LivedHealth Parkinson's
LivedHealth Parkinson's
  • Видео 97
  • Просмотров 509 534
Swallowing, drooling, hydration, taste and more... everything to do with your mouth and Parkinson's
Speech therapist Julia Johnson is back to talk about the problems that can arise with your mouth when you have Parkinson's and what you can do about them.
Просмотров: 399

Видео

Stand up comedy with Parkinson's
Просмотров 364Месяц назад
Jodie speaks to Phil Jerky (not his real name...) about how he started doing stand up comedy after his diagnosis of Parkinson's. You can find more clips of Phil, and information about his future performances, here: linktr.ee/philjerky
Digital biomarkers for Parkinson's
Просмотров 2562 месяца назад
Jodie visits SERG Technologies and Imperial College who are developing better ways to measure movement symptoms in Parkinson's disease. These "digital biomarkers" will help develop personalised treatment plans as well as enable research teams to more accurately measure the effect of new therapies. PD-CL Rehab is an 18 month industrial research project in which SERG Technologies Ltd, in partners...
Genetics of Parkinson's, part 2
Просмотров 3232 месяца назад
Professor Huw Morris from University College London is back to discuss how understanding the genetics of Parkinson's can help us develop new therapies
Genetics of Parkinson's - Part 1
Просмотров 6153 месяца назад
Professor Huw Morris of University College London talks about whether Parkinson's can be inherited and explains some of the latest research into the genetics of Parkinson's.
A new app for Parkinson's
Просмотров 5704 месяца назад
Jodie speaks to Kuhan about how he designed his own app for Parkinson's. You can find this in the app store by searching for "Parkinson on". Do you have a favourite app for Parkinson's? Post your thoughts in the comments.
When will we cure Parkinson's?
Просмотров 2,3 тыс.4 месяца назад
The "Movers and Shakers" Rory and Nick are back to discuss what it means to cure Parkinson's, when that might happen, and some of the challenges in getting there.
Movers and Shakers - Behind the Scenes
Просмотров 2,5 тыс.5 месяцев назад
Jodie talks to Rory Cellan-Jones and Sir Nicholas Mostyn about how they created the Movers and Shakers Parkinson's podcast (podfollow.com/1677410087) and some of the reasons for its enormous popularity.
Being creative with Parkinson's
Просмотров 3906 месяцев назад
Jodie speaks to Kuhan about how Parkinson's boosted his creativity, leading him to set up a podcast (www.2parkiesinapod.com) and an app to help others with the condition.
Speech therapy for Parkinson's
Просмотров 4406 месяцев назад
The fabulous speech and language therapist Julia Johnson explains the problems that people with Parkinson's can have with speaking, what causes them, and what they can do about it.
Sarah's remarkable Parkinson's story
Просмотров 6627 месяцев назад
Jodie talks to Sarah Webb about being diagnosed in her 30s as a mother of young children, having DBS, surviving cancer, and setting up the South London Younger Parkinson's Network (slypn.org.uk)
Newly diagnosed with Parkinson's? Everything you need to know.
Просмотров 8907 месяцев назад
When you've just been diagnosed with Parkinson's disease, your head is spinning. You're shocked, upset, confused, and overwhelmed with information. In this video we summarise the 10 things you need to focus on to get your Parkinson's journey off to the right start. Links to the other videos referenced: What is Parkinson's disease? - ruclips.net/video/YSeZZJuP_cU/видео.html How to live with a Pa...
