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Im a psychologist, and I have to say you are incredibly insightful and refreshing for making this video. You are doing great things for the mental health community
hey its great that you are seeking to become more aware about schizophrenia and mental illness, you should know however it is generally inappropriate to refer to folks as schizophrenic or by any mental health diagnosis. so instead you would say "i do not have schizophrenia" or something like that. also fascination should translate to empathy/ compassion/respect:)
I was diagnosed with bipolar towards the end of high school that later evolved into schizoaffective. I’ve lost all of my friends due to how I acted during mania, except for one who I’ve known since the 4th grade. It’s sad how people show their true colors in a time when you needed them most. Thank you for your videos; it is comforting to know I am not alone ❤️
Hi Ashley! I had a similar experience. I was diagnosed with bipolar disorder during college; 2 prolonged manic episodes later I lost most of my friends and my job. Since my last episode I've been much more diligent about managing my symptoms and I haven't had a major episode in 3 years! I feel like my life is back on track. We are not alone!
John Touzios and absolutely you should be proud of that! It’s a big deal to push yourself just to get out of bed through the door and actually do something for some people. I really do wish you all the very best
I’m continually blown away by your strength and wisdom and courage. To have to courage to even bring your fears into the conscious, let alone talk about them - let alone PUBLICLY- is just beyond almost anyone I’ve ever met. What a brilliant plan - for anyone, whatever their mental health status - to look at your fears and build a plan around that matrix. Genius.
@@alphabet_soup123 me too! It's the scariest thing knowing you can just as much be the grown men and women living in the streets due to Schizophrenia! My biggest fear!
@Aaron, I just want to encourage you and those who replied to this comment that you are all doing well! Continue to lean on your community of friends and family to help support you emotionally. ❤
Thank you for sharing your fears and for making this video. I know that everyone’s mental illness is different but I wanted to share that my mom has schizophrenia and she and my dad raised me and my two other sisters while having it. We of course had a different childhood than most others but I can now, as an adult look back and I am so impressed at how my mom did such a good job at being a mother while having a mental illness. She did not have a mild form of the illness either. It was trying at times for all of us and still is but it’s made us all into compassionate and understanding people. A gift I would not trade. We did have many factors that helped, like having both parents and my father having a pretty good income, so we didn’t always have added stress about income or health care. Also worth mentioning is that I’m thankful my mom had us, because we, her daughters, are her added social support system. She lost all her friends when she became ill. But she raised three women who are now her best friends and help take care of her. Love her so much. Sending prayers and strength your way
You are the bravest person on this earth. Period. It has to take an unfathomable amount of courage to speak about your fears in a video like this considering the prejudice and discrimination around these days. Stay safe & healthy.
I failed all my classes due to Tardive Dyskinesia. I'm a music major who is striving to become a music therapist living with schizophrenia. As soon as I got on antipsychotics I noticed I couldn't play guitar or even sing because of tremors happening in my arms. It's gotten to the point where I am throwing up my medication to stop this from happening. It just feels like society would rather have you die than "hear voices". Because music therapy would be a source of income that seems beyond my reach, it literally feels like I'm grappling with death every semester. We need more research on antipsychotics so this doesn't happen to any other responsible patient with schizophrenia.
I take ginko biloba pills to prevent tardive dyskinesia. I read about it in a facebook group that talked about the shamanic implications of mental illness. I'm getting weaned off of zyprexa at the moment - and hope to be raw balling reality by 2021. I know it means I will hallucinate - I'm fine with that. We're not all meant to think like the mentally 'able bodied'. If you can handle the voices, if you can grow with them, then do what is right for you. If you can't handle it, then take the pills. I'd rather take the pills than be psychotic. But, at this point, I think I can truly handle what will come when I stop taking the antipsychotics. Blessings.
_"It's gotten to the point where I am throwing up my medication to stop this from happening"_ Well at that point you might as well stop taking them, or are you being forced under supervision? I hope you find a trade-off that works, would be a shame if you couldn't follow your passion of music.
Hi Loren...thanks for sharing your thoughts. I'm 68 with schizoaffective disorder....college degreed..retired from a professional career. My fears: being in a memory care center due to meds, being in jail because I did something I don't even remember while manic & psychotic, or becoming homeless.
@@lorenavedon but schizophrenia & psychosis can have everything to do with being judged... i cant tell if you're comment is criticizing the o.g. comment or not 😅 maybe you worded it wrong, or maybe you read the 1st comment wrong 😬 somethings not gelling
All of Lauren's fears seem valid and relevant to me. It helps me to realize that everyone in the world must deal with a long list of real and imaginary fears. We are all doing the best we can not to give in to fear, to stay strong.
I have BPD with Major Depression, PTSD, and Anxiety. I truly appreciate your videos. I have family members with Schizophrenia. I have one daughter and I'd be lying if I didn't fear for her mental health in the future. It's terrifying. I've had pretty severe substance abuse in the past as well. I'd do anything to protect her from the horrendous events I experienced self medicating my mental illnesses. No human being should have endured what I have. Thank you SO MUCH for these videos.
Dear Lauren: I have gotten a vasectomy due to my fear of passing my illness on to my kids. I have lived on the very, very dark side of life. I don't want to live there anymore.
A lot of your fears align with my own. Like the fear hurting others or myself. Most of my friends stopped talking to me already, But one of my biggest fears is that what the voices were telling me will come true. Some things have started lining up in my life with what they were saying and it’s scary because I don’t want my future to be shaped by this illness. I’m fighting everyday to better myself and hopefully change because I want better for myself.
You deserve better indeed, I do not have schizophrenia, but I did have an anxiety crisis followed by an episode of depression a few years ago, and I did constantly have the fear of losing it, and especially hurting myself, with really intrusive thoughts of jumping from anywhere high. It also involved the fear of developing a serious mental condition, and being sent to a hospital for life. Funny thing, i knew this fear was not rational, at least to me, but couldnt help it, it would still wake up in the middle of the night and be consumed by angst, this is what anxiety does, its commonly know as fear of losing control and is also linked to fear of judgment. Today, thankfully, my anxiety is more under control than even before the crisis and I can say it has been a teacher and made me a better person. Well, all this to also tell you as said in the video not to dwell too much in your fears, one time I did a meditation that said that the worst part of depression is many times fear of always having depression. Keep fighting.
Just my personal experience, but just because the voices do sometimes hit on something that end up happening doesn’t mean they have any kind of authority. First of all, even a broken clock is right twice a day. But more to the point, in my case at least, “they” are “very good” at lying with the truth, meaning they twist stuff around to make it look like it’s proof of my shit-hood, or whatever it is they’re talking about.
I feel you on the voices saying stuff and what they say slowly starts to show. It drives me crazy trying to figure out if the voices are real or not because of stuff like that. Anyways, I'm sorry that you're struggling with the voices but just know you're not alone ❤️
As someone living with schizoaffective I always look forward to your videos. I too have been struggling with these but most recently with having children of my own. I feel like the fact that we are thinking about it so carefully says a lot about how we would be as mothers and how we would do everything in our power to protect them and love them no matter what. All the best!
Just wanted to share. My mom has schizoaffective disorder. She struggled while I was growing up.... I am fine. I don’t have it. I have also adopted a daughter(who is now 3) through foster care, and her mother had schizoaffective disorder.
I have bipolar disorder (experienced psychosis before), and I have all of these fears too. Job discrimination and homelessness are a huge fear of mine, and I always feel this strange feeling of kinship and subsequent sorrow when I see a homeless person on the street who clearly has some sort of psychosis-related illness. Probably the greater fear though is losing social support and having some sort of psychotic episode when having kids. My dad has bipolar disorder and had manic episodes when I was younger and it was mostly fine but, as a woman, I sometimes wonder if due to gender roles, it affects kids differently if it comes from their mother. One of my favorite movies is The Babadook, and it really illustrates my fears of having some sort of episode that affects my kids. Anyway, thank you for the video, it was really nice to hear someone with similar worries, and address it in a very grounded way!
