![Pippa Stacey](/img/default-banner.jpg)
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Pippa Stacey
Великобритания
Добавлен 14 мар 2017
Hello! My name is Pippa Stacey and I’m a writer, blogger and communications consultant based in Yorkshire. I enjoy theatre, books, and fundraising, and can most often be found wearing some form of pyjamas and drinking *all* the tea.
I acquired my chronic illness as a young adult, and struggle daily with the challenges of living my best life alongside managing a debilitating health condition. However, I’ve come to realise that I don’t have to ‘overcome’ or ‘defy’ my illness in order to be successful, and there’s truly nobody’s path to follow but your own. I have a particular interest in inclusive education and employment for people with long-term illnesses, and you can find out more about me and the work I do by visiting www.lifeofpippa.co.uk.
BLOG: www.lifeofpippa.co.uk
CONTACT: lifeofpippablog@gmail.com
FACEBOOK: tinyurl.com/y8mgnb9a
TWITTER: tinyurl.com/yb46swvj
INSTAGRAM: tinyurl.com/ydxvl97z
GOODREADS: tinyurl.com/y8npna28
I acquired my chronic illness as a young adult, and struggle daily with the challenges of living my best life alongside managing a debilitating health condition. However, I’ve come to realise that I don’t have to ‘overcome’ or ‘defy’ my illness in order to be successful, and there’s truly nobody’s path to follow but your own. I have a particular interest in inclusive education and employment for people with long-term illnesses, and you can find out more about me and the work I do by visiting www.lifeofpippa.co.uk.
BLOG: www.lifeofpippa.co.uk
CONTACT: lifeofpippablog@gmail.com
FACEBOOK: tinyurl.com/y8mgnb9a
TWITTER: tinyurl.com/yb46swvj
INSTAGRAM: tinyurl.com/ydxvl97z
GOODREADS: tinyurl.com/y8npna28
HOW TO BOOK ACCESS THEATRE TICKETS AS A DISABLED PERSON - Discounts, Reasonable Adjustments & More!
Planning a trip to the theatre as a disabled person? Here's all you need to know about access tickets, and how to book them. The process is different at every venue, but in this video I walk you through how and why I book access tickets and share my tips and tricks to help you get started.
We also explore the different kinds of adjustments you might find helpful during your trip to the theatre and look at different kinds of inclusive performances, and I also share some of the things I personally do to make going to the theatre more enjoyable alongside managing my chronic illness symptoms.
Please note that I cannot book your access tickets for you, but I hope the info shared in this video he...
We also explore the different kinds of adjustments you might find helpful during your trip to the theatre and look at different kinds of inclusive performances, and I also share some of the things I personally do to make going to the theatre more enjoyable alongside managing my chronic illness symptoms.
Please note that I cannot book your access tickets for you, but I hope the info shared in this video he...
Просмотров: 175
Видео
NATIONAL GALLERY CELEBRATION, TWO STRANGERS MUSICAL, AND A TOUGH OLD TRAVEL DAY
Просмотров 26821 день назад
This London trip was a tough one on my chronic illness symptoms and left me feeling a little defeated, but I had such a great time at the National Gallery for the launch of their #200Creators initiative and watching Two Strangers Carry A Cake Across New York at the Criterion Theatre. Definitely not my best vlog but I hope you enjoy it nonetheless! ~ My new book, How To Do Life With A Chronic Il...
POWER-CHAIR TOUR - THE WHILL C2 👩🦼➡️ Electric Wheelchair Suitable For Ambulatory Wheelchair Users
Просмотров 1,7 тыс.Месяц назад
I've had my Whill C2 power-chair for a few months now and thought I'd show you around! I've had a lot of questions about this chair and my experience so far, so in this video I show you some of the features that benefit me, ways it differs from my previous power-chair, and some of the limitations I've observed so far. As always, all views are my own and I only speak for myself, as an ambulatory...
BRISTOL BY WHEELCHAIR! Cabot Circus, Bristol Aquarium, SS Great Britain, Kibou Clifton and more!
