Went back to work recently doing two hour shift for some money. I use to do twelve hour shifts without a break in a kitchen and not be remotely close to how tired i am after just two. I go to work for two hours then end up in bed all day! People really don't know what i mean when i say i'm tired, i get so tired it takes effort just to respond to people.
My biggest issue is the cognitive impairment resulting from fatigue. It's truly debilitating. But one thing is for sure. I cant be arsed listening to specialists discuss symptoms. I want to gear solutions.
Traumatic brain injury has given me a fatigue burden I had not experienced while I was an active duty army soldier for three years. 13 years of living with a traumatic brain injury has given me a very esoteric perspective of life I'm needing to do something with to benefit myself and everyone else involved.
Melissa Adams I'm sorry to hear that. My employer is very understanding. In the U.K. You are covered by employment law. I couldn't get out of bed yesterday and they understood. I have been to the doctor today and I'm getting tested for thyroid dysfunction. I feel like a new person today. I hope you feel better soon xx
Aliza Ben-Zacharia made lots of great points I've heard before. The damaged nerves work harder causing mental and or physical fatigue. Our bodies burn out.
Excellent video content! Apologies for butting in, I would love your opinion. Have you thought about - Dinanlinson Rebooting Health Approach (just google it)? It is an awesome exclusive product for getting rid of chronic fatigue syndrome without the headache. Ive heard some awesome things about it and my work buddy got great success with it.
Lassitude exactly expresses my fatigue. I’m always needing a nap. I am not depressed, though have been in the past, and had CFIDS in the ‘90s. This is different.
Rest-Sleep & more rest & sleep... The fatigue is hard to deal with, but if you pace your daily life & keep yourself fit and eat heathly you can learn to balance your fatigue... 6 year on for me with MS & I have learnt to balance, but thats not to say that some days aren't harder than others... Very good upload & very helpful :)
Totally agree with rest, sleep, diet and keeping fit. 👍 Also add into that keeping mentally active and keeping the mind engaged by doing things that you enjoy. I feel it helps to create positivity. 12 years with MS I have bad days with my MS, especially fatigue but you learn to adapt and work around what works for you and your body.
That's if you don't have other issues with sleep. I had a Healthcare professional tell me, "look, if your body isn't making or interpreting the sleep hormones, you won't be able to sleep, no matter how tired you are." I've found that to be true. I can be lying down, too tired to open my eyes, but unable to actually sleep. It's awful.
The importance of good Sleep hygiene is something I needed to be mindful of during my active duty career, for best survival and overall health/well being.
I suspect I may have ms. I have celiac, undiagnosed for 45 years. Often times I will say I feel as if my blood was drained out & replaced with liquid lead. All day on the couch on those days but I hate sitting for too long because the longer I sit the harder it is to get up 😢
Got my MS in my early 40s but it was in remission for about 20 years and not diagnosed until my early 60s. I worked part time while raising three kids and my symptoms were rather mild until my mid to late 60s. My fatique is more depression related and having to get up at night to use the loo so I often have to catch up on the sleep I lost though I'm sleeping better now after 20 years of insomnia. Many top psychologists worldwide and people with MS in the UK where it's very prevalent esp. Scotland have linked MS to trauma, how about caused by ongoing stress since childhood and many experts have linked it to psychological trauma and great loss! How about we start linking MS to not only the physical body but to the mind and spirit as well, the body, mind and spirit connection since it's all connected i.e. HOLISTIC health! Many top psychologists have linked MS to emotional stress and state that too much chronic stress has created auto-immune diseases, not only MS and leading researchers in the UK have said it goes all the way back to the Vikings! I'm of English/Scottish/Irish background on my maternal side with a little French. There's a very high rate of MS in Canada, the UK and in Aberdeen Scotland where my ancestors were from, but there is no record of anyone in my family history with MS. Also, very high rates in the Orkney/Shetland islands just north of Scotland and anywhere above the 37th parallel due to lack of sunlight, hence the need for Vitamin D3 with K2 which helps the body to absorb the D3. "knowledge is power"....self-empowerment!
