Are you in need of additional support along your dementia care journey? Feel free to join us in the Treehouse where you have access to a wide array of resources and support all in one place | www.letsbambu.com/treehouse We look forward to welcoming you! 💜
Stage 1 equals none. Stage 2-is just you and Stage 3 is me, meaning people other than myself can notice. My father was recently diagnosed with Alzheimer, and I saw the signs about a year ago when I was staying at his residence. Just recently he has been officially diagnosed and even though I knew this was the case it is still upsetting. I thank you for this channel as I am learning as much as I can,
These videos educate better than I've found before. I like your use of multiple examples which are valuable in discerning where my person is in the journey. I also like your brief reviews at the ends of each section.
Very well done! My husband is definitely in stage 4, and this helped explain what to expect at stage 5. Thank you for the information, and the excellent way you presented it.
You've explained things and given examples in a way where I can relate to the stages because I've witnessed my husband go through this. I believe that I'm now seeing is him slowly transition from stage 4 to stage 5. Thank you for your videos.
I’m glad you were able to relate to the stages as I explained them! I wish you lots of love and light on your dementia care journey! 💙💙 you are very welcome!
You are a clear, concise speaker. My husband has gone from stage 4 to a stage 5. While you were speaking about stage 4’s, I was reminded about my husband and how we had to get the state to take his drivers license away. He was a terrible driver, but he was so absolutely angry he actually threw the letter at me! I can’t see how I could have gotten him to agree to give up his license peacefully. I would appreciate any advice!
The topic of driving is such a big topic and a sensitive one at that. I do plan to talk about it in detail at some point. But, the biggest thing to keep in mind with driving is that when someone takes a way a license, the keys, or a car...they are taking away way more than just these 3 things. For many people, driving is a big expression of independence and self-sufficiency. "I can go where I want, when I want. And, when I'm done, I can leave when I want and go wherever I want next." So, once their access to driving is taken away, all the things they like to do in and with their car is also taken away. As a simple example, I love driving to a fast food place or ordering take out from a restaurant and eating in my car while watching Netflix on my phone. My mom hates that I do that (it makes her nervous). But, it's an experience I very much enjoy and I do it quite frequently. Well, if someone takes away my ability to drive I'm now losing that experience too, UNLESS that person knows that about me and helps me continue on that experience. So, everyone has their different reasons for being attached to driving. So, my advice is always to start these type of conversations early on and asking the person what they like most about driving and if for someone reason they no longer were able to drive what experiences they would like to be carried over, if possible. For some people it will also make sense to explore other alternatives for transportation. But, the key is that it's a collaborative process and it doesn't feel like someone is just swooping in (what feels like out of nowhere) and taking something away from you. Because again, driving isn't just one thing, there will typically be several, several, several things the person will no longer be able to do unless others facilitate it for them.
I thought you explained these stages very clearly! By what you said I think my 87 yr old daddy is in stage 5. I fix him a good healthy meal and a few minutes later he’s looking for something else😏. I keep sliced fruit, mixed fruit cups, bananas, in the refrigerator for his snacks between meals. He can still take a shower if I suggest it and set everything up( towels, water temperature etc).He can still dress himself but he puts his pants on over his pajamas and he wears his pajama top like a shirt all day. Since he had an ischemic stroke in 2020 his confusion and paranoia and sometimes delusions have gotten much worse. He is starting to mistake me, his oldest daughter/caregiver for my mom , even though they’ve been divorced for 26 yrs. In his mind right now he thinks they’re still married and that us 5 kids should be home too( we’re all married 40+ years)😏. Thank you for your expertise 🙂 8:02
Thank you and you are welcome! That sounds about right! With dementia and the changes happening to the brain, one thing we often see is that there are also changes in the brain's ability to interpret hunger and thirst signals. So sometimes what we see is "overeating" or never being satiated (always searching for food) or lack of appetite (never feeling hungry or thirsty, even if they actually are). I'm glad you keep healthy snacks readily available for him between meals. Do you favor your mom when she was younger?
Thank you so much for your guidance. I believe my husband is in stage 4-5. He often says he’s confused and notices he is changing. He thinks he knows what is right for him and becomes argumentive when he tries to do what he did years ago such as lifting heavy grocery bags. I’m actually stronger than him. I look forward to listening to you again and your expertise on how to handle this frustrating and selfish disease.
Hi Vivian, thank you for stopping by and taking the time to comment. That is understandably a tough situation. I hope you will find the content we put out to be beneficial to your care journey! You may also consider joining us inside the Treehouse (letsbambu.com/treehouse) for more streamlined access to our content and resources.
