all, i forgot things all the time. I felt so much anxiety and had no idea why. Then the physical symtoms came back, the muscle pain, headache, dizzyness. The doctor said it was stress and i didnt agree with him. It felt different. My puls went from 60 to 100 when I rised up. I couldnt work anymore. I was home for 2 weeks and i started to take curcumin and garlic and other stuff like cbdoil to reduce the inflammation. And about 3 -4 weeks later i felt much better. I still get relapses. But i can work again. Im still a bit sensitive to caffein, training, alcohol and sugar.
Im trying to avoid as much as I can to get better.
The experts know nothing and have no treatment so we just have to learn from eachother I guess.
Best of luck with your recovery Karin!
POCKETS OF VIRUS, NOW FOUND TO CAUSE RELAPSES
NEGATIVE TEST DOES NOT MEAN ZERO VIRUS !
please address the reason the coronavirus made you sick in the first place low glutathione levels,low vit a levels and low vit d levels thats a weak immune system that can only use cytokine storms,the reason you are struggleing your weak immune system cant expel the coronavirus particles in your system that stuff you are taking is good but you have to be target specific to raise them critical 3 levels to regain your health heres a very safe way to raise them 3 levels take mon to fri - 2 caps n.a.c.morn/eve this is critical you cannot have a healthy immune system with low glutathione - 2 caps cod liver oil 1000mg morn/eve - 2 caps beef liver extract 750 mg morn/eve take that for a month then drop down to mon to fri - 1 caps na,c.morn/eve - 1 caps cod liver oil 1000mg morn/eve - 1 caps beef liver extract 750mg morn/eve thats how you recover your health as a nurse you are exposed to a high viral load all nurses should be taking 1000mg caps of liposomal vit c every hour they are on shift its very effective at killing the virus,it stops glycosylation thats how it makes you sick,i can tell you if you take 2 x 1000mg capsules of liposomal vit c every hour for ten hours a day every day until all the symptoms have gone,its quite safe to take that with the other stuff you cannot overdose on lipsomal vit c and its very powerful for boosting your immune system,if you take all of this you will recover your health fully,you didnot ask for this info,i hope it helps you tube dr shiva ayyadurai - vit c the power to save lives start the video 13 minutes in ,i had the coronavirus,i hada runny nose for 3 days,i study the immune system totally free of fake pharmasautical science bull shit on the immune system,this is real science
@@Beekind799 I have taken all of those things as supplements my entire life and I have long covid. please dont lie
@@chrisrodriguez1789 tell me exactly what you took and take now and if you have an auto immune condition pls say
I have been dealing with this issue since recovering from the virus 4-5 months ago. Light-headedness, extreme fatigue, post exertion crashes, and headaches. Some days are better, some are bad. Nobody in the general public has any idea that so many people are suffering with this -- they know NOTHING about it, because it is not being discussed on the mainstream news (at least here in the US). Everybody is aware of the virus, and how many people have died. But the millions of us that are suffering, bed-bound, with these long-term after-effects are completely invisible and dismissed as being anxious or depressed.
Couldn’t agree more Greg
Life is not the same, and people around me who didn't get it expect more from me. I can't catch up with it. It is difficult 😒🙄😭
I know exactly how you feel
@@RUNDMC1 I am from Pakistan and countires like ours the long hauler phenomenons are almost laughable in general public. I got it March and have been suffering from difficult symptoms till date. My Covid was mild but it is still bothering me. Initially it was much dizziness, then headaches. After that i got a little better but a month ago i had tight chest and uneasy breathing. So finally i went to doctor who said you are fine it's just anxiety but he also gave me a drug called Montelukast Sodium which helped the breathing a lot. One thing i am sure about now is that exertion makes it worse both physical and mental. Anyways, this is single most effective platform who is bringing us together. At least we don't feel alone here. In my personal case i have improved marginally. I hope it gets better completely as time goes by. Well wishes to all.
We do know how you feel...I am having to let some things go. Its difficult. I wish you well. We are slow but sure. Keep going!
💯🌷
I recommend the Pfizer jab .
I've had long covid for a year now and have been booked into an ME specialist. This week I was told by a doctor that my insomnia is because I don't exercise. I went on a short walk on Monday, it is now Saturday night and I have been sleeping 16 hours a day and not being able to cope when awake because of the pain and fatigue. It's not as easy as just getting up or having a walk or a timetable. I've started thinking it'd be easier not to be alive. I don't want to die, and I'm very mentally strong but I'm so exhausted and it's effected my thesis profoundly
Yes, it’s incredibly difficult. Sending you my support Rosie.
Don't give up! I am coming up on my year mark. I know how you feel. I have contemplated suicide many times. I have never had depression or anxiety but something this virus does to your brain seems to cause those symptoms, along with many others. Please do not give up. I have my ups and downs but I haven't had a flare up that I haven't temporarily recovered from. This is good! There is hope. If your symptoms are not permanent and persistent then it is likely something that can be fixed and healed.
I have tried anti-inflammatory diets/keto/gluten free. These seemed to help a little but not much. Slowly increases my exercise has helped me but I know others seem to do well with lots of rest. I still don't know what causes the severe flare ups. I have a theory that drastic measures need to be taken to COMPLETELY clear the virus/issues from the body. I think this has to do inflammation, neurology, sympathetic nervous system. So many moving parts but I believe people are learning more and more.
I am on day 2 of a fast. My lack of sleep, brain fog, headaches, and depression were getting pretty bad recently so I decided to go on a fast to clear my head and body. Long fasting puts your body in a state of repair and has many anti-inflammatory effects. One of the greatest reported benefits of long fasting is 'Mental Clarity'. I think that the issue resides in your brain and maybe this will trigger or aid in healing. (if you go on a long fast make sure to consume electrolytes(sodium chloride sodium bicarbonate, potassium, and magnesium))
Anyway, just want you to know you are not alone, and believe it or not, people are learning and making progress every day. Just don't give up and don't stop searching. After this fast, I have something else I'm going to try. And if nothing works, fuck it. At least I know what doesn't work. That is one step closer. Just do your best to hang in there. As the number of long haulers grows, so does the demand for knowledge in this realm.
@@NoesKicker thank you so much, I really appreciate this. I've been trying to do keto and taking supplements, I had a week where I was virtually normal, and now back to bed for three days. I'm glad it's slowly ceasing and that more research is being done. I'm sorry you understand, but I'm glad I'm not alone ❤️
@@rosiejennapsych I'm curious what supplements you have been taking! After I come off this fast (not sure how long I can last, I love food too much) I'll be starting a new supplement regimen to see if it has any impact on long covid.
The plan is to take Liposomal Vitamin C every hour (I know it sounds crazy) 2x1000mgs per hour for 10-12 hours a day, every day, up to a week or until symptoms go away. Vitamin C has a very good safety profile and the risk is very low here.
On top of this, Ill be taking N.A.C., Cod liver oil, and concentrated beef liver every morning and evening.
This is a regimen I actually saw in the comment section of a long covid video (maybe this one?). Because the health risks of this regimen is very low, I'm going to give it a shot.
@@NoesKicker 18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
After watching this I felt the need to comment (again) -- I'm a 41 yr old living in the US who happened to find your channel while searching "Post Viral Fatigue" and this series you've done over the last several months has been one of THE BEST resources I've found to help manage what we're calling "Long Covid". All doctors I've seen / spoken to seem to deny/ignore most of this information so its been extra frustrating but now that I'm catching up on your older videos now realizing I should've followed along from before... All the info you're providing is extremely helpful and very well presented. For what its worth -- HUGE THANKS AGAIN! -- Mike O.
It’s a pleasure Mike - I’ve made 26 films on Long Covid now, so there’s quite a back catalogue to get through if you can stomach it 🤣
Me and my family had it one of the symptom many don’t talk about is excessive sneezing and much tiredness.
Oh yeah and hiccups. Do you get those all the time? I do get the excessive sneezing as well.
