I was diagnosed with leukemia and am a doctor. My overt symptoms were bruising, lethargy and fatigue (had to nap every afternoon), mid day headaches with light headedness, seeing stars, and could not think. The leukemia resulted in lack of oxygenated blood supply to my head. My original oncologist said it was not related. But it knew it was. One year later and with treatment that has cleared up. 11 more months of chemo to go! Good luck to you!
One beloved friend died to leukemia this march, i wish her symptoms were diagnosed sooner, she had all the anemia ones for years and just thought she had a bad inmune system and thats it. Now I can't stop thinking about the times she struggled to catch her breath when hanging out, she never stopped being the more lively girl despite everything, I really miss her.
My husband lost his life to ML...he was 38. Only symptom he had was sore throats/ bleeding gums. RIP David. 17th April is your 15 th anniversary, the kids love and miss you xxxx
I'm so sorry for the loss of your husband! So young. I hope time heals the wound of his loss. I lost my cousin at the age of only 28 years old. His symptoms were fatigue and bleeding gums too. It was actually his dentist that sent him to have a blood test, since when he visited the dentist he understood that something was seriously wrong when my cousin's gums wouldn't stop haemmorhaging.
I’m sorry that you got this too. I was 29 when I was diagnosed with CML. In over a month ,non stopping flu symptoms, I lost 15 lb, No appetite at all, headaches and pulsing vessels around my head everyday, sweating at night, I barely even walked and happy now that I alive. Thank You for sharing your story.
How are you what is the age now my 29 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy 2 months hospital but we lost our son due to infection
@@ushaanand2450 i have a friend whom now i lose his contact after he informed that had blood cancer. He told me he wouldnt be around for a long time when he is hospitalized. But im really afraid that we will lose contact forever.
My mom was diagnosed with aml flt3-itd At June 2022. Her ‘only symptoms’ was long infection. she got remission after one round of chemo and targeted treatment. In 7th October she got BMT. So far so good. Your story helped me after my mom transplant. 5 years ago in May 2017 I donated my bone marrow to women in my mom age (know I had opportunities to meet her… she is doing fine) Thank you for your videos. Greetings from Poland and the USA.
Hi Emilla, I learned a weeek ago my dad going through leukemia. And some crazy reason I can’t be a donor.that what doctors keeps saying but when I look at google. Google saying I can… very confusing. Anyway either way I will be a donor for someone because now I understand how important is being donor. I wish I understood that before going through this experience. I hope you experience will be lesson for others so they don’t have to go through pain to understand how important is being donor. Thank you sharing your life force with that beautiful lady🙏🏻💚 Blessings to you and your mum and everyone 💚🙏🏻
@@Zeynep57881 Hi,doctors usually says kids cannot be donor because they usually carry only 50 % more less gen from each parent… it’s really small chance you would be matching. There is some condition that could eliminate potential donor. I am sending prayers for your dad and I hope your dad will find matching donor. I am back home and my mom is getting better in Poland ( she is off medication and so far she is doing good) I am sending greetings and prayers from the USA FOR YOUR DAD, You an your family 🙏
My daughter, 6 years old, was diagnosed with AML four weeks ago. Her symptoms were high temperature that didn't go down after paracetamol , pain in her neck (swollen lymph nodes ), no appetite. After first doctors appointment she was sent home and been told its a viral infection. I spoke to a doctor every day for four days, hearing the same thing. On the fifth day I took her to A&E , demanded blood test. Next day we knew it was leukemia. She supposed to start her second cyckle of chemo tomorrow, but its to ill to get it. Unfortunately first cycle and adenovirus in her blood plus mucositis caused swelling in her upper airways, followed by pneumonia. For last two weeks she needed support of a ventilator and finally getting better. I forgot to add , that while being sedated and taken to a theater to have her Hickman line put in, she suffered a cardiac arrest. That happened during first cycle of chemo. I really hope that one day i will see her talk about this terrible experience, the way you do. Anna
Oh! I am so happy for u. I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean. 1) light headed 2) tired & weakness 3) coughs and flu 4) nose bleed 1 time (gum bleeds) just a little bit 5) today she has a unbearable pain on her teeth,ear & arms. But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac. Basically I am so much obsessed with my sister. Maybe I love her a lot
How is your daughter same symptoms my28 year old only son died due to lukemia aml Chemotherepy 2 nd cycle we lost our son due to infection before this discese he was very healthy no any bad habits how he got this discese we lost our only son last year till today we parents suffering lot without our son
I was just diagnosed with MDS about two weeks ago, I had many symptoms for months but chopped it up to working to hard until I started getting really dizzy a lot, sharp pains in my legs and joints, heart palpitations, muscle spasms in random places, tired all the time, persistent ear infection. All’s I know is I’ll need a bone marrow transplant but have yet to speak with cancer specialists. Health care system in the US is very expensive and extremely slow!! I’m glad I’ve found your very informative videos… thank you!!
All my strength to you Brian in these next stages 💪 Hope my videos can help you with any questions or concerns you have, and always feel free to pop by 👌👍
@@TylerBlah I’m finding the best medicine is HOPE and your journey has definitely administered some to me free of charge!! Keep up the good fight my friend, your an angel that walks among us!!
Did you happen to have radiation before your diagnosis? My paternal grandfather had MDS caused by radiation. But if that isn't the only case then I wonder if that might be what I have. My maternal grandmother died from Polycythemia Vera, so I'm concerned I'm susceptible to blood cancers from both sides of my family.
My wife (49) was diagnosed with AML Feb 2023 here in NZ. Her first symptoms were cough and fever for a month. Doctors couldn’t rule out what issues was after all the tests they’ve made. After a month of further testing they said she has Leukaemia.2 weeks later doctor added that the first symptom was caused by TB. She just finished her Bone Marrow transplant and responded well in the medication. Keeping optimistic that after all she’s been through everything will turn out well.
It's been a shock how quickly my health as gone down hill since August. I was diagnosed on Friday with Leukemia. My symptoms lately have been chronic back ache, sweating and constantly feeling hot, out of breath, blurred vision, very itchy legs. Constant sugar cravings, fatigue and feeling tired
No favourite TV show currently, but you have helped me through the past 12mths with my best friend who had his BMT in January. I'm struggling with the aftercare as here in the UK there isn't much support for carers or aftercare support for patients. You have been a HUGE support and we both thank you. Lots of love from myself Janine and Steve. Xxxx
I am so happy to hear that I've been helpful for you. It means a lot to read that, thank you :) All my strength to your friend with their BMT and recovery! It can be difficult for carers for sure !
I began having flu-like symptoms and severe night sweats at night. Went to the doctor and was told it was a cold. The sickness persisted for another week then was told I had to get a blood test done. WBC was high, later that day I was diagnosed with cancer. A week later it was ALL. Went through chemo, and took desatinib and went into remission 6 months later. Cancer came back 3 weeks later after going into remission. So now I’m scheduled for a TBI with a BMT next month. I’m just heartbroken, seeing your videos really gives me hope, thank you.
Hey Andrew, sorry to hear you've been through all of this. Its extremely difficult, no other way to put it. Have you had the BMT yet ? All my strength to you for this recovery! Im glad the videos gave you hope, I am always here to chat and support in what way I can!
Stay positive! ALL survivor here 🙋🏼♀️ Hope you have ur family and important people by you side. Hoping the best for your journey and get well soon! You will see life from a different positive persective you beat it, you will be the strongest person 💪🏼
Was diagnosed with ETP-ALL. Went to the hospital because I was feeling anemic and lost a lot of my strength. Before that I had night sweats, headaches that felt like my head was beating. Ended up having a hgb count of 32. Was then rushed into therapy. awaiting a bmt as of now and in remission!
I was diagnosed with LLA PH+ one week ago. Still have to start the treatment. Went to the hospital after my blood results showed I hade 140.000 white blood cells. I don’t know what will happen in the future, I hope I’ll live. Updates: It's October 27, 2023 so a few weeks later. I have started an experimental treatment that I will have to do until December 21st. I avoided chemotherapy. Then I'll probably have to do a BMT anyway. I hope everything goes well…
@@bordercollie1255 HI! Thank you for this message. It means a lot to know that there are people who care about what I'm going through. ❤️ Updates: It's March 31, 2024 and I'm currently on the same treatment I started in October. It worked, but in February (when I had to have the transplant) there was still minimal residual disease so they tried to eliminate it with blinatumomab. It didn't work so I'll have the transplant in a few weeks. Luckily my sister is 100% compatible. However, It scares me so much that I have to do TBI (total body irradiation) and chemo before the transplant. I hope I can live a normal life after all this and never look back
In 1955. Drs noticited. Just a little anemia. I became ill with flu like symptoms, and eventually went to dr and collapsed in office. Leukemia was suggested since I was 3 pints low on blood. A distant relative called and have dr chick my spleen ,which was the size of a football. Naturally surgery. They called it hemolytic anemia. I developed graves. And now I developed bruised recently. Fatigue and intermittent shortness of breath. Everyone is considering the graves. I’m am a young 73 year old . Over the passed 15 years though routine imaging little by little they be an to noticed an auxiliary spleen Don’t know if this is possibly causing some recurrent symptoms. I’m so tired and my synthroid keeps being reduced. Sorry I forgot, I have epilepsy too since 10 years old. Just wanted to share with a complicated case. Just to give you a chuckle. I’ve had a stroke cabg tia. And have a family with Charcot. BUT I Don’t HAVE IT YET! Lol. Must tell you , I not going anywhere, They just can’t keep me down lol. Hope you do well and good luck with your career. 😊
lord right now i much lift up Barbara during everything she’s faced with oh God all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of all these diseases and symptoms all in the name of the father son and holy spirit lord and according to your perfect will please deliver us an awesome report back lord that’s my prayer and that’s my hope!!!!!! lord indeed praise be to your wonderful precious and holy name that you have much kept this sister and gotten her this far despite the circumstances and even now i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Barbara and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on this sister to much help her pull through this ordeal and by all means please help this sister not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Hey Tyler, nice and informative video. For me the only real symptom was that I got yellow. Then after the first blood test and examination by a hematologist I was sent to do a bone marrow test. If there wasn't for my wife who pushed me to get my blood tests, who knows when would I get diagnosed. Currently watching The Wire in the hospital, great show 🙂
I was so anaemic! I looked grey and was exhausted & dizzy. Red blood count was 38. Drs were amazed I was still standing. Also, swollen lymph nodes in armpits. From onset of symptoms to diagnosis (ALL) to starting chemo was 11 days. I had 6 bags of blood before starting chemo. Chemo, radiotherapy, bone marrow transplant and 12 years later I am still here.
Same, my red blood cells where like 45, I couldn’t stand up without basically passing out, at the later stages right before diagnosis I couldn’t even really get out of bed, if it wasn’t for the ridiculously low RBC, I would have had virtually no symptoms because all of my symptoms where due to severe anaemia.
@@AGN-dt2dj Yeah, I felt the exact same! I wouldn't have gotten out of bed but for the fact I had to pick up my child from school. I had to sit on the floor, couldn't stand outside the classroom (she was 5). The reason more people don't die from leukaemia is that the bad symptoms come on so quickly & are so debilitating that people have to seek help from a dr because they literally cannot function. How are you doing now?
