Is DCIS Really Dangerous?
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- Опубликовано: 7 окт 2024
- Please see links below for science of DCIS. Share it with your doctor if you are confused. This is a serious and high-risk debate worth understanding! Please join my email list if you are interested in my podcast: abreastcancerd...
Just another breast cancer survivor and advocate, here--don't take my words as medical advice please!
The term I mentioned in the video is spelled “Comedo necrosis”. And I have a video about it here:
Related Videos:
What I Wish I'd Been Told Sooner about DCIS (what is Comedo Necrosis?): • DCIS - What I Wish I'd...
What is Goldilocks Mastectomy: • Goldilocks Mastectomy ...
The playlist of my entire Mastectomy Story: • Mastectomy Story
Links:
The most comprehensive video on the science of DCIS that I've been able to find (which wasn't out yet when I got diagnosed!) is here... it is a pathologist's description of DCIS from a technical perspective, telling the story of how low grade DCIS differs from high grade DCIS and when comedo necrosis enters in: • DCIS - A Pathologist's...
This video illustrates the dilemma of over treatment for DCIS, which is the reason I was searching for information about why DCIS is sometimes dangerous and sometimes not: • 'Stage Zero Breast Can...
Here's a scientific discussion about the debate around whether LOW RISK DCIS is really cancer: www.ncbi.nlm.n...
And a similar review of the facts, published by Harvard Health: www.health.har...
The "active surveillance" study I mentioned in this video is called the COMET study. I wanted to participate in this study, but my DCIS grew too fast and I was no longer a candidate, which was my ultimate wake-up call. www.ncbi.nlm.n...
My Perspective on DCIS Three Years Ago (I was a little naive): • Lumpectomy Just in Cas...
The playlist of my entire Mastectomy Story: • Mastectomy Story
My professional RUclips channel is at / @seekingdeeperhealth
The land where I shot this video was once Kalapooia Tribal land. Join me by contributing to and learning from your own local indigenous farms here: www.soulfirefa...
NOTE: This description may contain affiliate links to products I enjoy using and have tested for quality. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
#seekingdeeperhealth #nwnutritionist #mastectomy #breastcancer #doublemastectomy #lobular #goldilocksmastectomy
SUCH a tremendous help!!! Thank you for explaining this. I did follow my surgeon’s advice of having an immediate mastectomy, but my head was swimming with doubt. Just THIS simple explanation has put me at ease that I made the right decision. All the best in your new podcast adventure. ❤
Glad it was helpful!
Yay for normalizing changing your mind on something when presented with new information! Awesome. I was diagnosed at the end of August with grade 3 DCIS and I don't qualify for a lumpectomy, very nervous for my DMX in a couple of weeks but I feel solid in my decision. Been enjoying your channel lately, thank you!
I hope your surgery goes super smooth and you recover easily as I did! I’m sure it will.
I was diagnosed with DCIS in February 2024, had a double mastectomy March 2024, the biopsy of the mastectomy showed it had developed into invasive cancer, and then with further testing my cancer is Her2 positive. No one expected this, no doctors, not me. I am grateful for my doctors and the treatment that I am on and I am hopeful for a positive outcome.
So similar to my own story!
If I had not chosen a DBL MX for my DCIS that was in 2 blocks, in the rt breast, I would not known about my 4mm ILC lesion in the left breast. I am 1 yr from that surgery I had on 5/24/23. I did have immediate natural tissue SGAP reconstruction. I am very happy with it. I just did not have what it takes emotionally to have a flat closure. We all have to travel our own roads with BC diagnosis for sure. Thank you so much for your videos. You have a calming demeanor and show such strength. I have yet to start an AI, I am small framed and 64 now. Have osteopenia, I walk every day and do wts. The risks do Not out weight the benefits. Doing natural approach. Using compounded estriol vag 3x wk. Tumor marker tests drawn every 6 mos now. . Oncotype DX score of lesion was low. Very Thankful. I did have the “DCIS-is -not-cancer crowd” say just wait and see. Carcinoma does mean cancer. It is invasive carcinoma if it leaves the ducts. IDC. ~RN here, not giving med advice either, just my story.
So similar to my story!!! Good for you.
(I take vaginal estrogen as well!)
Your experience is so similar to mine..am 64, a RN, 1 wk ago had dbl mx for DCIS 4.4 cm gr 3, in R, w/ comedo nx, st 0, found 3mm LCIS in L, have tissue exp in now, am so glad of my choice of surgery. Sorry about all the abbreviations!
@@AliceBuchanan-p9o LCIS and ILC are definitely sneaky! Hope you are healing well.
I was just diagnosed with dcis, grade 2 with comedo necrosis, no invasive found. Seeing a surgeon tomorrow. Thank you so much for your videos. Have helped so much. And have started seeing the sites saying dcis isnt cancer. Well, mine is, and telling people its ok makes me furious. They could be killing people. One that does this actually does consultations to sell HRT, you know, the hormones that specifically feed dcis. I am receptor positive, so in essence, she would be feeding dcis so it could advance faster, and telling people it isnt cancer. You have been a voice of reason in this. Thank you for sharing your journey.❤
It’s a very hard issue to understand because there is good evidence on both sides. I’m just so glad that I found a doctor who knew the latest. I went right to the source of the research-UCSF is where they began questioning and testing the theory that it may be less harmful. There are always so many shades of gray in these cases! Similarly, most women seem to do fine on non-synthetic forms of HRT. It’s very nuanced. Not as black and white as they make it seem.
