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I have Miniere's Disease and there are anywhere from 2-8 days a month in which I am dizzy enough to need to rest and often manifests into full vertigo in which the world is spinning, and I get so nauseated I puke. The only real cure is to burn out my ear drum and have 100% hearing loss in one ear at a young age! I have adjusted my diet and tried lifestyle changes which has helped but is NOT a cure. I hope you get the aid you need and deserve!

Bad times like good times will not last forever, hope it get better for you soon

I made a basket for bottom of my wheelchair. Complete game changer

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Thank you for sharing your story.

thank you. this is helpful advice. Never heard depression-sadness-loneliness so well-put. Went to psychiatrists psychologists social workers 1965-2010. Black-tar depression. Wish I'd heard this explanation when I was a teenager. BUT it is helpful, even now. thanks

Well done

Hey, have you heard of livestreaming? I know a lot of people found love for it during covid times when they needed to socialize. Could be a good opportunity to meet people, albeit not in person. Just something to think about! All the best!

Good seeing you post on here again.. hope all is well

Mindy god bless you how are you doing

god (☝ ՞ਊ ՞)☝ bless🙏 you hon🥰 i have cerebral palsy too

When I'm stressed out I mostly l8sten to loud music and stim. I will often listen to the same song over and over, but I aleo have dozens of playlists to choose from as well. I also play my favorite games. I also have oral stims like chewelry and many many fidgets like popits and those bendy straw like tube things. When I have some available I'll drink iced red tea.

Depending upon the nature of my stress, I calm down by playing various genres of video game (turn-based is nice when spasms are having a party), listen to music, listen to a podcast (sometimes while playing a video game), or read. Petting a cat definitely helps when they are agreeable, and I prioritize time with friends whenever possible (I am extroverted.).

Good seeing ya online again

Hey! When I'm stressed out I usually go shopping. Maybe get clothes to have something to look forward to, or at least get something tasty.

Nice to see you again, but sorry to hear how stressful things are. I hope the bus pass and chair stuff works out. I deal with anxiety too with my CP… I usually listen to audiobooks or read if I’m stressed or play a cozy game. I’ve been following you for years but I’ve split my CP videos into my second channel (Evie’s Hangout). I’ll follow you from there as well, so if you see other comments from that channel, it’s a fellow CP gal 💚 Keep your head up and know that you got someone rooting for you in my little corner of the internet

You're looking so beautiful and very lovely there❤.

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When I have stress, I play some chess. Lol, I know that rhymes but it's true, I play chess or do some gardening, or some other activity that's not related to the stressful situation. Hang in there, everything's gonna work out, you'll get your bus pass and it'll be just fine. I live and work here in California but I wish I could just drop everything and drive up there to Winnipeg and find a house with wheelchair access, a house big enough for the two of us and for our children that we would have together. Lol, I know it's just a fantasy but you really are a beautiful human being, Mindy, and I love you❤Sending great big hugs and kisses your way🤗 P.S. Remember what I said, keep your head up high everything's gonna work out fine for you, you watch and see!😊Willem

My name is lachelle I have mild cerebral palsy my legs get stiff can I get leg pain all the Galaxy leg braces my mom's buying me New Balance sneakers I'm getting it on Saturday😊😊😊😊😊😊😊😊😊😊😅😊😊😅😊😊

Hope you’re doing better now

new subscriber I have cp as well

I have a bunch of rare medical problems, need an organ transplant, have all 3 forms of cerebral palsy, and a seemingly normal outward appearance. Unfortunately, that same normal outward appearance has hindered my ability to get social security disability and medicare. It's awful! 🤬

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Does video end at 0:34, seemingly in the middle of Mindy's sentence, for anyone else?

Another awesome video..

OMG I need it!!!!

That awesome, thanks for the tip beautiful

That's really cool! Is there a rubber pad on it so the cup won't slip? I learned a long time ago to always just leave a good inch at the top, and that works for me.

that gadget is cool

I am glad to hear that you have a femme physician.

What is you favorite flavor of Mt. Dew? RJ

I've started my own positivity playlist with your videos. It's making a real difference!

Is there a chance you complained about the ramp in writing? If they didn't fix it, you can tell the courts. I don't know how it works in Canada.

Donated x

Dr. Pepper and 7up are my top two but 7up is hard to come by where i live so I’m stuck with sprite. 😢

The "CP is non-progressive" line is very frustrating to me because while it's technically true as far as the underlying issue, it ignores the reality that most of us will face worsening symptoms over time. That transition would have been much easier for me if I had been prepared for it at all. I even had a few people gaslight me when I described things like worsening symptoms given that "non progressive" has been drilled into so many people's heads regarding CP.

My chair is creeking too. It sounds like the guiderails or wheelrails (I don't know what they're called). I've only been using it for 2 almost 3 years. I was just thinking about you the other week and I watched an older video of you (Aging with a Disability) but I'm glad to see you online again. If I could post a picture of my history I would.

Hello, how are you doing? I came across this fundraising campaign. Are you the organizer of this fundraising campaign?

I watch your videos for you not the amount of editing done . However if you want help with it im happy to. Take care 😊

Morning Mindy. Omg. I'm so glad you're back. I'm still subscribed to u and will stay subscribed. I have CP too. I missed your videos. Hope u post more often. I've been dealing with personal stuff lately.

I was denied through my primary care doctor following medicaid insurance regulations because my cerebral palsy wasn't disabled enough to prove I can have a manual wheelchair I have a video on RUclips @beauitfulpalsy

She is gorgeous ❤❤

We are not forewarned about the extreme pain(s) that will occur starting in the late 20's. I don't think CP has been studied well. Sure, there are doctors for babies and up to the age of 18 . During the young adult life, and older, there are no doctors who specializes in CP. I have to carefully monitor myself. The pain can be extremely painful. I had to say no to a lot of things on account of my painful condition. I can't overdo on certain things. Yes, it's frustrating when aging with CP.

Please can you do a updated video for 2023 on premature ageing with cerebral palsy.

I started having pain and sciatica around 27. I started using a chair occasionally on longer journeys. I am now 35 and I just got a walker. These things have been so difficult for me to accept, but I cannot begin to tell you how much videos like this have been giving me comfort! There just doesn't seem to be many people who understand what this is like... Or people that can explain what may happen to us as we age. Thank you so much for sharing your experience. I cried when you talked about having to ask for more help. It's helpful to know that I'm not the only one. ♥️

Yes!! Come back. Cerebral palsy lifer here!!

I get mine at below five uvenpaid five bucks