WARNING- POTENTIAL TRIGGER: I don't think it affects the kids more if it's their mother, i think depending on the episode itself, and how much the kids see of it will affect them. Ive had 4 friends in my life who grew up with a severely unwell schizophrenic parent (it sounds like a lot now that i think about it! I also have 2 friends diagnosed schizophrenic, so maybe we're just drawn to eachother?!). It seems as though the times where episodes had a huge negative impact were when the parent became violent, whether with themselves or others, even if it were only a perceived threat- like through violent verbalization around the child or to the child. Clearly there may've been other things going on too with the psychotic parent, like drug addiction alongside schizophrenia, but i just dont know that it was present for each (in 1 situation i know that my friend's parent had an amphetamine problem). 3 out of the 4 friends i've had with this disease in their familes had experiences with their parent threatening to kill them or other family members, one parent actively tried to kill themself in front of the child 😬 I wont get too much into that one though... but I think these untreated episode's affect on the child can be quite disturbing, whether it is the mother OR the father having it 😔 such a hard an unfair disorder, very misunderstood 😞 especially for kids, who dont fully understand things going on around them; hell it can be hard for other adults to understand- hence the unfortunate stigma 😕 I believe the key to change around mental illness & ESPECIALLY schiz disorders will be education/awareness (channels like this are so great!!!), compassion, & prioritizing health/wellness in western culture 🤔
As a person who hasn't experienced psychosis, this was one of my favorite videos yet. A lot of videos on living with mental illness focus on the symptoms or logistics (meds, etc). It's interesting to hear about the everyday worries and fears. P.S. I'm a +1 for "don't worry about your blinking" :). I think you're blinking at a normal frequency for conversation (maybe even less, because you're speaking longer sentences!). I think RUclips has just habituated us to that wide-eyed, super-energetic presentation style, plus most channels use way more quick cuts than yours (probably edits out lots of blinks and disfluencies). I prefer this style! Keep up the good word.
You definitely shatter the stereotype of the grizzled homeless man with schizophrenia. You are so incredibly beautiful, inside and out and you have helped me so much with my relationships with my schizophrenic friends. I also have Tardive Dyskinesia, not only do l blink excessively, I also blink harder than normal (with more force).
Lauren, your advocacy is beautiful. I don't have schizophrenia/schizoaffective disorder - I have bipolar disorder. But I could relate so much to your fears.
Thank you for this video, Lauren! I personally still fear having multiple psychotic episodes and losing all control in the process. But, I have long told myself that it's okay not to be productive and I have to constantly remind myself to relax because not everything will go smoothly most days. Some strangers may see me either talking to myself in public or assume quietly I'm a "danger" to society, especially while I'm doing chalk art as well. Oh, I also fear I'll end up homeless and resorting back to self harm/relapse or even loss of social supports due to my schizoaffective. So, those fears are totally justified. I'm still learning to accepting this thought disorder due to fear of judgment from those who know very little about schizoaffective disorder. But my art and writing have only kept me grounded before and after my diagnosis.
Your awareness and knowledge never ceases to amaze me. Thank you for sharing so much with us. It really helps to get an insight into how someone with SZ thinks and helps us support them better when we understand more. You are way too hard on yourself. If I met you I would never suspect you were living with SZAD. You are perfect as you are although I do suspect you are a perfectionist and are consequently too hard on yourself.
Another great video👍 - very open and informative. Although you were sharing your personal fears, I'm also so glad you mentioned homelessness. I feel like people have a negative view on those affected by homelessness, but don't always consider that symptoms of mental illness and the lack of a social support structure could be the cause. Lastly, I'm absolutely flabbergasted by the stuff people will bring to your attention. I watch your videos and walk away pumped and ready to help improve the narrative around schizophrenia and mental health in general.
Not a schizophrenic, just depression but I really enjoy hearing your stories about how you handle your mental health and life as well. Now that you have educated those of us who didn't know that the long term use of certain mental meds can cause TD: Get off her case about her blinking. If it distracts you that much then just listen and don't watch. I have watched several of her videos and have not noticed her doing any kind of excessive blinking. Prolly cause I, like most of us here, was more interested in what she had to say. Had an aunt who was schizophrenic and from her I learned early on the amount of incorrect assumptions, stereotypes and unfounded fears people have regarding mental illness. She was always loving, funny and always loved going to visit her. I didn't understand when I was little why we would stop seeing her for extended periods until I got to see her during one of her bad times. I never felt afraid, I just felt sorry for her seeing her in that state.
My mother was one of eight children. All were adopted at birth or very young. Two of those eight siblings committed suicide. The biological mother, my grandmother, was schizophrenic. My mother was a paranoid schizophrenic. Thank you for sharing your story. I wish there was more understanding and support 20+ years ago. You are a beautiful, strong woman!
It’s been swept under the rug but I believe my grandmother was committed with schizophrenia. Sometimes I believe over my life my behavior has had symptoms of schizoaffective disorder. I’ve done some odd stuff during periods of mania, as well as, suffer from depression for long periods of time. It seems I have a ten year cycle of building myself up, then being destructive. On one hand it really sucks and, on the other I’ve had some interesting experiences and careers. I’m almost 70 now and feel tired of the struggle and have regrets about people I’ve hurt. Please know the work you do is helpful.
Although I do not have schizophrenia, I can relate to some of your fears, Lauren. I am still struggling with the fear of stigma. When to disclose, when not to disclose will always be a big question mark for me. Alot of the times, I've seen my relationships change and even terminate because I tried to ask for help or explained my struggles in the most simplistic manner. I believe our community just needs more awareness.
You're amazing for being so honest. These videos are really informative. I have chronic depression and even though your videos don't apply to me exactly I find them very encouraging for enduring through the illness and being patient and optimistic for the future as well as highly functional to support this channel and your other activities
Honestly since I found out I have Schizoaffective disorder it's been terrifying but this channel has really helped me understand a lot about it like her fears are a lot like my fears and probably others who live with the disorder as well makes me feel kinda less alone
Lauren your brave and resilient. I also have schizoaffective disorder, I look forward to your videos and always feel better after watching your videos. All the things I’m too afraid to discuss you cover! Your definitely making a big impact for all people with mental health issues! ✌️ Keep going! Your amazing!
It takes a lot of strength to show your vulnerability and share your fears and stories. Thank you from the bottom of my heart for your bravery and willingness to share
Thank you from my heart to yours Lauren! These videos have helped me on my personal journey with schizoaffective disorder and continue to do so! My family is better informed. And these videos have inspired me given me courage to be more open, honest, and vulnerable socially about it and it is rewarding, though a few may shy away! Most socially support me, and these fears within I also battle with, especially stigma in the general population. When I had my two episodes of psychosis, you do feel so full of fear and very raw and just confused and so paranoid that it feels like anything only bad can happen! But the good things or bad things that you feed your mind upon, OR have been taught/brought up with before psychosis I think can determine how peaceful/harmless you are or how violent some become...that raw fear that I had (or fearlessness/invincibleness for some) in psychosis is scary though, you can feel unpredictable and helpless...almost wild. Wouldn't wish this experience on anybody, but for now with me the right meds, social supports and my faith has made me come out stronger, wiser, and determined to have purpose and meaning from my sufferings. Thank you again for your priceless videos! I am happy to be a Patreon member!
My husband is 43yrs old and just had his 1st 2 episodes. He is diagnosed with schizoaffective disorder. He is so worried & concerned about the fears you spoke of along with other things. He has read & watched about his diagnosis that when he found you on here. He wanted me to watch to explain how he felt. You are the closest to how these experiences have been. We are just learning so thank you for doing videos
As someone without schizophrenia your videos help me to be more understanding, supportive and open with people who I might later meet with it. In a way you are tackling your own fears on a global level with this initiative. It means a lot to all of us, thank you!
I hate saying that I'm glad I'm not the only one because it makes it sound like I'm happy that other people are struggling or something, but Lauren it really does make me feel better and it helps to know that I'm not alone. You literally listed ALL my fears about having schizophrenia 😭. I hope and pray that none of the things you're afraid of happening ever happen. Thank you for this video and using your voice to help others ❤️
Thank you for sharing Lauren. Your videos are so important in decreasing the stigma around mental illness. You're making a difference, one video at a time. I can tell that some of this was hard for you to talk about, but you are such an invaluable resource. Keep being amazing!!
I am a Case Worker who works with people who have experienced homelessness, many of whom have some sort of form of schizophrenic disorder. Your videos have been an incredible resource for me. I consistently find myself wishing for videos similar to yours on other disorders. There is such a big difference between hearing about something in a textbook and hearing about it from someone who has experienced it. Your insight has helped so many people already and you continue to make a positive impact on the world every day! Thank you so much for being vulnerable with us and for doing what you do!!!
