Changing Our Language Around The Word “Cure” | A Disabled Persons POV | Cerebral Palsy Speaks

Though I would love to have a cure for cerebral palsy to make everything better and me all of a sudden “Nuro typically average“ making the physical things easier and not having to deal with all of the barriers put up in our society for persons with disabilities. Given my specific situation and the realization that a “cure“ would not be necessarily reasonable or doable I think changing our language around “Disability” and “cure” would help us to break down the barriers between “us and them“, “normal and abnormal” would help us create a more inclusive and more supportive Disability culture while creating a “normal” for ourselves
Let me know what you think in the comments below.
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All my videos are done from patient perspective and therefore through the eyes of someone not medically trained. If my terminologies or descriptions are somewhat off. Please forgive me as I am only going off of my own experience. I speak for one person and one person only and therefore my experiences should not be taken as the majority rather just my own Interactions.
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I am not a doctor or medical professional. all experiences and opinions spoken about are my own unless otherwise stated.?

[@rescand2]

I don't like the word "cure" either and "healed" has more of a permanent feel to it. I'd like to be healed so I can live without the effects of cp. No more startle reflex, no more stiffness in the legs, more strength in the legs, more muscle tone and other. No more no girlfriend. BUT, I've lived most of my life with cp I wouldn't know what to do with myself without it. It's part of me, only a sliver.

[@Robstafarian]

My perspective is that a cure would have almost no value in a society which does not recognize inherent human worth and therefore value the disabled experience. In such a society, a formerly-disabled person has become valuable (likely as exploitable labor) and yet has no chance of being as valuable as able-bodied people (who have built value all their lives).

[@jeffreykettler6310]

I just had google a life glider , I used a gait trainer.

[@livingmycplife]

Yeah a LifeGlider is like a Walker/gate trainer in one. I have a RUclips short showing mine.

[@100elephants]

Great thoughts! Love it! I feel the same way. What's the name of the walker/stander/trainer you have? I'm looking to maybe get one...

[@livingmycplife]

The LifeGlider! I’ll be doing a video on it which will be out on Wednesday the 6th.

[@hanglee5586]

No cure, just live with cerebral palsy like me for more than 55=years.

[@livingmycplife]

That’s what I’m saying, now more than ever there are ways to live a very fulfilled life with cerebral palsy. Weather you use mobility aids treatments or a combination of the two. I think the word “cure“ is toxic and we should instead look at how people can live their best lives with their disability. 🙂

[@craigcopeland9145]

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