Thank you for sharing your story Jade. I had a spinal bleed due to an undiscovered cavernoma in my spine whilst 22 weeks pregnant and 19 yrs old. Since then we have discovered we have the CCM2 gene and i had passed it to my daughter. We now both have brain cavernoma's and my daughter is due to start her genetic IVF journey next year to prevent it being given to her baby - fingers crossed and stay well
Thank you for sharing your story Jade. I had a spinal bleed due to an undiscovered cavernoma in my spine whilst 22 weeks pregnant and 19 yrs old. Since then we have discovered we have the CCM2 gene and i had passed it to my daughter. We now both have brain cavernoma's and my daughter is due to start her genetic IVF journey next year to prevent it being given to her baby - fingers crossed and stay well
Thank you for sharing your story Jade. My daughter and I both have it them too.
Proud of you Jade ❤
Love this
Just had mine removed from brain , thanks to god 🙏