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I asked my oncologist about the DCIS I had before my masectomy and she called it "precancerous". How correct is that?

As always, your explanation of this study is both thorough and easy to understand. Thank you for that. As a side note, that blouse is beautiful on you, and beautiful for flat fashion! Will you share where you purchased it?

Kathleen, first I want to say thank you for sharing your journey by doing these videos. I found you this morning on You Tube and have binged watched almost all of your videos today. I was just diagnosed with Invasive DCIS with Narcosis. Believe it or not they posted my results in My Chart on Friday evening, before my doctor has even contacted me. Hopefully she will call first thing in the morning. If I haven’t heard from her by lunch, I will be calling her. After listening to all of your videos today, I now have a list of questions for my doctor, whomever will be my breast surgeon and for my plastic surgeon. I had the decision made a long time ago, before even getting diagnosed, that if I ever got breast cancer in one of my breasts, I would have a mastectomy and would also do a preventative mastectomy on the other breast as well. What’s funny (not really) is that they posted my biopsy results on Friday evening and after going into My Chart today, they’ve been removed. Seems like that was something that shouldn’t have been posted until after I talked to my doctor and someone discovered that it was and so they took it down. We’ll see what tomorrow brings. I would like to start getting a plan in place and some action being taken. By the way, I’m going to be 64 in July, so I have a few years on you and hope that I can handle it…. Oh what am I saying, I know I can handle it, plus I have lots of support. Thank you again for sharing and I will continue to watch going forward. ❤❤❤

Love that Dr. Hwang.

They told me this summer when my low grade DCIS was discovered that i was too young at 46 to sit and watch it. So…proceeded with lumpectomy and 20 rounds of whole breast radiation. On tamoxifen now. So annoying that there is not more concrete info for us women. Hopefully this is the start of something big so our daughters and granddaughters have clearer guidelines, and fingers crossed easier treatment, if even needed.

Mine was so weird and i am not sure which practictioner got it correct. Physicians are so scared of undercalling something that they overcall. Jan 2023 I had core needle biospy which showed inflammed benign papilloma. Well radiologist wanted me to go to see breast surgeon who at first was just going to take the entire papilloma only out. Well then month later she said let's get MRI since your insurance pays due to family history. Now I had been getting mammos faithfully since my mid 30's due to sister having it at age 50. Never one time with 3D mammo was anything seen on right breast and left breast was scar tissue from incisional biopsy 20 years before. Well MRI showed IDC left breast and suspicious area right breast mammogram they said missed it. Biopsy supposedly showed that the benign papilloma was actually invasive pappillary carinoma in left and DCIS in right. This surgeon recoommended bilateral mastectomy which I was scared and I agreed to. Rethinking if I made correct decision now because I also believe as a nurse and seeing healthcare doctors change for 30 years that sometimes patholgoists overcall things as they don't want to get sued. Now on left side where stage zero DCIS was post mastectomy got infected draines x2, hematoma, dehisced wound I had to pack for 8 weeks and now chronic pain and scar tissue in right side from incision to ribs --side which probalby could have been left alone. They scare us and I should've taken longer to research now I"m stuck.

I would remove it i knew women with stage 1 breast cancer back stage 4 so 🤷.

I don't know why Cryoblasion surgery is not used or a choice for dcis in the U.S. They always freeze cells that can turn to cancer on the cervix, no different with low grade dcis. I've heard women that have paid out of pocket and found a doctor that does cryoblasion surgery on dcis and those women seem to do a lot better after and in the long-run than women that have a lumpectomy.

To hear the end of this story, I just released it on my podcast, here on YT at “A Breast Cancer Diary” ruclips.net/video/OKieYf7xTy0/видео.htmlsi=vUY59xwAcojr5LiT

Can this help with cellulite reduction? Anyone tried it?

