A day in my life Sjogren's reality: mornings, meds, mishaps, fun

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  • Опубликовано: 22 янв 2025

Комментарии • 7

  • @mysjogrensjourney
    @mysjogrensjourney 4 месяца назад +1

    These reality / realistic videos are so important. ❤️❤️

  • @JillCrochetsStuff
    @JillCrochetsStuff 5 месяцев назад +1

    I have so much trouble swallowing pills as well and have to take them 6 times a day and that is not including my supplements. I have to wake at 4 am and take my thyroid meds because they have to be taken alone and 4 hours away from my other meds. I had thyroid cancer and have no thyroid so need optimal hormones from meds only. I have multiple autoimmune and chronic illnesses and am pretty much in agony every waking moment now. I do hide it well though. Not sure how much longer I will be able to do that. Thanks for the video! Helps to know you are not alone even though I would not wish this sort of life on anyone.

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  5 месяцев назад

      You are a brave hero warrier indeed and somehow with all of the hard things you are gracious & suportive of others. 💜💙🩵🩷

  • @kokilapatel1566
    @kokilapatel1566 5 месяцев назад

    I just decided after 2 years of cellcept and 2 bowel obstruction that no more meds! Now just my bp meds, vitamin supplements and a day full of either work or outside activities as much as I can tolerate.

    • @livingwithsjogrensdisease1550
      @livingwithsjogrensdisease1550  5 месяцев назад

      Thank you for sharing. I can relate so much. Sounds like the cellcept did more harm than good. I love your determination to enjoy all you can as you can. You're encouraging! 💜💙🩵🩷