Retinal "Migraine"

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  • Опубликовано: 16 сен 2024

Комментарии • 107

  • @usagisenpai5457
    @usagisenpai5457 Месяц назад +1

    This is literally me. Diffused vision loss, only in my right eye, and the typical migraine symptoms. 20 years of having this and the only one that pointed me to the right diagnosis is a RUclips video oh my god. THANK YOU!

  • @bridgettethacker2821
    @bridgettethacker2821 3 года назад +22

    I have this all the time. Scares the shit out of me.

    • @nebula2241
      @nebula2241 2 года назад +3

      I thought I had diabetes 💀💀

    • @applepie6559
      @applepie6559 8 месяцев назад +2

      It Scares the Hell outta me too🥺

  • @SnarlyCharly
    @SnarlyCharly Год назад +12

    I never, ever get headaches. But, I do have these ocular migraines occasionally, maybe once every couple of months. Nothing hurts at all when they happen, and there doesn't seem to be any kind of trigger behind them whatsoever, they always seem to just pop up out of the blue. It starts when I notice the tiniest bit of a blind spot right near the center of my vision. Within a couple minutes the blind spot grows, usually moving toward the left side of my vision. The spot eventually stretches away from the center of my vision and into more of a crescent shape and starts to get that flashing squiggly zigzag look, similar to what you see in people's renderings of what an ocular migraine looks like. The shape continues to grow larger for a few minutes, then will just start fading away and my vision returns to completely normal. All this usually happens in less than 20 minutes total and doesn't happen again for a long time. Doesn't worry me in the slightest.

    • @jackthomas1978
      @jackthomas1978 Год назад +3

      My symptoms exactly for last 30years

    • @cyclingtexas1670
      @cyclingtexas1670 Год назад +2

      @@jackthomas1978nyou tell me more? I’ve had these symptoms for a little over 7 years now.
      I still don’t know what causes it. But for me it starts with a blurred spot then grows to total vision loss and then resolves itself in about 10 minutes (right eye). Might happen twice a day. But episodes usually only occur once a month or so.
      Can you give some insight with your 30 years of experience?

    • @jemadamson2715
      @jemadamson2715 Год назад +3

      Ive had this happen to me once in 2016. Now im getting migranes and am looking into this bc i get blue orbs more often now. Unrelated to 2016 but i fear that may happen again. And i fear it may happen while im driving lol

    • @josephfranco4943
      @josephfranco4943 7 дней назад

      EXACTLY 💯 % nail on the head what happens to me. Glad I’m not alone! I hate when this happens though. No migraine headache with mine either. Just the same exact symptoms you wrote word for word!

  • @MrsMacWifey
    @MrsMacWifey Год назад +5

    Wow, so informative. It's weird to hear a doctor who knows so much about migraine. Or maybe I'm just used to doctors talking down to me.

  • @marinegunner7481
    @marinegunner7481 Год назад +2

    Thanks Doc. That’s the best, most useful discussion I’ve found on this topic.
    I have exactly the symptoms you describe with the building, scintillating march.
    It starts as a tiny dot toward the center of my vision and grows into an arc of scintillating, intersecting, inverted “V” shapes that proceed (march) across my vision To eventually disappear beyond my peripheral view. They can march in either direction; right or left but never up or down.
    I had the first one about thirty years ago and it was scary; happened while casually walking with my wife. After that they happened every few months with frequency increasing over time.
    Now I seem to have them a couple of times times a week.
    Today I had two, back-to-back. They started in the usual way but the initial spot was larger. Then it grew into the usual arc but longer, becoming semi-circular. As soon as that one exited my vision to my left a second one began and was virtually identical to the first one except that it grew in to an arc to the right and marched out of my vision to the right.
    This is the first time I’ve ever had this happen with TWO arcs, in opposite directions.
    I never have headaches in conjunction with these events. My Opthamologist called them “Ocular Migraines.” I literally drew him a picture as I described it. He told me that they are common and not dangerous.

  • @MaryFredette
    @MaryFredette 2 года назад +3

    Thank you so much for this video. I needed to see that the more I get my aura migraines it means aura migraines even though my dr already told me this. You explained it waaaay better.

