As a person who has had hypothyroidism and Addison's Disease for nearly 30 yrs. You Guys are silly. ( I also have pernicious Anemia). The things you leave out are the low blood sugar that can happen with both undiagnosed and diagnosed Addison's. Also knowing the difference between the symptoms of Adrenal Crisis in diagnosed and undiagnosed Addison's would be essential for emergency room physicians. Too often I have gone to emergency room feeling very unwell and Dr. are still trying to diagnose some disease like bladder infection ,strep throat ,flue and giving me pain and nausea meds when all I really need is an I.V of hydrocortisone and all those other symptoms disappear rather quickly after that. No matter what is wrong with me I display the symptoms of low cortisol not the symptoms of the malady . It is serious you should go to the Addison's self help groups and read stories of how quick diagnosed people with Addison's can die.
Also being overly sensitive to noises is also a symptom of Addison's . before diagnoses I could hear dogs barking from over half mile away ,garbage trucks motorcycles, loud cars ,leaf blowers and jet ski's trigger an anger response. Dr.s know nothing about this, I had to get a medical librarian to find the studies for me. They were done in the 1960's. It has to do with the ear having a lot of potassium receptors.
As a Hypopituitarism + Unspecified adrenocortical insufficiency patient (Hydro and Fludro meds) for 20+ years, the feedback I offer is to take the time or have a staff member take the time to provide a handout with links to patient support sites. There is a huge amount a patient has to learn to successfully manage their condition. I have a good partnership with my Endocrinologist, but I am by far the expert when it comes to really knowing and living with this condition day to day. If you haven't lived it, you don't really get it because you can't be the observer and the observed at the same time.
Question. My friend just got out of hospital from adrenal crisis… when I look at her she presents totally like a Cushing’s patient, even her endo was surprised from test results… why would that be? Is this common?
I was wondering what you think. My free cortisol 24 urine is 3.6 which was flagged low. My ratio in urine for creatine cortisol ratio flagged low 6.9 ACTH low at 5.2 then 2 weeks later on the lower normal range at 7.7. My cortisol am serum 3.6 and CORTISOL LEVEL, SERUM/PLASMA 3.9
This is the best instructive video for steroid induced secondary adrenal insufficiency
Treatment. 💖🙏
Is the DHEA S lab needed? At what levels do you consider it low enough to confirm AI? Specifically, secondary?
As a person who has had hypothyroidism and Addison's Disease for nearly 30 yrs. You Guys are silly. ( I also have pernicious Anemia). The things you leave out are the low blood sugar that can happen with both undiagnosed and diagnosed Addison's. Also knowing the difference between the symptoms of Adrenal Crisis in diagnosed and undiagnosed Addison's would be essential for emergency room physicians. Too often I have gone to emergency room feeling very unwell and Dr. are still trying to diagnose some disease like bladder infection ,strep throat ,flue and giving me pain and nausea meds when all I really need is an I.V of hydrocortisone and all those other symptoms disappear rather quickly after that. No matter what is wrong with me I display the symptoms of low cortisol not the symptoms of the malady . It is serious you should go to the Addison's self help groups and read stories of how quick diagnosed people with Addison's can die.
Also being overly sensitive to noises is also a symptom of Addison's . before diagnoses I could hear dogs barking from over half mile away ,garbage trucks motorcycles, loud cars ,leaf blowers and jet ski's trigger an anger response. Dr.s know nothing about this, I had to get a medical librarian to find the studies for me. They were done in the 1960's. It has to do with the ear having a lot of potassium receptors.
Is not the same for hyperosmia? There was research done on patientsa
Really, because I have that. My mum used to say I have animal ears it must be something medical😅turned out it is.
Thank you!
We’re can I find these Doctors
This content is gold
You guys are like hard liquor - this is yet another top shelf presentation. Thank you ! -from Baltimore
As a Hypopituitarism + Unspecified adrenocortical insufficiency patient (Hydro and Fludro meds) for 20+ years, the feedback I offer is to take the time or have a staff member take the time to provide a handout with links to patient support sites. There is a huge amount a patient has to learn to successfully manage their condition. I have a good partnership with my Endocrinologist, but I am by far the expert when it comes to really knowing and living with this condition day to day. If you haven't lived it, you don't really get it because you can't be the observer and the observed at the same time.
What results would we expect to see with the lower dose ACTH test?
Question. My friend just got out of hospital from adrenal crisis… when I look at her she presents totally like a Cushing’s patient, even her endo was surprised from test results… why would that be? Is this common?
That’s what is happening to me and my endo seemed shocked to see my levels low.
How is a suppository going to work when you have diarrhea?
I was wondering what you think. My free cortisol 24 urine is 3.6 which was flagged low. My ratio in urine for creatine cortisol ratio flagged low 6.9
ACTH low at 5.2 then 2 weeks later on the lower normal range at 7.7. My cortisol am serum 3.6 and CORTISOL LEVEL, SERUM/PLASMA 3.9
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