Brilliant Alan. I totally understand everything your feeling. I was diagnosed in Dec 2019 with a PSA of 3465. That obviously meant that it had metastasised to my bones. I said at the time I'm going to fight this but over time my PSA dropped to 22. Unfortunately it now started rising and it's upto 94. The strange thing is that my CT is clear and my bone scan show signs of regression. My oncologist is sort of stumped but like he says we can't just let the PSA keep going up even though , like you, I'm feeling really good. But my friend we keep fighting as all men should do because even with a very high PSA as mine was I'm still here nearly 5 years latter and loving life.
Thank you Antony, It’s great to hear that your scan is clear and there are signs of regression. Wonderful news. I don’t know if PSA is measured in the same way in different countries. I will have to find out. Regards Alan
I really appreciate your videos, Alan. Your kindness, gentleness, and transparency shows through them all. I, too, am sorry for your loss. But as a person of faith, I am thankful for experiencing the assurance of one day going to a much better home. One of my twin sons lives in Belfast, ME, very near where you visited, i.e., Bar Harbor. His mother-in-law is dealing with lung cancer that has metastacised to her brain. I also have a friend in Kansas who is 6+ years post prostatectomy, which is how I went searching and found your channel. It is both encouraging and informative. THANK YOU, Alan! I must agree with you that the color of the fall leaves in New England is amazing! Seeing them encourages me somehow, even while reminding me that colder days are on their way. You are teaching me how to enjoy each day, even hour by hour while experiencing life's discouraging events. If there is a way to send you both positive and encouraging thoughts, then I am doin just that, along with my prayers. Going forward, may you have more good days than bad, and peace that overcomes worry. Again, thank you for teaching me this. I am better for it! All the best, Alan. Your supporter in Boise, Idaho, USA, Ross.
Hi Ross, Thank you very much for your very kind message. I am sorry to hear about one of your twin son’s mother in law. As I have mentioned before, it’s not just the person with cancer that suffers, it’s also their loved ones. I looked Belfast up on Google, as you say it’s not far from Bar Harbor. In fact I must have driven past it on my way there. Kind Regards Alan
Alan greetings from the pacific northwest in the USA. So good to hear how you are doing. What you said about family and being "home" is so true. My husbands prostate cancer journey is fairly similar to yours, although he opted not to do the hormone treatment injections any more. Weigh gain was one of the many reasons. His PSA is also on a very gradual upwards movement. Our youngest son and his partner just had a baby. My husband I think was energized for the future. Family and home are synonymous at this point in our lives. May God continue to bless you and your family.
Thank you Sally. I can certainly sympathise with your Husband and his decision. For me, the weight gain was a major thing and the feeling that my body was no longer my own control was quite depressing. Regards Alan
Thank you Sally, I fully understand your Husband. For me, the weight gain is a big thing. I went from size 34 inch waist, then 36 and for the past couple of years 38. Then when I realised that even 38 was getting a bit tight, I became really depressed. It’s not just vanity, but a feeling that what ever you do, nothing can change your situation. But it did. Beating Hormonal Imbalance is not easy, but it can be possible. I am now 36 inch waist again. Regards Alan
Alan. Thanks for the update. Very, very happy to hear that you are feeling well. I am undergoing radiation at present, for three weeks, as my prostate cancer has decided to take up residence in my bones in three areas. I know the radiation will be effective. There is no doubt. Doc wants me to go on Casodex so we will see. I feel great also, now that I am totally Lupron free. Great that you are losing weight. I am myself. Got too darn heavy starting with Lupron two years ago. I just had enough. Cut out sugar....easily done...and have lost 22 lbs in 8 weeks. I know how you feel. Most importantly, you can never say never. This video may be your best, I am sure reflecting your improved mood. Keep the faith. Hope to meet you some day over there. Best Wishes. Rob in Phoenix, Arizona.
Thanks Rob, Amazing that you lost 22 pounds in such short a time. My aim is to lose 35 pounds eventually. I am over half way but it’s slowing down a bit now and getting harder. I like your positive state of mind and hope the radiation treatment is working as it should do. Regards Alan
Hi Alan, good to watch your videos they comfort me. I am similar to you. 2022 i got advanced prostate cancer into lymph nodes & back bone. I had 5 months chemotherapy, 5 months radiation and finished 2 years hormone injections in Jan 24. I have blood tests 3 monthly. My psa is still unmoved at 0.05
I would like to know where your oncologist got the data to continuous vs. intermittent therapy. Is there a trial or study to back this up? Thanks Alan, you have a great battle plan.
