I think she actually looks pretty healthy for someone with EB in her 20s... she can still walk and be active, this is not the case for many people with this condition
You are so gorgeous, I’d love to be your friend.... I wish their was a cure for this or just anyone suffering. She looks like she is such a positive person.
*She is beautiful, strong and an inspiration to me, a person who has a skin condition.* Bless her sweet spirit and hope they find a cure soon. Sending love from Washington DC.💞💯
I think this girl is a true inspiration she doesn’t give a care in the world what people think of her skin. People need to learn that things happen and all people need to be treated the same no matter what happend to you, what you like to do, etc. I love this girl!!!!!
It makes me so sick to my stomach thinking about how painful this must be. I wish I could just take this pain away from her. She is beautiful and more strong than 90% of us. I think if any of us suddenly found out we had this, we would just go into a depression deep enough to not want to live anymore because we would not have the pain tolerance built up to withstand dealing with this. However she has dealt with this her whole life so she has a massive pain tolerance. Let's pray for a cure or miracle-like treatment for this disease.
I’m so sorry for the pain and hardships you have to go through girl- I wish we could bare some of that load for you ❤️ but that fact that you are not letting it beat you down makes you shine so bright. So proud of you and I think you are so beautiful! X
Oh god !!!! And there's me who was complaining 1 hour ago about not being able to go to the beach because of quarantine and acted like it's the end of the world.. Omg ppl who were born with no diseases should be thankfull their whole life.. Thank god for that really 🙇
To all the people that stare: I get it. You stare because you see something weird or unnatural that you've never seen before. But here's where you can get mixed up. Some people stare, and then smirk and laugh. Others, come up and ask about whatever it is that they're staring at. But now some, and by some I mean very few people, have the nerve to go up and be a friend and be kind to the person who is struggling. Be one of those people who reaches out and is kind. The world needs more people like that.
She made me feel sad some people are just mean really I hope that she lives a long life and doing the things that makes her happy we are all different in this world but we are still human beings
'seeing the constant reminder of how little control you have' - this hit me so hard, I cried. I can relate to it so much, having pretty bad eczema (which I understand is not the same, but a skin condition nonetheless). Thank you for being so honest and open about your own condition. It makes me feel a little less alone with my own,
How I feel with my health conditions. I'm always sore or unable to keep down food or liquids and at times I'm laying over the toilet wondering when it'll just end. Or I'm cooking and I have to lay down or sit in a chair because I pass out. Sometimes in some cases(since not all conditions effect you at the same age) you really take for granted your health until its not what it used to be. Looking in the mirror and seeing I don't have control of who I am anymore is scary. But you learn to find more of the beauty in things people wouldn't usually give a second glance or thought. I think its shaped me to be more undedstanding and empathetic of others
Try Aleppo olive oil soap with bay/laurel. You can use it as shampoo too. Ugly brown soap that turns olive color with use. Smells faintly like olive oil. A bar lasts me 4 months. I use it all over my body. It keeps my dry skin moisturized too. My rosacea and eczema are gone as long as I use this soap. I do not use cosmetics, creams, hair conditioners, hair spray or other things on my body-- just this soap. I also use hypoallergenic laundry detergent and double rinse all clothes. I found out about the soap when I worked in Iraq. A local co-worker told me about the soap. You can buy it in any middle eastern market. Look it up on Amazon to see what it looks like but don't buy it there unless your only option because expensive on Amazon. Maybe it will work for you?
I have nothing but admiration for this young lady. I have a chronic pain condition that gets me down sometimes but her positive attitude has filled me with renewed determination. You are a beautiful positive advocate for EB xxx
She’s so brave, sometimes we cry for little things that have no importance, when you realice that there’s people living there life’s the happiest way possible , it’s so encouraging
I’m 54 and had Psoriasis since I was 6, I finally have it under control this year with a new Med. But I can’t begin to imagine living my life like you have. You are some kind of inspiration Lady! You look like a Kardashian! But with a sweet personality!
Besides the fact that u are indeed an attractive young lady, u are educated and well spoken, as well. You are a strong, confident voice for ur condition. May God bless your journey!!
What a beautiful and strong woman. You are living your life and not letting this STOP you from not enjoying what this big world offers. It's been tough for you, but here you are being an amazing person and this touching story of a warrior. You deserve a happy and blessed life. May God get you through anything.