This guy admits chronic fatigue is usually the first symptom . so it's happening months or years before people are even diagnosed , on medications or even before they have a chance to be depressed about a life changing illness . He makes zero sense . I wouldn't wish ms on anyone but I wouldn't shed a tear if he was diagnosed and had to learn the hard way he's wrong .
With a neurological condition outside the usual spectrum is very much more important without the military structure forcing me into doing physical activity in spite of difficulty or neurological conditions
Nancy if you are still around on you tube it is on the bottom line at the right side. There are four icons and it is the one on the left in a white box that says CC.
Not the same as thyroid tiredness, aneamia weakness lol. I have all of these. You ra not really a specialist until you have it. Then things would become clearer.
My experience is it isnt fatigue. It's a complete shutdown of my system in order to preserve brain function. I have to down "tools" and allow my body to "reset". I can turn to glucose when I feel an attack coming on.
Agreed. Our bodies are in panic mode constantly and sometimes just have to slam the brakes on. I've been taking Duromine (phentermine) for over a year and have had a much easier time managing fatigue - my body still tires but my brain is able to still work.
Look up mitochondrial dysfunction and you’ll find that sufferers need glucose to help them get energy. Is there a connection between that condition and M.S. ?
Highest MS rates are in Washington and Vermont I read. Here in WA we usually have low Vit D levels from lack of sun. Which I found thru blood test 2years B4 MS diagnosis
Definitely push for an MRI and seeing a neurologist. I was diagnosed with fibromyalgia 3 years ago and am currently recovering/in a flare which gave me "stroke-like" symptoms so the A&E doctors recommended I be referred to neurology. Fibro and MS behave incredibly similarly, especially with onset - period of high stress/viral infection. Hormonal birth control and Epstein-Barr Virus (glandular fever/mono) are also thought to be triggers. Cytomegalovirus is part of the (HHV-5) viral herpes group which includes mononucleosis and pneumonia. I'm nervous and hopeful that an MRI will show something that the CT scans and blood tests haven't.
I was wondering if vitamin D The fishency causes Fatigue because I was diagnosed with this and put on 5500IU1per week and then this new doctor went and checked my vitamin D level and told me to cut down on my vitamin D intake and I did but now I seem to have worse fatigue and I don't know if my Vitamin D is causing this problem
Nice video but doctors, normally, don't prescribed drugs for fatigue. I was told that there is no specific drug that cures MS fatigue. I was recommended life style changes like pace yourself. I think this is why my doctor didn't say anything about fatigue in the beginning. I found out about fatigue, as I was going thorough it.
He’s not saying that at all. He’s just saying it doesn’t correlate with the MS brain lesions, so it’s caused by some other process in the body, not the lesions. Research has not yet identified what that process is. You can have more brain lesions, but less fatigue, and you can have fewer lesions, but more fatigue. Also, depression is not “all in your head.” It’s caused by a problem with serotonin uptake in the brain, yes-but it’s not imagined, as “all in your head” might suggest. Maybe watch the video again, with all that in mind. You might view it differently. Having the feeling that someone isn’t validating your symptoms is awful.
I think this may sound crazy but can you have a great deal of the symptoms of MS but even tho you go thru most of the tests for diagnosis still the doctors tell you you don't have it?
I couldn't walk a week ago... I faught my way back with the help of my Neurologist Nurse Practitioner (She's amazing)... Did my full PT and walked today... Trashed...
Being diagonosed very recently, i cry alot more know :), :(, not the worst thing that can heppen but knowing your braind is malfuntionning...ye alright...
did not learn anything new..as a patient i know if i dont sleep enough fatigue will be more, if i am stressed, there u go, muscle tension, even if you walk more it comes or my fatigue will be at constant mode...i cannot afford to yell at my kids nor can i have an argument with my husband. if i maintain some easy in my system, i can manage my chores..if some body starts an argument with me, thats mono acting for them..
