WOW. I am grateful someone just referred me to this video. I have a pseudoaneurysm on the right at C4-6. diagnoseed with FMD of the right carotid artery, I have disections on both sides of the vertebral arteries, and a also hqualify for 4 connective tissue disorders. I have had 2 failed neck surgeries with a corpectomy of C5. I have had 2 shoulder surgeries as well. I am now convinced they are related. I’m in a lot of pain ALL THE TIME. I feel like a walking time bomb………. I’m only 54 years old…….
Shouldn’t these studies have used a control group without FMD? I think what a lot of us are wondering more so is do FMD patients have a higher prevalence of spine disorders than the general healthy public. That would be interesting to know.
How can we be a part of Marianne’s research? I was diagnosed with FMD 6 months ago (I am 44) but degenerative spine disease in my 30s. I’ve never had surgery, only injections and physical therapy. But it only seems to help for a short time and then I’m back in severe pain. Doctors seem to want nothing to do with me and one even told me I needed to find a way to deal with the pain. I am convinced my inability to find answers to solutions to my pain has everything to do with my FMD. I don’t have a medical degree but let’s figure this out together! What can we do?
Might be, and it's good they're studying these things. However, you can't make a connection just because you have both. And, many, many people have neck and back pain after a certain age. More research is in the works. Thnx fmdsa!
WOW. I am grateful someone just referred me to this video. I have a pseudoaneurysm on the right at C4-6. diagnoseed with FMD of the right carotid artery, I have disections on both sides of the vertebral arteries, and a also hqualify for 4 connective tissue disorders. I have had 2 failed neck surgeries with a corpectomy of C5. I have had 2 shoulder surgeries as well. I am now convinced they are related. I’m in a lot of pain ALL THE TIME. I feel like a walking time bomb………. I’m only 54 years old…….
Shouldn’t these studies have used a control group without FMD? I think what a lot of us are wondering more so is do FMD patients have a higher prevalence of spine disorders than the general healthy public. That would be interesting to know.
How can we be a part of Marianne’s research? I was diagnosed with FMD 6 months ago (I am 44) but degenerative spine disease in my 30s. I’ve never had surgery, only injections and physical therapy. But it only seems to help for a short time and then I’m back in severe pain. Doctors seem to want nothing to do with me and one even told me I needed to find a way to deal with the pain. I am convinced my inability to find answers to solutions to my pain has everything to do with my FMD. I don’t have a medical degree but let’s figure this out together! What can we do?
Yes! I’d love to help the research too. Thanks to those working on it
Are there any more current studies or information? This is 2024
I have FMD and the back and neck pain too. Bad curving of my neck and stenosis. Seems related to me.
I bet you’re right. Read my response above. Sorry for the pain…..
Might be, and it's good they're studying these things. However, you can't make a connection just because you have both. And, many, many people have neck and back pain after a certain age. More research is in the works. Thnx fmdsa!
What about perineal cyst?