Great question! He’s Not paralyzed but extremely stiff! His syndrome affects all aspects of his life- growth/ physical characteristics, mental development and range of motion in his joints. His body is very stiff mostly related to low muscle tone and directly related to his syndrome. Therapy helps a ton with mobility in the body but he will always have to work hard and stretch to have good mobility in his joints!
He is going to do great things this young man❤ he is a great fighter actually a warrior ,with all hes already been through most adults couldnt even be as 💪as he has become 🎉ill always be one of his cheerleader and you tube follower❤❤❤
Hi Stephanie. Your house is beautiful and immaculate! You did exactly the right thing by getting your chores done before you went out so you wouldn’t be anxious when you got home. Sebastian is so chatty in the morning, bless him xx
He talked all day in this video!! Such a ham! To see him more active and talkative is so wonderful. You are both doing a great job at taking care and raising this guy. Keep up the good work.
What a little chatterbox ... one day I'm sure there will be words. Sebastians progress since his heart op has been astounding. He tries different foods, he sips drinks, he chatters, he plays with his drum toy, he boogies, he rolls and wriggles. He's just beautiful and so smart ❤
Hadn't thought of that until you mentioned, yes you are correct, he is holding his head upright more. I noticed in his last vid that he's gained weight, his legs are no longer thin, much more thick now.
Well here I go again! I say the same thing every time -How can this boy keep getting cuter every single time we see him?? He is such a funny, smart, cute, living doll. The dancing sends me over the edge. Love that long-legged boy! And you guys are the best parents ❤ Thanks for sharing with us.
So sweet. Sebastián is really just amazing. He is talking so much more and using both of his arms a lot more. God could not have given this little miracle child any better parents and family. What a blessing and light you all are in this world and to this world. Sending love from Texas ❤
I loved this vlog! It’s nice to just see an ordinary day in your life with your family! I totally understand that routine is what keeps your anxiety under control. I am the same way I get stressed out and anxiety if I don’t stick to my routine.
Thanks so much for putting up more family vids. It is interesting to see how he interacts differently with each of you. He is growing so fast. I can't say enough how I admire the two of you and your parenting style. Stephanie, I also suffer anxiety big time, what you do to lower your level of panic is great!! Just love Sebastian and your whole family!!
What a chatty guy in the mornin!!!! Watching him engage with his toy...hims dancin! LOVE IT! So sweet of the server at the sushi restaurant. Bringing him a lil pillow, etc.....love people like that! Not waiting to be asked, just doing! Was good seeing the 3 of y'all together! Love you! ❤❤❤❤❤❤
Hey Steph! When it comes out, you should watch Inside Out 2 with Sebastian. It does a beautiful job of showing how anxiety (the new emotion introduced) is really trying to help us and protect us. I’m also an anxious person when it comes to my routines and loved watching how they framed anxiety in positive way in the movie, and how it can be helpful. ❤ Thought I would share from one anxious sister to another! 😊
Sebastian is so amazing. Looking at older videos and now, the progress he has made is phenomenal. You guys see so much more than we do of course but these past videos have certainly shown he has grown up so much. He is very active and talkative now which is just a blessing to see and hear. School will be a big change for both you and him, but he is going to be the teacher(s) favorite for sure. Take it slowly and one day at a time. Soon he will get use to going and you will appreciate the break you will receive. Its going to be amazing and i can't wait to see a get ready for school video (if you choose to post one of course and if you have time) . ❤❤❤
Sebastian did so great today with his toy. I’ve seen so much progress he’s made since I first started following you. His personality is changed too. They will love him in school. Really enjoy your videos both with Cindy and just yours. 🌷💕
That Boy was puttin on a show at the first! I had to go back and watch again. Sebastian has definitely stolen my heart!!! It’s amazing how much he’s improved since the first of the year. Him dancing and Steph saying get it,he loves it!!!! I hope you two realize how much JOY he brings to me and others. Thank You for sharing him!!!!🩵💙🩵💙🩵💙😇 I don’t know why this just showed up in my feed (filmed a month ago) But I’m glad it did ❤❤