My guess is depression is a symptom but not a cause of fatigue. Hard to not be depressed if you're exhausted.
This video is the best description of MS fatigue I have heard yet.
I wish people could & would understand
I would literally give away a limb to not feel this way all the time
Went back to work recently doing two hour shift for some money. I use to do twelve hour shifts without a break in a kitchen and not be remotely close to how tired i am after just two. I go to work for two hours then end up in bed all day! People really don't know what i mean when i say i'm tired, i get so tired it takes effort just to respond to people.
I totally understand...💕
Forget trying to explain this to someone who doesn't have fatigue. It's very frustrating. I'm tired of being gaslit.
I’m 16, and I’m like “yeah, Exercise is good for cognitive problems” while laying on my bed.
My biggest issue is the cognitive impairment resulting from fatigue. It's truly debilitating.
But one thing is for sure. I cant be arsed listening to specialists discuss symptoms. I want to gear solutions.
With ms fatigue I feel like I’m encased in concrete trying to walk in wet sand
Right?! It’s literally like that! Like someone just attached a bunch of bricks to your body when you have to stand.
Traumatic brain injury has given me a fatigue burden I had not experienced while I was an active duty army soldier for three years. 13 years of living with a traumatic brain injury has given me a very esoteric perspective of life I'm needing to do something with to benefit myself and everyone else involved.
Ill never feel ashamed for being disabled, you shouldn’t either. God Bless
I wish my job understood this.
Melissa Adams I'm sorry to hear that. My employer is very understanding. In the U.K. You are covered by employment law. I couldn't get out of bed yesterday and they understood. I have been to the doctor today and I'm getting tested for thyroid dysfunction. I feel like a new person today. I hope you feel better soon xx
Melissa Adams I understand that.
You are replaceable....They care about only one thing ...PROFIT!
fatigue from depression IS NOT the same.
I know exactly how the guy who describes lay down or fall down feels. MS fatigue is so debilitating I hate it
Aliza Ben-Zacharia made lots of great points I've heard before. The damaged nerves work harder causing mental and or physical fatigue. Our bodies burn out.
Live alone too.
It's scary and isolation is just terrible.
My fatigue is NOT from depression!
I have had that accusation of being depressed. But just too tired to argue.
KidCity Lynnwood Yep same thing with me
@@mikeny5020 I am sorry to hear that. It is aggravating to me. 😃
Excellent video content! Apologies for butting in, I would love your opinion. Have you thought about - Dinanlinson Rebooting Health Approach (just google it)? It is an awesome exclusive product for getting rid of chronic fatigue syndrome without the headache. Ive heard some awesome things about it and my work buddy got great success with it.
Same. I sometimes have to get somewhere safe because I cannot stay awake.
Lassitude exactly expresses my fatigue. I’m always needing a nap. I am not depressed, though have been in the past, and had CFIDS in the ‘90s. This is different.
Vitamin D3 .
Definitely been low for years and then DX with MS
Doctors listen to your patients
100% experiencing this with a incline
Rest-Sleep & more rest & sleep... The fatigue is hard to deal with, but if you pace your daily life & keep yourself fit and eat heathly you can learn to balance your fatigue... 6 year on for me with MS & I have learnt to balance, but thats not to say that some days aren't harder than others... Very good upload & very helpful :)
Yeah talk to me when you've been diagnosed for 20 I'd love to see how you are now
@@Bay-BGhost Still alive in a lock down!
Totally agree with rest, sleep, diet and keeping fit. 👍 Also add into that keeping mentally active and keeping the mind engaged by doing things that you enjoy. I feel it helps to create positivity. 12 years with MS I have bad days with my MS, especially fatigue but you learn to adapt and work around what works for you and your body.
