We just found out I have a 6mm Brainstem Cavernoma I am in Nairobi, Kenya. Never heard of this condition though I suffered and have fully recovered from a blood clot on my brain in a urtery, this happened in 2015. This stories help, im trying to find out more, what more info is available for me?
Hi Annie, You can find out more information about the condition at our website; cavernoma.org.uk/ We are mainly a UK Charity, but the information about the condition should be useful to you. I hope it helps, and congratulations on the full recovery!
I don't have a CAVERNOMA STORY Yet. And all the Relief & Validation that arrives with a Clear Diagnosis. Not to mention Treatment Options & a sense belonging to a Community Society or Alliance Group or any ENTITY of Empathic Gathering of Kindred Spirits I have a SPECULATIVE Story though. It's like a Horror Story. A Steven King Movie. Even a Spy Agency couldn't manifest such suffering. But then AGAIN maybe they could & DID & THEY chose Me to DO IT to. Lucky Me in the United States of Australia eh!
I'll tell You & the Spy Agency what I've learned from my Horrendous Torturous Travails. {Pain Hurts & Fear makes You Scared} That's it. Nothing New Under the Sun regarding The Human Condition® and the Propensity for Violence Variously theirin.
I DO KNOW that Ice Pick Headaches are Derived from the same Root Cause as Why my Brain tricked me into thinking ALL my Teeth were Getting Infected like Domino's. Not that DOMINOS make anything Derivative of a Naturally occurring Pizza with Soul. More akin to Formulaic Hot Glup for easily coerced Millennials. But that's me being Cynical in this Hot Messianic Mess of a World with MEATYDATA Toppings & Heat triggered Myoclonic Seizures & Grey~Outs & Blackouts. HILARIOUS
Maybe I should have Gratuitous Sex at "The Harem" across the Road? That'd be a Riot for the Girls with Intriguing names. Me with No Teeth & a Rollator looking like Grandpa. Intriguingly, That Sexiful Establishment was Where I had my First Encounter. My first encounter with a Scary NEUROLOGICAL EVENT in a Hot Bath in 2007. The Name's BONE, Michael Bone. Cooked & Seared in a Post Coital Hot Tub with an Exacerbated Brainhead as a Extra. (Not Funny at the time). I couldn't see or talk or Think properly and my Head hurt & my Tongue was Tingling & Numb & my legs Buckled as I got out of the Water. The Poor girl "CAPRICÖRNIA" was so worried for me. Then again It could have been "Perrplexxia" or "Daphne St Claire". Been a while. Then I sat in a child's swing in the Park and then my Head came Good. (Sorry it's Trüe) A very Tricky Day it WAS. Until I had A HOT BATH at home without any company And IT 🔥🧠💥 HAPPENED AGAIN.
Thank you for sharing your experience with CMs.
when's the next cavernoma Alliance video meeting (zoom call only had 1 and forgot how and when to attend :) my symptoms are unbearable x
my Son have also Covernoma..how to recover this kind of illness..hope you can give me information how to avoid
We just found out I have a 6mm Brainstem Cavernoma I am in Nairobi, Kenya. Never heard of this condition though I suffered and have fully recovered from a blood clot on my brain in a urtery, this happened in 2015.
This stories help, im trying to find out more, what more info is available for me?
Hi Annie, You can find out more information about the condition at our website; cavernoma.org.uk/
We are mainly a UK Charity, but the information about the condition should be useful to you.
I hope it helps, and congratulations on the full recovery!
@@cavernomauk thanks for your response, I'll check it out.
I recovered from the clot, cavenorma is now a new thing all together.
I don't have a CAVERNOMA STORY Yet. And all the Relief & Validation that arrives with a Clear Diagnosis. Not to mention Treatment Options & a sense belonging to a Community Society or Alliance Group or any ENTITY of Empathic Gathering of Kindred Spirits I have a SPECULATIVE Story though. It's like a Horror Story. A Steven King Movie. Even a Spy Agency couldn't manifest such suffering. But then AGAIN maybe they could & DID & THEY chose Me to DO IT to. Lucky Me in the United States of Australia eh!
I'll tell You & the Spy Agency what I've learned from my Horrendous Torturous Travails. {Pain Hurts & Fear makes You Scared} That's it. Nothing New Under the Sun regarding The Human Condition® and the Propensity for Violence Variously theirin.
I DO KNOW that Ice Pick Headaches are Derived from the same Root Cause as Why my Brain tricked me into thinking ALL my Teeth were Getting Infected like Domino's. Not that DOMINOS make anything Derivative of a Naturally occurring Pizza with Soul. More akin to Formulaic Hot Glup for easily coerced Millennials. But that's me being Cynical in this Hot Messianic Mess of a World with MEATYDATA Toppings & Heat triggered Myoclonic Seizures & Grey~Outs & Blackouts. HILARIOUS
Maybe I should have Gratuitous Sex at "The Harem" across the Road? That'd be a Riot for the Girls with Intriguing names. Me with No Teeth & a Rollator looking like Grandpa. Intriguingly, That Sexiful Establishment was Where I had my First Encounter. My first encounter with a Scary NEUROLOGICAL EVENT in a Hot Bath in 2007. The Name's BONE, Michael Bone. Cooked & Seared in a Post Coital Hot Tub with an Exacerbated Brainhead as a Extra. (Not Funny at the time). I couldn't see or talk or Think properly and my Head hurt & my Tongue was Tingling & Numb & my legs Buckled as I got out of the Water. The Poor girl "CAPRICÖRNIA" was so worried for me. Then again It could have been "Perrplexxia" or "Daphne St Claire". Been a while. Then I sat in a child's swing in the Park and then my Head came Good. (Sorry it's Trüe) A very Tricky Day it WAS. Until I had A HOT BATH at home without any company And IT 🔥🧠💥 HAPPENED AGAIN.
Yes I'm channelling Benny Hill.
And LIKING MYSELF 👍