Health anxiety is a long journey. I’ve had it for over 12 years now and I’ve completely lost it obsessing over so many things. It’s a very painful and taxing experience and I’m sorry that you have to endure it. The birth of my first child brought back a fear of HIV that had been gone for over 4 years. It instantly came back, out of absolutely nowhere and for no reason at all. No instigating situations or anything. It happens. But please know that you’re not alone in this and that you have the strength to endure. One foot in front of the other until your walk is done. Keep going.
I totally understand. Thank you for being open and honest. I’ve had health anxiety for as long as I can remember, but this year has just been one thing after another and way more intense than ever. I’ll think I’m good and then something as tiny as a dot on my skin will set me off into another panic attack. I’ll try and reason with myself and remind myself that my “symptoms” are probably stress related and to replace the negative thoughts, but it feels like a daily uphill battle. It’s really exhausting. However, I’m thankful for people like you who understand and show me I’m not alone. Best wishes to you and anyone else struggling right now.
Yeah I’ve been dealing with strong twitches for a few days. All Over my body arm, leg, neck etc... and of course I convinced myself that I may have ALS! Then I remembered that I have had this for about 4 years now.. and I rewatched some Of your videos and then told myself I don’t have the muscle weakness! Still I have anxiety about what could be wrong with me then. I do have health anxiety unfortunately.. I didn’t even know this was a thing until I watched your videos. I haven’t been to a doctor because I never thought anything of it until it start happen more and more frequently. Granted I have been laid off from my job because of corona virus... and the watching the news and hearing all the stories... I don’t even know! I have just crazy anxiety and it’s hard for me to express that to family or friends. I just keep it all locked inside and try to figure out a way to deal with it on my own.
Know exactly how you feeling!! Had GBS for nearly 5yrs, but last 14 months been worse fatigue, twitching =fasciculations more muscles wasting etc. Goggle is very dangerous sometimes wanting to put yourself in a bracket, so convinced myself got ALS MS MD.. So back to Neurologist more tests etc and now I have CIDP. Yes I suffer from Anxiety, essential tremor in both hands.. From working and fitness obsessed, to needing help with some day to day tasks.. All the best to you
Thank you for sharing your experience with going back down the rabbit hole. It's very humble of you to admit that. I'm sorry it continues to plague you. I'm beginning to think the muscle twitching worrying is something we health anxious folks will have to learn to manage long-term. Glad you're okay now.
Your videos are so helpful for all of us BFS sufferers. I think it’s just the fact that this benign body sensation is even associated to that horrible 3 letter word (I can’t even say it) is why we are so anxious over this. Curious, have you gotten an EMG to calm your fears? I got an EMG after over a month of twitching and debilitating anxiety, fearful of the worst. It came back clean, but I still got a BFS diagnosis. I was relieved for a day, but the anxiety is still there bc the symptom is still there. Why can’t we accept what our doctors say? Someone on another post said it so true....Illness anxiety is a soul sucking disorder that robs us of life. It’s just so hard to battle. Glad you are in a better place!
I feel the same I climb up the hill then out of nowhere health anxiety hits me cause chest pain I had now it's like I'm not myself again two much negative thought go in our head. Going to work man it get me thinking my heart going to stop. I have to win
Yes it does every morning when I wake up there this fear like something going to happen at work I mow with a tractor all day boom come out nowhere start freaking out weird. But when I go home nothing. U have a good day we got this I no it's hard but one day this will b gone👍
I'm going to book one of your sessions! Every time I catch myself oh the *** fear wagon, I revert back to your videos for reassurance! It's too bad you don't use Zoom. No problem though; I just have to get an account with the other platforms you mention. Thanks again for your wonderful insightful videos!
Hey I’m a 16 yr old with muscle twitches and involuntary jerk movements. As well literally everywhere in my body cracks and freaks and pops. If I twist my wrist over and over it cracks and cracks. If I bend my elbow it cracks and cracks. These symptoms along with muscle twitching and myoclonic jerks have been with me for about a month now and yesterday I started having blurred vision. As well my legs are stiff and i literally loose balance but not enough to fall. I can’t see a doctor Bc I don’t live in an advanced country. All of these symptoms for a month. I jump back and forth from Oestroporosis to MS to Oestreoarthritis to Parkinson’s disease. Ofc at first I thought it was ALS but I have no weakness and I usually check by lifting up my 6yr old brother and he’s not getting any heavy😂 I hope i get better soon. Thank you and please share your thoughts
Hi, this is exactly the same situation. My parents' wouldn't allow me to visit a neurologist. The symptoms I have is the same as you are. I live in Asia and that's scares me. Health services in here isn't advance. I'm also young as you are, 18.
