My son is autistic and fall in the middle of the spectrum, he excels in some areas and struggles in others. When he was younger I was at a doctor appointment for myself and he was stimming by flicking the light switch. I apologized to the doctor and explained he has autism. The doctor said hi to him and he looked at her and smiled. Next thing I know she says to me "oh, he doesn't have autism"... I was in shock that a doctor could be so careless. You're lucky you don't struggle with certain areas like communication, this is a huge weakness for my son, but I can definitely see how your autism affects your social interactions similar to how You described it.
Nicole D'Angelo what?!!! That's the most outrageous comparison I've heard yet 😂😂 I would have slapped the stupid straight out of them which might take a crapload of slaps lol
I also have dyslexia but am a pretty quick reader with decent grammar and people doubt me. But unlike them, I'm aware of the hard work I've gone through to get where I am. I might not look stupid but your ignorance is showing fam. xD
I am also dyslexic and was treated poorly in school because I was so slow.. I am now 46 years old and LOVE to read, but still have issues if I am tired or stressed... You are not stupid... that is horrible..
Hi jaquie!! I don’t want to seem like a rude or bad person so i hope this comment isnt offensive at all... I noticed your thumbnail said “autism awareness month” A lot of autistic people (including me) like to call it “autism ACCEPTANCE month” instead, for several reasons. One of them is because autism speaks supports autism awareness month and its a really bad organization (they are searching for a “cure” for autism and promote abuse to “fix” it). Im not saying you have to change the thumbnail, and im not mad. All im saying is maybe to consider that Thank you!! And i really hope i didnt offend you at all
cripticCrow I left her a comment and used the term “autism acceptance month” instead. Didn’t do it to be rude or anything, just did it because I can’t stand A$ and their bullpucky “awareness.”
I think we should change the title of the month too! Maybe for next year everyone could petition to change it to be Autism Acceptance Month. 😊 I also am not a fan of autism speaks 😒
I come from a mostly autistic family, with more autistic people than non-autistic. It is always funny when people come over and get very confused because in our house, social norms are different/don't exist. We just are who we are. I am not autistic myself, but sometimes I feel like I understand autistic people more than non-autistic people. And I very much relate that diagnoses in adulthood can provide a lot of clarity. They really did for my family. And my sister is my absolute best friend, and I wouldn't change anything about her or her autism. Thanks for posting! I love your videos!
oneeyedhusky same here!!! My brother, mom, and I are all autistic. Both her parents are, and so is her brother, and I’ve got 2 autistic cousins. It’s our normal, and lots of neurotypicals don’t understand that. Our routines are very important, we stim a lot (even in public), and speak very directly. Just part of life!
I have autism, too, and as a girl I was overlooked and wasn’t diagnosed until I was an adult. But my mom always tells me how literal I am and that I say things too bluntly. I just don’t know how to phrase things, and when I say something like, “Why would you do that?” People think I’m judging them but I’m honestly just asking the question. Plus I have SPD also
My sis (15) has autism and I am younger so I have grown up around her and her friends ( also on the spectrum) and people can be so mean to them and it is always nice to see someone like you who is speaking up about it and not keeping it quiet. This is a real disorder and t affects people in so many different ways. This disorder does not effect them in a horrible way that when people hear about it they automatically feel bad for them. ITS NOT LIKE THAT!!People with autism are people like you and me and nothing can ever change that! Btw, I really love your channel!!!
People think only boys have autism because for years the leading research pushed his 'male brain theory' and only now has he switched and says girls can get it too! It's so frustrating, but people like you bringing awareness to girls having the disorder is so important
I have nonverbal learning disability/disorder (similar to autism, but not the same thing). The main ones I get are people think it means I'm nonverbal (we struggle with nonverbal communication), people saying "You're just autistic and don't like the label" There are a lot of overlapping symptoms, but they are NOT the same thing. And "It's not in the DSM so it doesn't exist." It's existence in a book has nothing to do with it's existence in my brain, but if it was in the book, I probably would've been diagnosed earlier and my life would've been a lot easier!
My husband was diagnosed with Aspergers as an adult. He was relieved to finally understand why he always felt different. He is very blunt and cannot read body language. But he is also an excellent communicator, has a Master's in English, and is incredibly empathic. My son from my first marriage also has autism. His is mild to moderate. He is extremely literal, does have social difficulties, and ADHD. He's a smart little boy who can tell you all about his favorite subjects, but he has difficulties in school with the subjects he's not interested in. He is very affectionate with me, for which I am incredibly thankful. We suspect that my younger daughter is on the mild end of the spectrum. She does not seem to understand humor, she is very blunt, and has problems understanding what is socially acceptable. We want to get her assessed this summer. Thank you so much Jaquie for sharing how autism affects you!
I just got diagnosed with autism about three weeks ago. I'm female, black, and was diagnosed by a psychologist at Chenal Therapy. I was soooooo happy to learn I had autism because all I've been through in life not knowing, especially my extremely sensitive hearing and smell, I always thought I was a mistake or a defective who was just stupid. But now I know I'm just autistic, and it is why I have my obsessions and never want to lose them! Autism is not fully who you are, but it's a PART of who you are. So I never want to lose it. I just want people to understand me (mostly for my sensitive hearing). Even though my mother was at the diagnosis, it's like she STILL doesn't understand that I can't just "get over" the loud noise. Before my sensitive hearing, I still had sensitivities to smell, touch, bright lights, and bits of taste. My hearing is what ruined everything. My ears never should have opened up! Plus I've always struggled with social norms, and now I know why. I like how my autism makes me ME. And it makes me hate myself way less than I always did. (I also have depression and anxiety as well as OCD and SPD) I think if I didn't have autism, I wouldn't have my obsession and strong love for animals, cartoons, and playing instruments. Plus, I'm eextremely ambitious and cannot give up. I'm incapable of giving up what so ever! I'm also logical, detailed (in drawing animals as well. Just look at my avatar. I drew myself as that hyena!), crazy, stubborn, weird, and loyal. Those are some of my good qualities, and I wanna keep them. I may take stuff literally and not understand things like the neurotypical people do, but I just don't give a shit. I get angry and frustrated when they don't listen to me or get frustrated at me when I don't get something. I hate people who get so offended easily over everything because I don't know what's offensive and what's not. I also hate people who call me weak just for being unable to make eye contact or call me retarded just for being weird and being goofy. I never want to lose my autism! It's into an illness or (maybe not even a disability for people higher on the spectrum); it's a way the brain is developed and the personality is formed. It's one of those good disabilities that you don't want to get rid of.
I’m so glad this video has been posted! I have been wondering for a long time about whether or not I have Aspergers Syndrome, and since I know that it can be under diagnosed in females, that would make sense why I have never gotten a formal diagnosis. My dad and brother both have it, and since I know Aspergers can be genetically inherited, it might make sense. I have several small quirks that would definitely be explained if I ever get a formal positive diagnosis. I have a bit of trouble making new friends, and I have an extreme passion for science (I love dinosaurs, outer space, prehistoric earth (prehistoric man and animals), genetics, the journey of ancestral migration, and the concept of Mitochondrial DNA tracking), but when I’m asked why I love it, I can never really explain the reason very well. I have a lot of trouble paying attention to a conversation in a crowded environment (background noise is very hard to “filter out”) and I sometimes have a tendency to talk too much, over share, under share, and sort of “disjoint” a conversation.
I also have a spectrum disorder, Aspergers syndrome. I was diagnosed in elementary school and did a lot of therapy to help handle it. As an adult, I find it actually helps me more that it hurts me. Sure, I am very blunt sometimes and I get meltdowns where i lose control via various environmental triggers, but I also have positives. I am very empathetic, very kind and when I want something done, I do not stop until it is done or I cannot continue. My focus can either be fragile or unbreakable, depending on the day. I was also bullied from first to seventh grade because of my autism, they liked to pick and pick until i melted down, then gang up and hit me when i lost control. Sucked, but I am as strong as I as a person because of it.