Totally true. Pacing has been massive for me esp being a mam to four kiddies including a six month old. It's taken such a hold physically and more psychologically . Every relapse brings it's symptoms and feelings of unease, anxiety, feeling of doom...the minute relapse passes it's like the old me back full of energy. But need to take good days with caution and conserve energy
Hey Sarah, what you have stated here is so true: unease, anxiety, feeling of doom.. This exactly how i feel ! I'm fine for a certain amount of time, the longest i lasted was two weeks four days and then boom it was back again. But you are correct when it kicks back in it really makes you feel uneasy and anxiety can creep in ! Take care and hope you recover soon ;)
Sarah how are you doing now? Fully back to health or almost?
Hello Sarah,how are you now?
Thanks so much for doing these, especially considering you are struggling yourself. As always informative and helpful both for those suffering and their families. I look forward to your future videos on covid or other topics!
Thank you Michelle!
Michelle did you recover ?
As for treatment, I really think convalescent plasma is something that needs to be considered for those long haulers who still feel as if they are suffering from a persistent, active infection rather than an overactive immune response. I have heard some medical pros like Dr Putrino recommend this as a potential therapy as well. In all honesty I cant see myself getting better without medical intervention at this point, so I really hope advancements are made in the near future. Thanks for another well appreciated video, I hope things start improving for you and all those suffering. This sh*t sucks!
Start taking Curcumin or CBD or Melatonin. All immune modulators and anti inflammatory.
Have been taking and switching between these for past two years as i suffered back pain for almost 20 years and im fine now.
They work by reducing "IL6" inflammatory response.
Since covid19 started all three have been touted as treatments in medical papers.
Also drink green tea that contains EGCG.
Do your own research as im just a random guy on the internet.
When you suffer back pain for as long as i have then you keep looking for something that works.
Remember that covid19 is really screwing with inflammatory system and regulation of it may help.
Hope you feeling better soon.
PS melatonin is great for getting a good nights sleep 👍
Thank you very much for your weekly information on COVID19, is really updated and has helped me on sharing recommendations with over 200 hundred colleagues i work with as a primary care physician in covid 19. You deserve waaaaay more views! Good luck on your recovery! Greetings from Peru.
Thank you Renato! Are you seeing a lot of Long Covid cases in Peru?
@@RUNDMC1 oh yeah! But many practitioners are unaware of this group of patients and treat them as persistent COVID-19 or even tell them they still have the infection which does not help the mental health of the patients of course. Our Nationala healthcare system has not adressed this topic either. It is mandatory to keep sharing this info.
hola, saludos desde Bolivia, yo soy un long hauler, tengodolores usculares y de articlaciones por todo el cuerpo, ya voy 7 meses desde que di positivo en conoravirus por prueba pcr, nose si puedes ayudarme con algunas reocmendaciones o que debo hacer para vovler a sentirme bien
First of all, I would like to thank you for all your research. My hypothesis is...viruses especially long term viruses wreck havoc on your adrenal glands. Adrenal fatigue which is poorly named can cause long term symptoms identical to long haul covid. Your adrenals are responsible for over 225 bodily functions and hormones.
Stressors whether viral, emotional, bacterial, fungal or physical can deplete your adrenals. And sadly your adrenals don’t bounce back quickly. In many cases it takes up to 6 years for a full recovery depending on the assault creating the problem. Histamine intolerance is adrenal based. Histamine intolerance alone causes dozens of symptoms. I believe there is a link with Mast Cell activation. I also believe there is a problem with methylation, MTHFR and COMT. People with poor methylation have problems breaking down and ridding the body of toxins, viruses, bacterial infections. Think about the link between comorbidity and the people that are affected the most from Covid. 95% of the population harbor an in active Epstein bar virus alone. Covid can reactivate dormant viruses. Viruses can affect your mitochondria. Your mitochondria is your powerhouse of your cells.
Inflammation affects your mitochondria.
I have recently had extensive lab work done because I believe I am a long hauler. What I have discovered are the best supplements to take are Ashwaganda for the adrenals, liposomal vitamin C, zinc, quercetin, garlic, methylated vitamins and minerals, Moringa, turmeric and ginger, Blackseed oil, berberine, omega 3, iodine and if your hormones are deficient have them replaced with Bio Identical Hormones. No steroids because there is nothing on the market that mimics Cortisol rhythm perfectly. Nutrition, nutrition, nutrition. Avoid inflammatory foods. Another thing to focus on is your gut, what’s going on with your micro biome? Your body is not going to heal unless your gut is healthy.
There is my two bits, it has worked for me and my heart goes out to all of you you who are still suffering.
all these conditions me/cfs covid long haulers are caused by one problem,its easily fixed in less than a week
I’m loving your choice of herbs/supplements. I recognise most of them as they are used in MCAS. 👍🏽
@@TheKayannh take a heaped tea spoon of slippery elm bark powder in a glass of warm water 15minutes before eating this plugs the holes in the gut ,most auto immune conditions are caused by leaking gut syndrome,food particles get into the blood stream through the holes in the gut that makes the immune system become over active,if after 7 days you dont feel the healing increase the dose to 2 heaped tea spoons 15minutes before food the holes in the gut will heal in days ,it can take up to ten days
Hello, Thank you
Thank you
I’m 71 and have been struggling with this since Dec 2019 then got nearly well and ill again 2 times. The third bout began in Dec 2021 and I’ve been so slow recovering and feeling so hopeless. If it wasn’t for my son taking me into his home I believe I’d have died. I’m feeling improvement each day finally by maybe .01 percent but still have many days where I’m just down for the count. I’m determined to recover and regain my active lifestyle. I’ve changed my diet and given in to the just rest advice but I know I have a long way to go. Thank you for this video. Sometimes I feel crazy because no one understands that yes I’m really this ill. And btw I have never received a positive covid test. Always false negative.
In 5 days time I will hit the 2 year milestone with LC. A brutal illness. Totally changed me physically and mentally. Still cannot work. Still cannot live with my partner and 5 year old.
It scares me like crazy. Went walking today and I'm melting.
Gez Big Thanks for your videos! I feel excited at the future for long covid research thanks, in no small part to some of the people you have interviewed over the last months ... If there is one aspect of your videos that helped me immeasurably it is that you have helped me with my concept of "humanity" and gifted me greater "dignity"! Looking forward to viewing more of your work! Many sincere thanks! Keith xxx ❤
That’s so kind of you! Wishing you the absolute best in your recovery Keith :)
So im not alone.... Neverending nightmare, soulcrushing terror.. plasma is our only hope . Yesterday i watched interview with Auschvitz survivor woman and she was speaking about her 5 months terrible "recovery" in camp's hospital , and that all she had was a two cups of water and piece of bread every day.. And after this terrible war trauma she managed lived long and stay normal person for almost 100 years .People are incredibly strong . But you cant be alone. We need each other We cant cry too much over ourselves. Everything will be good with the time. I send all of you a big hug.
Bless you!!
I'm with you in most of it that. I have had ME for over 20 years now having tried to return to work on GP advice following a viral illness and become very much worse. I don't think it's possible to understate the importance of sleep, rest, pacing and proper convalescence for as long as it takes, potentially a year or two.. I'm worried that the dangers of exercise and pushing through haven't come across well enough nor the unrealistic nature of the government's suggested return to work schedule in this video, which is disappointing as it is otherwise mostly good. Any increase in activity must, must be sustainable and recovery-led or these poor people will just be back where they started with each crash; the difference being that it's what is done to rest and pace at the beginning of a post-viral syndrome that makes the biggest difference to prognosis if there is anything to learn from ME.
I would stress for other readers that ME encompasses a constellation of symptoms rather like those found in long haulers and is in no way restricted to post activity exhaustion.
I'm sure some will make a reasonable recovery in a few months while for others it will take longer and the way they manage their energy to avoid crashes will make a huge difference. You cannot start quickly zipping up the increments the moment you feel a bit better. The process really can take months but is so worth persevering with 💗
Valuable advice 😁
How do you not work for a year or two? I keep reading that people need to 'rest' but tell me exactly what you're supposed to live off? What if you're a single mom with 2 young kids? I'm 6 month post covid and I wish I could just stay home for a year or two and wait it out but I fail to see how this could happen realistically speaking
Very good reasoning.
dmdm51100 that's the mistake I made and I got so sick I have been unable to work for over 20 years. All I can suggest is you ask for and accept all the help you can get. I sometimes wonder how things would have been if I hadn't caused myself permanent damage trying to return to work for exactly the kind of reasons you describe. Really we need the government to provide wrap around care for someone in your postion and support along the lines of the furlough scheme. It's not there now but it could be a campaign objective for long Covid groups. It's what is needed. Living on ESA is a nightmare even if you manage to get PIP too. Wishing you the recovery you need 💗
@@francescachristy8761 I second this. It's difficult to hear but I wish someone would have told me the same.