Hello, Sebastian progress is incredible, he seems like he is understanding more what it is happening around him, it makes me so happy and I congratulate all of you, specially you Stephanie, God bless you all
When I see you like this in the morning Sebastian I just want a BIG cuddle 😔 I'm not feeling too well, and YOU cheered me up. Thank you darling xxx😊 Janice 🇬🇧 xxx
Mom....it took me ages to move across the gloor to over there and you moved me back. Lol. I love Sebastian on the baby cradle, he finds it so relaxing. You are such a happy boy talking to mom and dad first thing. Its adorable how the staff at the restaurant look after and care for Sebastian, and how he had a smile for them at the end. You are such a darling young boy, oh, and I love your funky dance moves too. ❤❤❤
God bless him , he wants to talk so much❤️🩷💙💜and dads hair is very popular right now 👍He’s adorable feeling the beat🩷❤️look at you sweet heart , your a peanut looking so trim🦋🦋🦋
I'm amazed at Sebastian's growth he's such a sweetheart since your trip to Mexico seems he's just grown so much taller wt. gain he's doing so much more seems my daughter who' also has handicap does so much than Drs. ever said she would do she's now a adult goes to a work program of basically fun. She to is so adorable wouldn't have believed id ever see her so special and Sebastian will be the same thank God for special treatment.
I'm not sure Sebastian is a morning person. He seemed a little cross at being woken up 😉. He knows where his food is. That's why he's rolling towards the wood. He's headed for the kitchen! Look at him sitting! Even though it was a hard decision, Stefanie, Geo and you made the right call in sending him to school. It is enriching his life and he's getting stronger. Even the way his feet he places his feet has improved. He's making progress with movement overall. He's doing great and it's because of Geo and you. It's cool seeing him doing a little head bopping. Some people need structure and routine. I'm glad you're recognizing that changes in routine aren't the end of the world and are doing things to cope. That is awesome! Congratulations - that shows wisdom. Now you can enjoy your time with Geo as your reward!
i was wondering this whole time why you didn't just get him a baby swing. I as so happy to see you put him in it. I kno people talk shit but he fits . He's small , he might want that swing for the rest of his life. i cant stand the haters on ur page. i luv yous guys.
I am just watching your vlog ,wow Sebastian is growing up so fast .he has come on so much ,I just wanted to say I love watching you all your a wonderful family ,thank you for sharing Sebastians progess he is doing wonderful xx
👋😇Stephanie George and lovely family, Its awesome to see 👀Sebastian talking he's such a cutie pie.Yous all are wonderful people.🌠Thank you so much for sharing your family with all of us.✨🕊God bless your entire family.✨🕊🙋How'd and love from Texas.💞 💙✌🏻💙
Oh my goodness! Sebastian sure was chatting with you! I think he was telling you he wants you and Gio to take him the water park! He has grown so much! There’s nothing cuter than Sebastian’s smile, it lights the world 💙🩵 what a handsome, happy boy! 👦🏻🩵💙💜🩷💚
I steal my kiddos Squishmellows at time because they make such cozy pillows! 😂 Whatever makes you/him comfy and happy! 😊 I love his smile 😊Thats so wonderful he is learning to sign and knows "eat" HOW AMAZING 👏 Will they teach him to sign in school as well? He is grown and come so far!! You and Gio must be so proud of him!!! 😊
Sebastian is a total rock star! He’s playing the drums, singing, dancing-the perfect front man! Now we need a perfect name for the band! How about Sebastian and the Sillies! Has a ring to it, imo!! U both do a great job and r always so patient. I love love how u r constantly talking to him, asking him questions, getting him used to conversing! In my ICU patients who are sedated, paralyzed, medicated, I always come in to the room and speak to my patients just as if they were having a conversation with me. I tell them what time it is,the weather outside, even reading the funnies and horoscopes! I truly believe it helps encourage verbalization and really stimulates them! I’m a new subscriber but I’m really inspired by your family’s love and dedication to Sebastian!!! ❤🤘🏻🎸🥁
My little brother liked the car washer he used to call it the ‘fiddy roller’. However I don’t like them after having a door opened by the rollers during my teens and therefore anxiety making for me… Lovely to watch Sebastian being stimulated by it as my brother did.😊❤
Talking up a storm, dancing up a storm, eating in the restaurant like a big boy ❤ Sebastian is making such amazing progress!!😊 He is very aware of his surroundings. Great vlog!!🎉
Is his R arm paralyzed?