Thank you for this Jacquie :) Loved this vlog, nice stroll with Harlow, a chat with Janice, fun adventure with friends and discussing awareness and understading about ASD :)
If your friend thinks your autism affects you severely- she hasn’t been around many autistic people. I have a 10 year old autistic daughter who can barely speak and has melt downs with self injurious behavior that can last for hours sometimes. Thank you for speaking out and educating others on your platform. Speaking as the mother of an autistic girl who can not self advocate (YET-bc I’m never giving up on her voice) I appreciate you speaking openly about it. If someone doesn’t believe you they are not educated enough to understand the vastness of the spectrum).
I work with children with Autism. Through this work I have developed an ability to spot signs of Autism and there are lots of people who are undiagnosed who show signs of Autism, like you said it is a spectrum disorder. I like to think that everyone is on this spectrum. This was very insightful and it isn't necessarily immediately obvious that you have Autism because it is mild. There are so many awesome people I have worked with who are Autistic and it is amazing that you are showing what you are capable of because many people think that Autism will stop a person being able to be a functional member of society which isn't necessarily true.
When I was a kid, several doctors/therapists tried "pushing" an autism diagnosis on me.. I guess, because I have a social anxiety disorder, they thought it might be autism... the social anxiety disorder I have is called selective mutism, and I guess the fact that mutism and autism sound alike, they thought it was the same? Maybe?.. but the biggest reason was; they knew how to treat/help someone with autism. They had no information whatsoever on my actual disorder... Obviously, there is absolutely nothing wrong with having autism, but when I tell people I have something called selective mutism, a lot of them just go "oh, so, like autism?" And because they've never heard of mutism they don't really get what it is... 😅 it's just really frustrating when people think that your actual diagnosis is a completely different diagnosis... 😅 Now I don't even try to explain mutism, unless someone rrally cares😂 usually I just go "it's what raj in the big bang theory has" 😂 it seems to be easier to understand that way.
AlienMissy 483 I get it. But the reason is likely because it is common for children /adults on the spectrum to have selective mutism. Not like super super common. But it is one of the ones that happens more often in combo with ASD.
i haven't even watched the video yet. i just wanted to tell you that i've seen a ton of your chronic illness vlogs (started watching you and The Raw Life in January when I was in the hospital) and was immediately drawn to you right away. You seemed to have a familiar air about you. when i saw this video in the recommended today, it all clicked. i connected with you because i understand you. people on the spectrum are able to relate to one another more than they are able to relate with NTs. Just wanted to let you know that sharing this part of your life is amazing and i'm glad you did because it made me feel less alone. :D
“Parts of my autism need guidance.” ❤️ I love that concept. ❤️ I was diagnosed in my 50s, and was so relieved to know why I’ve had social quirks all my life. Someone said that now I could be “fixed.” I’m not broken!!! I’m just wired a little differently 🙃 I see many of my autistic tendencies as positive. But I do need guidance in how to say things in a proper way in social and public settings. I tend to be too honest about things and have been told it’s inappropriate at times. I am finally learning, with the help of counseling, how to use my black & white brain in a very gray world. 🎶💖🎶💖🎶
This is so me. I have friends that totally understand me and my situation. It is hard at times but of course what isnt hard in life. We are only given what is figured we can handle, and we are given what we are able to embrace. We embrace our autism with stride. I was told I was diagnosed late in life with Autism. I agree with you that it is a part of me, and it is something I wouldnt change either. But Autism is a disability. It is is a chronic illness, it is something you deal with day in and day out. It is a disability, it makes you realize you can't take for granted anything. We struggle so much with things that for others come naturally. I finally met my other half and he has the same disabilities I do. Now I also have ADHD with mine, which makes mine trickier. But still I wouldnt change a thing.
My mom wasn't diagnosed with Autism until she was in her 50's! It's also very mild for her. And while her diagnosis came out of nowhere (it was sort of a shock at first) it actually did make a lot of sense to my family once we learned more about autism, and it's certainly strengthened our relationship with her. Glad you have supportive people around you Jaquie! And thanks for raising awareness, as always
This is the first video from your channel I have seen. I have a 3yo girl with ASD and SPD. I can't tell you how amazing this video was for me. You don't often see ASD adults "in the wild" and this video was so reassuring to me that yes, her life will be "normal" although a bit different from her NT peers. So thanks for making this momma cry in the best way possible.
I love how happy Paul was to make you so happy!! You two have some great men! As someone with no support and a failed relationship due to someone being too concerned with me not being able to clean than how I was, you are very lucky and it's great you treasure it. ❤️ many blessings and prayers to all 4 of you. Oops 7 I forgot Harlow, Orion and Yari!
Don't you love when everyone thinks they are a doctor. Totally not worth the time or energy for the arguments. I wish I had a friend like Janiece close by, to help me with social ques. I am thirty, and I am still terrible with it.
The first video I watched of yours was the one you first went public with your autism diagnosis. It was also right after my niece was diagnosed. I sent the video to my sister and it was so comforting and helpful to us. Thank you
AMEN!!! My daughter was diagnosed at age 4 and she's almost 13 now. She also has ADHD. She cant make any friends in school (I had this problem too). While I dont believe she has any bullys the kids cant handle her non stop talking and straying off topic. Teachers love her but what good is that and besides even if a teacher does not like her they shouldn't ever express that. She also can not pick up on body language, sarcasm, and metaphors. She easily gets overwhelmed and has a tantrum. People anso say she does not appear to be autistic. They don't see the hard times. You dont record hard times and I don't take her out on bad days or typically most the time the issues are at home when she's required to do a task.
Thank you for this! I’ve been wondering for the past 11 days about it, but I figured you have an entire month to do a video so I shouldn’t be impatient. I was diagnosed with Asperger’s at 3, but now it’s just ASD. I’m in MENSA, so I never had any of the school issues in the traditional sense. I could read chapter books at 3, and that set off warning bells for my parents and other adults in my life haha. I do have shutdowns and meltdowns, but they’re very rare and only happen if I don’t get myself out of a situation that stresses me out (Black Friday shopping this past year was suuuuuper hard). It’s nice to see somebody else talking about autism acceptance month :)
My 29 year old is on the spectrum. He is high functioning and crazy smart and funny. He misses social cues. He has learned to ask how he is making someone feel by how he is acting. One thing I think people don’t understand about people with autism is that they are very sensitive, and caring, once they get the cues. It totally comes out on your vlogs Jackie. Maybe I notice because I’m a mom of a son that is very similar to you. I am also on the spectrum, as is my dad.
amazing :) also, i like the topic switch from “autism isn't something wrong with me, it's part of who i am“ to “oh no... they don't have the sweater in my size!!“ - talking about actual life problems! :)
I have ADD and I’ve had people tell me “you can’t have ADD you’re a straight A student!” And I actually laughed out loud at that. Before my diagnosis and medication I was failing every class i took. Now that I know what I have I can cope better and do well in school.
I've been watching your channel for a few weeks now and this is probably one of my favourite vlogs. All the situations you describe seem so accurate, and I can really understand what you say about not understanding social norms! I'm not diagnosed with anything, but people have told me I'm autistic quite a few times and after sneaking into some book samples I had to agree (by the way, some authors I'd recommend are Temple Grandin, Tony Atwood and, most of all, Liane Holliday Willey!). The way I'd try to describe this is like if you're living in a foreign country where another language is spoken. You learned the vocabulary, the grammar, all that stuff, and you can express yourself well. However - as soon as it comes to idioms, slang, abbreviations, anything typically local, you're screwed. You translate them word by word, but can't see any sense. You look them up, but your dictionary doesn't help. If you're lucky, you might have some good friends along the way who will help you and explain what things stand for (that's what my online friends did when I struggled with their English, especially informal phrases or idioms that we never learned in class). But it's very hard to find someone to explain the world you live in to you, because everyone will expect you to navigate it without any problems. As you said - you don't look autistic, you might not even act autistic. People will wonder why you act so strangely when in fact they just don't know the language (=social norms, sarcasm, whatever you struggle with) is foreign to you and you had to learn it bit by bit. While everyone else runs around, you have to test the ground all the time and explore the world in baby steps.
