They can't even get surgery to alleviate their respiratory obstructions, because that would just cause more trauma and then more bone formation... What a sad condition. That research is so promising.
@@RomeoMihalcea That's really good if you're telling the truth. Was it a local research team, a local hospital, or like a charity donation? Because I'm all for philanthropy.
@@MrBrainTucker1079 No. A doctor friend of mine who struggles to make ends meet even though she's very good at her job. Most good doctors leave the country so I try to make my part so that she feels right, here, at home. I can't dent a hospital or research team but I sure will continue to aid her. Corruption on these parts are also a factor why I refuse to go higher up.
Man how beautiful all four of them are. They are out here looking and being fantastic because they value everything they've got. We are all blessed. Don't ever think something is too much for you, someone is wishing they were in your position. We all forget too often
It's alot like scar tissue. But instead of it scaring over and healing gradually over time, it hardens more over time. Most likely due too a genetic mutation in witch attacks the healing membrains in the body. Sending them into over drive until there's only the hardened surface instead of slowly healing it over time.
As the soft damaged tissue repairs itself it calcifies. The calcification turns into a bony , hard material instead. So sad ! Could you even imagine this ? God bless these woman 🙏 and they are happy, seem well adjusted and have love in their lives. What a blessing this two men are . Now they are what you call real men!!!!
Look at them both rocking that gorgeous hair color paired with those adorable outfits! They are like whatever this isn’t going to stop our love for style! Yesss Queens!
Really puts things into perspective... They look so cute and put-together and seem so positive, despite this life-altering illness. I hope good things will come to them.
Would love to hear more about them and if the medication really will stop this illness and if they will be able to get surgery to repair the damaged areas of their body.
lucy fretwell I really hope you ladies get better. You are in such good spirits and that’s 1/2 the battle. Please keep us posted on both of your recoveries.
I hope they find some amazing cure that heals them and can maybe even gradually fix Zoe’s arms and leg and make them more flexible and eventually back to how they used to be so they can live normal lives. I wish them the best 💕💕
I had no clue there were twins with FOP. A good friend of mine (in California, a singer, these women may actually know her) has FOP and is nearly fully locked in. For her, her singing has helped dramatically in keeping her lungs functional. (Her jaw is one of the last unaffected joints in her body.)
I have a genetic disorder and I have extremely loose joints and frequently experience dislocations and sublaxations and it causes a great deal of pain for me. I can't imagine how they do it and how excruciating it would be and discouraging to know that because of some accident you could lose mobility permanently or wake up and not be able to move a body part. I'm so glad that there is hope for anyone who has this.
I have a disorder with no name. If I hurt a tendon it will not heal or respond to anything except surgery. It has led to four surgeries. Two on my left hand and two on my right ankle. I have been warned that if I hurt myself in the future to expect surgery. It does not stop me from doing things.
I have never been so thankful to have a “normally” functioning body. Imagine slowly turning to stone. (Ik it’s bone but metaphorically speaking) has to be one of my worst fears.
Proud to work for the company that is currently developing a possible treatment for FOP (Regeneron). Recently released to the public the success of phase 2 clinical trials
Wow Zoe’s husband is amazing! I wanted to cry watching him straighten her hair because that’s love in its purest form. These men are absolutely amazing for doing everything they do for these two beautiful women. I can only imagine how hard life is for these two women, I’m so proud of them for not just giving up on life & continuing to try to live life to the fullest.
Of all the diseases that are out there this has got to be hands down the most cruel. I pray this new medication is a break through & these two beautiful twin sisters not only go into remission but other sufferers can benefit from it as well. Please pray for those who are doing these studies. That God gives them the knowledge & the expertise to help those who suffer be able to start to live life again & not meet their demise by complications of bone building up in their air way.
The opposite exists...a condition that causes the body to absorb the calcium in bones until the bones disappear (literally). There's no cure or treatment, just pain management.