  • @MarkCastle
    @MarkCastle Год назад +4

    I started getting these when I was around 13 after I fell over, hit my head and had concussion while at school in the playground. They're usually around once or twice a year and last 15 to 40 mins. I generally have to stop what I'm doing (especially if I'm driving) and just lay down and try to have a snooze to "wait it out". They start small, usually at the focal point which becomes a little "blurred" and reading is temporarily difficult.. imagine a smudge of muck on your glasses right at your focal point. Soon after you then see that it's actually becoming the kaleidoscope pattern but small at first only just surrounding your focal point. It then generally processes outward become like a waxing crescent moon shape that continuously grows (usually outward from the focal point towards the edges of the vision over the time period. It's always like a kaleidoscope and only rarely actually affects the focal point enough to make it so that I can't even see words on a page. I'm having one right now and about 10 minutes in.. it's currently above my focal point and curving around to the right of my vision. It's always made my question if doctors understand them when they ask.. "which eye is it in" to which the reply is.. it's in my minds eye, I can still see it when my eyes are closed. It feels like what is happening is that in those parts of the vision where it's visible it's the brain mixing up which parts of the vision the signal is coming from.. pretty much indeed what a kaleidoscope is doing. I really should make a VR experience for this so that doctors and medical professionals can understand it more. About 15 to 30 minutes in.. most of the right side of my vision from top to almost bottom in a crescent shape is affected and I generally start to feel a bit "woozy" like you get when you've got a headache but without the actual head pain. In the latter stages it kind of fades away and you return to normal but maybe still feel a bit of the after effects of 'woozyness' for want of a better word. It's not really complete nausea, not exactly anyway. Another 5 mins and it's now getting towards the far reaches of my visual field. If I move a finger left to right my finger kind of disappears like a blind spot when it passes through the kaleidoscope part. This one was quite a 'big' one.. and a bit more nauseas than many others.

    • @MarkCastle
      @MarkCastle Год назад +3

      It literally just disappeared... they mostly seem to do that.. one second they're quite visible towards the outer reaches of your vision, then next they're gone, but the headache feeling without the head pain remains for a while

    • @applepie6559
      @applepie6559 8 месяцев назад +3

      I Like the Idea of Creating a VR experience, So Professionals can understand. Its Scary when it happens😞

  • @jammin1984
    @jammin1984 8 месяцев назад

    Very good video Dr Lee. I've been going through this for 24 years. It all started from 3 major retina surgeries. Resulting in no more vision in the right eye, scleral buckle and removal of my lens all on the right eye. Left eye had 2 different years of laser surgeries for pinholes. Left eye pupil was damaged from laser surgery, no longer contracts when in lights. Also, left eye has macula pucker, cataract and guttata. I suffer severe light sensitivity, aura migraines, which I call eyegraines. I get nauseated, dizzy, anxiety, moody and depression.
    My left eye's vision is warped and blurry as well. New prescription eyewear doesn't help either. I have to wear hats, super dark wear over sunglasses. It still doesn't help much, unless it is totally overcast out. Still have to wear tinted glasses. If I don't wear sunglasses my vision is what I call Ugly vision. Even at night car lights hurt and just try and keep my eyes closed. I no longer drive. Sunlight, candle light and most lights are torture to me. I get bad eye migraines even with just millisecond of bright light, or out too long in light. It just kicks my butt and I have to cover my eyes completely. Pain in eyes can last for minutes to days. It goes from one eye to the other, my right eye feels like a deep paper cut as well sometimes.
    I use prescribed moderate pain medication to help. I have tried Tylenol, Migraine types, Ibuprofen you name it and they do not help one bit. My pain medicine I use does not give me any side effects. It just helps my eye pains to not get extremely painful. Most GP Drs do not understand what I have been going or go through. Well I am glad I came across your video. So many people go through this and do not get respect or compassion shown to them. I truly know what it's like. I pray to God for everyone who suffers from this everyday and night. Thank you Dr Lee!
    Forgot to add that my vision gets pixelated and I have thousands of tiny stationary dots throughout my vision day or night. At night i can still see the warped patterns as well. Was not ever like that until my surgeries...

  • @fuscia13
    @fuscia13 Год назад +4

    All these years, it’s been a retinol migraine. Only my right eye and side of my head is affected. Though I have peripheral vision loss on both sides. I have aura with or without pain following the aura.