Was not aware this was even something you struggled with, as I haven't watched all your diagnosis videos (diagnosis videos give me anxiety >_>). My brother and I are both adopted from entirely different countries but we both struggle with it. He is affected more severely, where it's very obvious within a few minutes of talking with him (if you have the chance to think, the only time he's not talking is when he's asleep), and I struggle socially....you can't tell just by talking to me because I probably won't talk to you, lol. It was initially diagnosed as severe social anxiety, as can be the case with girls. I also struggle with picking up on social ques and other such things, and can be obsessive and -, well, I'm rather obviously OCD. I also severely struggle with changes to anything in my life, as insist on going to the same places for vacation, sitting in the same spot in ANY car, stuff like that. But yeah, I 'don't look stupid', because I'm not. My brain is just a jerk about some things. :') Autism doesn't necessarily mean one struggles with intelligence, as it's quite the opposite for me. I'm very book smart, just not...not people smart. At all.
I love how people with autism view the world! It’s cool to see you learn social cues objectively, and that your best friend helps guide you so naturally.
Having a husband and son with Asperger's Syndrome, when I first started watching your channel, I knew right off that you were on the spectrum. My son thought it was cool that you are also an Aspie too! I wish I could teach everyone that doesn't know about Asperger's or Autism.. there are so many misinformed people out there that are unwilling to learn about the syndrome so they can understand the person better.
I am autistic. Just got diagnosed at 21. I am fine with it, but it's hard when you reveal something that personal about yourself and then the person you told that to shuts you down. Saying "You do not have autism". It hurts. But I am proud of who I am. I also have sensory processing disorder. 💙
My sister was diagnosed when she was 14. She hates new people. She hates loud noises. She doesn't understand social cues. But I wouldn't have it any other way. I love my little sister. Even if she doesn't understand it I will always protect her. I will always be there for her.
Omg Jaq I haven’t been keeping up your videos as much as I used to but seeing you start the vlog out with you out for a walk with Harlow in your wheelchair made me sooo happy for you!!!
I have adhd and I get the “you don’t look like you have it!” comment literally like 90% the time at least, and the “everyone is a little adhd” one a few times as well. There are some things I do like about having it as I think it’s helped me be more creative and make connections between different things faster, but even though I know people are more often than not unintentionally ignorant, I’ve gotten the same set of reactions so many times that now I just frustrated at having to explain the same things over and over about having adhd.
When autism first became popular, it was often thought that boys were affected more than girls and more seriously. It was thought that girls suffered from aspergers more. So I feel it makes sense when ppl say only boys got it because that was initial thoughts.
Hi there I just wanted to say I have a nephew that is autistic he is so sweet and special I wanted to post on your coming out post but comments were disabled how ever I love your story your such a wonderful and amazing woman I’m also disabled and dealing with chronic pain but your life has given me new hope for the future I wish there were more people like you out there the whole world would be a better place if we all thought and always lived life like it’s a gift not a burden thank you so much sweetie I hope you so much I hope you feel better
I know you know this but people don’t say those things to you to be mean, they just genuinely don’t know. Until very recently I also only encountered kids with severe autism, some in my only family, mostly boys. I didn’t know anything about autism often looking completely different in girls and women. And I think it’s because people with autism are kept so secluded from neurotypical society that it’s difficult for people to learn anything about them.
Also, I thought it was good timing that you talked about autism in this vlog, and your immediate reaction about the jacket was very much an autistic reaction. My brother is on the spectrum, and he reacts the same way! Since you couldn't get that specific jacket, you said you would have to go without a jacket (even though there were other jackets in the store). Folks without autism would have the first response of "oh well I'll have to look for a different jacket." Of course, I don't mean any negativity in that statement, just pointing out the different reactions. :)
I know you and Janeice fit together like a unique puzzle, but for as much as she says she's intuitive and helps guide you to "what's appropriate" there have been a lot of times she's made jabs about how literal you are, or telling people you "don't understand" a turn of phrase, or other jokes/insults, and they usually go over your head in the moment, and it hurts me to watch. Having ASD, I can witness these interactions in others more than I can in my own life, so when I see it here, I feel it as if someone was doing those things to me. She's also blunt and makes jokes about you and you don't notice it...which doesn't feel like what a good friend would do. But maybe I'm wrong. But I thought when friends make jabs at one another they're supposed to both be in on it and laughing together -- not one person laughing at your expense or making a joke to everyone else about you knowing that you won't get it. That sounds like a free pass to be mean just bc we won't know. But, maybe I'm wrong. Wouldn't be the first time. Mostly it just hurts others with ASD to see the friends of someone treat them like lots of people treat us.
I love the friendship you have with Paul, too. (And he really is a lot like Judd!) I don’t think we’ve gotten to see that much. It’s clear you’ve got a lot of love and support around you. {:
So many people go undiagnosed! but I’m glad you found out about it. Like the saying goes, it’s better late than never. Does Janice have some type of speech impediment by the way? I noticed she has trouble articulating her thoughts sometimes, so I’m just curious.
There was a vlog I think it was with judd's family I noticed the autism because as you say they don't usually come out in videos. I forgot what exactly but you had difficulty telling someones reaction to something and Judd helped you understand. That was the only moment. That being said your still inspiring as a person and we as society at large should learn to love each other despite our differences.
The only thing I can think of that is an immediately observable symptom of autism in a lot of people is a lack of facial movement when speaking. I notice that a lot in your vlogs, but I also struggle with moving my face when I talk and I'm TERRIBLE at taking pictures because unless I'm laughing reflexively I physically can't make my face move the way I want.
I'm color blind, weirdly most things you've said are the same, except the added "prove it" and "what color is this" and the shock people experience when I tell them I have trained myself to switch from red to green and from green to red.
I see your autistic traits in the vlog but this maybe because my 10 year old son is also autistic. He is very high functioning and I wouldn’t change him for the world, his autism is part of who he is and he brings so much joy. He takes helping to look after me very seriously, we call him my ‘service son’ he is so sweet natured ‘counter balance mummy?’ And a benefit for him like you is that if somebody is being mean it just sails right over his head.
I'm not diagnosed with Autism, But have alot of learning disabilities and cognitive and social problems. And I agree with you, just because your an adult doesn't mean you don't have problems anymore. Someone said that to me once and I was like uh excuse me? No. I hope you have another great night! Continued prayers!
I remember they told me i was autistic at a young age and i was so happy i cried because for so long they told us nothing was wrong and that i was just a bad kid but you have no idea what it was like when i didnt have this channel to turn to when i was sad now i have a safe haven where i can talk about it... i have high functioning autism so i can do everything like a normal person but i see things differently than others if that makes sense sorry im rambling now i hope you have a wonderful day Jaquie
i'm autistic too, i've gotten all 5 of those things way too many times 😩 there's lots of little things i've noticed in your vlogs in the 13 months i've been subscribed to you that i notice in most other autistic people only, so i especially don't get the "you're not autistic" or "you don't seem autistic to me" one lol
I was so happy when Paul found that hoodie for you! I know how irritating it can be when you set your mind on something and it feels like it's not going to work out. Especially since you took the time to love your original jacket
I have autism, very similar to yours, and I get the 5th thing so often! People have this idea in their head of what autism should look like; they don't understand that it is a spectrum disorder that does affect everyone differently, even drastically different. It does get annoying sometimes, but I have learned to ignore their generalizations and move on.
I get: "You're too old to be autistic. Only kids have it." By the time Aspergers Syndrome was recognized and included in the DSM, I was already well into middle age. I'm a Senior Citizen now and it's frustrating. I still struggle.