My neighbor is in stage four. She has no one here to help her. Her family lives in other states and as far as I can tell they don’t want to help anyway. I don’t know how much I lawfully can get involved, I check on her twice a day, I don’t know what to do. I also watched your video on not being self aware Anosognosia, she is definitely there. What more can I do to support her and keep her safe? Thank you, Gloria
Supporting someone in the early stages of dementia can be tough, especially if they aren't aware of their deficits and challenges or aren't open to help. It's very kind of you to check on her twice a day! Sometimes the best help is quiet help. When you are over there, taking mental notes of what it seems like she may be struggling with can be helpful in coming up with a potential solution. For example, if it looks like she's forgetting to eat or there's a lot of spoiled foods in the home, bringing her over food to eat and just make it seem like nice a gesture could be an idea. Like, I cooked "whatever" and thought we could enjoy it together. If she's "not hungry" just leave her a plate a label it so she doesn't throw it away because she doesn't recognize where it came from. If she can still safely cook, but doesn't do a great job with staying on top of groceries, saying "Hey, I'm going to the grocery store tomorrow, do you need anything." If she says no, you can still grab her a few things you know she eats and are simple to prepare (like something microwaveable, for example). If you are concerned about her paying her bills on time, you can frame it as a friendly conversation like...I was having a really hard time keeping up with my bills, but I set up autopay and it really helped or I created {insert system} and it really helped. How do you stay on top of your bills?...Have you ever tried {insert system}? I could show you, if you want! Of course, they still could say no or not open up about challenges out of embarrassment or just simply not being aware. But, it's worth "sticking a leg out" and seeing what comes from it. Are there any specific challenges you are noticing?
help her however you can. keep an eye on her and check on her every day. help her with things like shopping, washing herself, and taking medications if you can. Keep a hand-written log of your assistance.
Bless you for being such a great friend and neighbor. You may need to reach out to APS so they can get a social worker involved in coordinating care. There will likely be a point when her needs surpass your ability or resources to help.
Thank you for sharing My husband has Dementia and I can't relate to everything in this video and it's very difficult and challenging to cope with Hallucinations/ Paranoia accusations daily Unbelievable
You are welcome! & That's definitely understandable. It is really hard! We will actually be doing a webinar on the topic of hallucinations and delusions sometime in August or September. If you're interested you can sign up for our newsletter at letsbambu.com/newsletter to be notified when registration is open for the event. And, all of our webinar replays are always available inside the Treehouse at letsbambu.com/treehouse We also have a podcast episode on Dealing with Accusations here: ruclips.net/video/s6VEHurKEGk/видео.html 💜 Thanks for taking the time to comment!
I found your channel 2 years ago when my father was Stage 3/4. I'm back for a refresher now that he's crossing into Stage 6. It really does help to understand and prepare for the progression of symptoms...
Thank you for sharing that! I love that you came back 💜Your father is lucky to have you as a part of his journey. If you ever have any questions please let me know.
This is my 3rd video of yours and I'm somewhat shocked. So far the videos I've seen have been just as good or better than other dementia advisors and yet your subs and views are at such lower numbers. You should have way more subs and views. I don't know if it's a RUclips thing or what but it looks like I've got some catching up to do. 🥰
Aww that’s very sweet of you! 🥲❤️ Most of my subscribers have all come from 1 video ( Part 3 ), but I think it has a lot to do with the forever changing RUclips algorithm and me not being very consistent. 😬 I post most frequently and consistently on my podcast “What the Dementia” but even there I have been slacking with all the moving I’ve had to do. I have to move again in December and then one more time next year 😩. Once I can stay put for awhile I can be more consistent. Thank you for your comment it made me smile! ☺️
@@BambuCareI'm glad I made at least one person smile. This dementia is the worst thing I've ever had to deal with. My 92 year old mother was diagnosed last year with Alzheimers and it's definitely been a challenge. I took care of my neighbor with dementia for years and I can't believe the differences. She was a sweet lady whose face lit up when ever I said Jesus. My mother on the other hand is quite a hand full. I sure hope they find a cure one day. I hope your move in December brings with it a coming year filled with everything you hope for.🥰
Fantastic video thank you. I care for my dad who is VD stage 5/6. He has anosognosia. It’s a challenge but knowledge is power and your videos help with understanding what is happening and what to expect. Love from Aus x
My 93 year old mother has stage 4 Alzheimers and is progressing into stage 5. She displays all the signs of forgetfulness regarding medication, meals and changing her clothes. She has carers twice a day who she has no recollection of and says she doesn't need them. Mother writes endless tiny shopping lists but has not been out grocery shopping since the Pandemic. She remembers her immediate family but struggles to name her grandchildren. Mother has no idea of her cleaner or hairdressers names. She is unable to put food away in the designated cupboards and cannot remember which room she is in if asked to go elsewhere in her small bungalow. Mother refuses to wear hearing aids,glasses or slippers in her home and a telephone conversation is quite impossible. Mother denies her increasing incontinence problems and will not tolerate the wearing of appropriate incontinence underwear. She is unable to participate in family led conversation because she cannot hear or recall any content. Mother has attended peer group community activities but refused to continue because she cannot bear to be in the company of "old people". Mother is under Adult Social Care Services and has been assessed recently. She was deemed unfit to enter a Care Home because of her attitude and anti- social tendencies. Her current status is that she still has " capacity" and therefore she remains at home in her solitude and seeming contentment.
