My first symptom of MS was ON, but I realize now how little I knew about it. Soon after came the diagnosis of MS, so I never really thought about ON anymore. So much information in a single video, I had to go back and listen again on many places. And I'll have to listen a bunch of times more. Thank you, Dr. Beaber. Hope my ON doesn't return.
In October 2022, I had my 2nd episode of optic neuritis. This time the inflammation caused a hemorrhage in the back of my eye. Spent 7 days in the hospital. They found a few white matter lesions. I was diagnosed with CIS. I also have lupus and raynauds. I recently had episodes of diploplia and I suffer from migraines daily. I really hope my neurologist will put me on preventative medication soon.
Ughhhh this is the worst! MS patient for 6 years. Had this a few times, awful. One eye paralysed, double vision 🤦🏼♀️ id much rather my relapses made my legs not work, than vision problems!
I had an optic neuritis flare about 7 years ago. I didn't know what it was at first I just thought I had a floater in my eye that wouldn't go away. That went on for about 2 weeks. I finally seen an ophthalmologist who thought he knew what I had but recommended a neurologist. Sure enough after the MRI he found MS. I've had 2 other attacks since. I've lost color in the eye. Even driving is hard without sunglasses because of the light differential in each eye. This was great information. You have a new subscriber! Everything you mentioned was spot on!
I had 3 episodes of ON and the doctors have not told me I was diagnosed with MS. I got pregnant and haven’t got ON since then 6 years later I’m not I’m having a left eye pain when movement but this is my second day with this..
My aunt has exactly the Symptoms he is describing days after recovering from COVID(omicron), her MRI, blood test and all the vision test he talks about, her results are exactly what he said, he was prescribed with solu-Medrol 1000mg for 5 days, she is still trying to recover, but doctors didn’t know what she has, so I just found this video!!! I’m so happy he talks about other options for the treatment, maybe that would help her for her complete recovery 🙏. We don’t want her to live with a vision like that. I wish I could have a zoom medical appointment with this doctor.
I'm experiencing ON as I write; same time as last year, same eye, no medication, but understand what it is and why. I have a big bottle of Tumeric in the kitchen. Taking one Teaspoon in water with a packet of Equal. Plus, going back on Whals Protocol; just what I did after last February's O Neuritis. Yup, eye got better and returned to normal by Late March Early April. Recommendation: This disease is going to be with her / us, so better to learn with natural herbs and spices are well-known to reduce inflammation in the body. This way, it may not be necessary to run right to the doctor or the hospital. ...They see this all the time, and don't do nearly enough to treat and cure Anybody, sigh. So try Whals Protocol and Tumeric in 6+8 oz of water. Seems to help slowly restore function. Best. Peace ❤
I just had an eye attack yesterday. I woke up and within minutes I felt such intense pain. Yes Dr. (It can be extremely painful.) I just started screaming and crying. My husband took me to the ER and they gave me a steroid shot and I started feeling better. It scared me so much. Now I’m scared for it to happen again. I just got diagnosed with MS. I was getting dizzy a lot and when I fell, I knew I had to get help. So, I didn’t even know what was happening. I’m watching videos to learn about MS. Thank you for explaining it so well.
I got diagnosed optic neuritis last month Oct.18. Hospital gave me 3days infusion (steroids) and 11days oral tablets. I started to see changes for second day. What I'm scared right now is taht I'm feeling numbness my feet and my hands😢
I was diagnosed with M.S. about 10 years ago. My symptom was very strange. When I would look left, my left eye would turn but my right eye would stay straight. The same vice versa. All I would see is a blur... After 12 MRIS and numerous cat scans and a spinal tap I was diagnosed with M.S. I had to learn how to walk again as well
I had a lung infection , was put on TB medication for the full 6 months before the doctor told me I never had TB. a year later lost vision in my left eye because of the TB medication. thank you for the video.
I got diagnosed with MOG. It started with Aritas in both eyes, and then eventually body completely shut down, and I got intubated and woke up in a new world. My healthcare in my area let me go down big time.
You have no idea how much this information helped me. I am visiting the ocular Doctor, after almost 5 years of heroes zoster on my right eye. I started experiencing this horrible pain on the back of my eye that last a few seconds just about every morning when I wake up. Thank you.
Thanks for this. This was how my MS first presented. Although I have since recovered, it still doesn't sit right with me that I was never offered any drugs other than Advil.
I had optic neuritis in both eyes, very severe but almost completely recovered at least on the eye test. I don’t feel like I see as well, or as quickly as I did before. At night, I can’t drive because I frequently misunderstand what I’m seeing. I simply don’t do it, I don’t even like riding in the car at night because I always think we’re about to hit something or run off the road. There are also a lot of things I need a magnifying glass and flashlight to see, which I used to see just by wearing my glasses.
Please doc we are really helpless please doc I watched your video you tell everything very clearly I am sure you will find out what happened with my sis in only 2 months and what’s her treatment please doc help us
Best explanation available for optic Neuritis. In MS does damage caused by optic neuritis goes off completely with steroids? I mean how long it takes for an MS patient with optic neuritis to have his vision back if treated using steroids? We need your type of doctors. You are very good.
Recovery from Optic Neuritis varies widely. Some people have 20/20 vision in two days while others have permanent vision loss. Generally speaking, if the visual acuity in the affected eye is 20/100 or better at the nadir (worst period of the disease), the prognosis for complete or near-complete visual recovery is good.
The search that led me here was, "how the Pineal gland affects the optic nerves". Since you didn't mention Pineal at all, I assume either I've searched the wrong subject -or - you don't know anything about the Pineal either. No one seems to want to discuss it. Informative presentation though. Thanks for sharing.
Thank you so much for the very informative video. I learned a lot about this disease. My question is whether optic neuritis causes a teary eye. Thank you.
Experiencing ON atm. My symptoms are eye movement pain and vision dimness in my right eye. My doctor put me on IV methylprednisolone 1g for 3 days... last day was two days ago. My vision has still not returned. I'm a little worried but hopeful. Hoping to comeback to this comment with positive updates soon. Researching on how to reduce inflammation generally in the body.