That's if you don't have other issues with sleep. I had a Healthcare professional tell me, "look, if your body isn't making or interpreting the sleep hormones, you won't be able to sleep, no matter how tired you are." I've found that to be true. I can be lying down, too tired to open my eyes, but unable to actually sleep. It's awful.
The importance of good Sleep hygiene is something I needed to be mindful of during my active duty career, for best survival and overall health/well being.
I suspect I may have ms. I have celiac, undiagnosed for 45 years. Often times I will say I feel as if my blood was drained out & replaced with liquid lead. All day on the couch on those days but I hate sitting for too long because the longer I sit the harder it is to get up 😢
Try... Stretching... And seeing the joy in little things... This helps but doesn't cure it... Sending well wishes to you...
Got my MS in my early 40s but it was in remission for about 20 years and not diagnosed until my early 60s. I worked part time while raising three kids and my symptoms were rather mild until my mid to late 60s. My fatique is more depression related and having to get up at night to use the loo so I often have to catch up on the sleep I lost though I'm sleeping better now after 20 years of insomnia. Many top psychologists worldwide and people with MS in the UK where it's very prevalent esp. Scotland have linked MS to trauma, how about caused by ongoing stress since childhood and many experts have linked it to psychological trauma and great loss! How about we start linking MS to not only the physical body but to the mind and spirit as well, the body, mind and spirit connection since it's all connected i.e. HOLISTIC health! Many top psychologists have linked MS to emotional stress and state that too much chronic stress has created auto-immune diseases, not only MS and leading researchers in the UK have said it goes all the way back to the Vikings! I'm of English/Scottish/Irish background on my maternal side with a little French. There's a very high rate of MS in Canada, the UK and in Aberdeen Scotland where my ancestors were from, but there is no record of anyone in my family history with MS. Also, very high rates in the Orkney/Shetland islands just north of Scotland and anywhere above the 37th parallel due to lack of sunlight, hence the need for Vitamin D3 with K2 which helps the body to absorb the D3. "knowledge is power"....self-empowerment!
New to me is Turning heater on 67 and it makes me have vertigo and fatigue is up 90%
This guy admits chronic fatigue is usually the first symptom . so it's happening months or years before people are even diagnosed , on medications or even before they have a chance to be depressed about a life changing illness . He makes zero sense . I wouldn't wish ms on anyone but I wouldn't shed a tear if he was diagnosed and had to learn the hard way he's wrong .
At least someone is not pushing meds down the throat of the patients. Kudos to that 👏🏻
With a neurological condition outside the usual spectrum is very much more important without the military structure forcing me into doing physical activity in spite of difficulty or neurological conditions
Thank you for this informative video. Where are the captions or subtitles for the deaf?
Nancy if you are still around on you tube it is on the bottom line at the right side. There are four icons and it is the one on the left in a white box that says CC.
I walked in AZ for Team Trevis! Hugs
Not the same as thyroid tiredness, aneamia weakness lol. I have all of these. You ra not really a specialist until you have it. Then things would become clearer.
Sometimes I think I have anaemia because I can't barely walk, but I remember the way I was before MS. :(
My experience is it isnt fatigue. It's a complete shutdown of my system in order to preserve brain function.
I have to down "tools" and allow my body to "reset".
I can turn to glucose when I feel an attack coming on.
Never thought of it like that! When I get fatigue I truly feel like my body has shut down! I'll try the glucose idea 👍
Agreed. Our bodies are in panic mode constantly and sometimes just have to slam the brakes on. I've been taking Duromine (phentermine) for over a year and have had a much easier time managing fatigue - my body still tires but my brain is able to still work.
have you tried mct oil?
mct oil might be better than glucose.
Look up mitochondrial dysfunction and you’ll find that sufferers need glucose to help them get energy. Is there a connection between that condition and M.S. ?
Highest MS rates are in Washington and Vermont I read. Here in WA we usually have low Vit D levels from lack of sun. Which I found thru blood test 2years B4 MS diagnosis
I've heard it was Colorado for years.