Squirrel ASMR I think that would be like a running river turning to ice, even though Its always moving, the cold eventually gets to it and freezes it anyways
It’s extremely painful when the bone forms, so moving isn’t an option. At least that’s what my friend that has FOP says. The twins in this video are very lucky, as they are much more mobile then most sufferers of the disease.
I used to care for a beautiful soul, Sarah, who passed away a year ago. She had FOP. Got the pleasure of meeting Dr. Kaplan long ago. Nothing but love to all who have this disease. You’re all amazing INCREDIBLY strong souls!! ❤️
Wow I'm so happy that the trials are going well for them. I love medical research and I really wish more lesser known conditions were funded. I'm happy that the flare up didn't calcify. I hope one day there will be a drug that allows FOP sufferers to go into remission!
I’m glad scientists are getting on top of things. Although they were too late to find a cure for my mom, my grandpa, and maybe me. It’s not their fault, but rare medical conditions need to be brought to more people’s attention so people can be helped. Some people have no idea what it’s like.
Geometry Dash Kenaz Not necessarliy this... I have a different genetic disorder in my family, Huntington’s disease. It deteriorates your brain until about age 50, then you die.
Two beautiful sisters, who put a lot of us who have some health issues to shame. Their spirit ,courage and way they support each other without complaint is incredible.... and to have that awful condition hanging over their heads and enduring the suffering silently , is admirable. I for one sincerely hope that after all these trials, which they have themselves taken part in for the last four years ,a drug to stop their bodies turning completely to bone with be found . It will help sufferers all over the world, so I pray for their success. One last thing,I’m so glad their parents didn’t wrap them up in cotton wool when they were younger and growing up. As the girls said, they just had to be careful, but they managed to enjoy their childhood which is great. My love and best wishes to them both l.have every digit painfully crossed for a winning outcome very soon. 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👍🙋♀️😘😘❤️❤️💐💐☕️☕️. 😻XX.
research into the treatment and prevention of FOP is so so so so sooo important and overdue. I'm so immensely proud of these two tough young women doing it not only for themselves but for all the future sufferers. It is one of the cruelest conditions in the world, always hidden until something terrible happens and there is no going back. Science is all we have and all the people working on treatment and potential cures are all fucking amazing.
Shame it's not preventable. It's a spontaneous (autosomal dominant) mutation in one of the gametes that create the child. It's not predictable and neither parent carries the gene. It's a shame and I really hope a treatment cure come to be.
I always think I have it hard, with my constant pelvic muscle/nerve spasms. But these videos really make me look at my situation in a new light. Even though I currently can't do things other people my age can do, I can still find a way to live my life to the fullest anyway
I’m so sorry this has happened to you both but glad you have your sister with you, going through this with you who understands really what it like. And it seems like you both have loving and devoted partners. Hopefully you find relief or a cure to help
These poor people... Breaks my heart. I hope a cure is found asap. Just kills my heart. I've lost people I love and it makes me feel so bad for good people who have health problems. I would give all my materials to cure just one person.
They seem like sweet lovely ladies. I'm so sorry for their condition. Silver lining is that they are dealing with this together I suppose. Their inner spirit and wonderful personalities shine through the obvious discomfort and physical limitations.
I loved seeing the husband straighten her hair for her. Those little things can mean so much. What an amazing pair those sisters are and their positive energy is amazing!
At first I was like 🤔 when I saw the video before tapping it cuz I was thinking “arent our bodies already made of bone?” But then I realized obviously we have organs veins etc smh 🤦🏾♀️
how is it when you have sex? does your vagina close up or what exactly happens if you hurt it down there? _this isn't a joke question either and forgive me for it being so blunt but i'm curious and i'm sure other people are. they may think but not say it but i will_ -thanks and dont hate me please-
I think its so incredible that they support each other and are there for each other while going through something that I’m sure is beyond terrifying. I love the bond they have, I love that they’re still doing everything they can and not giving up, the amount of strength they have is incredible. They’re also both so gorgeous, and I love their matching hair colors 🥰💙
Syed Mudassir you think “god” is gonna come out the clouds and throw his magic wand at them and poof they’re cured? Why would he cure them if he’s the one who made them sick in the first place?