Raine Hilbero Raine Hilbero I’m fine now bro. I got sick Bc all I did was stay in bed 24hrs a day other than getting out bed to go eat food. The food I was getting was non nutritional. It was just plain rice. And at night I would just eat bread with milk. Lack of minerals and lack of muscle usage caused me to be sick and I also never went out in the sun for months straight. I decided to change my lifestyle habits by eating oranges, mangoes bananas, scrambled eggs, and boiled eggs. Cabbage and spinach in the mornings as well. I’m fine now. I don’t have any problems now all I have is the bone cracking still. I caused myself to get sick. The blurred vision was caused by putting too much oil on my face. The myoclonic twitching/Jerks left me but now they are back Bc I’m starting to get lazy again. But I suggest u start working out, jogging, drinking more water, fruits vegetables, go out in the sun but not too much Bc it may cause radiation which will lead to skin cancer. You’ll be fine. I thought I was going to have 1 of those disease 90%. Here I am. Perfectly fine. I was over reacting. At one point I thought I had ALS 95%. That was 4 months ago. If I had ALS a lot of things would’ve been harder to do today. It’s just anxiety. But you should see a doctor and buy some vitamins
@@jadedy4560 You're 18, if you look at the incidence rates of ALS in adults, in the 19-39 age range it is less than 1 in 100,000. Think about it, that's 18-39. The chance of an 18 year old diagnosed with ALS is close to 1 in 10,000,000. You don't have ALS, I've been twitching and jerking since 16 and now I'm 22. Please heal. You will be ok!
I have literally twitched all over my whole life, they have never bothered me at all. In the last 12 months though exercise I have had 2 hotspots. They did me in. HOWEVER I have had health anxiety my whole life and this is what is doing all this. Last week I couldn’t talk properly slurring words, it’s all anxiety. Our body’s just can keep up with our racing thoughts.
Oh my word! This is me currently and it’s terrifying 😫 twitching eyes, slurring words, struggling to speak properly, weakness in left arm and even dropping things more as well. It started with a tingling left hand for the past month and then started getting tingling in my feet as well and as soon as I got ALS or MS fear into my head this all started and I noticed every little thing mentioned above!
The incidence of ALS is 2/100,000 which is 0.00002%, if you’re under 30 it’s 0.5/100,000 which is 0.000005%, I’m a senior medical student who had this scare and I promise once you put things into perspective everything will get better!
I have generalized fasiculations and you’d think I’d know better than to diagnose myself with ALS but even those who study these diseases in depth lose their logic and succumb to anxiety, I really hope whoever reads this will feel better.
Thank you so much for this, it’s reassuring to see that even a medical professional still feels the same thing as we do. And even though these numbers help a lot, sadly i am still in a an obsessive fase where to me even 0,000005% isn’t easy because it’s not 0%, the possibility is still there you know.. :( But anyway i just wanted to tell you that your comment did in fact help!
Its actually even less than that for under 30. 0.5/100,000 would be around 1500 people under 30 in the USA. However, if you look at the age distribution in the USA, only 5000 diagnoses are made per year and only ~1% of these are under 30, so were looking at 50 people out of a population of 330,000,000. Not to mention, majority of cases under 30 are familial cases. The odds are infinitesimal for people under 30 without familial predisposition.
That's like 2 drops of blood from your entire body. 2 strands of hair from your entire head. The problem with anxiety is we detach ourselves from probability and we go with absolute.
thanks for this.. im 11 and have health anxiety about als. i have twitching all over my body, numbness in my feet and hands and is convincing myself i have muscle atrophy. im still terrified, but this calmed me down a bif. i dont know why i have to live like this 😞..
Is there any one who feels cramps in thighs... Pain in knees... Twitches and burning and weakness all over the body... Vibration type feeling also... M feeling this all from 2 years... My MRI of brain..neck and spine are normal... No slurring of speech... M just worried about this all that whats going on in my body... Taking anti depressants from 2 years also...