@@tarp11z I heard there is a spike of cases on Syracuse
@@Firecracker66 it's strange how we get different information. I admit I haven't kept up with the latest.
I feel your pain, stage 4 osteoarthritis, degenerative disk and joint disease, and PPMS.
I will be willing to give
What about ME/CFS?
Yes, I have depress and so tired
Why is my fibromyalgia exactly like this? I know I'm not alone, are they both caused by a virus? Mine was started by cytomegelo virus.
Definitely push for an MRI and seeing a neurologist. I was diagnosed with fibromyalgia 3 years ago and am currently recovering/in a flare which gave me "stroke-like" symptoms so the A&E doctors recommended I be referred to neurology.
Fibro and MS behave incredibly similarly, especially with onset - period of high stress/viral infection. Hormonal birth control and Epstein-Barr Virus (glandular fever/mono) are also thought to be triggers. Cytomegalovirus is part of the (HHV-5) viral herpes group which includes mononucleosis and pneumonia.
I'm nervous and hopeful that an MRI will show something that the CT scans and blood tests haven't.
I was wondering if vitamin D The fishency causes Fatigue because I was diagnosed with this and put on 5500IU1per week and then this new doctor went and checked my vitamin D level and told me to cut down on my vitamin D intake and I did but now I seem to have worse fatigue and I don't know if my Vitamin D is causing this problem
there's no "profit" to be made from a healthy person....
make sure you're getting vitamin K2 along side the vitamin d3.
😀
@@C...G... thank you I will be checking out vitamin K2 I prefer vitamins and supplements over pharmaceutical products 😉😊
Nice video but doctors, normally, don't prescribed drugs for fatigue. I was told that there is no specific drug that cures MS fatigue. I was recommended life style changes like pace yourself. I think this is why my doctor didn't say anything about fatigue in the beginning. I found out about fatigue, as I was going thorough it.
Rita de Cassia Some MDs like to prescribe supplements to help with energy, but that does not seem to eradicate the total loss of functional reserve.
@@loricowan3084 Thank you.
This guy is saying fatigue is in your head,nothing to do with MS, I have MG I also get fatigued it's deffo part of the illness same with MS.
He’s not saying that at all. He’s just saying it doesn’t correlate with the MS brain lesions, so it’s caused by some other process in the body, not the lesions. Research has not yet identified what that process is. You can have more brain lesions, but less fatigue, and you can have fewer lesions, but more fatigue.
Also, depression is not “all in your head.” It’s caused by a problem with serotonin uptake in the brain, yes-but it’s not imagined, as “all in your head” might suggest.
Maybe watch the video again, with all that in mind. You might view it differently.
Having the feeling that someone isn’t validating your symptoms is awful.
I think this may sound crazy but can you have a great deal of the symptoms of MS but even tho you go thru most of the tests for diagnosis still the doctors tell you you don't have it?
I couldn't walk a week ago... I faught my way back with the help of my Neurologist Nurse Practitioner (She's amazing)... Did my full PT and walked today... Trashed...
trashed?
Is this an SNL Skit?
I experience fatigue.
Then general analysis
Patterns of beating defamationort Paton I think
Then work ups
No one knows so don’t say it’s depression
Being diagonosed very recently, i cry alot more know :), :(, not the worst thing that can heppen but knowing your braind is malfuntionning...ye alright...
did not learn anything new..as a patient i know if i dont sleep enough fatigue will be more, if i am stressed, there u go, muscle tension, even if you walk more it comes or my fatigue will be at constant mode...i cannot afford to yell at my kids nor can i have an argument with my husband. if i maintain some easy in my system, i can manage my chores..if some body starts an argument with me, thats mono acting for them..
4:03-420
These people are ridiculous! lol
This discussion is BS. The usual BS from individuals looking to maintain a career, rather than help others.