Parkinson's UK - how do they help the Parkinson's community?
Просмотров 2898 месяцев назад
Jodie speaks to Caroline Rassell, CEO of Parkinson's UK since 2021, about the great work that the charity does both funding research projects and providing support for people with Parkinson's and their loved ones.
Spotlight on Young Onset Parkinson's
Просмотров 3198 месяцев назад
Vicky catches up with Gaynor Edwards, founder of Spotlight YOPD (Young Onset Parkinson's Disease), at the World Parkinson Congress in Barcelona. ▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀▀ *The information in this video represents the views and opinions of the participants. The content is not intended to be a substitute for professional medical advice. Any research discussed in this content may be subject to pa...
Can big data help Parkinson's research?
Просмотров 2478 месяцев назад
Jodie Forbes speaks to Caitlin Kelliher from the Michael J. Fox Foundation about a number of initiatives the charity has spearheaded to gather large amounts of data about what Parkinson's is, and how it progresses. These data resources are proving instrumental in the search for better understanding and better treatment of the disease. Explore the links provided in the video for more information...
Gyrogear Anti Tremor Gloves for Parkinson's
Просмотров 2,2 тыс.10 месяцев назад
Gyrogear Anti Tremor Gloves for Parkinson's
Michael J Fox Foundation: What are they doing?
Просмотров 51510 месяцев назад
Michael J Fox Foundation: What are they doing?
Augmented reality and how it's being used in Parkinson's
Просмотров 42910 месяцев назад
Augmented reality and how it's being used in Parkinson's
Will this device stop you freezing with Parkinson's?
Просмотров 2,6 тыс.10 месяцев назад
Will this device stop you freezing with Parkinson's?
Hacks You NEED To Know When Travelling With PD
Просмотров 1,8 тыс.11 месяцев назад
Hacks You NEED To Know When Travelling With PD
What Were Your First Parkinson’s Symptoms?
Просмотров 39 тыс.11 месяцев назад
What Were Your First Parkinson’s Symptoms?
World Parkinson Congress 2023: Our Top Takeaways
Просмотров 5 тыс.11 месяцев назад
World Parkinson Congress 2023: Our Top Takeaways
Chronic Illness ‘Influencers’: Helpful or Harmful?
Просмотров 4,6 тыс.11 месяцев назад
Chronic Illness ‘Influencers’: Helpful or Harmful?
What Can I Do To Help Cure Parkinson’s?
Просмотров 4,8 тыс.Год назад
What Can I Do To Help Cure Parkinson’s?
The Economic Impact of Parkinson's?
Просмотров 4,8 тыс.Год назад
The Economic Impact of Parkinson's?
Cure Parkinson's | UK Charity Working to End Parkinson's
Просмотров 6 тыс.Год назад
Cure Parkinson's | UK Charity Working to End Parkinson's
Unlock the Secrets of Parkinson's Disease With THIS Website
Просмотров 5 тыс.Год назад
Unlock the Secrets of Parkinson's Disease With THIS Website
Finding NEW Parkinson’s Treatments Faster with @CureParkinsons
Просмотров 5 тыс.Год назад
Finding NEW Parkinson’s Treatments Faster with @CureParkinsons
The ONLY Proven Way to Slow Down Parkinson’s
Просмотров 1,3 тыс.Год назад
The ONLY Proven Way to Slow Down Parkinson’s
Is This The Future of Parkinson’s Drugs?
Просмотров 7 тыс.Год назад
Is This The Future of Parkinson’s Drugs?

