Wow you really know your stuff, great at explaining things to. See I have CML and I take dasatanib which is the TKI to prevent my leukemia moving into AML, I often think why don’t they just give me chemo and try completely kill it. A tablet a day is easier enough to do though so I’m happy enough to do that, it’s all confusing still and I’ve had this since December 14 2016 😁 I enjoyed this video I’ve subscribed so I look forward to seeing your journey
Also, can I ask do you need a bone marrow transplant, I’m told that’s my last resort if my chronic phase does progress into the more aggressive blast phase.
Hey again Just seen you answered my last question in this post! :P A tablet does sound good, with less wires to worry about too ! :) And transplant is definitely on the table right now. There is so much uncertainty right now. The main priority is to allow for some recovery now after all my cycles and then review going ahead with my transplant next year. So just making the most of my spare time now :) It is a scary thing to hear though isnt it !!
Tyler Blah yeah I imagine the wires and the chemo aren’t nice to go through, it’s bad enough knowing a tablet keeps me alive. Strange feeling, they do have some amazing treatments now don’t they. Good luck with everything, I do believe being positive helps a lot too, you seem to have that so that’s great. I’ll be watching your videos and following your journey, all the best 😃
@@TylerBlah Thank you Tyler!!! Personally, I would never consent to cancer treatment!!! However, dying from cancer is horrendous. Please see my comments under the video, "The Terry Fox Story".
Great video. I hope you stay as a med student and become an oncologist, then you have first hand knowledge of symptoms and side effects. I was diagnosed with breast cancer the first time in 1999 and had gone through four cycles of chemo - explanation of chemo is great.
@@TylerBlah they're talking to me about consolidation chemo now ,my first round of chemo was for 7 days straight 24 hrs, is it worse during the consolidation? I know we're all different but a lot of what you talk about/feel , I've felt the same. I'm trying to mentally prepare myself for the next step.
@@karolinarodriguez5051 by worse what do you mean specifically? My consolidation was HiDAC and time wise the treatment is much shorter. And personally I tolerated it really well. Almost asymptomatic for most of it! But as you said individual experience with the treatments are super varied, but I found Consolidation much better than induction during my experience :)
@@TylerBlah hi ! yes , i guess i ment if you had more of the side effects ,i handled induction pretty well so i feel a bit more frightened this time around. I know i'll be fine ,always staying positive . I am waiting for ithem to walk in any minute now but i was not lucky enough to use a fanny pack ,readmitted so enjoying the food!
elvrida naibaho 2 seconds ago or maybe, how i can contact you? so i can ask about the chemotheraphy and your other experience. My mom's doctor already make schedule for her take chemotheraphy next week. Please help me Thank you
What type medicine did u take prior to your bone marrow biopsy? In one of your videos u held up something that u said helped your pain. It look lite a white container, maybe with green writing and a brown liquid. I just could not tell it was so quickly. Thanks so much!
Hi tyler. Hope you health. My mom get AML leukemia, and I curious about your experience doing chemoteraphy. Where i can see your video about chemotheraphy side effect?
Hi elvrida naibaho. I am so sorry for this news. I truly am. I have just finished the side effects video. It should be uploaded by tonight or tomorrow for you.
or maybe, how i can contact you? so i can ask about the chemotheraphy and your other experience. My mom's doctor already make schedule for her take chemotheraphy next week. Please help me Thank you
Hi elvrida naibaho. The side effects video is another new video on top of the one that was just released. So it should be soon! I've linked my instagram in the description section to send messages if you needed. A qualified doctor is always my number one recommendation though for questions,and then the community (including patients like me :D ). As the doctors are very knowledgeable on these topics.
Wow you really know your stuff, great at explaining things to.
See I have CML and I take dasatanib which is the TKI to prevent my leukemia moving into AML,
I often think why don’t they just give me chemo and try completely kill it.
A tablet a day is easier enough to do though so I’m happy enough to do that, it’s all confusing still and I’ve had this since December 14 2016 😁
I enjoyed this video I’ve subscribed so I look forward to seeing your journey
Also, can I ask do you need a bone marrow transplant, I’m told that’s my last resort if my chronic phase does progress into the more aggressive blast phase.