Wow Sammy thanks for sharing. I’m sorry to hear about your initial symptoms, that would have been awful to have gone through. I am so happy you are doing better, and 12 years wow wow wow !! Amazing to hear 😊
@@TylerBlah Thank you! I am in Brisbane. We need so much more attention given to going on a bone marrow donor list here in Australia. My donor came from Germany... they are some of the biggest donors. Glad you're doing well. Also, my regular Dr dismissed me initially as having a virus, due to my age (30's), even though he knew what my pallor usually looked like!. It was a second Dr I went to who ordered blood tests. 2 days, 6 bags of blood & one biopsy later I was starting chemo.
@@Sammy-il1qf I’m doing well, thanks for asking, I was only 19 at the time of diagnosis and took the chemo only route, I still have 1 and a half years until I fully complete treatment currently on maintenance, fingers crossed I don’t have to deal with a relapse in the future.
I have recently been diagnosed with AML July 22. I went for months struggling with shortness of breath along with athema. I had a chronic cough which distracted my health professional from the elephant in the room. I had already lost 7 kilos and could not walk up the slightest incline. Another month passed, I changed doctors she ordered urgent blood work. In order to fast track the system, she sent me directly to emergency as she thought I may have been bleeding internally. I have been in hospital since it's been a week. I start chemo shortly. I'm 68 yrs was very active prior.
Hi, hope u r doing good! Last month I have been diagnosed with cancer (Aml) and also had the same symptoms. Just one request dont w8 for chemo treatment, consult your doctor and start the chemo treatment immediately.
It’s now 2024. My blasts back then were 70pc. I went into remission quickly. I’m completely fine now. There can be life after, I just went skiing in Japan.
My partner was diagnosed with leakiumia on 18July 2023 he had symptoms of back pain,flue and bleeding nose for few days than he died.He never new that he had keakiuma all these years.
At the age of 58 I went in for a routine physical with no symptoms. Dr. ran a CBC and metabolic panel. The results came back suspiciously good. The Dr. said he has been treating patients my age for years and hadnt seen results so nice. On the chance that there was a fluke, or something not run right. he wanted to re-test in 3 months. The re-testing showed an elevated white count of 140. One bone marrow biopsy later and I was diagnosed with CML. The oral chemo knocked me down for a while, but everything is now under control. Dont skip your regular physicals.
I was diagnosed with CML almost three yrs ago. It was found through a CBC my PCP ordered as routine. My WBC was really high. From there I went to an Oncologist, had a bone marrow biopsy which gave the diagnosis. My biggest struggle is fatigue.
I was so tired and out of breath doing everyday tasks like letting the dog out. I was also sore everywhere. Also had an infected bug bite so I thought it must be Lyme's disease and went to the doctor. Got a CBC and all my blood counts were half of the standard range and severely low b12. Next thing I knew I was traveling 4 hours to the nearest cancer hospital diagnosed with Acute Myeloid luekemia. Went into remission two months ago.
Thank you for sharing all your videos of your journey with AML! I’ve always loved learning about different diseases and listening to patient stories! Since I work in healthcare, I’m always learning and trying to understand disease and the human body! I was recently diagnosed with Rheumatoid Arthritis with pain and swelling in multiple joints! So of course I’m learning all that I can on that subject! Currently watching Vikings! And waiting patiently for Season 6 of Peaky Blinders to begin!
You probably just need to stop eating OXALATES Jenny. Docs will not tell you this. Read TOXIC SUPERFOODS- Norton. Consider eating Keto. Use filters on your water too- see EWG water database. Oxalates in things like almonds, spinach, rhubard, etc. bind with calcium- can cause severe joint pain and stones, kidney, gallbladder, etc. Change your diet, improve your life. No sugar. No sead oils, No alcohol, etc. I really know my stuff.
my youngest cousin was diagnosed with leukemia in 2013 (she wasn’t any older than like 5 or 6 I think) and it was really hard watching my aunt and her family go through that - weirdly enough, we were learning about different cancers in school for our science unit (taking symptoms of fake patients and trying yo form a diagnosis in our assigned groups). She’s been in remission for quite awhile, but I am now experiencing 90% of the most common symptoms for over a week now. I had blood work done today, and even though my mother tends to stress over the little things, I haven’t seen her worry like this in a long time. I’m 22, and I lay here in bed at 5am crossing my fingers that everything is fine and it’s just some shitty virus I need to wait-out. Still, it’s hard.
Thank you for your program. I was diagnosed last December having had lymphoma for 8 years. What is interesting is my lymphoma was in my body with no symptoms. Last December after a blood test, I was diagnosed with leukemia and I am lucky to have almost no symptoms. I am presently on Imbruvica which makes my leukemia totally invisible with no symptoms. I am hopeful that my condition will continue and I can operate normally. Again, thank you for your excellent comments!
Just watched a video of your bone marrow transplant.. it was a good video... I had stem cell transplant back in 2014 after being diagnosed with multiple myeloma ( age 56) .. I'm now almost 10 years since diagnosed & 9 years stem cell transplant... With no further chemo after to this date ... My myeloma does return and as to date I'm now going through all the scans & yesterday bone marrow biopsy ( oh it hurts 😅) but I can do this all again ..I have been offered another transplant as I had a good response from the initial one... I hope you are continuing a good quality of life 🎉... It's a shit life for some but I love life & cruising & dancing even now at almost 67 ...🥂. . God bless
my twin sister was diagnosed with AML the first of July and 2 weeks later she was dead of complications of brain bleeding because of low platelets from chemotherapy. I'm heartbroken forever and now I keep thinking perhaps I have leukemia but she had no symptoms and I have no symptoms
My husband was diagnosed with AML 04/29/21. He was experiencing fatigue for 2 weeks, loss of appetite, and a few days prior to diagnosis SOB, and very high fevers. The fevers only presented at night with night sweats. Went to the ER 3 times and they believed he had Covid or another adult virus. He just got his BMT Sept. 3rd and he’s doing so well.
Hello queen how is husband my 29 year old son died four months before due to aml after diognose immediatly went to chemo treatment and he was very healthy before diognosed within two months we lost our son he was our only son Usualy aftee chemo only bmt they do your husband how old he is
I have all the same symptoms, the doctor thinks it is AML but it could be CML Typ 2 has already been ruled out,! Just got a full blood cont done,, waiting for the results, Me I had a lot of chemicall exposure as a young person, Agent Orange,, Garlon,! From what I I feel is the likely cause of my leukaemia,! Good luck with your remission mate,!
Wow my rheumatologist was also the one to order a CBC. My symptoms were fatigue dizzy, and brusing. The CBC showed that my blast cells and WBC was high. He referred me to a hem/onc ASAP and I was diagnosed with ALL
Hi am 29 and have been diagnosed with CML PH+ 5 months back. One my first symptom was I noticed was night sweats followed by weight loss. Though i was having other symptoms like loss of appetite weakness and constant light fevers but I never thought it in a that way. Allhumdulillah was diagnosed randomly when i went for my pre employment medical examination with WBC over 198000.
Seven years ago, I was initially diagnosed with CMML (chronic myelomonocytic leukemia, 18% blasts) then subsequently AMML (acute 26% blasts, 100,000). My symptoms were a pain in my lower left back near my kidney because I had kidney stones due too the high blast count. Treatment was decitabine for 6 mo, then bone marrow transplant with my sister as my donor. I had very few complications, very mild gvhd. In my case the emotional and mental challenges were worse than the leukemia.
Oh! I am so happy for u. I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean. 1) light headed 2) tired & weakness 3) coughs and flu 4) nose bleed 1 time (gum bleeds) just a little bit 5) today she has a unbearable pain on her teeth,ear & arms. But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac. Basically I am so much obsessed with my sister. Maybe I love her a lot
I am from Sydney Aus. I was Dia with ALL and AML and had Bone Marrow transplant. I had fever, put on weight out of the blue, bruises, tiredness, content bleeding so I had to go Ed nearly every night or day. My fav show is to many to list. 😊
My husband just noticed he was short of breath after doing things that never made him short of breath before. He was winded going up 7 steps. His gums were also swollen and sore.
I was diagnosed with ALL in February 2021. Prior to my diagnosis I was at the peak of my health at the age of 31. I was able to bench 250lbs and quite fit!... But, I started to feel quite tired and my energy began to deplete. I am a workaholic so I just assumed my symptoms were from burnout from working excessive overtime. They energy became more and more depleted over a couple week period. It got to the point where I was standing in line at the registry office and i nearly fainted just by standing. I started noticing dots appear on my skin. But i thought it was from sun exposure. After the registy office, I went home and laid down on the floor. Stretched out. Then I did a pushup of the floor to stand up and I noticed something in my eye. I panicked and thought it was a parasite! But after I calmed, i realized it was blood inside my eye but in my vision. I had also been having issue with a bloody nose. I went to emerge the following day at a small clinic. Drs took my blood. Without telling me why, they packed me into an ambulance and brought me to the University of Alberta. There they did more blood tests... then they told me the possibility of luekemia... the following day I did a bone marrow biopsy... and within a couple days I was diagnosed with ALL.. My life changed so quickly..... The blood results indicated that I had 0 platelets
Today i am 58. Some nine months ago, i suddenly started to feel fever. The fever lasted for 15 days. Moreover, i noticed something fishy on both side of my neck, armpit and below abdomen. The intensity of fever was very disturbing. I was very much perplexed and disturbed. I was completely lost. Finding no alternative, i met one neurologist of good repute. Narrated him the detail that was happening with me. After overall investigation and corporal checks up, he sent blood sample of mine for clinical finding. After a week, the clinical report confirmed that there was cancer in my body but it was not clear where and how old it was. Being fed up, i went to homi bhabha cancer hospital varanasi, where after various checks namely pet ct scan, it was ascertained that i was a patient of chronic lymphocytic leukemia. The attending oncologist directed me to undergo chemotherapy and kept me admitted there for two weeks. Thereafter, eventually, i was released from the hospital with the advice to continue with tablet ibrutinib daily. Thanks God i am going on well and everything is alright with me.
House is brilliant. I’m here to learn more about AML as our family friend has just been diagnosed. We’re on the hunt for her perfect stem cell match. Fingers crossed x
My symptoms were major inflammation of the joints and back. Simple tasks like getting out of bed and walking were extremely painful. Only several emergency room trips later and my first bone marrow biopsy a month and a half after my first bout of leukemia symptoms it was confirmed. I had ALL. It was shocking to find out because I hadn't had any of the most common symptoms of it...
Yes, that really would have been shocking. But the worse part, is how difficult those symptoms were, like getting out of bed and walking causing pain, that would have been really hard. Sorry it took so long, but glad to hear there was an answer in the end.
@@TylerBlah Yeah, fortunately, once I was transferred to an out of town hospital, the initial protocol with steroids and dasatinib got me to remission pretty quickly. One symptom I forgot to mention is easy bruising...
