Hi Jackie, awesome update, I'm very happy for you that they've stopped *knocks on wood before finishing typing this* I got my first cluster headache when I was 26. For the next 12 years, I got two or three cluster periods per year. When I was 38, they transitioned to chronic, with varying periods of remission. I'm 55 now and get at least two, often three cluster attacks every day. Each one lasts about three hours. My last pain-free day was February 6, 2006. I don't remember what a day without pain is like anymore. I pray you remain cluster free for the rest of your life. Thank you for sharing, I'll look into the things you mentioned. Take care and be well!
I have this for 6 years now. It all started when i turned 20 years old and i'm 26 now. When it first started at 20 years old it started with a burn on my left eye, a teary eye and my nose full of snot (but i was able to handle this because it wasn't that bad at this point yet and knowing it would stop after like 20-30 minutes kept me positive in a way that i knew i would be pain free again after that, i mean really when the cluster attack left i just instantly felt healthy again like a normal person would. So the first couple years i just did my thing i still went to college got my degree and went with a smile to my work. Untill this one time - at the moment 1 year ago i felt this attack upcoming during my shift and that is where it really scared me.. i wasn't able to do my job, i needed 30 minutes to seperate me from my colleagues and the people i was suppose to help because the pain you feel or i felt at that point.. i wanted no one around me, all i wanted was the pain to go away while being left alone so i was able to focus myself only on that because lets be honest with a cluster attack ur not doing anything at all (head hurts, teeth hurts, brain hurts, eye hurts, and overall the intense feeling of the burn is just to much to handle with people around you. Back to the main story.. at the moment i am at a point where i dropped out of college due this insane pain it just wasn't doable anymore.. i've stopped working even tho i really wanna work again cuz there is nothing more depressing than knowing ur not leaving ur house again, i'm not going to friends because i have this constant feeling of my eye burning a lot and for me thats a indicator that later the day the real attack will occure. 9 days ago i've had my first 10 hour cluster headache from 8PM till 6AM and that is where i decided to quit smoking weed and indeed drink more water like you are doing aswell. My body and just me in general i'm just so drained so exhausted at that point after all those hours of the non-stop burn and wanting to bash my head in to a wall, that after like 8 hours when i was this drained and felt really ill for a second and needed to throw up (vommit) and straight after that the cluster attack came back as soon as i was done throwing up, and there you are sitting on the floor drained, bathing in sweat, crying it out because of the pain. My medication doesn't work, Verapamil doesn't work, Sumatriptan doesn't work, a TENS device that is suppose to move or ease the pain doesn't work for me. And even tho i keep taking my meds still today and even now i still feel my eye burning and like you have aswell when i go to sleep 2 hours later it wakes me up and the party starts of wanting to die. For me it was normall at some point to have it once a week for at max 30 minutes to 3 hours. But the last 9 days it never went away the constant feeling of burning and now even during the day the cluster attack just kicks in out of nothing. Now my doc wants me to quit smoking in general because in my country they don't provide oxygen therapy if you do smoke, and i have stopped smoking weed for 8 days now which was my only hold in calming my mind and head down even tho it didn't ease the pain. And even tho this stuff hurts like a $#&*!@$, i will always try to stay positive in a way because i'm not ready yet to leave everyone behind and give up. Will it ever be easy i don't think so. I just hope for a day where they do find something that will help us people with cluster attacks so we can live our lives. - Sorry for the weird English in most phrases its not my native language. I hope you are still doing oke after 2 years of this video being made and hopefully 1 day one of us comes with a solution for all of this! Stay strong
When the oxygen doesn't work on your cluster headaches, put the back of your head and lower neck under cold water in the shower. You can stand in there or just lean in. It might take up to ten minutes. Get it as cold as you can stand it. Colder the better. Cluster headaches come from a nerve problem starting at the back of the neck. You can also see a neurologist and get Botox shot to deaden that nerve. I went to a chiropractor and it worked for the first year. You can get oxygen from a local welding supply. Its the same stuff as the medical. They don't ask question and I don't tell. I get a 4 foot tank filled for about $28 a fill. I bought the tank years ago. You can also rent a tank. You can get the metering valve that threads on to the tank online, as well as the mask. Just do a search for the two different Items. I get the male oxygen tank and then use the female flow control/regulator. The oxygen tanks come with either male or female fitting on it. The regular welding tanks have the male outlet. Key words will be oxygen tank flow regulator. Cluster headache oxygen mask.
@@vanessalutz9740 They have smaller tanks but then one is going back to refill sooner. I use a light truck to pick up the oxygen. A mini van might work. They just swap out tanks so one doesn't have to wait. One can just say they are using the oxygen for Oxy/acetylene torch. Or oxy/propane. But one doesn't have to say anything. Just ask about tank sizes or look online what they offer.