Thank you for sharing this video, brings me comfort to know I’m not alone. Recent covid long hauler, almost 2 months. Still suffering from shortness of breath and extreme fatigue. May time and research bring us a cure soon.🙏🏻💞
Look after yourself and best of luck with your recovery!
How are you feeling now ? Better or same. I'm good through the same. 2 months in ..... Pic reply. I'm really scared.
Those are my symptoms also. Was playing pickleball two to three times a week for 3 hours. Went to bed one night feeling great Woke up the next morning feeling really short of breathe. After 4 days without getting better got tested for covid and it came back negative. Well it's been over a year now and finally getting back close to normal. Still get the shortness of breathe once in awhile and still get tired at times but not to bad. Worse thing Ive ever had. Ended up in the hospital a couple of times but slowly started feeling better after about 10 months.
Freaking insomnia is the worst bit. Even when i do sleep, i usually wake up 2 or three times during the night.
Seratonin dysfunction will be causing this. Melatonin is a start but you might find SSRIs do the trick.
@@RUNDMC1 Can you please tell which SSRIs and for how long ? I have been suffering from insomnia for last 5 months after covid. Also on Ambien for last 2 months, still don't get proper sleep.
Did you try the SSRIs ? Did they work ? Anything else that worked for you ?
Karan Nain I’m on mirtazapine, but talk to your doctor re your symptoms and what might work best for you
@@RUNDMC1 How long have you been taking them ? how long do they take to show some effect in a case like mine ? thanks
Thanks for making these videos, Gez. Every good wish for your recovery.
Thank you. Doctors in the US don't even believe us. I was almost all better but I over-exerted and it set me all the way back to zero, with new symptoms. I wish I had known not to jump into exericse.
Same case for me. I had covid in may. By july I was feeling fine and start again with my exercise routine. My heart did the job, but when I finished I feel like having a heart attack. The next day was the worse. I feel exactly like in those days when I was dying from Covid in the worse day. I fell in bed for 3 weeks and the recovery was slow as it was in the initial covid. Now, six months later I'm still very tired all the time, have always mental fog, when I eat my meals I feel like choking and I can't breathe. In my worst days I have migraine, back and chest pain.
Whent to the doctor, EG. Was fine and the doctor said it is just anxiety. He give me fluoxetine and clonazepam for sleep. (With no good results).
My blood test was right, white blood cells, neutrophils, everything seems to be ok, but I feel not ok..
Fellow long hauler since March, just watched and wanted to say thank you especially about the allergy stuff - I've had swollen itchy eyes like I've been cuddling a horse for the past couple of weeks which is a recent addition to the list! BUT.... Feeling better after a month-long relapse where was sofa/bedbound, even if 'better' these days means being able to stay awake 9am-9pm, take a short walk and do a half-day of work (from home)! 100% feels like a very long way off... but having the support group and great GP make all the difference. Good luck!
I had Covid in March and have had a rash for 12 weeks. Brain fog. Head ache just ongoing
Yes migraines never had before.
"that's what i've been harping on about for ages" bahahahahaha love it. i'm at almost 5 months. had a "relapse" this week where my fever got worse and my brain could not connect words together to form a sentence. it was almost like i was delirious. i could not work. only lasted a couple of days, though. i knew it was worse because i had a racing heartbeat and absolutely needed to nap. when i woke up from each nap, i had completely sweated through my clothes each time. i even had to order delivered groceries because was too exhausted to go myself. i feel the same way about planning my day. have you heard about the spoon theory? it definitely applies here. this time last year i would be working full time, doing wedding hair on the weekends, and gardening my flowers outside. sad. also, thank you for making these videos. it's really going to help a lot of people. the numbers of long-haulers are just going to get bigger as more people get sick.
"my brain could not connect words together to form a sentence" tell me about it! I totally get it happens to me too among other things you mentioned.
I can help you if you want. I was having the same issues.
this condition is easily healed please let me know if you want to recover your health in less than a week
@@Beekind799 save it
@@adafridi no i will keep making a real fool out of md doctors,i just cant help myself they are so useless and pathetic they have zero diagnostic skills,lots of md doctors are covid long haulers,i wont be taking any advice from them,
Its hard not to worry that this is permanent
Oh yes! agree! how are u know?
@@surlespasdondine still having issues. Scared to eat incase my blood pressure spikes. Feel awful. There's no way I'll get help for it anytime soon either as the UK is so slow at these things.
@@metanoiabooks3729 oh mine is the opposite, it's way too low. And heart rate is around 130.
@@metanoiabooks3729 your own weak immune system is keeping you stuck in sickness,your weak immune system cant expel virus particles from your system,its easily healed,md doctors cant heal your weak immune system,they have no training on your immune systems 3 main fuels,thats exactly why theres thousands of covid long haulers,md doctors cant tell you something they are not trained in,you have to kill the virus in you take 2 x 1000mg caps liposomal vit c every hour for 12 hours a day,its very very safe you cannot overdose and its very gentle on the stomache,high dose lipsomal vit c has incredable anti viral properties when given in high doses,by the end of day 1 you will feel much better, you take the high doses of liposomal vit c until all symptoms have gone,now you must heal your weak immune system safely,this is designed by a biological systems engineer fully trained on the immune systems main nutritional fuels,take this mon to fri - 2caps n.a.c. - 1caps cod liver oil 1000mg - 2caps beef liver extract,if you take exactly whats here you will quickly regain your health and go and tell the md doctor what with,they willnot congratulate you
@@Beekind799 I am going to try this. If I die, then it will be your fault :)
I would like to thank you so much for this episode of yours as it has helped me tremendously. Was seriously getting to the point of depression frustration and unhealthy thoughts. So thank you again from Benoni South Africa best regards Irene
How are you feeling now? Do you have any tips or advice
I appreciate your videos. Currently watching a young relative suffer. It's heart breaking. I have faith 'they' will figure it out, but the wait is taxing. Healing energy to you.
Best of luck to your relative Laura!
Thank you for your time, energy and continued effort to find answers 🙏🏽 I’m on day 77. You nailed it. Feels good to know I’m not crazy.
Thanks Justine!
What have you been experiencing and how are you feeling now??
I feel so dizzy , headaches ,blurred vision. I walked and feel like I’m going to faded and i been like this for 3 moths already
This is the way
this condition is easily healed,please let me know if you would like to recover your health in less than a week
@@Beekind799 I would like to know
@@jjones7054 sorry my computer broke on christmas day morning,are you a covid long hauler or a post viral condition person that cant recover their health,m/e sufferers chronic fatigue suffererers covid long haul sufferers,these conditions are being kept in place by a weak immune system that cant expel the virus,i study the 5 box immune system and its nutritional requirementsthats how i can tell you how to heal this condition safely in a very short space of time,if you are an md doctor please say,i dont like md doctors,if you say whats going on i will tell you
@@hansveen7132 a covid long hauler has big nutritional deficiencies,they cant fast
Took loads of vitamins ,an antihistamine diet helped me regain energy after 14 months as the covid leaves the body with inflammation from mast cells , B12, B multiple ,loads of C, D ,zinc , bromelein and anything else I could think of.
Hey , how are you now ?
Hi I have found the b vitamins and zinc helps me to. I am 2years down the line now and still have brain fog and very forgetfull. No more fiscal symptoms. All the best
Peg Jones are you fully recovered?
@@adrianvanwyck2818 Adrian bow are you now?
@@janybekorozaliev9052 hi. Lots better but not as good as a was before a got s sick. Mostly brain problem. Memory lurning problems and brain fog some day's.