I hate this stuff, i started with twitching overall a few weeks ago, twitching is still going on and i googled this and i went down the rabbit hole.. have to wait 2 weeks for the blood tests due to the virus so i wont have any clues for another 3 weeks... but now ive started experiencing a weird throat sensation like something in my throat and issues swallowing, not when eating or drinking but i had this weird sensation that i cant swallow sometimes and i have to really try and focus to do it... phoned my doctor this morning to discuss it with them, i hateeeeee bothering my doctors so much
I Have a awful health anxiety and OCD (male 28) and I'm im the bulbar Als rabbit hole .. I read about it and after a week I have started to slurre many words, No one have heard it when they speak to me, but! I have it recorded when I do slurre, so I really are slurring my words. I also started stuttering. After the first slurre I got so hyperaware of my speech. I have never had any problems with my speech, my speech is my biggest gift in my life so when something is off with it, I know for sure something is really wrong. During this time, I also remember my tongue feeling fatigue. I do not slurre all the time it's coming and going. I’ve also developed in the last 2-3 days a scalloped tounge and burning sensation on my tounge (never had this before), fasiculations all over my body, mostly on my left buttcheek, it also feels like I have lost the coordination of my tounge and my tounge is always touching my teeth while I’m speaking, I never had braces and I have straight teeth. And today I have bit my tounge like 15 times meanwhile I'm speaking ..
So to my question, is this the bulbar onset of ALS? Because how can it be possible for me to slurre my words for 17 days with just hyperawareness and health anxiety, it should not be possible right?
Usually it starts with slurred speech, like your drunk, choking on liquids mostly, but being ok with solid food, tongue twiches and short of breath. But all those symptoms don't mean ALS, it can be lots of other issues, ALS being the most rare. Just go for an EMG, skip all other doctors and go directly for neurologist who does EMG, that's what i did anyways. If u go to your family doctor, he will send u to another, then another and so on, just go directly to neurologist for an EMG, even if u have to pay for it. Many blessings 🙏🙏🙏
burning tongue , scallpoed tongue arent even the symptoms of als ,burning and scalloped tongue mostly due to vit deficency get your vit levels checked im damn sure about it
Oh Cherelle.. I've been exactly same for two weeks.. twitching in soles or my feet and calves.. and seem to be limping a bit and have lots of numbness and tingling.. its killing me!!! :( :( been over a year now.
Only a month into twitching and I’m so stressed. I keep having other symptoms like arm fatigue and a tight throat and I’m not sure if I’m imagining or exaggerating them or not. Absolute torture. Thank you for your videos they help so much! I hope the anxiety goes away after a few months. Please make another video on dropping things or obsessing over swallowing /voice differences.
You're probably self analysing and that's causing you to perceive the problems in your head. I've done it and it's a nightmare to break out of it. But you will.
These are the exact symptoms I suffered when I thought I had ALS. I focused so much on them. I had an MRI. No ALS thank God. These are symptoms brought on by anxiety moreso prolonged severe anxiety. If you manage to overcome this fear you'll notice the symptoms slowly disappear.
I have had twitching calves for the last week and my first thought was ALS. I don't usually have health anxiety but this diesease seems to be a magnet for it, and that is understandable given the broad range of presenting symptoms and lack of teats that can rule it out. I'm not going to the doctors as the logical part of me knows I haven't got it.
@@cherellethinks idk if you ever been tested but I got a ALS test it came back negative the test sucks but it made me feel way better but I still feel like something is wrong it drives me Insane and takes a huge toll on my life.
I’ve been experiencing some muscle twitches. It started off on my shoulder muscle, it lasted for about 2 days. Then I would feel these small pulses through out my body, it would feel like my left arm started getting weaker but it wasn’t any weaker from the weights I would work out with. Today I started to get a twitch in my left knee which lasted a few hours but went away. I’m not sure if my excessive anxiety is causing this or it’s actual symptoms of ALS, it’s freaking me out and starting to feel a lot of depression
I think anyone going through this should get a thyroid panel. After I had my first kid (maybe 9 months post partum), I started having panic attacks and health anxiety...I was convinced I had MS. It ended up being post partum thyroiditis and literally affects everything. The numbness and tingling (felt like a sparkler being held next to my skin) is what really scared the crap out of me.
For the last 7 years, I've been experiencing health anxiety about different diseases. Recently, I feel like I'm having trouble speaking, but no one around me, including my wife, notices anything different. I'm convinced I have ALS and have started showing symptoms. Seven months ago, I thought I had a brain tumor and got an MRI, which was normal. I keep searching online about ALS and now genuinely feel I have it. I've had similar anxieties about other diseases over the years and have seen many doctors with normal reports. I'm 40 years old and from India. What should I do? Please help me.
hello im from india too, i have been twitching from one month it all started with anxiety qnd it ended up in twitches and pains everywhere im just 23 years old i have researched about als a lot and u know especially in our country its pretty rare i barely saw anyone with als in my real day to day life , even on internet u can search it als in india its pretty rare , i think ppl whom i saw are all above 50 , most of them are in 70's
I used to twitch a lot, I was scared, but it went away and I was ok for about a year. But now, my left palm and fingers feel weak and I am in this awful rabbit hole again and starting to loosing it.
