I have a long history of disabilities when I was born I was born with Retinopathy of Prematurity. When I was a baby I had a stroke and soon after that I was diagnosed with Cerebral Palsy and most of my childhood has been 🧠 surgeries, I have had over 50. Before I turned 13 years old I had surgery on my left hip, I was diagnosed with hip displasa. I got the diagnosis of JRA 2 years before that, I was Eleven years old. So Enbrel is what I started with and then I slowly added Methotrexate. I couldn’t do Enbrel I had every side effect except 🤮. Methotrexate was the same and at this time I was doing the pills and shots and I felt like someone was sitting on every joint that was effected. So the medicine said cough, I couldn’t 🛑 coughing. I was also very cranky because my 💜 and lungs. Every time I would get infections I wouldn’t even get out of 🛏. I remember being up at night in bed and I felt like my 💜 and lungs were going to jump up and come out my 👄. I also had fevers, 😓 and chills. I had problems with my 👀. All I wanted to do was stand at the sink and wash my hands, if people would let me I would do it for an hour or more. I remember the only side effect I didn’t have was 🤮.
Enbrel and Methotrexate I remember I was Eleven and I had every side effect. Remicade worked but after a year I became allergic to it. Humira made me sick and I had diarrhea and pain and soon after I started vomiting 🤮. Plaquenil and Rava, as for Plaquenil I had diarrhea and vomiting 🤮 again and Rava made the JRA in my ankles and feet much worse. Now I am on Cimzia and I cannot get rid of pain.
I have a long history of disabilities when I was born I was born with Retinopathy of Prematurity. When I was a baby I had a stroke and soon after that I was diagnosed with Cerebral Palsy and most of my childhood has been 🧠 surgeries, I have had over 50. Before I turned 13 years old I had surgery on my left hip, I was diagnosed with hip displasa. I got the diagnosis of JRA 2 years before that, I was Eleven years old. So Enbrel is what I started with and then I slowly added Methotrexate. I couldn’t do Enbrel I had every side effect except 🤮. Methotrexate was the same and at this time I was doing the pills and shots and I felt like someone was sitting on every joint that was effected. So the medicine said cough, I couldn’t 🛑 coughing. I was also very cranky because my 💜 and lungs. Every time I would get infections I wouldn’t even get out of 🛏. I remember being up at night in bed and I felt like my 💜 and lungs were going to jump up and come out my 👄. I also had fevers, 😓 and chills. I had problems with my 👀. All I wanted to do was stand at the sink and wash my hands, if people would let me I would do it for an hour or more. I remember the only side effect I didn’t have was 🤮.
The only infusion I have ✅ is Remicade. I want to try Orencia or Actemra.
Enbrel and Methotrexate I remember I was Eleven and I had every side effect. Remicade worked but after a year I became allergic to it. Humira made me sick and I had diarrhea and pain and soon after I started vomiting 🤮. Plaquenil and Rava, as for Plaquenil I had diarrhea and vomiting 🤮 again and Rava made the JRA in my ankles and feet much worse. Now I am on Cimzia and I cannot get rid of pain.