@@vanessalutz9740 It is far cheaper just buying it yourself. When I went the insurance route, I was paying $135+ a month co-pay. If I get it myself twice a year, it is like $60 for the YEAR. But I bought my tank from a private party long time ago for $100. If you buy the tank from a dealer they are over $400. So some just rent. You can goog map your area for welding gas dealers
Just saw your other video and what a blessing you have been free from clusters for that long! I'm praying mine go away soon, I just entered a cluster cycle and the summer cycles for me are particularly rough. Be well, and thank you for that video you posted, I think its extremely helpful for us who deal with this to at least have some sort of community that understands.
Hi Michael. Ask the doctor for beta-blockers to regulate your heartbeat and pressure. Also, a Triptan (Zolmitriptan) for when the attacks start. One 2.5mg zolmitriptan pill nips my 3 daily cluster headaches alsmost in the bud. I rarely have to go through the whole headache since they started 8 years ago. Reduce your sugar intake and drink isotonic drinks to replace the minerals in your body. Good luck.
Shrooms literally stopped my headaches over nearly 2.5 years. Came back when I didn’t do any shrooms for 6 months straight. Take what you will from that… Goodluck I wish you the best.
I am 59 and I have been a CHW (Cluster Headache Warrior) for about 20 years now, battling about 3 attack cycles per year. I have tried just about everything there is out there, medicinal wise outside of having a transistor implanted in my head. If you are a CHW, I don’t have to tell you about the impending fear of a cluster attack that you live with daily during your cycle because it is not a question of if it’s coming because it is, every damn day and every damn night in my case anyway. So cut to the chase the other day I was watching Cluster Headache videos which I do every time I am in a cycle, and I watched a video that I will put the link below for that I have to say it was a game changer for me. I was having an attack and was already in the usual hot poker through the skull and eye along with the electrical pulse shocks mode and started frantically searching for the acupressure sweet spot described in the video and eventually found it. I applied sustained pressure on that side of my neck, the side that my headache always occurs on (the right side) and within a minute or so the shooting pain in my head and eye stopped!! Completely!!! I have no idea what kind of sorcery it is but WTF!!! It worked!!! I kept applying pressure for about 10 mins (just in case) alternating fingers and hands to keep the pressure on the spot and I have to say it really worked for me. What used to take hours to dissipate literally took a few minutes and I got all teary eyed that after all these years the power to stop the attacks was literally in my fingertips. During 6 more attacks over the last three days, I have applied the same acupressure method and as of now I am 6 for 6 completely knocking headache out within minutes with no Imitrex or Acetaminophen taken in those 3 days. I know there is no cure for this Cluster Headache Syndrome, but I have found what my son called the "Cheat Code" for stopping my attacks and I will keep doing this throughout this cycle and future cycles. Hopefully this works for others out there as well and yes, I’m a real F-ing person!!! Goodluck and keep up the fight! ruclips.net/video/Qw7nLjzHxZo/видео.html
Glad to hear! ❤ Looking at the scientific literature, it seems much more likely that it was actually the mushrooms and LSD that eventually aborted the CHs, even if they had a delayed effect. More information on ClusterBuster's website. Thanks for sharing!
YOU are the coolest …i really didnt know about this hell on Earth and felt a Bit ashamed because Too many are suffering … i thought about this all the week since i saw your other video and Try to do some research, couldnt do anyting else:) everybody Should know! … wish you all the best ♥️
Just came across this video and the previous one of you after a cluster headache. Thank you for posting I've been suffering for about 20 years now. I just recently came across mushrooms myself but did microdosing which seemed to help me. They didn't completely stop them but the pain was much more bearable. Like you said in your previous video, it's hard to explain it to people because the response you get is oh yes I understand, I get migraines which as you know are not the same, so thanks again for posting these videos
That video brought me to your channel. Good to see you smile. I've been having this kind of pain . I thought it was my teeth but after going to the dentist and getting antibiotics and codeine , and getting all drugged up the pain is still there. I haven't been diagnosed with this by a doctor but I think this is what I'm going through. Sometimes it starts with a burning sensation in my nasal . Stay positive . God bless!!