@@funnlearnathome62 Thank you for asking! But honestly, I dont know... maybe a little bit better. A am trying to calm my thoughts, but it is not working very well right now.
My anxiety has also started omg! And since yesterday I have like a slight twitch inside my mouth, hopefully it stops, does anyone also experience that also @ cherelle how long did you mouth twitching last or face twitching! Am so worried
I continue to struggle with this. I don't feel any weakness. But I have twitches, I am always looking at my hands looking at any dip or difference between the hands is atrophy.
Just came here to ask something (too afraid too ask google) my lymph nodes are totally the normal size as they should be i guess...maybe a little bigger. But should i be worried in this case? I am extremely worried, and extremely anxious
What about Parkinson's fears? Feeli km g like you have to tell yourself to get up or walk or count before getting up... having to think about walking before you walk. Idk
Cherelle I had the tingling burning and electrical sensation fof 3 years and it didn't really bother me to much. A year ago the twitching started and it's hell , like you I became aware of MND and life was changed ... would love to erase that thought from my mind .. thanks for the videos
I'm stuck in a cycle too. I've been pretty good lately. But my anxiety over my face (seems to be my fairly new obsession) has been keeping me in a cycle of anxiety and obsessing the last few weeks.
@@unknownxoxo8905 at 14 and after being checked out, you definitely dont have ALS! You're too young to worry about things like this so you should speak to your parents and get help with your anxiety.
Does your health anxiety ever go onto your partner instead of it being about you being afraid that you have an illness? Like now that I’m good and much better with my own health anxiety now I worry about my husbands small symptoms
@@ChipDouglas10 I still have some twitching throughout my body but I don’t pay mind to it. I would say I get a few twitches daily. My thumb doesn’t shake anymore. When I had severe anxiety the twitches were worse and my mind would severely spiral. So I would say I’m much better now
Your comment is so true. I agree with you completely. Anxiety is a pure devil.... It stops us from joy, happines, living a blissfully happy life.... 😓😰
@@gedman9527 exactly... I had to give up some job opportunities because I was not able to deal with pins and needles in my arms and legs. It was so stressful for me so I had to reject this job.
@@m.n.8822 I fully understand , unless you've been through it yourself you'll never know much much it effects people , I'm a totally sympathetic with anxiety sufferers , great of there was a turn off switch
@@gedman9527 Thank you so much for understanding us - sufferers. Are You psycologist? Sometimes I wish I had a friend who has anxiety to share experience and to support each other. But it seems that all people around me are stronger than me. I cannot have children because of anxiety. It would be too much for me.
I’m so glad you’re posting again
Health anxiety is a long journey. I’ve had it for over 12 years now and I’ve completely lost it obsessing over so many things. It’s a very painful and taxing experience and I’m sorry that you have to endure it. The birth of my first child brought back a fear of HIV that had been gone for over 4 years. It instantly came back, out of absolutely nowhere and for no reason at all. No instigating situations or anything. It happens. But please know that you’re not alone in this and that you have the strength to endure. One foot in front of the other until your walk is done. Keep going.
I know that feeling all to well. Stay strong! Your anxiety brothers and sisters have your back!
I totally understand. Thank you for being open and honest. I’ve had health anxiety for as long as I can remember, but this year has just been one thing after another and way more intense than ever. I’ll think I’m good and then something as tiny as a dot on my skin will set me off into another panic attack. I’ll try and reason with myself and remind myself that my “symptoms” are probably stress related and to replace the negative thoughts, but it feels like a daily uphill battle. It’s really exhausting. However, I’m thankful for people like you who understand and show me I’m not alone. Best wishes to you and anyone else struggling right now.
So proud of you my friend!! You’re such a blessing to so many of us!
Anxiety will always find its object
Fuck thats so true. I find alcohol kills my anxiety though. Thats why I'm having bud light right now.
Yeah I’ve been dealing with strong twitches for a few days. All Over my body arm, leg, neck etc... and of course I convinced myself that I may have ALS! Then I remembered that I have had this for about 4 years now.. and I rewatched some Of your videos and then told myself I don’t have the muscle weakness! Still
I have anxiety about what could be wrong with me then. I do have health anxiety unfortunately.. I didn’t even know this was a thing until I watched your videos. I haven’t been to a doctor because I never thought anything of it until it start happen more and more frequently. Granted I have been laid off from my job because of corona virus... and the watching the news and hearing all the stories... I don’t even know! I have just crazy anxiety and it’s hard for me to express that to family or friends. I just keep it all locked inside and try to figure out a way to deal with it on my own.