I don’t suffer with mental health issues but I watch your channel and every time I do I learn something new and what I learn I discuss with friends and one friend has disclosed to me that’s she has mental health issues. I had no idea and it’s not made a bit of difference to our friendship except as I learn I want to ask her questions but am to afraid of upsetting or hurting her feelings. I’ve been watching for about 6/8 months and plan to continue to watch and learn. A big thank you for being such a good person and being so open. Thank you.
I got diagnosed as a schizophrenic about a year about a half ago(shortly after 3 grand mal siezures in under 2 hrs). I've been trying to find a way to talk about it more effectively to the people that stayed in my life. Besides the obvious things almost everyone assumes. Your channel has, in a way, given me some phrases and stuff to use in communicating. I greatly appreciate it.
You are amazingly articulate... no excessive blinking observed. Often, people overthink and over observe as soon as the lesson is neurological in nature.. I myself ... and my tendency to overthink ... would fare away from reading comments ... until scanned and ridiculous and hurtful comments and or “careless” comments are deleted.. But ... you know you... OBVIOUSLY... I see genuine empathy and a need to save all effected by this “ GIFT” ... Praying for you... praying for all of us ... haha being a human-being is a fragile journey... def this RUclips channel is a group effort and has a team mentality... it is obvious... just beyond amazing .. I have not found a site this detailed and professional. Thank you! My opinion... keep keeping it real. However, I would def have to practice self talk... “ this is yours and your family’s quest” . “It def takes support by being viewed “.. however... “if this i and my family are needed this page will not faulter” “ .. I pray and believe that ... you are saving and supporting the lives that genuinely need you .” .. Otherwise I would be a walking people pleaser.. and the entire mission would no longer be mine but the Patreons... and thank goodness this is not what this site and or page is about!!
Hi Lauren. Just wanted to thank you for all of your videos! A friend of mine has recently been diagnosed with schizophrenia and I’ve found your videos to be extremely helpful. You’re doing a great job helping others like myself understand and removing the stigma associated with schizophrenia! You have my support and thank you again!
Sure wish I knew my mental health issues BEFORE having kids. I would give anything to take back the trauma my daughter went through when police officers showed up at the door, as well as the disruption in her life when I am hospitalized. She is a teenager now and I am literally white-knuckling until she goes off to college. Since my husband has (high functioning) autism, I don't have a support system and can't rely on him to care for my daughter. On the positive side, she has been in therapy (we actually have the same therapist) and he has been able to help her learn coping skills which she might not have otherwise learned. She also knows that a person with mental illness is not someone to be feared. Thank you for sharing your personal thoughts, Lauren, as I finally hear someone give voice to my own internal fears.
As someone who struggles too, it would be interesting to hear about your common psychotic fears. For me, talking about mine with regular people has been one of the most effective ways to remove them from effecting me. Hearing about other people's helps too
I fear hospitalization, having kids, pregnacy, med changes, phycosis, suicide and judgement... I shouldn't fear hospitalization but I hate everything sometimes, among other things that are going on so I have to go.. But I hate it. So I try to be healthy and I love this channel. Right now I can't drive at night b/c the lights.... But I am on fmla at one job and walking to new job.. Where I don't have a uniform and can focus on taking care of myself ! Keep fighting somtimes you fall... Thanks to covid I'm not homeless....
Thank you so much for being vulnerable and sharing these fears. I experience similar fears and as unfortunate as it is that I'm not alone in them, there is some comfort there as well. xx
You are doing awesome!!!You are highly intelligent.Many people will be proud to have daughter like you! My little daughter is diagnosed with schizophrenia and like a parent I struggled more...It is very difficult sometimes....
I believe my late mother was an undiagnosed as well and she really checked out being a mom to me and my brothers after several years. I think you however are very self aware and would be great. Just don’t ever give up on them if they struggle with it as well. Bc i know if my mom had the understanding that you do it would have been a much better easier on me to see my mom suffer and get what’s going on. Your very strong and I’m so happy for your content. I never got much understanding from my mother and i feel like you’ve provided me a lot of that. My biggest fears are letting my own future children feel unloved and unwanted like i felt as a child. So if you have kids and i hope you do please share your journey still bc you really are inspiring. Thank you so much !
Hi Lauren, I really want to thank you for taking the time to make these "Living Well with Schizophrenia" videos. I identify with some of your own experiences and the different topics you have talked about are illuminating and helpful for my own recovery process. As you have described in this video you are worried about what type of new symptoms and new side effects from medications you may have or develop in the future. These are topics that have also worried me in my recovery process since I was first diagnosed. I started my treatment with first generation medications about thirty years ago and have progressed throughout the years to better medication that nevertheless all still give me different symptomatic experiences and side effects that aprohend me. In my opinion, it is important to fulfill the eight dimensions of wellness in our lives in appropriate measure and moderation for us to have a better outcome and that always possible to accomplish. I'm very grateful to all health providers that have participated in the constant improvements on medications and treatments. Personally, I think we have been blessed with your insight. You are gifted in communication regardless of the negative aspects of our illness and your contribution in mental health literacy for our ethnicity is of great value for new medical improvements to be possible. One of my major worries for a number of decades has been how to cope with loneliness and finding a lovely woman for a successful relationship like the one you have with your husband and children in social spheres that don't have resources and solutions contemplated for the fulfillment of these related dimension of wellness in typical patient environments. I wish Heavenly Father's blessing and lot of success in your work and for your family.
Thank you for your videos. My older brother Sean has had schizophrenia since 2014 and this helps me to understand him and his condition better and better be able to support him
As someone who had a very close family member with schizophrenia I want to thank you for the exceptional sense of humanity and togetherness that you show in your video.
Lauren, I just can't help admiring your positive attitude, intelligence and braveness! It's so wonderful to see that somebody can live happy, productive life despite of a serious mental illness. I might have bipolar disorder or/and ASD/ADHD symptoms, so this chanel learns me to realize that a diagnosis of some illness doesn't define you as a person. You are very beautiful woman in and out, stay well
do you think disclosing would help or hurt? if someone had this disorder and let me know beforehand I would be able to handle it, but I understand the stigma
Wishing you all the very best. Stay strong. You are an amazing soul and a beacon of light for the enlightenment and awareness you bring to others through your very informed videos.
Lauren you are sooo inspiring. Listening to you is validating and informative. I appreciate all you do. My mental wellness would not be the same without you.
You are awesome. I love that you share these things. I have had 6 psychosis episodes and I am fearful of another one, and homelessness. And everything that you mentioned. Thanks for the video. I wish I could meet you in person. Take care.
I just want to say, I have always found Schizophrenia so interesting and I have always wanted to learn more about it so I can understand it better. I have only recently started watching your content and I have already learned so much. I just want to thank you for the content you make because it has helped me learn and understand so much about this disorder.
Hello Lauren, Many thanks for making this latest RUclips video. You have a world class mind - world class. My own case is different to yours by my having stress induced psychosis schizophrenia with delusions of grandeur and my greatest fear of all is losing my temper and threatening someone damaging their property or worst of all assaulting them and ending up in prison. It was this fear that led to my developing psychosis believe it or not. It's a long story. I will always have a beautiful 3 bed semi detached house to live in and and I am now on a Non-Contributory State Pension such that I get by just fine. There are so many things I would love to buy but cannot but this doesn't really upset me too much. I have so much to be grateful for. I will be 67 this month and right now feeling hope and well. I drop to my knees several times every day for about a minute or even less and give thanks to God and the many, many pals I just know I have in the very highest place in heaven. One of my neighbours mother of two little girls who have since left the neighbourhood had post partum and was hospitalised for a whole year in Tallaght University Hospital's psychiatric unit where I was back in 2007. I recall that she may have been confined in another ward in that unit where she was under observation 24/7. That never happened to me. Her marriage ended and I think she went to live with a sister or her mother. I urge you to talk to your doctor about the drug I take Dolmatil(sulpiride). I have no side effects and I've taking this drug for many years and I know for a fact that so long as I take it I will never have another psychotic episode. All the best and many thanks, Peter Nolan. Ph.D.(physics). Dublin. Ireland.