Hi Alan so nice to hear from you my husband the same as you what’s the next treatment for you his psa his next week a worrying time you are doing so well keep up the good work keep us up dated ❤️
Hi Alan Glad you are a bit more confident and maybe this new cancer vaccine will get approval for prostrate cancer than the few it is being currently tested on. (Bladder, Brest …..) so you never know what’s coming next on the treatment front (post code lottery permitting) So keep on being positive as stress is a big factor on keeping healthy Cheers 👍🏼
And, if your comment was in part meant for me, as I live in Phoenix, thanks so much. The most important thing is that you are well and feeling great. I cannot stand to see you down in the dumps. Honestly. Enjoy your life, you owe that to yourself. I understand your funeral experience, as I flew to Texas last year to visit a friend not seen in 35 years, and it was the best thing i have done in years. Keep the faith. Rob in Phoenix.
Thanks Rob, It’s good to hear that you share my feelings about seeing family and friends at a funeral can also be a positive experience. Mind you, I could have made more of an effort to see than in happier times! Regards Alan
Thanks Don. As you know, I have said that we don’t know what treatments are just around the corner. The longer we can keep going, the more likely something may come along and be a game changer. Regards Alan
Brilliant Alan. I totally understand everything your feeling. I was diagnosed in Dec 2019 with a PSA of 3465. That obviously meant that it had metastasised to my bones. I said at the time I'm going to fight this but over time my PSA dropped to 22. Unfortunately it now started rising and it's upto 94. The strange thing is that my CT is clear and my bone scan show signs of regression. My oncologist is sort of stumped but like he says we can't just let the PSA keep going up even though , like you, I'm feeling really good. But my friend we keep fighting as all men should do because even with a very high PSA as mine was I'm still here nearly 5 years latter and loving life.
Thank you Antony,
It’s great to hear that your scan is clear and there are signs of regression. Wonderful news.
I don’t know if PSA is measured in the same way in different countries. I will have to find out.
Regards
Alan
I really appreciate your videos, Alan. Your kindness, gentleness, and transparency shows through them all. I, too, am sorry for your loss. But as a person of faith, I am thankful for experiencing the assurance of one day going to a much better home. One of my twin sons lives in Belfast, ME, very near where you visited, i.e., Bar Harbor. His mother-in-law is dealing with lung cancer that has metastacised to her brain. I also have a friend in Kansas who is 6+ years post prostatectomy, which is how I went searching and found your channel. It is both encouraging and informative. THANK YOU, Alan!
I must agree with you that the color of the fall leaves in New England is amazing! Seeing them encourages me somehow, even while reminding me that colder days are on their way. You are teaching me how to enjoy each day, even hour by hour while experiencing life's discouraging events. If there is a way to send you both positive and encouraging thoughts, then I am doin just that, along with my prayers. Going forward, may you have more good days than bad, and peace that overcomes worry. Again, thank you for teaching me this. I am better for it!
All the best, Alan. Your supporter in Boise, Idaho, USA, Ross.
Hi Ross,
Thank you very much for your very kind message. I am sorry to hear about one of your twin son’s mother in law. As I have mentioned before, it’s not just the person with cancer that suffers, it’s also their loved ones.
I looked Belfast up on Google, as you say it’s not far from Bar Harbor. In fact I must have driven past it on my way there.
Kind Regards
Alan
Alan greetings from the pacific northwest in the USA. So good to hear how you are doing. What you said about family and being "home" is so true. My husbands prostate cancer journey is fairly similar to yours, although he opted not to do the hormone treatment injections any more. Weigh gain was one of the many reasons. His PSA is also on a very gradual upwards movement. Our youngest son and his partner just had a baby. My husband I think was energized for the future. Family and home are synonymous at this point in our lives. May God continue to bless you and your family.
Thank you Sally.
I can certainly sympathise with your Husband and his decision. For me, the weight gain was a major thing and the feeling that my body was no longer my own control was quite depressing.