It amazes me how close minded people are when it comes to developmental disorders. They are in the Brain, nobody can see them. Nobody is going to Look like they have autism or dyslexia or adhd etc. They also never get the whole spectrum of symptoms and that because of how complex brains Are, nobody is going to be 100% the same in how the show symptoms. I've had somebody tell me I Can't have ADHD because I'm not hyperactive, than go on a rant about over medicating kids. Even though I was also diagnosed as an adult. *eyeroll here* I'm glad you got your diagnosis and it's helped you understand yourself and your relationship with others! Hopefully people keep learning about autism and understanding it better.
I know it has nothing to do with the video, but its kind of adorable that Jaquie has her port on the right and Jannice*(?) has hers on the left. Which, I had my port on the left when I was younger. Or vice versa.
Hi Jacqui. I'm Autistic too, diagnosed in adulthood (and have multiple rare and chronic diseases). I know you're a keen youtuber and into advocacy, so if you haven't yet checked out Amethyst Schaber's youtubue channel (with her Ask an Autistic series), I highly recommend it.
I got diagnosed almost a year ago and it made sense to me and people in my family and friends. Thanks for making this video! You're awesome! (Harlow is so cute!)
I have a question about your GP! I remember in one of your older videos or instagram posts you said you were diagnosed with decreased gastric accommodation? Do you still have that? Just wondering for more information on it and to see how it affects you! Docs are thinking I may have it
I have autism also and I'm very blunt and tend to say things that most people won't. I'll try again to tell you I'm offended that you deleted my posts because of my autism and the way I spoke up and explain things.
I'm so lucky I was diagnosed with aspergers in the 2nd grade. I was suffering in school because of day dreaming and spacing out, so my parents got me tested for ADHD and they also found I had aspergers as well. I'm kinda like you that it is very mild and I just need help with some interactations. It's great watching someone that is similar to me!
just wanted to pick up on a few things mentioned, as a teacher who did my specialist research study on the inclusion of children with disabilities in mainstream education :- Autism is chronically underdiagnosed in girls/women. Although the numbers are coming up the numbers are well below boys. Part of that is this misconception that only boys can be autistic (because they they hear about autistic children who are boys!) but a huge part is somehing called social masking. Girls are more likely to laugh at a joke that they don't understand or tailor their behaviour in social situations. Basically they don't kow why thy are expected to do it but they know it's what is expected of them socially and therefore they will do it. However just because they are doing this behaviour doesn't mean they are no longer autistic it just means they are masking their autistic 'traits' in public. When they get home they are likely to have a meltdown from the stress of trying to suppress their natural behaviours - why should someone with autism have to change who they are so fit in with society, perhaps society should simply change how they view a person with autism.
There is something similar with auditory processing disorders as well called "bluffing." Basically you dIdn't process what was said, but you know the social cues of when to laugh or say uh huh, etc., and it appears as though you are listening, but if asked details you would have no clue what the joke or conversation was about. It seems very similar to the autism social masking that girls do.
I’ve been diagnosed with autism for a majority of my life. My parents never told me. Until a few months ago that is. And I feel the exact same way about it as you do.
I truly feel people get Down's Syndrome mixed up with Autism. And sadly that is due to simply not taking the time to be informed (reading). And furthermore, many do not realize it is a spectrum. It is not a case of either you have it or you do not have it. It is a deep ocean of information. If you are not that well informed on the topic, be honest and say, "Oh, I do not know that much about it, thank you for the information!" Thanks for the VLOG girl!! If you can, get out for another stroll today!!
cracked up when you said you go into other peoples frig's and stuff. Do you think anything about someone doing that in your home now that you are aware? You are the best!
Oh my gosh I literally started watching this video and seriously Jaquie you look so gorgeous! Of course you are a beautiful person, but you just shined today (yesterday?) haha! :) Love you and all you do!
So yay! I love the autistic positivity. But something you really should mention is that theres a lot of bad concepts with “awareness” and should instead be acceptance. Along with that, the majority of the autistic community prefer to be called autistic people(identity first) versus person with autism(person first) because, your same preference, being autistic is part of who they are. If you apply person first to yourself, go ahead, but use identity first with the general community.
I went to my therapist with a concern about me possibly having high functioning autism and she told me that she wasn't even going to think about that being a possibility because I'm biologically female
I have high functioning autism. I was diagnosed at 16.The way that it effects me is that I can’t live alone because I need someone there if I need to go to the hospital or urgent car because I don’t drive. Other than that I can do pretty much allot of everything myself. Just like you I love to cook and bake.
So I was watching some of your old videos and I have noticed that you hair (which still looks amazing) has gotten a lot thinner. Is this due to your gp causing you to not get enough nutrients? I’m not trying to be mean I just noticed.
Do people ever ask you if “being sick is your obsession”? That would crack me up if they do. My sister has asburgers syndrome. I know what to look for so I wasn’t surprised when you said you were autistic. But it is what it is, being open about it will make it easier life.
I'm autistic and I just tell the truth whatever that is. it's come at a bad things at times but I see it as a positive because if someone asks me a question they will get the truth don't ask me if you don't want it.
Yeah, as a person on the spectrum, bluntness is a major problem. I've lost friends before because of it. Understanding sarcasm can be hard sometimes too for me.
I have Asperger's Syndrome (I don't think it's classified as that anymore, but that's what it was called when I was diagnosed) and I was diagnosed when I was in 4th grade. Since then, I've been on medication and I'm weening off it now. I don't think it really hinders my life in any way, and it's just a part of me that I've learned accept.
I also have aspergers, never medicated but I went through a lot of therapy as a kid to help cope with it. As an adult, I still get some issues with it, but i view it as a blessing. There are so many things I see differently than "normal" people that it helps. Everyone under the spectrum is different, though. Also aspergers still falls under Autism as part of the term ASD (autism spectrum disorder).
How do you manage to pay for all of your doctor, specialist visits and hospital visits. Insurance pays for some, yes, but I doubt that it pays for all?? I mean you might pay small co-pays but doesn't it add up??
I sometimes do think I am either autistic or something similar because even if I made it through school I was never into social nor ever had much friends nor ever felt comfortable around people but I had to make it till the end and be done. I suspect there is some attention/learning issue because now that I know more about things it explains why I always were doing like million things at the same time but in the end some other things I paid enough attention to memorize which weren't the ones I needed to memorize. I don't think I can do school anymore because I won't be able to hold my attention and suffer through socializing which has been made today's education base (at least where I live)
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My son is autistic and fall in the middle of the spectrum, he excels in some areas and struggles in others. When he was younger I was at a doctor appointment for myself and he was stimming by flicking the light switch. I apologized to the doctor and explained he has autism. The doctor said hi to him and he looked at her and smiled. Next thing I know she says to me "oh, he doesn't have autism"... I was in shock that a doctor could be so careless. You're lucky you don't struggle with certain areas like communication, this is a huge weakness for my son, but I can definitely see how your autism affects your social interactions similar to how You described it.
That is very careless, I am sorry you both had to deal with that!
I've heard all of these and more 🙄. My personal fave was "Oh, I'm gluten free, so I totally get it!"
Nicole D'Angelo what?!!! That's the most outrageous comparison I've heard yet 😂😂 I would have slapped the stupid straight out of them which might take a crapload of slaps lol
I'm Dyslexic so I get a lot of 'You don't look Dyslexic' Or sometimes even 'But You don't look stupid'. LOL
Loving Life Fam aww well who ever says that you don’t listen to them there wrong I have frends that have it so you not the only one
Loving Life Fam I am also Dyslexic and have ADD too.
I get that a lot... Or when i read, people say I don't sound dyslexic.. what they don't know is that i practice reading almost every day...
I also have dyslexia but am a pretty quick reader with decent grammar and people doubt me. But unlike them, I'm aware of the hard work I've gone through to get where I am. I might not look stupid but your ignorance is showing fam. xD
I am also dyslexic and was treated poorly in school because I was so slow.. I am now 46 years old and LOVE to read, but still have issues if I am tired or stressed... You are not stupid... that is horrible..
Hi jaquie!! I don’t want to seem like a rude or bad person so i hope this comment isnt offensive at all...