@@amieemaan100 pain in my eye is gone down, but my vision has still not returned. I did an mri and various blood tests and my neurologist said everything seems normal. He's put me on Lyrica for 30 days, observing and still being optimistic.
@@Revo15Official The eye pain is completely gone and my vision has improved but not all the way. It's still a little dimmer is that eye than the other.
Appreciate the videos 2 years old but its worth a shot. 3 weeks ago I woke up to find pain around my left temple, and pain when moving the left eye, It got to the point we’re over the counter meds were not working. At this point I rang my GP who gave me an over the phone consultation and prescribed me with 300mg Aspirin to be taken 4 times a day, 1-3 tablets per time. Fast forward seven days and the symptoms had not improved, by the night of the 7th day I noticed blurring in my left eye, thought nothing to serious about it and went to sleep , woke up the following day to find it had become worse. Went to my local A&E who ran blood tests, which came back clear, checked the back of my throat at which the said was slightly yellow and could be tonsillitis. They prescribed naproxen 250mg. The following day the vision had got worse again and I was asked to go back. They ran a CT scan which came back clear and further recommended seeing a specialist and MRI scan. Thankfully I had the MRI the following day and specialist the day after. The day I saw the specialist I was diagnosed with ON by my Ophthalmologists who also mentioned MS. They ran a field vision test, OCT scan as well as using a device I have no idea what it was. I was asked to keep on the naproxen and to re visit in 2 weeks. Since the visit to the specialist I have continued to have a pain in my left ear, which when speaking to another GP has suggested it could be an infection and prescribed me doxclyclin. My MRI also came back as normal just prior to talking with the doctor. I fully understand you can’t give medical advice as such, but I was curious, could the ON be a symptom of a chest infection prior to the original pain that hadn’t cleared up. Could the current inflammation be a result of the potential current infection also? I’m due for starting a new job in a month after having 6 months out of work. Currently 3am UK time and really just looking for something/anything.
Optic neuritis can be triggered by an infection in some cases. Luckily, the risk of multiple sclerosis in someone with optic neuritis and no lesions typical of multiple sclerosis on MRI scan of the brain is relatively low (From the optic neuritis treatment trial: jamanetwork.com/journals/jamaneurology/fullarticle/795756#:~:text=Results%20The%20cumulative%20probability%20of,(MRI)%20of%20the%20brain.)
I have optic neuritis and have no pain. Went to an eye check up and had RAPD and further testing shows optic nerve swelling and disc swelling with blurred margins. Ordered a CAT scan 🤷♀️
I always love how clear and informative your videos are, the way you explained Optic Neuritis and MS is very similar to the way my neurologist does in New Zealand. I had optic neuritis in 2019 which then became a diagnosis of MS after getting an MRI, Blood & Antibody tests (NMO and MOG), and a lumbar puncture. When I had optic neuritis I didn't notice any color changes until my Ophthalmologist covered my left eye and the red paper was suddenly brown. Since then, I have noticed that whenever I get the flu the pain comes back.
Thanks for sharing your story. It's fairly common that people don't notice the color change until covering the normal eye. What you're experiencing with the flu is likely "Uhtoff's phenomenon" which I'm going to do a video on soon.
my right eye recovers after a year, but my vision is not brighter as another eye, the acuity and the details came back, but sometimes i still feel some minor pain at the back of my eye specially when i am tired and have not enough sleep
This was a Great presentation & very thorough. It will be useful during my next visit to the eye Dr.-- who isn't all the familiar with MS & the fallout related to MS Please don't forget to post the link to the other video you mentioned about electrophoresis.
My very first symptom in primary Progressive multiple sclerosis was vision in just two years I have went from division problem to taking 90 mg of Baclofen a day
i had an episode on holiday in 2000. suddenly it was like a shutter going down in my left eye, i couldnt see, anyway 2016 was diagnosed with PPMS. 2007 i had VEP test and diagnosed bilateral ON. 2016 another VEP which showed worsening again. in between i had attacks of terrible pain in my eye, and also lost colour perception. I had to ask my daughters to pick out paint for me lol as my red would be pink or orange. i often pick out wrong colours. in between 2000 and 2016 i had 3 lesions on my spinal cord in different places. i have steady progession and now 7 on the EDSS.
One year I experienced for the first time 3 episodes of ON and I shortly after that I got pregnant and six years later still no relapse and i now am experiencing the same eye pain for 2 days now. I wounded if it’s comming back although it’s been a while… 🤔 during past ON treatments wasn’t diagnosed MS.
Hey doc, I’m 17 years old and I need your help, will like to ask you some questions that will save my life, learnt a lot watching this but I need to ask you a more profound question 🙏🏼
I have foot drop bad leg weakness i walk with crutches .Severe tinnitus ,pains and cramps all over my body > .I have just had an episode of this ophthalmology can,t find the problem .My vision has been affected in 1 eye where the colour is less than in the other eye ,when it happened i lst just about all vision in my right eye.I am also now border line diabetic .Had these problems for 5 years and still can not get a diagnosis.
I had idiopathic optic neuritis 14 months ago and was not treated properly by a neuro-opthamologist. He gave me low dose oral prednisone and it did nothing for my blindness. When I got my regular neurologist who was treating me for neuropathy, to give me the course of IV methylprednisolone, it immediately brought back 15% of my sight. So, in my opinion the IV worked. But I am now functionally blind in that eye. The neuro-guy insists that the IV is controversial, even though I have read many studies that indicate it is the FIRST course of action. I wish that my treatment had been better... Now I live with only one eye, and seeing this video made me again sad that my treatment was sub-standard.
The optic neuritis treatment trial showed that IV high dose steroids were more effective than lower dose oral steroids, though I presume that this is due to a difference in dose rather than route as steroid products like prednisone have very high bioavailability (absorption into the gastrointestinal tract).