Просмотров 397Месяц назад
[AD - Hosted]. Come along with us as we visit Bristol (UK) for the first time - thank you for having us, Visit Bristol and Visit West! I'm an ambulatory wheelchair user with a chronic illness, figuring out how to make travels and little adventures possible for me. I don't represent every disabled person's experiences or reality, but I hope you enjoy the video and/or find it helpful! Read the bl...
BATH BY WHEELCHAIR! Roman Baths, TOOTbus Tour, Bath Pizza Co, Thermae Spa Rooftop Pool, and more!
Просмотров 5142 месяца назад
[AD - Hosted]. Come along with my best friend Izzy and I as we visit Bath (UK) for the first time - thank you for having us, Visit Bath and Visit West! I'm an ambulatory wheelchair user with a chronic illness, figuring out how to make travels and little adventures possible for me. I don't represent every disabled person's experiences or reality, but I hope you enjoy the video and/or find it hel...
LET'S TALK ABOUT OVEREXERTION, INTERNALISED ABLEISM, AND ENERGY LIMITING CONDITIONS 😅 [CC]
Просмотров 7132 месяца назад
Adapted from one of the most-read posts on my blog, let's have a chat about the pitfalls of overexertion when you have a chronic illness... especially when you're still carrying a lot of internalised ableism and have unrealistic expectations of your capabilities. This blog post was written around 2019/2020 and although I've come a long way since then and take much better care of myself than I u...
MY NEW POWERCHAIR IS ON THE WAY! What & How I Chose, Demo Days, And How I Secured Unexpected Funding
Просмотров 1,6 тыс.3 месяца назад
After a long (and often painful) wait, I'm so excited and relieved that I've been able to obtain a new power-chair! In this video we'll cover how I decided on the Whill C2 as my new wheelchair, my experience of trying other equipment (such as power add-ons like e-fix wheels and the TriRide) during my demo day, and how I managed to secure a portion of the funding for it through my Access To Work...
A VERY TALKY WEEK 🫶🏻 Narrating My Audiobook, Webinars and Podcasts, and finally catching C*vid...
Просмотров 3054 месяца назад
A random little weekly vlog that ended up being a *very* talky week compared with my typical routines! Come along with me (mostly from home) to see and hear snippets of narrating my audiobook, filling in for webinars, podcast interviews, and a mammoth catch-up with my best friend. Thankfully all of this took place the week before I finally tested positive for C*vid for the first time and pretty...
I WROTE A BOOK! Come Along With Me From Writing To Production (first time in traditional publishing)
Просмотров 5625 месяцев назад
Oh goodness, this still doesn't feel real! This vlog documents my first experience of traditional publishing, from signing the book deal and acquiring a literary agent to copy edits and production... all alongside the joys of a disabling chronic illness. How To Do Life With A Chronic Illness is released on 18/04/24 and you can pre-order a copy *right now* via the following links... - Pre-order ...
A WINTER WEEKEND AROUND NORTH YORKSHIRE! Castle Howard, Wonka Movie & Festive Season In York
Просмотров 4368 месяцев назад
A WINTER WEEKEND AROUND NORTH YORKSHIRE! Castle Howard, Wonka Movie & Festive Season In York
How To Share Your Disability Story Online (Webinar Recording) - York Disability Week 2023
Просмотров 3038 месяцев назад
How To Share Your Disability Story Online (Webinar Recording) - York Disability Week 2023
DUNDEE BY WHEELCHAIR! V&A Museum, Loco Rita's, Book Shopping, And The Most Beautiful Train Journey!
Просмотров 5309 месяцев назад
DUNDEE BY WHEELCHAIR! V&A Museum, Loco Rita's, Book Shopping, And The Most Beautiful Train Journey!
WORKING WITH A CHRONIC ILLNESS - YOUR QUESTIONS ANSWERED! [CC]
Просмотров 98910 месяцев назад
WORKING WITH A CHRONIC ILLNESS - YOUR QUESTIONS ANSWERED! [CC]
BOURNEMOUTH BY WHEELCHAIR! Accessible Hotel at Marsham Court, Smuggler's Cove Adventure Golf & More!
