Видео

I wish you all the best with your surgery. Everything will be perfect and you will be coming back much stronger.

I believe the question you have is, what is the life expectancy after replacing the bicuspid valve and aorta. I have not gotten any straight answer from any doctors, maybe because in every case, every surgery is different, and the result is also very different from patient to patient. But the best answer I got was ' Life expectancy after valve replacement would be close to normal'. What I know from my experience is we need to do what options we have in front of us and hope for the best. Medical technology is changing every day, so there will be more solutions if we can buy the time now. Hope this helps, take care.

I happen to have one Apple watch and one Samsung watch. So, initially, I was wearing both, but later, I settled on an Apple watch. I had AFib events during my hospital stay and wanted to track whether it was coming back. The Apple Watch tracks regularly, which is a bit of assurance, but you cannot trust the watch completely. It also has ECG, heart rate monitoring, walking tracking, and everything, which helps when going for a walk. You need machines to check your blood pressure, oxygen level, and weight every day and track it for a few weeks after surgery. I think that is all.

@@baybongdiary can you tell me the model of the watch? So i may buy it.

@@user-iv1bj2zr7n@user-iv1bj2zr7n I have an Apple Watch Ultra 2 and a Samsung Galaxy Watch 6. I compared their readings, and both are very close to each other. However, the health features are the same in both the Regular Apple Watch and the Ultra, so either one should be okay. What I mainly used is Afib, heart rate, walking and running distance and pace. A few times, I used to run an ECG, but I don't know how to read the data for that. Again, this data cannot be used for medical purposes, but it gives some assurance.

I wish you all the best with your surgery. Have a look at this video, which may give you some information on how to prepare - ruclips.net/video/pbK33XoDrqk/видео.html

Hi Alisha, I’m truly sorry that your two-year-old has to face this issue. I understand how challenging and overwhelming it can be for you as parents. It's important to understand the situation clearly and explore all possibilities, as uncertainty often leads to anxiety. And you cannot live day and night with anxiety. While I’m not an expert, I’d like to give some information that might help you navigate this. About 2% of the population has a bicuspid valve, a congenital condition. Typically, it doesn't cause symptoms until a person is in their 30s or 40s, and some people may never experience any problems their entire lives. Aortic dilation can occur for two main reasons: either the aorta itself has a structural issue, or a leaky valve causes uneven blood flow, which places abnormal pressure on the aortic wall, leading to dilation. You mentioned that your son’s aorta is dilated. Dilation usually develops over a long period, often decades. This raises the question of what the current diameter of the aorta is and how the cardiologist determined that it’s dilated. If the aorta dilates further (beyond 5.5 cm) or if the aortic valve is leaking severely enough to require surgery, given your son’s age, the surgeon might recommend the Ross procedure. This is considered the best option and can allow for a normal life afterward. In the Ross procedure, the surgeon replaces the diseased aortic valve with the patient’s own pulmonary valve, which is then replaced with a donor valve. Now, Let's say the valve is working fine and only the aorta needs to be replaced; then, if they place an artificial tube to replace the aorta, that tube itself will restore the valve geometry, and that should last for a long time, if not forever. I know this might sound overwhelming, but the key is finding a medical center experienced in the Ross procedure. Although we don't hear a lot about this kind of problem, it is very common in the medical world, and help is available. Your son will have a normal and healthy life. I hope this helps. Please let me know if there is anything else I can do to help you. I will be happy to do some research for you when you need it.

@@baybongdiary thank u for all the information that u gave me 🙏I’m really thankful …my husband always motivates that I will make my son the best person …n I really want to do the best for him …even his paediatrician motivates me a lot . I know he will do his best in every field .God is with him n I’m always with him …being a mother I’m worried … When I see motivaters like u n Arnold … I always boost my self that nothing will obstruct my child from being the best person . My god will always protect him 🙏🙏 thank u for such kind words 🙏🙏 I will always be my sons the strongest support n every field

​@@alisharatwad851 Parents play a crucial role in building children's personality, character, and values. If we demonstrate the best example, they will certainly follow it. One of the difficult parts of being a mother is that you will always be worried about your child. My mother still tried me like I am a little boy :). You do your part; everything will be perfect 🙏 I wish all the best for you and your son. Take care.

I'm happy to hear that this video was helpful. I wish you all the best with surgery. Please take care of yourself and take it easy.