Комментарии

  • @adamali813
    @adamali813 3 дня назад

    FMT into the Transverse colon only will cure it. Google fecal matter transplant.

  • @Daft_Ideas
    @Daft_Ideas 11 дней назад

    Hope my CUE2 comes soon...been signed up for months! My friend Terry has one and swears by it...he's even in Charco's videos...somewhere!

  • @brianlowe77
    @brianlowe77 17 дней назад

    Brilliant and informative as always!

  • @elizabetholiviaclark
    @elizabetholiviaclark 18 дней назад

    Welp, that explains the small drool problem I've developed. I wasn't even sure it was a symptom, but I began to suspect. Man, this disease is just a hoot and a howl.

  • @sessionmediaa
    @sessionmediaa 18 дней назад

    Another fantastic video. Really informative! Thank you for keeping up these videos Jodie.

  • @mansionworlds2556
    @mansionworlds2556 18 дней назад

    I'll date ya

  • @MDMB53
    @MDMB53 21 день назад

    Very helpful video, demonstrating clearly how Parkinson's symptoms are unique to every individual patient.

    • @LivedHealthParks
      @LivedHealthParks 21 день назад

      Thank you. It’s great to know people find these videos helpful. If you haven’t already, take a look at some of our other videos. I try to cover a range of topics- suggestions for future videos welcome! Thanks Jodie

  • @Morese56
    @Morese56 23 дня назад

    Eat carnivore.

  • @Morese56
    @Morese56 23 дня назад

    Say no to drugs that over time will not continue to work. And what are the side effects?

    • @LivedHealthParks
      @LivedHealthParks 23 дня назад

      In the case of Parkinson's, I completely disagree with this. Dopaminergic drugs have given me about 10 years of my life back with minimal side effects. When I have off medication periods I realise what life would be like without the drugs - difficult and miserable. Sure, they may not last forever but like many people I have responded well and they have vastly improved my quality of life for many years. I totally understand the instinct not to rely on medication, but I'm glad I got over that some time ago... Jodie

  • @user-xc5es2ut7t
    @user-xc5es2ut7t Месяц назад

    Jaw Tremor, nightmares......it went down hill from there.

    • @billstac9162
      @billstac9162 Месяц назад

      I now have tremors all left side pretty well all the time. Really hard to do physical meets with anyone. Doctor etc.

  • @elissa8441
    @elissa8441 Месяц назад

    Great video! So young for a PD diagnosis 🧡

  • @shaynadavidovhansonrealtor
    @shaynadavidovhansonrealtor Месяц назад

    How do they know it’s Parkinson’s Vs Dementia w Lewy Bodies?

  • @shaynadavidovhansonrealtor
    @shaynadavidovhansonrealtor Месяц назад

    Have you heard of Aminopyridine? A Naturopath said they have some success w this.. I am at my wit’s end w C/L - as it’s causing hallucinations and severe constipation w my HWP… Having a really tough time w HWP and not sure what to do.. The dilemna is: On C/L they get horrific REM disorder dreams/ Nightmares/ Paranoia- and even called 911 in middle of night saying there was truck coming through apartment. They have off C/L for a few days- and these horrible active nightmares where they sleepwalks have subsided.. HOWEVER, it seems like the Dopamine or missing C/L now they have less motivation to get themselves off bed, to physically walk themselves to the bathroom; constantly asking me to help pull them up, I am having more now to dress, put diapers on them ( as they also are having frequent urination) and had last few nights where they don’t know where bathroom is and we’ve traded the vivid nightmares w C/L for lack of motivation / w short term memory issues- and they aren’t having “the get up and go” as much to do daily tasks… Any thoughts? THANK YOU AND SENDING STRENGTH AND LOVE TO ALL OF YOU IN THIS BATTLE 🙏🏽🙏🏽🙏🏽🙏🏽

  • @SDWP
    @SDWP Месяц назад

    Love the jokes! I think it's great to lighten things up and be able to laugh at ourselves. In a round about way, you're helping people to understand/recognize Parkinson's through your comedy. Hope to see some updated videos on your YT page.

  • @Llilllneek
    @Llilllneek Месяц назад

    Good on ya mate ! Wishing you all the best in your future gigs. From a fellow shaky parky.

  • @malcolmdouglas5476
    @malcolmdouglas5476 Месяц назад

    Superb. Very enjoyable.

  • @Lion-pu4vm
    @Lion-pu4vm Месяц назад

    The jar opener would be more helpful to someone with arthritis, with Parkinson’s it would be very difficult to even position the jar opener on the jar correctly.

    • @LivedHealthParks
      @LivedHealthParks Месяц назад

      I would say it depends on how severe your tremor is. Many people with Parkinson's, myself included, have no or mild tremor, but have stiff hands and find opening lids and bottle tops very difficult. But I agree it might not work for everyone with PD. Thanks, Jodie

  • @uquantum
    @uquantum Месяц назад

    Terrific content and well-presented!