I noticed your thumbnail said “autism awareness month”
A lot of autistic people (including me) like to call it “autism ACCEPTANCE month” instead, for several reasons. One of them is because autism speaks supports autism awareness month and its a really bad organization (they are searching for a “cure” for autism and promote abuse to “fix” it). Im not saying you have to change the thumbnail, and im not mad.
All im saying is maybe to consider that
Thank you!! And i really hope i didnt offend you at all
cripticCrow I left her a comment and used the term “autism acceptance month” instead. Didn’t do it to be rude or anything, just did it because I can’t stand A$ and their bullpucky “awareness.”
It’s just her opinion
I think we should change the title of the month too! Maybe for next year everyone could petition to change it to be Autism Acceptance Month. 😊
I also am not a fan of autism speaks 😒
I come from a mostly autistic family, with more autistic people than non-autistic. It is always funny when people come over and get very confused because in our house, social norms are different/don't exist. We just are who we are. I am not autistic myself, but sometimes I feel like I understand autistic people more than non-autistic people. And I very much relate that diagnoses in adulthood can provide a lot of clarity. They really did for my family. And my sister is my absolute best friend, and I wouldn't change anything about her or her autism. Thanks for posting! I love your videos!
oneeyedhusky same here!!! My brother, mom, and I are all autistic. Both her parents are, and so is her brother, and I’ve got 2 autistic cousins. It’s our normal, and lots of neurotypicals don’t understand that. Our routines are very important, we stim a lot (even in public), and speak very directly. Just part of life!
I have autism, too, and as a girl I was overlooked and wasn’t diagnosed until I was an adult. But my mom always tells me how literal I am and that I say things too bluntly. I just don’t know how to phrase things, and when I say something like, “Why would you do that?” People think I’m judging them but I’m honestly just asking the question. Plus I have SPD also
Krista2882 aww feel for you
I'm autistic myself and hearing things like that just makes me laugh at times
Cajsa Mörk Same I have Austen to
Same
same I have autism
Doris Flowerhome I have subbed to your channel
Why do some people disrespect us like that, they should accept us for who we are
My sis (15) has autism and I am younger so I have grown up around her and her friends ( also on the spectrum) and people can be so mean to them and it is always nice to see someone like you who is speaking up about it and not keeping it quiet. This is a real disorder and t affects people in so many different ways. This disorder does not effect them in a horrible way that when people hear about it they automatically feel bad for them. ITS NOT LIKE THAT!!People with autism are people like you and me and nothing can ever change that! Btw, I really love your channel!!!
People think only boys have autism because for years the leading research pushed his 'male brain theory' and only now has he switched and says girls can get it too! It's so frustrating, but people like you bringing awareness to girls having the disorder is so important
I never knew that (thanks for the info!) but figured it had to do with faulty research or misconceptions. Trying to break the stigmas!
I have nonverbal learning disability/disorder (similar to autism, but not the same thing). The main ones I get are people think it means I'm nonverbal (we struggle with nonverbal communication), people saying "You're just autistic and don't like the label" There are a lot of overlapping symptoms, but they are NOT the same thing. And "It's not in the DSM so it doesn't exist." It's existence in a book has nothing to do with it's existence in my brain, but if it was in the book, I probably would've been diagnosed earlier and my life would've been a lot easier!
My husband was diagnosed with Aspergers as an adult. He was relieved to finally understand why he always felt different. He is very blunt and cannot read body language. But he is also an excellent communicator, has a Master's in English, and is incredibly empathic.
My son from my first marriage also has autism. His is mild to moderate. He is extremely literal, does have social difficulties, and ADHD. He's a smart little boy who can tell you all about his favorite subjects, but he has difficulties in school with the subjects he's not interested in. He is very affectionate with me, for which I am incredibly thankful.
We suspect that my younger daughter is on the mild end of the spectrum. She does not seem to understand humor, she is very blunt, and has problems understanding what is socially acceptable. We want to get her assessed this summer.
Thank you so much Jaquie for sharing how autism affects you!
I just got diagnosed with autism about three weeks ago. I'm female, black, and was diagnosed by a psychologist at Chenal Therapy. I was soooooo happy to learn I had autism because all I've been through in life not knowing, especially my extremely sensitive hearing and smell, I always thought I was a mistake or a defective who was just stupid. But now I know I'm just autistic, and it is why I have my obsessions and never want to lose them! Autism is not fully who you are, but it's a PART of who you are. So I never want to lose it. I just want people to understand me (mostly for my sensitive hearing). Even though my mother was at the diagnosis, it's like she STILL doesn't understand that I can't just "get over" the loud noise. Before my sensitive hearing, I still had sensitivities to smell, touch, bright lights, and bits of taste. My hearing is what ruined everything. My ears never should have opened up! Plus I've always struggled with social norms, and now I know why. I like how my autism makes me ME. And it makes me hate myself way less than I always did. (I also have depression and anxiety as well as OCD and SPD) I think if I didn't have autism, I wouldn't have my obsession and strong love for animals, cartoons, and playing instruments. Plus, I'm eextremely ambitious and cannot give up. I'm incapable of giving up what so ever! I'm also logical, detailed (in drawing animals as well. Just look at my avatar. I drew myself as that hyena!), crazy, stubborn, weird, and loyal. Those are some of my good qualities, and I wanna keep them. I may take stuff literally and not understand things like the neurotypical people do, but I just don't give a shit. I get angry and frustrated when they don't listen to me or get frustrated at me when I don't get something. I hate people who get so offended easily over everything because I don't know what's offensive and what's not. I also hate people who call me weak just for being unable to make eye contact or call me retarded just for being weird and being goofy. I never want to lose my autism! It's into an illness or (maybe not even a disability for people higher on the spectrum); it's a way the brain is developed and the personality is formed. It's one of those good disabilities that you don't want to get rid of.
I’m so glad this video has been posted! I have been wondering for a long time about whether or not I have Aspergers Syndrome, and since I know that it can be under diagnosed in females, that would make sense why I have never gotten a formal diagnosis. My dad and brother both have it, and since I know Aspergers can be genetically inherited, it might make sense. I have several small quirks that would definitely be explained if I ever get a formal positive diagnosis. I have a bit of trouble making new friends, and I have an extreme passion for science (I love dinosaurs, outer space, prehistoric earth (prehistoric man and animals), genetics, the journey of ancestral migration, and the concept of Mitochondrial DNA tracking), but when I’m asked why I love it, I can never really explain the reason very well. I have a lot of trouble paying attention to a conversation in a crowded environment (background noise is very hard to “filter out”) and I sometimes have a tendency to talk too much, over share, under share, and sort of “disjoint” a conversation.
Since learning that my friend was autistic I have learned not to judge, but to understand if that makes sense.
I have atisam that really means something thanks
I also have a spectrum disorder, Aspergers syndrome. I was diagnosed in elementary school and did a lot of therapy to help handle it. As an adult, I find it actually helps me more that it hurts me. Sure, I am very blunt sometimes and I get meltdowns where i lose control via various environmental triggers, but I also have positives. I am very empathetic, very kind and when I want something done, I do not stop until it is done or I cannot continue. My focus can either be fragile or unbreakable, depending on the day. I was also bullied from first to seventh grade because of my autism, they liked to pick and pick until i melted down, then gang up and hit me when i lost control. Sucked, but I am as strong as I as a person because of it.
Thank you for this Jacquie :) Loved this vlog, nice stroll with Harlow, a chat with Janice, fun adventure with friends and discussing awareness and understading about ASD :)
Not gonna lie, I smiled really big at the beginning. You look so good and happy 💖💖
If your friend thinks your autism affects you severely- she hasn’t been around many autistic people. I have a 10 year old autistic daughter who can barely speak and has melt downs with self injurious behavior that can last for hours sometimes.
Thank you for speaking out and educating others on your platform. Speaking as the mother of an autistic girl who can not self advocate (YET-bc I’m never giving up on her voice) I appreciate you speaking openly about it. If someone doesn’t believe you they are not educated enough to understand the vastness of the spectrum).