Thank you very much for mentioning neurosarcoidosis truly one of the most horrific diseases on the planet whenever I speak with my doctors about plasmapheresis they look at me like I'm crazy and just shake their heads and turnaround mumbling they won't even consider it it's very frustrating to be around doctors who are short-sighted and small-minded thank you very much again for this video
Great video! When I was still waiting for a diagnosis, my ON (left eye) was left untreated. About 9 weeks after it began, I felt 3 consecutive buzzes of electricity down the entire right side of my body. After those buzzes, some of my vision returned - it was like somebody flicked a switch! My vision fully recovered after another 4 weeks and 5 day oral methylprednisolone. I’m still seeking an official diagnosis and have tested negative for AQP-4 and MOG antibodies. All my symptoms completely subsided after methylprednisolone (leg weakness, altered sensation in soles of feet and fingertips, Lhermitte’s sign). Only ever had one attack and don’t meet McDonald Criteria. Could this be CIS?
I have some insight but wouldn't feel comfortable giving direct medical advice. Generally speaking, the key test after optic neuritis is an MRI of the brain.
What was your vision like when it all began? Like did you had color contrast, dimness, and how much was your acuity? After you recovered did you get everything back to normal or is there some residue left? Appreciate your input into this.
I do have optic neuritis but and it's been active for 3 years but I don't have any symptoms except small black dots in the eyes and sometimes about 10% loss of vision...
My wife lost her vision due to the tumor that compressed her optic nerve and pituitary gland. The tumor was ectrscted by surgery but my wife never regsined her vision. Kindly sdvise if there are new medical solution to regain her vision. Thanks Bob
I have optic nerve damage. Without glasses I can’t see or read properly on the computer or RUclips videos. I am getting worried now. Please help me. Thanks
I have NMO and Lupus. In 2016 I lost my vision on my left eye but regained some of it. Two days ago I started experiencing pain in my eye, now my eye can barely see, I cannot see color or small objects. Do I need to go to the ER?
My doctor said that my optic nerve is weak due to this neuritis. it will will take 1-2 year to improve natirally and if not there is the research is going on and it is in success track. and there may medicine will be available after one year. So what research is going on for visual improvement of weak optic nerve? Do you have any idea about research? Please reply...
I have heal optic nerve 4 years before.. My sight decreased about 20%..thanks god.. But I want a treatment of Utah's phenomenon I want my eye back .. Or i should just wait?
Hi I was told in late February that my optic nerves have due to too many optic neuritis attacks I have spent the past three months watching my side absolutely crumble to the point of visual snow has happened my central vision is going fast and sub peripheral in my right eye no doctor will help me where I am as I personally don't think they have dealt with this I am definitely going blind really fast? I am so terrified
After head injury I have optic nerve problem in left eye I can't see anything in left eye I am undergoing treatment in Sankara Netralaya Hospital Chennai doctor said there is less chance of regaining sight in eye.Now I wanted to know if there is a modern treatment for optic nerve or if there is a possibility of getting better.
Sorry, but I would not be able to comment on your specific situation. This video is only about optic neuritis which is probably not the cause of your vision loss. I wish you the best of luck.
I have an appointment for tomorrow :) previously diagnosed with Fibromyalgia and EDS. I'm expecting more testing for MS due to pain in my eyes when trying to sleep (heavy eyes that feel strained and very painful) wish me luck! :)
Hello. After my cataract surgery in both eyes i have a grey block in the left eye on my focal point. The Vep test showed nerve weakness. It's been a year and no improvement. Kindly tell me what i should for this.
Thanks for the video, it helped me understand more about it. I have optic neuritis and I have 20/100 vision in my left eye. I started treatment with 1000mg methylpredinisolone for 5 days IV and am now taking 60mg oral prednisolone. My vision went to 20/30, but I still can't distinguish the colors correctly, it's all very blurry and black spots, it's weird. Doctor, would you have any supplements that could help with the recovery of the optic nerve? For example lutein, zeaxanthin, omega 3 (thinking good amounts of docosahexaenoic acid)? I would also like to know if I have a chance of my vision returning to normal, as she has already had a good response with the start of treatment. I'm so scared to see it like this forever... A big hug from Brazil
@@mirhanan Unfortunately my vision was never the same. It seems that I see through a fog and when my body warms I can't see anything (Uhthoff's phenomenon) I did 10 sessions 1000 mg methylprednisolone intravenous + immunosuppressive. I am currently not taking anything
Citimate 500 daily 1 tab after breakfast Nervigen plus daily 1 cap after lunch omega 3 capsule 1 after dinner Take 1spoon moringa powder And for more u can ping me
Hello doc I'm a myopic patient nowadays I have pain around my left eye and at the left facial side but it usually go away when I do physical exercise. Is these important symptoms of optic nerve damage Please reply.
Sir mri shows,optic nerves are well in course and form optic chiasm, My dad is admitted in the hospital from 2/09/2023,after sudden vision loss in right eye,doctor diagnosed optic neuritis. 4 days of IV steriod of methylprednisolone 1gm administered,would my dad will make recovery or not,and in hoe much time
I have low vision from birth but quite recently I have been experiencing slight pain behind my left eye. I consulted my optician who referred me to a doctor bcos there is swelling on the optic nerve of which im on waiting list to see the doctor. But im panicking at the moment. I need an advice
Hello doc ,last sept my blurred vision starts then i found out that i have congenital cataracts doctor said its ok but my vision is getting much blurred especially the left side then yesterday i went to another hospital i found out that i have optic nueritis and they recomend me to go to the other hospital , i want to ask if theres a cure for this because i am worried with my vision. Thank you doc
My case and a question: 2 years ago lost vision completely in my right eye over the course of 5 days. Many opthamaolgy tests, none saw anything. Admitted to hospital to get an MRI. Also had a spinal tap. MRI showed a few small, but unremarkable lesions on brain and neck, but a very inflamed optic nerve. Spinal tap showed the oligobands...(I think that's almost what its called, I don't remember what it's called). Neuro-opthamalogist diagnosed MS, did the high dose steroids, which were MISERABLE. was bed ridden for a month, couldn't eat or even drink water without throwing up. I NEVER want to take steroids like that again. It was worse than the ON. I did recover 100% within 2 months. Have had no symptoms of MS, other than ON. Was put on rituximab within 6 months of dx. I dont want to stay on rituximab (500mg every 6 months) because I don't feel like it's providing any benefit, and don't understand the long term benefits/risks of b cell depleting therapy. Have had MRIs since dx and doctors can't even tell which eye was affected, and say the lesions are "unremarkable". 1) How likely is ON to recur after a full recovery and no symtpoms of MS for 2 years? Will that be my only MS symptom? (I realize you don't have a crystal ball, just seeing if there are any studies or observational data that can help me understand what to expect. 2) Any more information you can provide about rituxan/ocrevus and what the LONG TERM effects could be? I don't want to switch meds, I want to be off them entirely. 3) What does a typical "relapse" look like for an MS patient who's only symptom ever was ON, and it completely resolved?