Regards
Alan
My husband is buying bigger size bigger size bigger size clothes he’s taking loop prime. He took his second shot this week and his psi is 0.1.
Thank you Sally,
I fully understand your Husband. For me, the weight gain is a big thing. I went from size 34 inch waist, then 36 and for the past couple of years 38. Then when I realised that even 38 was getting a bit tight, I became really depressed. It’s not just vanity, but a feeling that what ever you do, nothing can change your situation.
But it did. Beating Hormonal Imbalance is not easy, but it can be possible. I am now 36 inch waist again.
Regards
Alan
Alan. Thanks for the update. Very, very happy to hear that you are feeling well. I am undergoing radiation at present, for three weeks, as my prostate cancer has decided to take up residence in my bones in three areas. I know the radiation will be effective. There is no doubt. Doc wants me to go on Casodex so we will see. I feel great also, now that I am totally Lupron free. Great that you are losing weight. I am myself. Got too darn heavy starting with Lupron two years ago. I just had enough. Cut out sugar....easily done...and have lost 22 lbs in 8 weeks. I know how you feel. Most importantly, you can never say never. This video may be your best, I am sure reflecting your improved mood. Keep the faith. Hope to meet you some day over there. Best Wishes. Rob in Phoenix, Arizona.
Thanks Rob,
Amazing that you lost 22 pounds in such short a time. My aim is to lose 35 pounds eventually. I am over half way but it’s slowing down a bit now and getting harder.
I like your positive state of mind and hope the radiation treatment is working as it should do.
Regards
Alan
I’m glad to see you Alan. I’m happy to see you.
Thank you Linda
So glad to see that you are in good spirit’s! I think of you often and pray God heals you. Look forward to your videos. 🙏
Thank you very much
Hi Alan, good to watch your videos they comfort me. I am similar to you. 2022 i got advanced prostate cancer into lymph nodes & back bone. I had 5 months chemotherapy, 5 months radiation and finished 2 years hormone injections in Jan 24.
I have blood tests 3 monthly. My psa is still unmoved at 0.05
That’s great Rob.
It just shows that this nasty treatment can work!
Regards
Alan
You keep up the fight!!!! I just got done my 43 radiation treatments....... ADT kicking my butt but we fight on... sorry for your loss
Thank you.
I hope you feel ok after so many radiation treatments.
Regards
Alan
Hello Rupert! ❤
Thank you for sharing your journey
Thank you
I would like to know where your oncologist got the data to continuous vs. intermittent therapy. Is there a trial or study to back this up? Thanks Alan, you have a great battle plan.
Hi Alan so nice to hear from you my husband the same as you what’s the next treatment for you his psa his next week a worrying time you are doing so well keep up the good work keep us up dated ❤️
Thank you Patricia x
Nice positive vid 👍💯
Thanks Bernard
God Bless you🙏🙏🙏🙏🙏
Thank you
Hi Alan
Glad you are a bit more confident and maybe this new cancer vaccine will get approval for prostrate cancer than the few it is being currently tested on. (Bladder, Brest …..) so you never know what’s coming next on the treatment front (post code lottery permitting)
So keep on being positive as stress is a big factor on keeping healthy
Cheers 👍🏼
Exactly!
Thanks Don
Regards
Alan
Glad Alan you feel more engaged but sorry PSA is up. In China Google and U tube are blocked.
Thanks Michael.
Don’t think about living several months longer, think about living that’s all.
I agree, its not the years that you live, its how you live those years
And, if your comment was in part meant for me, as I live in Phoenix, thanks so much. The most important thing is that you are well and feeling great. I cannot stand to see you down in the dumps. Honestly. Enjoy your life, you owe that to yourself. I understand your funeral experience, as I flew to Texas last year to visit a friend not seen in 35 years, and it was the best thing i have done in years. Keep the faith. Rob in Phoenix.
Thanks Rob,
It’s good to hear that you share my feelings about seeing family and friends at a funeral can also be a positive experience. Mind you, I could have made more of an effort to see than in happier times!
Regards
Alan
Thanks Don.
As you know, I have said that we don’t know what treatments are just around the corner. The longer we can keep going, the more likely something may come along and be a game changer.
Regards
Alan