Know exactly how you feeling!! Had GBS for nearly 5yrs, but last 14 months been worse fatigue, twitching =fasciculations more muscles wasting etc. Goggle is very dangerous sometimes wanting to put yourself in a bracket, so convinced myself got ALS MS MD.. So back to Neurologist more tests etc and now I have CIDP.
Yes I suffer from Anxiety, essential tremor in both hands.. From working and fitness obsessed, to needing help with some day to day tasks.. All the best to you
Hi Kevin.
How are you now?
Thank you for sharing your experience with going back down the rabbit hole. It's very humble of you to admit that. I'm sorry it continues to plague you. I'm beginning to think the muscle twitching worrying is something we health anxious folks will have to learn to manage long-term. Glad you're okay now.
Thanks for your videos! They are a real help, so does your facebook group. Thank you!
I'm there now. I spoke to my GP and of course he told me that ALS is highly unlikely and it's probably BFS but I'm still going crazy
Your videos are so helpful for all of us BFS sufferers. I think it’s just the fact that this benign body sensation is even associated to that horrible 3 letter word (I can’t even say it) is why we are so anxious over this. Curious, have you gotten an EMG to calm your fears? I got an EMG after over a month of twitching and debilitating anxiety, fearful of the worst. It came back clean, but I still got a BFS diagnosis. I was relieved for a day, but the anxiety is still there bc the symptom is still there. Why can’t we accept what our doctors say? Someone on another post said it so true....Illness anxiety is a soul sucking disorder that robs us of life. It’s just so hard to battle. Glad you are in a better place!
im so sorry youve been going through this. youre videos have helped me sooo much. god bless ❤️❤️❤️
Thank you so much for your lovely words 🌸
I feel the same I climb up the hill then out of nowhere health anxiety hits me cause chest pain I had now it's like I'm not myself again two much negative thought go in our head. Going to work man it get me thinking my heart going to stop. I have to win
It sucks right! And you’re right we HAVE to win! 💙
Yes it does every morning when I wake up there this fear like something going to happen at work I mow with a tractor all day boom come out nowhere start freaking out weird. But when I go home nothing. U have a good day we got this I no it's hard but one day this will b gone👍
Your videos help A LOT
God bless you, you are beautiful inside and out. I understand you 🖤💎
I'm going to book one of your sessions! Every time I catch myself oh the *** fear wagon, I revert back to your videos for reassurance! It's too bad you don't use Zoom. No problem though; I just have to get an account with the other platforms you mention. Thanks again for your wonderful insightful videos!
Hey I’m a 16 yr old with muscle twitches and involuntary jerk movements. As well literally everywhere in my body cracks and freaks and pops. If I twist my wrist over and over it cracks and cracks. If I bend my elbow it cracks and cracks. These symptoms along with muscle twitching and myoclonic jerks have been with me for about a month now and yesterday I started having blurred vision. As well my legs are stiff and i literally loose balance but not enough to fall. I can’t see a doctor Bc I don’t live in an advanced country. All of these symptoms for a month. I jump back and forth from Oestroporosis to MS to Oestreoarthritis to Parkinson’s disease. Ofc at first I thought it was ALS but I have no weakness and I usually check by lifting up my 6yr old brother and he’s not getting any heavy😂 I hope i get better soon. Thank you and please share your thoughts
Exactly the same as meeeeee
Hi, this is exactly the same situation. My parents' wouldn't allow me to visit a neurologist. The symptoms I have is the same as you are. I live in Asia and that's scares me. Health services in here isn't advance. I'm also young as you are, 18.
Raine Hilbero Raine Hilbero I’m fine now bro. I got sick Bc all I did was stay in bed 24hrs a day other than getting out bed to go eat food. The food I was getting was non nutritional. It was just plain rice. And at night I would just eat bread with milk. Lack of minerals and lack of muscle usage caused me to be sick and I also never went out in the sun for months straight. I decided to change my lifestyle habits by eating oranges, mangoes bananas, scrambled eggs, and boiled eggs. Cabbage and spinach in the mornings as well. I’m fine now. I don’t have any problems now all I have is the bone cracking still. I caused myself to get sick. The blurred vision was caused by putting too much oil on my face. The myoclonic twitching/Jerks left me but now they are back Bc I’m starting to get lazy again. But I suggest u start working out, jogging, drinking more water, fruits vegetables, go out in the sun but not too much Bc it may cause radiation which will lead to skin cancer. You’ll be fine. I thought I was going to have 1 of those disease 90%. Here I am. Perfectly fine. I was over reacting. At one point I thought I had ALS 95%. That was 4 months ago. If I had ALS a lot of things would’ve been harder to do today. It’s just anxiety. But you should see a doctor and buy some vitamins
@@nvghtmares hello we're literally same i was having anxiety due to Als i'm only 18 i dont wanna die early
@@jadedy4560 You're 18, if you look at the incidence rates of ALS in adults, in the 19-39 age range it is less than 1 in 100,000. Think about it, that's 18-39. The chance of an 18 year old diagnosed with ALS is close to 1 in 10,000,000. You don't have ALS, I've been twitching and jerking since 16 and now I'm 22. Please heal. You will be ok!