Sorry. I can't give you any personal advice here. The risk of infection with medications such as rituximab and ocrevus can increase over time with chronic use because immunoglobin levels can decline. People with multiple sclerosis can have different types of relapses. Someone can have optic neuritis and then 5 years later have an entirely different symptom such as numbness, weakness, or clumsiness. Typically people with multiple sclerosis have clear lesions seen on MRI of the brain indicative of this condition.
My brother aged 25 is been effected by optic nurve dieses and lost is vision of left eye completely .... doctors results are negative . saying that.. vision cannot be bring back....so please help us with some type of treatment that brings his vision back ..tq from India
Devic disease is an old name for the disease neuromyelitis optica (NMO) which can cause optic neuritis, transverse myelitis, and inflammation in the brain in some cases. About 70% of people with this condition have an antibody called the anti-aquaporin-4 antibody which is likely the test your doctor performed. I may do a separate video on NMO at some point.
Got curtain eye in right eye. Was checked for detached retina. Nope. Ischism of optic nerve. Two different doctors can't provide help. Self research reveals Prednisone may help. How do I get some?
I had ON first in 1996 then again in both eyes 1997. I only need glasses 3 years ago. But my latest script is a huge change. 2 questions. Does past I ON mean my eyesight will get worse and worse? How do I know that my latest glass scrip isnt just me getting ON
I’ve had it. There is some permanent damage. You may need glasses/contacts afterwards. My blind spot went away but i ended up needing glasses afterwards
Hello Dr. Brandon, I've got some blur spot on my both eye after a fever for almost seven days with extreme body pain and got lots of red spots on my skin. I've got 2 lab test and it turns out normal. my question is will this blur spot gets worst?
MS is linked to optic neuritis, and uveitis is definitely associated with other autoimmune diseases, but I don't think uveitis is specifically linked to optic neuritis.
Hello dear Dr My father had Toxic Optic (Methanol Intoxication)Neuropathy 5 months ago When he had this disease doctors injected Metylpredinisolon 1000mg 2x after 24 hourse he became will even he was able to drive and write. But after 1 week being well his both eyes again became dark and darker. Doctors said that you would be fine but it is a long process to gain your vision I wanna know would he become fine and gain his vision or not?😢
This man is brilliant.
He sure is his book is stellar 👌🏼
My first symptom of MS was ON, but I realize now how little I knew about it. Soon after came the diagnosis of MS, so I never really thought about ON anymore.
So much information in a single video, I had to go back and listen again on many places. And I'll have to listen a bunch of times more. Thank you, Dr. Beaber.
Hope my ON doesn't return.
In October 2022, I had my 2nd episode of optic neuritis. This time the inflammation caused a hemorrhage in the back of my eye. Spent 7 days in the hospital. They found a few white matter lesions. I was diagnosed with CIS. I also have lupus and raynauds. I recently had episodes of diploplia and I suffer from migraines daily. I really hope my neurologist will put me on preventative medication soon.
Ughhhh this is the worst! MS patient for 6 years. Had this a few times, awful. One eye paralysed, double vision 🤦🏼♀️ id much rather my relapses made my legs not work, than vision problems!
I’ve had it and i was diagnosed with MOGAD
I had an optic neuritis flare about 7 years ago. I didn't know what it was at first I just thought I had a floater in my eye that wouldn't go away. That went on for about 2 weeks. I finally seen an ophthalmologist who thought he knew what I had but recommended a neurologist. Sure enough after the MRI he found MS. I've had 2 other attacks since. I've lost color in the eye. Even driving is hard without sunglasses because of the light differential in each eye. This was great information. You have a new subscriber! Everything you mentioned was spot on!
:) Thanks. Let me know if you have any video requests
I too have same symptoms let know many days will it take to cure pls
I had 3 episodes of ON and the doctors have not told me I was diagnosed with MS. I got pregnant and haven’t got ON since then 6 years later I’m not I’m having a left eye pain when movement but this is my second day with this..
My aunt has exactly the Symptoms he is describing days after recovering from COVID(omicron), her MRI, blood test and all the vision test he talks about, her results are exactly what he said, he was prescribed with solu-Medrol 1000mg for 5 days, she is still trying to recover, but doctors didn’t know what she has, so I just found this video!!! I’m so happy he talks about other options for the treatment, maybe that would help her for her complete recovery 🙏. We don’t want her to live with a vision like that. I wish I could have a zoom medical appointment with this doctor.
Any updates so far?
I'm experiencing ON as I write; same time as last year, same eye, no medication, but understand what it is and why. I have a big bottle of Tumeric in the kitchen. Taking one Teaspoon in water with a packet of Equal. Plus, going back on Whals Protocol; just what I did after last February's O Neuritis. Yup, eye got better and returned to normal by Late March Early April.
Recommendation: This disease is going to be with her / us, so better to learn with natural herbs and spices are well-known to reduce inflammation in the body. This way, it may not be necessary to run right to the doctor or the hospital. ...They see this all the time, and don't do nearly enough to treat and cure Anybody, sigh.
