Empty sella and ACTH microadenoma, GHD and prolactin deficiency with a right eye involuntary twitching that’s getting more and more frequent! Began getting sick in 2004, self diagnosed in 2019, and was right! Officially diagnosed finally. Cortisol at 2300 8-10x normal, across saliva blood and urine. I was going to Drs, and yes, Endos for YEARS! Since 2005!!!!! Terrifying! Had I not found Cushings, I still would have no idea. Thank you for making these videos! Let’s educate the public on endogenous Cushings. Why? It’s not nearly as rare as reported or diagnosed.
@@Savemyname7_ in fact, in pediatric cases, growth is almost always stunted due to this. In an adult it doesn’t effect growth but does effect energy and sleep etc
I maybe having a Sx but not sure from what exactly and wanting more information. So if you know whether UTSW is a good place to get a 2nd Dx for empty sella? I am having intercrainal pressure and very bad visual acuity ( -17) tilted optic disks and thin retinas... etc. I see Neuro ophthalmologist here in town but wonder if you have a suggestion where to turn.
How often are chronic headaches from ESS? My bp is usually good 130s/70s on medication, but when i get bad headaches my bp can be 180/120. Can i have IICP when my bp is normal? I have neurogenic diabetes insipidus that was diagnosed from a 24hr urine test, 10litres of output. About to get some hormone tests but my main concern is the chronic headaches and need narcotic analgesics daily. 50yo male. Cheers.
I have been diagnosed with this i loose my balance i get bad headaches and lately my eyesight has changed if i laugh i have to stop suddenly due to pain
Omg I get the same pain if I laugh too, absolute instantaneous crushing pain. Apparently my MRI/CT scan showed a partial empty sella as well but my neurologist said it's nothing apparently
So, THAT'S why my neuro surgeon still has me getting annual MRI's since my 2018 transphenoid macro-adenoma resection?? I had invasion of the sella that was fat-packed, but he didn't remove all of the bone. After Jan's report of no growth, I asked if a still had to do them yearly; he "upgraded" me to q18mos 😅
Can an empty sella cause monocular transient vision loss? I'm having trasient, intermittent monocular vision loss and was told I have bilateral papilledema. The CT showed an empty sella, could this empty sella be the cause of the papilledema + monocular transient vision loss or does it always produce bitemporal hemianopsia?
@@live12617 I just found out I have empty sella when I got a spine MRI. I get a popping grinding cracking sound kind of like the fizzing when you open a can. I wonder if this is due to empty Sella.
I‘ve got an empty sella because of IIH. I had a papilledema but since 3 years it‘s gone. But I still have severe visual disturbances. The doctors just say „well, your optic nerve is fine.“ Can I get blind because of the empty sella without having a papilledema? 😨
Well that’s what I’m dealing with right now so who knows . I’ve got two weeks of paid leave left but I am still having wicked vision issues and the optic nerve looks ok
I was diagnosed with this syndrome about 3 months ago mine is secondary from micro adenoma who had vanished Waht can I do for the headaches it's affecting my life I am always on my. Bed I can't bare the pain pleas any solution or treatment
I think you confused the tumor comment. ESS can be affected by BP, but mostly trauma. So if a pituitary tumor is removed, ESS can happen. It doesn’t mean you have a tumor.
I have empty sella as a Birth defect. Because of it my hormones are totally Messed up but I have MRI every 2 years and so far so good it seems like a Birth defect.
@Neha Prajapati well I'm a Medicine specialist....you should consult an ophthalmologist ....these conditions are treatable or sometimes does not need any treatment at all
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Empty sella and ACTH microadenoma, GHD and prolactin deficiency with a right eye involuntary twitching that’s getting more and more frequent!
Began getting sick in 2004, self diagnosed in 2019, and was right! Officially diagnosed finally. Cortisol at 2300 8-10x normal, across saliva blood and urine. I was going to Drs, and yes, Endos for YEARS! Since 2005!!!!! Terrifying! Had I not found Cushings, I still would have no idea. Thank you for making these videos!
Let’s educate the public on endogenous Cushings. Why? It’s not nearly as rare as reported or diagnosed.
Hello
You had both cushing and growth hormone deficiency ?
@@Savemyname7_ yes, many Cushings patients have deficient growth hormone due to the tumors.
@@Savemyname7_ in fact, in pediatric cases, growth is almost always stunted due to this. In an adult it doesn’t effect growth but does effect energy and sleep etc
Thank you for saying this. Agreed, it is not as rare as the books say.