I work with children with Autism. Through this work I have developed an ability to spot signs of Autism and there are lots of people who are undiagnosed who show signs of Autism, like you said it is a spectrum disorder. I like to think that everyone is on this spectrum. This was very insightful and it isn't necessarily immediately obvious that you have Autism because it is mild. There are so many awesome people I have worked with who are Autistic and it is amazing that you are showing what you are capable of because many people think that Autism will stop a person being able to be a functional member of society which isn't necessarily true.
When I was a kid, several doctors/therapists tried "pushing" an autism diagnosis on me.. I guess, because I have a social anxiety disorder, they thought it might be autism... the social anxiety disorder I have is called selective mutism, and I guess the fact that mutism and autism sound alike, they thought it was the same? Maybe?.. but the biggest reason was; they knew how to treat/help someone with autism. They had no information whatsoever on my actual disorder...
Obviously, there is absolutely nothing wrong with having autism, but when I tell people I have something called selective mutism, a lot of them just go "oh, so, like autism?" And because they've never heard of mutism they don't really get what it is... 😅 it's just really frustrating when people think that your actual diagnosis is a completely different diagnosis... 😅
Now I don't even try to explain mutism, unless someone rrally cares😂 usually I just go "it's what raj in the big bang theory has" 😂 it seems to be easier to understand that way.
AlienMissy 483 I get it. But the reason is likely because it is common for children /adults on the spectrum to have selective mutism. Not like super super common. But it is one of the ones that happens more often in combo with ASD.
i haven't even watched the video yet. i just wanted to tell you that i've seen a ton of your chronic illness vlogs (started watching you and The Raw Life in January when I was in the hospital) and was immediately drawn to you right away. You seemed to have a familiar air about you. when i saw this video in the recommended today, it all clicked. i connected with you because i understand you. people on the spectrum are able to relate to one another more than they are able to relate with NTs. Just wanted to let you know that sharing this part of your life is amazing and i'm glad you did because it made me feel less alone. :D
“Parts of my autism need guidance.” ❤️ I love that concept. ❤️
I was diagnosed in my 50s, and was so relieved to know why I’ve had social quirks all my life. Someone said that now I could be “fixed.” I’m not broken!!! I’m just wired a little differently 🙃 I see many of my autistic tendencies as positive. But I do need guidance in how to say things in a proper way in social and public settings. I tend to be too honest about things and have been told it’s inappropriate at times. I am finally learning, with the help of counseling, how to use my black & white brain in a very gray world. 🎶💖🎶💖🎶
This is so me. I have friends that totally understand me and my situation. It is hard at times but of course what isnt hard in life. We are only given what is figured we can handle, and we are given what we are able to embrace. We embrace our autism with stride. I was told I was diagnosed late in life with Autism. I agree with you that it is a part of me, and it is something I wouldnt change either. But Autism is a disability. It is is a chronic illness, it is something you deal with day in and day out. It is a disability, it makes you realize you can't take for granted anything. We struggle so much with things that for others come naturally. I finally met my other half and he has the same disabilities I do. Now I also have ADHD with mine, which makes mine trickier. But still I wouldnt change a thing.
My mom wasn't diagnosed with Autism until she was in her 50's! It's also very mild for her. And while her diagnosis came out of nowhere (it was sort of a shock at first) it actually did make a lot of sense to my family once we learned more about autism, and it's certainly strengthened our relationship with her. Glad you have supportive people around you Jaquie! And thanks for raising awareness, as always
This is the first video from your channel I have seen. I have a 3yo girl with ASD and SPD. I can't tell you how amazing this video was for me. You don't often see ASD adults "in the wild" and this video was so reassuring to me that yes, her life will be "normal" although a bit different from her NT peers. So thanks for making this momma cry in the best way possible.
I love how happy Paul was to make you so happy!! You two have some great men! As someone with no support and a failed relationship due to someone being too concerned with me not being able to clean than how I was, you are very lucky and it's great you treasure it. ❤️ many blessings and prayers to all 4 of you. Oops 7 I forgot Harlow, Orion and Yari!
Don't you love when everyone thinks they are a doctor. Totally not worth the time or energy for the arguments. I wish I had a friend like Janiece close by, to help me with social ques. I am thirty, and I am still terrible with it.
The first video I watched of yours was the one you first went public with your autism diagnosis. It was also right after my niece was diagnosed. I sent the video to my sister and it was so comforting and helpful to us. Thank you
AMEN!!! My daughter was diagnosed at age 4 and she's almost 13 now. She also has ADHD. She cant make any friends in school (I had this problem too). While I dont believe she has any bullys the kids cant handle her non stop talking and straying off topic. Teachers love her but what good is that and besides even if a teacher does not like her they shouldn't ever express that. She also can not pick up on body language, sarcasm, and metaphors. She easily gets overwhelmed and has a tantrum. People anso say she does not appear to be autistic. They don't see the hard times. You dont record hard times and I don't take her out on bad days or typically most the time the issues are at home when she's required to do a task.
Thank you for this! I’ve been wondering for the past 11 days about it, but I figured you have an entire month to do a video so I shouldn’t be impatient. I was diagnosed with Asperger’s at 3, but now it’s just ASD. I’m in MENSA, so I never had any of the school issues in the traditional sense. I could read chapter books at 3, and that set off warning bells for my parents and other adults in my life haha. I do have shutdowns and meltdowns, but they’re very rare and only happen if I don’t get myself out of a situation that stresses me out (Black Friday shopping this past year was suuuuuper hard). It’s nice to see somebody else talking about autism acceptance month :)
My 29 year old is on the spectrum. He is high functioning and crazy smart and funny. He misses social cues. He has learned to ask how he is making someone feel by how he is acting. One thing I think people don’t understand about people with autism is that they are very sensitive, and caring, once they get the cues. It totally comes out on your vlogs Jackie. Maybe I notice because I’m a mom of a son that is very similar to you. I am also on the spectrum, as is my dad.
amazing :) also, i like the topic switch from “autism isn't something wrong with me, it's part of who i am“ to “oh no... they don't have the sweater in my size!!“ - talking about actual life problems! :)
I have ADD and I’ve had people tell me “you can’t have ADD you’re a straight A student!” And I actually laughed out loud at that. Before my diagnosis and medication I was failing every class i took. Now that I know what I have I can cope better and do well in school.
I've been watching your channel for a few weeks now and this is probably one of my favourite vlogs. All the situations you describe seem so accurate, and I can really understand what you say about not understanding social norms! I'm not diagnosed with anything, but people have told me I'm autistic quite a few times and after sneaking into some book samples I had to agree (by the way, some authors I'd recommend are Temple Grandin, Tony Atwood and, most of all, Liane Holliday Willey!).
The way I'd try to describe this is like if you're living in a foreign country where another language is spoken. You learned the vocabulary, the grammar, all that stuff, and you can express yourself well. However - as soon as it comes to idioms, slang, abbreviations, anything typically local, you're screwed. You translate them word by word, but can't see any sense. You look them up, but your dictionary doesn't help.
If you're lucky, you might have some good friends along the way who will help you and explain what things stand for (that's what my online friends did when I struggled with their English, especially informal phrases or idioms that we never learned in class). But it's very hard to find someone to explain the world you live in to you, because everyone will expect you to navigate it without any problems. As you said - you don't look autistic, you might not even act autistic. People will wonder why you act so strangely when in fact they just don't know the language (=social norms, sarcasm, whatever you struggle with) is foreign to you and you had to learn it bit by bit. While everyone else runs around, you have to test the ground all the time and explore the world in baby steps.
Was not aware this was even something you struggled with, as I haven't watched all your diagnosis videos (diagnosis videos give me anxiety >_>). My brother and I are both adopted from entirely different countries but we both struggle with it. He is affected more severely, where it's very obvious within a few minutes of talking with him (if you have the chance to think, the only time he's not talking is when he's asleep), and I struggle socially....you can't tell just by talking to me because I probably won't talk to you, lol. It was initially diagnosed as severe social anxiety, as can be the case with girls. I also struggle with picking up on social ques and other such things, and can be obsessive and -, well, I'm rather obviously OCD. I also severely struggle with changes to anything in my life, as insist on going to the same places for vacation, sitting in the same spot in ANY car, stuff like that. But yeah, I 'don't look stupid', because I'm not. My brain is just a jerk about some things. :') Autism doesn't necessarily mean one struggles with intelligence, as it's quite the opposite for me. I'm very book smart, just not...not people smart. At all.