Very difficult situation, definitely not uncommon. If she does stay home, with supervision and support, of course - she may benefit from environmental modification, such as labeling of the doors to different rooms, necessary cabinets, drawers, etc. on and off buttons for the lights. I’m not sure where you all live but there are increasingly more and more incontinence options for adults and older adults that actually look like nice underwear that the everyday person doesn’t mind wearing. She may be open to the more “cuter” panty options. Her aides may also need to see if maybe they can encourage a toileting routine and see if she would be willing to go on a set schedule while she’s there. Not all people are agreeable because if they don’t feel like they need to go they won’t, but sometimes if you finesse it they will try. I can see your mother not being able to hear especially because she doesn’t like to wear her hearing aides as an issue, especially on the phone. In person, she may benefit from more gestures or visual support - which is definitely more effortful, but may help her to feel like part of the conversation. Are they any activities that she likes that she could do on her own or with a little support or with the aides since she doesn’t like doing things with the “old people”?
My hubby has vascular dementia and what hes going through right now is he doesn't want to get out of bed he wants to sleep all the time. Is this normal?
Hi, it could be “normal” but it may not be. So, with vascular dementia, excessive daytime sleepiness is something that is pretty common. But, it can be brought on by many things. For example, if the person isn’t sleeping well at night (whether they are restless or their quality of sleep just isn’t good - which is pretty common for people with vascular dementia), or if the person is depressed, or if they are on medications that make them drowsy, or if they are bored…all these things can contribute to the excessive sleepiness we sometimes see. However, if this is a new onset of behavior where all of a sudden the person is now sleepy all the time and even maybe difficult to arouse at times or they just kind of seem out of it even when they are awake, it’s usually worth mentioning to the doctor because something else could be going on like an infection, out of whack vitamin/mineral levels, dehydration, something messing with the person’s vascular system (blood flow), etc. But, it can technically be “normal” but there are also ways to improve it, but first you have to figure out what may be contributing to their increased sleepiness.
My grandma on my mom's side was diagnosed with mild approaching moderate Alzheimer's on March 6th this year..to mild to moderate Alzheimer's..I feel like she is in stage 3 possibly stage 4 now...she has no problem with cooking, shopping ect but we just took her car keys two weeks ago..she HATES being dependent upon us to drive her places..it sounds like she is definitely in stage 4 by the looks of this video
Yeah for someone to be diagnosed with dementia they have to be at least stage 4 by these models. Stage 4 is considered mild dementia but moderate cognitive decline which may explain where your grandma is at.
@@amandaallen9460 that’s a hard question to answer because it can vary so much. When it comes to Alzheimer’s disease people can live 10 even 20 years with it. That’s why it’s sometimes referred to as the long goodbye, but it does vary person to person. Some people won't live that long and will progress much faster.
@@BambuCare when my great grandma had it and passed away in 2005, it seemed like she had it at least 10 years bc my great grandpa passed away in 1997 at age 80 from injuries he sustained in a car accident, and then after that, it's like her Alzeimers became worse really fast.though the last year or so, she was in a nursing home...she was asleep the last week of her life
@@amandaallen9460 Yeah that's pretty typical. Sometimes there will be triggering events like deaths of a loved one, falls, hospitalizations, trauma.... that can sometimes speed up the progression of dementia and you'll start seeing a rapid decline. Sad to witness. & Yeah, many people will sleep quite a bit leading up to their passing!
Mom is 91 years old she has vascular dementia with Alzheimers she is in stage 5 , thank you for simplifying this, she is now starting to have delusions and hallucinations about people who have passed away she is also making up stories, which I believe is called confabulation? Would this be from sundowning or is she slipping into stage 6 ? Thank you
Hey there! Great question. Yes, making up stories as a way to fill in gaps in memory (usually unknowingly) is confabulation. If the delusions, hallucinations, and tendency to confabulate are happening pretty regularly around a certain time then it's likely to be related to sundowning. However, if these behaviors started recently it could be a sign of something medical happening like delirium, an infection, dehydration, constipation, etc. So that's always important to rule out first. But, delusions, hallucinations, and confabulation aren't necessarily tied to a particular stage as they can start at any stage. But they do become more common and frequent as a person's dementia progresses. So with that being said, it would be hard to say if she's slipping into stage 6 based on these symptoms alone. We really want to look at her overall function and awareness of what's going on and how oriented she is to day-to-day life as a whole.