My nephew, was diagnosed with multiple myloma in and around 2010. His symptoms began where he could not lift his right arm, severe lower back pain. Xrays were taken they thought he had frozen shoulder. Finally he suggested an MRI . It was then that they saw many tumors. He was in Melbourne, Australia . 5 years and we lost him at 39years. 😢
A doctor who goes home and watches doctor shows?! No favorite here but I did enjoy binging Painkiller recently. Not sure what’s causing my anemia found incidentally while screening for back surgery. Also have polychromasia so it’s test after test right now. During a PET scan some pulmonary granulomas lit up so off I go from hematologist to pulmonologist. Not sure what they’ll find and not looking forward to a bone marrow biopsy and/or lung biopsy (ouch!) as suggested. But it’s good that there are so many treatment options for these cancers.
My ex had CML and his first symptoms were night sweats, and dramatic weight loss. He had to get a BMT too to get a cure. Some of his symptoms helped me recognise my now husband’s NHL. He had pain down one leg for a day or two, but then the night sweats started. I knew straight away that this was not a good sign, and sent him straight up to the hospital. I know they are not the same as AML, but they seem to have night sweat or fever symptom. FYI Both are cancer free.
I am so glad to hear that both are cancer free. Congratulations to them and yourself on this. Thank you for sharing that experience, it would be so useful for many others that are watching.
Hi I am a cll sufferer since one year. After eating ibrutinib I am doing well but my weight is lossing drastically. I am highly anxious and worried. Please share your opinion what to do to live fit and long.
Thank you for this video... It really makes me wonder about my doctor. I have had on and off (mostly on) flu like symptoms for more than a year, along with bruising easy, light headed/dizzyness, chronic fatigue, sore joints, and stomach issues(diarrhea or constipated)as well as having a blood test showing low platelets and all my doctor has done is say he will order another blood test in three months time....the only sign I have not shown was weight loss.
I don't really watch much TV but I'm sitting up, taking note of your channel. We just lost a very well-known, -much loved Afrikaans singer, Theuns Jordaan to Leukemia. Theuns died at age 50 and his passing leave many in tremendous pain and grief. So I'm trying to find out what happened to Theuns. What I realise now is that Leukemia was detected too late in his case.
All of my symptoms were completely explainable. Fatigue and abnormally long illnesses were there but it was the end of the school year and I was a teacher. It wasn't until I went on vacay and had to go to the ER for a completely unrelated issue that it was discovered through bloodwork. I had the ER doc straight tell me that he was looking at the bloodwork of someone with leukemia. 6 wks and 3 hospitals later, I finally got to go home. I had induction in the state I was diagnosed in. Went on vacation....came back with leukemia.
My 28 year old only son died due to lukemia aml before diognose he was very healthy how he got this after diognose immediately went to Chemotherepy but within 2 months we lost our only son lot of infection
I am still waiting for a consultation with a hematologist. I was in the hospital with severe anemia a month and a half ago and have to wait another month and a half. Somehow, I think having to wait 3 months might affect how advanced a possible cancer will be.
Ahh this makes me wonder. Saw my GP about 2 years ago and had a low white blood cell count and other abnormal results. I’m 23 female btw. She referred me to a hematologist where again I had a low white blood cell count and other abnormal results but he couldn’t find the problem! Eventually my white blood cells went back to normal I don’t think I could have blood cancer though because that must mean my white blood cells would be high instead. I still feel so exhausted, chest pain, short of breath (I don’t think I am actually short of breath I just feel like that), I get joint/ bone pain, headaches and other stuff. I just feel off! I had a FISH analysis CLL and it came back positive for deletion of 13q14 which made me panic but he retested and it came back negative so must of been a false positive. Anyway I see my hematologist again in January! Hopefully it’s nothing bad and just my anemia! (I think anemia might just have similar symptoms).
Other symptoms I get are: itchy skin and when I get a cut or something I tend to bleed a lot and heal slowly. I hope these are just all symptoms of anemia. I’ve gotten iron infusions and I think it made me feel a little better but not 100%. Another reason I don’t think I have a blood disease is because I do bruise but not badly. I work with dogs so I usually will find bruises but nothing insane like I’ve seen blood cancer patients have. Also if my FISH analysis came back positive that once but then negative that next time I hope that would mean I’m negative. Sorry for venting lol.
I have leukocytosis right now. My WBC count is 14,000+. I am having night sweats, rash, fatigue and shortness of breath. I have had 1 visit with an Oncologist and will go back at the end of January for a followup. Apparently this has been ongoing for the past year and no one told me until right before Christmas. 😒
Watching from the Phils. Ha ha House is also a favorite. I’m 62 yo, female. I am just about to consult a hematologist. These are some of what I am experiencing atm. Always fatigued, lingering cold, bruising all over my body, muscle/bone soreness and of late, difficulty in breathing.
Hi, I haven't been diagnosed yet, been to doctors last week and he ordered a blood test. I have those skin spots that look like blood, itchy legs and pale that thing with eye. Every now and then I test to see if I bruise by slapping my stomach and seeing if it bruises next day. My blood test is on 4th of October 2024, just over a week after my sons (14th) bday and week before mine. I'll be honest I am scared and cry very often with this in my head. I am hopeful that this is not C and that is just stress from losing my job few months ago. However I can't ignore the fact that I have started having naps in the afternoon and sometimes I get pains in my bones. Headaches don't really happen. I have my fingers, toes and hair on my legs crossed this is all just coincidence. Comments really helped me today, seeing how many people are saying that after treatment they are back to be free of C. Thank you for your video, I was a bit sceptic if I could find one about this. It helped a lot. I wish you all good luck! Love you all
Hi I just sent a long comment but I cannot see it. My name is Tom from Providence, RI USA I am 60 and recently diagnosed with CML and am losing my mind. Did you happen to get a rather lengthy story from me tonight explaining my woes? Lol. Thanks. Your videos are great
It looks like I didn’t save them. Bottom line, diagnosed with CML 4 months ago. Started on Sprycel and got pancreatitis. Waited 6 weeks and then started with Gleevic. The Gleevic really works great and my results looks great. Unfortunately, I just can’t tolerate the side effects. I quit the Gleevic three weeks ago and am trying to get a consult with Dana Farber in Boston. I know a BMT is a ordeal. Months it appears. But I feel like I can deal with that versus the continuous feeling of bone pain, nausea, headaches and fatigue I feel on the med. Unlike you, fortunately, I have CMT and not acute like you had. I will not return to Gleevic or another oral med. for me, it’s a BMT or nothing. I know I sound crazy and like a defeatist but I can’t deal with being sick every day for the rest of my life. I can psychologically deal with a rough year but not a chronic feeling of crap the rest of my life. What do you think my odds are that Dana Farber would be willing to do a BMT on me? Thank you so much. Your videos are super inspiring. I found them tonight and really feel hopeful. I hope you are well. Thanks, Tom Reddy, RI, USA
Thank you so much for this! I've recently been diagnosed with anemia but have some new symptoms so think I'll head on back to check on it. But hate blood tests! Anyway, congratulations on doing so well with your AML treatment! oh and I don't watch much tv but the last full season of something I watched was Dancing with the Stars Australia - well, not the all-star one but the one Courtney Act was on.
Anaemia is no good! I hope they're finding the cause/you are getting some symptom relief too. And yes, Courtney Act is amazing to watch. A great TV personality for sure
I am not watching anything on TV right now. I watched AGT earlier. My mother had leukemia. Hers was CML I believe. My hemoglobin was down to 5.8 a year ago and the Dr thinks it was due to my RA. Thank you for sharing.
I was diagnosed with Iron deficiency after going to the doctor with what I thought I was having a hear attack as I could not breath and felt pain in the heart and could not walk far. I had to have blood transfusion. When it continues I went private and they did a scan and noticed enlarge lymph nodes. With a biopsy my symptoms were due to CLL.
West Wing rewatching from the beginning, again! I’ve been watching these clips but none have put pics of the red dots. I’ve had Fibromyalgia for 35 years now (long before they had commercials about it on TV and it took an average of 7 years for diagnosis - 5 for me). A lot of my symptoms overlap but I’ve got red dots, I’m getting sores in my mouth and my sores on my legs and arms take a long time to heal. I just moved to a new state in the US so now I’ve got to find a new doc who will probably think I’m a hypochondriac. Did you have the red dots?
Like Tyler, I have been referred to haematology at RPA. My doctors think i have blood cancer - I have low platelets and neutrophils; night sweats; enlarged lymph nodes without infection; extreme exhaustion; weight loss; petechiae; etc.
I recently had high B12 on blood test 1500! Aching joints, knee pain and back pain. Kidney pain and pain on my right ovary, petchiae rashes, tooth pain, exhausted all the time, pale, mottled face. Headache is bad - pulsating vein on right side of head, dizzy.
My WBC is 1.7 RBC 3.5 Platelets 64 Lethargic, Bone and Joint Pain, excessive night sweats, bloody gums, blood in stool. Amongst a Miriam of other issues. Waiting for the results of the FISH tests
I have been having night sweats, weakness, shortness of breath, extreme fatigue, lost 7lbs, and look pale, continuous infections I was told I was probably going through menopause but I wasn’t having menopause symptoms except for the night sweats, I finally convinced my provider to do bloodwork to check for cancer and anemia, now I’m just waiting for my results I’m scared but at the same time I just want to know.
@@sampatk4948 My Doctor was vague on my results, he lowered my thyroid medication and said he was going to send me to see a neurosurgeon. But now that I go back I’m going to get a copy of my blood work results.
I was diagnosed from a bone marrow biopsy with AML with the MECOM mutation. I was completely asymptomatic but low platelets from the blood work of an annual physical led to referral to a hematologist, the biopsy, and then referral to a hospital that specializes in cancer care (MD Anderson). I had a stem cell transplant in August of last year and my biopsies since then have been clear, though I have several more to go until I reach the 5-year mark. I actually have one upcoming this next week at my 10-month mark.
My mom was diagnosed with AML on a Wednesday afternoon. She was gone by the wee hours of Saturday morning. She had a red halo in her vision- eye doctor said her arteries were bleeding behind her eyes! They set her up for a cauterization a few days s after her appointment. She had severe bleeding from her hemorrhoids. She did not say a word until the day she was put in the hospital. She was so out of breath she could barely walk at all. Her gums were bleeding and her bottom tooth fell out, so dad took her to the dentist. Dad had an appointment with their PCP and decided to bring mom along, she fought him, but he made her go. The PCP took one look at her and sent her to the ER for blood work. As they were taking her blood, she collapsed. They admitted her and did a blood transfusion. The IV line caused a 7” purple bruise that was horrific. Blood tests revealed her counts were a mess. A Bone Marrow Test was performed and the next day we got the news. Her Blasts were up to 80% on the day before she passed. There was no hope at all. Mom was 83 and dad took her to the dentist, the eye doctor and the PCP. But he never told any of them about all her symptoms combined. I was in NC, they were in NY with my 2 sisters. The day they admitted mom, my daughter was getting surgery. I flew to NY the following morning. We buried mom on that Monday. Shocking does not even come close to it! Cancer is a thief! You don’t recover from that happening in 3 days! Just awful 😢
I've had a lot of blood tests. Looking like Hemalytic Anemia but the official test result won't come until a few more days. If it isn't, we have to start considering blood cancer / bone marrow disorders. If it is, it's quite severe. I've taken a hell of a downward spiral in the last 6 months, especially last 3, and especially the last 2 weeks. :/ Not to be melodramatic but sometimes I feel so ill I'm scared if I go to sleep I won't wake back up. Red blood cells are absolutely genociding... Billiruben levels nearly at 7 per most recent blood test. Was 5.7 the prior day. No typo....