  • @symbyxbiome
    @symbyxbiome Месяц назад

    Hi Team, we love your channel ! If you ever want to discuss light therapy for parkinson's, we would love to do something with you. You might have missed us at the WPC2023 in Barcelona last year, but our devices are CE and ARTG listed reduction of Parkinson's symptoms (motor and non motor). We have already completed clinical trials, and have another three currently underway.

  • @jennd6590
    @jennd6590 Месяц назад

    Was just watching out of interest, my alteimers symptoms first showed after pregnancy but took many years and now I have joint pain etc. So many doctors dismiss that pregnancy can bring the first symptoms, even suggest more kids have the longevity increases. Will switch to woman doctor for albeit sympathy on how scary it is and my diet may only help albeit to live to see my grandkids

    • @Dr.Ovie1
      @Dr.Ovie1 Месяц назад

      For your parkinson's healing send me a DM

  • @sessionmediaa
    @sessionmediaa 2 месяца назад

    Absolutely fantastic video! Great to see how technology is developing. I've seen a few wearables now for PD and i'm really excited to see them become more refined in the future! Well done Jodie for getting out and delivering these videos!

  • @themikeshow
    @themikeshow 2 месяца назад

    Is it a sign of Parkinson's that music playing while I am trying to listen to people talking, like in this video, is irritating?

    • @LivedHealthParks
      @LivedHealthParks Месяц назад

      Sorry to hear that you find the background music distracting. We try to make the videos engaging, but we'll bear your comment in mind for the future. Thanks, Jodie.

    • @user-ff8vo1se8v
      @user-ff8vo1se8v Месяц назад

      I agree, music is distracting. Why do people chose music in background?

  • @Sten111
    @Sten111 2 месяца назад

    People should be cautious about ascribing a condition to Parkinsons....there is a lot of misdiagnosis as well as underdiagnosis.

    • @LivedHealthParks
      @LivedHealthParks 2 месяца назад

      Indeed, one of the problems is that PD is currently diagnosed based on clinical symptoms like muscle rigidity, slowness of movement and tremor, but these vary a lot between people with PD, and it's easy to confuse PD with other movement disorders. The new SAA test should help provide a more objective diagnosis - see our video on the topic: ruclips.net/video/bE0EVSBXhGI/видео.htmlsi=d-TJzulC0LxPqoWw

  • @erichouck9487
    @erichouck9487 2 месяца назад

    my first symptom was the loss of my sense of smell, about 10-12 years before any termers started

    • @katmouse9974
      @katmouse9974 2 месяца назад

      Me too. Even had a CT Scan of my sinuses to look for an infection which turned out negative.

    • @LivedHealthParks
      @LivedHealthParks 2 месяца назад

      Loss of sense of smell is a common early indicator of PD, but I haven't heard of this happening so long before diagnosis. Thank you for sharing.

    • @erichouck9487
      @erichouck9487 2 месяца назад

      @@LivedHealthParks I believe that is because I am an ultra endurance athlete, I was running 50- 100 mile races. I do believe that being that active held the PD at bay. In January of 2020 I was diagnosed with a rear form of bone/blood cancer. Well the meds they started me on knocked me down so hard that I couldn't do anything. After 6 months they changed my meds. It was shortly after that is when the termers started in my left hand.

  • @Graigmartins
    @Graigmartins 2 месяца назад

    I want you all to join me thank Dr Madida Sam on RUclips for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this I want you all to join me thank Dr Madida Sam on RUclips for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100%✅✅✅...

  • @masudahmed6029
    @masudahmed6029 2 месяца назад

    Hi jodie. Thanks for the information. I just wanted to ask would you go for dbs maybe later on? Do you know if Michael j fox or muhammad ali (rip) had dbs?

