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Hey Tati, I think your Instagram has been hacked? I'm getting some really weird messages and links from your account! Wanted to let you know.

Hi Tati my name is Jacqueline and I’ve had JRA since 2005 and I was Eleven. 😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍 Your strong and your brave and you handle treatments and surgeries a lot better than I do. I’ve been having brain surgeries since I was a baby and if I had to go back I would probably cry 😭. Emotionally I would cry my eyes out from the JRA pain. I get very cranky when I’m in pain.

😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 You’re sooo funny 😆😆😆😆😆😆😆😆😆😆😆😆😆😆😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄 I’ve never been on Predisone. I’ve been through a lot. I was 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 I’ve had so many more than my hips. I’ve had brain surgeries since before age 2. I already told my mom “ I am not getting my other hip replaced.” 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭

The only infusion I have ✅ is Remicade. I want to try Orencia or Actemra.

I have a long history of disabilities when I was born I was born with Retinopathy of Prematurity. When I was a baby I had a stroke and soon after that I was diagnosed with Cerebral Palsy and most of my childhood has been 🧠 surgeries, I have had over 50. Before I turned 13 years old I had surgery on my left hip, I was diagnosed with hip displasa. I got the diagnosis of JRA 2 years before that, I was Eleven years old. So Enbrel is what I started with and then I slowly added Methotrexate. I couldn’t do Enbrel I had every side effect except 🤮. Methotrexate was the same and at this time I was doing the pills and shots and I felt like someone was sitting on every joint that was effected. So the medicine said cough, I couldn’t 🛑 coughing. I was also very cranky because my 💜 and lungs. Every time I would get infections I wouldn’t even get out of 🛏. I remember being up at night in bed and I felt like my 💜 and lungs were going to jump up and come out my 👄. I also had fevers, 😓 and chills. I had problems with my 👀. All I wanted to do was stand at the sink and wash my hands, if people would let me I would do it for an hour or more. I remember the only side effect I didn’t have was 🤮.

😭 I didn’t enjoy my hip replacement in 2015 because I had Osteonecrosis in the right hip as well, it wasn’t just Osteoarthritis. Osteonecrosis is when bone dies and breaks down. On top of the bone dying and breaking down a giant hole had wore through my right hip because of Osteoarthritis.

Enbrel and Methotrexate I remember I was Eleven and I had every side effect. Remicade worked but after a year I became allergic to it. Humira made me sick and I had diarrhea and pain and soon after I started vomiting 🤮. Plaquenil and Rava, as for Plaquenil I had diarrhea and vomiting 🤮 again and Rava made the JRA in my ankles and feet much worse. Now I am on Cimzia and I cannot get rid of pain.

I meant to say I ❤️ you Jacqueline and when I was diagnosed with Polyarticular Juvenile Rheumatoid Arthritis I also got Uveitis at the same time.

I’m sorry my story copied twice. I think I’m going to cry.😭😭😭 You said Cancer in 2010 I had a friend that died from Luekemia. I you Jacqueline.

Tita my name is Jacqueline and I have had a long history of disabilities since my birth. When I was born I was with Retinopathy of Prematurity and I have shunts and have had over 50 🧠 surgeries. In childhood I spent more time in the hospital than at home. One thing I remember is the shunts I have had since before age 2. I also have Cerebral Palsy and when I was a baby I had a stroke. In 2008 when I was Fourteen I was diagnosed with hip displasa. The surgery that the doctors had to do was not fun. At age 19 in 2014 I got the diagnosis of Osteonecrosis witch is when bone dies and breaks down and at the same age I also got Osteoarthritis and believe me that was painful. Osteonecrosis is normally seen in 60 and 70 year olds. When I started puberty I was diagnosed with Polyarticular Juvenile Rheumatoid Arthritis. I was Eleven and it was 2005.

Hi Tati I'm an ra patient too :) x

I think it's really cool what you're doing Tati, it's really inspiring. :)

Tita, i'm very happy that you decided to share your story. it is really inspiring for me. I also have JRA, i've had it since I was a baby ( I am now 22 years old.) I really loved hearing your story and of all the things you've accomplished throughout your life on this difficult journey. :) it gives me hope. if you would like to hear my story then just reply back and say so. ( I usually only tell my story to those who want to hear it. )

thank you so much Tati, :) this video was very helpful to me in more ways then one. i also have JRA and I usually am scared to ask for help because I either feel like I'm such a weakling to have to as for help for such simple tasks or I feel like a burden to my family and friends who do help me. I just always hated that feeling. but you have taught me that I shouldn't be scared and I should just ask. thank you so much! :) P.S. do you have a Facebook page? cause I'd really like to talk with someone who is on the same boat as me. :)