How everything crashed and burned with an adverse reaction to the clinical trial drug. #cancer #cancerclinicaltrial #cancerstory #thymiccarcinoma #malignantthymoma
Dear Caitlin, that’s a bummer that you had a bad reaction and it means that the trial is over for you. Hopefully something better will come up for you. It’s not an easy road. Keep smiling ❤❤❤
Caitlyn, I'm so sorry the clinical trial was such a disaster 😢.. hopefully you get some good news when you visit Brisbane next week . I'm keeping my finger, toes and everything else crossed for you !!! Much love to you and your family xxx
Oh Caitlin I am so sorry that things went so badly, it certainly is a rollercoaster ride! Please know that we are thinking of you and sending so much love and prayers your way xx
Hi Caitlyn. This is Cheryl again, Im using my husband Lesters phone thats why his name comes up. Im a caretaker for my husband Lester who has esophageal cancer and COPD and the last two weeks have been terrible and Im feeling so sorry for myself...I HATE seeing my husband suffer... THEN i watch your videos and feel like an idiot for feeling sorry for myself. You are ALWAYS smiling, no matter what comes your way. You make me realize that when im feeling down or unhappy I need to "suck it up bettercup" and understand that life throws us curves and we must keep smiling and go on. Thank you for that❤ Im so very sorry the clinical trial was a bust but thank heavens you were in the hospital and well taken care of. Lots of love and prayers as always from the beautiful state of Connecticut.
Thanks you once again for such a beautiful comment. How is Lester? I’m fortunate to be a positive person, I think my underlying faith helps in so many ways to remain positive even when there is disappointment. Lots of love to you, it must be very hard watching your husband face such obstacles.
You are so inspirational & strong! You always have a smile on your face and see the humour in things. 😊When you said “4 bed ward“ my jaw dropped, I can remember “living” in the Toowoomba base hospital with 5 other neighbours for two months with the golden staph I had in my wrist. Definitely an extra stress that you didn’t need! Hoping there is something else that can be done with regards to the trial. Always thinking of you and sending heaps of love, hope and good energy your way! From your favourite cousin ❤️
@@caitlinscancerchronicles thanks for asking. Got into remission recently after 4 months of metabolic treatment. Vlogged it here on YT. Now we hope it stays gone, don't know how many more I can handle. But I have 2 young kids, you are a mum with a big family, we must keep going.
Hi Caitlin, so very sorry you went through this bad reaction, hopefully a more suitable treatment will be offered to you. You are such an inspiration to so many, you always have a beautiful smile no matter what. Take care and all the very best, Jules (NZ) 💗
I'm about to start treatment in a week for metastatic endometrial ca. You are a good example of upbeat. Thank goodness Im getting a port this week. Good journey to you ! ❤
All the best, it’s always a head spin at the start of a new treatment. I hope that it does the job and you get good results. Thanks for sharing your journey and let me know how you go!
Just came accross your channel,such a lovely smile caitlin,i really hope they come up with a different drug that agrees with yiur system,love from 🇮🇪 ireland xx
wish i could be there and chat about trials lol you did well considering you havent stayed on your own before, take the power back theres always lumps and bumps you will get through xx
@@caitlinscancerchronicles you got this!! Don’t fear it I find that’s the worst part of this journey as hard as it can be I’m 16 months in now and I look at it more as a chore 😂😂😂💚💐 on and upwards x
Hi, do yourself a favor and watch some videos of professor Thomas Seyfried regarding cancer as a metabolic decease, how it grows and how to beat it without chemo or radiation. You won't be disappointed.
Yes, I’m sure she didn’t realise exactly how loud she was, but I think most thoughtful people who experience a bit of hearing loss would realise that by not wearing hearing aids they are going to be more noisy, and also think many people know that if you talk with a phone on speaker constantly it affects the people nearby. It was also frustrating that even though I have no doubt she was uncomfortable during the night, if she had followed the nurse’s instructions throughout the night it would have alleviated some of the discomfort she was feeling. At least she wasn’t abusive or rude, that would have been far worse.
