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Thank you for sharing your story. I’m considering along with my surgeon whether this is an option. I’ve had 14 surgeries so far and I just had stoma surgery a month ago but it hasn’t cleared out the initial issue. Anyways I hope you’re healthy and happy and doing really good

Thank you, your information is valuable to me as a two week ileostomy ‘owner’. While this i’gift’ is certainly not one I would’ve ever wished, or wanted, it was medically necessary. I am adjusting to this new lifestyle. I’d like to know if you, or anyone of your followers can recommend any incontinence underpants for ileostomy possessors? Thank you. All tips welcomed.

Did they do a pudental nerve block as well? Did you have pain/flares post Botox procedure?

Hello there.. My grandfather had a colostomy bag just 3 days ago after his surgery. The doctor advised that he couldn't eat anything or drink anything unless he passed some gas..any recommendations on what to do so he can't fart aside from walking?

Thank you so much for your information 🫶🏼

Thank you i have felling the same way you describe. You make undersant better e do not fell so alone,

Congratulations!! You are such an inspiration and so beautiful. I will pray for your pregnancy. Can’t wait see pictures of the little princess

Congratulations🎉

Your video is by far and away the best one I've seen. Clear and concise information. I never thought about a heating pad. Thank you for sharing. Best wishes .

I’m so glad you did point out about the support groups and how there can be a lot of negative but doesn’t mean it will happen to you. I have an upcoming surgical consultation and am excited about getting my life back. I also have UC. Some posts are so scary though. Loved your video and so glad I found you.

Hi

I just got my Botox injections 3 days ago and although it’s still too early to say- I am pessimistic that it will work. I still feel the same and I feel so depressed over this. I was told to give it time, but when your in so much pain and when it’s affecting your bladder and bowel function it’s easier said than done. I am hoping for a miracle abs hope that it is just taking time to kick in but will eventually start showing improvement. Can anyone tell me how long they had to wait for some signs of improvement and if it eventually helped them relax the pelvic floor permanently in conjunction with pelvic floor therapy. If so how many cycles of Botox did you have to go through. I know Botox is a temporary fix, but is it possible to eventually permanently relax that muscle over time with therapy and injections. Please any response would be appreciated. I can’t believe this is the only video I found of a real life person experiencing the same thing.

Is it coloplast ?

Cant we exercise with the ostomy surgery ... I miss my good shape

I found this very helpful. Thank you!

Very helpful information for other people with the same surgery. Great help.

I put some water in my bag after I empty it to make it cleaner then use tissues to clean out the opening.

Can you explain the dosage

You people dont have muslim shower in your toilets .... That is not an issue with me

Informative ❤

Best video ever thank you!

I've had my colostomy for 3 1/2 years and it was a big change. I didn't feel comfortable changing my own bag for months. I had a home health care nurse do it until one time it leaked and I HAD to do it myself. Ever since then it hasn't phased me. I change it in the morning before I eat because the minute I put something in my mouth, it starts doing it's job.

Thanks so much for posting this

Hi I have that problem and Botox hasn't worked for me. I don't know if it's because they don't inject it every three months.

what was the cost?

Could u twll me how it feels duri g first wk

In January 2024, I am scheduled for a Mona Lisa laser treatment, and my gyno recommends me to do Botox a long with it. My issues are fissures, reoccurring UTIs and yeast infections and it’s been a vicious cycle. I had a lot of treatments and hormone creams to help with the fissures but it does not cure it permanently. She recommends doing the Botox on the perineum area due to the tissue being super thin and reoccurring fissures. Honestly I’m scared to do the Botox down there, like what are the side effects? Can it negatively affect me long term? Or visually make it look different? I have been doing research and I came across your video. Thank you for sharing your experience and follow ups.

Thank you for sharing. I’m having my first lot of injections in 2 days and I’m a bit nervous. I am getting out to sleep for the procedure. How much pain are you in after the injections and the following week? I started experiencing pretty bad pelvic pain 2 years ago after catching covid.