I'm still recovering after nearly 9 months of post-viral fatigue (probably not COVID as it was so early I contracted it); the diagnosis of which I am occasionally dubious about following the scepticism of my friends and colleagues and the suggestion of a reactive depression - I won't go into it. I actually contracted the virus sometime in October, and was a slow burner until Christmas, after which I went downhill with exams and celebrating perhaps. To be clinical my symptoms were profound debilitating exhaustion, post-exertional malaise, brain fog that inhibited my ability to think clearly, to understand/process information, and even affected my vision. My ability to multitask (even carry two things at the same time) was compromised. My sleep was grossly disrupted and I had muscle aches darting through my body for no apparent reason and no pattern. My appetite completely disappeared, I was weak and looked hungover/had the flu for months.
I was bed bound for 5 months - I got up in the afternoon and went back to bed soon after, exhausted. Any push through a limit, be it walking 20 mins around a park, would land me back in bed for the night. I was so pale and sick looking, so weak, and my brain fog was terrifying. I forgot peoples' names, forgot my own phone number, spoke without making sense, mixing up the syntax of sentences and not evening noticing it.
Of all years I was in my final year of Medicine in Ireland and so I had to defer my exams from March to just last week in August. Miraculously I recovered week by week, with plenty of crashes in between, which was emotionally devastating and disheartening and put doubt into every moment, but with time and with each crash, I realised that it was an upward, albeit tedious trend and each crash was less severe than the last. I also became more aware of the vague signs that a crash might be imminent (be that the next day even), and came to understand when I should stop, in my case, towards the end of my recovery, studying.
I limited exercise completely so my main challenge was maintaining the balance with cognitive effort rather than physical, to allow me to focus on my exams.
Thankfully, I have passed my exams and I am now a doctor. I've gone to the gym (lightly) twice this week, which in January I never thought I'd do again so it was something of a massive milestone today, and so I'm going to try and not overindulge in the idea that I'm almost completely well and take it easy - one wouldn't go running 20km after 9 months off the track either.
The reason I'm saying this is to encourage people to keep the belief. I know mine wasn't or isn't as bad as others, but my fear at the start was that it would be, so if you're at the start, just take it easy - a few months sounds so so long from the start point but looking back, perhaps because it's so boring, or maybe due to the brain fog, it's really a blur and more of a blink of the eye. So just believe you will get better (what's the harm of hope in this case), and take it easy and be patient.
My biggest turning point was a mental one - acceptance and relaxation into the idea of a gradual recovery, a blind faith at the time to be frank and reassurance granted by the slightest recovery every week or month, even when I thought I might be imagining a recovery. Even now, after coming so far, I have the fleeting rare pangs of doubt of a "full recovery", but I just have to will the rational part of my mind over the fearful emotional one. "Look how far you've come. You're at the last 100 yards". As the recovery progressed, it became almost exponential, with each level up building on foundations below, compounding my confidence that it was actually happening, exhilarated by even mundane things people took for granted like going out for dinner with friends.
So I hope I offer some (long-winded) advise for people to believe in yourselves and stick it out. I'm not religious at all but have faith and try your best to be kind to your body, and especially your mind. It's astonishing how more ready my body was to recovery when I let go of the huge tension and despair that I would never recover. Maybe that says something of a neuro-psychiatric interplay in this condition (that doesn't mean 'all in your head', or that it's fictional). That's absolute poison for a recovery. Be good to yourself and celebrate every positive outcome on the way. I mean every single one. In my diary the first week, I had "Today was better, was able to get up for a sandwich and go back to bed." Just because you're like this now, doesn't mean it'll be forever. You'll learn more from this experience than you have in your whole life.
Aim for progress not perfection, is a quote from some film probably.
Best of luck. Text me on instagram if you need assurance, can't promise anything.
You'll be typing this back to the world offering help sometime in the future. Be patient.
P.S. at the start I was totally intolerant of alcohol - it would land be in bed for 3 days minimum. My tolerance has gone up a lot, which is somewhat of an indicator of my recovery in general. Still taking it easy though!
Hi Ferdia, if you’re in your 20s then this was *probably* EBV related PVFS - and the timing makes sense too. Took me a year when I had it before finally starting to feel better. Same intolerance to alcohol too!
@@RUNDMC1 did you just ease your way back into exercise like running, or wait til you felt fine to go at it almost normally?
@@RUNDMC1 how are you getting on yourself? any improvements? what's your function at the minute? best of luck
Ferdia Browne I started trying to go for small slow jogs again too soon. I have now cut out all exercise, bar essential walks to the shop etc. I haven’t put my running shoes on in 2 months. Generally speaking, my overall fatigue/headache/brain fog levels are the same as they were months ago. No improvement yet.
@@RUNDMC1 and back when you had PVFS did you ease into it gradually? fair play for making the videos and doing the research, I could barely do that without any brainfog!
Thank you! This was extremely helpful, and like another commenter said... Validating! I appreciate your work on this topic. It also helps to know that you're going through it as well. Again, thank you!
Thank you Kelly!
whoever comes up with answers/ cure for this long hauling is going to be very rich and famous!!! and Loved !
I have been out of hospital for just over two weeks and have a lot of the long covid symptoms. Although I recognise that long covid is defined by symptoms after 12 weeks. I am putting myself on an anti inflammatory diet, a litre of green smoothies a day and a ton of anti inflammatory supplements. I don't know what else to do since there is no official advice or treatments. We all have to try something though! Keep looking for your own answers guys and if you find something that works, share it!
I take L-Tyrosine three times a day. It has changed my world. I will say, you are not well. It addresses the juicing of neurotransmitters by working on Dopamine. It lifts my fog, helps my memory, and smooths out my cognitive functions. Mt fatigue is greatly improved but, if I miss a dose... I am in the dirt. I am still suffering the headache and vision decline. I still have days where I am dizzy but, mostly that has improved on the supplement. My mood is improving and I don't know if that is movement and accomplishment or the L-Tyrosine. I would say in total it has a temporary effect on 50% of my symptoms. As always talk to your Dr. about interactions with anything else you are taking and any conditions it might affect. For me, I am grateful it works so well. I have not taken a fall since I began. Vertigo and weakness would tip me over unexpectedly. The mental benefit makes me cry tears of happiness because the exhaustion was induced by both physical and mental efforts.
Haw are you now?
Thankyou for continuing to advocate for us. Amazing to have voices heard.
5 months in definitely feel like one of those old batteries you can press the side and see it's nearly flat lol pacing is a skill to learn for sure, needs commitment and crucial acceptance.
How are you doing now Zoe?
@Liam Tytgat Had covid 4 times now, It's taken a year since the last bout to recover to be able to exercise again. Still have to pace but so much better. Now dairy free and take daily ViT D and B complex.
@@zoemac7676 that’s wonderful to hear. I’ve had it 3X myself. Been off work for 7 months getting better slowly. My recovery really started to happen once I began to intermittent fast. I had more energy clarity of mind and less anxiety. I then try prolonged fasts and it helped even more! I urge you to give them a shot in you are healthy enough to do so! Good luck
Here's the reality of 'pacing', for me. I have NO idea, how much energy anything will take. None. My energy level is, generously, 20% of what it used to be. On a Monday I might take a shower and make a phone call and be wiped out. On Tuesday, I can read a book for 5 minutes and that's all. On Wednesday, I feel my energy plunge just thinking about paying my bills and can't do anything at all. On Thursday, I can stroll in the garden, work on an art project and fix dinner and not incur any post exertional malaise.
But. I. Never. Know.
Same with symptoms. It's like the arcade game Whack-a-Mole - one day might be headache, nausea, and dizziness. The headache might run for several days. The next day it might be inability to focus and body pain. I even thought, at one point, that I'd reached that miraculous 'it will finally go away' - teased by three weeks of increased energy, lack of pain, brain fog, nausea, etc. I didn't overdo. I scheduled a few simple activities - maybe cooking a meal one day, paying bills another, watering the garden, or working on an art project, reading a book, but often not doing anything - mostly relishing the relief. Then it all crashed again. I think THAT's the cruelest of all.