So try Whals Protocol and Tumeric in 6+8 oz of water. Seems to help slowly restore function. Best. Peace ❤
I just had an eye attack yesterday. I woke up and within minutes I felt such intense pain. Yes Dr. (It can be extremely painful.) I just started screaming and crying. My husband took me to the ER and they gave me a steroid shot and I started feeling better. It scared me so much. Now I’m scared for it to happen again. I just got diagnosed with MS. I was getting dizzy a lot and when I fell, I knew I had to get help. So, I didn’t even know what was happening. I’m watching videos to learn about MS. Thank you for explaining it so well.
My wife just got diagnosed with this , and had a black out yesterday , scared the hell out of me
I got diagnosed optic neuritis last month Oct.18. Hospital gave me 3days infusion (steroids) and 11days oral tablets. I started to see changes for second day. What I'm scared right now is taht I'm feeling numbness my feet and my hands😢
This has been so helpful to listen to. I just had a long day doing tests and feeling very alone.
I'm glad it helped. Best of luck to you.
I was diagnosed with M.S. about 10 years ago. My symptom was very strange. When I would look left, my left eye would turn but my right eye would stay straight. The same vice versa. All I would see is a blur... After 12 MRIS and numerous cat scans and a spinal tap I was diagnosed with M.S. I had to learn how to walk again as well
My first MS symptom Sept. 05 2022, the day that I'll never forget
I had a lung infection , was put on TB medication for the full 6 months before the doctor told me I never had TB. a year later lost vision in my left eye because of the TB medication. thank you for the video.
Thanks you Dr. I only know a hand full of doctors with the same dedication and commitment like yours... 🙏 God bless you.
Thanks!
@@DrBrandonBeaber hello doc,
we got the same case like optic neuritis to my son.
some how can we have an email you? or chat message...please.thanks
@@farahchaerunnisa7611 Sorry. I can't give you personal advice Farah.
I have multiple sceloris. At 78 this is my first expetience.
I got diagnosed with MOG. It started with Aritas in both eyes, and then eventually body completely shut down, and I got intubated and woke up in a new world. My healthcare in my area let me go down big time.
Nice video! I see what you've done here!
You have no idea how much this information helped me. I am visiting the ocular Doctor, after almost 5 years of heroes zoster on my right eye. I started experiencing this horrible pain on the back of my eye that last a few seconds just about every morning when I wake up.
Thank you.
What about stress and anxiety? Can that bring on pseudo Optic Neuritis?
Thanks for this. This was how my MS first presented. Although I have since recovered, it still doesn't sit right with me that I was never offered any drugs other than Advil.
I had optic neuritis in both eyes, very severe but almost completely recovered at least on the eye test. I don’t feel like I see as well, or as quickly as I did before. At night, I can’t drive because I frequently misunderstand what I’m seeing. I simply don’t do it, I don’t even like riding in the car at night because I always think we’re about to hit something or run off the road.
There are also a lot of things I need a magnifying glass and flashlight to see, which I used to see just by wearing my glasses.
How much time it takes to recover your vision after optic neuritis
Please doc we are really helpless please doc I watched your video you tell everything very clearly I am sure you will find out what happened with my sis in only 2 months and what’s her treatment please doc help us
Best explanation available for optic Neuritis.
In MS does damage caused by optic neuritis goes off completely with steroids? I mean how long it takes for an MS patient with optic neuritis to have his vision back if treated using steroids?
We need your type of doctors. You are very good.
Recovery from Optic Neuritis varies widely. Some people have 20/20 vision in two days while others have permanent vision loss. Generally speaking, if the visual acuity in the affected eye is 20/100 or better at the nadir (worst period of the disease), the prognosis for complete or near-complete visual recovery is good.
For me first time took 4 days. Second time took 4 weeks.
My 12year son had this problem recently
Excellent Explained Optic neuritis Love From INDIA 🇮🇳
The search that led me here was, "how the Pineal gland affects the optic nerves".
Since you didn't mention Pineal at all, I assume either I've searched the wrong subject -or - you don't know anything about the Pineal either.
No one seems to want to discuss it.
Informative presentation though.
Thanks for sharing.
I'm not aware of any specific connection between optic neuritis and the pineal gland.
Fantastic video! I do have to say your desk/hutch was giving my organizational self anxiety 🤪
:)
Thanks for sharing such valuable information.
No problem.
Thank you so much for the very informative video. I learned a lot about this disease. My question is whether optic neuritis causes a teary eye. Thank you.
Experiencing ON atm. My symptoms are eye movement pain and vision dimness in my right eye. My doctor put me on IV methylprednisolone 1g for 3 days... last day was two days ago. My vision has still not returned. I'm a little worried but hopeful. Hoping to comeback to this comment with positive updates soon. Researching on how to reduce inflammation generally in the body.
Any improvements?
@@amieemaan100 pain in my eye is gone down, but my vision has still not returned. I did an mri and various blood tests and my neurologist said everything seems normal. He's put me on Lyrica for 30 days, observing and still being optimistic.
Anything yet?
@@Revo15Official The eye pain is completely gone and my vision has improved but not all the way. It's still a little dimmer is that eye than the other.
@@amieemaan100 The eye pain is completely gone and my vision has improved but not all the way. It's still a little dimmer is that eye than the other.
Appreciate the videos 2 years old but its worth a shot.
3 weeks ago I woke up to find pain around my left temple, and pain when moving the left eye, It got to the point we’re over the counter meds were not working. At this point I rang my GP who gave me an over the phone consultation and prescribed me with 300mg Aspirin to be taken 4 times a day, 1-3 tablets per time.
Fast forward seven days and the symptoms had not improved, by the night of the 7th day I noticed blurring in my left eye, thought nothing to serious about it and went to sleep , woke up the following day to find it had become worse. Went to my local A&E who ran blood tests, which came back clear, checked the back of my throat at which the said was slightly yellow and could be tonsillitis. They prescribed naproxen 250mg. The following day the vision had got worse again and I was asked to go back. They ran a CT scan which came back clear and further recommended seeing a specialist and MRI scan. Thankfully I had the MRI the following day and specialist the day after.