I'm fresh in a cycle after 3 years. I'm late I usually start a cycle right at time change. Started a week ago. I wish I could actually fckn sleep. Everytime I do I wake up in a cycle. Fml
Hi Jackie, thanks for all the tips. Been trying most of the techniques from your previous video but I will try out some of the tips you mentioned in this video. Thanks for the post. 😊
So about 50 days ago, for the first time in my life, I had intense headache/pain around my right eye every day at around 1-3 pm along with sensitivity to light. I visited two Neurologists who suggested it's most likely cluster headache and prescribed medication for Cluster. It had been 5 days since this headache had started. I was searching all day long about CH on youtube and the web. The more I searched the worse it appeared to be. I had this realization that how out of nowhere my life just became paralyzed. I came to know about how a significant amount of people suffer from this brutal headache and how I had never ever heard of it. Only at this time was I able to understand the feeling of living a life with a disability, which many people around us do. Even migraines greatly disable day-to-day life. At this point, the only thing I wanted more than anything was for somehow this to be something other than CH, something temporary. Meanwhile, I knew that I might have to live with it for the rest of my life. That's when I stumbled upon your previous video on CH. I greatly appreciate your strength. Stay strong and keep living the life to fullest. In the coming days(after 5 days) the headache started to fade significantly every day, and within 4 days it was completely gone and hasn't come back since. I have had some shadows once or twice after that though, which makes me wonder if it really was CH. I never started the medication. This was no doubt one of the most humbling experiences of my life.
You survived. But it will come back. Mine skip a year or two but they will return. I hope im wrong but after 23 years i have alot of experience. Im 57 y/o male. Just get thru it. They win the battles but we will win the war.
Hi Jackie! I’m with you on this I suffer from CH since I was 19 and it’s been already 26 years since my 1st I’m currently on my cluster period and mine never lasted less than 1 month, and the longer was just under 5 months. Usually they take anything between 2h30 to up to 7hours
I came to this video cuz of your prior video of cluster headaches. I had one this morning. And I commented on that old video if you don’t mind checking it out please. Its funny cuz I was the same as you last year, when you said that you would get like shadows of it reminders of what it feels like, like them saying “hey I’m still here I haven’t gone away” I had that last fall cuz I would get them every spring and fall and I didn’t in fall. But yup I got it this morning late spring… And today is the 14th day. But this is what I had commented on that video 👇 -------------------------- I feel you! My viewpoint on it and how it affects me When: Im 30 years old. I get them 2 times a year every single year for about 8 years now. Spring and Fall. Lasts 1 hour to 1 hour and 30 minutes. And a few times a day. And can last up to 2 weeks. Triggers: My triggers are stuffy nose, and waking up from sleep. Symptoms: Same exact symptoms, burning around the eye and cheeks, up to my temple, down to my upper jaw and my scalp will fill so sensitive to the touch as if my scalp is jello. I pace back and forth and can’t lay back down. All on my left side and my eye would tear up and my nostril will burn and feel like I’m sniffing sand. Prevention: I try not to blow my nose during the weeks I’m dealing with this, blowing my nose will swell up the nostrils, and if I’m runny, I’ll just let it run. When I saw you crying and sniffing, I felt the pain just watching I was saying to myself “stop stop stop” lol cuz I know this only makes it worse the next morning cuz of the swelling. During the attack, I have found sitting down staring at something not moving my head or eyes helps a lot. It’s hard to do this while in pain because this pain causes you to move and shake uncontrollably. I feel moving more and touching my face, or breathing in through my nose hurts worse, I purposely let my nose run…. But staring and focusing on an object and not moving has helped alot. I take Excedrin Migraine pills to help, and I think it does. Years prior I would get them 5-6 times a day. Since I’ve taken Excedrin I get them once a day. Before it was ibuprofen and that’s what caused me to have them 5-6 times a day. But you have to have food in your stomach to take Excedrin, and often I get them in the MORNINGS ALSO and it will wake me up, i wouldn’t want to go to sleep at night. And when it wakes me I will know that in about 2-3 minutes I’m going to be in excruciating pain, so I don’t have time to eat before taking the pills, I would take them and rather suffer the pain of the cluster headache than having to feel an upset stomach. How I emotionally feel: I will sometimes cry and want my life to end but never attempted to end my life. I have banged my head purposely though… Minutes feel like hours. This is a pain I don’t wish even on my worst enemy.