Libby - you’ve described this perfectly. It’s the sheer cruelty of never knowing what will be too much. You have to live in a self enforced activity prison (a metaphorical glass box with spikes on the sides) to have any chance of not crashing - but to do so is not living at all
@@RUNDMC1 so I take chances. Walking around the garden or watering plants still releases those happy endorphins, and they are worth the price. But damn, it would be so wonderful to find a cure. I have fibro and dysautonomia on top of it all, so this took away even more. And in the US, the insane rules for pain medications make every month a grueling torture as to whether the pharmacist will argue about filling the prescription, or has completely refused to accept any from my pain management doc. The anxiety surrounding that exacerbates everything. The only people having a hard time getting pain medicine are legit patients. The laws have actually contributed to increase of drug related deaths 😒
Vitamins C, D, magnesium, zinc, potassium
CBD, turmeric, onions and garlic. Lots of water. Rest, hot baths and fresh air.
Now talk to me about crypto 👍
I’ve had long covid for over a year and still suffering from fatigue, loss of smell, dry skin, receding gums and headaches Set off with flu type symptoms, headache, muscle ache, bed sweats. Not worked in over a year. Used to work hard, cycle to work, heavy weight training 4 times a week, now I’m a lump on the sofa who now has no patience when my infant children’s play gets too rowdy. I used to roll around the floor with them. I’ve tried light exercise, but that just sets me back, supplements, smell training, no alcohol, rest, fresh air, but nothing seems to work. Recovery is so slow it’s hard to tell if it’s stalled. Depressing, especially when ignorant people say I’m putting it on. Hopefully time is the answer, but after a year it’s hard to remain optimistic
Yes it’s so tough. Have you seen my recent(ish) film on ten top tips for recovery? Might be something in there that helps
RUN-DMC will take a look. Thank you for your videos, I’ve only just found your channel Really glad I did and have now Subscribed Had no idea about the low histamine diet. I’ve been getting it wrong with what I thought was a healthy diet The covid slack group I’m a member of hasn’t mentioned it
How are you feeling now? Any improvement?
Haw are you now?
Thank you for this video. It must be so hard for you to produce these but we need them. George, Canada.💚👍🙏
Thanks George!
@@RUNDMC1 Take care 💚🙏
Now just under 4 years suffering from Long Covid. Dismissed all the way. Now my blood tests show antibodies for a rare autoimmune condition (systemic Scleroderma) Rest Syndtome on top of LC. I’m still waiting to see a Rheumatologist and my local GP seems to be unaware of the potential disastrous prognosis of SSc. I have lost faith in NHS acknowledging post viral sickness and the complications that causes long term especially when NHS care is so varied depending on what city, borough you live in.
did you take the product that came out in 2021? I haven;t heard of anyone getting AIDS from the 'wild' type, but common after the product. Before he passed away, Luc Montagnier told people who had taken 3 or more to get tested
18 months and still struggling though I feel most of the weird symptoms are leaving. still struggling with thick mucus sometimes blocking my throat, any advice on dealing with this??
I was so allergic, my mouth and lips were numb for the last 3 months
low histamine diet definitely helping and research some good supplements to support your body and gut. My Gut and immune was totally messed up due to the horrible medicines and several anti biotics I was given.
My healing and improvement is since I STOPPED going to Allopatic doctors.
Did a parasite / worm cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice. gas lighting and gut destroying medicine I was given. be your own doctor. Support your body, naturally and allow it to heal... food and natural supplements, release the fear and a anxiety. This virus is like satan to me... wrecking havoc with our lives, our livelihoods and our sanity
No hay nada mejor que vitaminas, minerales, comer sano. Las medicinas te hacen daño y más a un cuerpo débil por el covid.
How are you now?
Yes how are you doing now ?
That's the thing sometimes we don't know exactly what to take
This is me too
I have had chronic pain and inflammation since April. I went gluten free after hearing about leaky gut syndrome and how protein particles can get into the bloodstream and cause an immune reaction. My symptoms definitely improve when I avoid gluten. I was already vegan so wasnt eating dairy (another key allergen). Worth experimenting with dietary changes.
If you suspect leaky gut (which is highly likely on a vegan diet) you should asap start consuming meat stock (not bone broth). The gelatin and collagen in meat stock are the main building blocks for your gut lining!! Please read about this.
thanks for this video, been battling through this since march, pre covid i was a high level cyclist, training 15/20 hours a week, i have managed to maintain a low level of cycling but the waves of fatigue, other the following few days, have had to continue to work full time as doctors & employers were unwilling to help/understand my issues as was previously such a fit person so i could cope/push through. currently waiting on electrocardiogram
this condition is easily healed in less than a week please let me know if you want to heal
18 months and still struggling. low histamine diet definitely helping and research some good supplements to support your body and gut. Do a parasite cleanse. Research oil of oregano, Eat lots of onion and apples for quercetin. I have a stack of about 5 supplements and it's doing more than any useless medical advice and gut destroying medicine I was given. be your own doctor.
Stumbled upon this by accident and just wanted to say thank you for your informative videos. I ended up in hospital in middle of March and on a ventilator for 23 days. Ended walking up in the middle of April and then was discharged from hospital on 1st May. My body was in a lot of aches and pains but have now since subsided since I started taking magnesium and turmeric vitamin supplements. My body is however producing excess mucus which results in me coughing. I do steam inhalation every night and the doctor has prescribed me an inhaler and nasal spray to help clear up and airways.
Curious about your having Chest x-rays. Covid usually leaves some findings on x-rays especially if intubated. Scaring or fibrosis.is common.
@@notsogreen i have mild fibrosis at the moment. the respiratory consultant said if should disappear over time. doc friends have said that it is reversible and doesn't leave permanent scarring
@@SohailAnjum72 Lung fibrosis also called scaring, is permanent. The lung cannot reverse fibrosis. The liver is one organ that can sometimes reverse fibrosis or lessen it in some people, not so in the lungs. Fibrosis in the lung may not progress and stay stable, but not reverse.
@@SohailAnjum72 Hi with fibrosis do you suffer with difficulty breathing. I had Covid four months ago still suffering with breathing problem my ct scan is ok
@@manindermanku8667 I have scarring left in one side of my lungs. I don't have breathing problems as such but I still get shortness of breath when walking around. Will probably be put onto a stronger inhaler. Get your GP to organise a lung functional test so determine how much oxygen is getting into your lungs. I was told the airwaves lower down seem to be restricted
Thanks! Here's hoping this kind of research is currently ongoing.
Angry with the response from my GP, I switched to another GP who is more sympathetic to what I'm dealing with 11 months after the infection. Today, I'm functioning maybe at 90% of what I was before the infection. What I'm finding helps is forced walks, long distance, a regimen of NAC, vitamin C, D3, Complex B, removing sugar and gluten from diet, and eliminate red meat totally. Using a CPAP helps with sleep and for covid somnia, I'm using Benadryl. It took months for the large muscle leg pain to vanish.
I am part of a long-term COVID-19 recovery study, and participate in a support group for persons suffering with COVID-19.
My 30 year old (previously ultra fit and healthy) son has had long covid for over 3 months. The headaches have improved slightly but the heart palpitations have not. He has not been able to get a heart scan on the NHS as doctors know how expensive this is - so money comes before peoples lives. He cannot get cardiovascular treatment UNLESS he has the scan!
So sorry to hear this Marie. Wishing your son a speedy recovery.
Just wanted to add a few person insights from my own experience. I first had Covid symptoms in February and it was labeled pneumonia, because there was no Covid testing. In June I was tested for antibodies and the test was negative, but still having long-haul complaints, and having retired because of not being physically able to work anymore in March. In mid-summer, I decided to see a Functional doctor, then the day before my appointment, came down with a fever and had to cancel. Symptoms quickly turned into gastric Covid that included respiratory symptoms also during the second week. Six weeks later, I am still dragging and finally saw the Functional doctor last week. The blood work she ran actually explained all of the symptoms, including an alarming calcium deficiency and very high autoimmune antibodies, indicating an autoimmune flare. My follow up visit is next week, so I don’t yet know what the treatment will be, if any, other than supplements, but at least I know the reason I feel so awful. Gez, the symptoms you describe and the treatment with steroids sound like an allergic reaction, and it is possible that you had an allergic reaction to the virus. Have your autoantibodies ever been checked? You may have an undiagnosed autoimmune disease. A flare can feel exactly the same as you describe, and any viral or bacterial illness can trigger a flare.