You are so so amazing... Your unacceptapness really makes you present in the videos so lovely and empathetic! I love your voice.... Your kindness ...and I'm learning
I just wanted to say you speak volumes for the schizo affective community. I have learnt so much from your videos and I hope my family will learn from them to. My family is just starting to accept me for myself rather than the disease even though in my psychotic breaks I have tried to hurt people. That's what I have trouble with accepting the most.
My fiancé was diagnosed with schizoaffective disorder years ago. Your videos have helped me to understand him better. Your videos have helped me be a better partner. I appreciate your transparency and your willingness to share your thoughts and experiences more than you could ever know. Thank you.
I was diagnosed with early psychosis symptoms and am still trying to understand this condition. It's hard to swallow but thank you for making these videos which are so informative!
Hi Lauren, I just want to say that you are doing an amazing job in describing what it's like to live with a serious mental disorder and that way you are helping tremendously both the people living with a similar illness and the "healthy" ones. Your intelligent, open and kind presentation helps people who have no friends or family with a mental illness relate and remind that there is so much more to people living with various illnesses than the diagnosis. I myself fall into the "healthy" category but you are still a great inspiration for me - as a strong, smart, successful woman. I hope that none of your fears come true and you stay balanced and happy. Take good care 😊
you are adorable and amazing! share every one of your fears (know very little about schizophrenia, found the channel by chance. what you do is amazing, imagine a young girl watching this, you are helping people struggle less with self-acceptance! what a gift
Living Well With Inspirational Bravery - What you have added to the conversation about what it means to be human is transformative. I solute you, Lauren.
3:36 I'm usually distracted by your non-blinking! How strange. I wouldn't worry Lauren. I have seriously watched some of these videos and thought, "goodness, she hardly blinks!!"
I think some of it is when she is watching or reacting to the schizophrenia simulations which makes sense if it starts triggering some of her symptoms. I can't speak for her but for me I get more symptoms if I watch something that triggers my symptoms, so to me it's not that far of a stretch that that's happening to her. But like you said, it's subjective from person to person.
Everytime I watch a video you and your partner made I feel the urge to Thank You for what you are doing through this channel and just for your general strength. Sending all my love and support!
Again another amzing video from Lauren. There has GOT to be more people like you. I feel like I'm a lot like you, but I'm not sure if I could ma,e videos on my illness. I'm also a cancer survivor and I have intense radiation to my neck, which then led to years of dental issues and infections in my head on it's way to my braid and I after a year of antibiotics doing absolutely nothing,I unfortunately had to have all my teeth emergency removed. 😩😢😢😢 so every since that traumatic event I'm extremely self conscious and hate showing my mouth
You're doing incredible work with these videos helping and educating people and society needs that. Believe me society should be happy for people with your intelligence and ability to communicate. It's a difficult thing to deal with but you are functioning at a much more mature level than people with "no" mental illnesses.
I have schizophrenia and have all the same fears you do. Your not alone. And you remind me I'm not alone in these fears. And yes homelessness is a huge problem. I was homeless during my first break, and long after and it took me 6 years to get help cause I didnt know how. I was too psychotic. When I did finally get off the streets it was after a hospital stay and when they released (back to the streets) I had just enough clarity to get Myself into a shelter and start demanding help. And I got it. I also think it's the area where I live that has better social services than previous places I have lived. I've been many places in those 6 years and this was the only place i had successful help. Been off the streets for 1 year 8 months now and have been living independently for 9 months in very nice apartment. I am so thankful. Love your videos and your mission to the mental health community. And I definitely think that its stigma and pure stigma your videos are getting demonitized and I'm not ok with the message that sends to all of us, with mental illness or those without. Much love.
Thank you, Lauren, for your honesty in sharing your fears about SchizoAffective Disorder. There's another blogger/writer/video producer I'm wondering if you know about, who lives in Portland, WA, USA. Her name is Julie A. Fast, has also had SchizoAffective Disorder for 30+ years. She has a FB page under her name, an Instagram page for those with SMI, but also a FB page for families called The Stable Table, and a FB page for partners called The Stable Bed. She's written a lot of books. Julie really projects acceptance and self-awareness with her ideas on how to manage her illness, and in her efforts to help others, as you are doing here. Glad as a parent that I found you. Your video on thought disorder is extremely helpful. P.S. I've never noticed excessive blinking.
even though you are talking about fears in this video I have to say you look happy! and so expressive! I think naming our fears and saying them out loud is so powerful. :)
Dear Lauren, I'm someone who is fascinated by learning as much as I can about as much as I can (🤣)! I LOVE YOUR CHANNEL! I do have bouts of liveable mental problems, they are so mild (i.m.o) that i haven't looked into being diagnosed. But I have 2 close friends who have schizoaffective disorder themselves, it unfortunately is debilitating for them when they have suffered from episodes in the past. Your channel gives so much authentic, valueable, personal insight into the trials of living with schizophrenia; it's DEFINITELY helped me to better understand the points of view of my friends, who i really just want to be there for, especially when they need someone!!! We've been through some scary episodes because of this disorder, and i want to keep learning so that as time goes on i can just do my best to RESPECT their perspectives, & be loving towards them. ❤❤❤ Thank You Lauren!
Ps. when my friends are up to it we talk about their experiences, BUT it's not always super appropriate to ask questions because it's like, idk... a little bit probey 😅 besides it's not their job to sit there & teach ME about their biological situation for extended periods of time! 🤣 Especially when we're just chillin. It's like hello, that's why we have books, seminars, & internet!!!
This video is incredibly courageous and vulnerable, and is likely SO important to those suffering with a similar diagnosis to helping them feel seen and understood.
I loved it how in one of your stories the female cop recognized you from going speaking to her class You are definitely on the right path and we are so grateful for you
You are, by far, one of the most courageous, determined, compassionate woman in the world. I’m so proud of being subscribed to your channel. You are an inspiration to others who may be struggling with this illness. Blessed be, my dear.
I completely agree.. My sister has been Diagnosed with paranoid schizophrenia I’m trying so hard to communicate with her .. This channel has helped me more than I could ever express.
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Im a psychologist, and I have to say you are incredibly insightful and refreshing for making this video. You are doing great things for the mental health community
K. A. So helpful. My daughter was just diagnosed with it.
I didn't know there are people who call it "mental health community", thanks, now I know what the real idiots are.
Sorry, it seems you have a psychotic episode (but as a psychologist you know better how to treat it).
I hate psychiatrist
I have Schizophrenia it's hard for me sometimes but her videos are really helpful.
I dont have schizophrenia but these videos are honestly so fascinating
Same
hey its great that you are seeking to become more aware about schizophrenia and mental illness, you should know however it is generally inappropriate to refer to folks as schizophrenic or by any mental health diagnosis. so instead you would say "i do not have schizophrenia" or something like that. also fascination should translate to empathy/ compassion/respect:)
@@crumbtember oh i didnt know about the "schizophrenic" thing. You learn something new everyday!
You should edit your post then to reflect that you do not have have schizophrenia.
Same here. I don’t have schizophrenia but watch all of her videos. They are very interesting and informative about mental illness.
I was diagnosed with bipolar towards the end of high school that later evolved into schizoaffective. I’ve lost all of my friends due to how I acted during mania, except for one who I’ve known since the 4th grade. It’s sad how people show their true colors in a time when you needed them most. Thank you for your videos; it is comforting to know I am not alone ❤️
Hi Ashley! I had a similar experience. I was diagnosed with bipolar disorder during college; 2 prolonged manic episodes later I lost most of my friends and my job. Since my last episode I've been much more diligent about managing my symptoms and I haven't had a major episode in 3 years! I feel like my life is back on track. We are not alone!
I can so relate ❤️😭
same thing happened to me lost my job and friends after psychosis
I was in medical school when I was diagnosed. Now I fill the roses at the supermarket twice a week, which I’m proud of.
John Touzios and absolutely you should be proud of that! It’s a big deal to push yourself just to get out of bed through the door and actually do something for some people. I really do wish you all the very best
I’m continually blown away by your strength and wisdom and courage. To have to courage to even bring your fears into the conscious, let alone talk about them - let alone PUBLICLY- is just beyond almost anyone I’ve ever met.
What a brilliant plan - for anyone, whatever their mental health status - to look at your fears and build a plan around that matrix. Genius.
My husband was diagnosed with schizoaffective disorder after his stroke 6 years ago. He is very agreeable but can be angry and afraid.
My biggest fear is homelessness, I'm a clean and employed recovering addict. I feel like homelessness and hopelessness go hand in hand.