@@uhnothing1391 What else do we have? Or if there is a more powerful creator than almighty let me know. I know for sure no miracles would happen just like that. That's why I said "hope". I didn't give any guarantee. But he might. It depends on a person's perspective. Now Don't ask me his agenda.
"...especially if it attacks the spiritual system." What? Speak in English, ffs. Did you attempt to say RESPIRATORY system, or what? I have no idea what the narrator was trying to say.
Wow its good to see people being so rsilent this is so inspirational espicaly because I'm glad they talk kinda like me its hard being from a place no one really talks abou I'm from Scotland and no one understamds how annoying it is when people think Britain is just England its just like any other place if u think about that's how the whole earth is.... Anyway hope people can continue like this and be more supportive ov each other ..... DONT SAY DIABILTY SAY ABITY
*Fibrodysplaxia ossifans progressiva* 🤣 How can you do a short on a genetic disease as rare as Stone Mans disease and manage to get the name wrong? 🤦🏻♂️ FibroDYSPLASIA ossifICANS progressiva. Show some respect.
Awe! I think y’all would probably be the closest twins! I feel bad... if I had this condition, I think I would have all my into bones.😢 I’m sorry god picked these twins
They can't even get surgery to alleviate their respiratory obstructions, because that would just cause more trauma and then more bone formation... What a sad condition. That research is so promising.
He does her hair......so sweet
he will be delighted to hear this haha! thank you x
@@misszoella did he do the makeup too?
And he does it really well!
chloe 66 I know I’m literally crying 😭😭😭
IKR?!? TT^TT
meanwhile we give hundreds of millions to entertainers that kick a ball daily - who needs doctors and scientists right?
Have you personally donated anything to the doctors and scientists you're speaking about?
@@MrBrainTucker1079 Absolutely. Just recently (1 week ago). Have you? My guess is no. That question sounds negative - it must stem from somewhere.
@@RomeoMihalcea That's really good if you're telling the truth. Was it a local research team, a local hospital, or like a charity donation? Because I'm all for philanthropy.
@@MrBrainTucker1079 No. A doctor friend of mine who struggles to make ends meet even though she's very good at her job. Most good doctors leave the country so I try to make my part so that she feels right, here, at home. I can't dent a hospital or research team but I sure will continue to aid her. Corruption on these parts are also a factor why I refuse to go higher up.
@@RomeoMihalcea That's like in the Philippines, overworked...underpaid doctors and nurses.
These men are troopers. God bless them. Supporting their women with everything they got.
Man how beautiful all four of them are. They are out here looking and being fantastic because they value everything they've got. We are all blessed. Don't ever think something is too much for you, someone is wishing they were in your position. We all forget too often
I’ve never heard of this until now. Strong women ,God bless them.
I’m glad they have supportive boyfriends as well as each other as sisters. As a side note I love 💕 the lavender hair.
1:47 I am never gonna complain about anything ever again.
zoes husband is everything. dods a legend
Question; so if they get hit in the jaw will that also fuse and they may loose the ability to speak?
Hi pretty lady. How are you
"Clock". What a way to pronounce "klukh". 😂 Although, tbf, I don't think the "kh" sound exists in English.
THIS is a prime example of why research and scientists should be better supported . These results come from the lab first then to the clinical side
simplycbh j
@simplycbh bro research I'd already supported to it's fullest extent
Unfortunately for then rare diseases are put to the back of the line.
Yeah, and not for the purpose of being a cash grab.
Well nothing is stopping you donating. What do you want?
Her husband curled her hair with a straightner!!! What a life long keeper!!
