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yup!

you are very welcome!

For sure! It can be a real challenge to experience and witness.

Aww, thanks!

I'm sorry that happened to your mum. UTIs or really any infection can be really rough for people with dementia. Often because they have a tendency to go unnoticed longer. Most dementias typically progress rather slow unless it's a rapidly progressing form (RPD) or like Creutzfeldt-Jakob disease. So, if there is an abrupt change in cognition or function, there is usually something else going on like an infection, blood clot, TIA/stroke, abnormal vitals signs, abnormal lab levels in some area...it's usually something that requires further assessment and treatment.

@@berniecriswell2713 my pleasure!

You are welcome! ❤

That's such a tough situation. I'm sorry! Because delusions can be based on real events that are misperceived or thoughts that have no true basis in reality, the best recommendation I can give you is to take a honest look at the interaction and communication style between you and your mother. For example, if you notice that you say no a lot, often tell her what she can and can't do, can be a bit critical at times unintentionally, or have a tendency to take things over...is there any way to say yes more, to give her more freedom, to give her compliments, to find ways to include in her more things. Like I said, this is just an example, and you'd want to adjust based on what you notice. But, it's important to note that because delusions are strong held, it can take time for these false beliefs to change. But, if you can make small efforts to change how you interact with your mother, it may make a big difference in how she perceives you . As a side note: This happens pretty often. For example, people with dementia may frequently praise uninvolved children while criticizing and perceiving involved children as problematic, sometimes even accusing them of mistreatment. The difference lies in perception: the uninvolved child isn't seen as a source of conflict since they’re not actively participating, while the involved child might be viewed as a “pain in the butt” simply because they’re trying their best to help and ensure safety.

@@AlbertGriffith-ji1yo You are very welcome! Happy new year to you as well!

@@TimelessjewelbyDebra Thanks for watching! Let us know if there’s anyway we can help or if you have any questions. ❤️

@@BambuCare I need help..will let you know..

@@andrejohnson3513 great question! They can be refrigerated or stored on countertop - all up to preference!

@@LaurieLeblanc-b3t thank you for sharing Laurie

@@SherryAdcox thank you!

That is kind of you! Thank you! ❤

It’s definitely a tough journey, so I completely understand! ❤️

That is a great question! So, it really depends on what symptoms your mom has and what her delusions and/or hallucinations are typically about. So, it could be calming for her. But, I could also see it being problematic if she thinks the dog is pretending to be asleep and spying on her or if she develops delusions about the dog doing something it couldn't have possibly done. Do you get what I'm saying? So, it really depends on your mom's symptoms. If you think that that the benefits should outweigh the potential for things going wrong, I say give it a try. If your mom doesn't like it and isn't responding well to it, return it! For example, if she thinks the dog is spying on her, you could say something like, "Oh, really!? Well I'll get rid of it for you." And then, just return it. It doesn't have to be made into a big deal or anything.

@@nancyulloa7119 thank you! Happy to help! ❤️

Hi, my mother doesn't have dementia. But, what I will say is that at some point, the risks and side effects of certain medications can outweigh their benefits. Many prescriptions intended for short-term use end up being taken far too long, which can lead to issues. Additionally, some medications may no longer be effective or serve their original purpose. This is why it's important for doctors to conduct thorough medication reviews-evaluating whether each medication is still necessary, effective, and free of significant side effects. If a medication is deprescribed, there should be careful monitoring of symptoms and open communication with the doctor. Some medications can be stopped abruptly, while others require tapering to minimize withdrawal symptoms or side effects. Deprescribing itself isn't necessarily a bad thing. In fact, when done safely and appropriately, it can improve cognition, enhance quality of life, and reduce the burden of taking multiple medications. I would recommend having an open and direct conversation with the neurologist. Ask what medications they are considering discontinuing and why-what is their reasoning? If these medications were to be stopped, what steps would be taken to monitor your mom and ensure the process is done safely? Also, ask what you should look for in terms of changes or symptoms and what you need to report back to the doctor. If something about their answers doesn’t sit right with you, then you, of course, have the right to refuse deprescription or at least ask more questions before agreeing.

I haven’t tried it for this purpose, but it claims you can and I’ve seen people use it this way as well!

Thank you for your question! I explain the difference in this video: ruclips.net/video/rl6Zx9oH3JY/видео.html Let me know if you have any questions after watching. I'm sorry you are going through what sounds like a difficult time at such a young age. Any kind of brain injury can be so hard to navigate. All of what you said is a very "normal" experience. I just hope those around you will have the patience and understanding you deserve as you go through this journey. 🩷

@BambuCare •Sometimes I can laugh my dear do you know that a TBI contributes ?I as my son said have gone from OCD to "it's not lost until Mum can't find it"Sometimes I want to cry for him my brothers have my back I have to go for a memory test but this is horrible I was so tidy so fastidious and now it's complete chaos take the meds wrong way round can't sleep my Dad died and my Mum and sometimes I am just getting worst headache in the world I went to get a fork the other night I could not find my dinner ?Then I lost front door key 3 days everything has gone out the window lost the weight big time ..if I confuse my meds I can be sick because it gives me this double vision ?Hearing this knowing that my Nanna and her 4 sisters had all this I want to sleep at times in day eat breakfast when I remember -Then sometimes awake at night ?Sometimes like a migraine