Hi..Just came across your video while I was lounging during work. You just made a major impact on me which I will forever be thankful to you for. I was complaining about my situation due to lockdown and whining about it for long. Seeing you has made me realize the importance of my life and what I have. You are a wonder women to me, Strong both internally and externally. If only I could meet you and thank you personally. My prayers are always with you and I am sure you'll overcome your ailment soon. This is Shirish from India - Mumbai. Keep inspiring others. I need you to break some sense into people like me who do not realise the importance of what we have. Thank you and bless you 3000. 😊
Honestly, for me, its has been by far the most harder video to see from beggining to ends, but I see it all for her. Its her me just by seeing her but that proves she is stronger than me. I like the way she talks about herself, her condition and her expectatives and goals. Basically, I think that I am 100% connected to her so I will keep her on my prays. YOU are strong, YOU will be fine.
@@h8erz909 Ariana herself said that there were People who said/write cruel things about her. I assume that the person in the first comment refered to this persons as haters.
My cousin was born with this horrible condition. She has it inside and out. I've been helping take care of her all her life and it brakes my heart everytime she takes baths. We hope and pray for a cure. God bless the butterfly children!
I have complained with my severe psoriasis... But i never knew there are more worst illness. Always be strong, positive and stay beautiful inside and out. Your the most wonderful person I've seen. God bless.
Hello Adrana! I just saw your video and having Dominant Dystrophic Epidermolys Bullosa! I have a less sever form but painful and mentally exausting. I am very proud of you for this viideo! I just spent a fortune on video podcast equipment and almost done with Photography school and I am almost 50 yrs old! We have our voices and the world needs to know of our condition! God bless you young lady!
Her makeup is ON POINT!! ❤️❤️ what a gorgeous girl. She has a bright future ahead of her. Despite the challenges she has to go through, I hope she knows she is perfect just the way she is.
This impressive young lady is one of the reasons I became open to my son with the same condition getting a gtube. Life is tough for them but they are the strongest, most delightful humans
*They have those nails you can slide on, like back in the 90's when I was a kid! Someone send her those please, so she can experience nails!* They're on Pinterest! And Ali Express💞😘💅
Wow, I’m speechless. Her story made me cry. She is truly extraordinary! The fact that she soldiers through all that excruciating pain. She is amazing and overall a beautiful being. Knowledge is definitely power. Stories such as this helps us to understand how difficult living is for other people. I wish her all the best in life 💜
When I see such beautiful people out there I realise that Humanity has been wiped off the surface of this earth, but not really when good people exist, and together as we humans can bring change✌🏻
What a strong young woman. Having to live with this condition every day of her life has to be so difficult. When I go to bed tonight, I’ll say a prayer for her and when I wake up, I’ll try not to complain about my minuscule problems compared to hers. She is beautiful on the inside as well as the outside.
This is a truely sad disease that anyone could ever have. But she has a spirit that keeps her positive way of thinking and not allow it to stop living her life. I seen on another video of 18 year old who his are more worse than hers. They both are so strong will to keep fighting. My prayers going up for her. GOD bless her.
Damn, she's fighting the skin disorder well. She's a strong warrior. Stay beautiful and strong girl! Maybe a cure or solution will be found someday. Still living a life filled of positivity!
I know how you feel when many people ask about your skin..I also have eczema..if I forget to take my pills and do not keep my skin moist..my skin will crack and itch .. people always ask me if they look at my skin so I always cover it as much as I can..My skin is very sensitive to hot and cold weather..and when I take a shower my skin feels very sore..but I am still grateful for the condition of my skin because compared to you..my pain is very far away from you..I am very impressed with your spirit..❤️❤️love
What a brave and beautiful young lady. I lost a childhood friend to EB, epidermis bullosa. Its a terrible and deteriorating disease. The sufferer lives in constant pain. They lose their fingers and toes to the disease. Most die very young. Love and respect to this young lady for sharing her story and making everyone aware of this devastating skin condition. ❤👍
I follow her on TikTok and she’s so honest about EB and everything that comes with it. She doesn’t shy away from her diagnosis. I appreciate her openness about it even if it makes people uncomfortable
I had two babies with this horrible disease a very long time ago now sadly they had a very short life one died at 2wks old and the other. 5 1/2 months She is a very brave girl and I admire her but it’s an insight to what a painful life my babies would have had God bless you my dear ❤️
I am a Muslim and I go to the mosque for congregation prayers on a daily basis. I am going to pray sincerely for her. Begging Allah to heal her completely. I would also pray for all the sick and I'll people; including those people with cancer and aids. We all love you sincerely. Go with God and ask only Him for all your needs.