    • @LivedHealthParks
      @LivedHealthParks 2 месяца назад

      Hi, I have several friends who've had DBS with good results, including Jon (check out the video here: ruclips.net/video/hgm5AlIkMDI/видео.htmlsi=MAf6TJUhwvIaoS60) so it's certainly a possibility. Michael J Fox had a different surgical procedure before DBS was widely available, a thalamotomy, which seems to have been pretty successful. Thanks, Jodie

    • @masudahmed6029
      @masudahmed6029 2 месяца назад

      @LivedHealthParks that's awesome. Thanks for the reply.

  • @jessa2542
    @jessa2542 2 месяца назад

    My husband only eats once a day because any kind of food interacts with the levodopa. But in all honesty, it seems like in the Parkinson's forums that levadopa is pretty sensitive to foods, drinks and other medications. Seems like it's a hit or miss for everybody. In regards of timing and when to eat. If anybody else was curious about others experiences with levodopa and Parkinson's

    • @LivedHealthParks
      @LivedHealthParks 2 месяца назад

      Hi. Everyone's experience is different. Many people, myself included, respond well to levodopa, though I do notice it takes effect more quickly on an empty stomach. Many people also say that eating dairy interferes with levodopa uptake. It also takes a few months for the body to settle down when you first start taking any sort of dopaminergic drugs. My suggestion is to keep trying different foods and eating patterns to see if you can find something that works... good luck. Jodie

  • @sessionmediaa
    @sessionmediaa 2 месяца назад

    Fabulously informative video as always! I'm so glad these are being made! Well done Jody! Keep it up.

  • @mbkimber
    @mbkimber 2 месяца назад

    Listening from Australia and I really appreciate the podcasts

  • @chippy7745
    @chippy7745 3 месяца назад

    I think we are closer than 30 yrs away from a cure. My gosh, that’s very long. Let’s hope that gene editing can help edit this out of the DNA chain either before birth or after. We have got to get more attention on getting Parkinson’s cured! Alzheimer’s gets alot more attention for some reason and it’s not fair! Parkinson’s is impossible to live with…very hard on patient and spouse, family, etc… so hard to live a normal life. God bless the patients.

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      I hope you're right but my personal view is we're still some way from properly understanding the disease and completely preventing or curing it. But there will likely be a lot of progress in the meantime. Firstly I think it is likely that some drugs will be approved in the next 10 years that slow the progression of the disease for some people. Secondly I think cell replacement will become a viable option in the next 10-20 years. Thirdly I think we will start to find therapies for genetic forms of PD (which account for 10-20% of cases) in the next 10-20 years. Maybe there will be a major breakthrough soon but the reality today is that Parkinson's was first described over 200 years ago and don't yet have a therapy that actually slows or stops the its progression, only ways of treating the symptoms. Fingers crossed that 30 years turns out to be overly pessimistic! Jodie

  • @ascenjoe
    @ascenjoe 3 месяца назад

    Are you suggesting that the results could continue to improve after 5 years? And possibly last for 29 or more years? Thank you very much!

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      My understanding is that the original cell transplantation experiments done as far back as the 1980s using foetal nerve tissue restored dopamine production in some patients for 15-18 years. See for example www.cell.com/fulltext/S2211-1247(14)00419-7. After some years, the transplanted cells also develop signs of Parkinson's but they are still able to restore motor function for a period of time that is significantly beneficial for patients. The challenge now is to achieve the same thing with stem cells and turn this into a reliable mainstream therapy. I personally think this has a good chance of becoming a reality. Jodie.

    • @ascenjoe
      @ascenjoe 3 месяца назад

      @@LivedHealthParks thank you!

  • @annepaulinedl9038
    @annepaulinedl9038 3 месяца назад

    Hello, Would like to ask if Madopar can be taken 15minutes before and 15minutes after the prescribed time? Thanks.

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      Everyone is different and it's worth experimenting to find what works best for you but, yes, some people (myself included) vary the time they take Madopar each day without any problem. It's also worth bearing in mind that the drug will take longer to have an effect if taken after eating.

  • @Don-io6cr
    @Don-io6cr 3 месяца назад

    I can’t find the name of the app or where to get it.