i just recently got them and i am only 20 . worst pain of my life and i cant really sleep and pain meds dont work got a shot of toradol for severe pain
Yes ,thank you so much for making the last video truly, , i thought nobody felt like me when the mushroom didnt work, its a space of 5-6 days in between doses or yes or it doesnt break the cycle , its torture , im not quite sure how other people survive from with this . Me i have amazing friends , its a miracle , but , i dont know how to get my cluster disease to go into remission , i take mushroom frequently every 5-6 days , but i get flare ups every week , i have chronic cluster headaches , the disease used to be episodic but after taking neuro meds (toprimate) i got bad side effects and stopped taking it but now its chronic , like every week to 5 days i get a flare up. Or a full episode , my stomach is pretty weak , which i know is connected to the brain , but i have had chronic clusters for 3 years now im 44 years old male , I started with them when i was 27. I cant seem to figure out how to get my body to work normally , any ideas? Or advice ? Im in a foreign country because i knew that in mexico i can get mushrooms without problems from the police. But i got this shit real bad but maybe it will go away like your form of the disease
Hi, I really enjoyed the other video explaining cluster headaches and this was a great update. Glad you are doing well! However, I have had them over 8 years and you can go long periods of time without having them. My neurologist calls them cluster breaks. I remember a brief time I almost went 2 years without one, slight shadow yes, but no cluster. I hope this is not the case for you and hope everything you are doing is working! I still want to try that wa saw to see if it helps. The great thing about clusters Is your in tune with your body and universe more than others. You will make the best of good days and bad days still don't seem as bad unless there is a cluster. Thanks for sharing your journey and I look forward in hopes that what you are doing is successful. Either way I'm sure it helps with health and that's the goal!
Can you update us on the last couple of years with these? If they're anything like mine, yours might have skipped the Fall cluster, and hit double hard the following Spring. Hope you're okay, and good karma sent your way for having the confidence to try to explain these to people. Words are hard to use to articulate to others from what I've seen.
Been doing experiment on my body, i started weightlifting for almost 15 months with high animal protein diet and the attack never came up, but recently i took a rest for only two weeks and guess what? The attack comes again. So yeah workout does really help
Triggers for my claster headache are, *Too much sun expossure. * stress. * screen expossure. * head and neck possision when sleeping. * to much use of Smart phone * eating dark chocolate * not drinking enough water * drinking alchohol * smocking *sleep late
What does it mean when headsches change sides. It will be on the top right.... then another day on the top.left then another day in th3 back of my head??
Crazy bc I describe my headaches the same way as you. I always tell people it’s a head freeze X10 that doesn’t go away for hours. So I was like your my twin. I’m thinking of doing mushrooms but I am afraid they will stop working. I’m going to reach out to you.
Mine didn't come in 2020 either. Just started a new cycle beginning of July. I've been suffering for over 10 years now. I hope more research can be done soon. Have yours stayed away as well?
I have what I call cluster migraines, I have 3-4 pain flares per day that are migraine like and light hurts my eyes all the time, if LSD doesn't work it's going to be GGs for me
I get headaches when I leave my house I don't know why ...it's heavy pressure around my eye consistent and my eyes get dark and teary more and more ...anybody relate?
@@JrellNY yeah it's bareble but it's always there like around my eyes when it kicks in my eye socket get dark and I don't even have sinus infection now it's very uncomfortable..it's 3 year I'm isolated can't enjoy anything
I just commented on your last video saying you’ve lost the curve in your neck and using that tool and laying on it brings back the natural curve in your neck… crazy. Like I said, go see Dr. Hauser in Ft Myers, he will help keep your neck in that position. Prolotherapy and curve correction
Hii everyone, i am 31 an suffering from cluster headache problem. Trying to find ways to reduce the intensity or reduce the time period of the same. So share remedies if something works Thanks
I have a theory on cluster headaches. They are caused by an electrical imbalance at the brain and spinal cord. Emphasis on electrical. And they occur at about the same time every year. Varies with each person. Since we all live in harmony with the energies around us and with our planet, I believe that these electrical imbalances is sufferers being out of tune or just slow to adapt to certain changes. Less than 1% of the human population suffer with these attacks. Does that make us rebelious to change or unique?
@@MorettiPyrotechnicsLLC The reason for your Trigeminal Neuralgia might be different. Thank you for your respectful reply. Some people express themselves in such an unenlightened manner!
Hi Jackie, awesome update, I'm very happy for you that they've stopped *knocks on wood before finishing typing this* I got my first cluster headache when I was 26. For the next 12 years, I got two or three cluster periods per year. When I was 38, they transitioned to chronic, with varying periods of remission. I'm 55 now and get at least two, often three cluster attacks every day. Each one lasts about three hours. My last pain-free day was February 6, 2006. I don't remember what a day without pain is like anymore. I pray you remain cluster free for the rest of your life. Thank you for sharing, I'll look into the things you mentioned. Take care and be well!
Have you tried red bull? It really helps a lot
Have you tried psilocybin? May God make it easier for you as you are truly a warrior for living with this
I have this for 6 years now. It all started when i turned 20 years old and i'm 26 now.
When it first started at 20 years old it started with a burn on my left eye, a teary eye and my nose full of snot (but i was able to handle this because it wasn't that bad at this point yet and knowing it would stop after like 20-30 minutes kept me positive in a way that i knew i would be pain free again after that, i mean really when the cluster attack left i just instantly felt healthy again like a normal person would.