In July, I collapsed at work. An ambulance took me to hospital. Blood tests revealed that I had very low red blood cells (down to 6). I was topped up with three units of blood. Later bone marrow biopsy confirmed AML. Strange thing, before the collapse, I had no specific symptoms. I was not unusually tired or anything. What I had noticed was a tightness and cramping in my feet and calves when I walked quickly , made worse if you were carrying a heavy bag like groceries. I had also noticed some bruising on my thighs and knees. About 3 weeks before diagnosis, I developed a sinus-like infection in my nose. Mucous flowed during the day, but crusted up at night completely blocking nostrils. Because of this I mouth-breathed at night which resulted in a distressingly dry mouth and throat. This dry throat persisted, making it painful to swallow. Even though I have had antibiotics, I still have that sore throat. I have never had fevers, but do feel the cold, partly because I am losing weight. I am a 64 year old female who had already suffered from a gynaecological cancer with its chemo & radiation treatment two years before. Doctors think that the treatment may have triggered AML. My prognosis was not good. I am not suitable for intensive chemo or stem cell transplant. They are going to try a less intense chemo regime, which may slow it down, but not cure. However specialist thinks that my body may not even tolerate a full course of this. I am praying for a miracle, because my future looks bleak.
@darkcrystal86 I am so sorry. Unfortunately, cancer is one of those things that once your body faces once, the likelihood of it recurring seems to increase a lot - anecdotally speaking. An old friend battled brain cancer and went between remission and recurrence numerous times before it finally won the battle after about 5 or 6 years. Cancer is disgusting and death becomes very scary when it begins looking imminent. Always opt for numerous opinions when it comes to treatment options for stuff like this.. Seeking treatment options at universities can be beneficial when prognosis looks really bad because they may have experimental procedures that may be less ideal for one person that may benefit most from conventional treatment but be more ideal for someone who won't benefit from existing, proven methods due to situations like yours. I truly wish you the best.
I just found your videos. I’ve had a WBC of 14.0 for the last year. My absolute lymphocytes count is 5580, I’m very anemic and I have a hard lump on the back of my neck. I finally got a referral to an hematologist/oncologist. I hope it’s nothing serious
Hey AC. Sorry to hear you're going through symptoms like this. Seeing a haematologist is always so important with symptoms like this and I am happy to hear that you have been able to get the referral.
Thank you for producing/relating such a resourceful clip and comments - A quick/Urgent Question, could anyone please share/guide us to a Hematologist/Oncologist/Specialist and/or a GP who can refer mentioned specialist(s) in Victoria, please?
Hi, I'm from Malaysia. Thak you so much for the sharing. If possible, really appreciate if you can share about the process of collecting the stem cell before the transplant. Thank you once again.
Please help me, I am having a hard time getting a diagnosis. I am older adult, former breast cancer stage 3. I am sweating at night a lot, bruising badly, many bacterial infections hospitalized for. I am very pale and sweaty always. I am here in the United States and have been blown off by physicians over the past year. I have been to every specialist to rule out other disorders. I am at your channel because my supervisor sent me home saying I look like I have leukemia, due to my all over bruising & extreme paleness. How to I convince my primary care to test me for this? Thank you for you listening, God Bless as you have given me some hope
It’s interesting that you were seeing a Rheumatologist beforehand .. my dad who had AML had what I see now is not just hay fever and strange rashes and eye changes etc but autoimmune disorder beforehand. I also just recently tested positive anti CCP predictive of RA with symptoms only being sore finger joints and hay fever allergy so far... My dads AML symptoms was dizziness and feeling very tired often. He also had easy bruising.. he started out with just MDS (Myelodysplastic syndrome Also called: MDS, preleukemia) and he had to have injections to slow down the process of it possibly reaching to AML but unfortunately it sped it up! With in 2months he had gotten AML and after the first round of Chemo it he passed just 5 months after finding out. I feel like his genetic make up may not have went well with the chemo as his white cells never returned. They seem to know a lot more about AML then they did 6 yrs ago when my Dad had it. He was also 67 so the chances or survival after 60 is less.
Yes, I've heard that MDS can convert into AML, and they have to watch that very closely! So sorry to hear that it did convert for your father. That would have been very hard on the whole family in that situation.
Hi. Hope you're in remission. Pretty scary stuff! My remaining sibling, my brother who is 2 years older than me. He has Leukemia and was tested for mutant gene DDX41. He gave me a family letter from BC Cancer Society in Burnaby BC so i could get test for this mutant gene. I was tested for about 76 genes. I tested positive for DD41 and another gene from Central Nervous System was changing. This 2nd one can cause tumors to show up anywhere in the body and apparently most are benign. I dont fully understand the Leukemia gene. Would you be able to explain t? Thank you in advance. I dont watch TV. I do watch British shows on Prime tv and Tubi on my iPad. On Tubi, ive been watching "Helicopter Heroes" in Yorkshire. 😊💗🇨🇦
My father's AML started out with a cold in peak of summer and bruises. He was gone less than 8 months after diagnosis at age of 48. The chemotherapy treatment he underwent put a big burden on his body,
My name is Marybell and my iron levels are low and anemic. I’ve had two Iron Infusions and my numbers have not changed. I will be getting a third round of Iron Infusion soon. My oncologist/Hematologist has informed me that if my third round does not improve then she will have to biopsy my bone marrow. I’m scared because I have all the symptoms of Leukemia. I’ve been feeling fatigue for the last three years. I also had three Iron I fusions three years ago but my iron improved. My abdominal area always hurts as well as my joints. I sweat every night. I’ve been going to bed lately around 6-7pm which is very unusual for me. When taking a shower I have no strength to even wash my hair. Talking about hair I’ve notice my hair has been falling by the bunches! I bruise easy. I’ve had a weird pain under my right armpit as well as my upper extremity of my right arm for the last year. The awkward join pain I get on both hands is one day pain, next day gone, then it hurts again and then it goes away. I’ve been loosing weight too! I’m scared!
Do you talk about CLL? I have not been diagnosed yet, but have many symptoms for months. My WBC is not high. It is actually low. I'm in USA and over 50 years of age. Haven't been able to get bone marrow test ordered re: normal/low WBC.
Massive bleeding and bruising after a sinus surgery 2023. 2021 needing 4pints of blood after surgery for compound leg fracture. I was diagnosed June 2023 with CMML (two M's), a rare leukemia caused by damaged DNA. Yes, I felt tired, but otherwise felt healthy
My sister is passing through swolling on some of her body parts like the knees the ankles, the eye surrounding and any parts that has got hurt If anything wound her, she bleed for almost a week She's also goes through a lot of pain from the bruses for even a week. There was a time when her head had swollen so soft and the doctor said that it was the blood that was log in so they couldn't do anything and it was down on its own. So now the doctors she might be having leukemia or sickle cell. So please can you help?
my husband has been fighting multiple myeloma since 2009. this year it progressed into secondary plasma cell leukemia. i have tried and tried searching for information on the internet, there’s nothing to VERY little out there. please can you help or at least let me know where i can find information. thank you!
The internet should have good sources. Including WebMD, BMJ, or NEJM, or UpToDate for patients. Alternatively you could also find a medical textbook that could have it. But your hospital should be able to provide information booklets too 😊
Ive been pretty tired, weak, had light headaches and pain in my knees and elbow joints for over a month now. I was extremely scared of this possibly being leukaemia and had a blood test - the GP described the results as ‘normal’ and i want to know if this rules leukaemia out or should i continue to worry?
Q: I was diagnosed w/ LGL Leukemia using flow meter but no bone marrow done recommended by hematologist. Do you think I should push for a bone marrow ? My symptoms are fatigue and night sweats occasionally. Other than my lymphocytes high, my blood work is normal.
Plus my blood platelets are high and they go low too and my white cells disappear like before and I've had amenic for years white blood cells disappear too in my blood work
I was diagnosed with aml 4 months ago had 2 rounds of chemo I'm 3 days before my bone marrow transplant I had no symptoms at all , it was just a random blood test that brought up low white blood cell
![Jack Harlow - Hello Miss Johnson [Official Music Video]](http://i.ytimg.com/vi/Q86_nlRoIGw/mqdefault.jpg)
I was diagnosed with leukemia and am a doctor. My overt symptoms were bruising, lethargy and fatigue (had to nap every afternoon), mid day headaches with light headedness, seeing stars, and could not think. The leukemia resulted in lack of oxygenated blood supply to my head. My original oncologist said it was not related. But it knew it was. One year later and with treatment that has cleared up. 11 more months of chemo to go!
Good luck to you!
I feel all of this
One beloved friend died to leukemia this march, i wish her symptoms were diagnosed sooner, she had all the anemia ones for years and just thought she had a bad inmune system and thats it. Now I can't stop thinking about the times she struggled to catch her breath when hanging out, she never stopped being the more lively girl despite everything, I really miss her.
My husband lost his life to ML...he was 38. Only symptom he had was sore throats/ bleeding gums. RIP David. 17th April is your 15 th anniversary, the kids love and miss you xxxx
Sorry for your loss 😔
Sorry for your loss 😔
Sorry to hear about this I will send you a loving prayer for you all ❤️
I'm so sorry for the loss of your husband! So young. I hope time heals the wound of his loss. I lost my cousin at the age of only 28 years old. His symptoms were fatigue and bleeding gums too. It was actually his dentist that sent him to have a blood test, since when he visited the dentist he understood that something was seriously wrong when my cousin's gums wouldn't stop haemmorhaging.
😢
I’m sorry that you got this too. I was 29 when I was diagnosed with CML.
In over a month ,non stopping flu symptoms, I lost 15 lb, No appetite at all, headaches and pulsing vessels around my head everyday, sweating at night, I barely even walked and happy now that I alive. Thank You for sharing your story.
How are you what is the age now my 29 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy 2 months hospital but we lost our son due to infection
@@ushaanand2450 I'm sorry for the loss of your dear son. Sending healing thoughts.
@@ushaanand2450 i have a friend whom now i lose his contact after he informed that had blood cancer. He told me he wouldnt be around for a long time when he is hospitalized. But im really afraid that we will lose contact forever.
My mom was diagnosed with aml flt3-itd
At June 2022. Her ‘only symptoms’ was long infection. she got remission after one round of chemo and targeted treatment. In 7th October she got BMT. So far so good. Your story helped me after my mom transplant.
5 years ago in May 2017 I donated my bone marrow to women in my mom age (know I had opportunities to meet her… she is doing fine)
Thank you for your videos.
Greetings from Poland and the USA.
I am happy to hear this could help you and your mum. And I am even more happy to hear you were able to donate and help others too ! 😊
Hi Emilla,
I learned a weeek ago my dad going through leukemia. And some crazy reason I can’t be a donor.that what doctors keeps saying but when I look at google. Google saying I can… very confusing.
Anyway either way I will be a donor for someone because now I understand how important is being donor. I wish I understood that before going through this experience.
I hope you experience will be lesson for others so they don’t have to go through pain to understand how important is being donor.