Honestly, I don't love to because everyone progresses through the stages so differently. So, to give a time frame or even an estimate could be very misleading. The stages of dementia talked about in this series are also very specific to the progression of Alzheimer's disease, which is important to know. (I'm not sure if you watched the first part of this series yet) Also, some people don't receive a timely diagnosis, especially depending on the type of dementia. For example, getting an "official" diagnosis for people with frontotemporal dementia can take several years. So a person could already be in the mid stages of dementia by the time of their diagnosis. On another note, stage 1 is normal function, no signs of dementia. Stages 1-3 are considered pre-dementia stages. ruclips.net/video/pQmEbM7r_kk/видео.html
My father was recently diagnosed. He went to a memory care center to be diagnosed. They diagnosed him with rapid Alzheimers and on a scale of 1-29, 29 being mildest and 1 being the most severe he was evaluated at a 9. My sister does not feel as though we should tell him his diagnosis. He knows there is something wrong but she told him it was just old age. Is this the best way to approach his diagnosis with him or how do we go about talking to him about it,
It’s my belief that everyone has the right to know what’s going on with them, especially when they are first diagnosed, but I provide a more detailed response in this video. 👇 Should You Tell Your Partner They Have Dementia? ruclips.net/video/5jVBMd-lrkI/видео.html Let me know if this answers your question.
The short answer is that Alzheimer’s disease is a type of dementia. Dementia is a big umbrella term (a categorical term) used to describe the general symptoms of a group of conditions. There are actually over 100 types of dementia and like I said, Alzheimer’s disease is just one! But, I’d recommend these two videos: What is Dementia?? ruclips.net/video/jniz0TqmRGs/видео.html Which is worse: Alzheimer's Disease or dementia? ruclips.net/video/f5gGpu62En4/видео.html
Honestly, I don't love giving timelines because it really does depend on a number of things and everyone is different. But, let's just say we are talking about a person with Alzheimer's disease that doesn't really have any other comorbidities or complicating factors going on. The average expectation would be about 1-2 years in stage 5. But, again this number isn't written in stone and can vary. Hope that helps.
One thing that was not mention, it’s also speech. My girlfriend has it, and misplaced words I couldn’t find the ending of a sentence. So I had to help her with that. And now she’s in later stages of six Can only say a few words now. And her walking is gone. That was a shock. But I’ve been studying, and find out about dementia. And the brain controls our motor movements. Months just about everything else.
Yup, this is all true. I talk about speech more in stages 6 and 7 as well as the impact on motor movements, but you are absolutely correct word finding issues, word substitutions, as well as word misuse are common in the early stages of dementia and speech does progressively get worse. Thanks for sharing your experience.
@@BambuCare thank you. I’m looking forward to more of stages six and seven because it’s pretty much where she’s at now. Of course I’ve been through the whole thing with her. But she’s in Assissted Living now. And I see her every week, bring her ice cream. Hold her hand, tell her I love her, and she gives me a smile. But not all the time. Lol
Are you in need of additional support along your dementia care journey? Feel free to join us in the Treehouse where you have access to a wide array of resources and support all in one place | www.letsbambu.com/treehouse
We look forward to welcoming you! 💜
Wish I had found these at the beginning of my mother's decline. This channel is excellent. Thank you for doing these videos.
It’s no problem at all! Thank you for watching!
You’re clear and well spoken. My dad is going through dementia. Thanks for breaking down the stages
Thank you very much! I’m glad you found the video helpful!
Stage 1 equals none. Stage 2-is just you and Stage 3 is me, meaning people other than myself can notice.
My father was recently diagnosed with Alzheimer, and I saw the signs about a year ago when I was staying at his residence. Just recently he has been officially diagnosed and even though I knew this was the case it is still upsetting. I thank you for this channel as I am learning as much as I can,
Of course, let me know if you have any other questions as you journey along.
These videos educate better than I've found before. I like your use of multiple examples which are valuable in discerning where my person is in the journey. I also like your brief reviews at the ends of each section.
@@dianeconley4334 wonderful to hear! Thanks for the kind words!
A compassionate overview of these stages..thanks😊❤
You are so welcome! 💜
Very well done! My husband is definitely in stage 4, and this helped explain what to expect at stage 5. Thank you for the information, and the excellent way you presented it.
You are welcome!
I deeply admire and honour family members and caregivers that assist individuals with dementia . May God Bless you🌹🌹🌹💐💐💐
Yes such an important role everyone plays!
You've explained things and given examples in a way where I can relate to the stages because I've witnessed my husband go through this. I believe that I'm now seeing is him slowly transition from stage 4 to stage 5. Thank you for your videos.
I’m glad you were able to relate to the stages as I explained them! I wish you lots of love and light on your dementia care journey! 💙💙 you are very welcome!