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      The app is called "Parkinson's ON" and you can find it in the app store by searching for that name. I hope you find it useful.

  • @bluecube7247
    @bluecube7247 3 месяца назад

    A small constant shake of my eyes... later it was my whole head.... other people noticed these,i did not.

    • @user-xc5es2ut7t
      @user-xc5es2ut7t Месяц назад

      I head shake in Parkinsons is EXCEEDINGLY RARE!

  • @bluecube7247
    @bluecube7247 3 месяца назад

    15 YEARS I'VE BEEN ASKING VETERANS ADMINISTRATION DOCTORS WHY AFTER COMBAT I CAN'T DO THE FINGER TO THUMB THING yet i still work with my hands!? 15 YEARS!!!! NO ANSWER... thank you for sharing your story... it was the missing passage in mine.

  • @bluecube7247
    @bluecube7247 3 месяца назад

    I had a dead sinking leg in the pool... swam daily for years.... then my left leg would just drag me down and start sinking when swimming.

  • @manjeetroxana
    @manjeetroxana 3 месяца назад

    Sir, Should a Pakinson patient travel by plane?

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      Flying with Parkinson's can be difficult depending on how far progressed you are, but there are a few things you can do to make it easier: 1. Most airlines offer disability assistance where they will transport you through the airport and escort you onto the plane by wheelchair. This needs to be booked in advance. 2. Many airlines allow priority boarding for passengers who need extra time. In the UK you can wear a sunflower lanyard to let the staff know you have a hidden disability. If you go up to the desk before boarding starts they will normally let you on first. 3. Try to time your medication appropriately, e.g. take levodopa about 30 minutes before boarding starts and before landing, so that you are more mobile at these times. So, yes, I would say keep travelling by plane if you want to. Jodie

  • @JasonHill5371
    @JasonHill5371 3 месяца назад

    I am waiting on an appointment at the Walton already have a dnet brain tumour, but if your left arm stops swinging when walking is this a sign I could have early parkinsons I am 53 and tried the pinch test and although I don't go slower I go smaller straight away I can't go back to that starting point distance between finger and thumb. I see the neurologist on the 18th but from what I have read so far I am thinking it's likely. I have an occasional small tremor which I notice when holding my phone or holding a spoon. I ask really because the lack of arm swing does seem a strong indicator from what I have read. Haven't got long to wait now so at least maybe able to get the help. Thanks for the work you do.

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      Hi, your symptoms are certainly consistent with Parkinson’s but obviously it’s best to get a view from a specialist. Fortunately, a diagnosis of PD doesn’t mean your life is over as you can see from our channel. Good luck! Jodie

  • @SpeedRacer24X
    @SpeedRacer24X 4 месяца назад

    What a great video and app created by a fellow PwP to meet our needs. I went to the Apple App Store to get it and nearly dropped my iPhone whem I saw the price at $99.99! Why so much money when there are free apps out there?

    • @LivedHealthParks
      @LivedHealthParks 3 месяца назад

      Strange, it was free for me to download in the UK and Kuhan tells me it's free in other countries. Are you sure it was the right app, i.e. Parkinson's ON? Thanks!

    • @SpeedRacer24X
      @SpeedRacer24X 3 месяца назад

      @@LivedHealthParks Oops, I guess my PD fingers got confused. I found it at the App Store and it's free as you said. Thanks for your help with this!

  • @Ann-sf6od
    @Ann-sf6od 4 месяца назад

    Do trials involving stem cells appear to indicate a reversal of some symptpms or merely slowed progression?

    • @LivedHealthParks
      @LivedHealthParks 4 месяца назад

      Yes, by replacing some of the lost dopaminergic cells, motor symptoms have been significantly improved in some patients. The disease itself is still present and the transplanted cells also start to show signs of Parkinson's but because the disease progresses slowly this doesn't matter so much.