Thank you sharing your life force with that beautiful lady🙏🏻💚 Blessings to you and your mum and everyone 💚🙏🏻
@@Zeynep57881 Hi,doctors usually says kids cannot be donor because they usually carry only 50 % more less gen from each parent… it’s really small chance you would be matching. There is some condition that could eliminate potential donor.
I am sending prayers for your dad and I hope your dad will find matching donor. I am back home and my mom is getting better in Poland ( she is off medication and so far she is doing good) I am sending greetings and prayers from the USA FOR YOUR DAD, You an your family 🙏
@@TylerBlahUK o
My daughter, 6 years old, was diagnosed with AML four weeks ago. Her symptoms were high temperature that didn't go down after paracetamol , pain in her neck (swollen lymph nodes ), no appetite. After first doctors appointment she was sent home and been told its a viral infection. I spoke to a doctor every day for four days, hearing the same thing. On the fifth day I took her to A&E , demanded blood test. Next day we knew it was leukemia. She supposed to start her second cyckle of chemo tomorrow, but its to ill to get it. Unfortunately first cycle and adenovirus in her blood plus mucositis caused swelling in her upper airways, followed by pneumonia. For last two weeks she needed support of a ventilator and finally getting better. I forgot to add , that while being sedated and taken to a theater to have her Hickman line put in, she suffered a cardiac arrest. That happened during first cycle of chemo. I really hope that one day i will see her talk about this terrible experience, the way you do.
Anna
Oh!
I am so happy for u.
I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean.
1) light headed
2) tired & weakness
3) coughs and flu
4) nose bleed 1 time (gum bleeds)
just a little bit
5) today she has a unbearable pain on her teeth,ear & arms.
But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac.
Basically I am so much obsessed with my sister. Maybe I love her a lot
How is your daughter same symptoms my28 year old only son died due to lukemia aml Chemotherepy 2 nd cycle we lost our son due to infection before this discese he was very healthy no any bad habits how he got this discese we lost our only son last year till today we parents suffering lot without our son
I hope your daughter heals soon and later in her life be able to share her own experience, being strong and restored!
How is your daughter now?
I hope she is doing better.
Much love to your family.
@ushaanand2450 Very sorry to hear that. We lost our nephew the same way from infection. Chemotherapy is too strong.
I was just diagnosed with MDS about two weeks ago, I had many symptoms for months but chopped it up to working to hard until I started getting really dizzy a lot, sharp pains in my legs and joints, heart palpitations, muscle spasms in random places, tired all the time, persistent ear infection. All’s I know is I’ll need a bone marrow transplant but have yet to speak with cancer specialists. Health care system in the US is very expensive and extremely slow!! I’m glad I’ve found your very informative videos… thank you!!
All my strength to you Brian in these next stages 💪 Hope my videos can help you with any questions or concerns you have, and always feel free to pop by 👌👍
@@TylerBlah I’m finding the best medicine is HOPE and your journey has definitely administered some to me free of charge!! Keep up the good fight my friend, your an angel that walks among us!!
Did you happen to have radiation before your diagnosis? My paternal grandfather had MDS caused by radiation. But if that isn't the only case then I wonder if that might be what I have. My maternal grandmother died from Polycythemia Vera, so I'm concerned I'm susceptible to blood cancers from both sides of my family.
Your symptoms sound like mine. I haven’t had blood work done yet, but the symptoms are getting annoying to deal with. Fatigue I take so many naps.
My WBC, platelets, and lymphs have been high for 5 years. I have my first hematology appointment Wednesday and I'm pretty nervous. Fingers crossed.
How are you
If they were that high for that many years you should probably see a different doctor
My wife (49) was diagnosed with AML Feb 2023 here in NZ. Her first symptoms were cough and fever for a month. Doctors couldn’t rule out what issues was after all the tests they’ve made. After a month of further testing they said she has Leukaemia.2 weeks later doctor added that the first symptom was caused by TB. She just finished her Bone Marrow transplant and responded well in the medication. Keeping optimistic that after all she’s been through everything will turn out well.
It's been a shock how quickly my health as gone down hill since August. I was diagnosed on Friday with Leukemia. My symptoms lately have been chronic back ache, sweating and constantly feeling hot, out of breath, blurred vision, very itchy legs. Constant sugar cravings, fatigue and feeling tired
Sending you lot of strength for your recovery
Me to mate ,,
You described a bunch of things I’ve been dealing with that my doctor said were unrelated to my CLL.
Terribly sorry to hear this. Good luck to you.
I have all of these things I'm worried.. Also I'm sorry your going through this I
No favourite TV show currently, but you have helped me through the past 12mths with my best friend who had his BMT in January. I'm struggling with the aftercare as here in the UK there isn't much support for carers or aftercare support for patients. You have been a HUGE support and we both thank you. Lots of love from myself Janine and Steve. Xxxx
I am so happy to hear that I've been helpful for you. It means a lot to read that, thank you :) All my strength to your friend with their BMT and recovery! It can be difficult for carers for sure !
I began having flu-like symptoms and severe night sweats at night. Went to the doctor and was told it was a cold. The sickness persisted for another week then was told I had to get a blood test done. WBC was high, later that day I was diagnosed with cancer. A week later it was ALL. Went through chemo, and took desatinib and went into remission 6 months later. Cancer came back 3 weeks later after going into remission. So now I’m scheduled for a TBI with a BMT next month. I’m just heartbroken, seeing your videos really gives me hope, thank you.
Hey Andrew, sorry to hear you've been through all of this. Its extremely difficult, no other way to put it. Have you had the BMT yet ? All my strength to you for this recovery! Im glad the videos gave you hope, I am always here to chat and support in what way I can!
@@TylerBlah I did have my BMT. 10 months out and feeling great! So thankful for the wonderful hospital staff and God.
@Boho Chic thank you 🙏🏽❤️
Stay positive! ALL survivor here 🙋🏼♀️
Hope you have ur family and important people by you side. Hoping the best for your journey and get well soon! You will see life from a different positive persective you beat it, you will be the strongest person 💪🏼
Was diagnosed with ETP-ALL. Went to the hospital because I was feeling anemic and lost a lot of my strength. Before that I had night sweats, headaches that felt like my head was beating. Ended up having a hgb count of 32. Was then rushed into therapy. awaiting a bmt as of now and in remission!
I was diagnosed with LLA PH+ one week ago. Still have to start the treatment. Went to the hospital after my blood results showed I hade 140.000 white blood cells.
I don’t know what will happen in the future, I hope I’ll live.
Updates: It's October 27, 2023 so a few weeks later. I have started an experimental treatment that I will have to do until December 21st. I avoided chemotherapy. Then I'll probably have to do a BMT anyway.
I hope everything goes well…
How are you doing
Please keep us posted. Sending you healing energy.
@@bordercollie1255 HI! Thank you for this message. It means a lot to know that there are people who care about what I'm going through. ❤️
Updates: It's March 31, 2024 and I'm currently on the same treatment I started in October. It worked, but in February (when I had to have the transplant) there was still minimal residual disease so they tried to eliminate it with blinatumomab. It didn't work so I'll have the transplant in a few weeks.
Luckily my sister is 100% compatible.
However, It scares me so much that I have to do TBI (total body irradiation) and chemo before the transplant. I hope I can live a normal life after all this and never look back
Wishing you fast healing and recovery
No favorite show at the moment. It was suits a few months ago.
Thank you for making such informative video.
I'm a Clinical Laboratory scientist
In 1955. Drs noticited. Just a little anemia. I became ill with flu like symptoms, and eventually went to dr and collapsed in office. Leukemia was suggested since I was 3 pints low on blood. A distant relative called and have dr chick my spleen ,which was the size of a football. Naturally surgery. They called it hemolytic anemia. I developed graves. And now I developed bruised recently. Fatigue and intermittent shortness of breath. Everyone is considering the graves. I’m am a young 73 year old . Over the passed 15 years though routine imaging little by little they be an to noticed an auxiliary spleen Don’t know if this is possibly causing some recurrent symptoms. I’m so tired and my synthroid keeps being reduced. Sorry I forgot, I have epilepsy too since 10 years old. Just wanted to share with a complicated case. Just to give you a chuckle. I’ve had a stroke cabg tia. And have a family with Charcot. BUT I Don’t HAVE IT YET! Lol. Must tell you , I not going anywhere, They just can’t keep me down lol. Hope you do well and good luck with your career. 😊
lord right now i much lift up Barbara during everything she’s faced with oh God all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of all these diseases and symptoms all in the name of the father son and holy spirit lord and according to your perfect will please deliver us an awesome report back lord that’s my prayer and that’s my hope!!!!!! lord indeed praise be to your wonderful precious and holy name that you have much kept this sister and gotten her this far despite the circumstances and even now i know your hand is on this sister and you will see her throughout thick and thin also right now i just ask that you please just wrap your warm and comforting arms around Barbara and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on this sister to much help her pull through this ordeal and by all means please help this sister not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Hey Tyler, nice and informative video. For me the only real symptom was that I got yellow. Then after the first blood test and examination by a hematologist I was sent to do a bone marrow test. If there wasn't for my wife who pushed me to get my blood tests, who knows when would I get diagnosed.
Currently watching The Wire in the hospital, great show 🙂
I was so anaemic! I looked grey and was exhausted & dizzy. Red blood count was 38. Drs were amazed I was still standing. Also, swollen lymph nodes in armpits. From onset of symptoms to diagnosis (ALL) to starting chemo was 11 days. I had 6 bags of blood before starting chemo. Chemo, radiotherapy, bone marrow transplant and 12 years later I am still here.
Same, my red blood cells where like 45, I couldn’t stand up without basically passing out, at the later stages right before diagnosis I couldn’t even really get out of bed, if it wasn’t for the ridiculously low RBC, I would have had virtually no symptoms because all of my symptoms where due to severe anaemia.
@@AGN-dt2dj Yeah, I felt the exact same! I wouldn't have gotten out of bed but for the fact I had to pick up my child from school. I had to sit on the floor, couldn't stand outside the classroom (she was 5). The reason more people don't die from leukaemia is that the bad symptoms come on so quickly & are so debilitating that people have to seek help from a dr because they literally cannot function.
How are you doing now?
Wow Sammy thanks for sharing. I’m sorry to hear about your initial symptoms, that would have been awful to have gone through. I am so happy you are doing better, and 12 years wow wow wow !! Amazing to hear 😊
@@TylerBlah Thank you! I am in Brisbane. We need so much more attention given to going on a bone marrow donor list here in Australia. My donor came from Germany... they are some of the biggest donors. Glad you're doing well.
Also, my regular Dr dismissed me initially as having a virus, due to my age (30's), even though he knew what my pallor usually looked like!. It was a second Dr I went to who ordered blood tests. 2 days, 6 bags of blood & one biopsy later I was starting chemo.
@@Sammy-il1qf I’m doing well, thanks for asking, I was only 19 at the time of diagnosis and took the chemo only route, I still have 1 and a half years until I fully complete treatment currently on maintenance, fingers crossed I don’t have to deal with a relapse in the future.
I have recently been diagnosed with AML July 22. I went for months struggling with shortness of breath along with athema. I had a chronic cough which distracted my health professional from the elephant in the room. I had already lost 7 kilos and could not walk up the slightest incline. Another month passed, I changed doctors she ordered urgent blood work. In order to fast track the system, she sent me directly to emergency as she thought I may have been bleeding internally. I have been in hospital since it's been a week. I start chemo shortly. I'm 68 yrs was very active prior.