God bless you! You're amazing, strong, beautiful and so appreciated. Thank you for sharing your story. So helpful from your perspective. Best to you and your family on this journey.❤🌷🫂🙏

Was diagnosed with ductal er positive breast cancer in May of 2024. Had surgery and radiation then the doctor threw me on Letrozole. Was on it a week and a half then had to stop, it raised my blood pressure and cholesterol through the roof and exasperated a heart condition I have. Dr then begged me to try Tamoxifen for just 3x a week. Did that for two weeks then again had to stop. Same thing (although to a slightly lesser degree) but with many other awful side effects (my uterus felt like it was going to fall out of my body). Tried these for my family's sake (they wanted me to at least try them) but even my son could see how they were affecting me and told me to stop. Have not even told my dr. yet, but I just can't be on these medicines. Going to concentrate on diet, working out and mindset-and probably a new oncologist. It is a very personal decision though, every one is different and every situation is different. Just make sure you are do your research before you go on these medicines and (unfortunately) take what some of the doctors say with a grain of salt. I asked my oncologist about effects with both of these medicines and he just told me "they were very rare". I would love to throw him on these medications and see what he thinks about these "rare" side effects.

Is it cancer?

I agree, but ENDOXIFEN (not Tamoxifen! It's 50+ years old, and not the best option anyway) is 10x more effective, without any side effects, than even AI's. Mayo Clinic has pioneered this treatment (Not yet FDA approved, but it should be!) Please do google "Mayo Clinic Endoxifen, Dr. Goetz" PS. I had the tests, twice, which confirmed that Tamoxifen wasn't working, but Endoxifen was!

My oncologist made me feel like there was something wrong with me for not wanting a reconstruction 😢

I’m not happy with my flat closure. Will insurance cover a revision? Thank you.

That is interesting about mets cancer statement you found out in San Antonio. I had not thought about that before.

I worry about recurrence all the time. I had stage one oncotype zero and all negative nodes. I had bilateral mastectomy 8/2023. I had complications on right post op hematoma, infected drains, right incision dehisched and had to pack for 8 weeks. I now have chronic pain on right at incision/chest/rib area and I always worry about recurrence. Onc said very low chance but said she could could order bone scane for reassurance. I am trying to decide what to do. My brain tells me its' just chornic issue but I still worry.

I wish you the best, Kathleen. I've been following you since I was diagnosed with DCIS last February. After a lumpectomy, they found 3 small spots of IDC and ILC, all triple negative. I also found out to have the BRCA 2 gene mutation. I chose to go flat and then I had 4 cycles of taxotere and cytoxan. In October I ended up getting a bilateral removal of ovaries and fallopian tubes. Just a few days ago marked the one year after the dreaded call to get more images and I just noticed a pimple like growth on my chest, so I have to call my doctors to see what it is. I'll keep you in my thoughts and prayers for good news after your biopsy. Thanks for your videos.

Praying and hoping for the best and no recurrence. That is quite scary that even though some of us had Tiny ILC (4mm in my case, negative nodes and lymphovascular fluids) mets cld be seeded already?? So what is the answer to that? I read it is the cancer stem cells that are seeded. The AI’s do not get rid of the stem cells? I get pimples off and on too. I think due to my detoxing off and on from diff supplements I take. I wish I cld find a med oncologist I trusted and that was caring. I cld not tol letrazole and I am just not sold on taking such harsh meds, my onc is upset with me. I have known women that take them for yrs and then come off them only to have recurrence anyway and suffered so much while on them with decreased quality of life. I am 64. My trust of traditional medicine is at an all time low. Has to be a better way than blocking all estrogens, menopause has been quite a challenge. I am thin very active, and thin women do worse it seems. I am a health nut too, still got BC. Nursed 3 kids… Thank you for all you do. God bless you.

Checking in, how are you?

I agree with you. Biopsy was horrible! I had two and I never gona have one anymore no matter what.

Better safe than sorry. Wish you the best. Lots of love 💖

Thank you for sharing as always. Praying that your results are all positive!

Sending a big hug your way. Prayers all is ok. ❤️

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Hoping all the news is good for you, Kathleen. It is such a difficult time when testing is ongoing.❤