Просмотров 56910 месяцев назад
BOURNEMOUTH BY WHEELCHAIR! Accessible Hotel at Marsham Court, Smuggler's Cove Adventure Golf & More!
BARCELONA BY WHEELCHAIR! Sagrada Familia, Park Guell, and the most accessible beach in Europe!
Просмотров 2,1 тыс.Год назад
BARCELONA BY WHEELCHAIR! Sagrada Familia, Park Guell, and the most accessible beach in Europe!
DISABILITY EXPO VLOG! UK'S FIRST PERSON-FOCUSSED EVENT FOR DISABLED PEOPLE, EXCEL LONDON 2023
Просмотров 1,1 тыс.Год назад
DISABILITY EXPO VLOG! UK'S FIRST PERSON-FOCUSSED EVENT FOR DISABLED PEOPLE, EXCEL LONDON 2023
PUPPY UPDATES, SUNNY TRIP TO KNARESBOROUGH, AND BIRMINGHAM BY WHEELCHAIR - WEEKLY VLOG!
Просмотров 452Год назад
PUPPY UPDATES, SUNNY TRIP TO KNARESBOROUGH, AND BIRMINGHAM BY WHEELCHAIR - WEEKLY VLOG!
HOW TO CREATE A PERSONAL SURVIVAL BUDGET - WITH A CHRONIC ILLNESS OR DISABILITY | LIFE OF PIPPA
Просмотров 457Год назад
HOW TO CREATE A PERSONAL SURVIVAL BUDGET - WITH A CHRONIC ILLNESS OR DISABILITY | LIFE OF PIPPA
HARROGATE BY WHEELCHAIR! FARMHOUSE BREAKFAST, VALLEY GARDENS, ROYAL PUMP ROOM MUSEUM, AND MORE
Просмотров 488Год назад
HARROGATE BY WHEELCHAIR! FARMHOUSE BREAKFAST, VALLEY GARDENS, ROYAL PUMP ROOM MUSEUM, AND MORE
MEET RUBY, OUR CAVAPOO PUPPY! FIRST WEEKS AT HOME, INJURY RECOVERY, AND MANAGING CHRONIC ILLNESS 🐾
Просмотров 1,9 тыс.Год назад
MEET RUBY, OUR CAVAPOO PUPPY! FIRST WEEKS AT HOME, INJURY RECOVERY, AND MANAGING CHRONIC ILLNESS 🐾
CAN CHATGPT ANSWER MY QUESTIONS ABOUT CHRONIC ILLNESS? A RANDOM LITTLE DAILY VLOG
Просмотров 350Год назад
CAN CHATGPT ANSWER MY QUESTIONS ABOUT CHRONIC ILLNESS? A RANDOM LITTLE DAILY VLOG
LEEDS BY WHEELCHAIR! MINI-BREAK BOOK SHOPPING, CORN EXCHANGE, FAT ANNIE'S, THE ALCHEMIST AND MORE
Просмотров 667Год назад
LEEDS BY WHEELCHAIR! MINI-BREAK BOOK SHOPPING, CORN EXCHANGE, FAT ANNIE'S, THE ALCHEMIST AND MORE
WHAT IS AN AMBULATORY WHEELCHAIR USER? USING MOBILITY AIDS WITH CHRONIC ILLNESS - LIFE OF PIPPA
Просмотров 7 тыс.Год назад
WHAT IS AN AMBULATORY WHEELCHAIR USER? USING MOBILITY AIDS WITH CHRONIC ILLNESS - LIFE OF PIPPA
HOW TO SUPPORT A CHRONICALLY ILL OR DISABLED FRIEND - YOUR QUESTIONS ANSWERED!
Просмотров 778Год назад
HOW TO SUPPORT A CHRONICALLY ILL OR DISABLED FRIEND - YOUR QUESTIONS ANSWERED!
CHRONIC ILLNESS AND FRIENDSHIP - YOUR QUESTIONS ANSWERED!
