Just found you I’m praying you are feeling better I just got my kesimpta a month ago but too afraid to take it. I was on rituxan for 5 years and loved it but just found out I’m jcv positive so they changed me to this and honestly m dreading it. I hope you post again soon
I'm switching meds I will do another update but I took another antibiotic about 2 months agao and finally found relief but I will be starting a new med next week im nervous but excited stay tuned.. I will pray for you don't be afraid this med helped my MS tremendously I am thankful for it. The benefit definitely outweighs the risk I dwlt with the URI but it truly helped my MS and I start a new chapter soon! Keep fighting you got this! ❤
@@suziqbruzzi4421I have been on Tysabri since 2011 and I’m switching to Kesimpta at the end of next month. I watched your video where you injected in your stomach and I have a similar stomach, but it hurts to pinch the fat because it doesn’t just feel like skin. Any tips for getting it to hurt less? I’ve been trying the practice pen. I’m familiar with injections because I was first on Rebif, but I had less fat then and it was easier to inject without using the auto injector. What med are you switching to?
Hi Suzy, I have been on Kesimpta for about 15 months and I have not had a cold or any respiratory issues. I do wash my hands ALOT during the day and avoid touching my face. I wear a CPAP machine at night so I’m always paranoid about getting a cold because then I’m unable to use my machine. I sure hope things get better for you.
I wash my hands constantly also im on another round of antibiotics and steroids hoping for the best im so glar to hear your doing well thats great! ❤❤❤❤
@@suziqbruzzi4421 hopefully it gets better soon! Keep us updated on how it is going. I hope you don’t have to quit taking Kesimpta. MS sucks for everyone that has it. I hope someday there will be a cure.
Hi, I started Kesimpta on Friday the 19th, the next day on Saturday I woke up feeling weak and my legs very weak too, didn’t want to do anything just took a shower and sat on my couch all day strolling through my phone. I got chills at nighttime but never got fever just lots of body weakness like when one comes down with a cold, that type of feeling. I must say the injection didn’t hurt at all, I did on my left stomach side. I was using Copaxone ever since I got diagnosed in 6/2018, my neurologist saw my recent brain MRI and saw I had more lesions so he took me off copaxone, so I was off it for a couple of month and just started Kesimpta. I don’t miss taking Copaxone because it hurt every time I would inject myself anywhere. I hated it so much! Let see how this new injection goes. Will let you know. I hope you get better, you just need the medication to cure your side effects. Take care, 😊
Thank you yes I have been on dozens of rounds of antibiotics and steroids as well as taking dayquil and niquil round the clock it's been very rough. My lungs are just so heavy i worry... I hope you do well I will be praying for you please keep me posted I hope u feel better🙏🙏🙏🙏🙏
Sorry to hear that you are struggling so hard. I just started Kesimpta and I do worry about infections. :( What is your diet like? I pray you feel better soon. :)
@@suziqbruzzi4421 I've started drinking a green drink daily in hopes that it will help inflammation and help the part of my immune system not affected by Bcells strengthened.
ماعرف اللغة الانجليزيه لكن كنت ابحث عن علاج Ms وشفتك تستخدمي نفس العلاج الي صرفوا لي ممكن تقولين تجريتك كتابه كيف حالتك الصحيه بعد سنوات من استخدامه. تحياتي 🇸🇦
I have had MS for 16 years and totally feel you on the game of medication roulette. Have you considered the twice a day pill, Tecfidera? I have been on Avonex and Tecfidera and now, ironically, going on Kesimpta (which is how I stumbled on your video). I had to stop Tecfidera after 5 years because I was getting chronic urinary tract infections. Detoxing between meds has really helped me regain quality of life and Dr Terry Wahls Diet (funded by the MS society) really helped. The only bad thing is that when my immune system is healthy my brain is attacked big time. My best advice from my experience is to take a six month break every three years or so to let your immune system take care of business and then return to your DMT.
I'm actually starting a new med soon this medication really helped my MS the URI ducked big time but I'm still thankful for the help it gave me with relapses I will update soon about my new chapter I will pray for you also we are warriors we will overcome the bad 🙏🙏🙏😊
No my insurance changed so I'm in the process of looking for a new primary to get a referral I have the worst luck... I did another round of antibiotics and steroids I got from urgent care and am feeling a bit better I just wanna get this outta me it's been awful 😢
@suziqbruzzi4421 what else are we supposed to do though? They don't even know what causes MS so how are they going to properly treat us.😢I just started kesimpta last week I'm hopeful but....❤❤love all you MS warriors!
Just found you I’m praying you are feeling better I just got my kesimpta a month ago but too afraid to take it. I was on rituxan for 5 years and loved it but just found out I’m jcv positive so they changed me to this and honestly m dreading it. I hope you post again soon
I'm switching meds I will do another update but I took another antibiotic about 2 months agao and finally found relief but I will be starting a new med next week im nervous but excited stay tuned.. I will pray for you don't be afraid this med helped my MS tremendously I am thankful for it. The benefit definitely outweighs the risk I dwlt with the URI but it truly helped my MS and I start a new chapter soon! Keep fighting you got this! ❤
@@suziqbruzzi4421I have been on Tysabri since 2011 and I’m switching to Kesimpta at the end of next month. I watched your video where you injected in your stomach and I have a similar stomach, but it hurts to pinch the fat because it doesn’t just feel like skin. Any tips for getting it to hurt less? I’ve been trying the practice pen. I’m familiar with injections because I was first on Rebif, but I had less fat then and it was easier to inject without using the auto injector.
