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REQUEST A SPECT CT!!! It will show the hot spots in your spine and provide more information.. Artificial disc's above or below the fusion would stop adjacent segment disease, id consider going to Germany if i were you, that's what i did, twice!! 🇩🇪 👑

Hi - your WhatsApp- or telegram contact

5 weeks today 345 fusion. I'm laying here with my turtle suit on. Today im going to try 2 miles on my treadmill. You are a breath of fresh air, I can see where you are at now. Thank you

It's so hard Thr pain itself is scarey . I have had this since 20. I am now57 and have had 5 surgeries. They want to take out all rods and realign and fuse entire spine I understand the fear. All I can do is pray You are so young you will bounce back great. Prayers.

Hi Kim I find you videos very informative regarding your ACDF surgeries and you sharing your experiences! I recently had one of a two part ACDF surgeries, Sept 9th 2024, C2 thru C7 The second part of the surgery is still pending, might possible take place after the first of the year, multiple reasons for delay’s in 2nd part of surgery…. Thank you for sharing in detail your experiences, !!

Hi. Do you mind sharing your MRI image? I got mine done last week and it doesn’t look good. My fusion area (same as yours) is protruding a lot and my chiropractor asked me if it’s hard to swallow. It’s been hard to swallow since surgery (Dec 2020). I have pain daily.

Kim Have you been tested for Lymes , Epstein Barre, MS?

Kim you will be fine, your youth will help you get through. May god speed in your recovery. Remember you have an option Unlike you don't have an option. Be comforted you are hitting in the right direction. The wait have been achieved and now undergoing better less invasive procedure. This what waiting patient and moving at the right time to have the lastest most effective surgery. Again God speed in your therapy

I just had a one-level C5-C6 fusion with Dr. Marcotte @ HUP on 9/10/2024. I would recommend him to you. His whole office was great and very efficient during the whole process of being worked up for the fusion. I had gotten my first opinion from him and then a second opinion from Dr. Harrop at Jefferson. Both recommended the same one-level fusion for the herniated disc at C5-C6. I had neck and shoulder pain with numbness and tingling into (mostly) my L hand.

I wanted to continue my thoughts and prabears for you.I'm going through h*** with my back.My neck is fine.Thank God I hate that you're going through this. Just do the right thing and choose the best person

Hi , it's been a very long time since i've seen you on video. I had my next surgery in twenty one and everything is great except my lumbar. Alot of pain everyday in my lumbar. It's affecting my daily life on the 27th.I'm gonna get put to sleep and they're gon to give me some shots Physical therapy does not do much for me.I'm so sorry to hear of all of this troubles you're having you're so pretty. Don't cry

This is my issue I’m so weak I’m struggling to lift my arms it wakes me up out of my sleep when I toss a turn cause I have a hard time lifting my arms my body fells like a ton I’m supper off balance and I have so much pressure in my head and my neck fells like jello and fells like it’s just flopping around and it’s scary and there still wanting to me to try the physical therapy and the pain management and the steroid in the neck and then surgery but I fell like I neee it now I’m really bad but I fell like where I’m young no one thinks I’m this bad can you give me some tips of like stuff you take to help with like bone strength and the exercises you do with you neck cause mine is very flimsy and I’m having to hold it up with my hands it’s so bad I’m only 24 and have all these issue also my daughter not even in school yet makes me nervous I don’t wanna be the one that has to lay in bed not able to go do things with her 😭 I’m crying with you girl I fell so bad I’m so depressed and sad and just fell so helpless and that’s the same for me everyone like don’t do it I wouldn’t do it but it’s 2 years and I listen to everyone and now I’m supper bad off of you ever need someone to talk to girl I’m here cause I fell your pain

You should try regenerative medicine if you can! U might have a chance to avoid surgery stem cells prp and prolothery and doing at least 6-7 treatments.. hitting discs qnd more

What’s your nerve conduction test result?