I hope you are doing better ❤️🙏
Hi, hope u r doing good!
Last month I have been diagnosed with cancer (Aml) and also had the same symptoms. Just one request dont w8 for chemo treatment, consult your doctor and start the chemo treatment immediately.
What about low blood count and low platelets? How many transfusion did you get?
Are there any type of symptoms
It’s now 2024. My blasts back then were 70pc. I went into remission quickly. I’m completely fine now. There can be life after, I just went skiing in Japan.
My partner was diagnosed with leakiumia on 18July 2023 he had symptoms of back pain,flue and bleeding nose for few days than he died.He never new that he had keakiuma all these years.
At the age of 58 I went in for a routine physical with no symptoms. Dr. ran a CBC and metabolic panel. The results came back suspiciously good. The Dr. said he has been treating patients my age for years and hadnt seen results so nice. On the chance that there was a fluke, or something not run right. he wanted to re-test in 3 months.
The re-testing showed an elevated white count of 140. One bone marrow biopsy later and I was diagnosed with CML.
The oral chemo knocked me down for a while, but everything is now under control.
Dont skip your regular physicals.
Great advice 😊
I was diagnosed with CML almost three yrs ago. It was found through a CBC my PCP ordered as routine. My WBC was really high. From there I went to an Oncologist, had a bone marrow biopsy which gave the diagnosis. My biggest struggle is fatigue.
Hope you are better. All things equal have you considered KETO? Cutting out carbs might help. Also, check your water. See EWG Water Database.
I was so tired and out of breath doing everyday tasks like letting the dog out. I was also sore everywhere. Also had an infected bug bite so I thought it must be Lyme's disease and went to the doctor. Got a CBC and all my blood counts were half of the standard range and severely low b12. Next thing I knew I was traveling 4 hours to the nearest cancer hospital diagnosed with Acute Myeloid luekemia. Went into remission two months ago.
Thank you for sharing all your videos of your journey with AML! I’ve always loved learning about different diseases and listening to patient stories! Since I work in healthcare, I’m always learning and trying to understand disease and the human body! I was recently diagnosed with Rheumatoid Arthritis with pain and swelling in multiple joints! So of course I’m learning all that I can on that subject!
Currently watching Vikings! And waiting patiently for Season 6 of Peaky Blinders to begin!
Great shows!!!
You probably just need to stop eating OXALATES Jenny. Docs will not tell you this. Read TOXIC SUPERFOODS- Norton. Consider eating Keto. Use filters on your water too- see EWG water database. Oxalates in things like almonds, spinach, rhubard, etc. bind with calcium- can cause severe joint pain and stones, kidney, gallbladder, etc. Change your diet, improve your life. No sugar. No sead oils, No alcohol, etc. I really know my stuff.
my youngest cousin was diagnosed with leukemia in 2013 (she wasn’t any older than like 5 or 6 I think) and it was really hard watching my aunt and her family go through that - weirdly enough, we were learning about different cancers in school for our science unit (taking symptoms of fake patients and trying yo form a diagnosis in our assigned groups). She’s been in remission for quite awhile, but I am now experiencing 90% of the most common symptoms for over a week now.
I had blood work done today, and even though my mother tends to stress over the little things, I haven’t seen her worry like this in a long time. I’m 22, and I lay here in bed at 5am crossing my fingers that everything is fine and it’s just some shitty virus I need to wait-out.
Still, it’s hard.
Update
Are you ok?😢
So sorry to hear you're going through this. Sending strength
Thank you for your program.
I was diagnosed last December having had lymphoma for 8 years.
What is interesting is my lymphoma was in my body with no symptoms.
Last December after a blood test, I was diagnosed with leukemia and I am lucky to have almost no symptoms.
I am presently on Imbruvica which makes my leukemia totally invisible with no symptoms.
I am hopeful that my condition will continue and I can operate normally.
Again, thank you for your excellent comments!
I hope you are feeling well 🙌
Just watched a video of your bone marrow transplant.. it was a good video... I had stem cell transplant back in 2014 after being diagnosed with multiple myeloma ( age 56) .. I'm now almost 10 years since diagnosed & 9 years stem cell transplant... With no further chemo after to this date ...
My myeloma does return and as to date I'm now going through all the scans & yesterday bone marrow biopsy ( oh it hurts 😅) but I can do this all again ..I have been offered another transplant as I had a good response from the initial one... I hope you are continuing a good quality of life 🎉... It's a shit life for some but I love life & cruising & dancing even now at almost 67 ...🥂. . God bless
Thank you so much for sharing 🙏
my twin sister was diagnosed with AML the first of July and 2 weeks later she was dead of complications of brain bleeding because of low platelets from chemotherapy. I'm heartbroken forever and now I keep thinking perhaps I have leukemia but she had no symptoms and I have no symptoms
Absolutely, HOUSE is one of my favorite shows too!
My husband was diagnosed with AML 04/29/21. He was experiencing fatigue for 2 weeks, loss of appetite, and a few days prior to diagnosis SOB, and very high fevers. The fevers only presented at night with night sweats. Went to the ER 3 times and they believed he had Covid or another adult virus. He just got his BMT Sept. 3rd and he’s doing so well.
That is amazing to hear that he is doing so well now :)
Aww thank you day +51
Hello queen how is husband my 29 year old son died four months before due to aml after diognose immediatly went to chemo treatment and he was very healthy before diognosed within two months we lost our son he was our only son Usualy aftee chemo only bmt they do your husband how old he is
I have all the same symptoms, the doctor thinks it is AML but it could be CML Typ 2 has already been ruled out,! Just got a full blood cont done,, waiting for the results, Me I had a lot of chemicall exposure as a young person, Agent Orange,, Garlon,! From what I I feel is the likely cause of my leukaemia,! Good luck with your remission mate,!
Wow my rheumatologist was also the one to order a CBC. My symptoms were fatigue dizzy, and brusing. The CBC showed that my blast cells and WBC was high. He referred me to a hem/onc ASAP and I was diagnosed with ALL
Sorry to hear that, sending strength
Hi am 29 and have been diagnosed with CML PH+ 5 months back. One my first symptom was I noticed was night sweats followed by weight loss. Though i was having other symptoms like loss of appetite weakness and constant light fevers but I never thought it in a that way. Allhumdulillah was diagnosed randomly when i went for my pre employment medical examination with WBC over 198000.
Seven years ago, I was initially diagnosed with CMML (chronic myelomonocytic leukemia, 18% blasts) then subsequently AMML (acute 26% blasts, 100,000). My symptoms were a pain in my lower left back near my kidney because I had kidney stones due too the high blast count. Treatment was decitabine for 6 mo, then bone marrow transplant with my sister as my donor. I had very few complications, very mild gvhd. In my case the emotional and mental challenges were worse than the leukemia.
Amazingly, I feel like I don't have anything wrong, other than a bit of heavy breathing and constant tiredness!
By the way, I am 87 years old!
Oh!
I am so happy for u.
I am an elder sister. I have a younger sister. She has some weird symptoms. Idk what doest it mean.
1) light headed
2) tired & weakness
3) coughs and flu
4) nose bleed 1 time (gum bleeds)
just a little bit
5) today she has a unbearable pain on her teeth,ear & arms.
But I said my mom about it & she doesn’t care about it. She wanted to say I am much hypochondriac.
Basically I am so much obsessed with my sister. Maybe I love her a lot
I am from Sydney Aus. I was Dia with ALL and AML and had Bone Marrow transplant. I had fever, put on weight out of the blue, bruises, tiredness, content bleeding so I had to go Ed nearly every night or day.
My fav show is to many to list. 😊
My husband just noticed he was short of breath after doing things that never made him short of breath before. He was winded going up 7 steps. His gums were also swollen and sore.
I was diagnosed with ALL in February 2021. Prior to my diagnosis I was at the peak of my health at the age of 31. I was able to bench 250lbs and quite fit!... But, I started to feel quite tired and my energy began to deplete. I am a workaholic so I just assumed my symptoms were from burnout from working excessive overtime. They energy became more and more depleted over a couple week period. It got to the point where I was standing in line at the registry office and i nearly fainted just by standing. I started noticing dots appear on my skin. But i thought it was from sun exposure. After the registy office, I went home and laid down on the floor. Stretched out. Then I did a pushup of the floor to stand up and I noticed something in my eye. I panicked and thought it was a parasite! But after I calmed, i realized it was blood inside my eye but in my vision. I had also been having issue with a bloody nose. I went to emerge the following day at a small clinic. Drs took my blood. Without telling me why, they packed me into an ambulance and brought me to the University of Alberta. There they did more blood tests... then they told me the possibility of luekemia... the following day I did a bone marrow biopsy... and within a couple days I was diagnosed with ALL.. My life changed so quickly..... The blood results indicated that I had 0 platelets
0 platelets OMG..
How are you my 28 year old only son died due to lukemia aml Chemotherepy 2 nd cycle we lost our son died due to infection
@@ushaanand2450 I am so sorry! I pray for you and your family for strength to get through!
😢
Today i am 58. Some nine months ago, i suddenly started to feel fever. The fever lasted for 15 days. Moreover, i noticed something fishy on both side of my neck, armpit and below abdomen. The intensity of fever was very disturbing. I was very much perplexed and disturbed. I was completely lost. Finding no alternative, i met one neurologist of good repute. Narrated him the detail that was happening with me. After overall investigation and corporal checks up, he sent blood sample of mine for clinical finding. After a week, the clinical report confirmed that there was cancer in my body but it was not clear where and how old it was. Being fed up, i went to homi bhabha cancer hospital varanasi, where after various checks namely pet ct scan, it was ascertained that i was a patient of chronic lymphocytic leukemia. The attending oncologist directed me to undergo chemotherapy and kept me admitted there for two weeks. Thereafter, eventually, i was released from the hospital with the advice to continue with tablet ibrutinib daily. Thanks God i am going on well and everything is alright with me.
I am watching the Boston Bruins playing the Vancouver Canucks in Canada. Peace and good health my friends.
I don't watch TV much. I have lots of old movies ànd I read on my Kindle. I wish you well😊
Very informative, thanks a lot. My current favorite TV show is Romantic Doctor.
House is brilliant. I’m here to learn more about AML as our family friend has just been diagnosed. We’re on the hunt for her perfect stem cell match. Fingers crossed x
All my best to your friend 👌👌
My symptoms were major inflammation of the joints and back. Simple tasks like getting out of bed and walking were extremely painful. Only several emergency room trips later and my first bone marrow biopsy a month and a half after my first bout of leukemia symptoms it was confirmed. I had ALL. It was shocking to find out because I hadn't had any of the most common symptoms of it...
Yes, that really would have been shocking. But the worse part, is how difficult those symptoms were, like getting out of bed and walking causing pain, that would have been really hard. Sorry it took so long, but glad to hear there was an answer in the end.
@@TylerBlah Yeah, fortunately, once I was transferred to an out of town hospital, the initial protocol with steroids and dasatinib got me to remission pretty quickly. One symptom I forgot to mention is easy bruising...