Просмотров 888Год назад
CHRONIC ILLNESS AND FRIENDSHIP - YOUR QUESTIONS ANSWERED!
CRUISING WITH A CHRONIC ILLNESS - P&O AZURA ACCESSIBILITY, FOOD ALLERGIES AND MORE (DECEMBER 2022)
Просмотров 2,1 тыс.Год назад
CRUISING WITH A CHRONIC ILLNESS - P&O AZURA ACCESSIBILITY, FOOD ALLERGIES AND MORE (DECEMBER 2022)
FINDING FULFILMENT WHEN LIVING WITH FATIGUE - WEBINAR RECORDING (YORK DISABILITY WEEK 2022)
Просмотров 570Год назад
FINDING FULFILMENT WHEN LIVING WITH FATIGUE - WEBINAR RECORDING (YORK DISABILITY WEEK 2022)
TOP 10 BEST BREAKFAST SPOTS IN YORK! INDEPENDENT, VEGAN AND WHEELCHAIR ACCESSIBLE OPTIONS 🥐
Просмотров 1 тыс.Год назад
TOP 10 BEST BREAKFAST SPOTS IN YORK! INDEPENDENT, VEGAN AND WHEELCHAIR ACCESSIBLE OPTIONS 🥐
NORTH YORK MOORS BY WHEELCHAIR! DALBY FOREST ADAPTIVE CYCLING, STEAM RAILWAY, WHITBY ABBEY AND MORE
Просмотров 666Год назад
NORTH YORK MOORS BY WHEELCHAIR! DALBY FOREST ADAPTIVE CYCLING, STEAM RAILWAY, WHITBY ABBEY AND MORE
DISABILITY POWER 100, MORNING IN LONDON, AND PRIORITISING FREELANCE WORK WITH A CHRONIC ILLNESS
Просмотров 307Год назад
DISABILITY POWER 100, MORNING IN LONDON, AND PRIORITISING FREELANCE WORK WITH A CHRONIC ILLNESS
My local theatre venues (two from same company) added the wheelchair spaces to their booking system for me. I go often enough that it saves me phoning every time. I can just book the same way as everyone else online. Unfortunately the other 3 venues i attend still require a phone call. Something annoying is that generally accessible seats and wheelchair spaces are never available at pre-booking (eg band releases seats early). Seems discrimanatory but I just phone immediately on general release day!
Oh wow, that's awesome that you can just book online - really hope that becomes more widely rolled out, that would be a gamechanger!
I don't know if I'll ever make it back into a theatre, but I still find your video to be encouraging. Thanks Pippa!
Thank you for watching!
Im a 42 msle. i have CP and i get this alot. i use a walker but i walk indepednt at home. lots of imposter syndrom shame
Thank you! 😍
Hi Pippa! This is Jeff from the USA WHILL team and your video popped up on my feed. 😊 So glad you’re enjoying your Model C2!
Ahh thanks for watching Jeff, I'm still over the moon with it!
My friend has a cavapoo named Ruby 😅
I have hEDS and I’m looking at getting a power chair, so I can go further and travel more.
It's interesting how much of a barrier stupid people can be. Logically, any of us could get sick any time but we assume we won't and statistically speaking, these things only occur to a small proportion of the population. Personally, I am aware invisible illnesses exist and aware that i have no clue about many of them. If someone needs accommodations, I am open to it
Really helpful 👍🏻 Thanks. Your suggestions have helped to boost my knowledge & confidence around this topic 😃
TYSM For making this video !!! My own disbaility, not invsiibile however easily hidden has been getting alot worst and walking has been getting more painful and harder, im gonna use a crutch to help me... however i am afraid of this exact sorta judgement because i dont """"look"""" disabled at first glance, i have been taught to hide it my entire life. This video has helped me gather the confidence :) Ima try using a crutch in public next time i go out. 7:34 Fr !!!
