Finding the Light: A Family's Story of Love and Resilience with FOXG1 Syndrome

FOXG1 Syndrome is an extremely rare neurological genetic disorder. In fact, four-year-old Finn is only one of about 1000 known diagnoses WORLDWIDE. In this story, Stevie shares how her family dealt with the devastating diagnosis and how they found strength and hope. Today, Finn attends school at Hawkswood and receives physical, occupational and speech therapy from Abilities in Action. He's making strides every single day. His mom, Stevie, has a law degree and left a big career at the Bank of New York Mellon working in their tax department. Stevie says her boss could never fully understand the level of stress she and her family were under while dealing with Finn's medical issues. Therefore, she was forced to leave her career for the time being to stay home and be the full-time caregiver to her family.
RESOURCES:
*FOXG1 Research Foundation: foxg1research.org/
*Abilities in Action Pediatric Therapy (New Jersey):
www.abilitiesinaction.com/
*Hawkswood School (New Jersey):
www.hawkswoodschool.net/page/...
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#foxg1 #foxg1awareness #foxg1research ‪@FOXG1Research‬ #yourenotalone #specialneedsmom #yourstorycounts #shareyourstory #mediamoms #hawkswoodschool #abilitiesinaction
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