Hi did you have inflammation in joints or just pain ? Also did you experience the chills ? Thanks
My nephew, was diagnosed with multiple myloma in and around 2010. His symptoms began where he could not lift his right arm, severe lower back pain. Xrays were taken they thought he had frozen shoulder. Finally he suggested an MRI . It was then that they saw many tumors. He was in Melbourne, Australia . 5 years and we lost him at 39years. 😢
A doctor who goes home and watches doctor shows?! No favorite here but I did enjoy binging Painkiller recently.
Not sure what’s causing my anemia found incidentally while screening for back surgery. Also have polychromasia so it’s test after test right now. During a PET scan some pulmonary granulomas lit up so off I go from hematologist to pulmonologist. Not sure what they’ll find and not looking forward to a bone marrow biopsy and/or lung biopsy (ouch!) as suggested. But it’s good that there are so many treatment options for these cancers.
My ex had CML and his first symptoms were night sweats, and dramatic weight loss. He had to get a BMT too to get a cure. Some of his symptoms helped me recognise my now husband’s NHL. He had pain down one leg for a day or two, but then the night sweats started. I knew straight away that this was not a good sign, and sent him straight up to the hospital. I know they are not the same as AML, but they seem to have night sweat or fever symptom. FYI Both are cancer free.
I am so glad to hear that both are cancer free. Congratulations to them and yourself on this. Thank you for sharing that experience, it would be so useful for many others that are watching.
@@TylerBlah Is poor sleep and platelets of 124k suspicious for leukemia? WBC and RBC are fine.
Hi I am a cll sufferer since one year. After eating ibrutinib I am doing well but my weight is lossing drastically. I am highly anxious and worried. Please share your opinion what to do to live fit and long.
Thank you for this video... It really makes me wonder about my doctor. I have had on and off (mostly on) flu like symptoms for more than a year, along with bruising easy, light headed/dizzyness, chronic fatigue, sore joints, and stomach issues(diarrhea or constipated)as well as having a blood test showing low platelets and all my doctor has done is say he will order another blood test in three months time....the only sign I have not shown was weight loss.
I don't really watch much TV but I'm sitting up, taking note of your channel. We just lost a very well-known, -much loved Afrikaans singer, Theuns Jordaan to Leukemia. Theuns died at age 50 and his passing leave many in tremendous pain and grief. So I'm trying to find out what happened to Theuns. What I realise now is that Leukemia was detected too late in his case.
All of my symptoms were completely explainable. Fatigue and abnormally long illnesses were there but it was the end of the school year and I was a teacher. It wasn't until I went on vacay and had to go to the ER for a completely unrelated issue that it was discovered through bloodwork. I had the ER doc straight tell me that he was looking at the bloodwork of someone with leukemia. 6 wks and 3 hospitals later, I finally got to go home. I had induction in the state I was diagnosed in. Went on vacation....came back with leukemia.
My 28 year old only son died due to lukemia aml before diognose he was very healthy how he got this after diognose immediately went to Chemotherepy but within 2 months we lost our only son lot of infection
I am still waiting for a consultation with a hematologist. I was in the hospital with severe anemia a month and a half ago and have to wait another month and a half. Somehow, I think having to wait 3 months might affect how advanced a possible cancer will be.
Thank you so much for your clear video! You're awesome 💗
I am so happy you enjoyed it 😊
God bless you with strength and good health 🎉
Thank you 🙏😊
Ahh this makes me wonder. Saw my GP about 2 years ago and had a low white blood cell count and other abnormal results. I’m 23 female btw. She referred me to a hematologist where again I had a low white blood cell count and other abnormal results but he couldn’t find the problem! Eventually my white blood cells went back to normal I don’t think I could have blood cancer though because that must mean my white blood cells would be high instead. I still feel so exhausted, chest pain, short of breath (I don’t think I am actually short of breath I just feel like that), I get joint/ bone pain, headaches and other stuff. I just feel off! I had a FISH analysis CLL and it came back positive for deletion of 13q14 which made me panic but he retested and it came back negative so must of been a false positive. Anyway I see my hematologist again in January! Hopefully it’s nothing bad and just my anemia! (I think anemia might just have similar symptoms).
Other symptoms I get are: itchy skin and when I get a cut or something I tend to bleed a lot and heal slowly. I hope these are just all symptoms of anemia. I’ve gotten iron infusions and I think it made me feel a little better but not 100%. Another reason I don’t think I have a blood disease is because I do bruise but not badly. I work with dogs so I usually will find bruises but nothing insane like I’ve seen blood cancer patients have. Also if my FISH analysis came back positive that once but then negative that next time I hope that would mean I’m negative. Sorry for venting lol.
I have Lupus and you definitely sound like me 😐
@@Yukinoodles how are you
Great presentation-thank you
I have leukocytosis right now. My WBC count is 14,000+. I am having night sweats, rash, fatigue and shortness of breath. I have had 1 visit with an Oncologist and will go back at the end of January for a followup. Apparently this has been ongoing for the past year and no one told me until right before Christmas. 😒
How did things go with the oncologist? My wbc has been high for almost a yr and I have many symptoms of leukaemia but my dr doesn’t seem concerned.
@@CompleteK9Canada Turns out I have gout whitch is also an auto-immune disorder that can mimic leukemia in symptoms.
Loved House too. Right now I’m into the paranormal. Loved your video. 🥰
Oh Paranormal, is it on a streaming platform?
Watching from the Phils. Ha ha House is also a favorite. I’m 62 yo, female. I am just about to consult a hematologist. These are some of what I am experiencing atm. Always fatigued, lingering cold, bruising all over my body, muscle/bone soreness and of late, difficulty in breathing.
All my strength to you and I hope you find a solution.
Hi, I haven't been diagnosed yet, been to doctors last week and he ordered a blood test. I have those skin spots that look like blood, itchy legs and pale that thing with eye. Every now and then I test to see if I bruise by slapping my stomach and seeing if it bruises next day. My blood test is on 4th of October 2024, just over a week after my sons (14th) bday and week before mine. I'll be honest I am scared and cry very often with this in my head. I am hopeful that this is not C and that is just stress from losing my job few months ago. However I can't ignore the fact that I have started having naps in the afternoon and sometimes I get pains in my bones. Headaches don't really happen. I have my fingers, toes and hair on my legs crossed this is all just coincidence. Comments really helped me today, seeing how many people are saying that after treatment they are back to be free of C.
Thank you for your video, I was a bit sceptic if I could find one about this. It helped a lot.
I wish you all good luck! Love you all
Hi
I just sent a long comment but I cannot see it. My name is Tom from Providence, RI USA
I am 60 and recently diagnosed with CML and am losing my mind. Did you happen to get a rather lengthy story from me tonight explaining my woes? Lol. Thanks. Your videos are great
It looks like I didn’t save them. Bottom line, diagnosed with CML 4 months ago. Started on Sprycel and got pancreatitis. Waited 6 weeks and then started with Gleevic. The Gleevic really works great and my results looks great. Unfortunately, I just can’t tolerate the side effects. I quit the Gleevic three weeks ago and am trying to get a consult with Dana Farber in Boston. I know a BMT is a ordeal. Months it appears. But I feel like I can deal with that versus the continuous feeling of bone pain, nausea, headaches and fatigue I feel on the med.
Unlike you, fortunately, I have CMT and not acute like you had. I will not return to Gleevic or another oral med. for me, it’s a BMT or nothing. I know I sound crazy and like a defeatist but I can’t deal with being sick every day for the rest of my life. I can psychologically deal with a rough year but not a chronic feeling of crap the rest of my life. What do you think my odds are that Dana Farber would be willing to do a BMT on me? Thank you so much. Your videos are super inspiring. I found them tonight and really feel hopeful. I hope you are well. Thanks, Tom Reddy, RI, USA
Thank you so much for this! I've recently been diagnosed with anemia but have some new symptoms so think I'll head on back to check on it. But hate blood tests! Anyway, congratulations on doing so well with your AML treatment! oh and I don't watch much tv but the last full season of something I watched was Dancing with the Stars Australia - well, not the all-star one but the one Courtney Act was on.
Anaemia is no good! I hope they're finding the cause/you are getting some symptom relief too. And yes, Courtney Act is amazing to watch. A great TV personality for sure
I am not watching anything on TV right now. I watched AGT earlier.
My mother had leukemia. Hers was CML I believe. My hemoglobin was down to 5.8 a year ago and the Dr thinks it was due to my RA.
Thank you for sharing.
Thanks for sharing Barb 👍😊
I was diagnosed with Iron deficiency after going to the doctor with what I thought I was having a hear attack as I could not breath and felt pain in the heart and could not walk far. I had to have blood transfusion. When it continues I went private and they did a scan and noticed enlarge lymph nodes. With a biopsy my symptoms were due to CLL.
West Wing rewatching from the beginning, again! I’ve been watching these clips but none have put pics of the red dots. I’ve had Fibromyalgia for 35 years now (long before they had commercials about it on TV and it took an average of 7 years for diagnosis - 5 for me). A lot of my symptoms overlap but I’ve got red dots, I’m getting sores in my mouth and my sores on my legs and arms take a long time to heal. I just moved to a new state in the US so now I’ve got to find a new doc who will probably think I’m a hypochondriac. Did you have the red dots?
Not sure if it's my favorite, but I've been watching Peaky Blinders (2013) lately. It's pretty epic though.
I watched an episode of that, and I must agree. Epic is an apt description :P
Like Tyler, I have been referred to haematology at RPA. My doctors think i have blood cancer - I have low platelets and neutrophils; night sweats; enlarged lymph nodes without infection; extreme exhaustion; weight loss; petechiae; etc.
Low wbcs, rbcs, and platelets, plus low hemoglobin x 3 weeks. Really yellow skin and fatigue. I just got diagnosed today.
I recently had high B12 on blood test 1500! Aching joints, knee pain and back pain. Kidney pain and pain on my right ovary, petchiae rashes, tooth pain, exhausted all the time, pale, mottled face. Headache is bad - pulsating vein on right side of head, dizzy.
What is your status now? I have the same symptoms
Read Toxic Superfoods- for sure. Norton, Sally. Limit consumption of OXALATES.
I am 41 with B cell ALL. I had a numb chin, weakness, bruising, night sweats, increased migraines.
I hope you’re managing symptoms well right now 🙏
My WBC is 1.7 RBC 3.5 Platelets 64
Lethargic, Bone and Joint Pain, excessive night sweats, bloody gums, blood in stool. Amongst a Miriam of other issues. Waiting for the results of the FISH tests
I have been having night sweats, weakness, shortness of breath, extreme fatigue, lost 7lbs, and look pale, continuous infections I was told I was probably going through menopause but I wasn’t having menopause symptoms except for the night sweats, I finally convinced my provider to do bloodwork to check for cancer and anemia, now I’m just waiting for my results I’m scared but at the same time I just want to know.
How you doing ? Did you get your results ?
@@sampatk4948 My Doctor was vague on my results, he lowered my thyroid medication and said he was going to send me to see a neurosurgeon. But now that I go back I’m going to get a copy of my blood work results.
How are you? Hope all is good.