@@caitlinscancerchronicles I am a very thoughtful person but I am not sure if you understand that when you can’t hear yourself at all, you have no idea what volume you are. My partner has to tell me that I am being too loud and I am always shocked because I had no idea and tried not to be! If I was that Deaf lady and I saw this video I would be so ashamed and upset. After my cancer surgery, some of the nurses were rude to me and did not explain things properly or make an effort to make sure I heard them. It was really hard without my partner there to help with communication. So naturally that made me more distressed. I had severe pain and they ignored me. They kept having to take blood from my difficult veins (I am sharps phobic and had bruises up and down my arms from repeated attempts). I vomited and I probably screamed. I did not mean to upset anyone else. She probably couldn’t understand what the nurses were saying either. I am sure she would have followed instructions if she could! Hearing aids are not strong enough for some of us. I wear mine but I still cannot hear nearly as much as you can. And cochlear implants do not always work. Mine didn’t anyway. Being disabled is really hard and I wish people had more compassion for us, were less judgmental and just kindly told us we are being a bit loud or at least made more effort to communicate with us.
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Dear Caitlin, that’s a bummer that you had a bad reaction and it means that the trial is over for you. Hopefully something better will come up for you. It’s not an easy road. Keep smiling ❤❤❤
The smile is there! Thanks for understanding.
You are the Sweetest Lady, Caitlin❣️Stay Positive…Thank you for sharing your ‘journey!’ God Bless! 🙏💥🌹
Maria from Washington state xoxo
Thanks so much Maria.
Caitlyn, I'm so sorry the clinical trial was such a disaster 😢.. hopefully you get some good news when you visit Brisbane next week . I'm keeping my finger, toes and everything else crossed for you !!! Much love to you and your family xxx
Thanks a bunch!
Oh Caitlin I am so sorry that things went so badly, it certainly is a rollercoaster ride! Please know that we are thinking of you and sending so much love and prayers your way xx
Thanks so much.
So sorry this didn’t work for you. Hugs and prayers for healing❤️🙏🏻🙏🏻
Thanks.
Caitlin I hope things are going better than the veins and no shower!! Keeping you in my prayers!❤🙏🙏🙏🙏🙏🙏
Things are going better than that day! It was a shocker!
Caitlyn, I think of you often - sending you so many good wishes and lots of strength. You are truly inspiring ❤
Thanks Mel. Appreciate the thoughts and prayers.
Hi Caitlyn. This is Cheryl again, Im using my husband Lesters phone thats why his name comes up.
Im a caretaker for my husband Lester who has esophageal cancer and COPD and the last two weeks have been terrible and Im feeling so sorry for myself...I HATE seeing my husband suffer...
THEN i watch your videos and feel like an idiot for feeling sorry for myself.
You are ALWAYS smiling, no matter what comes your way. You make me realize that when im feeling down or unhappy I need to "suck it up bettercup" and understand that life throws us curves and we must keep smiling and go on. Thank you for that❤
Im so very sorry the clinical trial was a bust but thank heavens you were in the hospital and well taken care of. Lots of love and prayers as always from the beautiful state of Connecticut.
Thanks you once again for such a beautiful comment. How is Lester? I’m fortunate to be a positive person, I think my underlying faith helps in so many ways to remain positive even when there is disappointment. Lots of love to you, it must be very hard watching your husband face such obstacles.
You are so inspirational & strong! You always have a smile on your face and see the humour in things. 😊When you said “4 bed ward“ my jaw dropped, I can remember “living” in the Toowoomba base hospital with 5 other neighbours for two months with the golden staph I had in my wrist.
Definitely an extra stress that you didn’t need! Hoping there is something else that can be done with regards to the trial.
Always thinking of you and sending heaps of love, hope and good energy your way!
From your favourite cousin ❤️
Hey Lukey Muffler! So lovely to hear from you. I cannot imagine being on a share ward for so long. You are a legend. Patience of a saint.
Sorry Caitlin, to hear it did not work out for you. I hope they figure out a plan B. Stay strong.
Thanks, it is a shame. I think we are up to Plan I at this stage! Trial was plan H! I’m definitely hanging in there. How are you doing?
@@caitlinscancerchronicles thanks for asking. Got into remission recently after 4 months of metabolic treatment. Vlogged it here on YT. Now we hope it stays gone, don't know how many more I can handle. But I have 2 young kids, you are a mum with a big family, we must keep going.
I am so sorry Caitlin. Something better will come your way.
Thanks.
God bless caulin, hope you have better luck with the treatment, my prayers and good wishes I send to you ❤🎉🎉🎉
Thank you.
So sorry it didn't work out! Hopefully the next one will be more successful 👍xx
Thanks.
Oh Caitlin, I’m so sorry. 😩.
Thanks. xxx
You are just so upbeat and beautiful and kind and sweet through such tough times... Blessings and love to you♥️
Thank you so much!
Bless you and I'm praying that the Lord opens another door for you ❤
Thanks, I appreciate that.