  • @meshapious1597
    @meshapious1597 4 месяца назад

    Nicotine is not addictive, however, what they mixed in with it Pyrazine is !!!... After tobacco the next highest nicotine content plant is the egg plant !!! (Is the egg plant addictive !)... It's the nicotine that helps the Parkinson's disease sufferers !!!...

  • @GoProGoalieUzi
    @GoProGoalieUzi 4 месяца назад

    Oh man, I haven’t taken vacation with my wife for many years now after being diagnosed with Parkinson’s. It’s our 20th year anniversary in March. We use to go to Mexico every year. Now, I don’t know if I can handle it. 25 sinimet per day..

  • @FloridaGardeningdiva
    @FloridaGardeningdiva 4 месяца назад

    I'm 40 and one day, my right leg felt like I was walking in quick sand. I had just had heart surgery so my PCP brushed it off until a year later

  • @barbmullen9923
    @barbmullen9923 4 месяца назад

    See Johnathan sackler bernstaeins piece on no silver bullet.

    • @LivedHealthParks
      @LivedHealthParks 4 месяца назад

      Thanks for your comment. This is indeed an interesting hypothesis (ruclips.net/video/k703Shlgkhw/видео.html) and in general the No Silver Bullet RUclips channel is excellent. However, as I understand it, Dr Sackner-Berstein's theory has not yet been proven and remains one of many theories about the pathology of Parkinson's. It is also possible that the toxicity of cytosolic dopamine is just one piece of the jigsaw. Even if Metyrosine is shown to slow the progression of Parkinson's I think there is still a long way to go to fully understand the biochemistry underlying Parkinson's and to actually develop a cure. Jodie.

  • @CoffeeStop101
    @CoffeeStop101 4 месяца назад

    I absolutely love the questions you ask in this video Jodie and really looking forward to the episode of movers and shakers.

  • @paulwlash6882
    @paulwlash6882 4 месяца назад

    and buntanetap in phase 3

  • @Fip999
    @Fip999 5 месяцев назад

    Couldnt sign my signature at the bank

    • @billstac9162
      @billstac9162 Месяц назад

      Very hard time controlling the computer keyboard

  • @keithclatworthy6480
    @keithclatworthy6480 5 месяцев назад

    Wonderful podcast, I look forward eagerly to every episode, I can't overstate the good it does for me and the extended Parky community. Keep up the excellent work.

    • @LivedHealthParks
      @LivedHealthParks 5 месяцев назад

      Yes, I too am a big fan of the Movers and Shakers podcast and they have a series 3 and series 4 on the way. For this RUclips channel I recorded a second conversation with Rory and Nick - coming soon!

  • @shahmohammad888
    @shahmohammad888 5 месяцев назад

    It is unfortunate that I am from a country having PD since 2014 where hardly 1% people heard about or know a little about the disease. There are many Neurologists, but I could not find any movement disorder specialist. My condition deteriorated even visiting three senior Neurologists. Finally, I went to another country (Thailand) and fortunate to get a good Doctor who is really a Movement disorder specialist trained in USA. Things started improving from that point and I have been under the same Doctor for last eight years. Can I join the Congress 2024? (Just fyi, I am going to US in April 2024. Regards, Shah Murshid

    • @LivedHealthParks
      @LivedHealthParks 5 месяцев назад

      Glad to hear you are now getting the right treatment. Yes, the World Parkinson Congress is open to anyone with PD. They haven't announced the date for the next one yet so keep an eye on their website: www.worldpdcoalition.org/

  • @annb5610
    @annb5610 5 месяцев назад

    No symptoms until I got vaxxed and 1 week later I couldn't use that arm.

    • @user-bp1mz1bl2l
      @user-bp1mz1bl2l 3 месяца назад

      Same for me

    • @WW-sw8ls
      @WW-sw8ls 28 дней назад

      the vax is working! it was safe and effective

    • @nathankaye1577
      @nathankaye1577 4 дня назад

      Sorry to hear that. I'm Unvaxxed and still got Parkinsons at 46. My work have been amazing with helping me.