Markmellows 34 wtf
Markmallows 34 u is fucked up nigguh what kind of joke is that
What is so great about a husband fooling around with his wife's hair????
@@Noe1ani_ sarcasm
@@rossapoo sarcasm
My best friend had FOP and sadly dIED last year at the age of 26. I miss you.
Thank you all for listening.
😢
Sorry about your friend
So sorry about your best friend
Thank you all so much. She is my hero and my children's guardian angel.
We are all on that path im sorry
If this type of situation doesn't make you appreciate having a functioning body then you're not paying attention. This is some humbling stuff.
got to be thankful
Thank you so much, we try live as much as we can every day xx
Amen
For sure! But more I realise many poeple have something going on. We assume the norm is health. So many have conditions or injuries going on
I wish I could say I have a properly functioning body. I very much undertstand their frustrations.
I wish they went more in depth about why the injuries turn to bone
Jazz V it turns to bone because damaged soft tissue regrows as bone
Don’t worry about what my name is yeah but why
It's alot like scar tissue. But instead of it scaring over and healing gradually over time, it hardens more over time. Most likely due too a genetic mutation in witch attacks the healing membrains in the body. Sending them into over drive until there's only the hardened surface instead of slowly healing it over time.
Genetic disorder
As the soft damaged tissue repairs itself it calcifies. The calcification turns into a bony , hard material instead. So sad ! Could you even imagine this ? God bless these woman 🙏 and they are happy, seem well adjusted and have love in their lives. What a blessing this two men are . Now they are what you call real men!!!!
Look at them both rocking that gorgeous hair color paired with those adorable outfits! They are like whatever this isn’t going to stop our love for style! Yesss Queens!
i know right! love their outfits ❤️ beautiful girls!!
Their beautiful ladies very smart and fashionable I'll pray for them it looks promising for them.
yesss they slaying😎😎🎀
🙌
Really puts things into perspective... They look so cute and put-together and seem so positive, despite this life-altering illness. I hope good things will come to them.
thank you so much for your kind words x
Thank you 😘
Would love to hear more about them and if the medication really will stop this illness and if they will be able to get surgery to repair the damaged areas of their body.
Thank you so much, this is me and my twin sister.
@@LUCYFRETWELL lovely people
agreed
If I remember correctly, stoneman syndrome can’t be cured by surgery. If you cut the skin, that’s damaging it and the muscle will turn to bone.
lucy fretwell I really hope you ladies get better. You are in such good spirits and that’s 1/2 the battle. Please keep us posted on both of your recoveries.
I hope they find some amazing cure that heals them and can maybe even gradually fix Zoe’s arms and leg and make them more flexible and eventually back to how they used to be so they can live normal lives. I wish them the best 💕💕
I had no clue there were twins with FOP. A good friend of mine (in California, a singer, these women may actually know her) has FOP and is nearly fully locked in. For her, her singing has helped dramatically in keeping her lungs functional. (Her jaw is one of the last unaffected joints in her body.)
Aww that’s bitter sweet 🥺
Hurting yourself would be a nightmare
Renalyn Latoza I’d be dead by now I am such a clutz!
She has no choice but to get her period.. I wonder how that feels..
I have a genetic disorder and I have extremely loose joints and frequently experience dislocations and sublaxations and it causes a great deal of pain for me. I can't imagine how they do it and how excruciating it would be and discouraging to know that because of some accident you could lose mobility permanently or wake up and not be able to move a body part. I'm so glad that there is hope for anyone who has this.
@CJ Replogle Yes it is.
I have EDS also.
@CJ Replogle I probably do, I have my hubby adjust my ribs almost daily. It's hard to tell in me because honestly I'm fat. Just keeping it real.
Hope you get your cure too
I have a disorder with no name. If I hurt a tendon it will not heal or respond to anything except surgery. It has led to four surgeries. Two on my left hand and two on my right ankle. I have been warned that if I hurt myself in the future to expect surgery. It does not stop me from doing things.