I think we had the same issue after my c3-c5 infusion last year. My c5-c6 is protruding and i might have the surgery on the back rather than the front.

Hi This is Tim I am going to have a 7 level fusion surgery from c-2 - T 2 what surgery did you have and how is your recovery going and what level’s did you have and mine is going to be in the back of the neck .

Thank you for your update. Praying you have a good team after all your consultations and see a clearer picture. My surgery was 3 years ago. I had both front and back done. Numbness remain in my hands and feet. I'm using a walker. 4 plates and 12 screws. I keep asking myself how I got here but it doesn't really matter anymore. I noticed that taking supplements help like MSM and I drink Kombucha daily. Hang in there; get the answers youre comfortable with in your heart. You've got this.

Awesome review, Thank you! Being gorges makes it more positive , thank you!

I had my C4 C5 and C6 done three years ago. I’ve been having a ton of pain and went to my neurosurgeon, which told me I needed myl5sl in my lower back done same as the neck.well then got call last week that I need my neck done over and I have to have surgery in January. I have been losing feelings all on my left side and I’m very nervous about the surgery again so I’m very happy you’re doing this video. Yes tension makes it 100 times worse and all I’ve been doing is laying down very limited in motion or sitting in my recliner and I’m in constant pain, So hard to cook or just even make a cup of coffee and I’m 45yrs old.I don’t want to get the surgery done again because of how much pain and healing it took afterwards so I appreciate these videos because I am so frustrated myself. I believe in Jesus so I know that’s were my strength is coming from. Also 5 children and 3 grands that need me moving. It’s getting worse as the cold hits but just want to be going out to my kids events and traveling in less pain. Praying for your pain and healing journey 🙏🏼

Wishing you the best, Kim! You have a community of people here that are on your side! I think the best thing that you can do is what you said- stay positive. I am sure it’s not easy. It really does make a difference though. Just try find something positive from this and focus on it. You’ve got this. You are one of the strongest women I know. You have friends and this community that will help support you.

I was same boat as you. My cervical spine in 2021 had herniated disc at every level plus arthritis and a straight neck. I was 50 at the time so the surgeon only did five through seven first then a year later did three through five. Now I have 12 screws and 2 plates. The adjustment segment problem is a real thing specially if you’re spine is already weak good luck.

Hi Kim, I'm sorry to hear about your situation with your recent MRI and Dr appointment. I have a few questions for you regarding the cervical spine. I'll try to make this as short as possible. On Monday of the upcoming week, I will be having Surgery on my Cervical Spine. I'm getting a Disc replacement on 3 levels and a fusion on 1 vertebra. The reason is that I've lost 80 to 90 percent of strength in my right arm/hand and it's getting worse. I waited not by choice 2 years for this day, now I'm frekin out shittin' loads, I'm so scared I can't stop thinking about what if it doesn't work will my strength come back will I be able to go the Gym and lift weights again as I did before this. I'm getting anxiety badly and I'm so frekin lost. I don't have neck pain, I have a strange feeling in my Arm/hand. Will I have my strength again is my nerve going to get better once the damaged Disc is replaced?

I’m 3 weeks out my 2 level acdf and I’m already telling myself why tf did I do this. It’s worse! I too have all the things you mentioned and now my lumber is been horrid! My arms are at about 30% function weakness it really and scary! . If I didn’t have my sister I would be screwed.

Jeff neurosurgeons are top docs and their neuro hosp is a 5 star experience. I have life experience of the same story and medical knowledge. I would Get the surgery scheduled. Start pretesting. Dr M is highly recommended and will likely recommend the same plan. It seems like the least risk to stabilize the highest level. You are having too many symptoms and are at risk for permanent irreversible damage. You can rally up help as need be. Do not worry about future unknowns. You do understand what you need to do. Some of this anxiety will turn to focus when a second doc explains you really have no choice. Hyper mobile persons need to limit their range of motion on exercise. The goal now is stabilize and prevent irreversible. You are more experienced so expectations will be more realistic. You will know how to manage better. You got this! Praying for your best outcome and recovery.