Thanks again for distilling all of this challenging information and making it more understandable for we Long-Haulers. Much appreciated here in NYC.
Ive had ME/CFS for 18 years, all your symptoms you describe i have, pacing i do all the time now, still end up in bed! it wont go away and has changed over time, it becomes more deep seated and nasty, i have lost my career, and my social life, lockdown has made no difference to me as that is how i live now. Lets hope with this we get some answers but i doubt it! they have ignored ME/CFS and will carry on doing so! good luck it seems that is how your life will be now, welcome to the ME/CFS community!
Amen
This is brilliant and made so so much sense to me. Thank you.
I am pretty much recovered from long covid. At my worst there was no information and i was relying on talking to other people on here. My Dr was very unhelpful. I called every 3 weeks or so. Only to be told my breathing difficulty and fast heartbeat was anxiety. My fatigue was low blood sugar. I couldn't even have a shower or make a cup of tea without trembling and needing to lie down. If i tried to push through things, i would end up in bed for 3 days. I thought i was going mad.
I too drank tons of water. I don't even like water.
Thanks for writing Amanda - I like hearing about stories of recovery!
@@RUNDMC1
if you ever need it. I kept a day to day diary of start to end.
How long did your recovery take? So happy to read a recovery story. I’m experiencing the same fatigue and weakness you’re describing.
@@jeanettevalencia1975
4 months. I was back to work soon after. Although i still experience breathing issues, they are very mild and i haven't seen a Dr.
I'm really sorry to hear you are poorly. It's a bizarre thing to have going on. Its very up and down. But I'm certain that doing things. Even simple things made me worse. I'd think i was on the mend. Then I'd say, wash up, and I'd be ill the next day or 2.
My recovery:
My husband made me stay in bed. I was only allowed out to quickly shower and use bathroom. After 5 days i really felt I'd turned a corner. Then i was very very careful to do the bare minimum. I was mainly in bed. Then my recovery happened really quick.
I would really love to know how you get on. I know everyone is unique with different lifestyles.
I hope you're not too down.
@@amandah5478 thank you so much for responding! I’m 2 months in. Anything I do tends to set me back, no matter how much I sleep I still wake up fatigued and weak. I’m mainly in bed. It’s very up and down for sure. I started working from home 3 weeks ago and I think it was a big mistake. Im struggling to get work done. I’m going to take another 4 weeks off in hopes I’ll get better. It sounds like sleeping and eating well helps.
This is the second time I've listened to this video. Thank you so much. Your videos offer tremendous emotional support. I also listen to a couple of medical lectures by excellent physicians who "get it," and are trying to figure this out with us.
Thank you Barbara!
the condition is easily healed in less than a week,the physicians rae trying to work it out,they are jokers
I have ME, rather than long-Covid but I am very interested in these videos as I see a lot of overlap with ME. I feel the advice offered is absolutely top-notch and I only wish I had known this at the onset of my illness. I would echo the concerns about steroids unless absolutely necessary to treat a specific symptom. I made the mistake of using them to support my return to work but I believe they gave me an artificial feeling of well-being and energy which led to me overdoing things and resulted in a serious, permanent decline in my condition. In my experience, pushing yourself to do more is counter-productive and short term gains will result in long-term, possibly permanent losses. Wishing you all, all the best for a good recovery. Following the advice in this video is, in my opinion, the best way to achieve that recovery.
Thank you Kay. Can I ask how long you’ve had ME for?
I'm with you in most of it that. I have had ME for over 20 years now having tried to return to work on GP advice following a viral illness and become very much worse. I don't think it's possible to understate the importance of sleep, rest, pacing and proper convalescence for as long as it takes, potentially a year or two.. I'm worried that the dangers of exercise and pushing through haven't come across well enough nor the unrealistic nature of the government's suggested return to work schedule in this video, which is disappointing as it is otherwise mostly good. Any increase in activity must, must be sustainable and recovery-led or these poor people will just be back where they started with each crash; the difference being that it's what is done to rest and pace at the beginning of a post-viral syndrome that makes the biggest difference to prognosis if there is anything to learn from ME.
I would stress for other readers that ME encompasses a constellation of symptoms rather like those found in long haulers and is in no way restricted to post activity exhaustion.
I'm sure some will make a reasonable recovery in a few months while for others it will take longer and the way they manage their energy to avoid crashes will make a huge difference. You cannot start quickly zipping up the increments the moment you feel a bit better. The process really can take months but is so worth persevering with 💗
RUN-DMC I’m not sure where my original illness ended and ME set in. I had Sarcoidosis (Lofgren’s Syndrome) in 2001, which was only supposed to last 2-3 months. But after 3 months, I was still ill, so I was put on steroids. I was a self-employed training consultant and I went back to work feeling great. Over the next two years, I worked, eventually taking steroids for 5 days whenever I was running a course (2-3 weeks a month). It got harder and harder until, eventually, I had a major crash and was never well enough to work again. That was in 2003. In 2006 I moved to another area and, after more tests, I was told I had ME rather than Sarcoidosis. I suspect I went back to work with PVF rather than Sarcoidosis. Please let this be a cautionary tale to you all. Believe me, I know the pressures when you’re self-employed. It was 3 months without any income that sent me back. Start the benefits claiming cycle sooner rather than later (that will take plenty of energy!). I strongly recommend benefitsandwork.com to support you in this, as claiming benefits is a minefield and many people get wrongly turned down. Sign up for their free emails, then use the voucher they send you for cheaper registration, which allows you to access their brilliant guides. All the best!
@Francesca Christy, how often do we hear this story on the ME forums 😢
@@ysbyttybedbug Taking some things like steroids can lead to a false sense of security when the tank is empty. It's a natural inclination to make up for lost time if you start to feel well. A slow paced healthy lifestyle without stress is the only way. Stress can be like a drug which means your body is taken out of recovery mode but you still feel ok then the stop is obligatory. I went on like this for years and the recovery will take just as long, so I've been reliably informed.
Still struggling almost 6 months. Nowhere near recovered.
Same here, it's been six months. My lungs and kidneys ache, pretty much all the time.
Same here. 5 months and counting!
Me too. Fatigue is better but the sore throat, chest pains, lung burn, pins and needles are still there.
Hey how did y’all feel now??
Me too! Im sorry youre still sick. Ive been reaching out to hospitals and educating them on long covid. In the ER some docs have NO IDEA AND THINK ITS ANXIETY. omg..
I’ve lived with all of these symptoms for 10 years after contracting a virus, there’s no let up in sight , people with m.e/cfs battle this everyday of their lives for decades, this is noting new , full systemic illness which effects every part of our bodies from cognition to mobility , renal to sensory , the list goes on
That’s somewhat discouraging. Hopefully health experts will look into it since so many more people are battling this.
This doesn't have anything to do with the video.
this condition is easily healed in less than a week,please let me know if you want to heal
Some people have said they have gotten over me/cfs though with time.
So I hope there is something to help everybody going through these terrible conditions. I hope theres something to help you and me too. 🙂
Btw I’m not a wishful thinker, the reason for me commenting is to try to find solutions to the problem, like maybe those people have done something we haven’t tried yet. I’m not saying it to be one of those people who argues with your own personal experience as people do that to me and it’s very annoying. I’m just saying if other people were able to recover maybe we can too.
Best video I’ve seen yet. I’ve got a to do list I keep in bed with me. Last week I tried to push went hard and by hard I mean a normal day. I was a beast before covid. I’ve been writing scripts, studying films, researching grants, running a resource group. So both cognitive and physical activity take me down. Here in the US we have problems getting unemployment. Right now I only get 181 a week and it took five straight months of calling 8-12 hours a day. Even during the throws of covid I had to call. I’ve been laid off cause I literally can’t work. Was crying today so thought I’d research RUclips see what’s out there and this is a very well put together video. Excellent info. I’m going to share in my support groups and continue to follow.
Thank you for your support. So sorry to hear you’ve been struggling too - best of luck with your recovery! And as for the crying - I think we all do that. I made a film about covid and mental health too - it messes you up.
