My First Adrenal Crisis Experience - Addison's Disease | Part One |
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- Опубликовано: 9 июл 2024
- Hello friends,
First things first, I am the furthest thing from an expert on any aspect of anyone’s else. I just have an intense internal dialogue always running about my own health issues that is borderline impossible to escape 🫠 This is part-one and I'll upload part-two shortly!
Still, maybe I’m hoping that someday, someone who is also feeling like they’re doing something wrong with every choice they make with their bodies will see this and feel less alone. Or mostly I’m hoping that one day I’ll look back and realise I wasn’t doing anything wrong at all and life was just hard.
Either way, I hope this video impacts you only positively.
Jens x
My daughter-in-law was finally diagnosed when she had an adrenal crisis. She almost died... She suffered for years with undiagnosed Addisons...her symptoms had been diagnosed as Migraine...her chronic illness affected her and my son's marriage which ended in divorce. B/c it got worse gradually he believed she was lazy, taking advantage of him b/c he ended up doing all the cooking, cleaning, shopping, etc while she ended up laying on the sofa all day watching TV, video, or sleeping/napping. She blamed him for the way she felt. I always knew something was wrong medically but she'd seen doctors and had been given a diagnosis and she was so tired, I'd assume, that she didn't have the energy to deal with anything. The sad thing is there were clues going way back to her 20's/30's/40's...she'd bee tested for TB multiple times and told they were false positives...that history is the thing that pointed the doctors caring for her in the hospital in the right direction b/c often the destruction to the adrenal glands is due to TB. She's gotten her life back tog and is doing much better now. It is sad though that the marriage was destroyed b/c of the illness going undetected for so long. She will always be my dil in spite of the marriage ending. I miss our history and good times tog as a family. I too have a chronic illness (vestibular migraine) and totally understand how difficult life is living with such.
Thank you for continuing your loving relationship. Losing family is so hard in divorcd
Thank you so much for sharing that with me - that is really powerful for me to read. It's interesting you mention TB - my doctor recently recommended I get tested for latent TB as a cause as such for my Addison's hasn't been found. I'm sure having you supporting her, in spite of the divorce, is more meaningful than you can even realise. I am thinking of you and your chronic illness too. May your days be peaceful.
I understand your dil. Pretty much carbon copy of my experience. I could barely get out of bed each morning, I felt like death for years. My partner simply accused me of being so incredibly lazy and just wanting to rob him of his money. It was terrible years, in many ways. The lack of knowledge to what I was going through, the lack of care in the medical community and lack of compassion from my partner. It’s been 11 years since the diagnosis.
I injured my shoulder and had that exact same headache, when I felt nausea with it I realized I needed to updose, probably because of the injury?
It is so hard to know- you don’t want to overuse the steroids and you really don’t want to underuse them. I wish we had a sensor like diabetics do. ❤❤
I am glad you are recovering!
It's such a minefield! I get caught up in avoiding things like moon face, and then I don't prioritise my health! It feels like we can never win!
Go Carnivore so healing! Check out dr Berry and Dr Chaffe also dr baker
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Do u happen to have Ehlers Danlos Syndrome???? Or dysautonomia???
I believe she has hEDS
In some of her other videos she did say she has EDS...not sure about the dysautonomia.
Yes, I do! I was diagnosed with hEDS and POTS a while ago, though in recent years (until adrenal insufficiency became so serious), I managed my POTS reasonably well, so I didn't talk about it as much.
Like CAH-X EDS?
Oh dang! Diagnosed with hEDS as well! Sending hugs!