Male/cacasian/35yr I got mine 9 days ago. So far no changes what-so-ever. My pelvic floor is apparently made of steel.

My stoma changes shape & size every few minutes so I have problems getting hole in my stoma bag to fit properly.. between cutting the hole & sticking it to my skin my stoma will have changed I can never get it right.. also my stoma seems to constantly loose output or yellow stomach acid.. this gets me upset & very stressed as it burns my skin.. makes it sore & also can take sometime up to 1hr 30 mins to change my bag.. Its 15 month since I had my stoma operation..

My surgeon said I can sit on my butt, go figure!!!

Thank u & I’m sorry for your life experiences. I have Levator ani syndrome which 6 months of pelvic floor care & dilation has not helped in one specific area left of “bottom”. Considering Botox injections. Anyone else who can share experiences??? Thanks from Canada

Have you done PT with the Botox? That may help make it last longer. PT with the botox has been more successful after my injections. I can't believe you get them while awake. My doctor sedates me! I'm tempted to try without the sedation but I am also really hesitant to do anything that sets off my nervous system and tells my muscles to start guarding again. I don't know if being consciously aware that it hurts makes a difference in that or not though. Obviously it causes painful senstions, I'm just not aware that it is happening.

How did this go almost a year out? I've been having pt 2x a week since mine and the injections have made a huge difference in relaxing my pelvic floor. Its been about 6 weeks and symptoms have been constantly changing but generally getting better. Nearly pain free and bladder symptoms gone and post BM pain nearly gone too. My PT said that the muscles are really responding differently since the injections and she's really hopeful it will lead to permanent solution. Meaning that my pelvic floor will learn to calm the heck down now that I've had sugergy to remove what was causing problems for so long and we are now teachign the muscles to not guard all the time.

💛

Thank you very, VERY much for this presentation. I really appreciate the clear and straightforward way with which you present your advice and experiences. There was definitely some new information for me here and also just some shared "oh yeah" moments that made me realize that I'm not the only person on the planet suddenly dealing with this. Also, you have a really engaging, natural on-camera style. I had my procedure 1/16/23. It was followed by many post-op complications and several extended hospital stays. Things have finally started settling down and I'm really happy that I found your channel. Many thanks!

How long pain relief did you get?

Hi there, I’ve had an ostomy now for 12 yrs and I’m going to say just one thing. Please don’t use baby wipes. Even though they are fragrance free & hypoallergenic there are ingredients in them that break down the adhesive. If you do still use them, please rinse them well before using😊

Thank you so much for sharing this. My boyfriend is about to prep to have this procedure done and isn't the most comfortable in facing the fact its happening and/or wanting to talk about it quite yet. I'm doing as much research as I'm able to look into how I can help him when he's home recovering. I know the hospital stay will be longer this time around but the fact after this one we should be done is a big relief and hope. Again: appreciate you sharing this.

Goog bless you

Also, I'm so sorry you have been through so much!

Thank you for posting these videos, I am just now hearing about this treatment and appreciate your opinion on it!

I had botox injections in my pelvic floor almost 3 weeks ago. So far it hasn't helped. I feel sooo defeated! 😢 I am doing PT with no improvement. I am grateful that my insurance covered all of my treatment!!

I feel your pain!

Thank you!

where did they give the injection ? bladder or pelvic muscles

Great video. 2 questions. Did you have a wound vac? How did you get out of bed without sitting up first?

God bless you - hoping you are now mended and able to get on with your life. You are an inspiration go other young people with disease.

I’m due this surgery next week. So far the only info I’ve had is “the wound often breaks down and we don’t give cushions in hospital, bring a couple of towels to sit on”. Nothing more. Thank you for all this information. The info on you tube has been so helpful in trying to get prepared.

I will be having a colostomy with Barbie butt in a month, this is SO helpful!! Thank you!