I completely understand how it feels to feel out of the loop with the world when feeling unwell in public, that’s a great way of explaining it! I reset my day in a similar fashion when I go to my family lake house. We leave in the mornings for church,I can’t travel and then go to church, so I wake up, travel an hour and a half, and then go back to sleep once I’m home. It actually helps a lot and I don’t feel so horrible. Out of curiosity how long is the train ride to London for you? I’m American and have never been on a train, considering America is so big and we travel far I was curious.😆
Thank you as always for watching Ruby! I'm based in the North of the UK and London is down South, so the train journey is usually between 2-3 hours. Feels like a long time but I bet that's a drop in the ocean compared with travel within the US! 🙈💜
@@LifeOfPippa Yeah, my cabin is in the same state and it’s an hour and a half away. You can drive 4-5 hours and still be in the same state. The closest big city near me is over 8 hours away and people will drive there no problem for doctor’s appointments and turn around and go home. I can’t tolerate big drives so I fly if I need to travel there.😆
I love watching you go away and do things by yourself in car too anxious to ever do that! It gives me hope for independence but also what an amazing opportunity thanks for sharing your adventures xx
Thank you so much for watching Beverley, everything crossed for comfort and independence whatever that looks like for you xx
id do anything for a friend that would do my makeup for me while i regain spoons/energy. I hope one day i can meet my people. also you two are super pretty and funny!!
I love how you always include your rest bits. The frames of the bed clothes. It just makes it so much more... Natural, in a way? For all of us with chronic ilness.
I'm so glad to hear this as that's exactly my intention when I do it! Normalising rest is hard but it's too big a part of my day to ignore in vlogs!
Hiya, you can adjust the back height on the whill, have a search and it shows you how to do it. Fab videos.. thanks xx 😊
Mornings are really rough for me too, so I can relate to the struggle of getting going. Thanks for the vid! How will you be decorating your old set of side panels? Keep the new ones for the "dress up" days, and cover the old ones with whimsy?
Ooh I hadn't thought about decorating them as I'm not the craftiest person, but might look into that for the future! I've not managed to get the new ones on yet but so looking forward to it!
@@LifeOfPippaask an artsy friend for ideas, or look for vinyl stickers that suit your vibe. I'm wondering if a 3D sticker of a me sitting in my chair, at the bottom of a flight of stairs, with an accessibility sign posted, would be too much.
Love that you keep things real Pippa. Travel is hard. Pleased you enjoyed the national Gallery 😊
Thank you so much, and thank you for watching Michelle!
Thank you for sharing your experience! It's so important to hear people's stories so it can influence the way we view others and the world, hopefully so the education can create more compassion and empathy.
i-am vazut vlogul lui stela sulzdorf daca te-ai referit la ea,ca la ea ai vazut scaunul asta whill c2 ( I saw Stella Sulzdorf's vlog, if you were referring to her, did you see this whill c2 chair with her )
I can't wait to get a Whill! Thanks for the accessory tour I love the scooter bag my go pride chair has a taller back with no storage
Hi Pippa, At 73, I'm able to walk, but to do housework, especially washing dishes I have to sit down. Any 4wheeled chair would do any advice, please. Thanks Josie
Just over half way through the video, and I've reached to click "Like" (again) so many times! This is so great for you! Thank you for documenting the steps along the way, with all of the little joys you found!
A "hack" that has helped me with reading on the computer, is to use a text to voice app or addon. I use the firefox browser, and find the "Read Aloud" addon works well. It's free, has a variety of voices that I can modify by pitch/tone/speed. I can highlight a block of text, and have the computer read it to me, or I can click the button and have it read a whole web page. One drawback is that it doesn't read text within a google doc, so I'll copy text from the doc, and paste it into a reader. There are other apps that have been developed for visually impaired people that I have tried, but they have functions that get in my way. If anyone has found something they enjoy, please let us all know.
This is fantastic! So happy for you. I love writing, but don't know if I'd be able to battle through the brainfog to make a book work. Side note, don't ever feel you need to apologize for recording without makeup. Do what makes you happy - makeup or no makeup, you're great.
I totally love Wilma!!!