You are a clear, concise speaker. My husband has gone from stage 4 to a stage 5. While you were speaking about stage 4’s, I was reminded about my husband and how we had to get the state to take his drivers license away. He was a terrible driver, but he was so absolutely angry he actually threw the letter at me! I can’t see how I could have gotten him to agree to give up his license peacefully. I would appreciate any advice!
The topic of driving is such a big topic and a sensitive one at that. I do plan to talk about it in detail at some point. But, the biggest thing to keep in mind with driving is that when someone takes a way a license, the keys, or a car...they are taking away way more than just these 3 things. For many people, driving is a big expression of independence and self-sufficiency. "I can go where I want, when I want. And, when I'm done, I can leave when I want and go wherever I want next." So, once their access to driving is taken away, all the things they like to do in and with their car is also taken away.
As a simple example, I love driving to a fast food place or ordering take out from a restaurant and eating in my car while watching Netflix on my phone. My mom hates that I do that (it makes her nervous). But, it's an experience I very much enjoy and I do it quite frequently. Well, if someone takes away my ability to drive I'm now losing that experience too, UNLESS that person knows that about me and helps me continue on that experience. So, everyone has their different reasons for being attached to driving.
So, my advice is always to start these type of conversations early on and asking the person what they like most about driving and if for someone reason they no longer were able to drive what experiences they would like to be carried over, if possible. For some people it will also make sense to explore other alternatives for transportation. But, the key is that it's a collaborative process and it doesn't feel like someone is just swooping in (what feels like out of nowhere) and taking something away from you. Because again, driving isn't just one thing, there will typically be several, several, several things the person will no longer be able to do unless others facilitate it for them.
I thought you explained these stages very clearly!
By what you said I think my 87 yr old daddy is in stage 5.
I fix him a good healthy meal and a few minutes later he’s looking for something else😏.
I keep sliced fruit, mixed fruit cups, bananas, in the refrigerator for his snacks between meals.
He can still take a shower if I suggest it and set everything up( towels, water temperature etc).He can still dress himself but he puts his pants on over his pajamas and he wears his pajama top like a shirt all day.
Since he had an ischemic stroke in 2020 his confusion and paranoia and sometimes delusions have gotten much worse.
He is starting to mistake me, his oldest daughter/caregiver for my mom , even though they’ve been divorced for 26 yrs.
In his mind right now he thinks they’re still married and that us 5 kids should be home too( we’re all married 40+ years)😏.
Thank you for your expertise 🙂 8:02
Thank you and you are welcome! That sounds about right! With dementia and the changes happening to the brain, one thing we often see is that there are also changes in the brain's ability to interpret hunger and thirst signals. So sometimes what we see is "overeating" or never being satiated (always searching for food) or lack of appetite (never feeling hungry or thirsty, even if they actually are). I'm glad you keep healthy snacks readily available for him between meals.
Do you favor your mom when she was younger?
@@BambuCare my daddy says I do.
This is the best explanation of the stages I have heard, and I've done a ton of research since my mom was diagnosed. Thank you!
You are more than welcome. Im so glad you found it helpful!
Thank you so much for your guidance. I believe my husband is in stage 4-5. He often says he’s confused and notices he is changing. He thinks he knows what is right for him and becomes argumentive when he tries to do what he did years ago such as lifting heavy grocery bags. I’m actually stronger than him. I look forward to listening to you again and your expertise on how to handle this frustrating and selfish disease.
Hi Vivian, thank you for stopping by and taking the time to comment. That is understandably a tough situation. I hope you will find the content we put out to be beneficial to your care journey!
You may also consider joining us inside the Treehouse (letsbambu.com/treehouse) for more streamlined access to our content and resources.
This is my mother. Excellent
Thank you!
My neighbor is in stage four. She has no one here to help her. Her family lives in other states and as far as I can tell they don’t want to help anyway. I don’t know how much I lawfully can get involved, I check on her twice a day, I don’t know what to do. I also watched your video on not being self aware Anosognosia, she is definitely there. What more can I do to support her and keep her safe? Thank you, Gloria
Supporting someone in the early stages of dementia can be tough, especially if they aren't aware of their deficits and challenges or aren't open to help.
It's very kind of you to check on her twice a day! Sometimes the best help is quiet help. When you are over there, taking mental notes of what it seems like she may be struggling with can be helpful in coming up with a potential solution.
For example, if it looks like she's forgetting to eat or there's a lot of spoiled foods in the home, bringing her over food to eat and just make it seem like nice a gesture could be an idea. Like, I cooked "whatever" and thought we could enjoy it together. If she's "not hungry" just leave her a plate a label it so she doesn't throw it away because she doesn't recognize where it came from. If she can still safely cook, but doesn't do a great job with staying on top of groceries, saying "Hey, I'm going to the grocery store tomorrow, do you need anything." If she says no, you can still grab her a few things you know she eats and are simple to prepare (like something microwaveable, for example).
