Hey bro, just wanted to let you know how helpful these vids have been. I've been having symptoms for about a year, which I now think are Psoriatic Arthritis. Thankfully everything has been mild so far - mild scalp psoriasis, two on and off again swollen fingers and some mild pain in others, one swollen toe, and what I'm guessing is mild enthesitis in an elbow. I pray to God it stays that way. Got an appointment with a rheumatologist in about 3 weeks. Looking at the internet with this has been wild, sometimes it's hard not to get anxiety over it. It's amazing to see someone going through something similar (although I think your symptoms sounded more severe than mine) and doing well on the other side. Keep it up please!
Thanks for the comment, it means a lot and I’m pleased to hear you’re going to see a rheumatologist because they should be able to move you forward in the best way positive. Stay positive with it all and regardless you’ll learn something along the journey. Stay well bro
I’m so happy to hear you are getting relief from your psoriatic arthritis. I have the same condition. I was prescribed methotrexate, which they had to stop after six months because it was damaging my liver. They then prescribed arava which gave me the most awful pains in my stomach so I stopped taking it. They now want to prescribe yuflyma which is newer version of humira. I am so nervous at the thought of taking it. Your videos give me hope, enjoy your travels. Keep safe and well.😎
Just watched this second vid and my symptoms are so similar other than the feet part. My scalp has been bad for years (spots, itching flaking) but managed with shampoo just about. But over the last 4-6 months my fingers have been in severe pain. Eventually when waking I would have to break my index finger. I was also getting shoulder, lower back, jaw, knee and neck pain. I’ve had X-rays and ultrasound and I have cysts, spurs and joint damage. First scan showed fluid too. I went away on holiday to france for 3 weeks and took 2 weeks of 15mg of Prednisone from my GP which calmed everything down including my scalp. But then visiting a specialist in Manchester she has put it down to osteoarthritis because of the lack of swelling. and that she didn’t have the previous ultrasound showing fluid. I’m trying to get help as I know this is not Osteoarthritis as it’s come on too fast. The aggressive progression is terrifying especially having been fit and healthy. At 46 i’m not young but this has been a total shock. I’ve been to see my GP again last week and told him my concerns so we are waiting for the letter from the specialist. All the time suffering with now grinding sounds in my thumbs and neck. A massive thanks for sharing. My youtube ahoyleisure is all about campervans but I may share what I’m going through as the early diagnosis to save joints is crucial. A massive thanks for taking the time to share ❤
Hi Mark, thanks for the comment and I'm glad you got some value form it. I'm sorry to hear about your situation but this is what I would do if I were you if you're concerned and your self diagnosis is correct. I would pay to see a private rheumatologist. In London it cost me £250 for the consultation and I wish I'd done it sooner as I was on the waiting list on the NHS for ages (but seeing one privately is only beneficial if you're willing to take the medication). After I had my consultation privately they prescribed me methotrexate tablets. This is the first step in the ladder of prescriptions recommended usually by rheumatologists on the NHS to my understanding. Now I was lucky that after the private consultation I saw the NHS about 4 weeks later so I didn't have to pay for another private follow up so you may need to work out what this would cost financially but I just wanted to get on the medication ASAP. This is just my opinion of course but if you can afford it that's what I would do as it will really speed up the process and also your medication ladder once you get seen by the NHS assuming you have got psoriatic arthritis. It may also put your mind at ease and give you a clear direction. As you said your situation is getting worse quite quickly I think that would be the best thing. Of course take my advice at your won peril but if you're really concerned that's what I would do. I wish you well mate and if you want to reach out to me feel free stay well
@@liftingoutofthelows1341 That’s great. Appreciate it. Im lucky in that my GP and the reception at my GP is looking out for me. I’m going to see what the response is early this week from the rheumatologist. If it’s slow and or contradicts the early ultrasound I’m going to pay private. Thanks for the offer of reaching out too. 🤙
That's great news ! Very happy for you🎉 Will ask my rheumatologist abou it at my next appointment. Just wondering if you have tried medical marijuana at all? I've tried the cbd oil in drop form but not successful! So I'm about to try the drops with thc oil which I hope will help😮 will let you know if they do as may be helpful to someone else! Cheers from Oz 🦘
Video gives me hope. Ty
Stay hopeful. I wish you well!