I’ve just bagged me own set of wheels, Proper sorted! When I’m rollin’ solo, it’s all chill, but when I’m mixin’ with the crowd, I’ve been feelin’ a bit done in, ya know? But get this....I’ve taken up crochet 15years back , like a proper granny . And soon, I’ll be hittin’ up a cafe, no bother. Only thing is, when I’m around folks who ain’t clued up, I get a bit nervy. But your content, keep creating , it’s pure inspiration! Been clickin’ away on Ya RUclips channel, Your like a Total boss! 😅
I'd love to buy your book but I'm from Austria. 🤔❤
It's available worldwide from wherever you like to get your books! 🥰
@@LifeOfPippa lovely! I just ordered it and can't wait! 😊❤️
So helpful seeing this in action Pippa. As someone who has found a stick, rollator and manual wheelchair helpful for my ME a power chair is something i have been weighing up for some time. Thanks for all you do!
On the range side of things, although the advertised range is 11miles/18km the max range Iv had out of mine is 10 miles/16km on perfectly flat smooth ground at 4mph (fastest it can go) I know this isn’t a real world scenario so I found it useful to work out what the minimum range of a full battery would be. And on very hilly gravel and trying to match someone else’s walking pace and stopping and starting it will comfortably do 6.5 miles/10.5km. Knowing this has made planning trips out easier
That's useful to know, thank you for sharing!
nice video
Bumbag for valuables and custom made bucket bag (and ruc sac handbag for manual wheelchair) both with clip on straps for me. Only because i really don't like the utility style black wheelchair accessories. My arm rests are blue 💙 I don't like idea of locking wheelchair and phone breaking so i bought the key!!
Good shout! I seriously thought about getting the key but TGA talked me out of it 🙈😂
The forward ergonomic movement that happens when the automatic brakes kick in will happen with any chair with half decent suspension 👍🏻
Ah fair, if it's the price that has to be paid for decent suspension then I'll take it!
@@LifeOfPippa totally worth it to stop extra aches and pains of bumpy rides. My powerchair is brilliant for it x
The purple panels. It was the purple panels, wasn’t it?! 😂 I was gutted I couldn’t get them here. I’ve bought a mobility scooter poncho which is long and has a clear but so I can see my hands and use the joystick if it rains when I’m out. I tried one that fits over, but found it really dangerous.
Believe it or not, not the purple! Although that probably would have been my second choice, fingers crossed you can get hold of them one day! The poncho is a good shout too, thank you - might have to consider that!
He’s rlly cute❤
I think I commented on your previous video about the Whill saying I had a demo a few years ago and didn't like it. I actually wanted to say in the last few weeks I had another demo, after watching your video, and I got on with it so well! I think the difference was the demo person set it up better for me this time around and it felt more comfortable. I ended up buying it, a second hand Whill C, so the older model compared to your C2. I've also got a manual chair with a Triride so I'm so grateful I have different aids for different situations. Pros of the Whill for me is that it has a much smaller turning circle compared to the footprint of my manual + triride plus the basket underneath holds stuff in! The downside of the Whill is the 10-11 mile range which feels quite low compared to the 30 mile range on my Triride. You also have to beware the "shrug" jolting motion also happens if you set off too quickly! I put mine to speed 3 and started going and it accelerated suddenly and jolted me 😂 I've learned to start going in speed 1 then increase it!
Oh wow, just goes to show what a difference that point of contact during the demo day makes! So glad to hear that, and it sounds like you've got a good system going having the Triride as well - I still can't stop thinking about how brilliant it was when I tried it out!
@@LifeOfPippa the triride is awesome isn't it! Just not that maneouvrable in small spaces. Great for whizzing around parks, going along pavements to supermarket etc!
Perfect timing! I'm going in for the seat fitting for my WC2 on Thursday. I think I'll get the red side panels, but am also wondering what I'll do for a vinyl wrap someday? I was really impressed with how it handles over bumpy grass, loose gravel, and even tracked well across a sloped path with a loose pebbled surface. I also have ME/CFS, and will be getting a higher back from the start, to support my upper back. I'm getting better arm rests added too, as these additions will support my body much better, reducing movement fatigue. Your videos have been very helpful to me. Thanks Pippa!