I have never been so thankful to have a “normally” functioning body. Imagine slowly turning to stone. (Ik it’s bone but metaphorically speaking) has to be one of my worst fears.
Proud to work for the company that is currently developing a possible treatment for FOP (Regeneron). Recently released to the public the success of phase 2 clinical trials
Any progression? On Wikipedia, it still says there is no treatment.
good to see they both have partners who love them 😊 and care about them
I can’t believe I haven’t seen this sooner as they’re my cousins
That's cool I hope they can get the help that they so desperately need.
😘 Thanks callum
@@LUCYFRETWELL Send them my love Lucy and I send you love to ♥️
Aww
How are they doing now if you don't mind me asking ?
I really hope they find s cure for this condition. This is so sad. I wish I was rich so I can help the researchers find a better solution much faster.
Same here this is messed up not fair at all
Wow Zoe’s husband is amazing! I wanted to cry watching him straighten her hair because that’s love in its purest form. These men are absolutely amazing for doing everything they do for these two beautiful women. I can only imagine how hard life is for these two women, I’m so proud of them for not just giving up on life & continuing to try to live life to the fullest.
How can someone dislike this video. It’s heartwarming and gives hope.
thank you :) x
Sick people with no lives is who. Bless these beautiful ladies
Imagine if they accedentally hit there ankles on a scooter 😬
Aaah shit my foot
@Shisui San lol😂
Big oof
Electric chair 💀💀💀💀💀💀
Not funny!AT ALL!!!!
So... I have an identical twin as well. We're both half Irish and guess what my twins name is. Lucy. Is this a coincidence or what...
Oh my word!!! That's so cool!!
They are no coïncidence
Yea it’s probably a coincidence because your probably not the only Irish twins named Lucy soooo
Lol what is half Irish?
Zoey Kerin and your name is zoey
Of all the diseases that are out there this has got to be hands down the most cruel. I pray this new medication is a break through & these two beautiful twin sisters not only go into remission but other sufferers can benefit from it as well. Please pray for those who are doing these studies. That God gives them the knowledge & the expertise to help those who suffer be able to start to live life again & not meet their demise by complications of bone building up in their air way.
The opposite exists...a condition that causes the body to absorb the calcium in bones until the bones disappear (literally). There's no cure or treatment, just pain management.
I disagree with you. I can name 5 that would make you cry to see how the patients suffer until death.
There are other diseases worse than this.
What if they keep moving non stop, can the bone still get a chance to form?
Squirrel ASMR I think that would be like a running river turning to ice, even though Its always moving, the cold eventually gets to it and freezes it anyways
Btw u r microbreaking your bones EVERYDAY by none stop moving it would just spread a little faster
It’s extremely painful when the bone forms, so moving isn’t an option. At least that’s what my friend that has FOP says. The twins in this video are very lucky, as they are much more mobile then most sufferers of the disease.
have to sleep sooner or later
I would be all bone byy now....
I used to care for a beautiful soul, Sarah, who passed away a year ago. She had FOP. Got the pleasure of meeting Dr. Kaplan long ago. Nothing but love to all who have this disease. You’re all amazing INCREDIBLY strong souls!! ❤️
Wow I'm so happy that the trials are going well for them. I love medical research and I really wish more lesser known conditions were funded. I'm happy that the flare up didn't calcify. I hope one day there will be a drug that allows FOP sufferers to go into remission!
I’m glad scientists are getting on top of things. Although they were too late to find a cure for my mom, my grandpa, and maybe me. It’s not their fault, but rare medical conditions need to be brought to more people’s attention so people can be helped. Some people have no idea what it’s like.
Wow so you have it as well?
Geometry Dash Kenaz Not necessarliy this... I have a different genetic disorder in my family, Huntington’s disease. It deteriorates your brain until about age 50, then you die.
@@samantha-pq9pl A brutal disorder too. Hope you’re doing well.