My diagnosis in this ILC MBC June 2023 is 90%ER+ 10%PR+ Her2 negative with +2. Ki-67 3% . I should have gotten next generation genetic testing because of being simtomatic mixed up with gall stone. I would get genetic testing a blood biopsy & get your tumor material tested and compare them before any treatment because with my ILC MBC to bone the Letrozole & Versenio combo failed then chemo pills called campectibine are not working neither now 18 months have passed since diagnosed with reoccurance. I have mutations in my cancer bone mets says AKT1 mutation in blood & tumor matched AKT1 both, CDH1 positive with e-cadherin loss due to ILC, ESR1 estrogen receptor has mutated as well. So I should have been on Truqap for AKT1 mutation & Fulvestrant (estrogen receptor degrader )all along. I could also take Elastrant alone is an estrogen receptor degrader. I have been researching my illness for past 3 months with research articles and the same simposiuns you have been watching & world wide simposiums. I know more than both doctors I've seen at this point. I had an FES petscan in Seattle last month which showed more than an FDG petscan. They have a proton radiation machine at Northgate it doesnt produce overspray onto surounding tissue very targeted radiation if needed. If you test positive for ILC i would get tested for CDH1 e-cadherin loss. I'm BRAC1 & 2 negative which was determined at original diagnosis of ILC stage 3C nodes positive under left arm & left side mastectomy in 2009. I'm following the science thank god i was educated in Biology, microbiology & virlogy in San Antonio, TX in 1970s. My virology teacher was doing cancer research at that time. I understand what i'm reading for sure. I live in NE Tacoma, WA and have since 1977. You have to research your own health because if you don't anything can happen. ❤Cancer is smart! So must we be

Sending you love and good vibes 🙏🏼♥️♥️♥️

Pray you receive good news🙏🏾 Merry Christmas & a happy Healthy New Year 2025🎄

I certainly hope you get the best possible news. I'm four months post-SMX for ILC and the hypervigilant fear of recurrence grips me every few days as I feel odd sensations in the remaining breast. Your videos are so helpful to me, especially information on lobular cancer. All I was told by my doctor was ILC is the second most common type, which sounded reassuring, but as I learned more about the percentages, stats and future prognosis I realized this will be a part of the rest of my life. I'm faithfully taking Anastrazole so far but don't love the idea that while it's helping prevent recurrence it's also doing bad things to my body otherwise. On the bright side, I've upped my weight bearing exercise and improved my diet in huge ways. Thanks so much for this channel and also your podcast!

Thank you for all you do! I was diagnosed with DSCI a few weeks ago, and I'm so thankful you have shared your journey. I have chosen to go flat. I've been large bested all my life and had planned a reduction in Feb. Never thought my reduction would come to this, but I'm ok with it. Watching your journey made my decision so much easier. Please continue to keep us posted on your health and know you are doing such an amazing thing by sharing with other like myself. 🙏 ❤

See description/notes for a survey being done this month by LBCA about Lobular Patients and Surveillance!

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I, personally am sincerely grateful for your podcast and your youtube videos! Thank you! I had a dmx with skin/nipple sparring and sadly was ill prepared and directed by my insurance appointed surgeon to have implants. Fast fwd, I had to have the implants removed (which I am happy not to have) and now have the ADM tissue pockets left, as well as the excess skin and nipples concaving into my chest…a mess. I am now in the process of navigating new insurance in hopes of finding new doctors that will listen to my concerns and wants of my body. I do not want to go through multiple surgeries and would like an aesthetic flat closure with chest wall construction. Ideally, I would have loved the goldilocks mastectomy, but DTI was the pushed method and sadly, I let fear (cancer) and the voice of my doctor as well as insurance make my decision. All this to say, I am so grateful that you are shedding light on the beauty of flat closure, the goldilocks mastectomy and all the other invaluable information that you so eloquently share. You give hope, confidence and beauty to so many!! Thank you! If I could be so bold to ask..if you were in my shoes, having the implants removed, the excess skin/nipple that is concaving into my chest, what would be your thoughts on the questions or the conversation to have with the doctors I will be meeting? Thank you for being a light in a path that is not always the brightest in times of doubt, confusion and misguided information or just truly not knowing what options are available.

Hi there, Thank you for your videos. I’ve been following you a bit and learning some things. I was just diagnosed with DCIS almost two month ago and I’m not sure what I supposed to do because I’m dealing with autoimmune disease Scleroderma and now this. I’m going to have to see a doctor for a second opinion in January 2th

I have so much nerve damange and I go to one of the best hospitals in nyc sloan Kettering and no one is helping me but going to to pain management and I don’t know what to do also I have chronic Lyme disease and maybe that don’t help me but this is no way to live

I never understood why people get mastectomies first of all you're taking out your boobs so that you won't get cancer but then you're replacing them with cancer-causing implants that have all kinds of chemicals in them and silicone and God knows what do your research you'll find out what's on the inside or the outside of a implant and then the other thing is she mentioned she was going to get a tattoo to cover it up ink and tattoo is full of lead and all kinds of toxic chemicals why would you put stuff on your skin like that that can go right into the breast people need to think and do more research

Im in the same boat as some here. Diagnosed with DCIS in left breast at large area. Had mastectomy. Pathology report says some part had IDC but all taken out with clear margins and limp nods are clear. Hormon blockers were suggested. Which Im not going to take! Im not going to make myself sick for 5 years with it.