I understand your situation; I have been there in the same situation as you only a few months back. Honestly, you really cannot get over it until you do the surgery. Definitely listen to what your doctor is telling you, but based on my knowledge, if an aneurysm goes beyond 5cm, it is better to take care sooner rather than later because the last thing you want is rupture. My diameter was 4.3cm, but I had other problems like severe aortic insufficiency and blockage. If the valve is not calcified, they will try to keep it. But the final decision they will make during the surgery, when they can see it up close, but you can give your wishlist or choice. You also need to decide which valve you like to have, the biological or mechanical valve, and both have some advantages and disadvantages. This is what I understand: ruclips.net/video/M7F25K-DTQo/видео.html Repair is better because lifestyle won't change much, but they cannot tell how long it is going to last. They only keep the original valve if they feel it is going to last longer than the artificial valve. You will be anxious for sure because this is a serious surgery, but nowadays, this surgery is safe and usually comes with excellent outcomes. Two, three months after the surgery you should be able to do almost everything, close to normal. For now thell yourself, this surgery is good for you and it will give you a healthy and long life. Try to focus on things you like to do, I was keeping myself very very busy. Take care, all will be okay.

​​@@baybongdiaryThank you. How long after did you go to work? I'm an English teacher paid per hour so i have no days off and i will just lose this job if i don't go for like more than 2-3 weeks.

@@user-iv1bj2zr7n I started working after three weeks (I got only three weeks off), but I was working from home and had fixable hours. In three weeks' time, your body will still be relatively weak, and you can have soft conversations but won't be able to talk loudly. I was losing my breath while talking over the phone and getting excited. You won't be allowed to drive. But if everything goes well, you should be able to take one or two classes. Make sure to have a chair near you or be seated and try to talk softly. I believe, you will need clearance from your cardiologist/doctor to start working, and based on your recovery, they will provide that. My suggestion is that, after the surgery, make sure to do the breathing exercise regularly as asked. Go for a walk and make progress every day.

@@baybongdiary they didn't tell you how long the valve is expected to last?what then?

@@user-iv1bj2zr7n I did ask, and they are not comfortable answering. Because they cannot tell how long it will last but the answer I got was to do TAVR when that situation arises

I am happy to know this information was useful to you. I wish you a happy healthy life.

Thanks Pradip Da.

Thanks, wish you the same.

You need to take it easy Muhammad and work on your Afib first. Make sure to follow what doctor suggested and have the medicine (beta blocker). It should go away after some time and you can resume to normal workouts then. For now walking is all you need. Take care and take it easy.

The first few days taking shower was bit difficult because I had limited arm use and also afraid of falling. But I got help from my wife. But after may be three/four days I all able to do it alone. Pain was not a problem for me, I was able to tolerate without any medicine. I have few other video about the surgery and preparation and you should watch it, which might help you to prepare. Keep trust and you will handle it well I am sure. Take care.

@@baybongdiary yes I have watched all your videos and I really like them all. So how you doing with driving now? Did you have anymore blank spells? Did you have help putting your shirt on? When did you get to start your rehabilitation? By the way my name is Gilbert and I live in Delaware on the East Coast. I’m getting my valve replaced and they fixing my bicuspid valve and fixing my aorta aneurysm while there in there.

@@gilbertwest70 Hi Gilbert, Nice to meet you. I live in San Francisco Bayarea. I'll be sure to answer your questions one by one. Your surgeon will decide when you can start driving. You should usually be able to drive after one month, but I started after two months. I had no problem of any kind driving because 2 months is a long time, and my bones had even recovered by then. No blank spells for me. I was able to put on sharts by myself by day 10 from the surgery; you have to do everything slowly, though. Make sure shirts are tight enough, and it is better to have a front opening. I started rehabilitation on the day 28th of my surgery. Your doctor will decide the right time, but do it a month and a half. Otherwise, it may not be that useful if you start too late. May I ask what type of valve you are getting - Biological or mechanical? It will be an overwhelming experience, but things will move very fast, and you will be back to normal very soon. Take care

@@baybongdiary I will be getting the Biological valve. Thank you so much for all the information you have provided on this matter I appreciate it. I’m just trying to get a grasp on what I need to do. Did they let your wife take a picture of the surgery room for you? I think I’ll wait like a month and half to drive. So if I have a pullover shirt I am going to need help getting that put on me until I’m able to do it myself. What was it like going up and down the stairs at home?

Sorry why do you say make sure my shirts are tight?

Thank you so much! It was a difficult journey.

Oh, yes, I was surely nervous at that time. I am almost at six months and have mostly recovered. Please take care of your mother-in-law and provide emotional support, which is as important as the physical one. The next few weeks or months will be a difficult time for her.