Me too! Its the scariest fear, especially if you have been through homelessness before!
@@alphabet_soup123 me too! It's the scariest thing knowing you can just as much be the grown men and women living in the streets due to Schizophrenia! My biggest fear!
Same here 👀 I wasnt homeless thankfully, but i feel like serious poverty fostered the same fear of homelessness and falling back into extreme poverty
I'm also in recovery! I'm sending good vibes ❤
@Aaron, I just want to encourage you and those who replied to this comment that you are all doing well! Continue to lean on your community of friends and family to help support you emotionally. ❤
How wonderful of you to be so emotionality transparent with yourself
Her self-awareness is mind blowing!
Thank you for sharing your fears and for making this video. I know that everyone’s mental illness is different but I wanted to share that my mom has schizophrenia and she and my dad raised me and my two other sisters while having it. We of course had a different childhood than most others but I can now, as an adult look back and I am so impressed at how my mom did such a good job at being a mother while having a mental illness. She did not have a mild form of the illness either. It was trying at times for all of us and still is but it’s made us all into compassionate and understanding people. A gift I would not trade. We did have many factors that helped, like having both parents and my father having a pretty good income, so we didn’t always have added stress about income or health care. Also worth mentioning is that I’m thankful my mom had us, because we, her daughters, are her added social support system. She lost all her friends when she became ill. But she raised three women who are now her best friends and help take care of her. Love her so much. Sending prayers and strength your way
Beautiful 👌🏽 ❤️
I love your comments
You are the bravest person on this earth. Period.
It has to take an unfathomable amount of courage to speak about your fears in a video like this considering the prejudice and discrimination around these days.
Stay safe & healthy.
I failed all my classes due to Tardive Dyskinesia. I'm a music major who is striving to become a music therapist living with schizophrenia. As soon as I got on antipsychotics I noticed I couldn't play guitar or even sing because of tremors happening in my arms. It's gotten to the point where I am throwing up my medication to stop this from happening. It just feels like society would rather have you die than "hear voices". Because music therapy would be a source of income that seems beyond my reach, it literally feels like I'm grappling with death every semester. We need more research on antipsychotics so this doesn't happen to any other responsible patient with schizophrenia.
Can't you try a different medication?
@@wiedemaster all antipsychotics can cause tardive dyskinesia.
Sending you love and well wishes.
I take ginko biloba pills to prevent tardive dyskinesia. I read about it in a facebook group that talked about the shamanic implications of mental illness. I'm getting weaned off of zyprexa at the moment - and hope to be raw balling reality by 2021. I know it means I will hallucinate - I'm fine with that. We're not all meant to think like the mentally 'able bodied'. If you can handle the voices, if you can grow with them, then do what is right for you. If you can't handle it, then take the pills. I'd rather take the pills than be psychotic. But, at this point, I think I can truly handle what will come when I stop taking the antipsychotics. Blessings.
_"It's gotten to the point where I am throwing up my medication to stop this from happening"_
Well at that point you might as well stop taking them, or are you being forced under supervision? I hope you find a trade-off that works, would be a shame if you couldn't follow your passion of music.
Hi Loren...thanks for sharing your thoughts. I'm 68 with schizoaffective disorder....college degreed..retired from a professional career. My fears: being in a memory care center due to meds, being in jail because I did something I don't even remember while manic & psychotic, or becoming homeless.
I have same fears I am 32 years old I was diagnosed with schizofrenia Two months ago and it Is hard
I wonder when will people stop being judgemental, so we can live life freely, because no one is perfect 🙂
Yes! Why on earth would a person go so far as to complain about blinking?
Exactly, blinking is never a problem i blink all the time my mom knows that about me, put people always look for a negative thing everywhere,
They are too scared of it do they’d rather distance themselves and judge than learn about it.
It will stop when people stop judging themselves.
@@lorenavedon but schizophrenia & psychosis can have everything to do with being judged... i cant tell if you're comment is criticizing the o.g. comment or not 😅 maybe you worded it wrong, or maybe you read the 1st comment wrong 😬 somethings not gelling
All of Lauren's fears seem valid and relevant to me. It helps me to realize that everyone in the world must deal with a long list of real and imaginary fears. We are all doing the best we can not to give in to fear, to stay strong.
Yes we are! Never stop fighting!
I have BPD with Major Depression, PTSD, and Anxiety. I truly appreciate your videos. I have family members with Schizophrenia. I have one daughter and I'd be lying if I didn't fear for her mental health in the future. It's terrifying. I've had pretty severe substance abuse in the past as well. I'd do anything to protect her from the horrendous events I experienced self medicating my mental illnesses. No human being should have endured what I have. Thank you SO MUCH for these videos.
Dear Lauren: I have gotten a vasectomy due to my fear of passing my illness on to my kids. I have lived on the very, very dark side of life. I don't want to live there anymore.
There are always people you can reach to. Please seek help you are worth it. ❤️
Love you I relate to you
You're not alone : )
You are valuable. Please do not refrain from seeking help. You are not alone and we love you so much, Andrew.
Cry out to Jesus Christ. He is ultimately our only answer!
A lot of your fears align with my own. Like the fear hurting others or myself. Most of my friends stopped talking to me already, But one of my biggest fears is that what the voices were telling me will come true. Some things have started lining up in my life with what they were saying and it’s scary because I don’t want my future to be shaped by this illness. I’m fighting everyday to better myself and hopefully change because I want better for myself.
You deserve better. Keep fighting.
You deserve better indeed, I do not have schizophrenia, but I did have an anxiety crisis followed by an episode of depression a few years ago, and I did constantly have the fear of losing it, and especially hurting myself, with really intrusive thoughts of jumping from anywhere high. It also involved the fear of developing a serious mental condition, and being sent to a hospital for life. Funny thing, i knew this fear was not rational, at least to me, but couldnt help it, it would still wake up in the middle of the night and be consumed by angst, this is what anxiety does, its commonly know as fear of losing control and is also linked to fear of judgment. Today, thankfully, my anxiety is more under control than even before the crisis and I can say it has been a teacher and made me a better person. Well, all this to also tell you as said in the video not to dwell too much in your fears, one time I did a meditation that said that the worst part of depression is many times fear of always having depression. Keep fighting.
Just my personal experience, but just because the voices do sometimes hit on something that end up happening doesn’t mean they have any kind of authority. First of all, even a broken clock is right twice a day. But more to the point, in my case at least, “they” are “very good” at lying with the truth, meaning they twist stuff around to make it look like it’s proof of my shit-hood, or whatever it is they’re talking about.
I feel you on the voices saying stuff and what they say slowly starts to show. It drives me crazy trying to figure out if the voices are real or not because of stuff like that. Anyways, I'm sorry that you're struggling with the voices but just know you're not alone ❤️
@@hopegold883 I definitely agree with you.
I watch these because I have a family member with schizophrenia, I love your videos!!
As someone living with schizoaffective I always look forward to your videos. I too have been struggling with these but most recently with having children of my own. I feel like the fact that we are thinking about it so carefully says a lot about how we would be as mothers and how we would do everything in our power to protect them and love them no matter what. All the best!
My fear is people knowing I’m schizo and judge me and be negative :/ and being homeless
Just wanted to share. My mom has schizoaffective disorder. She struggled while I was growing up.... I am fine. I don’t have it.
I have also adopted a daughter(who is now 3) through foster care, and her mother had schizoaffective disorder.
You are very strong and brave Lauren.
I have bipolar disorder (experienced psychosis before), and I have all of these fears too. Job discrimination and homelessness are a huge fear of mine, and I always feel this strange feeling of kinship and subsequent sorrow when I see a homeless person on the street who clearly has some sort of psychosis-related illness. Probably the greater fear though is losing social support and having some sort of psychotic episode when having kids. My dad has bipolar disorder and had manic episodes when I was younger and it was mostly fine but, as a woman, I sometimes wonder if due to gender roles, it affects kids differently if it comes from their mother. One of my favorite movies is The Babadook, and it really illustrates my fears of having some sort of episode that affects my kids.
Anyway, thank you for the video, it was really nice to hear someone with similar worries, and address it in a very grounded way!