So the first couple years i just did my thing i still went to college got my degree and went with a smile to my work.
Untill this one time - at the moment 1 year ago i felt this attack upcoming during my shift and that is where it really scared me.. i wasn't able to do my job, i needed 30 minutes to seperate me from my colleagues and the people i was suppose to help because the pain you feel or i felt at that point.. i wanted no one around me, all i wanted was the pain to go away while being left alone so i was able to focus myself only on that because lets be honest with a cluster attack ur not doing anything at all (head hurts, teeth hurts, brain hurts, eye hurts, and overall the intense feeling of the burn is just to much to handle with people around you.
Back to the main story.. at the moment i am at a point where i dropped out of college due this insane pain it just wasn't doable anymore.. i've stopped working even tho i really wanna work again cuz there is nothing more depressing than knowing ur not leaving ur house again, i'm not going to friends because i have this constant feeling of my eye burning a lot and for me thats a indicator that later the day the real attack will occure.
9 days ago i've had my first 10 hour cluster headache from 8PM till 6AM and that is where i decided to quit smoking weed and indeed drink more water like you are doing aswell.
My body and just me in general i'm just so drained so exhausted at that point after all those hours of the non-stop burn and wanting to bash my head in to a wall, that after like 8 hours when i was this drained and felt really ill for a second and needed to throw up (vommit) and straight after that the cluster attack came back as soon as i was done throwing up, and there you are sitting on the floor drained, bathing in sweat, crying it out because of the pain.
My medication doesn't work, Verapamil doesn't work, Sumatriptan doesn't work, a TENS device that is suppose to move or ease the pain doesn't work for me.
And even tho i keep taking my meds still today and even now i still feel my eye burning and like you have aswell when i go to sleep 2 hours later it wakes me up and the party starts of wanting to die.
For me it was normall at some point to have it once a week for at max 30 minutes to 3 hours. But the last 9 days it never went away the constant feeling of burning and now even during the day the cluster attack just kicks in out of nothing.
Now my doc wants me to quit smoking in general because in my country they don't provide oxygen therapy if you do smoke, and i have stopped smoking weed for 8 days now which was my only hold in calming my mind and head down even tho it didn't ease the pain.
And even tho this stuff hurts like a $#&*!@$, i will always try to stay positive in a way because i'm not ready yet to leave everyone behind and give up.
Will it ever be easy i don't think so. I just hope for a day where they do find something that will help us people with cluster attacks so we can live our lives.
-
Sorry for the weird English in most phrases its not my native language.
I hope you are still doing oke after 2 years of this video being made and hopefully 1 day one of us comes with a solution for all of this!
Stay strong
how are you man
When the oxygen doesn't work on your cluster headaches, put the back of your head and lower neck
under cold water in the shower. You can stand in there or just lean in.
It might take up to ten minutes. Get it as cold as you can stand it.
Colder the better. Cluster headaches come from a nerve problem starting
at the back of the neck. You can also see a neurologist and get Botox
shot to deaden that nerve. I went to a chiropractor and it worked for the first year.
You can get oxygen from a local welding supply. Its the same stuff as
the medical. They don't ask question and I don't tell. I get a 4 foot
tank filled for about $28 a fill. I bought the tank years ago. You can
also rent a tank. You can get the metering valve that threads on to the
tank online, as well as the mask. Just do a search for the two
different Items. I get the male oxygen tank and then use the female flow control/regulator. The oxygen tanks come with either male or female fitting on it. The regular welding tanks have the male outlet.
Key words will be oxygen tank flow regulator. Cluster
headache oxygen mask.
Thank you❤, I have been fighting with my insurance to get oxygen for my ch
@@vanessalutz9740 They have smaller tanks but then one is going back to refill sooner. I use a light truck to pick up the oxygen. A mini van might work. They just swap out tanks so one doesn't have to wait. One can just say they are using the oxygen for Oxy/acetylene torch. Or oxy/propane. But one doesn't have to say anything. Just ask about tank sizes or look online what they offer.
@@vanessalutz9740 It is far cheaper just buying it yourself. When I went the insurance route, I was paying $135+ a month co-pay. If I get it myself twice a year, it is like $60 for the YEAR. But I bought my tank from a private party long time ago for $100. If you buy the tank from a dealer they are over $400. So some just rent. You can goog map your area for welding gas dealers
Thank you for sharing!
I am a cluster patient Like you .Sending love for the healing of all my brothers and sisters
Just saw your other video and what a blessing you have been free from clusters for that long!
I'm praying mine go away soon, I just entered a cluster cycle and the summer cycles for me are particularly rough.
Be well, and thank you for that video you posted, I think its extremely helpful for us who deal with this to at least have some sort of community that understands.