RUN-DMC I’ll take a look. I wrote out a RUclips series but I can’t even film right now which is killing me. Boundless mental energy but there is where I’m at. I think acceptance. I’m worried about about not going back to baseline. Thought I could push myself there. Nope. Will search for your video. Just sent this one to other long haulers. Side note: got off Facebook again after watching this video. Have been back on for five days and have been bed ridden worse than the week I was off so deactivated again. Thank you for the video.
Thank you for all your efforts and research Jez! I am watching your videos intently to prepare myself if my symptoms continue. Chest pain, headaches, and fatigue for last two months to name a few, I wish you all the best for you to get back to 100% too.
Sorry to hear that Danny. Best of luck with your recovery!
Gez , I have been following you for a long time
I have been suffering horrendously for 2 1/2 yrs and the last 8/9 months bed bound in this year 2022
Most if not all long Covid symptoms are caused by the Vagus nerve stuck on the Sympathetic side ( fight and flight ) causing all these symptoms
Last Tuesday 14th Sept 2022 I started vagus stimulation on my ears
Vagus nerve breathing exercises
Vagus nerve eye reset techniques
Everyday I started getting calmer
Firstly I was not gasping for air during exertion
Then my heart stopped racing on exertion
Eventually on day 5 both symptoms ceased and my mind stopped racing especially at night which helped my sleep
I noticed on my Fitbit that my deep sleep had increased by a long way which has helped my recovery
On that 5th day I could feel a lot of movement in my head and then eventually a tap was turned on and my usually dry nose started pouring out snot
I no longer had any long Covid symptoms at all
I stupidly went for a walk the next day but suffered PEM and also from a walk the next again day
All stupid on my part as I should have know that my body was still full of inflammation
These last few days I have felt inflammation receding and I have had very bad “ cold” symptoms as my body is recovering , adjusting and repairing
My glands are still fully swollen and my jaws are sore due to my body getting rid of whatever it is
It is obvious that it takes a while for the body to recover even when you have fixed it
I am now fully convinced that the Vagus nerve is fully responsible for the continuation of long Covid
I urge everyone to set aside 10mins - about 3 times a days to do vagus nerve stimulation, vagus nerve breathing exercises and try the vagus nerve reset with eye exercise
There are many tutorials on RUclips for all these
Just a note to say I took Magnesium citrate 500mg (150mg of active elemental magnesium) each night which enhanced my sleep
When doing the ear stimulation take slow deep breaths and when exhaling really let your body crumple down into relaxation while continuing to stimulate. Each for 5 mins - 3 times a day
I know this is an old video but I hope that Gez picks it up and try’s for at least a week ( 5 days for me )
You can really feel it working as you go along the process
I know this is long but I really want to share this success that I never ever thought would happen
This really works and I hope Gez will give it a go and share his findings
GET your VAGUS nerve sorted and good luck all
I had a severe allergic reaction to all the antihistamines the doctor tried to prescribe me with, and I think that has prolonged my recovery.
try a low histamine diet research MCAS
Thank you for all your research. I have been recovering from Long Covid since March 2020
Hi are you fully recovered
Haw are you now?
@inveigle
Eyyy thanks for the update. I just hit the 5 month mark since I got sick. Sill managing fatigue and aches. Good luck everyone!
How do you feel now??
@@travisduran5718 11 months in. I had my worst flare up last month, but I now also feel better than previously. So strange. Bone aches, head aches, fatigue and chest pain are my main symptoms on rotation.
@@Paincakes what did you do to help you get better
@@aronajordaan3919 It started with meditation and light yoga.
Very glad I found this channel. I first got ill back in March before testing was available. I've had severe symtoms since then and one relapse in November.
It's been a long road. I've completely changed my diet and I am trying to do more selfcare.
Thank you for offering so much hope :)
I'm not an expert or amazingly well informed. But I have had fatigue for years - so I have first hand experience. It seems that maybe 1 in 10 of people with long covid are not even being taken seriously by their GPs - this is unfortunately my experience with fatigue as well... I've got to say that I don't think anyone will get really any help with long covid if my experience is anything to go by.
What you say about corticosteroids makes sense from what I understand. However, what I have been doing for the last couple of years is taking 1g per day of L-Carnitine (a low dose) which is something you don't even need a prescription for - I'd love to tell you what the medical profession in the NHS has to say regarding my case, but I have been on a 3 to 4 year waiting list already to get treated (and this is my third attempt over the 20 years I have been struggling - so last couple of attempts took years as well and I just gave up trying). So I am self medicating - taking a gamble basically.
L-Carnitine is generally used by fitness fanatics or people trying to lose weight, as it helps your body burn energy stores in the body and gives you a more lean physique - but it is also useful in combatting exercise fatigue. There are various studies into the effect of L-Carnitine on chronic fatigue that seem to suggest it works (though is a mixed bag) - it appears to boost hypothalamus activity as well as transfer of energy in your cells. But in some respects L-Carnitine does act like corticosteroids in terms of it's masculinizing effects: and fatigue and immune disorders is most common in women (and it appears men have naturally have higher levels of L-Carnitine in their bodies). As I say, I am not an expert.
Before taking L-Carnitine I was in so much pain I was almost breaking down in tears just trying to walk half a mile - it was like having knives grinding into my joints. And consciously I was just like a video camera detached from the world. But within a week of taking L-Carnitine I was feeling so much better - the first couple of days I did feel like I was going to have a heart attack or something... But now I just feel fine. I've tried coming off L-Carnitine but within days I feel ruined.
That's interesting i was thinking the same with creatine, which aids with your recovery time. got some thing to do with converting ATP quicker from ADP.
Bro what's ur fever temperature
I couldn't click on this fast enough. I'm terrified about recovery not being possible, as I'm sure many can relate to. I'd be happier if the fatigue lessened and I wasn't out of breath so easily. I could deal with everything else a lot easier if that were the case. I will be going to a pulmonologist soon so crossing my fingers he has an idea of what to do.
I did have to go back to work. I live alone so not having a full income wasn't really an option. I'm on medication to help with the fatigue while at work. Then, depending on how busy work is (I'm a nurse) and how many days I work in a row, the next day will inevitably be spent sleeping, joints aching, hardly getting out of bed, sometimes only to go back to work and do it again until i get a day off. Even my days off, where there are things I HAVE to do (like grocery shopping) still end up being spent mostly sleeping.
There's no such thing as a day without multiple naps anymore. I just can't.
I have been the same... and had ground glass inflammation changes on CT scan at 3months post infection despite being an athlete pre covid and no lung conditions. Pulmonologist review i hope will do respiratory function tests with you. I have been assigned respiratory physiotherapy as we develop dysfunctional breathing post lung infection esp. when residual pain. I have found NAC supplementation, to be helpful but have been advisd to do a course of steroids to help clear residual inflammation. I am tentative due to side effects but will take a low dose just 2.5mg prednisone and build to 15mg if tolerated.
Wish you the best.
smoupnhoize what medication are you taking to help with the fatigue at work?, sounds like something that could be very helpful so would love to know
@@fabulousdoc I've had respiratory function tests done which show an extrinsic restrictive pulmonary issue. Hoping to get a plan to reverse that, if that's even possible.
@@MaxPlaysFIFA While I do have prescription medication, I can no longer say it work 100% of the time. I was taking half a caffeine pill before work, which did work 100% of the time but caffeine interacts with other medication I'm on so I had to stop.
I guess I'm kind of back to the drawing board on staying awake at work.
I seriously love & appreciate all this information that you have shared with the public. Thank you soo much.