@@samantha-pq9pl God sees you
Let me wrap them in bubble wrap :( the don’t deserve this, nobody does.
Two beautiful sisters, who put a lot of us who have some health issues to shame. Their spirit ,courage and way they support each other without complaint is incredible.... and to have that awful condition hanging over their heads and enduring the suffering silently , is admirable. I for one sincerely hope that after all these trials, which they have themselves taken part in for the last four years ,a drug to stop their bodies turning completely to bone with be found . It will help sufferers all over the world, so I pray for their success.
One last thing,I’m so glad their parents didn’t wrap them up in cotton wool when they were younger and growing up. As the girls said, they just had to be careful, but they managed to enjoy their childhood which is great. My love and best wishes to them both l.have every digit painfully crossed for a winning outcome very soon. 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👍🙋♀️😘😘❤️❤️💐💐☕️☕️. 😻XX.
1:14 just saying but aw that's a cute goat
This is the first I’ve ever heard of any possible treatment for F.O.P. Hopefully it’ll work out.
research into the treatment and prevention of FOP is so so so so sooo important and overdue. I'm so immensely proud of these two tough young women doing it not only for themselves but for all the future sufferers. It is one of the cruelest conditions in the world, always hidden until something terrible happens and there is no going back. Science is all we have and all the people working on treatment and potential cures are all fucking amazing.
Shame it's not preventable. It's a spontaneous (autosomal dominant) mutation in one of the gametes that create the child.
It's not predictable and neither parent carries the gene.
It's a shame and I really hope a treatment cure come to be.
3:48 he curls her hair im crying that’s so precious
their twinning fashion sense is goals
I always think I have it hard, with my constant pelvic muscle/nerve spasms. But these videos really make me look at my situation in a new light. Even though I currently can't do things other people my age can do, I can still find a way to live my life to the fullest anyway
Much love and God protect you ladies
I’m so sorry this has happened to you both but glad you have your sister with you, going through this with you who understands really what it like. And it seems like you both have loving and devoted partners. Hopefully you find relief or a cure to help
💜💙Pretty ladies... hope the successful treatment is found!
thank you so much x
Zoe Buxton how are you? 🥺
13 comment. This so sad knowing that one day they could be human statues
These poor people... Breaks my heart. I hope a cure is found asap. Just kills my heart. I've lost people I love and it makes me feel so bad for good people who have health problems. I would give all my materials to cure just one person.
3:45 how cute it is that he’s actually curling her hair, goals 💗
6:15 the doctor looks like trump at that angle 💀
I hope they get cured 😫 god bless these twins 😇
This condition is really sad, the one video with the little girl gets me every time
I have so may bruises so I would be statue within a year
Not insulting them
What amazing bright women they are so brave and hopeful all the best for their future ❤️
Imagine how much this drug would cost in the US.
$1m
It'd probably be free
@@jasper8961 this is a joke...
They seem like sweet lovely ladies. I'm so sorry for their condition. Silver lining is that they are dealing with this together I suppose. Their inner spirit and wonderful personalities shine through the obvious discomfort and physical limitations.
I'm glad that they have eachother for support. And I really hope that the treatment is going well and stays well.
Doesn't anyone think she said "80" and not 8?
Just me?
Ok..
These sisters are inspirations to us all ,dont hold yourself back in life don't give up .I really wish all the best to them.
some people have bones that break as easily as a paper, some have bodies that turn to bone. nature is scary.
I’m so sorry!!!! But I’m glad you both look like your ...happy and living life to the fullest!!!!!!
Still making jokes about everything and caring less about the bad things, what good positivity!!
Your optimism and positive attitudes are very inspiring and admirable, I hope your condition improves and you both live long and prosperous lives.
Iam alwsys worried about these patents in my mind and in my hart
They look like some very nice people. From Northern Ireland aswell
Thank you lovely xx
There both so stong, and amazing how they do not go through it alone!!