Hi Michael. Ask the doctor for beta-blockers to regulate your heartbeat and pressure. Also, a Triptan (Zolmitriptan) for when the attacks start. One 2.5mg zolmitriptan pill nips my 3 daily cluster headaches alsmost in the bud. I rarely have to go through the whole headache since they started 8 years ago. Reduce your sugar intake and drink isotonic drinks to replace the minerals in your body. Good luck.
Shrooms literally stopped my headaches over nearly 2.5 years. Came back when I didn’t do any shrooms for 6 months straight. Take what you will from that… Goodluck I wish you the best.
I am 59 and I have been a CHW (Cluster Headache Warrior) for about 20 years now, battling about 3 attack cycles per year. I have tried just about everything there is out there, medicinal wise outside of having a transistor implanted in my head. If you are a CHW, I don’t have to tell you about the impending fear of a cluster attack that you live with daily during your cycle because it is not a question of if it’s coming because it is, every damn day and every damn night in my case anyway. So cut to the chase the other day I was watching Cluster Headache videos which I do every time I am in a cycle, and I watched a video that I will put the link below for that I have to say it was a game changer for me. I was having an attack and was already in the usual hot poker through the skull and eye along with the electrical pulse shocks mode and started frantically searching for the acupressure sweet spot described in the video and eventually found it. I applied sustained pressure on that side of my neck, the side that my headache always occurs on (the right side) and within a minute or so the shooting pain in my head and eye stopped!! Completely!!! I have no idea what kind of sorcery it is but WTF!!! It worked!!! I kept applying pressure for about 10 mins (just in case) alternating fingers and hands to keep the pressure on the spot and I have to say it really worked for me. What used to take hours to dissipate literally took a few minutes and I got all teary eyed that after all these years the power to stop the attacks was literally in my fingertips. During 6 more attacks over the last three days, I have applied the same acupressure method and as of now I am 6 for 6 completely knocking headache out within minutes with no Imitrex or Acetaminophen taken in those 3 days. I know there is no cure for this Cluster Headache Syndrome, but I have found what my son called the "Cheat Code" for stopping my attacks and I will keep doing this throughout this cycle and future cycles. Hopefully this works for others out there as well and yes, I’m a real F-ing person!!! Goodluck and keep up the fight!
ruclips.net/video/Qw7nLjzHxZo/видео.html
Glad to hear! ❤ Looking at the scientific literature, it seems much more likely that it was actually the mushrooms and LSD that eventually aborted the CHs, even if they had a delayed effect. More information on ClusterBuster's website. Thanks for sharing!
YOU are the coolest …i really didnt know about this hell on Earth and felt a Bit ashamed because Too many are suffering … i thought about this
all the week since i saw your other video and Try to do some research, couldnt do anyting else:) everybody Should know! … wish you all the best ♥️
Glad I'm not alone in this
Just came across this video and the previous one of you after a cluster headache. Thank you for posting I've been suffering for about 20 years now. I just recently came across mushrooms myself but did microdosing which seemed to help me. They didn't completely stop them but the pain was much more bearable. Like you said in your previous video, it's hard to explain it to people because the response you get is oh yes I understand, I get migraines which as you know are not the same, so thanks again for posting these videos
That video brought me to your channel. Good to see you smile. I've been having this kind of pain . I thought it was my teeth but after going to the dentist and getting antibiotics and codeine , and getting all drugged up the pain is still there. I haven't been diagnosed with this by a doctor but I think this is what I'm going through. Sometimes it starts with a burning sensation in my nasal . Stay positive . God bless!!
I'm fresh in a cycle after 3 years. I'm late I usually start a cycle right at time change. Started a week ago. I wish I could actually fckn sleep. Everytime I do I wake up in a cycle. Fml
Hi Jackie, thanks for all the tips. Been trying most of the techniques from your previous video but I will try out some of the tips you mentioned in this video. Thanks for the post. 😊
hey jackie!!! good to see you!!! I am going to make a cluster update video as weLl! took a new medicine and cant wait to tell people about it!
So about 50 days ago, for the first time in my life, I had intense headache/pain around my right eye every day at around 1-3 pm along with sensitivity to light. I visited two Neurologists who suggested it's most likely cluster headache and prescribed medication for Cluster. It had been 5 days since this headache had started.
I was searching all day long about CH on youtube and the web. The more I searched the worse it appeared to be. I had this realization that how out of nowhere my life just became paralyzed. I came to know about how a significant amount of people suffer from this brutal headache and how I had never ever heard of it. Only at this time was I able to understand the feeling of living a life with a disability, which many people around us do. Even migraines greatly disable day-to-day life. At this point, the only thing I wanted more than anything was for somehow this to be something other than CH, something temporary. Meanwhile, I knew that I might have to live with it for the rest of my life.
