I'm also diagnosed with scleroderma & vasculitis 5 years ago, from ana IF and ana profile, also biopsy... im treating it with : 1. daily natural anti inflamation (curcumin, turmeric, moringa all in powder form) 2. vitamin D suplement + sunbath everyday if possible 3. Bone broth to fix leaky gut 4. Yoghurt and or kimchi to enhance microbiome / probiotic on digestion 5. low impact exercise, walk at least 30 minutes per day those routine help me to have remission on scleroderma... i hope it can help others... and thank you Jesus, i'm saved 🙏
Thanks for getting in touch. We have a few articles on our website that may be of interest to you. I've posted them here www.versusarthritis.org/search?query=Scleroderma - if you need to talk, our free helpline is available too 0800 5200 520
There's nothing. Pharmaceuticals aren't very interested to invest in this horrible disease because they think there aren't many people sick with Scleroderma. 😢 We suffer in silence and with a great lack of knowledge and understanding from doctors. 😢😢 We should write ✍️ pharmaceuticals companies that we are each time more than they think and no matter how many are anyway we deserve hope and live a life without these horrible symptoms and signs. Blessings. 🙏🏼
@@lillyrocks2011agree. People live full lives today with hiv because of money invested in research previously. Can't say same for us scleroderma victims
I'm also diagnosed with scleroderma & vasculitis 5 years ago, from ana IF and ana profile, also biopsy...
im treating it with :
1. daily natural anti inflamation (curcumin, turmeric, moringa all in powder form)
2. vitamin D suplement + sunbath everyday if possible
3. Bone broth to fix leaky gut
4. Yoghurt and or kimchi to enhance microbiome / probiotic on digestion
5. low impact exercise, walk at least 30 minutes per day
those routine help me to have remission on scleroderma... i hope it can help others...
and thank you Jesus, i'm saved 🙏
thanks for share🙏
This helps
I hope better treatments can be found for Scleroderma.. it's terrible there's basically nothing.
Thanks for getting in touch. We have a few articles on our website that may be of interest to you. I've posted them here www.versusarthritis.org/search?query=Scleroderma - if you need to talk, our free helpline is available too 0800 5200 520
Some have success with various medications... methotrexate for one
@@Michael-mh4vri think it won’t progress the situation any further but it won’t treat it
Really Great !!!! Please allow me to translate this video into Thai language for Scleroderma People in Thailand.
Thank you so much.
thanks beautiful teacher and dr thanks
Does this happen with CREST?
What is this accent? Where does it come from? I don't recall hearing it before
Scottish!
My skin becoming darker .... Due to scelerderma...!! Wat shud i do.?
You can do nothing. Just apply coconut oil. What all areas are getting darker?
@@bystudy8041 shoulders and neck.
My sister is also suffering it, getting treatment from Aiims New Delhi.
You are from which city?
Apply coconut oil and there are few fairness creams. Please ask your Doc about them
It’s his face. That’s the way his face has been all his life.
my wife also suffering from scleroderma, How can I save my wife?
Sorry to hear your wife is struggling. If you would like any support or advice do get in touch: www.versusarthritis.org/get-help/ We’re here to help.
There's nothing. Pharmaceuticals aren't very interested to invest in this horrible disease because they think there aren't many people sick with Scleroderma.
😢
We suffer in silence and with a great lack of knowledge and understanding from doctors.
😢😢
We should write ✍️ pharmaceuticals companies that we are each time more than they think and no matter how many are anyway we deserve hope and live a life without these horrible symptoms and signs.
Blessings. 🙏🏼
@@lillyrocks2011agree. People live full lives today with hiv because of money invested in research previously. Can't say same for us scleroderma victims
I'm surprised that the medical prof are still calling/describing tight skin around the nose as a "beaked nose"