The day I saw the specialist I was diagnosed with ON by my Ophthalmologists who also mentioned MS. They ran a field vision test, OCT scan as well as using a device I have no idea what it was. I was asked to keep on the naproxen and to re visit in 2 weeks.
Since the visit to the specialist I have continued to have a pain in my left ear, which when speaking to another GP has suggested it could be an infection and prescribed me doxclyclin. My MRI also came back as normal just prior to talking with the doctor.
I fully understand you can’t give medical advice as such, but I was curious, could the ON be a symptom of a chest infection prior to the original pain that hadn’t cleared up. Could the current inflammation be a result of the potential current infection also?
I’m due for starting a new job in a month after having 6 months out of work. Currently 3am UK time and really just looking for something/anything.
Optic neuritis can be triggered by an infection in some cases. Luckily, the risk of multiple sclerosis in someone with optic neuritis and no lesions typical of multiple sclerosis on MRI scan of the brain is relatively low (From the optic neuritis treatment trial: jamanetwork.com/journals/jamaneurology/fullarticle/795756#:~:text=Results%20The%20cumulative%20probability%20of,(MRI)%20of%20the%20brain.)
Am sorry 😢but if u can help 🙏 my uncle sone who lost his sight because of optic nerve problem
I have optic neuritis and have no pain. Went to an eye check up and had RAPD and further testing shows optic nerve swelling and disc swelling with blurred margins. Ordered a CAT scan 🤷♀️
I always love how clear and informative your videos are, the way you explained Optic Neuritis and MS is very similar to the way my neurologist does in New Zealand.
I had optic neuritis in 2019 which then became a diagnosis of MS after getting an MRI, Blood & Antibody tests (NMO and MOG), and a lumbar puncture. When I had optic neuritis I didn't notice any color changes until my Ophthalmologist covered my left eye and the red paper was suddenly brown. Since then, I have noticed that whenever I get the flu the pain comes back.
Thanks for sharing your story. It's fairly common that people don't notice the color change until covering the normal eye. What you're experiencing with the flu is likely "Uhtoff's phenomenon" which I'm going to do a video on soon.
When you first start having optic neuritis, does the pain comes first?
How are you now?
Thank you ,you told this topic that is very understandable.
my right eye recovers after a year, but my vision is not brighter as another eye, the acuity and the details came back, but sometimes i still feel some minor pain at the back of my eye specially when i am tired and have not enough sleep
Thanks for this information . I found out about mines though a Oberon scan.
This was a Great presentation & very thorough. It will be useful during my next visit to the eye Dr.-- who isn't all the familiar with MS & the fallout related to MS
Please don't forget to post the link to the other video you mentioned about electrophoresis.
It looks like it works. Here is the direct link: ruclips.net/video/yWd0Is_VKtY/видео.html
My very first symptom in primary Progressive multiple sclerosis was vision in just two years I have went from division problem to taking 90 mg of Baclofen a day
i had an episode on holiday in 2000. suddenly it was like a shutter going down in my left eye, i couldnt see, anyway 2016 was diagnosed with PPMS. 2007 i had VEP test and diagnosed bilateral ON. 2016 another VEP which showed worsening again. in between i had attacks of terrible pain in my eye, and also lost colour perception. I had to ask my daughters to pick out paint for me lol as my red would be pink or orange. i often pick out wrong colours. in between 2000 and 2016 i had 3 lesions on my spinal cord in different places. i have steady progession and now 7 on the EDSS.
One year I experienced for the first time 3 episodes of ON and I shortly after that I got pregnant and six years later still no relapse and i now am experiencing the same eye pain for 2 days now. I wounded if it’s comming back although it’s been a while… 🤔 during past ON treatments wasn’t diagnosed MS.
Thank you for such detail and clarity
:)
Thank you for this video
Hey doc, I’m 17 years old and I need your help, will like to ask you some questions that will save my life, learnt a lot watching this but I need to ask you a more profound question 🙏🏼
Sorry, but I wouldn't be able to give you personal medical advice.
I got diagnosed with optic neuritis in my left eye in 2016 and I never recovered the vision 🥺
I have foot drop bad leg weakness i walk with crutches .Severe tinnitus ,pains and cramps all over my body >
.I have just had an episode of this ophthalmology can,t find the problem .My vision has been affected in 1 eye where the colour is less than in the other eye ,when it happened i lst just about all vision in my right eye.I am also now border line diabetic .Had these problems for 5 years and still can not get a diagnosis.
I had idiopathic optic neuritis 14 months ago and was not treated properly by a neuro-opthamologist. He gave me low dose oral prednisone and it did nothing for my blindness. When I got my regular neurologist who was treating me for neuropathy, to give me the course of IV methylprednisolone, it immediately brought back 15% of my sight. So, in my opinion the IV worked. But I am now functionally blind in that eye. The neuro-guy insists that the IV is controversial, even though I have read many studies that indicate it is the FIRST course of action. I wish that my treatment had been better... Now I live with only one eye, and seeing this video made me again sad that my treatment was sub-standard.
The optic neuritis treatment trial showed that IV high dose steroids were more effective than lower dose oral steroids, though I presume that this is due to a difference in dose rather than route as steroid products like prednisone have very high bioavailability (absorption into the gastrointestinal tract).
Thank you Doc! Very informative and all accurate (based on my experience as ON patient)
I'm glad you liked it.
Doc very very nice and informative video, please is azathioprine used in treating retrobulbar neuritis
Thank you very much for mentioning neurosarcoidosis truly one of the most horrific diseases on the planet whenever I speak with my doctors about plasmapheresis they look at me like I'm crazy and just shake their heads and turnaround mumbling they won't even consider it it's very frustrating to be around doctors who are short-sighted and small-minded thank you very much again for this video
I'm glad it was helpful.
I have idiopathic intracranial hypertension. I've had optic neuritis and papilledema.
Great video!