Great question! He’s Not paralyzed but extremely stiff! His syndrome affects all aspects of his life- growth/ physical characteristics, mental development and range of motion in his joints. His body is very stiff mostly related to low muscle tone and directly related to his syndrome. Therapy helps a ton with mobility in the body but he will always have to work hard and stretch to have good mobility in his joints!
He is going to do great things this young man❤ he is a great fighter actually a warrior ,with all hes already been through most adults couldnt even be as 💪as he has become 🎉ill always be one of his cheerleader and you tube follower❤❤❤
Alexishubbard
😂😂😂😂😂🎉🎉🎉🎉🎉😂😂❤❤❤😂🎉🎉😢😢😢😮😮😮😅😊😊😊😊😅😅
@@beth6288
6:41 6:42
Sebastian is such a happy little boy. He is sitting up so well! Look how much he has grown. Thanks for sharing his progress with us!
Sebastian has come so far this past year!!!!! Many prayers for continued health and growth for your beautiful boy!!!
He really has made amazing progress! I love his little personality blooming 🌻
He is so talkative in the morning, he's so adorable
Talkative? Does he answer? Or is he just vedgie ?
Hi Stephanie. Your house is beautiful and immaculate! You did exactly the right thing by getting your chores done before you went out so you wouldn’t be anxious when you got home. Sebastian is so chatty in the morning, bless him xx
He talked all day in this video!! Such a ham! To see him more active and talkative is so wonderful. You are both doing a great job at taking care and raising this guy. Keep up the good work.
What a little chatterbox ... one day I'm sure there will be words. Sebastians progress since his heart op has been astounding. He tries different foods, he sips drinks, he chatters, he plays with his drum toy, he boogies, he rolls and wriggles. He's just beautiful and so smart ❤
Sebs is small, perfectly fine in the rock chair! He's soothed and cradled and comfortable in it!❤
Sebastian's progress is astounding! He's not just gaining weight, he's gaining strength!!! Look how he holds his head up and those neck muscles!
Hadn't thought of that until you mentioned, yes you are correct, he is holding his head upright more. I noticed in his last vid that he's gained weight, his legs are no longer thin, much more thick now.
That chair has made all the difference xx
Love it when Sebastian speaks his mind! This boy has a lot to say today 😊 His smile just makes me smile 😊
Sebastian is such a character 😂. What a love❤
Sebastian is so much stronger and verbal now. Love you and your family!❤
It sounds like Sebastian had quite a dream!! His smile and laugh are so contagious. Thank you for sharing. 💕
Sebastians advancing so much. He's smart. Bless his heart. He's so cute.
Those early morning snuggles are so precious! Sebastian has found his voice and he says “Hear me Roar” weather it’s vocal or hand tapping!🤣😂🫶🙏
Well here I go again! I say the same thing every time -How can this boy keep getting cuter every single time we see him?? He is such a funny, smart, cute, living doll. The dancing sends me over the edge. Love that long-legged boy! And you guys are the best parents ❤ Thanks for sharing with us.
So sweet. Sebastián is really just amazing. He is talking so much more and using both of his arms a lot more. God could not have given this little miracle child any better parents and family. What a blessing and light you all are in this world and to this world. Sending love from Texas ❤
Oh my goodness, he's precious in the morning. 😊❤
I love this❤️ it love Sebastian he's so cute I have baby fever and it's a big case Sebastian's progress is remarkable
Sebastian is such a happy boy :-)
I loved this vlog! It’s nice to just see an ordinary day in your life with your family! I totally understand that routine is what keeps your anxiety under control. I am the same way I get stressed out and anxiety if I don’t stick to my routine.