Hi Caitlin, so very sorry you went through this bad reaction, hopefully a more suitable treatment will be offered to you. You are such an inspiration to so many, you always have a beautiful smile no matter what. Take care and all the very best, Jules (NZ) 💗
Thanks so much. Smiling helps, I’m glad others appreciate it.
What a roller coaster! Both physically and emotionally! Sorry the trial didn't work out. Will be praying for some other options to become available.
Keeping you in my prayers❤🙏🙏🙏🙏🙏🙏🙏
Appreciate that.
Sweet one, sorry to hear about the trial fail however, keep faith that something better will show up soon. Sending prayers ans warm hugs to you 💛🙏
Thank you so much for your kindness.
such a brave soul. youre an inspiration. fight the good fight of faith.:)
Thanks Dannie.
I am so so sorry. I will keep prying that there is some answer that will bring you back to full health. Praying for the whole family
Thanks so much.
I'm about to start treatment in a week for metastatic endometrial ca. You are a good example of upbeat. Thank goodness Im getting a port this week. Good journey to you ! ❤
All the best, it’s always a head spin at the start of a new treatment. I hope that it does the job and you get good results. Thanks for sharing your journey and let me know how you go!
Just came accross your channel,such a lovely smile caitlin,i really hope they come up with a different drug that agrees with yiur system,love from 🇮🇪 ireland xx
Feeling the Irish love! ☘️ thanks for commenting!
Bummer. Hope something else comes up for you.❤. Stay strong warrior lady!💪🏼
Staying strong, thanks!!
wish i could be there and chat about trials lol you did well considering you havent stayed on your own before, take the power back theres always lumps and bumps you will get through xx
Thanks Mel, wouldn’t that be lovely to sit in the seat next door! In the meantime, Onwards and upwards!
@@caitlinscancerchronicles you got this!! Don’t fear it I find that’s the worst part of this journey as hard as it can be I’m 16 months in now and I look at it more as a chore 😂😂😂💚💐 on and upwards x
So sorry the trial didn’t work out for you. Perhaps other opportunities will present
Thanks. We’ll try again later for something fancy. For now back to ordinary chemo.
Hi, do yourself a favor and watch some videos of professor Thomas Seyfried regarding cancer as a metabolic decease, how it grows and how to beat it without chemo or radiation. You won't be disappointed.
That’s interesting. I definitely am one of the people he talks about who would like to see more research backing his claims.
Watched this video love...sry it didn't work out
It was a disappointment. :(
I wonder what the Deaf person was going through. I am Deaf and I don’t realise how loud I am sometimes. I hope I haven’t annoyed anyone in hospital!!
Yes, I’m sure she didn’t realise exactly how loud she was, but I think most thoughtful people who experience a bit of hearing loss would realise that by not wearing hearing aids they are going to be more noisy, and also think many people know that if you talk with a phone on speaker constantly it affects the people nearby. It was also frustrating that even though I have no doubt she was uncomfortable during the night, if she had followed the nurse’s instructions throughout the night it would have alleviated some of the discomfort she was feeling. At least she wasn’t abusive or rude, that would have been far worse.
@@caitlinscancerchronicles I am a very thoughtful person but I am not sure if you understand that when you can’t hear yourself at all, you have no idea what volume you are. My partner has to tell me that I am being too loud and I am always shocked because I had no idea and tried not to be! If I was that Deaf lady and I saw this video I would be so ashamed and upset.
After my cancer surgery, some of the nurses were rude to me and did not explain things properly or make an effort to make sure I heard them. It was really hard without my partner there to help with communication. So naturally that made me more distressed. I had severe pain and they ignored me. They kept having to take blood from my difficult veins (I am sharps phobic and had bruises up and down my arms from repeated attempts). I vomited and I probably screamed. I did not mean to upset anyone else.
She probably couldn’t understand what the nurses were saying either. I am sure she would have followed instructions if she could! Hearing aids are not strong enough for some of us. I wear mine but I still cannot hear nearly as much as you can. And cochlear implants do not always work. Mine didn’t anyway. Being disabled is really hard and I wish people had more compassion for us, were less judgmental and just kindly told us we are being a bit loud or at least made more effort to communicate with us.
Warm wishes from NY.
Received!
I’m sorry the trial didn’t work out for you!
Thanks.
Rick Simpson Oil ❤️
Or, if you have any 420 friends, they can make it with a rice cooker.
Sorry, I don't understand this comment!
jeez those chemo drugs must be so toxic
This lot was!
❤❤❤🙏🤗🤗xxx
❤️