Hi everyone. After having quite mild infection at the end of March , I became aware of the relapses in the second half of April when I tried to get back in shape with exercise. One of them at beginning of July I even mistaken for re-infection since it was rather strong after feeling great whole June . As I write this I'm hopefully at the end of another one. Last couple of weeks I've done my own research all over the net. I'm kind of confident now that it's indeed mostly the matter of elevated pro-inflammatory cytokines (probably IL1, IL6, IL8, TNF-alpha and maybe some other too) due to ''confused'' immune system. Gonna attach some links at the end but idea is to lower those with either homeopathy or Ayurveda and/or anti-inflammatory (super)foods. Also I have learned that some supplements that are good for acute infection are bad outside it cause they stimulate cytokines including pro-inflammatory ones. Elderberry extract, for example, does magic during most respiratory virus infections but can stimulate cytokines up to six fold. Some say careful with vitamin D3 too. Right now, cause I read in some study, experimenting with homeopathic preparation of Rhus Toxicodendron, but my sister who is just graduated homeopath says that my relapse symptoms resemble more Arsenicum Album , that also cured most people from acute Covid till now. Probably the smartest thing is to make appointment with either homeopath or Ayurvedic or even Chinese doctor. Stay strong everyone! We gonna kick this!
www.homeopathy.ca/files/Post-COVID-19.pdf
patents.google.com/patent/WO2011043735A1/en
www.ncbi.nlm.nih.gov/pmc/articles/PMC5606136/
europepmc.org/article/pmc/pmc6269762
P.S. Oh, it's a kind of bummer, but orgasms also stimulate cytokine production ;)
I had chronic fatigue to begin with, Covid took me to a new low and I’m looking into getting an adjustable bed since I spend most of my time in bed. The fatigue and body aches are debilitating, headaches and one symptom I don’t hear mentioned is sweating in sheets, its like revisiting menopause.For me it’s been 6 months. Im not worse but not getting better, I’m terrified of getting it again.I’m glad that attention has finally been given to chronic fatigue, it’s a hell, really, and wasn’t taken seriously by doctors.
So sorry to hear how much you’re suffering Linda. Wishing you the best in your recovery.
Hey Linda! I have a couple tips if your willing to listen that have helped me greatly!
@@User98681 I’m open to anything, I’m drinking more water to avoid dehydration, take magnesium, vitamin D, and multiple vitamins, drink probiotic drinks.
Hi Linda,how are you now? Do you have recovery?
@@Toolsmanufacturer Thank you for asking, it’s been 9 months and the fatigue, body aches and headaches persist, the fatigue bothers me most. Sweats and breathlessness have passed. I’m looking for a PCP and it’s a matter of combing through websites, looking at the limited info and pictures and randomly choosing, hoping to get a Dr who understands, It’s like needing 10 units of energy for bare maintenance but having -5 most days. My 3 year old grandson inspires me, I live to be the best nana I can be to him. I take him overnight one day a week and sleep for 2 days after trying to eep up with him, haha.
Thank you so much! I cannot explain how much this meant to me.
I’m glad it helped in some small way Julia!
It's often said that "Hate" is a strong word, not for Covid!
Thanks, for the video, ever since Covid my body is acting very strange, I have seen since doctors and nurses and none the wiser.
Thank you for another excellent, informative and encouraging video.
I just want to say thank you soooo much for making this video. I'm 1 year in and although I did go back to work but couldn't continue. I. Currently off work 3 months.
How are you now?
Thank you so much. I've really been struggling
Victoria did you manage to make a full recovery?
Thanks for this, my Dr won't see me,worried about covid,
sent me to Er ,MRI stress test,blood work,
Got sent home with meds for cholesterol,Something for the rash or the insomnia No
They don't get it,or really listen,
Sorry very emotional writing this.Its been 2 miserable month,
How many here after shots? One it s me....most of long "covid" cases comes after shots... And doctors know all...
Palpitations and heart pain, heart burn and heart discomfort, heart congestion, chest pain.......... iam going through hell...
Thank you so much for this. So incredibly helpful & very true to my own experience. Hoping we all make a full recovery very soon.
Thank you so much! This is really helpful
9 months here. Took me that long to walk 4 blocks. Was never in the hospital. No vent. But as of today i have many symptoms on thar list. Ugh.
Just got insurance and going to see a primary care in Jan. Also getting high quality supplements. Trace minerals zinc magneseum brown sea weed. Vitamin D3 + k2
Breathing is weird and I get sudden random breaths out of nowhere. Ugh. I am grateful it wasn't worse but I want this GONE.
THANK GOD I'm a day trader and can trade the Asian and NY sessions!!
@RUN-DMC any idea what the sudden breaths are and feeling in xyphioid process area? Have you experiences any sudden 'surges" or waves of a ticklish feeling thru thr chest or a "bottoming out" of your breath in the lower lungs followed by the need for a quick rapid breath?
Also my breath issues are worst at night early AM like 3am and I have NOT been able to go to sleep until long after sunrise, like 9-11AM. and Ill sleep til 4pm-7pm.
500,000 long covid. That's not good.
Edit, clearly remember the steroids from the Bells Palsy I had. Fairly high doses for around 4 months. That raging hunger is best avoided by eating small amounts every three hours, before the sick feeling comes. Don't bother with normal meal times, spread the normal meal into two and you'll get through.
As for fatigue, have had it for years with an under active thyroid. Listen to your body. Don't be afraid of saying no if you aren't up to whatever was planned. Do the vital stuff first, that dust will wait until you are well enough to do it.
Thank you. You are kind. Letting things go has been very hard for me. Again, thank you.
I have had a very, to my beliefs, different Covid experience. Oddly enough it has helped to improve some areas of my disorders, diseases with some unexpected results. Without too much discussion I have had significant improvements in sleep. After years (15 years) of only getting 3-4 hours of sleep I now wake up refreshed after 7-9 hours of sleep and am awake the whole day. Occasionally I have a nap of about 2 or so hours at my desk but not the entire day gone in sleep. Quite an improvement. My brain fog seems to have concentrated into short periods of time instead of all day, day after day episodes. There are other improvements but they are smaller and I am hopeful to complete the process of healing. One important improvement is inflammation and pain reduction. I have really painful arthritis and It still hurts but in a different way. More concentrated and mainly in points of injury. What did I add that seemed the most helpful was increased Vit.D, B a general vit for women. Nothing fancy over the counter stuff. So I am hopeful that some of these and other mild symptoms go away. If you wish some more info send me a safe method and I will comply. FYI, not including obvious ills, Hashmoto, MG and heart-lungs garbage are the regulars and about 7 friends (not) I don't recommend tackacarda, damned painful.
Since I could not regain my previously satisfactory health state after "crowning" and had symptoms resembling reactive arthritis, I went for a 7 day fast. Definitely improved the matters in my case. Good luck and thanks for your charming vids. :))
And how do you feel now Martin?
@@freenguellolo8657 Thanks for asking. I'm fully recovered now as good or even slightly better then before C19. But it was not as simple as just fasting - that was fun and did me good improvement but I still had some tachycardia and 90% of energy. The real break through came after I started (wait for it :)) to eat raw beef and saturated fat (I was on keto before and though the illness). It sounds silly but there is a light year between even slightly clocked meat and raw in terms of bioavailability. Maybe it was a coincidence and my slight arthritis, tachycardia and lack of energy would have cleared it self .. I don't know, but I have since stuck with this way of eating and I'm not planning to go back anytime soon. Raw beef, half (good quality anion, not soft or suspicions !!) and ghee - lots of it :)) + black pepper. There is something about it - magic tartar :)) It looks like mitochondria get real bashing from this virus and they need lots of TLC :)) How are you, what kind of simptoms do you experience? I still periodically supplement Zn, Cu, J, Se .. once a week or two to keep things right for periodic re-immunization with new variants while doing my grocery shopping :)). Vale! :)
I had a year of fatigue after getting mononucleosis when I was 19. I was in college and truthfully didn’t focus on health. I was at NYU Langone early in October while they ran tests since my bp stopped responding to Presc meds. I couldn’t walk a block without severe issues. They found nothing except some odd rheumatoid numbers. One of the Cardiac heads at NYU tried to get my numbers down with no success. I then tried herbal supplements like Hawthorne. Worked for a few hrs at a time but obviously not a success. I’m now using L Arginine and Ornithine. My bp dropped significantly, my rash cleared and I slept soundly and can now walk a few miles again. It’s early but I’m hopeful.
Glad to hear it Izzy!
Have you heard of a condition known as 'leaky gut'? Might be worth looking into whether dietary adjustments could help to mitigate effects of leaky gut on an overactive immune system.
Oh gosh, here comes the “pink drink” that can solve all of our problems! Lol