Can I ask if you are in the UK. I really need a higher back and it wasn't an option in March when I bought mine.
@@escott696 I'm near Vancouver, in Canada. The backs, packs, arms and such are all from other companies. Ask your supplier what options they have, or check with other suppliers of medical equipment. The stuff's out there - they just need to find/access it. If they can't, do a search online for what backs fit it, and buy your own.
Vinyl wrap sounds amaaaazing! Really hope your seat fitting goes well, and thank you so much for the kind words!
@@escott696 This is the one that was recommended to me! www.sunrisemedical.co.uk/seating/jay/wheelchair-backs/jay-j3-back-sc-mt
so glad you like ur new power chair mine has given me the freedom I needed so we don't have to take the car to town anymore we can just walk as it was to far for me to use my manual chair. its also cool you have so many extra things added on to the chair, does the cup holder fit a coffee cup too?
Ahh that's awesome! It would depend on the size of the cup I think but probably needs something that's a bit thinner than the size of a typical coffee cup from Costa etc!
I've been watching several of these vlogs of you on days out with your friend and I must say she's so amazing all around. I wish I could go out with you both.
Thank you so much for watching! I showed Izzy this comment and it made her day too so heartfelt thank you from both of us!
Fantastic! I remember when I was well enough to read. Now it's a few pages before the headache starts. I love that your illness hasn't prevented you from writing!
Awsome to know
Good stuff! Thanks Pippa!
Cool
Yes i agree we should talk about disabilities, and i think we should start our conversations in SCHOOL.
i agree !!! in my homegroup, aka the class where its about "social issues" ((except we actually never talk about anything social issue related but whatevz, its legit just 2hr wasted each week)) there is literally one mention of disability in the entire curriculum, and that was when it was for neurodivergent awarness week or smthing, we didnt even learn what it was, we just learned which famous people had adhd n stuff 😭 also in english we did an essay on sitcoms and we were shown sitcoms, had ep1 of malcom in the middle which is ableist asf !!! the moral message was "aprriceate what you have" cuz a side character was in wheelchair and couldnt walk AND THERE WAS NO CORRECTION TO THAT ABLEIST MESSAGE !!!! ((+ we watched young sheldon which has a very sterotyped autisitic mc)) These instances were in the past year, the only change ive noticed in my classmates are that they use the r slur, and Autistic as slur, more ... Our school somehow made kids more ableist... We gotta be taught about disability cuz otherwise the outside world teaches them, and that world is ableist af !!!
Im lying in bed watching youtube and it was a joy to see your video pop up. You and Izzy always bring a smile to my face. And no, you don't look weird without make-up lol.
Today I got stared at by an older woman while I was using my wheelchair, because I dropped my phone on the floor and had to move my feet in order to bend down and get it back... She didn't say anything, but the judgemental stare was there... I'm 29 and dealing with symptoms of POTS, plus a narrowed disc in the lower lumbar area of my spine that makes it extremely painful to stand and walk. My heart rate was at 151 earlier today when I wasn't using my chair. After using my chair, I stayed below 130. At one point, I was even under 110! That's rare when I'm not sleeping!
Oh I love the bag you’ve got on the arm of your chair - what it is (bc I’m looking for one and I’ve also got a Whill C2)
Planning on doing a full tour soon but it's the Able2 Splash Scooter Pannier Bag - it's so convenient!
@@LifeOfPippa niiiice! Thank you
Man the response of getting a wheelchair from family is shocking the persecution is unheard of that you get. If it was a stranger not a problem because you can get away unlike disfuncanel family where your stuck. But if your lucky your family will support and help and understand.
I’ve got a Whill C2 and I love it, but I’d have preferred a power add on for my manual. That’s certainly what I want next
Thanks so much for this. Have just ordered your book. I got Long Covid in 2021 after completing the first year of my degree and meet the ME diagnostic criteria. I’m hoping to return again this September but it’s so daunting. I really appreciate all the advice ❤
so glad you enjoyed your visit Pippa! We're rather biased but Bath is a great place :)