Hey bro, just wanted to let you know how helpful these vids have been. I've been having symptoms for about a year, which I now think are Psoriatic Arthritis. Thankfully everything has been mild so far - mild scalp psoriasis, two on and off again swollen fingers and some mild pain in others, one swollen toe, and what I'm guessing is mild enthesitis in an elbow. I pray to God it stays that way. Got an appointment with a rheumatologist in about 3 weeks. Looking at the internet with this has been wild, sometimes it's hard not to get anxiety over it. It's amazing to see someone going through something similar (although I think your symptoms sounded more severe than mine) and doing well on the other side. Keep it up please!
Thanks for the comment, it means a lot and I’m pleased to hear you’re going to see a rheumatologist because they should be able to move you forward in the best way positive. Stay positive with it all and regardless you’ll learn something along the journey. Stay well bro
I’m so happy to hear you are getting relief from your psoriatic arthritis. I have the same condition. I was prescribed methotrexate, which they had to stop after six months because it was damaging my liver. They then prescribed arava which gave me the most awful pains in my stomach so I stopped taking it. They now want to prescribe yuflyma which is newer version of humira. I am so nervous at the thought of taking it. Your videos give me hope, enjoy your travels. Keep safe and well.😎
Stay positive with it all, i know it's hard. Wishing you well with it al!
Just watched this second vid and my symptoms are so similar other than the feet part. My scalp has been bad for years (spots, itching flaking) but managed with shampoo just about. But over the last 4-6 months my fingers have been in severe pain. Eventually when waking I would have to break my index finger. I was also getting shoulder, lower back, jaw, knee and neck pain. I’ve had X-rays and ultrasound and I have cysts, spurs and joint damage. First scan showed fluid too. I went away on holiday to france for 3 weeks and took 2 weeks of 15mg of Prednisone from my GP which calmed everything down including my scalp. But then visiting a specialist in Manchester she has put it down to osteoarthritis because of the lack of swelling. and that she didn’t have the previous ultrasound showing fluid. I’m trying to get help as I know this is not Osteoarthritis as it’s come on too fast. The aggressive progression is terrifying especially having been fit and healthy. At 46 i’m not young but this has been a total shock. I’ve been to see my GP again last week and told him my concerns so we are waiting for the letter from the specialist. All the time suffering with now grinding sounds in my thumbs and neck. A massive thanks for sharing. My youtube ahoyleisure is all about campervans but I may share what I’m going through as the early diagnosis to save joints is crucial. A massive thanks for taking the time to share ❤
Hi Mark, thanks for the comment and I'm glad you got some value form it. I'm sorry to hear about your situation but this is what I would do if I were you if you're concerned and your self diagnosis is correct.
I would pay to see a private rheumatologist. In London it cost me £250 for the consultation and I wish I'd done it sooner as I was on the waiting list on the NHS for ages (but seeing one privately is only beneficial if you're willing to take the medication). After I had my consultation privately they prescribed me methotrexate tablets. This is the first step in the ladder of prescriptions recommended usually by rheumatologists on the NHS to my understanding.
Now I was lucky that after the private consultation I saw the NHS about 4 weeks later so I didn't have to pay for another private follow up so you may need to work out what this would cost financially but I just wanted to get on the medication ASAP.
This is just my opinion of course but if you can afford it that's what I would do as it will really speed up the process and also your medication ladder once you get seen by the NHS assuming you have got psoriatic arthritis. It may also put your mind at ease and give you a clear direction. As you said your situation is getting worse quite quickly I think that would be the best thing.
Of course take my advice at your won peril but if you're really concerned that's what I would do.
I wish you well mate and if you want to reach out to me feel free
stay well
@@liftingoutofthelows1341 That’s great. Appreciate it. Im lucky in that my GP and the reception at my GP is looking out for me. I’m going to see what the response is early this week from the rheumatologist. If it’s slow and or contradicts the early ultrasound I’m going to pay private.
Thanks for the offer of reaching out too. 🤙
I love and hate it at the same time.. look into the benefits of eating coconut oil.. it's helping so much.
Why do you hate it?
Are you still taking methotrexate aswell?
Yea still take 20mg weekly
That's great news ! Very happy for you🎉 Will ask my rheumatologist abou it at my next appointment. Just wondering if you have tried medical marijuana at all? I've tried the cbd oil in drop form but not successful! So I'm about to try the drops with thc oil which I hope will help😮 will let you know if they do as may be helpful to someone else! Cheers from Oz 🦘
I can't say I have tried them, I hope they have a positive effect!
Your psoriasis was ve ry mild. Mine is horrible and im wbaiting t o see if my insurance approves it
It was in context but my scalp was horrendous. I hope your insurance gets approved and it gets resolved. Stay well