I was diagnosed from a bone marrow biopsy with AML with the MECOM mutation. I was completely asymptomatic but low platelets from the blood work of an annual physical led to referral to a hematologist, the biopsy, and then referral to a hospital that specializes in cancer care (MD Anderson). I had a stem cell transplant in August of last year and my biopsies since then have been clear, though I have several more to go until I reach the 5-year mark. I actually have one upcoming this next week at my 10-month mark.
Thank you for sharing 🙏
I just watched the last season of Better Call Saul. Highly recommend! Thanks for your smart, friendly and reassuring video. You’re a great teacher!
My mom was diagnosed with AML on a Wednesday afternoon. She was gone by the wee hours of Saturday morning. She had a red halo in her vision- eye doctor said her arteries were bleeding behind her eyes! They set her up for a cauterization a few days s after her appointment. She had severe bleeding from her hemorrhoids. She did not say a word until the day she was put in the hospital. She was so out of breath she could barely walk at all. Her gums were bleeding and her bottom tooth fell out, so dad took her to the dentist. Dad had an appointment with their PCP and decided to bring mom along, she fought him, but he made her go. The PCP took one look at her and sent her to the ER for blood work. As they were taking her blood, she collapsed. They admitted her and did a blood transfusion. The IV line caused a 7” purple bruise that was horrific. Blood tests revealed her counts were a mess. A Bone Marrow Test was performed and the next day we got the news. Her Blasts were up to 80% on the day before she passed. There was no hope at all. Mom was 83 and dad took her to the dentist, the eye doctor and the PCP. But he never told any of them about all her symptoms combined. I was in NC, they were in NY with my 2 sisters. The day they admitted mom, my daughter was getting surgery. I flew to NY the following morning. We buried mom on that Monday. Shocking does not even come close to it! Cancer is a thief! You don’t recover from that happening in 3 days! Just awful 😢
I've had a lot of blood tests. Looking like Hemalytic Anemia but the official test result won't come until a few more days. If it isn't, we have to start considering blood cancer / bone marrow disorders. If it is, it's quite severe. I've taken a hell of a downward spiral in the last 6 months, especially last 3, and especially the last 2 weeks. :/ Not to be melodramatic but sometimes I feel so ill I'm scared if I go to sleep I won't wake back up. Red blood cells are absolutely genociding... Billiruben levels nearly at 7 per most recent blood test. Was 5.7 the prior day. No typo....
How are you my 28 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy but within 2 months we lost our only son
In July, I collapsed at work. An ambulance took me to hospital. Blood tests revealed that I had very low red blood cells (down to 6). I was topped up with three units of blood. Later bone marrow biopsy confirmed AML. Strange thing, before the collapse, I had no specific symptoms. I was not unusually tired or anything. What I had noticed was a tightness and cramping in my feet and calves when I walked quickly , made worse if you were carrying a heavy bag like groceries. I had also noticed some bruising on my thighs and knees. About 3 weeks before diagnosis, I developed a sinus-like infection in my nose. Mucous flowed during the day, but crusted up at night completely blocking nostrils. Because of this I mouth-breathed at night which resulted in a distressingly dry mouth and throat. This dry throat persisted, making it painful to swallow. Even though I have had antibiotics, I still have that sore throat. I have never had fevers, but do feel the cold, partly because I am losing weight. I am a 64 year old female who had already suffered from a gynaecological cancer with its chemo & radiation treatment two years before. Doctors think that the treatment may have triggered AML. My prognosis was not good. I am not suitable for intensive chemo or stem cell transplant. They are going to try a less intense chemo regime, which may slow it down, but not cure. However specialist thinks that my body may not even tolerate a full course of this. I am praying for a miracle, because my future looks bleak.
@darkcrystal86 I am so sorry. Unfortunately, cancer is one of those things that once your body faces once, the likelihood of it recurring seems to increase a lot - anecdotally speaking. An old friend battled brain cancer and went between remission and recurrence numerous times before it finally won the battle after about 5 or 6 years. Cancer is disgusting and death becomes very scary when it begins looking imminent. Always opt for numerous opinions when it comes to treatment options for stuff like this.. Seeking treatment options at universities can be beneficial when prognosis looks really bad because they may have experimental procedures that may be less ideal for one person that may benefit most from conventional treatment but be more ideal for someone who won't benefit from existing, proven methods due to situations like yours. I truly wish you the best.
I just found your videos. I’ve had a WBC of 14.0 for the last year. My absolute lymphocytes count is 5580, I’m very anemic and I have a hard lump on the back of my neck. I finally got a referral to an hematologist/oncologist. I hope it’s nothing serious
Hey AC. Sorry to hear you're going through symptoms like this. Seeing a haematologist is always so important with symptoms like this and I am happy to hear that you have been able to get the referral.
Any update?
Thank you for producing/relating such a resourceful clip and comments - A quick/Urgent Question, could anyone please share/guide us to a Hematologist/Oncologist/Specialist and/or a GP who can refer mentioned specialist(s) in Victoria, please?
Hi, I'm from Malaysia. Thak you so much for the sharing. If possible, really appreciate if you can share about the process of collecting the stem cell before the transplant. Thank you once again.
Please help me, I am having a hard time getting a diagnosis. I am older adult, former breast cancer stage 3. I am sweating at night a lot, bruising badly, many bacterial infections hospitalized for. I am very pale and sweaty always.
I am here in the United States and have been blown off by physicians over the past year. I have been to every specialist to rule out other disorders.
I am at your channel because my supervisor sent me home saying I look like I have leukemia, due to my all over bruising & extreme paleness.
How to I convince my primary care to test me for this?
Thank you for you listening, God Bless as you have given me some hope
I don’t watch tv that much but I read a lot , I’m reading Hopscotch by Julio Cortázar .
It’s interesting that you were seeing a Rheumatologist beforehand .. my dad who had AML had what I see now is not just hay fever and strange rashes and eye changes etc but autoimmune disorder beforehand.
I also just recently tested positive anti CCP predictive of RA with symptoms only being sore finger joints and hay fever allergy so far...
My dads AML symptoms was dizziness and feeling very tired often. He also had easy bruising.. he started out with just MDS (Myelodysplastic syndrome
Also called: MDS, preleukemia) and he had to have injections to slow down the process of it possibly reaching to AML but unfortunately it sped it up! With in 2months he had gotten AML and after the first round of Chemo it he passed just 5 months after finding out. I feel like his genetic make up may not have went well with the chemo as his white cells never returned. They seem to know a lot more about AML then they did 6 yrs ago when my Dad had it. He was also 67 so the chances or survival after 60 is less.
Yes, I've heard that MDS can convert into AML, and they have to watch that very closely! So sorry to hear that it did convert for your father. That would have been very hard on the whole family in that situation.
I'm finally going to see my doctor end of September. I have almost every symptom.
Alive?
Sending strength
Hi. Hope you're in remission. Pretty scary stuff!
My remaining sibling, my brother who is 2 years older than me. He has Leukemia and was tested for mutant gene DDX41. He gave me a family letter from BC Cancer Society in Burnaby BC so i could get test for this mutant gene. I was tested for about 76 genes. I tested positive for DD41 and another gene from Central Nervous System was changing. This 2nd one can cause tumors to show up anywhere in the body and apparently most are benign. I dont fully understand the Leukemia gene. Would you be able to explain t? Thank you in advance.
I dont watch TV. I do watch British shows on Prime tv and Tubi on my iPad. On Tubi, ive been watching "Helicopter Heroes" in Yorkshire. 😊💗🇨🇦
My father's AML started out with a cold in peak of summer and bruises. He was gone less than 8 months after diagnosis at age of 48. The chemotherapy treatment he underwent put a big burden on his body,
My name is Marybell and my iron levels are low and anemic. I’ve had two Iron Infusions and my numbers have not changed. I will be getting a third round of Iron Infusion soon. My oncologist/Hematologist has informed me that if my third round does not improve then she will have to biopsy my bone marrow. I’m scared because I have all the symptoms of Leukemia. I’ve been feeling fatigue for the last three years. I also had three Iron I fusions three years ago but my iron improved. My abdominal area always hurts as well as my joints. I sweat every night. I’ve been going to bed lately around 6-7pm which is very unusual for me. When taking a shower I have no strength to even wash my hair. Talking about hair I’ve notice my hair has been falling by the bunches! I bruise easy. I’ve had a weird pain under my right armpit as well as my upper extremity of my right arm for the last year. The awkward join pain I get on both hands is one day pain, next day gone, then it hurts again and then it goes away. I’ve been loosing weight too! I’m scared!
Hi! Are you okay? What is your status now?
Do you talk about CLL? I have not been diagnosed yet, but have many symptoms for months. My WBC is not high. It is actually low. I'm in USA and over 50 years of age. Haven't been able to get bone marrow test ordered re: normal/low WBC.
SALAM BROTHER HOW R U
I HAD cml in 2011
Bone marrow biopsy BHUT difficult
Navid 🇵🇰🇵🇰🇵🇰
Massive bleeding and bruising after a sinus surgery 2023. 2021 needing 4pints of blood after surgery for compound leg fracture. I was diagnosed June 2023 with CMML (two M's), a rare leukemia caused by damaged DNA. Yes, I felt tired, but otherwise felt healthy
My sister is passing through swolling on some of her body parts like the knees the ankles, the eye surrounding and any parts that has got hurt
If anything wound her, she bleed for almost a week
She's also goes through a lot of pain from the bruses for even a week. There was a time when her head had swollen so soft and the doctor said that it was the blood that was log in so they couldn't do anything and it was down on its own. So now the doctors she might be having leukemia or sickle cell. So please can you help?
my husband has been fighting multiple myeloma since 2009. this year it progressed into secondary plasma cell leukemia. i have tried and tried searching for information on the internet, there’s nothing to VERY little out there. please can you help or at least let me know where i can find information. thank you!
The internet should have good sources. Including WebMD, BMJ, or NEJM, or UpToDate for patients. Alternatively you could also find a medical textbook that could have it. But your hospital should be able to provide information booklets too 😊
Ive been pretty tired, weak, had light headaches and pain in my knees and elbow joints for over a month now. I was extremely scared of this possibly being leukaemia and had a blood test - the GP described the results as ‘normal’ and i want to know if this rules leukaemia out or should i continue to worry?
My son died at 17 years old from leukemia cancer. It was the most difficult thing ever. It was horrible what he went through.
God bless you
And your son
Something else they told us is that my husband not only had AML but it was Philadelphia chromosome.
Q: I was diagnosed w/ LGL Leukemia using flow meter but no bone marrow done recommended by hematologist. Do you think I should push for a bone marrow ? My symptoms are fatigue and night sweats occasionally. Other than my lymphocytes high, my blood work is normal.
Plus my blood platelets are high and they go low too and my white cells disappear like before and I've had amenic for years white blood cells disappear too in my blood work
My symptoms included muscle cramps, constant fatigue, palor, and unexplained bruises.
Thanks for sharing that Graeme, those would have been difficult symptoms for sure
I was diagnosed with aml 4 months ago had 2 rounds of chemo I'm 3 days before my bone marrow transplant I had no symptoms at all , it was just a random blood test that brought up low white blood cell
How are you
What you advised about cure rate as a doctor who diagnosed pre Ball at age 14y (m) with tp53 positive?
Polycythemia Vera here……red cells 3x normal …. Made the blood thick and caused a heart attack….the only symptoms I had