Bless you! I was diagnosed in March last week they had to sew my eye in both corners I almost lost it The doctors think my mouth and face won’t improve I prayer I have you progress thank you for sharing
It is. The struggle is that unfortunately you don’t know how long it’s going to last. If it’s going to be a month, six months or even longer. Mine lasted a year until I felt like I actually had my face back but I still have a crooked smile. Days when I am very tired or overly stressed I can actually feel it. Tell her to just listen to her body, sleep as much as she possibly can, take naps and try not to stress about not getting things done. It’s more important to be healthy and take care of yourself than it is to worry about everything else.
It absolutely sucks having RHS, hope you are able to get a good ENT, get plenty of rest and have patience - unfortunately it’s not normally a quick recovery. Take time to feel like yourself again.
Its been 2 months for me with the paralysis, I have it on the left side as well..... Im 29 years old and starting to lose faith that i'll make any recovery from this. :(
I went through that myself. Depression was no joke. It's also very hard to hear someone that never experienced RHS say "it will be ok" or "smile, it's not that bad" ... *insert eye roll The doctors only advocate patience. I was about 4-5 months in when I finally began to get movement. I found that doing the exercises to stretch my face, massage and acupuncture were my go-to. Not sure if it helped, but it "felt" like it helped. I've now had it for a little over a year and will be doing an updated video on my progression. I'm sorry you are going through it, try not to let it get to you too much (easier said than done).. I know.
@@awanderingpalette thank you soo much for your reply. Oddly its nice to see and hear other peoples stories that have been or are going through it. I haven't really researched much on treatment options as doctors have told me to not rush anything and take my time, but with absolutely zero improvement 2 months in, my patience is wearing. I'd love to know about some PT excersices I could do to help stretch the muscles and such, just not sure if I need to wait for any natural movent to occur ( if it ever will). My issue in my head with it is,, "do I wait and see if it comes on it's own? Or do I get on top of potential treatments, such as acupunctuer, massage, electro therapy.. will it cause and uneccessary damage doing so if it will come on it's own.. Basically I'm over thinking it,, due to good reason as you would understand. Most people would want to find any solution to this problem lol.. Again though I do thank you so very much for your time to reply tome and for the fact you made this informative video!!! I hope all the best for your self. And I'll do my best to remain hopeful, motivated and to persevere through this anomaly!!
There is a video on RUclips about some of the exercises. ruclips.net/video/I1IHWCgObsk/видео.html Bells Palsy is really the same thing (minus the shingles) and found a couple of doctors that ran through facial exercises for palsy patients. I practiced daily trying to make a “kissy” face. Would try and open my eyes as much as possible then shut them. Ran through the alphabet, trying to emphasis every letter (especially the vowels). It was four months for me until I saw improvement. I do think the acupuncture helped (and I HATE needles.. lol) The acupuncturist that I went to, did all kinds of research to try and help me and she would concentrate on my face but also made sure she worked on the pressure points throughout my body. Also; Sleep.. sleep as MUCH as you can, was told nerves heal but really really slowly. I still have issues with my affected eye and can feel the tightness in my face somedays. Look up Mike Shoreman, massive inspiration, he was diagnosed around the same time I was, his video will be hard to watch and I ugly cried but it helped, it helped to know that even though this “crap” happened to us, we are not alone.
It took 6 months before I had change, unfortunately it takes time, lots of sleep and as little stress as possible. I hope she has a quick recovery ❤️🩹
vaudreuil777 it does improve.. it is so damn hard though to get through it but don’t give up hope! Just sleep as much as you can. Let your body heal. I still have to do that. I’ve learned to listen to my body and know when I need to rest.
Thanks for sharing. I had the first symptoms 2024-06-15 of RHS. I ended up in the hospital due to headache and earpain. It took a week to figure out it was RHS because the rash in the ear and facial paralysis showed up after a week. Once diagnosed i got antiviral and prednisolon for a week. Severe Vertigo and needed help to visit the bathroom. After two weeks finally home from the hospital. Still trying to understand what is going on. A lot of pain behind and below the ear.
You are very welcome and I am very sorry you were going for it. My best advice take naps every moment you can. I was thankfully recovering from knee surgery so I was able to nap and I think that was the biggest thing to help me recover. Less Stress.
Three months later and a bit better. The pain is almost gone. Facial paralysis is much better but still some problems with the eye. tinnitus has got worse and can not hear much on the affected ear. I hope it gets better. Vertigo is still a problem but not as bad as before.
@@ottofrost404 that’s awesome news! Take the win. I know your struggle but sounds like your body is healing, just take so much more time with RHS - as my doctor said, it’s miles of nerve damage and nerves heal very slow.