I literally just prayed to God 10mins ago, to help me with my hormonal acne. That I've suffered with all over my body since my teen years. And ironically He leads me to this video. I feel so ashame for complaining and crying about my acne. Yet, she's suffering through a much worst condition without the littlest complaint. God forgive me for being so selfish and continue to bless this beautiful young woman as she moves on in life🙏🏽💖
She is a living inspiration like many others yet to be brought to the limelight to those who are perfect in terms of not having any problems but still they find it hard to go about their life every single day.
Simply beautiful 😍 I work with mentally and physically disabled young adults and I get that the stares can be uncomfortable. I encourage people to ask questions so that they have a better understanding and I thank them for asking and being respectful.
You are truly an inspiration for others . Thank you for sharing your story. Not many know or understand about EB. and that includes most Dr. My grandaughter has a milder case that effects her feet and some times hands to blister. The Debra Foundation has been a great source for helping people to understand and learn more about this skin disorder. I want you to know that you are not alone.
Thus why I don’t believe in a higher power somone so precious has to endure such pain. You go girl I believe in humanity and she def brings hope to those who need it
I've read how glufen free diet can help all kind of skin problems and autoimmune diseases. Please try it for a month, you don't have anything to lose, I hope that it will help you, you beautiful soul
You are amazing with the pain your disease gives you because you are so active and doing the painful procedure of changing your own bandages every day, I truly admire your determination and strength.
She has experienced so much pain in just a small age. People can truly be so cruel so quick to judge. I just picked up the mirror before watching this video and said my God I'm so ugly I hate my skin skin but I see this video and this girl has just showed me how to love myself
@@can_you_guess_my_new_username dear God didn't give her that sickness it's the evil that plays around. She is born different & that makes her special in the eyes of God. Im happy to see her smiling & taking life easy. I too have a spinal problem since 3 years which there is no cure for but I too take life as it goes coz when I'm sick I feel more closer to God. I know sometimes the pain & suffering gets unbearable but that doesn't mean we should lose Hope. You've kept a beautiful name positive energy so let's be positive about life and believe that we will get cured. I know that God will do something beautiful in her life too and I pray that she gets healed completely.
@@Vanilove653 I have to say, you're actually very polite when approaching people who disagree with you and I really appreciate it. A lot of people aren't like the way you are, I don't follow any religion but I do hope something comes along in the future to make this more manageable.
You are so beautiful! Even with extreme pain which must torture you physically or mentally you still smile so amazingly! Keep going woman! Your an inspiration! 🥰🤗💕💖😘👏💯
She still be grateful and living her life to the fullest..she still looked happy..inspiring..i almost cried seeing ur skin conditions and knew how its affect u..i am so grateful with my skin, body and with whatever i have now..tq..tq..tq
I feel so bad for her. She's so beautiful yet she can't even do normal human things without being in pain, she's so strong I don't think I'd be able to handle this
I think she actually looks pretty healthy for someone with EB in her 20s... she can still walk and be active, this is not the case for many people with this condition
Yeah!
She said she has the second most severe kind, I wonder if the other people who have it that arent mobile have the worst kind?
Touchwood
What’s your point from this comment ?
@@samiraadams6980 To say that I'm glad she is this active and relatively healthy knowing her condition... What I said is what I actually meant, why?
Aw hun! You wear that crop top! You show it off! You’re incredible!l and strong!!
100000% agree! Fxck the haters, do your thing girl and shine on! ✌💖
soo sweet💕
I can't imagine how painful that is.
I think that she is really pretty on the inside and on the outside
She is really pretty
Mama hay hay life yes she definitely is 😊🥰
I think she's absolutely beautiful
Yes
Ditto😊
There's no excuse for me to complain about my life. I wish someday people won't suffer like this. She's an angel.
Absolutely you are right...