  • @Sympatiko85
    @Sympatiko85 2 года назад +2

    Thank you. I have had multiple episodes and as a kid couldn’t explain and as an adult gave up thinking it was normal. As explaining just sound like an excuse as I would hide in the dark till the episode passed.

    • @applepie6559
      @applepie6559 8 месяцев назад

      Myself and A lot of others, feel your Pain! It’s So Scary🥺

  • @kt1696
    @kt1696 10 месяцев назад +2

    I have all those symptoms but not all the time. At the moment I have an aura that's not fully dissapeared after 9 days. It's just a small fragment to the right of center of my vision. I can see the usual red and green colours, it's very annoying. Suffered migrains with aura since I was 6 yrs old, I'm now 75yrs. My migraines have evolved over the years. I turn to a brilliant migraine sufferers forum and learned so much, and gained so much help. I just want this stuck fragment of aura to clear. Had several auras in this past week preceeding the headache.

  • @jonathanmoore6365
    @jonathanmoore6365 Год назад +5

    This is fascinating. I recently experienced on two occasions what i describe as kaleidoscope vision, A pulsing (3hz) small distortion in my view as an arc of prismatic shards of light, growing to 90deg then up to 180deg at which point vision returns to normal, i'd say whole episode ais about 15 minutes both times. First occurrence was 4 hours after coming out of a cardiac ablation, second occurrence a week later, have been on blood thinners since the ablation. Im a little anxious as read about TIA's, possible blindness etc (had MRI's/ various tests at stroke clinic after each occurrence and they cant find evidence of stroke, assuming it must of been a TIA but that wouldnt make sense for the second occurence (being anticoagulated so much). Im a bit of an odd case as lost sight in my left eye 30 years ago (had accident/ then enucleation) plus i used to get cluster migraines a lot, (not had for 10 years since i stopped smoking). I don't think these visions are associated with a headache because i dont get a headache - just sheer terror when it last developed on the highway. Plus now have I anxiety of what this could all mean.

    • @bennera5132
      @bennera5132 8 месяцев назад

      Coming to this late, but I experienced same after my ablation. CryoBalloon Pulmonary Vein Isolation Ablation. I was told that the puncture of the septum that allows the catheter to pass from right to left atrium is the cause. Apparently, until the septum heals, there is mixing of deoxygenated blood from one chamber to the other, commonly causing those symptoms.

    • @jonathanmoore6365
      @jonathanmoore6365 8 месяцев назад

      Thanks for sharing. Interesting that this indeed was only a temporary experience. It has been a year now since my ablation/ vision disturbance and all is fine so fingers crossed! @@bennera5132

  • @bisratwolde1022
    @bisratwolde1022 3 года назад +7

    Thank you for this explanation. Really helped me understand my symptoms.

  • @CharlesMichaelSidwell
    @CharlesMichaelSidwell 2 года назад +18

    I just started getting these. A week and a half ago I suddenly had the a-typical zig zag line in the center of my sight in my left eye. It slowly expanded outward and after 20 some odd minutes it dissipated. Then about 4 days later it happened in right eye, but not as severe. Then today it happened in my left eye and went away after 20 mins. I went to an optometrist right after it happened and he said he couldn't see anything wrong with my eyes. That was when he mentioned that it could be an optical migraine, which I had never heard of before. I called and talked to my mom about it and she kind of chuckled and said that she's been getting those off and on since she was in her twenties, and she's now in her seventies. Needless to say, when it happens, it's very unsettling and gets my stress up even more. I have tried to take note of what I did just before it had happened, and I think that much of it is related to dehydration, because in all those instances when it happened in the past week and a half or so I know that I had not been drinking enough water. Also I was looking at my phone too much during the day. In all three instances that it happened it happened around the same time in the evening which was 5 to 6:00 p.m. . Today when it happened I had eaten some french fries and ketchup. After about 15 to 20 minutes of eating that that is when it happened. So I'm looking into the possibility that maybe excess carbohydrates, empty carbohydrates, perhaps the monosodium glutamate that they put in Heinz ketchup which they mask as natural flavoring could be a trigger for the optical migraines. In all three instances I did not have any kind of headache which preceded or followed an optical migraine. So I am a bit worried as the weather it could be neurological in nature and I can't help but worry that if it happens too often that I may lose my eyesight. At this point all I can do is pray, try to stay more hydrated during the day, and stay away from processed foods of any kind and see if that helps.