Thanks so much for putting up more family vids. It is interesting to see how he interacts differently with each of you. He is growing so fast. I can't say enough how I admire the two of you and your parenting style. Stephanie, I also suffer anxiety big time, what you do to lower your level of panic is great!! Just love Sebastian and your whole family!!
He woke up in a good mood . So sweet
What a chatty guy in the mornin!!!! Watching him engage with his toy...hims dancin! LOVE IT! So sweet of the server at the sushi restaurant. Bringing him a lil pillow, etc.....love people like that! Not waiting to be asked, just doing! Was good seeing the 3 of y'all together! Love you! ❤❤❤❤❤❤
Hey Steph! When it comes out, you should watch Inside Out 2 with Sebastian. It does a beautiful job of showing how anxiety (the new emotion introduced) is really trying to help us and protect us. I’m also an anxious person when it comes to my routines and loved watching how they framed anxiety in positive way in the movie, and how it can be helpful. ❤ Thought I would share from one anxious sister to another! 😊
I loved that movie. It is so good at the emotions. Cute
Awwww Stephanie he’s just thriving !! Keep it up Mama ❤ your slaying it
Is it just me or is it since Mexico Sebastian is just flourishing! Gaining weight, talking more and just seems all of a sudden to of progressed??
I remember you saying he won’t play with toys and now look at clever boy.Hes came on leaps and bounds since therapy and loves his drums.xx❤
He is a cutie cute. He looks like Dad. I love that you’re so patient and sweet with him.
Sebastian is so amazing. Looking at older videos and now, the progress he has made is phenomenal. You guys see so much more than we do of course but these past videos have certainly shown he has grown up so much. He is very active and talkative now which is just a blessing to see and hear. School will be a big change for both you and him, but he is going to be the teacher(s) favorite for sure. Take it slowly and one day at a time. Soon he will get use to going and you will appreciate the break you will receive. Its going to be amazing and i can't wait to see a get ready for school video (if you choose to post one of course and if you have time) . ❤❤❤
Hearing Sebastian's voice and seeing him smile makes our rainy day feel sunnier ❤️ 🇬🇧☔🌞🌻 xxx
What a happy talkative little boy! So much to say, I love it! Also Steph, you look amazing. I'm jealous!
lol he’s telling you good morning mommy I love you
Sebastian did so great today with his toy. I’ve seen so much progress he’s made since I first started following you. His personality is changed too. They will love him in school. Really enjoy your videos both with Cindy and just yours. 🌷💕
I love how much Sebastian is talking now. And all his smiles...he was happy to go for sushi. He's such a sweetheart! ❤
He had a lot to say. He is so sweet. ❤ I love him so much.
Just found your channel. Beautiful little family! Morning chats are the best!🥰💙
That Boy was puttin on a show at the first! I had to go back and watch again. Sebastian has definitely stolen my heart!!! It’s amazing how much he’s improved since the first of the year. Him dancing and Steph saying get it,he loves it!!!! I hope you two realize how much JOY he brings to me and others. Thank You for sharing him!!!!🩵💙🩵💙🩵💙😇
I don’t know why this just showed up in my feed (filmed a month ago) But I’m glad it did ❤❤
Love seeing how happy Sebastian is he is so funny. Love you guys
Hearing Sebastian talk is the best
One if my favourite videos, Sebastian made me smile and laugh the whole way through especially playing his drums. Xxx
Such awesome dancing!! He's just so cute!!
he is growing so big ! I just love him ! He makes my day everyday ! ❤
He’s so talkative 🥰
And rocking out to his drums ❤
Such a good eater 😊
Love y’all bunches
💙🩷💙🐶🦜
Hello, Sebastian progress is incredible, he seems like he is understanding more what it is happening around him, it makes me so happy and I congratulate all of you, specially you Stephanie, God bless you all
My day is always brighter with you guys!! Goood morning!!! ❤❤❤
Mine too! Can't wait for the next video from my boo!