That's exactly what I was thinking!!! I'm learning not to complain all the time about things that don't even matter!
That's actually stupid
My problems still exist and affect me, I DO have the right to complain
@@ivyme5783No one said u couldn’t??🤣🤣
You are so gorgeous, I’d love to be your friend.... I wish their was a cure for this or just anyone suffering. She looks like she is such a positive person.
you are so sweet! thank you.
*She is beautiful, strong and an inspiration to me, a person who has a skin condition.* Bless her sweet spirit and hope they find a cure soon. Sending love from Washington DC.💞💯
Heyyyyyyy D.C.
She kinda looks like Kylie Jenner a little, in the eyes especially.
I was just about to comment this!
She does
I just looked at her and i want to say the same! She' s so simillar to Kylie! Beautiful girl!
SHUT UP KATY ITS NOT ABOUT LOOK LIKE
So you are making fun of her.
I think this girl is a true inspiration she doesn’t give a care in the world what people think of her skin. People need to learn that things happen and all people need to be treated the same no matter what happend to you, what you like to do, etc. I love this girl!!!!!
It makes me so sick to my stomach thinking about how painful this must be. I wish I could just take this pain away from her. She is beautiful and more strong than 90% of us. I think if any of us suddenly found out we had this, we would just go into a depression deep enough to not want to live anymore because we would not have the pain tolerance built up to withstand dealing with this. However she has dealt with this her whole life so she has a massive pain tolerance. Let's pray for a cure or miracle-like treatment for this disease.
It actually possible l have seen people with words situation healed connect to Christ Embassy healing school.,and u be healed completely.
It actually possible l have seen people with words situation healed connect to Christ Embassy healing school.,and u be healed completely.
@@florencekowamensah8799 ok
She is still so beautiful! She is so brave and strong,
HOW BEAUTIFUL SHE IS
Her courage just to live another day is phenomenal! Her pain puts most of our issues to shame..
I’m so sorry for the pain and hardships you have to go through girl- I wish we could bare some of that load for you ❤️ but that fact that you are not letting it beat you down makes you shine so bright. So proud of you and I think you are so beautiful! X
Oh god !!!! And there's me who was complaining 1 hour ago about not being able to go to the beach because of quarantine and acted like it's the end of the world.. Omg ppl who were born with no diseases should be thankfull their whole life.. Thank god for that really 🙇
To all the people that stare: I get it. You stare because you see something weird or unnatural that you've never seen before. But here's where you can get mixed up. Some people stare, and then smirk and laugh. Others, come up and ask about whatever it is that they're staring at. But now some, and by some I mean very few people, have the nerve to go up and be a friend and be kind to the person who is struggling. Be one of those people who reaches out and is kind. The world needs more people like that.
Absolutely
People are staring because she is just too precious and unique.
I feel so bad for people that are born with this disease. I wish nothing but happiness for this courageous woman.
She's still beautiful anyone to say otherwise has a problem with themselves and are just arrogant. I feel for her ♡
She made me feel sad some people are just mean really I hope that she lives a long life and doing the things that makes her happy we are all different in this world but we are still human beings
I hope she lives a good life
She looks like Kylie Jenner before she did surgery
Absolutely agreed! 💯😍
Agreed
She doesn’t even need make up! She is so great for not giving up
Most of the vid she’s wearing makeup
'seeing the constant reminder of how little control you have' - this hit me so hard, I cried.
I can relate to it so much, having pretty bad eczema (which I understand is not the same, but a skin condition nonetheless). Thank you for being so honest and open about your own condition. It makes me feel a little less alone with my own,
Same I have bad acne 💔
How I feel with my health conditions. I'm always sore or unable to keep down food or liquids and at times I'm laying over the toilet wondering when it'll just end. Or I'm cooking and I have to lay down or sit in a chair because I pass out. Sometimes in some cases(since not all conditions effect you at the same age) you really take for granted your health until its not what it used to be. Looking in the mirror and seeing I don't have control of who I am anymore is scary. But you learn to find more of the beauty in things people wouldn't usually give a second glance or thought. I think its shaped me to be more undedstanding and empathetic of others
I wish they could find a cure for this. That poor girl, I can't imagine how agonising this must be, and I complained about my eczema...