Hang in there Kim, you got this

It's OK to be scared. I hope you also listen to what your body is telling you. Be very verbal & descriptive with your medical team as that is what they need to hear to do their best. I'm heading back in in February for hopefully my last round and am anxious myself but optimistic this is my last pass too. Mahalo.

Dear Kim - sorry to hear, you’ll have to go through an operation again. I hope the best for you 😘 I have C7 surgery scheduled on December 16’th. I’ll have a cage inserted . I hope it will take away some of the pain/numbness I am having…

Don't lose hope, Kim. I have a 3 level ACDF as well. Still not normal after 3 years. Hope is a choice we HAVE to make or else it's a dark bleak spiral. Who knows how surgery will improve in 10 years. We might be ok in the future...let's hope.

You know staying positive is the best thing we can do, and help us heal as fast as we can. We are both in the same boat with our spines. I had c-3 though c-7 4 weeks after you did, and this past march I had s-1 though l-4. Now i'm going back to the dr next week for my neck to see what is going on. It sucks, but like you said we are young and we will get though this as long as we stay positive.

I pray for you. I just had my surgery with Dr. Riew. ACDF C5-6 and disc replacement on C6-7. Anxiety for the unknowns is tough. I wonder if you there is an underlying rheumatology issues related to your hypermobility that can be addressed so you dont decompensated as quickly in the future. My nutritionist suggested i use premier protein shakes during my recovery and increase my nutrition stores ahead of surgery. Going through spine surgery alone is a big undertaking. It sounds like i will be in the midsts of my recovery while you anticipate going through yours. I can share some of the recipes ive been using for my recovery if that would be helpful.

I just want to sit here and tell you "It's going to be okay." But being on the receiving end, I know that's often hard to believe after everything we go through. Anyway, thank you for sharing this because I'm feeling the exact same way. The fear, thinking about your future, dwindling hope, anxiety in dealing with providers, etc -- it ALL sucks ass. It's good to talk through this shit. I appreciate you sharing and it helps to know that I'm not alone in feeling like this. Sending good vibes your way 💜

I know this is arm-chair quarterbacking, but you might at least consider getting an opinion from a surgeon who does artificial disc replacement. VSI in Reston, Virginia specializes in that area. You may need to pay out of pocket because the are out of network but they are very, very good. Also, they are able to move very quickly if you want them to. I believe they do virtual consults but you are relatively close.

Morning Kim❤ so sorry to hear this news. Get it done asap. I waited or tge insurance/ dr for 4 months from diagnosis. Nerves don't heal. They stay squished & could get worse. My experience. It is scary but think of your future. Please do it. I'm 20 years older than you & my 2nd cervical fusion C3-5 & previously '94 C6-7. My neuropathy is worse from last year. We are here for you. Please keep us updated.💕

Home after 7 weeks in hospital on various feeding tubes, still on the tube at home but swallowing now so hoping to get it removed soon. The good job is that it seems worth it as my symptoms have improved. Had c3/c4 and c5/c6 replacement and fusion, other than the swallowing complications i think that my operation was a success, constant headaches have gone aswell fingers crossed

Hi Kim - just stumbled across your latest. I am a C4-T3 (8 levels) spinal laminectomy. I can say from my perspective that nerve issues do not get better on their own. I suffered a sudden spinal epidural hematoma (tore blood vessel in my spine) in SEP 20 (right after you) and after several days of the worst back pain I can imagine for a week I was effectively a paraplegic. Surgery next morning and it's been a little over 4 years too. I'm not running 5Ks anytime soon but I've had neuropathy below the knees from the word go and now it's just my new normal. I work, drive, go out and fly to see my clients...back still gets tired between shoulder blades and still facing other complications but it beats what I was looking at. I felt compelled to comment (which I NEVER have before) as I know EXACTLY what your facing. I will say it's one day at a time and I've learned through my trip that my happiness bar is pretty low. I appreciate things a lot more and I hope that you can see that too.