Thank you so much for this video. It came to me a little late - I had an aesthetic flat closure mastectomy two weeks ago and am disappointed with the concavity. The skin is pulled tight over it but I can feel a soft hollow spot in the center. It seems likely that the skin will eventually settle into this crater. Not what I wanted. Maybe fat grafting could smooth it out. Anyway, I really appreciate how detailed and informed you are on these nuances. And thank you especially for showing your results, it really helps to see the two different outcomes in detail. I hope that doesn't sound creepy. This is exactly the information I've been searching for, thanks again.

Kathleen, I appreciate each and every video you have made. Your kind way of delivering such valuable information has meant so much. Thank you!

Red light therapy (I have a wraparound band) 3X day for 30-90 minutes each time really helped me heal with almost full sensation after less than one year! And now every time I get a pain I put the red light band on and it goes away within 10 minutes. Please! This is a non-Invasive very wonderful therapy!

Thank you for this video, it was so helpful. I am based in the U.K. and had a left breast mastectomy last year. I have asked for flat reconstruction / revision to get rid of some of the wrinkled scarring and dog ear. I too expressed that I had no intention of a breast reconstruction after surgery. My insurance company have turned me down. I am so frustrated by this as it would cost a minimal amount compared to a full breast reconstruction. The funny thing is, I would have been entitled to this revision had I had my surgery via the NHS, and I might add at tax payers expense. Complete madness!

I love your exciting approach in dealing with a flat closure mastectomy - thank you for sharing. You made mastectomy sound just like having a face lift!

Happy Thanksgiving from Tacoma,WA 😊 I had my first FES petscan yesterday at Fred Hutch in Seattle,WA I learned about on Utube all went very well waiting for results now. I took the oportunity to educate my care giving students about Lobular breast cancer. They will be getting on Utube to listen to the simposiums like on LBCA and peoples stories about going through there BC journeys. You look like your glad you finally received your prostetic breast. 😊❤

Thank you so much for sharing!

Thank you so much for this. I have my first chemotherapy round tomorrow and am already trying to decide between a lumpectomy and mastectomy. Of course the doctors usually think it’s almost silly to decide on a mastectomy because they always want to preserve as much as possible. But I don’t want to have radiation after the surgery, and I don’t want to have to worry about going through all this again because there was cancer left behind. Again, thank you for validating my initial decision.

So many stories focus on young people who are seeking treatment for their illness. Your story, however, focuses on what so many of us are really going through which is the journey of an elderly parent who chooses not to have (or can’t tolerate) surgery, chemo, radiation or other treatments. My mother is going through a very similar journey to your mom. She is 89 with Stage 4 breast cancer with Mets to her lungs, pancreas and kidneys. I understand how difficult your story must have been for you, but you are so fortunate that your mom was willing to be realistic about how advanced her cancer was and was willing to engage hospice. My mom refuses to accept that her disease is as advanced as it is and will not even consider meeting with a hospice specialist. She holds a lot of anger towards me for taking her to the hospital for a serious UTI and, later, for her initial cancer diagnosis and later the discovery of the Mets. She has irrationally insisted that she will take matters into her own hands when the time is right and just wants me to ignore her situation. Having been through the extended dying process of both my father and my husband I know in my heart this approach is not going to end well. But unfortunately, even with a medical POA I can’t do anything to get hospice involved because she is mentally competent and must sign the agreement herself. How lucky you are to have had a mother who wasn’t confrontational, who understood her situation and who accepted hospice with grace and dignity. I don’t know how horrific my mom’s final days will end up being and my heart goes out to anyone who reads this whose parent is stubborn and unwilling to face their diagnosis. I so hope that I will be more like your mom and less like mine when my time comes.