I’m really sorry you are going through such a difficult time. Migraines are so terrible! Since your brothers are supportive maybe they could help you put systems in place so that you can function more easily in your environment. Sometimes, it’s helpful if we can adapt the environment to our needs. For example, helping you set up a medication management system that works for you, creating a designated spot for your keys, setting up alarm reminders to eat, things like that! It’s a tough journey for sure, but there are ways to make it a little easier. ❤️

Thank you! I appreciate it! ❤️

I don’t necessarily suggest walking away because just imagine if you were trying to tell someone something that you felt strongly about and they just walked away. That would likely upset you even more, right? Now, it is okay to give yourself distance from the person until you can find the opportunity to step away altogether, but it really depends on what the argument is about and who actually started it. There’s no real blanket approach to diffusing an argument because it really does depend on what the argument is even about. What is the disagreeance?

Are you asking about Parkinson’s disease vs Parkinson’s disease dementia or dementia with Lewy bodies vs. Parkinson’s disease dementia? Either way, generally speaking, they follow a 1-yr rule. If the cognitive symptoms of dementia appear 1 yr after Parkinson-like motor symptoms, it is considered Parkinson’s disease dementia. So, the person would have Parkinson’s disease and then dementia that’s associated with their Parkinson’s disease. If the motor and cognitive symptoms appear together within the same year or the cognitive symptoms develop first and motor symptoms aren’t seen until over a year after initial symptom development it is considered dementia with Lewy bodies. Now, there are other specific diagnostic criteria and they make look at biomarkers and do scans like DaT SPECT and MRIs to help them differentiate, but it’s not a simple, cut -dry process much of the time.

I’m glad to hear that. You are welcome! ❤

Excellent!

Thank you! That is very sweet of you to say ❤

Thank you and thanks for sharing!

Thank you so much for sharing your story. It’s touching to hear how all the robotic pets bring you comfort and a sense of companionship, especially during such a difficult time. Best of luck with your studies and your upcoming move, and thank you for your kind words. Take care!

I echo the sentiment ... thank you for sharing your story. Please accept my deepest sympathies - I, too, understand that loneliness. That you're working on your Masters and planning a move to be close to family is wonderful and inspirational. I wish you every success & happiness ... and peace. Be well & God bless!

I'm so sorry to hear what you’re going through with your mother. Dementia, especially in the later stages, can be incredibly challenging to navigate, both emotionally and physically. Thank you for being there for your mother. I know it’s not easy! ❤️❤️❤️

Excellent!

Thank you for sharing. The end stages of vascular dementia look very similar to what I've described in the video, especially for stage 7. However, vascular dementia can progress in a linear or stepwise fashion and there tends to be a lot more fluctuations in cognitive and functional performance. We do have a podcast episode on vascular dementia, if you haven't listened to it already: ruclips.net/video/iATGGy_xqvU/видео.html

Yeah, unfortunately it usually doesn't help. Many people with dementia have what's called anosognosia, meaning they lack insight into their deficits. We did a video talking about it if you want to learn more: ruclips.net/video/yblCHhZQlRQ/видео.html Best of luck on your care journey! 💜

Hey there! Great question. Yes, making up stories as a way to fill in gaps in memory (usually unknowingly) is confabulation. If the delusions, hallucinations, and tendency to confabulate are happening pretty regularly around a certain time then it's likely to be related to sundowning. However, if these behaviors started recently it could be a sign of something medical happening like delirium, an infection, dehydration, constipation, etc. So that's always important to rule out first. But, delusions, hallucinations, and confabulation aren't necessarily tied to a particular stage as they can start at any stage. But they do become more common and frequent as a person's dementia progresses. So with that being said, it would be hard to say if she's slipping into stage 6 based on these symptoms alone. We really want to look at her overall function and awareness of what's going on and how oriented she is to day-to-day life as a whole.

You're so welcome! ❤️

Perfect!

I’m glad to hear that! That’s a great question. If I had to guess I would say maybe 2-3 months with moderate use of turning it off and on, but I really don’t know!

You are welcome! Glad to help!

Thank you for watching! MedicAlert really only works well if the person is willing to wear it and keep it on. So if your partner doesn’t like necklaces (they even have really dainty ones) or bracelets, then it may not be the best fit. But, with that being said, the Medical ID portion is more confirming than anything like okay we have the right person because their Medical ID informs us of their name and we can match the ID # to the # that’s been reported as missing. However, the additional support of MedicAlert mobilizing efforts to find your partner if they go missing may still be beneficial and worth enrolling in. Now, as far as the memory care facility goes, if the memory care facility is not providing proper supervision and is unable to meet her needs then finding a better location may be necessary. I would also try to see if you can figure out what aspects of her current memory care facility she doesn’t like to help inform the next place y’all choose. With that in mind, it usually takes some time for people to adjust to a new place, especially communal living if they are not use to it. So, she may equally hate the next place, but hopefully she will be safer.

Thank you 💕 I appreciate you taking the time to leave a comment!