Hey again
Just seen you answered my last question in this post! :P A tablet does sound good, with less wires to worry about too ! :) And transplant is definitely on the table right now. There is so much uncertainty right now. The main priority is to allow for some recovery now after all my cycles and then review going ahead with my transplant next year. So just making the most of my spare time now :) It is a scary thing to hear though isnt it !!
Tyler Blah yeah I imagine the wires and the chemo aren’t
nice to go through, it’s bad enough knowing a tablet keeps me alive. Strange feeling, they do have some amazing treatments now don’t they. Good luck with everything, I do believe being positive helps a lot too, you seem to have that so that’s great. I’ll be watching your videos and following your journey, all the best 😃
Your channel is really helpful. My wife has the APL variant of AML. Thanks and keep fighting!!!
I send all my strength Nick to your wife! 💪
Good video! Thank you for the explanation!
Thanks Prof Tyler. Currently on Oncology Rotation 1, you are one of my great learning resources. ❤️👍🎓 Steve Mc
Thanks Steve Mc! Best complement, and I'm glad it can help! Good luck on your rotation
@@TylerBlah Thank you Tyler!!! Personally, I would never consent to cancer treatment!!! However, dying from cancer is horrendous. Please see my comments under the video, "The Terry Fox Story".
Great video. I hope you stay as a med student and become an oncologist, then you have first hand knowledge of symptoms and side effects. I was diagnosed with breast cancer the first time in 1999 and had gone through four cycles of chemo - explanation of chemo is great.
Great video! I feel a lot more informed now haha :)
You explain everything very well. You also make your whole journey look like a piece of cake, your sense of humour is brill. "Fanny pack man" !!
Thank you so much. Fanny Pack man, I was proud of that when it came to me :P
Your video was so helpful , I just got diagnosed on April 15th and I guess I feel a little lost about everything.
Thanks for the comment! And I am so glad it helped. I definitely felt lost at the beginning too. It's almost impossible to be really prepared I'd say!
@@TylerBlah they're talking to me about consolidation chemo now ,my first round of chemo was for 7 days straight 24 hrs, is it worse during the consolidation? I know we're all different but a lot of what you talk about/feel , I've felt the same. I'm trying to mentally prepare myself for the next step.
@@karolinarodriguez5051 by worse what do you mean specifically? My consolidation was HiDAC and time wise the treatment is much shorter. And personally I tolerated it really well. Almost asymptomatic for most of it! But as you said individual experience with the treatments are super varied, but I found Consolidation much better than induction during my experience :)
@@TylerBlah hi ! yes , i guess i ment if you had more of the side effects ,i handled induction pretty well so i feel a bit more frightened this time around. I know i'll be fine ,always staying positive . I am waiting for ithem to walk in any minute now but i was not lucky enough to use a fanny pack ,readmitted so enjoying the food!
elvrida naibaho
2 seconds ago
or maybe, how i can contact you? so i can ask about the chemotheraphy and your other experience.
My mom's doctor already make schedule for her take chemotheraphy next week. Please help me
Thank you
What type medicine did u take prior to your bone marrow biopsy? In one of your videos u held up something that u said helped your pain. It look lite a white container, maybe with green writing and a brown liquid. I just could not tell it was so quickly. Thanks so much!
Hi Tyler. How long is a cycle of chemo? Do you have it once a week/month or other?
Thanks for the video sir.. god bless you... hope i could contact you soon..
Hi tyler. Hope you health.
My mom get AML leukemia, and I curious about your experience doing chemoteraphy. Where i can see your video about chemotheraphy side effect?
Hi elvrida naibaho. I am so sorry for this news. I truly am. I have just finished the side effects video. It should be uploaded by tonight or tomorrow for you.
or maybe, how i can contact you? so i can ask about the chemotheraphy and your other experience.
My mom's doctor already make schedule for her take chemotheraphy next week. Please help me
Thank you
@@TylerBlah oh oke . I see your recent video.
but how about your email or your contact please.
So many question I want to ask
Hi elvrida naibaho. The side effects video is another new video on top of the one that was just released. So it should be soon! I've linked my instagram in the description section to send messages if you needed. A qualified doctor is always my number one recommendation though for questions,and then the community (including patients like me :D ). As the doctors are very knowledgeable on these topics.