That's when I stumbled upon your previous video on CH. I greatly appreciate your strength. Stay strong and keep living the life to fullest.
In the coming days(after 5 days) the headache started to fade significantly every day, and within 4 days it was completely gone and hasn't come back since. I have had some shadows once or twice after that though, which makes me wonder if it really was CH. I never started the medication. This was no doubt one of the most humbling experiences of my life.
You could be episodic.
You survived. But it will come back. Mine skip a year or two but they will return. I hope im wrong but after 23 years i have alot of experience. Im 57 y/o male. Just get thru it. They win the battles but we will win the war.
Hi Jackie!
I’m with you on this
I suffer from CH since I was 19 and it’s been already 26 years since my 1st
I’m currently on my cluster period and mine never lasted less than 1 month, and the longer was just under 5 months.
Usually they take anything between 2h30 to up to 7hours
If you ever want to chat or even just need someone to be there with you through the struggle, let me know!
You can look for me at tikas.o on Instagram
I came to this video cuz of your prior video of cluster headaches. I had one this morning. And I commented on that old video if you don’t mind checking it out please.
Its funny cuz I was the same as you last year, when you said that you would get like shadows of it reminders of what it feels like, like them saying “hey I’m still here I haven’t gone away” I had that last fall cuz I would get them every spring and fall and I didn’t in fall. But yup I got it this morning late spring… And today is the 14th day.
But this is what I had commented on that video 👇
--------------------------
I feel you!
My viewpoint on it and how it affects me
When:
Im 30 years old. I get them 2 times a year every single year for about 8 years now. Spring and Fall. Lasts 1 hour to 1 hour and 30 minutes. And a few times a day. And can last up to 2 weeks.
Triggers:
My triggers are stuffy nose, and waking up from sleep.
Symptoms:
Same exact symptoms, burning around the eye and cheeks, up to my temple, down to my upper jaw and my scalp will fill so sensitive to the touch as if my scalp is jello. I pace back and forth and can’t lay back down. All on my left side and my eye would tear up and my nostril will burn and feel like I’m sniffing sand.
Prevention:
I try not to blow my nose during the weeks I’m dealing with this, blowing my nose will swell up the nostrils, and if I’m runny, I’ll just let it run. When I saw you crying and sniffing, I felt the pain just watching I was saying to myself “stop stop stop” lol cuz I know this only makes it worse the next morning cuz of the swelling.
During the attack, I have found sitting down staring at something not moving my head or eyes helps a lot. It’s hard to do this while in pain because this pain causes you to move and shake uncontrollably. I feel moving more and touching my face, or breathing in through my nose hurts worse, I purposely let my nose run…. But staring and focusing on an object and not moving has helped alot. I take Excedrin Migraine pills to help, and I think it does. Years prior I would get them 5-6 times a day. Since I’ve taken Excedrin I get them once a day. Before it was ibuprofen and that’s what caused me to have them 5-6 times a day. But you have to have food in your stomach to take Excedrin, and often I get them in the MORNINGS ALSO and it will wake me up, i wouldn’t want to go to sleep at night. And when it wakes me I will know that in about 2-3 minutes I’m going to be in excruciating pain, so I don’t have time to eat before taking the pills, I would take them and rather suffer the pain of the cluster headache than having to feel an upset stomach.
How I emotionally feel:
I will sometimes cry and want my life to end but never attempted to end my life. I have banged my head purposely though… Minutes feel like hours. This is a pain I don’t wish even on my worst enemy.
i just recently got them and i am only 20 . worst pain of my life and i cant really sleep and pain meds dont work got a shot of toradol for severe pain
Happy for you. Look at the Wim Hof method God bless
Emgality has helped my migraines and cluster headaches. ❤
Yes ,thank you so much for making the last video truly, , i thought nobody felt like me when the mushroom didnt work, its a space of 5-6 days in between doses or yes or it doesnt break the cycle , its torture , im not quite sure how other people survive from with this . Me i have amazing friends , its a miracle , but , i dont know how to get my cluster disease to go into remission , i take mushroom frequently every 5-6 days , but i get flare ups every week , i have chronic cluster headaches , the disease used to be episodic but after taking neuro meds (toprimate) i got bad side effects and stopped taking it but now its chronic , like every week to 5 days i get a flare up. Or a full episode , my stomach is pretty weak , which i know is connected to the brain , but i have had chronic clusters for 3 years now im 44 years old male , I started with them when i was 27. I cant seem to figure out how to get my body to work normally , any ideas? Or advice ? Im in a foreign country because i knew that in mexico i can get mushrooms without problems from the police. But i got this shit real bad but maybe it will go away like your form of the disease
Thank you 🙏
Hi, I really enjoyed the other video explaining cluster headaches and this was a great update. Glad you are doing well!