I love how people with autism view the world! It’s cool to see you learn social cues objectively, and that your best friend helps guide you so naturally.
We will never amount to much in life.
That one always made me mad.
That is just deplorable to say to anyone! Totally incorrect and based in ignorance.
I think Chronic illness warriors born with certain conditions get that. It just looks different, that's all. YOU are worthy please remember that.
Katelyn Lewis who ever stayed that is not troo I have atisam and I can do meany things
Having a husband and son with Asperger's Syndrome, when I first started watching your channel, I knew right off that you were on the spectrum. My son thought it was cool that you are also an Aspie too! I wish I could teach everyone that doesn't know about Asperger's or Autism.. there are so many misinformed people out there that are unwilling to learn about the syndrome so they can understand the person better.
I am autistic. Just got diagnosed at 21. I am fine with it, but it's hard when you reveal something that personal about yourself and then the person you told that to shuts you down. Saying "You do not have autism". It hurts. But I am proud of who I am. I also have sensory processing disorder. 💙
My sister was diagnosed when she was 14. She hates new people. She hates loud noises. She doesn't understand social cues. But I wouldn't have it any other way. I love my little sister. Even if she doesn't understand it I will always protect her. I will always be there for her.
Omg Jaq I haven’t been keeping up your videos as much as I used to but seeing you start the vlog out with you out for a walk with Harlow in your wheelchair made me sooo happy for you!!!
I have adhd and I get the “you don’t look like you have it!” comment literally like 90% the time at least, and the “everyone is a little adhd” one a few times as well. There are some things I do like about having it as I think it’s helped me be more creative and make connections between different things faster, but even though I know people are more often than not unintentionally ignorant, I’ve gotten the same set of reactions so many times that now I just frustrated at having to explain the same things over and over about having adhd.
When autism first became popular, it was often thought that boys were affected more than girls and more seriously. It was thought that girls suffered from aspergers more. So I feel it makes sense when ppl say only boys got it because that was initial thoughts.
Hi there I just wanted to say I have a nephew that is autistic he is so sweet and special I wanted to post on your coming out post but comments were disabled how ever I love your story your such a wonderful and amazing woman I’m also disabled and dealing with chronic pain but your life has given me new hope for the future I wish there were more people like you out there the whole world would be a better place if we all thought and always lived life like it’s a gift not a burden thank you so much sweetie I hope you so much I hope you feel better
I know you know this but people don’t say those things to you to be mean, they just genuinely don’t know. Until very recently I also only encountered kids with severe autism, some in my only family, mostly boys. I didn’t know anything about autism often looking completely different in girls and women. And I think it’s because people with autism are kept so secluded from neurotypical society that it’s difficult for people to learn anything about them.
Also, I thought it was good timing that you talked about autism in this vlog, and your immediate reaction about the jacket was very much an autistic reaction. My brother is on the spectrum, and he reacts the same way! Since you couldn't get that specific jacket, you said you would have to go without a jacket (even though there were other jackets in the store). Folks without autism would have the first response of "oh well I'll have to look for a different jacket." Of course, I don't mean any negativity in that statement, just pointing out the different reactions. :)
I am SUPER SUPER happy that your friendship can go with eithers spouse ! That you 4 have such a AWESOME support base !!!!
I know you and Janeice fit together like a unique puzzle, but for as much as she says she's intuitive and helps guide you to "what's appropriate" there have been a lot of times she's made jabs about how literal you are, or telling people you "don't understand" a turn of phrase, or other jokes/insults, and they usually go over your head in the moment, and it hurts me to watch. Having ASD, I can witness these interactions in others more than I can in my own life, so when I see it here, I feel it as if someone was doing those things to me. She's also blunt and makes jokes about you and you don't notice it...which doesn't feel like what a good friend would do. But maybe I'm wrong. But I thought when friends make jabs at one another they're supposed to both be in on it and laughing together -- not one person laughing at your expense or making a joke to everyone else about you knowing that you won't get it. That sounds like a free pass to be mean just bc we won't know. But, maybe I'm wrong. Wouldn't be the first time. Mostly it just hurts others with ASD to see the friends of someone treat them like lots of people treat us.
Paul (and Judd) are amazing!!!!!!!
Nancy Mandle i
Janiece's new hair looks great. She looks even more beautiful than usual!
I love the friendship you have with Paul, too. (And he really is a lot like Judd!) I don’t think we’ve gotten to see that much. It’s clear you’ve got a lot of love and support around you. {:
So many people go undiagnosed! but I’m glad you found out about it. Like the saying goes, it’s better late than never. Does Janice have some type of speech impediment by the way? I noticed she has trouble articulating her thoughts sometimes, so I’m just curious.
There was a vlog I think it was with judd's family I noticed the autism because as you say they don't usually come out in videos. I forgot what exactly but you had difficulty telling someones reaction to something and Judd helped you understand. That was the only moment. That being said your still inspiring as a person and we as society at large should learn to love each other despite our differences.
The only thing I can think of that is an immediately observable symptom of autism in a lot of people is a lack of facial movement when speaking. I notice that a lot in your vlogs, but I also struggle with moving my face when I talk and I'm TERRIBLE at taking pictures because unless I'm laughing reflexively I physically can't make my face move the way I want.
Always
Unique
Truly
Intelligent
Sometimes
Mysterious
Now read all of those by just the first letter
I'm color blind, weirdly most things you've said are the same, except the added "prove it" and "what color is this" and the shock people experience when I tell them I have trained myself to switch from red to green and from green to red.
I see your autistic traits in the vlog but this maybe because my 10 year old son is also autistic. He is very high functioning and I wouldn’t change him for the world, his autism is part of who he is and he brings so much joy. He takes helping to look after me very seriously, we call him my ‘service son’ he is so sweet natured ‘counter balance mummy?’ And a benefit for him like you is that if somebody is being mean it just sails right over his head.
I'm not diagnosed with Autism, But have alot of learning disabilities and cognitive and social problems. And I agree with you, just because your an adult doesn't mean you don't have problems anymore. Someone said that to me once and I was like uh excuse me? No. I hope you have another great night! Continued prayers!
I remember they told me i was autistic at a young age and i was so happy i cried because for so long they told us nothing was wrong and that i was just a bad kid but you have no idea what it was like when i didnt have this channel to turn to when i was sad now i have a safe haven where i can talk about it... i have high functioning autism so i can do everything like a normal person but i see things differently than others if that makes sense sorry im rambling now i hope you have a wonderful day Jaquie
i'm autistic too, i've gotten all 5 of those things way too many times 😩 there's lots of little things i've noticed in your vlogs in the 13 months i've been subscribed to you that i notice in most other autistic people only, so i especially don't get the "you're not autistic" or "you don't seem autistic to me" one lol
I was so happy when Paul found that hoodie for you! I know how irritating it can be when you set your mind on something and it feels like it's not going to work out. Especially since you took the time to love your original jacket
I have autism, very similar to yours, and I get the 5th thing so often! People have this idea in their head of what autism should look like; they don't understand that it is a spectrum disorder that does affect everyone differently, even drastically different. It does get annoying sometimes, but I have learned to ignore their generalizations and move on.
I get: "You're too old to be autistic. Only kids have it." By the time Aspergers Syndrome was recognized and included in the DSM, I was already well into middle age. I'm a Senior Citizen now and it's frustrating. I still struggle.