I loved seeing the husband straighten her hair for her. Those little things can mean so much. What an amazing pair those sisters are and their positive energy is amazing!
oml their eyes are gorgeous
Two beautiful ladies. I am glad they have each other and supportive partners
At first I was like 🤔 when I saw the video before tapping it cuz I was thinking “arent our bodies already made of bone?” But then I realized obviously we have organs veins etc smh 🤦🏾♀️
Zy S lol xD
HAA
how is it when you have sex? does your vagina close up or what exactly happens if you hurt it down there?
_this isn't a joke question either and forgive me for it being so blunt but i'm curious and i'm sure other people are. they may think but not say it but i will_
-thanks and dont hate me please-
they should give their skeletons to the mutter museum in Philadelphia
Poor girls
I hope they get through it
I think its so incredible that they support each other and are there for each other while going through something that I’m sure is beyond terrifying. I love the bond they have, I love that they’re still doing everything they can and not giving up, the amount of strength they have is incredible. They’re also both so gorgeous, and I love their matching hair colors 🥰💙
Always live with a hope. May the almighty cure you.
Amen
Just stop
@@andersson9333 Sorry mate, what needs to be stopped?
Syed Mudassir you think “god” is gonna come out the clouds and throw his magic wand at them and poof they’re cured? Why would he cure them if he’s the one who made them sick in the first place?
@@uhnothing1391 What else do we have? Or if there is a more powerful creator than almighty let me know. I know for sure no miracles would happen just like that. That's why I said "hope".
I didn't give any guarantee.
But he might. It depends on a person's perspective. Now Don't ask me his agenda.
You are both really beautiful 😍💕 keep fighting I pray that you find some peace from this 💕
Thank you :) that’s so kind of you xx
"...especially if it attacks the spiritual system."
What? Speak in English, ffs. Did you attempt to say RESPIRATORY system, or what? I have no idea what the narrator was trying to say.
Wow its good to see people being so rsilent this is so inspirational espicaly because I'm glad they talk kinda like me its hard being from a place no one really talks abou I'm from Scotland and no one understamds how annoying it is when people think Britain is just England its just like any other place if u think about that's how the whole earth is.... Anyway hope people can continue like this and be more supportive ov each other ..... DONT SAY DIABILTY SAY ABITY
Look at these girls’ cute style!....you two r gorgeous! ...I’m sending you both healing energy, from California (Canadian born:)) !
I saw my grandads house in this video 😂
*Fibrodysplaxia ossifans progressiva* 🤣
How can you do a short on a genetic disease as rare as Stone Mans disease and manage to get the name wrong? 🤦🏻♂️
FibroDYSPLASIA ossifICANS progressiva.
Show some respect.
Awe! I think y’all would probably be the closest twins! I feel bad... if I had this condition, I think I would have all my into bones.😢 I’m sorry god picked these twins
hopefully they find a cure quick :)
Wow! Amazing story ... We are so lucky to be healthy ,
Never knew this existed, i get panic just thinking about it, im amazed at how well they seem to take it.
That hair color is really hard to carry. They carry it very well.
When Mike curled Zoey’s hair..he’s amazing
Maybe this is where the snake headed story came from?
LittleRainGames you mean medusa ?
wish tlc included their socials so we could give them some love
Hello our socials are allthingsbeautifullymade and a_littlebitoflife thank you so much :)
Andddd..... most of us normal people are still single
it's so nice how her sister is holding the milkshake for her! •√• 😚
It makes me so happy they both have partners. Praying for y’all. 😊☺️😊☺️
Is this in ballymena in Northern Ireland
Omg they were at the Biotanic Gardens it's beautiful there it's in Belfast where I live and it's a amazing place to go
What the fuck are these captions? “Lucy - turning to bone”
So her husband is the reason her hair is so freaking pretty!
I was shocked to see Northern Ireland in a program 😳