If you are concerned about her paying her bills on time, you can frame it as a friendly conversation like...I was having a really hard time keeping up with my bills, but I set up autopay and it really helped or I created {insert system} and it really helped. How do you stay on top of your bills?...Have you ever tried {insert system}? I could show you, if you want!
Of course, they still could say no or not open up about challenges out of embarrassment or just simply not being aware. But, it's worth "sticking a leg out" and seeing what comes from it.
Are there any specific challenges you are noticing?
help her however you can. keep an eye on her and check on her every day. help her with things like shopping, washing herself, and taking medications if you can. Keep a hand-written log of your assistance.
Bless you for being such a great friend and neighbor.
You may need to reach out to APS so they can get a social worker involved in coordinating care. There will likely be a point when her needs surpass your ability or resources to help.
I was glad you talked about it based on ALZ and everyone with MCI goes to dementia. TY❤
You are welcome, and yes not everyone with MCI will develop dementia.
Thanks for your comments! 💜
Thank you for sharing
My husband has Dementia and I can't relate to everything in this video and it's very difficult and challenging to cope with
Hallucinations/ Paranoia accusations daily
Unbelievable
You are welcome! & That's definitely understandable. It is really hard! We will actually be doing a webinar on the topic of hallucinations and delusions sometime in August or September. If you're interested you can sign up for our newsletter at letsbambu.com/newsletter to be notified when registration is open for the event. And, all of our webinar replays are always available inside the Treehouse at letsbambu.com/treehouse
We also have a podcast episode on Dealing with Accusations here: ruclips.net/video/s6VEHurKEGk/видео.html
💜 Thanks for taking the time to comment!
Excellent presentation.
Thank you!
I found your channel 2 years ago when my father was Stage 3/4. I'm back for a refresher now that he's crossing into Stage 6. It really does help to understand and prepare for the progression of symptoms...
Thank you for sharing that! I love that you came back 💜Your father is lucky to have you as a part of his journey. If you ever have any questions please let me know.
@@BambuCare I appreciate you. Thank you. ❤️
@@margaretc5679 No problem at all :)
Wow! An excellent video. Most helpful I've seen . Many thanks 😇
Thank you! You are welcome!
Thank you so much for all this very helpful information!
You are more than welcome! Let me know if you have any questions.
You're so spot on with your awareness of the disease and your advice. Thank you for sharing x
Aww thanks! Thank you for watching!
This is my 3rd video of yours and I'm somewhat shocked. So far the videos I've seen have been just as good or better than other dementia advisors and yet your subs and views are at such lower numbers. You should have way more subs and views. I don't know if it's a RUclips thing or what but it looks like I've got some catching up to do. 🥰
Aww that’s very sweet of you! 🥲❤️
Most of my subscribers have all come from 1 video ( Part 3 ), but I think it has a lot to do with the forever changing RUclips algorithm and me not being very consistent. 😬
I post most frequently and consistently on my podcast “What the Dementia” but even there I have been slacking with all the moving I’ve had to do. I have to move again in December and then one more time next year 😩. Once I can stay put for awhile I can be more consistent.
Thank you for your comment it made me smile! ☺️
@@BambuCareI'm glad I made at least one person smile. This dementia is the worst thing I've ever had to deal with. My 92 year old mother was diagnosed last year with Alzheimers and it's definitely been a challenge. I took care of my neighbor with dementia for years and I can't believe the differences. She was a sweet lady whose face lit up when ever I said Jesus. My mother on the other hand is quite a hand full. I sure hope they find a cure one day. I hope your move in December brings with it a coming year filled with everything you hope for.🥰
Fantastic video thank you. I care for my dad who is VD stage 5/6. He has anosognosia. It’s a challenge but knowledge is power and your videos help with understanding what is happening and what to expect. Love from Aus x
You are very welcome! ❤️
Well explained! Thank you.
You are welcome!
Very helpful, clear and practical
Glad to hear!
My 93 year old mother has stage 4 Alzheimers and is progressing into stage 5. She displays all the signs of forgetfulness regarding medication, meals and changing her clothes. She has carers twice a day who she has no recollection of and says she doesn't need them. Mother writes endless tiny shopping lists but has not been out grocery shopping since the Pandemic. She remembers her immediate family but struggles to name her grandchildren. Mother has no idea of her cleaner or hairdressers names. She is unable to put food away in the designated cupboards and cannot remember which room she is in if asked to go elsewhere in her small bungalow. Mother refuses to wear hearing aids,glasses or slippers in her home and a telephone conversation is quite impossible. Mother denies her increasing incontinence problems and will not tolerate the wearing of appropriate incontinence underwear. She is unable to participate in family led conversation because she cannot hear or recall any content. Mother has attended peer group community activities but refused to continue because she cannot bear to be in the company of "old people". Mother is under Adult Social Care Services and has been assessed recently. She was deemed unfit to enter a Care Home because of her attitude and anti- social tendencies. Her current status is that she still has " capacity" and therefore she remains at home in her solitude and seeming contentment.