I have literally twitched all over my whole life, they have never bothered me at all. In the last 12 months though exercise I have had 2 hotspots. They did me in. HOWEVER I have had health anxiety my whole life and this is what is doing all this. Last week I couldn’t talk properly slurring words, it’s all anxiety. Our body’s just can keep up with our racing thoughts.
Gosh it’s so horrid isn’t it! Especially the slurring of words and once we become aware of it it becomes so hard to ignore! Thank you for sharing. 🌸
Oh my word! This is me currently and it’s terrifying 😫 twitching eyes, slurring words, struggling to speak properly, weakness in left arm and even dropping things more as well.
It started with a tingling left hand for the past month and then started getting tingling in my feet as well and as soon as I got ALS or MS fear into my head this all started and I noticed every little thing mentioned above!
@@sharnasmith6802 At least know that you're not alone!
The incidence of ALS is 2/100,000 which is 0.00002%, if you’re under 30 it’s 0.5/100,000 which is 0.000005%, I’m a senior medical student who had this scare and I promise once you put things into perspective everything will get better!
I have generalized fasiculations and you’d think I’d know better than to diagnose myself with ALS but even those who study these diseases in depth lose their logic and succumb to anxiety, I really hope whoever reads this will feel better.
Thank you so much for this, it’s reassuring to see that even a medical professional still feels the same thing as we do. And even though these numbers help a lot, sadly i am still in a an obsessive fase where to me even 0,000005% isn’t easy because it’s not 0%, the possibility is still there you know.. :(
But anyway i just wanted to tell you that your comment did in fact help!
Its actually even less than that for under 30. 0.5/100,000 would be around 1500 people under 30 in the USA. However, if you look at the age distribution in the USA, only 5000 diagnoses are made per year and only ~1% of these are under 30, so were looking at 50 people out of a population of 330,000,000. Not to mention, majority of cases under 30 are familial cases. The odds are infinitesimal for people under 30 without familial predisposition.
That's like 2 drops of blood from your entire body. 2 strands of hair from your entire head. The problem with anxiety is we detach ourselves from probability and we go with absolute.
thanks for this.. im 11 and have health anxiety about als. i have twitching all over my body, numbness in my feet and hands and is convincing myself i have muscle atrophy. im still terrified, but this calmed me down a bif. i dont know why i have to live like this 😞..
Is there any one who feels cramps in thighs... Pain in knees... Twitches and burning and weakness all over the body... Vibration type feeling also... M feeling this all from 2 years... My MRI of brain..neck and spine are normal... No slurring of speech... M just worried about this all that whats going on in my body... Taking anti depressants from 2 years also...
You're so beautiful and gorgeous 😍❤️
I hate this stuff, i started with twitching overall a few weeks ago, twitching is still going on and i googled this and i went down the rabbit hole.. have to wait 2 weeks for the blood tests due to the virus so i wont have any clues for another 3 weeks... but now ive started experiencing a weird throat sensation like something in my throat and issues swallowing, not when eating or drinking but i had this weird sensation that i cant swallow sometimes and i have to really try and focus to do it... phoned my doctor this morning to discuss it with them, i hateeeeee bothering my doctors so much
I've been feeling like this as well. Described word for word. Any update on your diagnosis?
I Have a awful health anxiety and OCD (male 28) and I'm im the bulbar Als rabbit hole .. I read about it and after a week I have started to slurre many words, No one have heard it when they speak to me, but! I have it recorded when I do slurre, so I really are slurring my words. I also started stuttering.
After the first slurre I got so hyperaware of my speech. I have never had any problems with my speech, my speech is my biggest gift in my life so when something is off with it, I know for sure something is really wrong. During this time, I also remember my tongue feeling fatigue. I do not slurre all the time it's coming and going.
I’ve also developed in the last 2-3 days a scalloped tounge and burning sensation on my tounge (never had this before), fasiculations all over my body, mostly on my left buttcheek, it also feels like I have lost the coordination of my tounge and my tounge is always touching my teeth while I’m speaking, I never had braces and I have straight teeth. And today I have bit my tounge like 15 times meanwhile I'm speaking ..