    • @Sympatiko85
      @Sympatiko85 2 года назад +1

      Yes, as I aged I realized to change my diet. I have been experimenting autoimmune diet. I had never heard of ocular migraine and to tell your boss or supervisor you have sensitivity.

    • @elisabetk2595
      @elisabetk2595 Год назад +3

      My mom had the same reaction. I've only had a headache after the aura maybe six or eight times in my life. But I'd get either the aura or the headache (never both) like clockwork twice a month - obviously had a hormonal trigger. But I'd always be happy to get the lightshow instead of the vomiting. I have some other triggers, but it's more like various things make you more susceptible until you cross some threshold and a migraine or aura is triggered. For me, altered sleep cycles is one. There seems to be some correlation with trigeminal nerve irritation. It's like a detective story to figure them out.

    • @underduress5761
      @underduress5761 Год назад +2

      I oftentimes learn more from the comments than I do from the videos. Thanks. I'm experiencing the same thing and I'm convinced that you're onto something with the dehydration and the screen time. Thanks for giving your input!

    • @dendenc2046
      @dendenc2046 Год назад

      You are right about dehydration, but I drink a lot and still get them. I do get them when I have slept really bad or not enough. But do you know if this is true or is not related? "People who get migraines with aura have a slightly higher risk of heart attack, stroke, or death from cardiovascular disease "

  • @martymiller9514
    @martymiller9514 Год назад +4

    I have had unilateral vasospasm for years. It is only in one eye, no headache. Left eye or right eye, not both. Lasts for approximately 20 minutes. I am usually stressed and often bothered by bright light before an incident of this kind. If it happens while I'm driving, I have to find a place to pull over: very dangerous. Right now I'm 70 years old. I have also experienced occasional hallucinations: I'll think there is someone in my peripheral vision moving quickly. Also I have had aural hallucinations where it sounds as if someone is pounding "bam-bam-bam". That has happened when I turn my head suddenly. I don't know what causes all this, but stress is definitely a factor. Otherwise I'm in great shape really. I was on Citalopram for 10-12 years. Maybe that had something to do with it, don't know.

  • @hishamshahzad2
    @hishamshahzad2 3 года назад +11

    Thanks doc im stuck in this from a long time any suggestions or what should we do to avoid this migraine

  • @lezlee8704
    @lezlee8704 Год назад +1

    I had my first one at 50 they were all way s curved and black and white I am now 73 ,about 3 years ago they changed they are now all mostly full circle and multi coloured, but I have never had a head ache,I take 2 migraine strength ibuprofen each time and usually they are gone within 30 minutes,o and lately I have been waking up with one that has never happened before.

  • @latedecember2805
    @latedecember2805 Год назад +1

    I have ocular migraine ( aura ) but I have a horrible headache that lasts for hours to days. Some times it is debilitating , sometimes it's a dull persistent pain. Some times I feel very tired like I ran a marathon, I feel dizzy, Some times I have nausea sometimes There is no pain at all Just a bunch from zig zag lines usually the left eye. I only started having them in my late forties But have had migraine headaches my whole life. Yesterday I woke with an ocular migraine, So I took med's before the pain started. I still have a Headache but it's one of those Dull barely there constant pain.

  • @jkyoft78
    @jkyoft78 8 месяцев назад +1

    I'm a 62 yrs old patient - after my left eye vitrectomy, I have had (mostly) continuous headaches for 4 weeks. I see a continuous crescent shaped aura, which off to the side. Most of the time I don't notice it. The headache is unpleasant, but not horribly painful,
    I usually take ibuprofen all day long. I can sleep at night, no problem. I'm hoping this will go away.
    I do get regular migraines about once per month, so I recognize the aura, but although my regular migraines may have
    significant auras, I usually have little or no pain.
    My eye surgeon kind of minimized it when I mentioned it to him. He seems to think my regular migraines are somehow
    triggered by something, but he doesn't know what.
    Could this be a continuous retinal migraine?