When I see you like this in the morning Sebastian I just want a BIG cuddle 😔
I'm not feeling too well, and YOU cheered me up.
Thank you darling xxx😊
Janice 🇬🇧 xxx
He done so well with sitting up in this video it was wonderful to see 😊😊💕
Absolutely loved every thing about this video from good morning to goodnight 💙💖💙 loved watching him Boogie too his drum !!!
Love him so much ♥️💙🙏🏽🥰
Such a lovely Family. You brightened my Evening Sebastian ❤💙💙🧸
Qu’il est attachant ce petit !! Il est vraiment adorable,on ne peut que l’aimer.
So good to see chewing..and the adorable dimple,rock on sebastian.
Mom....it took me ages to move across the gloor to over there and you moved me back. Lol. I love Sebastian on the baby cradle, he finds it so relaxing. You are such a happy boy talking to mom and dad first thing. Its adorable how the staff at the restaurant look after and care for Sebastian, and how he had a smile for them at the end. You are such a darling young boy, oh, and I love your funky dance moves too. ❤❤❤
God bless him , he wants to talk so much❤️🩷💙💜and dads hair is very popular right now 👍He’s adorable feeling the beat🩷❤️look at you sweet heart , your a peanut looking so trim🦋🦋🦋
He has such a happy life
I have to say that you look fantastic Steph!
I haven’t seen anything with Geo’s parents lately. I hope they are doing well. Love this little man!!💙🩵😇💙🩵😊🥰😘😉
He’s grown so much how well he’s doing it’s great to see ❤❤❤❤
lol he’s telling you good morning mommy I love you I think Sebastian is going to be in a rock band.
Such joy today from Sebastian and he wants to tell you all about it! Kept me smiling all the way through!
I'm amazed at Sebastian's growth he's such a sweetheart since your trip to Mexico seems he's just grown so much taller wt. gain he's doing so much more seems my daughter who' also has handicap does so much than Drs. ever said she would do she's now a adult goes to a work program of basically fun. She to is so adorable wouldn't have believed id ever see her so special and Sebastian will be the same thank God for special treatment.
I'm not sure Sebastian is a morning person. He seemed a little cross at being woken up 😉.
He knows where his food is. That's why he's rolling towards the wood. He's headed for the kitchen!
Look at him sitting! Even though it was a hard decision, Stefanie, Geo and you made the right call in sending him to school. It is enriching his life and he's getting stronger. Even the way his feet he places his feet has improved. He's making progress with movement overall. He's doing great and it's because of Geo and you. It's cool seeing him doing a little head bopping.
Some people need structure and routine. I'm glad you're recognizing that changes in routine aren't the end of the world and are doing things to cope. That is awesome! Congratulations - that shows wisdom. Now you can enjoy your time with Geo as your reward!
❤❤❤
Sebastian has rhythm 🎵 🎵, he’s very smart and he’s very handsome. Great 👍 job Stephanie. Enjoy your sushi dinner ❤❤🥰
Omg he really likes those drums!!🤣🤣 he was dancing too!! Too funny & cute!!!!
i was wondering this whole time why you didn't just get him a baby swing. I as so happy to see you put him in it. I kno people talk shit but he fits . He's small , he might want that swing for the rest of his life. i cant stand the haters on ur page. i luv yous guys.
What sweet little man he’s so funny ❤ he always makes me smile 😃
He is getting so much more vocal, i love to hear it 💗💗
Sebastian, you make me smile Lil Buddy!! Love you doll face!!💙💙
You 2are such good parents Sebastian is lucky to have you
The dance is the BEST!!! ❤❤❤
He is too cute dancing and playing music. ❤❤
Oh my gosh he’s doing so well! Which means you two are exceptional parents🩵 I feel like he might say “yes” soon…?