@@baybongdiary - Thank you sir! Appreciate your kind wishes! MIL is doing well and is back home as per schedule. Wish you a wonderful life with everyone around you!❤️🙂

I was 54

I am 54

Thank you so much 😊

Hi Sooham, Thank you for checking on me. I am doing well, and stretching my arm is also fine most of the time, but doing it suddenly stretches the incision area, which is uncomfortable. I ran 9 miles yesterday, so I am almost ready for the half marathon. I don't carry a camera or recording while running, but I will, for sure, make one marathon update video in a week or two. Now, medical care is very expensive in the USA, and many people go to other countries for treatment. It is impossible to have treatments without insurance, and the bill for me was above one million. Take care, be healthy. Thanks again.

@@baybongdiary thank you sir 💙

I had all the vaccines done 1 month before the surgery. Even if it is 2 weeks, it should be good, but make sure to get it.

I know it is scary, and it is going to be a bit difficult the first few days, but you will see time will pass, and it will become a distant memory soon. You have the double chamber right ventricle, and surgery is absolutely needed, and you do not need any reoperation in the future. At this time, try to focus on the positive side, and being positive is very important, which will later help to recover fast. Try to do things you like and be with family and friends. There will be a positive outcome, and my prayers are with you.

@@baybongdiary : I have a surgery on 16th . And I will be fine sir . 😊 I have a very strong , healthy and normal heart. 💚 Thank you so much sir for the prayers .

@@divya_rana It's Good to hear from you, Divya. All will be good, and you will be going to surgery strong and coming back even stronger. I look forward to hearing from you soon. 💪

@@baybongdiary : Hello sir ! Surgery got postponed due to some reason and surgery is on 28th of this month . I feel stronger . I have a very strong healthy and normal heart 💕 . Everything will be fine .

​@@divya_rana That is the spirit!! Yes, everything will be perfect, and you will return home stronger. There is a long and healthy life is waiting for you. My prayers are with you. 🙏

In rehab, there are equipments, nurses and they monitor the heart activities all the time, which won't be possible at home.

@@baybongdiaryvery true, i am looking to do it in a facility as well but all the nurses and doctors keep telling me its unnecessary. it was like they kept pushing for me to just do it at home and told me only very critical patients go to facilities.

@@user-zw9gg9wg8d Interestingly, my cardiologist and surgeon's office organized cardiac rehab for me. In my experience, cardiac rehab is beneficial because I can do it without worrying if I am doing anything wrong, and they also monitor me the entire time. For example, on the very first day, they asked me to do an arm bike, which I was so afraid to do because the hospital told me not to move my arm away from the body. But after the session, I got more confident about what I should be able to do. However, I understand that it is more important for patients who have heart attacks/ heart failure than for patients with other types of surgery.

@@baybongdiary thanks for the insight. yes this is the same reason I would like to be monitored at a facility so i can feel more comfortable and have access to all the tools they have

আমি এখনও খাচ্ছি; carvedilol রক্তচাপের ওষুধের জন্য, এটি চালিয়ে যেতে হবে।

Doctors suggested me not fly because I had a leaky valve and artery blockage, which put me at a higher risk of having a heart attack. From the US to India is 24 24-hour flight, with a high altitude, and sitting such a long time makes the risk even higher. My heart was able to send only 37% of blood to the body; it would get clotted easily. People often fly to different cities and countries for medical treatment, but it was best to avoid me with my condition.

@@baybongdiary thank you for the reply, and I wish you good health!

Couldn't agree more!

Hi Vinit, To my knowledge, 39mm should not show any symptoms. In fact, 35mm is considered an average diameter. But you need to know why it is getting dilated. But open heart surgery is very safe nowadays, and the doctor suggests having the surgery ahead of time when required because waiting too long can create other issues that become more serious. I hope you won't ever need any surgery. For now, you should enjoy life and take good care of yourself.

Thank you for the comment. I am happy to know that this video gave you some comfort. The first few days can be a bit difficult, but you will make progress every day. Very soon, you will be fit and fine. But go slow and take good care of yourself.

वीडियो पहले ही रिकॉर्ड किया जा चुका है; मुझे डर है कि मैं इसे हिंदी में दोबारा रिकॉर्ड नहीं कर पाऊंगा। लेकिन आप हिंदी में उपशीर्षक चला सकते हैं। सेटिंग्स में जाएं और उपशीर्षक हिंदी चुनें

The first few days are overwhelming but it will get better very soon. I wish you a speedy recovery, take care of yourself and take it easy.

Glad you liked it!

It is so good to hear that you are doing well. Thank you for sharing your journey. This will definitely help others who are equally anxious to have this surgery. I understand your experience, and I know how difficult the initial part of the journey is when first learning about the heart problem and upcoming surgery.

I lost all hope at one point, but after surgery, I started feeling better and trying to live life the way I wanted to. But I need to reduce my run, that I am also getting the feeling.