WARNING- POTENTIAL TRIGGER: I don't think it affects the kids more if it's their mother, i think depending on the episode itself, and how much the kids see of it will affect them. Ive had 4 friends in my life who grew up with a severely unwell schizophrenic parent (it sounds like a lot now that i think about it! I also have 2 friends diagnosed schizophrenic, so maybe we're just drawn to eachother?!). It seems as though the times where episodes had a huge negative impact were when the parent became violent, whether with themselves or others, even if it were only a perceived threat- like through violent verbalization around the child or to the child. Clearly there may've been other things going on too with the psychotic parent, like drug addiction alongside schizophrenia, but i just dont know that it was present for each (in 1 situation i know that my friend's parent had an amphetamine problem). 3 out of the 4 friends i've had with this disease in their familes had experiences with their parent threatening to kill them or other family members, one parent actively tried to kill themself in front of the child 😬 I wont get too much into that one though... but I think these untreated episode's affect on the child can be quite disturbing, whether it is the mother OR the father having it 😔 such a hard an unfair disorder, very misunderstood 😞 especially for kids, who dont fully understand things going on around them; hell it can be hard for other adults to understand- hence the unfortunate stigma 😕 I believe the key to change around mental illness & ESPECIALLY schiz disorders will be education/awareness (channels like this are so great!!!), compassion, & prioritizing health/wellness in western culture 🤔
As a person who hasn't experienced psychosis, this was one of my favorite videos yet. A lot of videos on living with mental illness focus on the symptoms or logistics (meds, etc). It's interesting to hear about the everyday worries and fears.
P.S. I'm a +1 for "don't worry about your blinking" :). I think you're blinking at a normal frequency for conversation (maybe even less, because you're speaking longer sentences!). I think RUclips has just habituated us to that wide-eyed, super-energetic presentation style, plus most channels use way more quick cuts than yours (probably edits out lots of blinks and disfluencies). I prefer this style! Keep up the good word.
Thank You so much! I have so many of these worries. To hear someone else talk about them, makes me feel not alone. But they are all SO SCARY!!!
You definitely shatter the stereotype of the grizzled homeless man with schizophrenia. You are so incredibly beautiful, inside and out and you have helped me so much with my relationships with my schizophrenic friends. I also have Tardive Dyskinesia, not only do l blink excessively, I also blink harder than normal (with more force).
Lauren, your advocacy is beautiful. I don't have schizophrenia/schizoaffective disorder - I have bipolar disorder. But I could relate so much to your fears.
Thank you for this video, Lauren! I personally still fear having multiple psychotic episodes and losing all control in the process. But, I have long told myself that it's okay not to be productive and I have to constantly remind myself to relax because not everything will go smoothly most days. Some strangers may see me either talking to myself in public or assume quietly I'm a "danger" to society, especially while I'm doing chalk art as well. Oh, I also fear I'll end up homeless and resorting back to self harm/relapse or even loss of social supports due to my schizoaffective. So, those fears are totally justified. I'm still learning to accepting this thought disorder due to fear of judgment from those who know very little about schizoaffective disorder. But my art and writing have only kept me grounded before and after my diagnosis.
Art and writing is my saving grace as well.
Your awareness and knowledge never ceases to amaze me. Thank you for sharing so much with us. It really helps to get an insight into how someone with SZ thinks and helps us support them better when we understand more.
You are way too hard on yourself. If I met you I would never suspect you were living with SZAD. You are perfect as you are although I do suspect you are a perfectionist and are consequently too hard on yourself.
Another great video👍 - very open and informative. Although you were sharing your personal fears, I'm also so glad you mentioned homelessness. I feel like people have a negative view on those affected by homelessness, but don't always consider that symptoms of mental illness and the lack of a social support structure could be the cause.
Lastly, I'm absolutely flabbergasted by the stuff people will bring to your attention. I watch your videos and walk away pumped and ready to help improve the narrative around schizophrenia and mental health in general.
Not a schizophrenic, just depression but I really enjoy hearing your stories about how you handle your mental health and life as well.
Now that you have educated those of us who didn't know that the long term use of certain mental meds can cause TD: Get off her case about her blinking. If it distracts you that much then just listen and don't watch. I have watched several of her videos and have not noticed her doing any kind of excessive blinking. Prolly cause I, like most of us here, was more interested in what she had to say.
Had an aunt who was schizophrenic and from her I learned early on the amount of incorrect assumptions, stereotypes and unfounded fears people have regarding mental illness. She was always loving, funny and always loved going to visit her. I didn't understand when I was little why we would stop seeing her for extended periods until I got to see her during one of her bad times. I never felt afraid, I just felt sorry for her seeing her in that state.
My mother was one of eight children. All were adopted at birth or very young. Two of those eight siblings committed suicide. The biological mother, my grandmother, was schizophrenic. My mother was a paranoid schizophrenic.
Thank you for sharing your story. I wish there was more understanding and support 20+ years ago. You are a beautiful, strong woman!
Thank you for being so open with your audience. You do so much to educate and humanize; thank you for continuing to do this.
It’s been swept under the rug but I believe my grandmother was committed with schizophrenia. Sometimes I believe over my life my behavior has had symptoms of schizoaffective disorder. I’ve done some odd stuff during periods of mania, as well as, suffer from depression for long periods of time. It seems I have a ten year cycle of building myself up, then being destructive. On one hand it really sucks and, on the other I’ve had some interesting experiences and careers. I’m almost 70 now and feel tired of the struggle and have regrets about people I’ve hurt. Please know the work you do is helpful.
My great grandmother had severe schizophrenia and was committed many times
Although I do not have schizophrenia, I can relate to some of your fears, Lauren. I am still struggling with the fear of stigma. When to disclose, when not to disclose will always be a big question mark for me. Alot of the times, I've seen my relationships change and even terminate because I tried to ask for help or explained my struggles in the most simplistic manner. I believe our community just needs more awareness.
You're amazing for being so honest. These videos are really informative. I have chronic depression and even though your videos don't apply to me exactly I find them very encouraging for enduring through the illness and being patient and optimistic for the future as well as highly functional to support this channel and your other activities
Thank you for so openly and honestly sharing your fears and opening up, i wish you all the best in your life and i really wish you good health. :)
Honestly since I found out I have Schizoaffective disorder it's been terrifying but this channel has really helped me understand a lot about it like her fears are a lot like my fears and probably others who live with the disorder as well makes me feel kinda less alone
My biggest fear is homelessness and loss of social support!
Lauren your brave and resilient. I also have schizoaffective disorder, I look forward to your videos and always feel better after watching your videos. All the things I’m too afraid to discuss you cover! Your definitely making a big impact for all people with mental health issues! ✌️ Keep going! Your amazing!
It takes a lot of strength to show your vulnerability and share your fears and stories. Thank you from the bottom of my heart for your bravery and willingness to share
Wow it's so brave that you share your biggest fears, thank you for that!!
Thank you from my heart to yours Lauren! These videos have helped me on my personal journey with schizoaffective disorder and continue to do so! My family is better informed. And these videos have inspired me given me courage to be more open, honest, and vulnerable socially about it and it is rewarding, though a few may shy away! Most socially support me, and these fears within I also battle with, especially stigma in the general population. When I had my two episodes of psychosis, you do feel so full of fear and very raw and just confused and so paranoid that it feels like anything only bad can happen! But the good things or bad things that you feed your mind upon, OR have been taught/brought up with before psychosis I think can determine how peaceful/harmless you are or how violent some become...that raw fear that I had (or fearlessness/invincibleness for some) in psychosis is scary though, you can feel unpredictable and helpless...almost wild. Wouldn't wish this experience on anybody, but for now with me the right meds, social supports and my faith has made me come out stronger, wiser, and determined to have purpose and meaning from my sufferings. Thank you again for your priceless videos! I am happy to be a Patreon member!
Thanks so much for the upload Lauren!! I appreciate your content & admire what you're doing. Much continued success to you!!
My husband is 43yrs old and just had his 1st 2 episodes. He is diagnosed with schizoaffective disorder. He is so worried & concerned about the fears you spoke of along with other things. He has read & watched about his diagnosis that when he found you on here. He wanted me to watch to explain how he felt. You are the closest to how these experiences have been. We are just learning so thank you for doing videos
I wish i could give your comment 1k thumbs ups!
Your videos are a gift, thank you for your words!
As someone without schizophrenia your videos help me to be more understanding, supportive and open with people who I might later meet with it. In a way you are tackling your own fears on a global level with this initiative. It means a lot to all of us, thank you!