When I was still waiting for a diagnosis, my ON (left eye) was left untreated. About 9 weeks after it began, I felt 3 consecutive buzzes of electricity down the entire right side of my body. After those buzzes, some of my vision returned - it was like somebody flicked a switch! My vision fully recovered after another 4 weeks and 5 day oral methylprednisolone.
I’m still seeking an official diagnosis and have tested negative for AQP-4 and MOG antibodies. All my symptoms completely subsided after methylprednisolone (leg weakness, altered sensation in soles of feet and fingertips, Lhermitte’s sign). Only ever had one attack and don’t meet McDonald Criteria. Could this be CIS?
I have some insight but wouldn't feel comfortable giving direct medical advice. Generally speaking, the key test after optic neuritis is an MRI of the brain.
@@DrBrandonBeaber
With contrast?
What was your vision like when it all began? Like did you had color contrast, dimness, and how much was your acuity? After you recovered did you get everything back to normal or is there some residue left? Appreciate your input into this.
She had COVID(omicron) and after some days of her recovery she is having problems whit her eye vision.
Very informative , thank you
Have you any treatment about optic nerve damage due to trauma and blurr vision can you restore my vision in right eyep please sir tell me
Thank you! Very good video.
Thanks
I do have optic neuritis but and it's been active for 3 years but I don't have any symptoms except small black dots in the eyes and sometimes about 10% loss of vision...
Brilliant .when do you refer to ICU?south africa
?
Eager to learn more from you
Hello doctor. Can stem cell therapy strengthen the nerve and improves the vision.?
I have had this for over 4 + years, im literally blind in my left eye, and am terrified itll happen to my right eye.
I have optic nerve damage for a long time but just found out what can i take to calm inflammation and pain down.im always double vision
Plz let me know methylprednisolone is suitable for optic nerve disease and duration of treatment
A typical treatment of optic neuritis in adults is methylprednisolone 1000mg daily for 3-5 days.
My wife lost her vision due to the tumor that compressed her optic nerve and pituitary gland. The tumor was ectrscted by surgery but my wife never regsined her vision. Kindly sdvise if there are new medical solution to regain her vision. Thanks Bob
I have optic nerve damage. Without glasses I can’t see or read properly on the computer or RUclips videos. I am getting worried now. Please help me. Thanks
What about people with a optic nerve that isn’t fully formed what can be done?
I have NMO and Lupus. In 2016 I lost my vision on my left eye but regained some of it. Two days ago I started experiencing pain in my eye, now my eye can barely see, I cannot see color or small objects. Do I need to go to the ER?
Thank you Dr! I'm having optic neuritis almost 1 year. My question is how long patients with optic neuritis may recover?
It varies widely. Some people recover within days. For others, the recovery is very prolonged an incomplete.
Great explanation and very helpful.
I'm glad it was useful
Can this condition cause swelling around the eye and face?
Brilliant doctor.. please where do you work and do you take patients? I will fly to wherever you are 😉
My doctor said that my optic nerve is weak due to this neuritis. it will will take 1-2 year to improve natirally and if not there is the research is going on and it is in success track. and there may medicine will be available after one year. So what research is going on for visual improvement of weak optic nerve? Do you have any idea about research? Please reply...
I have heal optic nerve 4 years before.. My sight decreased about 20%..thanks god.. But I want a treatment of Utah's phenomenon I want my eye back .. Or i should just wait?
I think I have this. Been blind in one eye for 3 weeks now 😞
Hi I was told in late February that my optic nerves have due to too many optic neuritis attacks I have spent the past three months watching my side absolutely crumble to the point of visual snow has happened my central vision is going fast and sub peripheral in my right eye no doctor will help me where I am as I personally don't think they have dealt with this I am definitely going blind really fast? I am so terrified
After head injury I have optic nerve problem in left eye I can't see anything in left eye I am undergoing treatment in Sankara Netralaya Hospital Chennai doctor said there is less chance of regaining sight in eye.Now I wanted to know if there is a modern treatment for optic nerve or if there is a possibility of getting better.
Sorry, but I would not be able to comment on your specific situation. This video is only about optic neuritis which is probably not the cause of your vision loss. I wish you the best of luck.
Thank you so much
I have an appointment for tomorrow :) previously diagnosed with Fibromyalgia and EDS. I'm expecting more testing for MS due to pain in my eyes when trying to sleep (heavy eyes that feel strained and very painful) wish me luck! :)
I wish you the best of luck. :)
Hello. After my cataract surgery in both eyes i have a grey block in the left eye on my focal point. The Vep test showed nerve weakness. It's been a year and no improvement. Kindly tell me what i should for this.
I have thumb like expression in right eye is it optic neuritis if it's which medicine is best
Dear Dr, would you say there is a link between uveitis and MS or any neurological disorder ? Thank you very much for your time. ❤
I have rare patients with both uveitis and MS, but I don't think there is a clear association.
Thanks for the video, it helped me understand more about it. I have optic neuritis and I have 20/100 vision in my left eye. I started treatment with 1000mg methylpredinisolone for 5 days IV and am now taking 60mg oral prednisolone. My vision went to 20/30, but I still can't distinguish the colors correctly, it's all very blurry and black spots, it's weird.
Doctor, would you have any supplements that could help with the recovery of the optic nerve? For example lutein, zeaxanthin, omega 3 (thinking good amounts of docosahexaenoic acid)?
I would also like to know if I have a chance of my vision returning to normal, as she has already had a good response with the start of treatment. I'm so scared to see it like this forever...
A big hug from Brazil
Hi Pedro
I hope you are well.
Hows your vision now? Did you take any treatment?
@@mirhanan Unfortunately my vision was never the same. It seems that I see through a fog and when my body warms I can't see anything (Uhthoff's phenomenon)
I did 10 sessions 1000 mg methylprednisolone intravenous + immunosuppressive. I am currently not taking anything
@@ReyAloneAloneRey Oh...Sorry to hear that! I hope it will get better.
Did you take plasmapheresis treatment?