  • @kirkmyles
    @kirkmyles 2 года назад +4

    After endlessly searching for this I finally found it! Although sadly it has happened twice to me now, the first one was two years ago and it happened again, does that mean I have ischemic lesions?

  • @simwalk100
    @simwalk100 Год назад +1

    Hi Andy - any views on duration? mostly

  • @glitzyfairy702
    @glitzyfairy702 3 года назад +6

    I don't think i have anything in my vision but i get migraines that make me super dizzy and give me sharp head pain and make my vision get filled with black spots that grow for a couple of seconds then i'm back to normal

  • @MrsMacWifey
    @MrsMacWifey Год назад +1

    Here's what I don't understand: Some people seem to equate "retinal migraine" with "migraine with aura." Are they synonymous? What is the difference, if any?

  • @thyandyr7369
    @thyandyr7369 Год назад

    Im nearly 50 male and have had 3 of these in my life, last one today (very strong visuals, barely noticeable headache, which is the way of headaches with me). Any comments anyone?

    • @thyandyr7369
      @thyandyr7369 Год назад

      Grounds to suspect ischemic lesion?

  • @RechtmanDon
    @RechtmanDon 2 года назад +1

    What if a short 15 second massage of the eyes promptly (over 2 minutes) reverses the scintillations?

  • @infonet3349
    @infonet3349 Год назад +1

    I had an aura without pain like in both eyes but with a predominance of left eye like 80/20, the second time similarly but with the predominance of the right eye. is it more migraine or retinal?

  • @oopetay
    @oopetay 2 года назад +2

    had one the other day for the first time but my upper body went numb and weak can that also be a symptom? thanks for the video got worried while it was happening

  • @michaelwalsh9920
    @michaelwalsh9920 7 месяцев назад

    Great talk, thank you!b 👀

  • @Linthediel
    @Linthediel 7 месяцев назад

    I've had migraines for years but today was the first time I've had this. It started with no pain, just zig zag lines in my right eye that got bigger and bigger and peripheral loss of vision in both eyes (but only zig zag in my right eye). I'm in another country and after 15 min I panicked and called my ophthalmologist which asked if I have been under a lot of stress (I have been-intense stress for 2 days) and ifnthe zig zag lines were getting smaller (they were, after around 20 min they were almost gone) he then adviced me to take 2 paracetamols and lie down because I would get pain. Which I did!! I'm currently lying down with intense migraine pain but my vision is better. Is it ok to visit my doc in 3 months when I go back home or is it better to find an ophthalmologist here and go sooner? Thanks! So scary

  • @amys6280
    @amys6280 2 года назад +5

    Is it always zigzag if it's lines? What if it's like vibrating gills? It's weird to develop aura after 20 years of migraines.

    • @brettalexander220
      @brettalexander220 2 года назад

      i get camera flash afterimages and black holes in my vision

    • @nebula2241
      @nebula2241 2 года назад

      @@brettalexander220 I got that in the morning when I woke up one day. I also had chromatic aberration with some shapes that looked like spikes

    • @brettalexander220
      @brettalexander220 2 года назад +1

      @@nebula2241 i get the temporary black scotomas throughout the day in one eye at a time, especially when overheated, stressed, or changing from light to dark areas. They are more apparent when blinking. I had two that lasted over two weeks earlier this year. I also suffer from mal de debarquement syndrome where i have constant feeling like im in a rocking boat.

    • @brettalexander220
      @brettalexander220 2 года назад +2

      no insurance so eye check is out of the question 😂

  • @jupiterlove76
    @jupiterlove76 3 года назад +9

    I get these in both eyes as you described but i do not get a migraine after it. Ive had so many test and the workup came back negative. Can a person have these without the headache? What would that be considered?

    • @fattunes4673
      @fattunes4673 3 года назад +1

      Yes you can i have suffered for 7 month straight with this condition.

    • @euan1234
      @euan1234 3 года назад +4

      I'm the same - I get the blurred, moving patches with (very slight) nausea. But no sharp headache pains afterwards once it resolves

    • @jupiterlove76
      @jupiterlove76 3 года назад

      @sarah yeah they said stress didnt do any test

    • @fattunes4673
      @fattunes4673 3 года назад +2

      Fuck migraines

    • @jupiterlove76
      @jupiterlove76 3 года назад +1

      @@fattunes4673 sorry. I get bad migraines right before my period that end up lasting for 2 whole days and no relief. They are so bad that no medication works. I feel your pain.