Try Aleppo olive oil soap with bay/laurel. You can use it as shampoo too. Ugly brown soap that turns olive color with use. Smells faintly like olive oil. A bar lasts me 4 months. I use it all over my body. It keeps my dry skin moisturized too. My rosacea and eczema are gone as long as I use this soap. I do not use cosmetics, creams, hair conditioners, hair spray or other things on my body-- just this soap. I also use hypoallergenic laundry detergent and double rinse all clothes. I found out about the soap when I worked in Iraq. A local co-worker told me about the soap. You can buy it in any middle eastern market. Look it up on Amazon to see what it looks like but don't buy it there unless your only option because expensive on Amazon. Maybe it will work for you?
I have nothing but admiration for this young lady. I have a chronic pain condition that gets me down sometimes but her positive attitude has filled me with renewed determination. You are a beautiful positive advocate for EB xxx
Wow EB and she’s walking. She is strong.
She’s so brave, sometimes we cry for little things that have no importance, when you realice that there’s people living there life’s the happiest way possible , it’s so encouraging
I’m 54 and had Psoriasis since I was 6, I finally have it under control this year with a new Med. But I can’t begin to imagine living my life like you have. You are some kind of inspiration Lady! You look like a Kardashian! But with a sweet personality!
Wow she is stunning
Omg does anyone else think she looks like Kylie Jenner?! Gorgeous girl!
Omg yass
No that's her face she didnt buy it so its the other way around
L. Austin Kylie Jenner before the surgery.
Besides the fact that u are indeed an attractive young lady, u are educated and well spoken, as well. You are a strong, confident voice for ur condition. May God bless your journey!!
I am crying to see you
Me too:) I'm crying as I type
What a beautiful and strong woman. You are living your life and not letting this STOP you from not enjoying what this big world offers. It's been tough for you, but here you are being an amazing person and this touching story of a warrior. You deserve a happy and blessed life. May God get you through anything.
She’s beautiful this broke my heart nobody should have to live like that.
Hi..Just came across your video while I was lounging during work. You just made a major impact on me which I will forever be thankful to you for. I was complaining about my situation due to lockdown and whining about it for long. Seeing you has made me realize the importance of my life and what I have. You are a wonder women to me, Strong both internally and externally. If only I could meet you and thank you personally. My prayers are always with you and I am sure you'll overcome your ailment soon. This is Shirish from India - Mumbai. Keep inspiring others. I need you to break some sense into people like me who do not realise the importance of what we have. Thank you and bless you 3000. 😊
The reason they are staring is because most of them think you're absolutely gorgeous ❤❤
Honestly, for me, its has been by far the most harder video to see from beggining to ends, but I see it all for her.
Its her me just by seeing her but that proves she is stronger than me. I like the way she talks about herself, her condition and her expectatives and goals. Basically, I think that I am 100% connected to her so I will keep her on my prays.
YOU are strong, YOU will be fine.
Forget the haters❤️❤️ You are beautiful the way you are
Who the hell is hating? You're delusional.
@@h8erz909
you seem like a hater
@@monabohamad2242 You might have a learning disability if you can't distinguish between hating and responding to a fake statement.
@@h8erz909 Ariana herself said that there were People who said/write cruel things about her. I assume that the person in the first comment refered to this persons as haters.
My cousin was born with this horrible condition. She has it inside and out. I've been helping take care of her all her life and it brakes my heart everytime she takes baths. We hope and pray for a cure. God bless the butterfly children!
She’s very pretty. Stay strong girl! Love from Canada!!
I have complained with my severe psoriasis... But i never knew there are more worst illness. Always be strong, positive and stay beautiful inside and out. Your the most wonderful person I've seen. God bless.
She is the definition of the so called powerful women,slay girl...
Hello Adrana! I just saw your video and having Dominant Dystrophic Epidermolys Bullosa! I have a less sever form but painful and mentally exausting. I am very proud of you for this viideo! I just spent a fortune on video podcast equipment and almost done with Photography school and I am almost 50 yrs old! We have our voices and the world needs to know of our condition! God bless you young lady!
Her makeup is ON POINT!! ❤️❤️ what a gorgeous girl. She has a bright future ahead of her. Despite the challenges she has to go through, I hope she knows she is perfect just the way she is.