So to my question, is this the bulbar onset of ALS? Because how can it be possible for me to slurre my words for 17 days with just hyperawareness and health anxiety, it should not be possible right?
Usually it starts with slurred speech, like your drunk, choking on liquids mostly, but being ok with solid food, tongue twiches and short of breath. But all those symptoms don't mean ALS, it can be lots of other issues, ALS being the most rare. Just go for an EMG, skip all other doctors and go directly for neurologist who does EMG, that's what i did anyways. If u go to your family doctor, he will send u to another, then another and so on, just go directly to neurologist for an EMG, even if u have to pay for it. Many blessings 🙏🙏🙏
burning tongue , scallpoed tongue arent even the symptoms of als ,burning and scalloped tongue mostly due to vit deficency get your vit levels checked im damn sure about it
Oh Cherelle.. I've been exactly same for two weeks.. twitching in soles or my feet and calves.. and seem to be limping a bit and have lots of numbness and tingling.. its killing me!!! :( :( been over a year now.
Same for over a year now. Burning stabbing twitching restless warm cold sensations are so annoying. do u have a diagnosis?
Same mate .. five years but twitching only started a year ago !
I have a bit of a limp too. Twitching and muscle pain. Been having a bad anxiety attack for a few days now
@@Lucasfan375 get a EMG mate
I've never heard of ALS but these symptoms do sound exactly like anxiety I get twitches and I had a bit of dribbles and slurred speech are associated
Only a month into twitching and I’m so stressed. I keep having other symptoms like arm fatigue and a tight throat and I’m not sure if I’m imagining or exaggerating them or not. Absolute torture. Thank you for your videos they help so much! I hope the anxiety goes away after a few months. Please make another video on dropping things or obsessing over swallowing /voice differences.
You're probably self analysing and that's causing you to perceive the problems in your head. I've done it and it's a nightmare to break out of it. But you will.
I’ve been having weird symptoms for over a year now and no doctor has diagnose me. Do you know what you have?
me too hun , i’m 14 too
These are the exact symptoms I suffered when I thought I had ALS. I focused so much on them. I had an MRI. No ALS thank God. These are symptoms brought on by anxiety moreso prolonged severe anxiety. If you manage to overcome this fear you'll notice the symptoms slowly disappear.
Tammie Lee My neurologist thinks I have bfs induced by anxiety most likely
Your fear of ALS is my fear of MS !!! Twitching joy !!
Me too 😿
I have had twitching calves for the last week and my first thought was ALS. I don't usually have health anxiety but this diesease seems to be a magnet for it, and that is understandable given the broad range of presenting symptoms and lack of teats that can rule it out. I'm not going to the doctors as the logical part of me knows I haven't got it.
I been dealing with it too I even feel like my feet and hand tingle and go numb. :( anxiety is insane sometimes I feel like my life I over.
I’m sorry to hear this. I get tingling as well and it’s really horrid.
@@cherellethinks idk if you ever been tested but I got a ALS test it came back negative the test sucks but it made me feel way better but I still feel like something is wrong it drives me Insane and takes a huge toll on my life.
@@zigzag5085 What's the test like?
@@gra_nn its not that bad it's just uncomfortable and feels weird they stick neddles into your nerves to make sure there working properly.
I’ve been experiencing some muscle twitches. It started off on my shoulder muscle, it lasted for about 2 days. Then I would feel these small pulses through out my body, it would feel like my left arm started getting weaker but it wasn’t any weaker from the weights I would work out with. Today I started to get a twitch in my left knee which lasted a few hours but went away. I’m not sure if my excessive anxiety is causing this or it’s actual symptoms of ALS, it’s freaking me out and starting to feel a lot of depression
I think anyone going through this should get a thyroid panel. After I had my first kid (maybe 9 months post partum), I started having panic attacks and health anxiety...I was convinced I had MS. It ended up being post partum thyroiditis and literally affects everything. The numbness and tingling (felt like a sparkler being held next to my skin) is what really scared the crap out of me.
Had a wonderful day yesterday yet this morning doubt is back a bit again. Why because during the night a few twitches during the night.