However, I have had them over 8 years and you can go long periods of time without having them. My neurologist calls them cluster breaks. I remember a brief time I almost went 2 years without one, slight shadow yes, but no cluster. I hope this is not the case for you and hope everything you are doing is working! I still want to try that wa saw to see if it helps.
The great thing about clusters Is your in tune with your body and universe more than others. You will make the best of good days and bad days still don't seem as bad unless there is a cluster.
Thanks for sharing your journey and I look forward in hopes that what you are doing is successful. Either way I'm sure it helps with health and that's the goal!
Can you update us on the last couple of years with these? If they're anything like mine, yours might have skipped the Fall cluster, and hit double hard the following Spring. Hope you're okay, and good karma sent your way for having the confidence to try to explain these to people. Words are hard to use to articulate to others from what I've seen.
Been doing experiment on my body, i started weightlifting for almost 15 months with high animal protein diet and the attack never came up, but recently i took a rest for only two weeks and guess what? The attack comes again. So yeah workout does really help
Triggers for my claster headache are,
*Too much sun expossure.
* stress.
* screen expossure.
* head and neck possision when sleeping.
* to much use of Smart phone
* eating dark chocolate
* not drinking enough water
* drinking alchohol
* smocking
*sleep late
What does it mean when headsches change sides. It will be on the top right.... then another day on the top.left then another day in th3 back of my head??
Crazy bc I describe my headaches the same way as you. I always tell people it’s a head freeze X10 that doesn’t go away for hours. So I was like your my twin. I’m thinking of doing mushrooms but I am afraid they will stop working. I’m going to reach out to you.
Have they come back , it’s been 3 years
Mine didn't come in 2020 either. Just started a new cycle beginning of July. I've been suffering for over 10 years now. I hope more research can be done soon. Have yours stayed away as well?
I’m sorry the previous video before they stopped
Just curious how you've been doing the past 2 years since this videos has been posted?
I have what I call cluster migraines, I have 3-4 pain flares per day that are migraine like and light hurts my eyes all the time, if LSD doesn't work it's going to be GGs for me
I get headaches when I leave my house I don't know why ...it's heavy pressure around my eye consistent and my eyes get dark and teary more and more ...anybody relate?
probably tension headaches, clusters come in groups or multiple times a day or wake u up from your sleep in excruciating pain
@@JrellNY yeah it's bareble but it's always there like around my eyes when it kicks in my eye socket get dark and I don't even have sinus infection now it's very uncomfortable..it's 3 year I'm isolated can't enjoy anything
How long was it before you made this video that you tried the mushrooms and the LSD
My current bf doesn't believe me that my eye hurts he says that I'm making it up 😭
I just commented on your last video saying you’ve lost the curve in your neck and using that tool and laying on it brings back the natural curve in your neck… crazy. Like I said, go see Dr. Hauser in Ft Myers, he will help keep your neck in that position. Prolotherapy and curve correction
Hii everyone, i am 31 an suffering from cluster headache problem. Trying to find ways to reduce the intensity or reduce the time period of the same. So share remedies if something works
Thanks
💪🏾💪🏾💪🏾 good vlog 💪🏾💪🏾💪🏾
I have a theory on cluster headaches. They are caused by an electrical imbalance at the brain and spinal cord. Emphasis on electrical. And they occur at about the same time every year. Varies with each person. Since we all live in harmony with the energies around us and with our planet, I believe that these electrical imbalances is sufferers being out of tune or just slow to adapt to certain changes. Less than 1% of the human population suffer with these attacks. Does that make us rebelious to change or unique?
How to treat Cluster Headache.Pain Killers don't work.
Dam pain killers Don't work
Empty your sinuses
It's fluid in the chest cavity being forced up through the neck and around the head in my case. Ask a doctor how it can be neutralized.
Your crazy man. No it's not. I seen the top neurologist in the US and it has to do with your hypothalamus and trigeminal nerve overloaded.
@@MorettiPyrotechnicsLLC The reason for your Trigeminal Neuralgia might be different. Thank you for your respectful reply. Some people express themselves in such an unenlightened manner!
@@MorettiPyrotechnicsLLC Overloaded....by what?
Meet a good chiropractor he may help you to get rid of cluster headache.
No. While chiropractic work may help it doesn’t “get rid” of a cluster headache.
You can get relief from clusters but you can't get rid !!!!
Jackie, you DO NOT have to take a dose enough to go "tripping" to have that effect to help with CH. Please do some research. 🙂
"This is a very serious thing" Yes, it is. I'm a CH sufferer &, it is VERY serious. 😕