Very difficult situation, definitely not uncommon. If she does stay home, with supervision and support, of course - she may benefit from environmental modification, such as labeling of the doors to different rooms, necessary cabinets, drawers, etc. on and off buttons for the lights. I’m not sure where you all live but there are increasingly more and more incontinence options for adults and older adults that actually look like nice underwear that the everyday person doesn’t mind wearing. She may be open to the more “cuter” panty options. Her aides may also need to see if maybe they can encourage a toileting routine and see if she would be willing to go on a set schedule while she’s there. Not all people are agreeable because if they don’t feel like they need to go they won’t, but sometimes if you finesse it they will try.
I can see your mother not being able to hear especially because she doesn’t like to wear her hearing aides as an issue, especially on the phone. In person, she may benefit from more gestures or visual support - which is definitely more effortful, but may help her to feel like part of the conversation. Are they any activities that she likes that she could do on her own or with a little support or with the aides since she doesn’t like doing things with the “old people”?
@@BambuCare This is a really comprehensive response. Thank you. I found it useful.
I'm glad to hear that @@marigoldbeam5475! You are welcome :)
This sounds like my mom to a T! Wow
I have learnt so easy from you Thankyou
I’m very glad to hear that! It's my pleasure!
Thank you for your intelligent, caring information
Aww thank you for your kind words. You are welcome!
Thanks, very educational and informative
You are welcome! Glad to hear!
Thank you so much for this
You are very welcome
Excellent!
The best so far. Easy to understand...
You should train nurses a lot of them don't have a clue....not even the basics.
Thank you! I appreciate that! Yes, unfortunately, that is very true.
My hubby has vascular dementia and what hes going through right now is he doesn't want to get out of bed he wants to sleep all the time. Is this normal?
Hi, it could be “normal” but it may not be.
So, with vascular dementia, excessive daytime sleepiness is something that is pretty common. But, it can be brought on by many things. For example, if the person isn’t sleeping well at night (whether they are restless or their quality of sleep just isn’t good - which is pretty common for people with vascular dementia), or if the person is depressed, or if they are on medications that make them drowsy, or if they are bored…all these things can contribute to the excessive sleepiness we sometimes see.
However, if this is a new onset of behavior where all of a sudden the person is now sleepy all the time and even maybe difficult to arouse at times or they just kind of seem out of it even when they are awake, it’s usually worth mentioning to the doctor because something else could be going on like an infection, out of whack vitamin/mineral levels, dehydration, something messing with the person’s vascular system (blood flow), etc.
But, it can technically be “normal” but there are also ways to improve it, but first you have to figure out what may be contributing to their increased sleepiness.
Good information
Thank you! Glad to help :)
My grandma on my mom's side was diagnosed with mild approaching moderate Alzheimer's on March 6th this year..to mild to moderate Alzheimer's..I feel like she is in stage 3 possibly stage 4 now...she has no problem with cooking, shopping ect but we just took her car keys two weeks ago..she HATES being dependent upon us to drive her places..it sounds like she is definitely in stage 4 by the looks of this video
Yeah for someone to be diagnosed with dementia they have to be at least stage 4 by these models. Stage 4 is considered mild dementia but moderate cognitive decline which may explain where your grandma is at.
@@BambuCare how long can stage 4-7 last? I'm not ready to say goodbye permanently
@@amandaallen9460 that’s a hard question to answer because it can vary so much. When it comes to Alzheimer’s disease people can live 10 even 20 years with it. That’s why it’s sometimes referred to as the long goodbye, but it does vary person to person. Some people won't live that long and will progress much faster.
@@BambuCare when my great grandma had it and passed away in 2005, it seemed like she had it at least 10 years bc my great grandpa passed away in 1997 at age 80 from injuries he sustained in a car accident, and then after that, it's like her Alzeimers became worse really fast.though the last year or so, she was in a nursing home...she was asleep the last week of her life
@@amandaallen9460 Yeah that's pretty typical. Sometimes there will be triggering events like deaths of a loved one, falls, hospitalizations, trauma.... that can sometimes speed up the progression of dementia and you'll start seeing a rapid decline. Sad to witness. & Yeah, many people will sleep quite a bit leading up to their passing!
EXCELLENT VIDEO !!!
Thank you!
Mom is 91 years old she has vascular dementia with Alzheimers she is in stage 5 , thank you for simplifying this, she is now starting to have delusions and hallucinations about people who have passed away she is also making up stories, which I believe is called confabulation? Would this be from sundowning or is she slipping into stage 6 ? Thank you
Hey there! Great question. Yes, making up stories as a way to fill in gaps in memory (usually unknowingly) is confabulation.