Citimate 500 daily 1 tab after breakfast
Nervigen plus daily 1 cap after lunch
omega 3 capsule 1 after dinner
Take 1spoon moringa powder
And for more u can ping me
Hello doc
I'm a myopic patient nowadays I have pain around my left eye and at the left facial side but it usually go away when I do physical exercise. Is these important symptoms of optic nerve damage
Please reply.
Sir mri shows,optic nerves are well in course and form optic chiasm,
My dad is admitted in the hospital from 2/09/2023,after sudden vision loss in right eye,doctor diagnosed optic neuritis. 4 days of IV steriod of methylprednisolone 1gm administered,would my dad will make recovery or not,and in hoe much time
Hi, how was your dad’s recovery after steroids
I have low vision from birth but quite recently I have been experiencing slight pain behind my left eye. I consulted my optician who referred me to a doctor bcos there is swelling on the optic nerve of which im on waiting list to see the doctor. But im panicking at the moment. I need an advice
Hello doc ,last sept my blurred vision starts then i found out that i have congenital cataracts doctor said its ok but my vision is getting much blurred especially the left side then yesterday i went to another hospital i found out that i have optic nueritis and they recomend me to go to the other hospital , i want to ask if theres a cure for this because i am worried with my vision. Thank you doc
Any possibility that if this happens to right eye then the pain radiates to right head bones and swells nerves ?
My case and a question:
2 years ago lost vision completely in my right eye over the course of 5 days. Many opthamaolgy tests, none saw anything. Admitted to hospital to get an MRI. Also had a spinal tap. MRI showed a few small, but unremarkable lesions on brain and neck, but a very inflamed optic nerve. Spinal tap showed the oligobands...(I think that's almost what its called, I don't remember what it's called). Neuro-opthamalogist diagnosed MS, did the high dose steroids, which were MISERABLE. was bed ridden for a month, couldn't eat or even drink water without throwing up. I NEVER want to take steroids like that again. It was worse than the ON. I did recover 100% within 2 months. Have had no symptoms of MS, other than ON. Was put on rituximab within 6 months of dx. I dont want to stay on rituximab (500mg every 6 months) because I don't feel like it's providing any benefit, and don't understand the long term benefits/risks of b cell depleting therapy. Have had MRIs since dx and doctors can't even tell which eye was affected, and say the lesions are "unremarkable".
1) How likely is ON to recur after a full recovery and no symtpoms of MS for 2 years? Will that be my only MS symptom? (I realize you don't have a crystal ball, just seeing if there are any studies or observational data that can help me understand what to expect.
2) Any more information you can provide about rituxan/ocrevus and what the LONG TERM effects could be? I don't want to switch meds, I want to be off them entirely. 3) What does a typical "relapse" look like for an MS patient who's only symptom ever was ON, and it completely resolved?
Sorry. I can't give you any personal advice here. The risk of infection with medications such as rituximab and ocrevus can increase over time with chronic use because immunoglobin levels can decline. People with multiple sclerosis can have different types of relapses. Someone can have optic neuritis and then 5 years later have an entirely different symptom such as numbness, weakness, or clumsiness. Typically people with multiple sclerosis have clear lesions seen on MRI of the brain indicative of this condition.
My brother aged 25 is been effected by optic nurve dieses and lost is vision of left eye completely .... doctors results are negative . saying that.. vision cannot be bring back....so please help us with some type of treatment that brings his vision back ..tq from India
Yes please 🙏
I had a neurologist test me for Devic's disease years ago. What is that, and how does it relate to Optic Neuritis?
Devic disease is an old name for the disease neuromyelitis optica (NMO) which can cause optic neuritis, transverse myelitis, and inflammation in the brain in some cases. About 70% of people with this condition have an antibody called the anti-aquaporin-4 antibody which is likely the test your doctor performed. I may do a separate video on NMO at some point.
Is there any cure for optic nerve damage? Thanks
Got curtain eye in right eye. Was checked for detached retina. Nope. Ischism of optic nerve. Two different doctors can't provide help. Self research reveals Prednisone may help. How do I get some?
Sorry. I can't comment on your specific situation. Many ophthalmologic conditions can cause similar symptoms and can mimic optic neuritis.
How can I book an appointment with you? I'm coming from Florida.
I had ON first in 1996 then again in both eyes 1997. I only need glasses 3 years ago. But my latest script is a huge change. 2 questions. Does past I ON mean my eyesight will get worse and worse? How do I know that my latest glass scrip isnt just me getting ON
Can the optic nerve heal after a couple of years? I've had a lot of optic neuritis in the past. Wonder if there is permanent damage
I’ve had it. There is some permanent damage. You may need glasses/contacts afterwards. My blind spot went away but i ended up needing glasses afterwards
@@Skinner716 I wear glasses and lensen for 25 years now...
Hello Dr. Brandon,
I've got some blur spot on my both eye after a fever for almost seven days with extreme body pain and got lots of red spots on my skin. I've got 2 lab test and it turns out normal. my question is will this blur spot gets worst?
I have optic nerve neuritis in both eyes has anyone been fixed by a doctor thanks
Great information, thank you!
Question- Does someone with MS, and a history of uveitis, have an increased risk of later developing optic neuritis?
MS is linked to optic neuritis, and uveitis is definitely associated with other autoimmune diseases, but I don't think uveitis is specifically linked to optic neuritis.
Hi Dr. Brandon, is using our gadgets also the cause of this?
Not to my knowledge.
Are you accepting new patients?
I had a stroke on brainstem double vision and nystagum most of from stroke i help need help fast
Hello dear Dr
My father had Toxic Optic (Methanol Intoxication)Neuropathy 5 months ago
When he had this disease doctors injected Metylpredinisolon 1000mg 2x after 24 hourse he became will even he was able to drive and write.
But after 1 week being well his both eyes again became dark and darker.
Doctors said that you would be fine but it is a long process to gain your vision
I wanna know would he become fine and gain his vision or not?😢
This is a different condition from optic neuritis and is outside of my expertise, but I hope he recovers his vision over time.