True story, even with troubles, Sjogren's, keep building you

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  • Опубликовано: 16 окт 2024
  • True story, even with troubles, Sjogren's, keep building you
    #Sjogren'ssyndrome
    #chronicillness #buildinghealth #depression #antiinflammatorydiet #lupus #livingwithrhumatoidarthritis #livingwithlupus #livingwithsjogren's #Sjogren'strouper #hope #faith #faithbuilders #sjogren's2024 #livingwithsjogren'sdisease

Комментарии • 29

  • @mlaniado98
    @mlaniado98 9 месяцев назад +1

    ❤😮🎉

  • @carollopez135
    @carollopez135 9 месяцев назад +1

    Happy New Year 🎊🎈🎆

  • @kendrapoppino7223
    @kendrapoppino7223 9 месяцев назад +4

    Thank you! I needed that perspective right now. I’m definitely struggling to find the positive things, and I feel like I’m not accomplishing anything because this flare just keeps getting worse. I needed this perspective right now. God bless you!

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      God bless you too! Praying for your flair to cease & give you a long breake. ❤️‍🩹💜💙🩵

    • @kendrapoppino7223
      @kendrapoppino7223 9 месяцев назад +1

      @@livingwithsjogrensdisease1550 thank you! ❤️

  • @rennie823
    @rennie823 9 месяцев назад +1

    Amen!!! Great thinking....we fall off wagons all the time, trip and fall but we still gotta get up and start again.... we'll get to the finish line!!

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      I love that! Yep, we sure will! 😀

    • @rennie823
      @rennie823 9 месяцев назад +1

      @@livingwithsjogrensdisease1550 you're an encouragement to me Vickie ..I have suspected Sjogrens, niece has it and I have many many symptoms plus positive ANA but not going for a lip biopsy because I'm already in pain ...I'm taking natural stuff to try to control the symptoms...I find it discouraging not to be able to cry 😭. And the kidneys,intestines whatever,are hurting so much .... anyway, I get depressed easily as it runs in my family and I have to not go there for too many days. . Gotta stay close to the Lord as He is our only hope in this life...thank you 🙏🌹😉

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад

      @rennie823 I hear you, this is a scary battle. You are courageous. Glad you are seeking out best self-care for you. Praying for your journey & healing pathways. ❤️‍🩹💜💙🩵

  • @PhyllisAnderson777
    @PhyllisAnderson777 9 месяцев назад +1

    Thank you and Happy New Year!

  • @mysjogrensjourney
    @mysjogrensjourney 8 месяцев назад +1

    Happy New Year, Vickie! As always you inspire and motivate. We've got this!

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  8 месяцев назад +1

      Happy 2024 dear one! I miss you & your videos. I know life gets demanding though. I tell myself that you are doing better so able to do more. Still lifting you in prayer & your journey. 💜💙🩵

    • @mysjogrensjourney
      @mysjogrensjourney 8 месяцев назад +1

      ​ @livingwithsjogrensdisease1550 Thank you so much, lovely Vickie. ♥♥You won't believe how many videos I have filmed since last year and each time I have had technical difficulties! Hours of videos that are no longer relevant, especially the Christmas one! I will try and make another one within the next two weeks and fingers crossed it will be ok! I am doing well, thank you, still with Jeremy's protocol. See you soon! either on your channel or mine haha.

  • @mlaniado98
    @mlaniado98 9 месяцев назад +3

    You speak so nicely and clear what do you take for dry mouth?👍👍

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      Thank you. Our Winter air is moister. Frequent water sips with sticking. Summer may try glycerin moistur swabs & saliva replacement spray. Given recent Rx nasal spray to relieve eye dryness, hoping helps saliva too, will see, spray name, ? complicated. Hope your feeling well. 💜💙🩵

    • @mlaniado98
      @mlaniado98 9 месяцев назад +2

      @@livingwithsjogrensdisease1550 thank you for your help and support good day 👍 👍 I will try it

  • @Steve-mc8uh
    @Steve-mc8uh 9 месяцев назад +1

    Hi Miss Vickie .
    Im new to your channel/ journey and i was wondering if i could ask you a few questions regarding sjogrens?
    I was wondering if you have any information regarding paratoid swelling in people with sjogrens and hoq its treated and if it ever goes back down to normal ?
    I cant find any info in Dr. Google and to be honest im trying to stay off Google as it brings me extreme anxiety.
    Thanks for any info you can provide 🙏🏻
    Kindest Regards
    Steven

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад

      Welcome. Here's a link to a .org site about paranoid gland swelling & some causes. "Parotitis: Parotid Gland Swelling Causes, Symptoms ..." my.clevelandclinic.org/health/diseases/23577-parotitis-parotid-gland-swelling
      I've had this on both sides of my face between my jaw & ear. It was extremely painful & only went away with antibiotic. Had to do 2 rounds of antibiotic because one side swelled, took antibiotic, then about 5 days after the other side swelled. I believe it was initially caused by Sjogren's though occured long before more noticeable long term symptoms so about 12 years before actually testing & diagnosis. It did go away but only after antibiotic treatment. Has not occured again. The clinical sight lists sever possible causes such as virus, dental infection etc but no mention of autoimmune disease. Shows need of more awareness for medical providers & researchers. Any question are welcome. Glad you asked & hope this help, hope you get relief soon! So painful. ❤️‍🩹💜💙🩵

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      Oops, lol, not paranoid, ugh spell check 🤦‍♀️, suposed to say paratoid.

    • @Steve-mc8uh
      @Steve-mc8uh 9 месяцев назад +1

      @@livingwithsjogrensdisease1550 it helps so much ! ! !
      Thank you for responding 🙏🏻
      I was told I may have it because of my dry eyes . I'm 53 and have a little boy and I'm so afraid I won't have another 15 - 20 years with him . Seriously thank you for your response I'm literally sitting here crying

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      Heavenly Father, God, you created the heavens & Earth all by just willing it to happen. You created Steve you know him inside & out. Thank you for your love & faithfulness, always working though we don't see or understand. We ask for healing for Steve, comfort, peace in this storm, an open pathway before him to the right health providers, excellent coverage of costs his needs. God you alone hold us sustain us, give strength to the wery give us a future. Please hold Steve, give him your gift or endurance. We praise you Lord & thank you for all you are doing now for you love Steve greatly. In the name Jesus your son we pray. Amen. ❤️‍🩹💜💙🩵

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад +1

      You got this Steve & God's got you.

  • @draganabuha3928
    @draganabuha3928 9 месяцев назад +1

    I have pss for 28 years now.My advice to you :write your thots and then read it so that we can stand watching videos, no offense please but maybe no-one told u that u are slow.Trust me, over the years that is what these lines do to us.All the best

  • @CupsOcean
    @CupsOcean 9 месяцев назад +1

    Happy New Year… This was such a sweet blessing from Spirit… I needed to see this… 🤍

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  9 месяцев назад

      So glad it was uplifting. Thank you & sweet blessing to you in this new year! ❤️ 💜💙🩵