For the last 7 years, I've been experiencing health anxiety about different diseases. Recently, I feel like I'm having trouble speaking, but no one around me, including my wife, notices anything different. I'm convinced I have ALS and have started showing symptoms. Seven months ago, I thought I had a brain tumor and got an MRI, which was normal. I keep searching online about ALS and now genuinely feel I have it. I've had similar anxieties about other diseases over the years and have seen many doctors with normal reports. I'm 40 years old and from India. What should I do? Please help me.
hello im from india too, i have been twitching from one month it all started with anxiety qnd it ended up in twitches and pains everywhere im just 23 years old i have researched about als a lot and u know especially in our country its pretty rare i barely saw anyone with als in my real day to day life , even on internet u can search it als in india its pretty rare , i think ppl whom i saw are all above 50 , most of them are in 70's
If you think you have Als for 2 or more years and you’re still walking around with no problems the chances that you actually have it are like 1%. Lol.
Good to hear from you!
All of us thought that. But later you figure out and change your mind, usually after visiting a doctor.
I used to twitch a lot, I was scared, but it went away and I was ok for about a year. But now, my left palm and fingers feel weak and I am in this awful rabbit hole again and starting to loosing it.
How are you now
@@funnlearnathome62 Thank you for asking! But honestly, I dont know... maybe a little bit better. A am trying to calm my thoughts, but it is not working very well right now.
My anxiety has also started omg! And since yesterday I have like a slight twitch inside my mouth, hopefully it stops, does anyone also experience that also @ cherelle how long did you mouth twitching last or face twitching! Am so worried
I continue to struggle with this. I don't feel any weakness. But I have twitches, I am always looking at my hands looking at any dip or difference between the hands is atrophy.
I am going through the same thing 😭
When you had muscles twitching, was it non stop continuous or did it come and go???
Just came here to ask something (too afraid too ask google) my lymph nodes are totally the normal size as they should be i guess...maybe a little bigger. But should i be worried in this case? I am extremely worried, and extremely anxious
No
What about Parkinson's fears? Feeli km g like you have to tell yourself to get up or walk or count before getting up... having to think about walking before you walk. Idk
Is it normal for the left thenar muscles to be smaller than the right?
Anxiety causes finger twitching
Do you ever get numb tingling sensation too?
guy tyrie oh gosh yes! Had it all over my face and lips yesterday!
Cherelle I had the tingling burning and electrical sensation fof 3 years and it didn't really bother me to much. A year ago the twitching started and it's hell , like you I became aware of MND and life was changed ... would love to erase that thought from my mind .. thanks for the videos
I'm stuck in a cycle too. I've been pretty good lately. But my anxiety over my face (seems to be my fairly new obsession) has been keeping me in a cycle of anxiety and obsessing the last few weeks.
me too
@@unknownxoxo8905 it sucks but we'll break out of it!
Bob Digi i’m just scared it’s not anxiety even tho i’ve been checked out plus i’m 14?
@@unknownxoxo8905 at 14 and after being checked out, you definitely dont have ALS! You're too young to worry about things like this so you should speak to your parents and get help with your anxiety.
Bob Digi i’m just scared of everything like heart attack and stuff
It's the same every day. They have been twitching for years. Just ignore them.
Hi cherelle I have emailed you for a session can you confirm if you have received it. ? X
Does your health anxiety ever go onto your partner instead of it being about you being afraid that you have an illness? Like now that I’m good and much better with my own health anxiety now I worry about my husbands small symptoms
You are beautiful but you need to try Wim Hof method. :)
Ur body is sticky ?
Hiiii
I always have twitching throughout my body and I don’t know what it is... sometimes my left thumb shakes too. It’s been almost a year of this
How are you now?
@@ChipDouglas10 I still have some twitching throughout my body but I don’t pay mind to it. I would say I get a few twitches daily. My thumb doesn’t shake anymore. When I had severe anxiety the twitches were worse and my mind would severely spiral. So I would say I’m much better now
@@Alzales That's great to hear!! I've had same symptoms for the past 2 months.
its anxiety , mind making the body sick , im going through it now high anxiety feel shit , horrible totally undrstand
Your comment is so true. I agree with you completely. Anxiety is a pure devil.... It stops us from joy, happines, living a blissfully happy life.... 😓😰
@@m.n.8822 I heard a saying once , you ignore anxiety and anxiey will ignore you , easier said then done
@@gedman9527 exactly... I had to give up some job opportunities because I was not able to deal with pins and needles in my arms and legs. It was so stressful for me so I had to reject this job.
@@m.n.8822 I fully understand , unless you've been through it yourself you'll never know much much it effects people , I'm a totally sympathetic with anxiety sufferers , great of there was a turn off switch
@@gedman9527 Thank you so much for understanding us - sufferers. Are You psycologist? Sometimes I wish I had a friend who has anxiety to share experience and to support each other. But it seems that all people around me are stronger than me. I cannot have children because of anxiety. It would be too much for me.
Plz give me reply
I BIG
I wish I never watched that movie your not you.