Thanks for sharing your story. I thought the pain would go away after some time, but two years is a long time, and you are still having pain. I I still having some pain, discomfort, and numbness in the surgery area and have not been making much progress in recent days.

Good to know this video was useful for you, thanks for the comments, appreciate it.

@@baybongdiary my dad had mitral valve replacement surgery a week ago & he’s doing fine @ the age of 76☺️.

Glad you think so!

Hi Divya, Thinking of heart surgery is scary, and it is normal to have anxiety attacks. I had that, too. But from my experience, I can tell it is not as bad as it looks. Particularly if you know the surgery will save your life and give you a much better future, then all you need to do is accept it. It becomes much easier once you start accepting the fact that surgery only brings good to you. The first 2,3 days can be hard, but you will be sleeping most of the day. From day three, you will make a lot of progress each day and start feeling a bit excited to return to normal. In terms of pain, you may not feel much pain because there are only a few nerve endings around the breastbone area, so having any pain there is very rare. Makesure to have some domestic help for few weeks after surgery and take time off from work or school for two months, then you will be back to normal in no time. It is just a process now days, just like any other surgery. Only it is more graphical to make someone scared. Keep a positive mind; you will go just well. Take care.

I am very happy to know that these videos are helpful for you. How is your father doing? I wish him a speedy recovery.

I started sleeping on side 2 months after surgery, by then bone are almost fully recovered.

Thanks

Yes, I should have included the price and temperature in the video. I will remember to do so next time. It was warm there in the summer because the days were very long. You barely needed a jacket on land.

Thanks

I arrived an hour early out of excitement. But they will only allow you to enter at 1:30 PM (boarding time), so there is no point in going early unless you want to do some sightseeing. The process is fast, just to check the documents and do a quick security check, but the line can be long, which might take a bit of time-let's say 30 minutes. Enjoy your trip; you will have a wonderful time there.

You are going to have a great time there, Enjoy and let me know how it went.

Thank you for such kind words 🙏 🙏 🙏. I love reading them and have already read your comment three times. Thank you for watching.

Hi Alona, It is scary for sure and it will be little difficult for few weeks. Keep a positive mindset and you will be running again in 2 months. This surgery is the best thing you can expect to have now for abetter future, right? Take care.

I am hoping your valve will work for the rest of your life, and that is totally possible. Make sure you maintain a healthy lifestyle, so valves or arteries won't get calcified. Also, make sure to do tests often, as the doctor suggested. Noninvasive procedures are available to plant a new valve, and this technology is changing rapidly, so by 20/30 years, if you need to change also, it would be a much easier journey and no surgery at all, just a catheter through groin. Don't worry too much, enjoy life.

@@baybongdiary thank you very much for your lovely words, I hope you’re recovery is a speedy and healthy one.

Unfortunately I am not familiar with medical insurance in India. But I would suggest to keep your existing insurance active if you already have one, and understand the coverage you currently have. Because rules are different in different countries and getting a new insurance may not cover pre existing conditions. If you are getting new insurance, understand all the terms, before getting one.

Dear Sara, It is sad to know that you are going through this challenging time when you are supposed to celebrate your pregnancy. My prayers are with you and your baby. I have the feeling that everything will be okay. Now, 2% of the population has a bicuspid aortic valve. I have had it all my life and am fully active, even today. Since it is asymptomatic for you, then the ejection rate should be fairly normal. Then what is the problem? Please be positive and look for the brighter side that you need at this time for you and the baby. All will be okay, I am sure. Even though I am an atheist, I would like to go to the temple today and pray for you and the baby.

@@baybongdiary Thank you so much for ur reply & best wishes I am feeling better now & trying to be positive, everything is going well Allhamdulliah, but the thing is about my third trimester of pregnancy & post delivery, Dr advice me to do echo & cardiologist visit timely, InshaAllah everything will be fine I hope. I hope u r doing very well & having a great day with your family, take care of yourself & stay blessed sir .

@@sarabatool9988 Do what the doctor suggested and maintain a lifestyle that creates less stress in your heart. Look after your diet; for example, less salt in food, plenty of water/fluid, no stress, or anything like that. Just take care of yourself. InshaAllah, all will be fine in the end.

@@baybongdiary You are sooo kind, like an angel! Thank you for your best wishes and blessings , your words boost my energy, confidence & positivity, remember me & my baby in your prayers now & in future

Thank you for liking it Pradip Da. I like this one too and was planning for a long time to make it. Finally did it. Very Happy.

Hi Kabita, Thanks for watching my videos. Mild tr is not something to worry about, but try to maintain a healthy lifestyle and do echo once a year or what your doctor is suggesting. Wish you a long healthy life and take care of yourself.

Thanks Atikul for the wish 🙏. Take care.