What med are you switching to?
Hi Suzy,
I have been on Kesimpta for about 15 months and I have not had a cold or any respiratory issues. I do wash my hands ALOT during the day and avoid touching my face. I wear a CPAP machine at night so I’m always paranoid about getting a cold because then I’m unable to use my machine. I sure hope things get better for you.
I wash my hands constantly also im on another round of antibiotics and steroids hoping for the best im so glar to hear your doing well thats great! ❤❤❤❤
@@suziqbruzzi4421 hopefully it gets better soon! Keep us updated on how it is going. I hope you don’t have to quit taking Kesimpta. MS sucks for everyone that has it. I hope someday there will be a cure.
Thank you for sharing. I just started kesimpta last month
I wish you the best on your journey 💞🙏🫂
Hi, I started Kesimpta on Friday the 19th, the next day on Saturday I woke up feeling weak and my legs very weak too, didn’t want to do anything just took a shower and sat on my couch all day strolling through my phone. I got chills at nighttime but never got fever just lots of body weakness like when one comes down with a cold, that type of feeling. I must say the injection didn’t hurt at all, I did on my left stomach side. I was using Copaxone ever since I got diagnosed in 6/2018, my neurologist saw my recent brain MRI and saw I had more lesions so he took me off copaxone, so I was off it for a couple of month and just started Kesimpta. I don’t miss taking Copaxone because it hurt every time I would inject myself anywhere. I hated it so much! Let see how this new injection goes. Will let you know. I hope you get better, you just need the medication to cure your side effects. Take care, 😊
Thank you yes I have been on dozens of rounds of antibiotics and steroids as well as taking dayquil and niquil round the clock it's been very rough. My lungs are just so heavy i worry... I hope you do well I will be praying for you please keep me posted I hope u feel better🙏🙏🙏🙏🙏
Hi, Suzi I'm Carlos from Mexico, I really hope to get better, I like your tutorials. Xoxoxox
Thank you so much! 🙏
Hi Suzi sorry to hear you are feeling crap, I have been on Kesimpta for nearly a year now not feeling any better yet 😢😢
I may quit 😢
Hi Suzi , Hope your are doing better ❤, plz have you been vaccinated against pneumococcal before taking Kesempta ?
No I did not know that was a requirement my doctor has never mentioned this ill have to ask...🙏
Hi Suzi, feel better soon! There has to be a medicine for your health breathing better soon!
That you will feel better soon!
Thank you 🤗🤗
Sorry to hear that you are struggling so hard. I just started Kesimpta and I do worry about infections. :( What is your diet like? I pray you feel better soon. :)
I'm not on a special dirt although I do need to adjust my living style 🙏
@@suziqbruzzi4421 I've started drinking a green drink daily in hopes that it will help inflammation and help the part of my immune system not affected by Bcells strengthened.
@@suziqbruzzi4421 A really bad sinus infection started this MS for me. :(
ماعرف اللغة الانجليزيه لكن كنت ابحث عن علاج Ms وشفتك تستخدمي نفس العلاج الي صرفوا لي ممكن تقولين تجريتك كتابه كيف حالتك الصحيه بعد سنوات من استخدامه. تحياتي 🇸🇦
I have had MS for 16 years and totally feel you on the game of medication roulette. Have you considered the twice a day pill, Tecfidera?
I have been on Avonex and Tecfidera and now, ironically, going on Kesimpta (which is how I stumbled on your video). I had to stop Tecfidera after 5 years because I was getting chronic urinary tract infections.
Detoxing between meds has really helped me regain quality of life and Dr Terry Wahls Diet (funded by the MS society) really helped. The only bad thing is that when my immune system is healthy my brain is attacked big time.
My best advice from my experience is to take a six month break every three years or so to let your immune system take care of business and then return to your DMT.
I'm actually starting a new med soon this medication really helped my MS the URI ducked big time but I'm still thankful for the help it gave me with relapses I will update soon about my new chapter I will pray for you also we are warriors we will overcome the bad 🙏🙏🙏😊
@rinh3088
Dr. Terry Wahls had chemotherapy etc.
Do you see a pulmonologist?
No my insurance changed so I'm in the process of looking for a new primary to get a referral I have the worst luck... I did another round of antibiotics and steroids I got from urgent care and am feeling a bit better I just wanna get this outta me it's been awful 😢
They are literally experimenting on you!!!
My sister says this all the time 😭
@suziqbruzzi4421 what else are we supposed to do though? They don't even know what causes MS so how are they going to properly treat us.😢I just started kesimpta last week I'm hopeful but....❤❤love all you MS warriors!
@tomma8195
Do you have multiple sclerosis?