  • @dendenc2046
    @dendenc2046 Год назад +1

    Hi Dr. , Are aura migraine connected to heart health?"People who get migraines with aura have a slightly higher risk of heart attack, stroke, or death from cardiovascular disease " Half of the people are saying it is true, and others are saying it is not related... I hope it is not.

  • @ravinaa315
    @ravinaa315 3 года назад +2

    I have this only in one eye and only in the mornings before noon. Never later. What could be a possible trigger?

    • @ravinaa315
      @ravinaa315 2 года назад

      @GOD’s Child i see a zigzag curve starting from one end of the eye periphery to the other, with and without closed eyes. Doc said its migraine with aura and not retinal migraine. Both are different. What do u experience?

    • @ecemguven806
      @ecemguven806 2 года назад

      It only happens to me in the morning, but it happens every morning. Only the image flickers in my left eye. Have you been treated? The ophthalmologist and neurologist say it's okay, but I'm worried. How often does it happen to you?

    • @elisabetk2595
      @elisabetk2595 Год назад

      Changes in blood sugar are a trigger for me - so skipping breakfast would often do it, so would drinking a soda or eating a candy bar on an empty stomach.

  • @levijoubert3122
    @levijoubert3122 Год назад

    I get the zig zag and blurry vison in one eye then headache what kind of migraine is in one eye

  • @Cohortic
    @Cohortic Год назад +1

    Help, my little brother is 11 years old. He told me that his head would hurt and everything would go black for 6 seconds and hed see patterns. Is he okay?

    • @CityLadyLA
      @CityLadyLA Год назад

      He needs to see an Ophthalmologist as soon as possible.

  • @Nick2014B
    @Nick2014B 2 года назад +1

    Why am I getting black tunnel vision in one eye when I’m getting my migraines

  • @shiktatalukdar7837
    @shiktatalukdar7837 3 года назад +2

    I have all these without headache but it continued 24 ×7

    • @exporttheory
      @exporttheory 2 года назад

      I do as well. Any advice how to deal or make it go away?

    • @shiktatalukdar7837
      @shiktatalukdar7837 2 года назад

      @@exporttheory rest your eyes . Less screen time. Always go for check . And make sure your eyes are not dry .

    • @ecemguven806
      @ecemguven806 2 года назад +1

      @@shiktatalukdar7837 It only happens to me in the morning, but it happens every morning. Only the image flickers in my left eye. Have you been treated? The ophthalmologist and neurologist say it's okay, but I'm worried. How often does it happen to you? What kind of aura do you experience?

    • @shiktatalukdar7837
      @shiktatalukdar7837 2 года назад +1

      @@ecemguven806 i experience white zigzag aura for 30 minutes in every month and flashes all day long. I have flickering vision 24x7.

    • @shiktatalukdar7837
      @shiktatalukdar7837 2 года назад

      @@ecemguven806 doctor said my eyes are okay but I'm afraid they are missing something

  • @Surgeonshand87
    @Surgeonshand87 3 года назад +4

    Can aura be continuous for months ?

  • @MrAhnri
    @MrAhnri 2 года назад +1

    I have this once a month. If there are doctors out there who wants my cooperation, please do comment and I will provide some insight or cooperate.

    • @applepie6559
      @applepie6559 8 месяцев назад +1

      I Volunteer Also, if Any Professionals would like to do some sort of Study. So there can be a Better understanding of this Crap!!🥺

  • @skym821
    @skym821 3 года назад +2

    Uh... Is it possible to have this for 11 years 24/7

    • @ecemguven806
      @ecemguven806 2 года назад

      Is it still continuing? What is your complaint like?

    • @brettalexander220
      @brettalexander220 2 года назад

      yes it could be migraine with infarction (tissue death in your retina from lack of blood flow)

  • @motazali5863
    @motazali5863 4 года назад

    Ibuprofen duration?

  • @carolynluckas1219
    @carolynluckas1219 Год назад

    What if mine are 24/7. Constant. Non stop. I have to take Tylenol every few hours to stop the pain. 24/7.