It amazes me how close minded people are when it comes to developmental disorders. They are in the Brain, nobody can see them. Nobody is going to Look like they have autism or dyslexia or adhd etc. They also never get the whole spectrum of symptoms and that because of how complex brains Are, nobody is going to be 100% the same in how the show symptoms. I've had somebody tell me I Can't have ADHD because I'm not hyperactive, than go on a rant about over medicating kids. Even though I was also diagnosed as an adult. *eyeroll here*
I'm glad you got your diagnosis and it's helped you understand yourself and your relationship with others! Hopefully people keep learning about autism and understanding it better.
I like that when people are staring at my SD or whatever in public I don’t notice very much were it bothers other people with me
I know it has nothing to do with the video, but its kind of adorable that Jaquie has her port on the right and Jannice*(?) has hers on the left. Which, I had my port on the left when I was younger. Or vice versa.
Hi Jacqui. I'm Autistic too, diagnosed in adulthood (and have multiple rare and chronic diseases). I know you're a keen youtuber and into advocacy, so if you haven't yet checked out Amethyst Schaber's youtubue channel (with her Ask an Autistic series), I highly recommend it.
I got diagnosed almost a year ago and it made sense to me and people in my family and friends. Thanks for making this video! You're awesome! (Harlow is so cute!)
I am so glad you have such great people in your life!
I have a question about your GP! I remember in one of your older videos or instagram posts you said you were diagnosed with decreased gastric accommodation? Do you still have that? Just wondering for more information on it and to see how it affects you! Docs are thinking I may have it
I do notice Autism a bit, especially when talking or comparing Harlow to dogs who are pets. I work with children who have behavioral problems.
Eevee Love realy well i go to a spesh need school with pepule in with that
Eevee Love I just subbed to your channel
Yay Paul! What a hero!
ENJOY THE TRIP!! I am anxious to find out where the secret destination is!
I have autism also and I'm very blunt and tend to say things that most people won't.
I'll try again to tell you I'm offended that you deleted my posts because of my autism and the way I spoke up and explain things.
I'm so lucky I was diagnosed with aspergers in the 2nd grade. I was suffering in school because of day dreaming and spacing out, so my parents got me tested for ADHD and they also found I had aspergers as well. I'm kinda like you that it is very mild and I just need help with some interactations. It's great watching someone that is similar to me!
just wanted to pick up on a few things mentioned, as a teacher who did my specialist research study on the inclusion of children with disabilities in mainstream education :- Autism is chronically underdiagnosed in girls/women. Although the numbers are coming up the numbers are well below boys. Part of that is this misconception that only boys can be autistic (because they they hear about autistic children who are boys!) but a huge part is somehing called social masking. Girls are more likely to laugh at a joke that they don't understand or tailor their behaviour in social situations. Basically they don't kow why thy are expected to do it but they know it's what is expected of them socially and therefore they will do it. However just because they are doing this behaviour doesn't mean they are no longer autistic it just means they are masking their autistic 'traits' in public. When they get home they are likely to have a meltdown from the stress of trying to suppress their natural behaviours - why should someone with autism have to change who they are so fit in with society, perhaps society should simply change how they view a person with autism.
There is something similar with auditory processing disorders as well called "bluffing." Basically you dIdn't process what was said, but you know the social cues of when to laugh or say uh huh, etc., and it appears as though you are listening, but if asked details you would have no clue what the joke or conversation was about. It seems very similar to the autism social masking that girls do.
I’ve been diagnosed with autism for a majority of my life. My parents never told me. Until a few months ago that is. And I feel the exact same way about it as you do.
I truly feel people get Down's Syndrome mixed up with Autism. And sadly that is due to simply not taking the time to be informed (reading). And furthermore, many do not realize it is a spectrum. It is not a case of either you have it or you do not have it. It is a deep ocean of information. If you are not that well informed on the topic, be honest and say, "Oh, I do not know that much about it, thank you for the information!" Thanks for the VLOG girl!! If you can, get out for another stroll today!!
Thank you. You’ve helped me get more confident in being my own advocate and more comfortable and confident with my chronic illnesses. #SassyJaquie
cracked up when you said you go into other peoples frig's and stuff. Do you think anything about someone doing that in your home now that you are aware? You are the best!
Hi Jaquie, i wanted to say happy safe trip to you, Janice, Paul and Judd. Great video!
Oh my gosh I literally started watching this video and seriously Jaquie you look so gorgeous! Of course you are a beautiful person, but you just shined today (yesterday?) haha! :) Love you and all you do!
So yay! I love the autistic positivity. But something you really should mention is that theres a lot of bad concepts with “awareness” and should instead be acceptance.
Along with that, the majority of the autistic community prefer to be called autistic people(identity first) versus person with autism(person first) because, your same preference, being autistic is part of who they are. If you apply person first to yourself, go ahead, but use identity first with the general community.
I absolutely love Paul's facial expressions lol he is funny.
Paul and Janice are the real life version of Andy and April from Parks and Rec
I went to my therapist with a concern about me possibly having high functioning autism and she told me that she wasn't even going to think about that being a possibility because I'm biologically female
10:05 "Really Paul? You're just like Judd.
-Pretty much, it's why we get along so well."
👌
I have high functioning autism. I was diagnosed at 16.The way that it effects me is that I can’t live alone because I need someone there if I need to go to the hospital or urgent car because I don’t drive. Other than that I can do pretty much allot of everything myself. Just like you I love to cook and bake.
You can always dye the jacket Jaquie so it can be saved and you can have it any colour you want. I'm glad Paul found one for you though. WTG Paul!
So I was watching some of your old videos and I have noticed that you hair (which still looks amazing) has gotten a lot thinner. Is this due to your gp causing you to not get enough nutrients? I’m not trying to be mean I just noticed.
Yes, my hair used to be much thicker. But I lost so much of it when I was malnourished. I think it is slowly gaining fullness again though :)
Chronically Jaquie that’s good hopefully it goes back to it’s original thickness soon :)
Do people ever ask you if “being sick is your obsession”? That would crack me up if they do.
My sister has asburgers syndrome. I know what to look for so I wasn’t surprised when you said you were autistic. But it is what it is, being open about it will make it easier life.
I get "Why do watch adult shows if you have autism? Shouldn't you be watching kids show?" Me- sighs...
hearing what you say I am going to get tested. I am 32 and have questioned it over the past few years if I have autism. Another awesome vlog.
I'm so glad you were able to find another jacket! :)
I'm autistic and I just tell the truth whatever that is. it's come at a bad things at times but I see it as a positive because if someone asks me a question they will get the truth don't ask me if you don't want it.
Al Ward me too!! I’m brutally honest, as the neurotypicals call it lol. Social nuance is hard.
Yeah, as a person on the spectrum, bluntness is a major problem. I've lost friends before because of it. Understanding sarcasm can be hard sometimes too for me.
I have Asperger's Syndrome (I don't think it's classified as that anymore, but that's what it was called when I was diagnosed) and I was diagnosed when I was in 4th grade. Since then, I've been on medication and I'm weening off it now. I don't think it really hinders my life in any way, and it's just a part of me that I've learned accept.
I also have aspergers, never medicated but I went through a lot of therapy as a kid to help cope with it. As an adult, I still get some issues with it, but i view it as a blessing. There are so many things I see differently than "normal" people that it helps. Everyone under the spectrum is different, though. Also aspergers still falls under Autism as part of the term ASD (autism spectrum disorder).
How do you manage to pay for all of your doctor, specialist visits and hospital visits. Insurance pays for some, yes, but I doubt that it pays for all?? I mean you might pay small co-pays but doesn't it add up??
Paul you are a life saver! Woohoo for finding a jacket in your size!
I sometimes do think I am either autistic or something similar because even if I made it through school I was never into social nor ever had much friends nor ever felt comfortable around people but I had to make it till the end and be done. I suspect there is some attention/learning issue because now that I know more about things it explains why I always were doing like million things at the same time but in the end some other things I paid enough attention to memorize which weren't the ones I needed to memorize. I don't think I can do school anymore because I won't be able to hold my attention and suffer through socializing which has been made today's education base (at least where I live)
I'm autistic myself and someone once said "You don't look autistic" and I was like... well it could be because we're normal people?