I’m not going to wait a year to decide. I’m looking at options, doing research and watching videos and taking notes! God Bless😇
Good choice!
I was diagnosed with DCIS (high grade with necrosis) on 3-25-24. I had extremely dense breast tissue with DCIS on the left side only. I chose to have a bilateral mastectomy with reconstruction on 5-6-24. I wanted to avoid the possibility of it becoming invasive and needing to have chemo or radiation. I have met several women whose stories served as a warning to me not to take this lightly.
I will be forever thankful for your videos. No one ever discussed the grades or the importance of necrosis with me. Knowing that was present made my decision easier. I found your videos immediately after my diagnostic mammogram showed what was likely DCIS, so when I read the biopsy report, I knew what to look for. Thank you!! Please keep doing what you’re doing. It is invaluable!
I too was diagnosed with high grade DCIS with necrosis on left. After 2 lumpectomies the surgeon kept finding more DCIS and invasive cancer. I had to push for a bilateral mastectomy and am so glad I did. Undetected DCIs was found on right side . Many mammograms and mri could not see DCIS.
Sounds like your inner compass is right on. So glad to be of help!
Hi Kathleen,
I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably.
I would like to share the diet with you.
The soup
Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat.
Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready.
I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame.
(Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.)
During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame.
It seems to be working for me, maybe it will also work for you.
I pray to God the Father in the name of Jesus Christ that you will be cancer free. Amen.
I would also like to share the following six videos with you about salvation and two videos about evolution:
Evolution vs. God
ruclips.net/video/uc_W9VtzJ0A/видео.html
DESTROYING Evolution In Under 3 Minutes
ruclips.net/video/sWecPwrQv2c/видео.html
Watch the Holy Spirit Work in Her Heart (Very Moving)
ruclips.net/video/iBEoI2u6kII/видео.html
Fearing The Lord, God’s Discipline & Sharing The Gospel
ruclips.net/video/dES5WW66Mro/видео.html
A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven
ruclips.net/video/IXEeMWCxyrQ/видео.html
The Plan of Salvation
ruclips.net/video/PmkhRMPvt_0/видео.html
How to Get Saved
ruclips.net/video/ajWdkuvrT6s/видео.html
The Truth About Hell (Selected Scriptures)
ruclips.net/video/AVzbh_dLq3s/видео.html
Best regards
Chris
“For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible)
Jesus Christ is the only begotten Son Of God the Father.
Oh my! This is a lot! Thanks Chris. I'm a nutritionist--my other channel is all about food!
I feel I was let down by my surgeon at the beginning of all this. As you described it I had the worst type of DCIS. I should have had a mastectomy, I would have chosen a mastectomy, had I understood any of this. It is shocking to me how much patients are left to fend for themselves.
I'm so sorry to hear this. Yes, many surgeons are burned out and not very caring, I find. The others are the opposite. Such a mix!
I had DCIS on the right and stage one er+ pr+ on the left. I chose double mastectmy. By the way, love your glasses.
Thanks Jessica!
I was diagnosed with DCIS in early May and I had surgery at the end of May. I just completed 3 weeks of radiation therapy. I saw an Oncologist today and he said that whether I take Tamoxifen or not, my outcome will be the same. It bothers me when doctors push medication and I realized that it worries me when a doctor doesn't recommend a medication that they say will continue to decrease your chances of a recurrence.
Look this one over. It's really good! This thought of yours is echoed in the last few minutes of the interview. ruclips.net/video/aGsoTuCNBoo/видео.htmlsi=UQgVbSHwE2vsFB74
I wish you all the very best. I wish I had seen your videos regarding the various mastectomy options before I had mine as it would have been most useful and I would have looked into my options much more closely, and most probably have chosen a different route. You offer some very valuable information to this community and I thank you for that.
I love learning and I’m so glad it’s helping you too. Stay in touch!
As a nutritionist how do you feel about animal products and breast cancer and it’s aftermath?
I only eat wild and pasture raised organic meats. My husband hunts and so I know that I'm not getting a pregnant or lactating animal when I'm eating larger-scale red meat. That's important to me.
I being referred to a general surgeon. Is that what I should do?
I would get a referral to a breast surgeon. I didn't feel comfortable with my referral to a general surgeon. I felt that he wanted to remove more breast tissue than was necessary and I believe he really would have disfigured my breast. I would definitely recommend that you try to find a female surgeon.
I wholeheartedly agree with Theresa!
DCIS - chemetochronosis
Yes, Comedo Necrosis is the term.
Diagnosed in May 24, had lumpectomy a month ago. Not sure what’s next but apparently radiotherapy. Trying to find someone who had something similar to hear about their experiences.
@MarinaBlackford here on youtube shared her rads journey a few years ago I think. Sending you hugs!
Ok so I just fell upon a new follower of mine who is heartfully and masterfully sharing her rads journey on insta @merymeryl check her out sister! I’m sure she’d love to be there personally for you as well.
What is chemetonecrosis ?
Comedo Necrosis. It is when the cancer cells in your ducts are dying but also getting crowded.
Thank you so much. I have been just dx and did have a lumpectomy. DCIS Grade 2. Now I'm waiting for my followup appt.