I hate saying that I'm glad I'm not the only one because it makes it sound like I'm happy that other people are struggling or something, but Lauren it really does make me feel better and it helps to know that I'm not alone. You literally listed ALL my fears about having schizophrenia 😭. I hope and pray that none of the things you're afraid of happening ever happen. Thank you for this video and using your voice to help others ❤️
This entire video is the definition of personal bravery. Thank you for sharing.
Thank you for sharing Lauren. Your videos are so important in decreasing the stigma around mental illness. You're making a difference, one video at a time. I can tell that some of this was hard for you to talk about, but you are such an invaluable resource. Keep being amazing!!
I am a Case Worker who works with people who have experienced homelessness, many of whom have some sort of form of schizophrenic disorder. Your videos have been an incredible resource for me. I consistently find myself wishing for videos similar to yours on other disorders. There is such a big difference between hearing about something in a textbook and hearing about it from someone who has experienced it. Your insight has helped so many people already and you continue to make a positive impact on the world every day! Thank you so much for being vulnerable with us and for doing what you do!!!
Keeping you in my prayers.
I don’t suffer with mental health issues but I watch your channel and every time I do I learn something new and what I learn I discuss with friends and one friend has disclosed to me that’s she has mental health issues. I had no idea and it’s not made a bit of difference to our friendship except as I learn I want to ask her questions but am to afraid of upsetting or hurting her feelings. I’ve been watching for about 6/8 months and plan to continue to watch and learn. A big thank you for being such a good person and being so open. Thank you.
I got diagnosed as a schizophrenic about a year about a half ago(shortly after 3 grand mal siezures in under 2 hrs). I've been trying to find a way to talk about it more effectively to the people that stayed in my life. Besides the obvious things almost everyone assumes. Your channel has, in a way, given me some phrases and stuff to use in communicating. I greatly appreciate it.
My biggest fear is dying 15 to 25 years prematurely because of side effects from long term meds.
If you're not taking the right ones, in the right time and in too high doses.
And, before all, not find the right partners..
You are amazingly articulate... no excessive blinking observed. Often, people overthink and over observe as soon as the lesson is neurological in nature..
I myself ... and my tendency to overthink ... would fare away from reading comments ... until scanned and ridiculous and hurtful comments and or “careless” comments are deleted..
But ... you know you... OBVIOUSLY... I see genuine empathy and a need to save all effected by this “ GIFT” ...
Praying for you... praying for all of us ... haha being a human-being is a fragile journey...
def this RUclips channel is a group effort and has a team mentality... it is obvious... just beyond amazing .. I have not found a site this detailed and professional. Thank you! My opinion... keep keeping it real.
However, I would def have to practice self talk... “ this is yours and your family’s quest” . “It def takes support by being viewed “.. however... “if this i and my family are needed this page will not faulter”
“ .. I pray and believe that ... you are saving and supporting the lives that genuinely need you .” ..
Otherwise I would be a walking people pleaser.. and the entire mission would no longer be mine but the Patreons... and thank goodness this is not what this site and or page is about!!
Hi Lauren. Just wanted to thank you for all of your videos! A friend of mine has recently been diagnosed with schizophrenia and I’ve found your videos to be extremely helpful. You’re doing a great job helping others like myself understand and removing the stigma associated with schizophrenia! You have my support and thank you again!
Sure wish I knew my mental health issues BEFORE having kids. I would give anything to take back the trauma my daughter went through when police officers showed up at the door, as well as the disruption in her life when I am hospitalized. She is a teenager now and I am literally white-knuckling until she goes off to college. Since my husband has (high functioning) autism, I don't have a support system and can't rely on him to care for my daughter. On the positive side, she has been in therapy (we actually have the same therapist) and he has been able to help her learn coping skills which she might not have otherwise learned. She also knows that a person with mental illness is not someone to be feared.
Thank you for sharing your personal thoughts, Lauren, as I finally hear someone give voice to my own internal fears.
As someone who struggles too, it would be interesting to hear about your common psychotic fears. For me, talking about mine with regular people has been one of the most effective ways to remove them from effecting me. Hearing about other people's helps too
I fear hospitalization, having kids, pregnacy, med changes, phycosis, suicide and judgement... I shouldn't fear hospitalization but I hate everything sometimes, among other things that are going on so I have to go.. But I hate it. So I try to be healthy and I love this channel. Right now I can't drive at night b/c the lights.... But I am on fmla at one job and walking to new job.. Where I don't have a uniform and can focus on taking care of myself ! Keep fighting somtimes you fall... Thanks to covid I'm not homeless....
Thank you so much for being vulnerable and sharing these fears. I experience similar fears and as unfortunate as it is that I'm not alone in them, there is some comfort there as well. xx
I live with Schizophrenia , schizoaffective disorder . Thanks for the help
You are doing awesome!!!You are highly intelligent.Many people will be proud to have daughter like you! My little daughter is diagnosed with schizophrenia and like a parent I struggled more...It is very difficult sometimes....
I feel what you are saying. I have schizophrenia as well. Everything you felt, I deeply feel as well. Thank you for speaking up.
I believe my late mother was an undiagnosed as well and she really checked out being a mom to me and my brothers after several years. I think you however are very self aware and would be great. Just don’t ever give up on them if they struggle with it as well. Bc i know if my mom had the understanding that you do it would have been a much better easier on me to see my mom suffer and get what’s going on. Your very strong and I’m so happy for your content. I never got much understanding from my mother and i feel like you’ve provided me a lot of that. My biggest fears are letting my own future children feel unloved and unwanted like i felt as a child. So if you have kids and i hope you do please share your journey still bc you really are inspiring. Thank you so much !
I recently had my first major manic episode and your videos have been so comforting post-hospitalization.
Hi Lauren, I really want to thank you for taking the time to make these "Living Well with Schizophrenia" videos. I identify with some of your own experiences and the different topics you have talked about are illuminating and helpful for my own recovery process. As you have described in this video you are worried about what type of new symptoms and new side effects from medications you may have or develop in the future. These are topics that have also worried me in my recovery process since I was first diagnosed. I started my treatment with first generation medications about thirty years ago and have progressed throughout the years to better medication that nevertheless all still give me different symptomatic experiences and side effects that aprohend me. In my opinion, it is important to fulfill the eight dimensions of wellness in our lives in appropriate measure and moderation for us to have a better outcome and that always possible to accomplish. I'm very grateful to all health providers that have participated in the constant improvements on medications and treatments. Personally, I think we have been blessed with your insight. You are gifted in communication regardless of the negative aspects of our illness and your contribution in mental health literacy for our ethnicity is of great value for new medical improvements to be possible. One of my major worries for a number of decades has been how to cope with loneliness and finding a lovely woman for a successful relationship like the one you have with your husband and children in social spheres that don't have resources and solutions contemplated for the fulfillment of these related dimension of wellness in typical patient environments. I wish Heavenly Father's blessing and lot of success in your work and for your family.
Thank you for your videos. My older brother Sean has had schizophrenia since 2014 and this helps me to understand him and his condition better and better be able to support him
As someone who had a very close family member with schizophrenia I want to thank you for the exceptional sense of humanity and togetherness that you show in your video.
Lauren, I just can't help admiring your positive attitude, intelligence and braveness! It's so wonderful to see that somebody can live happy, productive life despite of a serious mental illness. I might have bipolar disorder or/and ASD/ADHD symptoms, so this chanel learns me to realize that a diagnosis of some illness doesn't define you as a person. You are very beautiful woman in and out, stay well
OMG... thank you. For this. Daughter of mum with this and me passing it on too. I'm so proud of you.
I’m 24 and I struggle so hard with work because I’m always afraid I’m going to hallucinate while I’m on the job.
do you think disclosing would help or hurt? if someone had this disorder and let me know beforehand I would be able to handle it, but I understand the stigma
Wishing you all the very best. Stay strong. You are an amazing soul and a beacon of light for the enlightenment and awareness you bring to others through your very informed videos.
Lauren you are sooo inspiring. Listening to you is validating and informative. I appreciate all you do. My mental wellness would not be the same without you.
You are awesome. I love that you share these things. I have had 6 psychosis episodes and I am fearful of another one, and homelessness. And everything that you mentioned.
Thanks for the video. I wish I could meet you in person. Take care.
