Natural History Studies for Drug Development Explained

This video is part of an educational series by the National Organization for Rare Disorders (NORD) and the FDA designed to equip rare disease patients, caregivers and advocates to play a driving role in drug development for their diseases at every stage of the process. A natural history patient registry is an important first step in this process that patients and patient organizations can take the lead on, with NORD's help.
Take the full education course (also available in Spanish) here and work towards your Certificate of Completion: learn.raredise...