Hello Pippa. My Name is Adri and I found you this week. I have purchased your audio book and am working thru your journal prompts. Your book is one of the most comprehensive books I have ever found. I was born with spastic and ataxic cerebral palsy. It’s from birth though due to the country I grew up in and various other reasons I wasn’t diagnosed until I was 16 years old. I always knew I was disabled but never viewed it as significant. Now I have Neuro Physical therapy and medication that addresses spasticity. I have a complex manual wheelchair and I have a carer to help me live in my own apartment by myself. I also utilize my service dog and we make a great team. I just wanted to honestly tell you I was one of the people who was skeptical about chronic fatigue and if it was a real medical issue. You in one weeks time with your videos have shown me how closed minded and rude I had been before. I think it was when you said it’s so much worse when a disabled person doesn’t understand what you’re going through. I don’t want be someone who gate keeps or excludes anyone. Thank you for your eloquent videos and genuine caring you demonstrate in your videos and through your book. I hope other disabled people re consider our views and bias toward ambulatory wheelchair users and people with chronic fatigue. I think the real reason I was close minded is because I didn’t take the time to validate my own frustrations with my disability. It really is important to support anyone with visible or invisible disability because at the end of the day we are all just trying our best. If anyone says you’re faking including doctors or friends and family, it’s more about that person than you. Keep going Pippa. I really enjoy your personality and clearly deeply thought out and planed videos. Congratulations on your book. It’s a joy to see what you’ve accomplished.
My local theatre venues (two from same company) added the wheelchair spaces to their booking system for me. I go often enough that it saves me phoning every time. I can just book the same way as everyone else online. Unfortunately the other 3 venues i attend still require a phone call. Something annoying is that generally accessible seats and wheelchair spaces are never available at pre-booking (eg band releases seats early). Seems discrimanatory but I just phone immediately on general release day!
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Hello Pippa. My Name is Adri and I found you this week. I have purchased your audio book and am working thru your journal prompts. Your book is one of the most comprehensive books I have ever found.
I was born with spastic and ataxic cerebral palsy. It’s from birth though due to the country I grew up in and various other reasons I wasn’t diagnosed until I was 16 years old. I always knew I was disabled but never viewed it as significant.
Now I have Neuro Physical therapy and medication that addresses spasticity. I have a complex manual wheelchair and I have a carer to help me live in my own apartment by myself. I also utilize my service dog and we make a great team.
I just wanted to honestly tell you I was one of the people who was skeptical about chronic fatigue and if it was a real medical issue. You in one weeks time with your videos have shown me how closed minded and rude I had been before. I think it was when you said it’s so much worse when a disabled person doesn’t understand what you’re going through. I don’t want be someone who gate keeps or excludes anyone. Thank you for your eloquent videos and genuine caring you demonstrate in your videos and through your book.
I hope other disabled people re consider our views and bias toward ambulatory wheelchair users and people with chronic fatigue.
I think the real reason I was close minded is because I didn’t take the time to validate my own frustrations with my disability. It really is important to support anyone with visible or invisible disability because at the end of the day we are all just trying our best. If anyone says you’re faking including doctors or friends and family, it’s more about that person than you.
Keep going Pippa. I really enjoy your personality and clearly deeply thought out and planed videos. Congratulations on your book. It’s a joy to see what you’ve accomplished.
I don't know if I'll ever make it back into a theatre, but I still find your video to be encouraging. Thanks Pippa!
Thank you for watching!
My local theatre venues (two from same company) added the wheelchair spaces to their booking system for me. I go often enough that it saves me phoning every time. I can just book the same way as everyone else online.
Unfortunately the other 3 venues i attend still require a phone call.
Something annoying is that generally accessible seats and wheelchair spaces are never available at pre-booking (eg band releases seats early). Seems discrimanatory but I just phone immediately on general release day!
Oh wow, that's awesome that you can just book online - really hope that becomes more widely rolled out, that would be a gamechanger!