Love his smile 😊
Sébastien is holding his head up so we'll. And those dance moves awesome. How is right arm/hand doing sweet boy.
Sebastián is the cutest!!! His smile is priceless! If he likes the swing, let the handsome guy enjoy it! ❤❤❤
I remember when he couldn't hit the round spots. He has come so far.
I am just watching your vlog ,wow Sebastian is growing up so fast .he has come on so much ,I just wanted to say I love watching you all your a wonderful family ,thank you for sharing Sebastians progess he is doing wonderful xx
Oh he's such a doll baby! Enjoyed the outing and seeing all the foods, and sebastian trying things. Love you all!
You have such a lovely family
Wow Sabastian has grown so much 💙‼️ He is AMAZING 🙌🏼💙‼️
Sebastian is Communicating more and more! He’s doing so well! Did I see a head nodding “yes”? Love your little family! ❤️❤️❤️❤️❤️
I’m watching this for the 3rd time, Sabastian rocking out💙💙💙‼️
I love the baby swing it’s ok he’s in it I had a baby swing for my three year old LP daughter to help her I enjoy your videos
I love that swing ting. I'm happy you've got it. When your wee Sebastian was in that yoga trapeze, he really liked it.
👋😇Stephanie George and lovely family, Its awesome to see 👀Sebastian talking he's such a cutie pie.Yous all are wonderful people.🌠Thank you so much for sharing your family with all of us.✨🕊God bless your entire family.✨🕊🙋How'd and love from Texas.💞
💙✌🏻💙
Que bueno es escuchar a Sebastian tan animoso al despertar ❤❤❤❤
That boy is growing up so fast! He is so smart and handsome. A typical boy likes to hit on something and be loud! So sweet.
Oh my goodness! Sebastian sure was chatting with you! I think he was telling you he wants you and Gio to take him the water park! He has grown so much! There’s nothing cuter than Sebastian’s smile, it lights the world 💙🩵 what a handsome, happy boy! 👦🏻🩵💙💜🩷💚
Que imaginación
Remember when Sebastian couldn’t use his musical toy! He is making progress. Slow but sure wins the race!
Can we just appreciate how Tall & how well Sebastian is looking!?. I love his morning chatter! He truly is flourishing & you two are amazing with him
I love watching the three of you. ❤
I steal my kiddos Squishmellows at time because they make such cozy pillows! 😂 Whatever makes you/him comfy and happy! 😊 I love his smile 😊Thats so wonderful he is learning to sign and knows "eat" HOW AMAZING 👏 Will they teach him to sign in school as well? He is grown and come so far!! You and Gio must be so proud of him!!! 😊
Oh God Bless this sweet young man
He is changing so much ❤❤
He talking a lot now. I think he has the cutest smile and I love them dimples .. 🙏❤️👍
I love that little boy❤️
Sebastian is a total rock star! He’s playing the drums, singing, dancing-the perfect front man! Now we need a perfect name for the band! How about Sebastian and the Sillies! Has a ring to it, imo!! U both do a great job and r always so patient. I love love how u r constantly talking to him, asking him questions, getting him used to conversing! In my ICU patients who are sedated, paralyzed, medicated, I always come in to the room and speak to my patients just as if they were having a conversation with me. I tell them what time it is,the weather outside, even reading the funnies and horoscopes! I truly believe it helps encourage verbalization and really stimulates them! I’m a new subscriber but I’m really inspired by your family’s love and dedication to Sebastian!!! ❤🤘🏻🎸🥁
My little brother liked the car washer he used to call it the ‘fiddy roller’.
However I don’t like them after having a door opened by the rollers during my teens and therefore anxiety making for me…
Lovely to watch Sebastian being stimulated by it as my brother did.😊❤
Happy day!!!! Sebastián and family, nothing better!❤🎉
Sebastian is so sweet 😍😍😍😍😍😍💕💕💕
Talking up a storm, dancing up a storm, eating in the restaurant like a big boy ❤ Sebastian is making such amazing progress!!😊 He is very aware of his surroundings. Great vlog!!🎉