This impressive young lady is one of the reasons I became open to my son with the same condition getting a gtube. Life is tough for them but they are the strongest, most delightful humans
*They have those nails you can slide on, like back in the 90's when I was a kid! Someone send her those please, so she can experience nails!* They're on Pinterest! And Ali Express💞😘💅
@Ms.Jimmie true
That's really sweet
@Annissa they'd be for photos and stuff, not all the time
@Ms.Jimmie thank you. I didn't mean press on. In the 90's Barbie came out with the nail caps, painted that you just put on the tips like bugle chips🔺
I think I no what your talking about but I think it might be a bit tacky...just saying but nice gesture 🤔😷
Wow, I’m speechless. Her story made me cry. She is truly extraordinary! The fact that she soldiers through all that excruciating pain. She is amazing and overall a beautiful being.
Knowledge is definitely power. Stories such as this helps us to understand how difficult living is for other people. I wish her all the best in life 💜
She kinda looks like kylie Jenner I think.
Before she ruined herself with plastic surgery and duck lips
@@lofihousefrog That was unnecessary tbh.
aaliyah uwu how he said exactly what she did. Plastic surgery. And her fillers look like duck lips. Not naturally luscious
When I see such beautiful people out there I realise that Humanity has been wiped off the surface of this earth, but not really when good people exist, and together as we humans can bring change✌🏻
So beautiful. This is what we need to see more on social media.
What a strong young woman. Having to live with this condition every day of her life has to be so difficult. When I go to bed tonight, I’ll say a prayer for her and when I wake up, I’ll try not to complain about my minuscule problems compared to hers. She is beautiful on the inside as well as the outside.
She's absolutely fierce! Love her.
This is a truely sad disease that anyone could ever have. But she has a spirit that keeps her positive way of thinking and not allow it to stop living her life. I seen on another video of 18 year old who his are more worse than hers. They both are so strong will to keep fighting. My prayers going up for her. GOD bless her.
I think she’s beautiful ❤️❤️
Damn, she's fighting the skin disorder well. She's a strong warrior. Stay beautiful and strong girl! Maybe a cure or solution will be found someday. Still living a life filled of positivity!
Damn,poor girl. Heartbreaking knowing the pain she is in.
I know how you feel when many people ask about your skin..I also have eczema..if I forget to take my pills and do not keep my skin moist..my skin will crack and itch .. people always ask me if they look at my skin so I always cover it as much as I can..My skin is very sensitive to hot and cold weather..and when I take a shower my skin feels very sore..but I am still grateful for the condition of my skin because compared to you..my pain is very far away from you..I am very impressed with your spirit..❤️❤️love
I'm sure she has a high tolerance to pain medicine by now. Bless her heart! Shes beautiful tho!
What a brave and beautiful young lady. I lost a childhood friend to EB, epidermis bullosa. Its a terrible and deteriorating disease. The sufferer lives in constant pain. They lose their fingers and toes to the disease. Most die very young. Love and respect to this young lady for sharing her story and making everyone aware of this devastating skin condition. ❤👍
I know that's feeling
Two years my eczema went to mild to severe and I'm about 60 percent better. I am always self conscious about me.
I follow her on TikTok and she’s so honest about EB and everything that comes with it. She doesn’t shy away from her diagnosis. I appreciate her openness about it even if it makes people uncomfortable
She has such a BEAUTIFUL spirit! 🦋
I had two babies with this horrible disease a very long time ago now sadly they had a very short life one died at 2wks old and the other. 5 1/2 months She is a very brave girl and I admire her but it’s an insight to what a painful life my babies would have had God bless you my dear ❤️
She is BEAUTIFUL! 🌼
That's so hard I bet to live with. Bless your heart. Didn't know this existed before. Thanks for sharing your story.
I am a Muslim and I go to the mosque for congregation prayers on a daily basis. I am going to pray sincerely for her. Begging Allah to heal her completely. I would also pray for all the sick and I'll people; including those people with cancer and aids. We all love you sincerely. Go with God and ask only Him for all your needs.
What a beautiful strong young woman right there! So inspirational ! I try to teach my kids to be thankful and appreciative for themselves daily!