I just want to say, I have always found Schizophrenia so interesting and I have always wanted to learn more about it so I can understand it better. I have only recently started watching your content and I have already learned so much. I just want to thank you for the content you make because it has helped me learn and understand so much about this disorder.
Hello Lauren,
Many thanks for making this latest RUclips video. You have a world class mind - world class. My own case is different to yours by my having stress induced psychosis schizophrenia with delusions of grandeur and my greatest fear of all is losing my temper and threatening someone damaging their property or worst of all assaulting them and ending up in prison. It was this fear that led to my developing psychosis believe it or not. It's a long story.
I will always have a beautiful 3 bed semi detached house to live in and and I am now on a Non-Contributory State Pension such that I get by just fine. There are so many things I would love to buy but cannot but this doesn't really upset me too much.
I have so much to be grateful for. I will be 67 this month and right now feeling hope and well. I drop to my knees several times every day for about a minute or even less and give thanks to God and the many, many pals I just know I have in the very highest place in heaven.
One of my neighbours mother of two little girls who have since left the neighbourhood had post partum and was hospitalised for a whole year in Tallaght University Hospital's psychiatric unit where I was back in 2007. I recall that she may have been confined in another ward in that unit where she was under observation 24/7. That never happened to me. Her marriage ended and I think she went to live with a sister or her mother.
I urge you to talk to your doctor about the drug I take Dolmatil(sulpiride). I have no side effects and I've taking this drug for many years and I know for a fact that so long as I take it I will never have another psychotic episode.
All the best and many thanks,
Peter Nolan. Ph.D.(physics). Dublin. Ireland.
You are so so amazing... Your unacceptapness really makes you present in the videos so lovely and empathetic! I love your voice.... Your kindness ...and I'm learning
I just wanted to say you speak volumes for the schizo affective community. I have learnt so much from your videos and I hope my family will learn from them to.
My family is just starting to accept me for myself rather than the disease even though in my psychotic breaks I have tried to hurt people. That's what I have trouble with accepting the most.
My fiancé was diagnosed with schizoaffective disorder years ago. Your videos have helped me to understand him better. Your videos have helped me be a better partner. I appreciate your transparency and your willingness to share your thoughts and experiences more than you could ever know. Thank you.
I was diagnosed with early psychosis symptoms and am still trying to understand this condition. It's hard to swallow but thank you for making these videos which are so informative!
Hi Lauren, I just want to say that you are doing an amazing job in describing what it's like to live with a serious mental disorder and that way you are helping tremendously both the people living with a similar illness and the "healthy" ones. Your intelligent, open and kind presentation helps people who have no friends or family with a mental illness relate and remind that there is so much more to people living with various illnesses than the diagnosis. I myself fall into the "healthy" category but you are still a great inspiration for me - as a strong, smart, successful woman. I hope that none of your fears come true and you stay balanced and happy. Take good care 😊
These are real concerns when thinking about having a child. This sharing is very honest and heartfelt, thank you for sharing 💖
you are adorable and amazing! share every one of your fears (know very little about schizophrenia, found the channel by chance. what you do is amazing, imagine a young girl watching this, you are helping people struggle less with self-acceptance! what a gift
Living Well With Inspirational Bravery - What you have added to the conversation about what it means to be human is transformative. I solute you, Lauren.
3:36 I'm usually distracted by your non-blinking! How strange. I wouldn't worry Lauren. I have seriously watched some of these videos and thought, "goodness, she hardly blinks!!"
Hahaha. Yeah I wouldn’t look in to the blinking thing either. Think it’s a subjective observation thing too.
Agree
I think some of it is when she is watching or reacting to the schizophrenia simulations which makes sense if it starts triggering some of her symptoms. I can't speak for her but for me I get more symptoms if I watch something that triggers my symptoms, so to me it's not that far of a stretch that that's happening to her. But like you said, it's subjective from person to person.
Also edit, I don't have schizophrenia/schitzo-affective disorder but have other mental illnesses and a chronic physical illness.
You are amazing - I can’t honestly say I would be as strong as you if I were in your shoes. Thank you for having the courage to be so transparent
Everytime I watch a video you and your partner made I feel the urge to Thank You for what you are doing through this channel and just for your general strength. Sending all my love and support!
i was diagnosed with schizophrenia yesterday, your channel is very helpful
You are such a positive model and strong individual for getting through this. Great work on the videos!
I relate to every single one of these. Thanks for posting. ❤️
Again another amzing video from Lauren. There has GOT to be more people like you. I feel like I'm a lot like you, but I'm not sure if I could ma,e videos on my illness. I'm also a cancer survivor and I have intense radiation to my neck, which then led to years of dental issues and infections in my head on it's way to my braid and I after a year of antibiotics doing absolutely nothing,I unfortunately had to have all my teeth emergency removed. 😩😢😢😢 so every since that traumatic event I'm extremely self conscious and hate showing my mouth
You're doing incredible work with these videos helping and educating people and society needs that. Believe me society should be happy for people with your intelligence and ability to communicate. It's a difficult thing to deal with but you are functioning at a much more mature level than people with "no" mental illnesses.
I have schizophrenia and have all the same fears you do. Your not alone. And you remind me I'm not alone in these fears. And yes homelessness is a huge problem. I was homeless during my first break, and long after and it took me 6 years to get help cause I didnt know how. I was too psychotic. When I did finally get off the streets it was after a hospital stay and when they released (back to the streets) I had just enough clarity to get Myself into a shelter and start demanding help. And I got it. I also think it's the area where I live that has better social services than previous places I have lived. I've been many places in those 6 years and this was the only place i had successful help. Been off the streets for 1 year 8 months now and have been living independently for 9 months in very nice apartment. I am so thankful. Love your videos and your mission to the mental health community. And I definitely think that its stigma and pure stigma your videos are getting demonitized and I'm not ok with the message that sends to all of us, with mental illness or those without. Much love.
Thank you, Lauren, for your honesty in sharing your fears about SchizoAffective Disorder. There's another blogger/writer/video producer I'm wondering if you know about, who lives in Portland, WA, USA. Her name is Julie A. Fast, has also had SchizoAffective Disorder for 30+ years. She has a FB page under her name, an Instagram page for those with SMI, but also a FB page for families called The Stable Table, and a FB page for partners called The Stable Bed. She's written a lot of books. Julie really projects acceptance and self-awareness with her ideas on how to manage her illness, and in her efforts to help others, as you are doing here. Glad as a parent that I found you. Your video on thought disorder is extremely helpful. P.S. I've never noticed excessive blinking.
even though you are talking about fears in this video I have to say you look happy! and so expressive! I think naming our fears and saying them out loud is so powerful. :)
Dear Lauren,
I'm someone who is fascinated by learning as much as I can about as much as I can (🤣)! I LOVE YOUR CHANNEL! I do have bouts of liveable mental problems, they are so mild (i.m.o) that i haven't looked into being diagnosed. But I have 2 close friends who have schizoaffective disorder themselves, it unfortunately is debilitating for them when they have suffered from episodes in the past. Your channel gives so much authentic, valueable, personal insight into the trials of living with schizophrenia; it's DEFINITELY helped me to better understand the points of view of my friends, who i really just want to be there for, especially when they need someone!!! We've been through some scary episodes because of this disorder, and i want to keep learning so that as time goes on i can just do my best to RESPECT their perspectives, & be loving towards them. ❤❤❤ Thank You Lauren!
Ps. when my friends are up to it we talk about their experiences, BUT it's not always super appropriate to ask questions because it's like, idk... a little bit probey 😅 besides it's not their job to sit there & teach ME about their biological situation for extended periods of time! 🤣 Especially when we're just chillin. It's like hello, that's why we have books, seminars, & internet!!!
This video is incredibly courageous and vulnerable, and is likely SO important to those suffering with a similar diagnosis to helping them feel seen and understood.
I loved it how in one of your stories the female cop recognized you from going speaking to her class
You are definitely on the right path and we are so grateful for you
You are, by far, one of the most courageous, determined, compassionate woman in the world. I’m so proud of being subscribed to your channel. You are an inspiration to others who may be struggling with this illness. Blessed be, my dear.
I completely agree..
My sister has been Diagnosed with paranoid schizophrenia
I’m trying so hard to communicate with her ..
This channel has helped me more than I could ever express.
Every single fear is what I fear. So brave, well done! Lauren ♥ ♥ ♥