How old are you

Sound like you didn’t have a successful outcome

Did you have a epidural steroid injection?

Cervical fracture summer 2018. ACDF surgery C5-C7 January 2019. I have been a high speed and impact sports athlete since youth. Beat the living shit out of my body yet have been in above average shape up into my early 50s. Motocross racing accident resulting in complete multiple fractures of C5-C6-C7 that almost killed me. I am what is considered an incomplete SCI survivor. I think I might be suffering from potential hardware failure this year (2024). Commercial transport pilot before injury and just as I was getting my shit back together covid hit and caused massive furloughs throughout aviation. Unemployed since accident, exhausted all savings, insurance expired and currently hanging by a thread = fun times!! I too was given various medications and had to stop all of them after the first year due to the insane side effects and symptoms. Been battling through this hell ride clean, sober and with nothing to help the pain for a day of escape. If I am told another surgery is needed to fix potential issues I will be looking for a tall tree and some rope (just kidding). Seriously though no way am I a going to have to start all over again if I can avoid it. The big struggle is that I am experiencing bizarre symptoms: autoimmune flares, rash, throat pain and constant coughing. It is like my body is fighting something and trying to reject whatever the hell this is? I did some very, very mild inversion table therapy this year and I swear that had better not caused any damage?!! Did some two years into this and all was fine per X-rays and it strengthened my neck muscles well. Sorry for the long babble, but others going through this helps the suffering by way of force in numbers.

So I seen a new neurosurgeon but he wasn’t there that day it was his assint so she wants me to do physical thearoy witch I don’t see helping then she said if that don’t help pain management then she said if that don’t help then injection in the neck then if that don’t help surgery 😩 I fell like none of that gonna help but ig ima give it a try

I have has so much weight gain because I’m a driver and avoid everything do to pain. It hurts to work out at all. What do you guys do stay fit. I relate to EVERYTHING YOU SPOKE ON. Having surgery c 4-5 5-6 tomorrow. Thank god I now live with my sister and her husband and she helps me so much. But my weight gain and health has declined badly. Now have arterial stenosis (medium). Sorry rambling but I am afraid. Very afraid

You look like my favorite actress"Alia Janine"

Autumn I have a bunch of posts from my 9/4/24 there are all my mistakes and tips.

I also that I was not eligible for disc replacement or laminectomy with spinal cord compression they said fusion and discectomy. I’ve had some increased burning and numbness in both hands and forearms I was hoping that it was nerves beginning to heal and hopefully not, becoming more damaged. I wasn’t really expecting pain to go away because they said it was just to keep me out of wheel chair however, that degeneration was supposed to start with hand and arm issues and it seems like that’s what’s scaring me now … 6 wk follow up next week

Thank you so much, good to know.😮 started taking Gaba again since lots of burning in my fingers hands …. 3 lbs in 1 week.

Lemme say that’s a beautiful hair color. We have the same levels fused. I’m not as resilient as you. The only difference after my surgery was my upright standing posture (similar to a soldier) used to send radicular symptoms down my left side that’s gone directly after surgery. Now I’m dealing with the slight fatigue feeling in my deltoid and bicep. Im not sure if my arm is going to be normal again. It’s only been 4weeks so it could be too early to tell. My index and mid finger is still having slight discomfort. “””I wish I could be as sane as you dealing with this. I’d like to know how long did you have symptoms before you had surgery. And did you have any atrophy???”””

Love you candor! ✅my 9/04/24 Acdf 4 spinal stenosis, mylomalacia, 5-6-7

Shower chair helped. Also keep stuff up off the floor cause you don’t look down as much for a WHILE