Great profile vid - we are all more than blessed
I literally just prayed to God 10mins ago, to help me with my hormonal acne. That I've suffered with all over my body since my teen years. And ironically He leads me to this video. I feel so ashame for complaining and crying about my acne. Yet, she's suffering through a much worst condition without the littlest complaint. God forgive me for being so selfish and continue to bless this beautiful young woman as she moves on in life🙏🏽💖
I have always admired the people who suffers from EB.
She is a living inspiration like many others yet to be brought to the limelight to those who are perfect in terms of not having any problems but still they find it hard to go about their life every single day.
Yes she is an may God bless you with wonderful things!!!💓
Simply beautiful 😍 I work with mentally and physically disabled young adults and I get that the stares can be uncomfortable. I encourage people to ask questions so that they have a better understanding and I thank them for asking and being respectful.
Bless you
You are truly an inspiration for others . Thank you for sharing your story. Not many know or understand about EB. and that includes most Dr. My grandaughter has a milder case that effects her feet and some times hands to blister. The Debra Foundation has been a great source for helping people to understand and learn more about this skin disorder. I want you to know that you are not alone.
She’s gorgeous ♥️
Thus why I don’t believe in a higher power somone so precious has to endure such pain. You go girl I believe in humanity and she def brings hope to those who need it
That's why I stopped believing in god. Why would he make these beautiful people with this horrible condition.
She is a powerfull Woman, she won my respect 😍🥰
She is a stunning human being all around. I feel so sad knowing such beautiful souls have to suffer like this.
*You are unique but beautiful. Thanks for sharing your story❤
The amount of STRENGTH this girl has is just
❤️You look beautiful!
Beautiful girl, I hope you realize that people question or stare because they're concerned about you, not to hate you or bring you down 🖤
You are beautiful - I know about this awful skin condition and this video was wonderful - you’ve gained another subscriber - you are an inspiration
she is so brave,she must be in so much pain all day, I hope she is being managed with pain meds.
She’s a gorgeous girl..inside and out. I can’t imagine the level of Pain. ❤️😊
I've read how glufen free diet can help all kind of skin problems and autoimmune diseases. Please try it for a month, you don't have anything to lose, I hope that it will help you, you beautiful soul
This is true so true changes life
We definitely take the small things for granted! I admire her strength and her desire to live her best possible while helping others!
I hear a ROSA reference 😁❤️
You are amazing with the pain your disease gives you because you are so active and doing the painful procedure of changing your own bandages every day, I truly admire your determination and strength.
I wonder if she is still alive. If so, I wonder if she can get the bone marrow transplant I heard about
She has experienced so much pain in just a small age. People can truly be so cruel so quick to judge. I just picked up the mirror before watching this video and said my God I'm so ugly I hate my skin skin but I see this video and this girl has just showed me how to love myself
I just pray that God heals you completely in Jesus name. Amen.
God created the universe in 7 days- she is 20 and he hasn't cared about healing her yet.
Amen
@@can_you_guess_my_new_username dear God didn't give her that sickness it's the evil that plays around. She is born different & that makes her special in the eyes of God. Im happy to see her smiling & taking life easy. I too have a spinal problem since 3 years which there is no cure for but I too take life as it goes coz when I'm sick I feel more closer to God. I know sometimes the pain & suffering gets unbearable but that doesn't mean we should lose Hope. You've kept a beautiful name positive energy so let's be positive about life and believe that we will get cured. I know that God will do something beautiful in her life too and I pray that she gets healed completely.
@@Vanilove653 I have to say, you're actually very polite when approaching people who disagree with you and I really appreciate it. A lot of people aren't like the way you are, I don't follow any religion but I do hope something comes along in the future to make this more manageable.
You are so beautiful! Even with extreme pain which must torture you physically or mentally you still smile so amazingly! Keep going woman! Your an inspiration! 🥰🤗💕💖😘👏💯
You are an amazing and a strong headed women...hope they find a cure soon...hats off to u girl for being so positive and strong
She still be grateful and living her life to the fullest..she still looked happy..inspiring..i almost cried seeing ur skin conditions and knew how its affect u..i am so grateful with my skin, body and with whatever i have now..tq..tq..tq
Love her! Father God bless you Ari and may He continue given you strength, love, favor and peace.
I feel so bad for her. She's so beautiful yet she can't even do normal human things without being in pain, she's so strong I don't think I'd be able to handle this
I think I admire her. She has to be in so much pain yet she seems positive and still trying to be normal.