I maybe having a Sx but not sure from what exactly and wanting more information. So if you know whether UTSW is a good place to get a 2nd Dx for empty sella? I am having intercrainal pressure and very bad visual acuity ( -17) tilted optic disks and thin retinas... etc. I see Neuro ophthalmologist here in town but wonder if you have a suggestion where to turn.
And migraines 70 out of 90 days in the migraine clinic with Botox and rescue meds daily
How often are chronic headaches from ESS? My bp is usually good 130s/70s on medication, but when i get bad headaches my bp can be 180/120. Can i have IICP when my bp is normal? I have neurogenic diabetes insipidus that was diagnosed from a 24hr urine test, 10litres of output. About to get some hormone tests but my main concern is the chronic headaches and need narcotic analgesics daily. 50yo male.
Cheers.
My bp is actually a big low and I’ve got IIH AND ESS
I have been diagnosed with this i loose my balance i get bad headaches and lately my eyesight has changed if i laugh i have to stop suddenly due to pain
I have same balance problem. What can I do now 😢?
@@lxuryline223 Do yoga
I have enlarged partially gland what is mean
Omg I get the same pain if I laugh too, absolute instantaneous crushing pain. Apparently my MRI/CT scan showed a partial empty sella as well but my neurologist said it's nothing apparently
Thank u Doc, that is helpful... just had empty sella Dx
I have empty sella and my dr told
me to get tested for papilledema. i have been feeling weird for the past 4 years.
Do any pituitary issues run in families?
So, THAT'S why my neuro surgeon still has me getting annual MRI's since my 2018 transphenoid macro-adenoma resection?? I had invasion of the sella that was fat-packed, but he didn't remove all of the bone. After Jan's report of no growth, I asked if a still had to do them yearly; he "upgraded" me to q18mos 😅
Can an empty sella cause monocular transient vision loss? I'm having trasient, intermittent monocular vision loss and was told I have bilateral papilledema. The CT showed an empty sella, could this empty sella be the cause of the papilledema + monocular transient vision loss or does it always produce bitemporal hemianopsia?
I’d say yes , I’m
Recently Diagnosed and deal with the same
I have empty sella the kind of the 2nd discription. Can it be cured? It's affecting my hormones too.
Hello are u okay now. I have partial empty sella. I have severe neck pain with grinding popping and crunching sound
@@live12617 this is another thing I have with my PES too
@@live12617 I just found out I have empty sella when I got a spine MRI. I get a popping grinding cracking sound kind of like the fizzing when you open a can. I wonder if this is due to empty Sella.
Thank you so much for your video.
I‘ve got an empty sella because of IIH. I had a papilledema but since 3 years it‘s gone. But I still have severe visual disturbances. The doctors just say „well, your optic nerve is fine.“
Can I get blind because of the empty sella without having a papilledema? 😨
No. empty sella's are usually of little consequence, don't worry
Well that’s what I’m dealing with right now so who knows . I’ve got two weeks of paid leave left but I am still having wicked vision issues and the optic nerve looks ok
I was diagnosed with this syndrome about 3 months ago mine is secondary from micro adenoma who had vanished Waht can I do for the headaches it's affecting my life I am always on my. Bed I can't bare the pain pleas any solution or treatment
Look up Hijama. Get it done on your head. It should help.
How is confirmed in ur case that is secondary? U knew that u had adenoma specific and cured it or based on symptoms of spontaneous adenoma regression?
I'm more confused now. I was just diagnosed with empty sella but my Dr never said the word tumor. Now I'm nervous.
Don't be. You might need further examination to determine the cause but virtually all causes of empty sella are benign and easily treatable.
@@mxsan22 how do you treat it?
I think you confused the tumor comment. ESS can be affected by BP, but mostly trauma. So if a pituitary tumor is removed, ESS can happen. It doesn’t mean you have a tumor.
I have empty sella as a Birth defect. Because of it my hormones are totally Messed up but I have MRI every 2 years and so far so good it seems like a Birth defect.
@@SarcasmIsMySecondNamesince when do have it ? I just get diagnosed ,mine 3mm , is it progressive, or it can be reversible
Sir, could you please give a detailed lecture on Sympathetic ophthalmia... Respect from India 🙏
@Neha Prajapati well I'm a Medicine specialist....you should consult an ophthalmologist ....these conditions are treatable or sometimes does not need any treatment at all
@@DocDexterops please sir tell me about this diseases my brother was diagnoised he have headache and eye hut
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