If the delusions, hallucinations, and tendency to confabulate are happening pretty regularly around a certain time then it's likely to be related to sundowning. However, if these behaviors started recently it could be a sign of something medical happening like delirium, an infection, dehydration, constipation, etc. So that's always important to rule out first.
But, delusions, hallucinations, and confabulation aren't necessarily tied to a particular stage as they can start at any stage. But they do become more common and frequent as a person's dementia progresses. So with that being said, it would be hard to say if she's slipping into stage 6 based on these symptoms alone. We really want to look at her overall function and awareness of what's going on and how oriented she is to day-to-day life as a whole.
Can you indicate a time frame for the stages . Diagnose to stage 1 .
Honestly, I don't love to because everyone progresses through the stages so differently. So, to give a time frame or even an estimate could be very misleading. The stages of dementia talked about in this series are also very specific to the progression of Alzheimer's disease, which is important to know. (I'm not sure if you watched the first part of this series yet)
Also, some people don't receive a timely diagnosis, especially depending on the type of dementia. For example, getting an "official" diagnosis for people with frontotemporal dementia can take several years. So a person could already be in the mid stages of dementia by the time of their diagnosis.
On another note, stage 1 is normal function, no signs of dementia. Stages 1-3 are considered pre-dementia stages. ruclips.net/video/pQmEbM7r_kk/видео.html
Good explanation.
Thank you!
My father was recently diagnosed. He went to a memory care center to be diagnosed. They diagnosed him with rapid Alzheimers and on a scale of 1-29, 29 being mildest and 1 being the most severe he was evaluated at a 9. My sister does not feel as though we should tell him his diagnosis. He knows there is something wrong but she told him it was just old age. Is this the best way to approach his diagnosis with him or how do we go about talking to him about it,
It’s my belief that everyone has the right to know what’s going on with them, especially when they are first diagnosed, but I provide a more detailed response in this video. 👇
Should You Tell Your Partner They Have Dementia?
ruclips.net/video/5jVBMd-lrkI/видео.html
Let me know if this answers your question.
I am still not sure what is the difference between Alzheimer and dementia so can you please explain.
The short answer is that Alzheimer’s disease is a type of dementia. Dementia is a big umbrella term (a categorical term) used to describe the general symptoms of a group of conditions. There are actually over 100 types of dementia and like I said, Alzheimer’s disease is just one!
But, I’d recommend these two videos:
What is Dementia??
ruclips.net/video/jniz0TqmRGs/видео.html
Which is worse: Alzheimer's Disease or dementia?
ruclips.net/video/f5gGpu62En4/видео.html
How long can a person stay in stage 5?
Honestly, I don't love giving timelines because it really does depend on a number of things and everyone is different.
But, let's just say we are talking about a person with Alzheimer's disease that doesn't really have any other comorbidities or complicating factors going on. The average expectation would be about 1-2 years in stage 5. But, again this number isn't written in stone and can vary.
Hope that helps.
My mom is in stage 6 going 7 that some days she called me her sister
How did that make you feel? Does your mom like her sister(s)?
One thing that was not mention, it’s also speech. My girlfriend has it, and misplaced words I couldn’t find the ending of a sentence. So I had to help her with that. And now she’s in later stages of six Can only say a few words now. And her walking is gone. That was a shock. But I’ve been studying, and find out about dementia. And the brain controls our motor movements. Months just about everything else.
Yup, this is all true. I talk about speech more in stages 6 and 7 as well as the impact on motor movements, but you are absolutely correct word finding issues, word substitutions, as well as word misuse are common in the early stages of dementia and speech does progressively get worse. Thanks for sharing your experience.
@@BambuCare thank you. I’m looking forward to more of stages six and seven because it’s pretty much where she’s at now. Of course I’ve been through the whole thing with her. But she’s in Assissted Living now. And I see her every week, bring her ice cream. Hold her hand, tell her I love her, and she gives me a smile. But not all the time. Lol
@@bernardwinn1817 that’s great! I’m glad you are able to visit her frequently and share special moments. That’s so important, she’s lucky to have you.
You
Stage 1 None
Stage 2 You
Stage 3 Me
Thanks so much for participating! You don’t even know how big of a smile that put on my face! 💜💜😁
Stage 1 is none, stage 2 is you and stage 3 is me
Yup! Perfect! Thanks for participating 💜
❤🇦🇺🦘🐨
Number 1 - none
Number 2 - you
Number 3 - me ( family member or friend)
Perfect!
I think my mom is in this stage.. stage 5🤦🏿♀️
Why the face palm emoji Monica?
2024
Bbl
1=none, 2=you, 3=me ….
Perfect!
Non you me
Yes!
None-you-me
Excellent!
Zero
None you me
Excellent!
tHANK YOU!!! My wife has gone word for word with your disccritions , still don't like it.....
You’re welcome and definitely understandable
None you me
Excellent!