I've been back on plaquenil for a 1½ years now(For SLE). In the beginning I did get a bit dizzy and upset tummy, but now I make sure I take it with a meal. It did take about 2 months for me to start feeling some improvement. It actually helped with the bad chills.I don't take any other anti-inflammatory in conjunction so the plaquenil helps a lot.
Plaquenil started helping me the first week. Huge difference!!!!! I tried coming off of it since I’m on enbrel. Terrible pain and exhaustion was back within one m th
My 83 yo mother started plaquenil a few weeks ago. So far just mild upset stomach but that’s dissipated. I am concerned about it causing heart issues in the long run. Has anyone else heard or researched the med causing cardiac problems with prolonged use?
It took some time dealing my insurance to get it properly filled (because of residual restrictions that we're put in place when an unnamed man in a large, white house told the media it was a miracle way to manage covid) but I've been on it for about a week for psoriatic arthritis. I haven't noticed any changes yet, but I also haven't had any side effects to complain about so I'm okay with being patient and giving it a few months.
It takes the edge off a little for my RA. I am on 8 meds right now for Fibro/RA/Gerd. I take plaquenil, meloxicam, prednisone, cyclobenzapr, duloxetine, famatodine for Gerd, trazadone for sleep, and phentermine for an appetite suppressant.
I have had an improvement on plaquenil, I have sle and sjogren's syndrome. I was in a lot of pain which has reduced but every now and then I feel I have a bad eye day where its a bit blurry
@@heatherthompson3670 yesss! I do have some pain occasionally but nothing like when I was first diagnosed. I’m soo grateful for medication that works for me.
My dr is planning on starting me on this next visit for Dermatomyositis. I am a bit worried because I also might have Myasthenia Gravis and I heard the Plaquenel was a no no for it. I wonder if there is any other drug in this class I could take to be safe. I would rather not start total immune suppressant to start. I would like to give immune modification a try first but I don’t know any other than Plaquenel. If anyone knows anything about any of this please let me know I’d appreciate it.
Here's a playlist of some other common meds that are used: ruclips.net/p/PLmzNvSKOi05ChqDLd1U7UWKPw_fxLsAVP Most of the meds used to treat RA are also used for dermatomyositis. Hope this helps! Sending love and blessings your way :)
Share your experiences Plaquenil below! I wasn't on Plaquenil long because I didn't need it (intuitively knew this).
It has really helped me with SLE but it took 6 months before i really felt a big difference.
I am starting Plaquenil today and so appreciate your video.... thank you!
I've been back on plaquenil for a 1½ years now(For SLE). In the beginning I did get a bit dizzy and upset tummy, but now I make sure I take it with a meal. It did take about 2 months for me to start feeling some improvement. It actually helped with the bad chills.I don't take any other anti-inflammatory in conjunction so the plaquenil helps a lot.
Glad you shared your story. That was a similar experience to many of the patients I worked with.
Plaquenil started helping me the first week. Huge difference!!!!! I tried coming off of it since I’m on enbrel. Terrible pain and exhaustion was back within one m th
My 83 yo mother started plaquenil a few weeks ago. So far just mild upset stomach but that’s dissipated. I am concerned about it causing heart issues in the long run. Has anyone else heard or researched the med causing cardiac problems with prolonged use?
Thanks for this…I was diagnosed with RA AT 63.. been living on steroids and now PLAQUENIL …. I still am having bone pain..and joint..
🌺🌺🌺
It took some time dealing my insurance to get it properly filled (because of residual restrictions that we're put in place when an unnamed man in a large, white house told the media it was a miracle way to manage covid) but I've been on it for about a week for psoriatic arthritis. I haven't noticed any changes yet, but I also haven't had any side effects to complain about so I'm okay with being patient and giving it a few months.
It takes the edge off a little for my RA. I am on 8 meds right now for Fibro/RA/Gerd. I take plaquenil, meloxicam, prednisone, cyclobenzapr, duloxetine, famatodine for Gerd, trazadone for sleep, and phentermine for an appetite suppressant.
Thanks for sharing! Glad you are having side effects from it, but hoping it works for you.
Any updates on how its been working for you?
Thank you for sharing 🙏🙋🏻♀️
Very useful education ❤❤
Nice video
I was just started again. Connective Tissue Disease, Sjogrens, Hypermobility Elhers Danlos, IIH, Pots Syndrome.
I feel like yuck today.
I have had an improvement on plaquenil, I have sle and sjogren's syndrome. I was in a lot of pain which has reduced but every now and then I feel I have a bad eye day where its a bit blurry
Where I worked they would have people on plaquenil get an eye exam each year to watch for side effects in the eyes from plaquenil 🌺
Me too, blurry eyes 😔
Wait you need to get your eyes checked right
I have been on it for about a month. I am in pain every day. I was told it would take 6 months for me to feel a different 😢
I'm sorry to hear that. I was often told it can take up to 6 months for these meds to work but that it can take less than that.
I've been on HCQ for about a month now. I don't know if it's even working yet. 😕
Has the HCQ helped by now?
@@heatherthompson3670 yesss! I do have some pain occasionally but nothing like when I was first diagnosed. I’m soo grateful for medication that works for me.
My dr is planning on starting me on this next visit for Dermatomyositis. I am a bit worried because I also might have Myasthenia Gravis and I heard the Plaquenel was a no no for it. I wonder if there is any other drug in this class I could take to be safe. I would rather not start total immune suppressant to start. I would like to give immune modification a try first but I don’t know any other than Plaquenel. If anyone knows anything about any of this please let me know I’d appreciate it.
Here's a playlist of some other common meds that are used: ruclips.net/p/PLmzNvSKOi05ChqDLd1U7UWKPw_fxLsAVP
Most of the meds used to treat RA are also used for dermatomyositis. Hope this helps! Sending love and blessings your way :)