Have you reached out to your doctors? It's been over a year now and I still have issues. If you haven't tried acupuncture, I recommend, I think it was the main reason I did improve. As far as my doctors went, well they were truly not much help. Was told constantly..."you just need patience." One doc wanted to to surgery right away and I refused. There is a facebook group for RHS you should join, it is the best thing I did mentally. Having the ability to discuss with others that understand and have the same problems, kept my sanity. If I were upset, it is a great place to let off that frustration and I knew those that are there, REALLY got it. Sleep was also my biggest lifesaver, granted I was home recovering from knee surgery when this occurred so sleeping was not an issue, but I found that getting back to work was really what helped me increase my stamina, I no longer feel like I need a nap everyday (which is really amazing). I am sorry you are going through this, RHS sucks, it really does.
hi! thanks so much for ur video abt RHS. u gave me some hope for the recovery. it has been my day 27 of RHS. did u take antiviral and steroid together rightaway? I was misdiagnosed bell's palsy at first and the doc didnt give me antiviral and rediagnosed RHS 12 days later and took the antiviral for 4 days. I also tried acupuncture at day 16 and still having it 3 times a week. But I am not getting any better...im so helpless... wt should i do now?
I didn't start the anti-virals until 14 days after it occured. It is definitely hard and frustrating, feels like no one understands (especially the doctors). I hate the word but you have to have patience. I'm 295 days in; about month 6 I really started to improve. I am still tight on the affected side, but I can smile more now. Make sure you sleep as much as you can. Nap often. Take breaks. Do you have vertigo or any other symptoms? Everyone seems to be different in regards to how quickly they recover. Check out the facebook support group for Ramsay Hunt, it is definitely a place you can vent, ask questions and feel like you are not the only one.
Awaken Your Joy Thank you! I read lots of researches about RHS, all of them stated that only about 50% can recover if the pailtient didnt take antivirals on time. I was really scared...I had vertigo before I was diagnosed. I am just having headache and tinnitus. I have joined the FB Group, really need to find someone who understand the pain...I have seen 5 doctors already, but only 1 can diagnose me as RHS......I hope u can get better soon❤️
kaylaho you too! It’s such a frustration when it feels like no one listens. Definitely keep up the fight. Call the doctor everytime you have questions. I hope you have a speedy recovery!!
How are you doing with it? My two-month mark was hard, felt like I would never recover. Month 4-6 I started seeing changes. Recommend getting plenty of rest in the first 6 months.
@@awanderingpalette Im slowly getting some movement in my face. A little bit of vertigo, not bad just a tad light headed. Sometimes i get tired in the middle of the day. The Zygomatic muscle in my face seems to be the last to get any movement.
Phil M that's good, I tried acupuncture. I was desperate for anything to help. I think it did. Right now I seem to be stuck.. Very slow improvement; about 80-90% recovered.
I just got RHS last week. I'm so happy to see your recovery. You have given me hope thank you.
My advice, get plenty of rest, drink lots of water, try not to stress and get to an ENT doc ASAP.
I got RHS Nov 16th 2021. Vertigo is horrible. Thank-you for the video. Gives me hope.
It was bad for me for about 3 months and now just randomly happens - usually when stressed or tired.
I have ramsey hunt too, thank You for Video🙏🏻
Bless you! I was diagnosed in March last week they had to sew my eye in both corners I almost lost it The doctors think my mouth and face won’t improve I prayer I have you progress thank you for sharing
Requires time to heal. Get plenty of rest. Personally, I decided to wait to see how my body recovered. Highly recommend taking LOTS of naps.
Thank you for these videos. Please keep us updated.
You are welcome. I plan on doing another update soon!
@@awanderingpalette My wife was diagnosed Sunday. It’s so hard to see her battle this.
It is. The struggle is that unfortunately you don’t know how long it’s going to last. If it’s going to be a month, six months or even longer. Mine lasted a year until I felt like I actually had my face back but I still have a crooked smile. Days when I am very tired or overly stressed I can actually feel it.
Tell her to just listen to her body, sleep as much as she possibly can, take naps and try not to stress about not getting things done. It’s more important to be healthy and take care of yourself than it is to worry about everything else.
Keep the hope, you are doing great progress, by the way your final images are so fantastic!!!
Franz Cesar thank you!! Somedays are much better than others.
I'm STOKED for you!!!
Thank you - I hope 🤞🏼 you have a speedy recovery. Get with an ENT as soon as possible, if you haven’t already.
It’s been 2 months for me, I start to move my forehead. You give me hope. Thank you 🥺💜 (sorry by my English I’m from Chile🇨🇱)
@@guisellenarrias9801 that’s amazing, how is your recovery going?
Thank you! In my 5th week of RHS and trying to deal with it.
It absolutely sucks having RHS, hope you are able to get a good ENT, get plenty of rest and have patience - unfortunately it’s not normally a quick recovery. Take time to feel like yourself again.
Its been 2 months for me with the paralysis, I have it on the left side as well..... Im 29 years old and starting to lose faith that i'll make any recovery from this. :(
I went through that myself. Depression was no joke. It's also very hard to hear someone that never experienced RHS say "it will be ok" or "smile, it's not that bad" ... *insert eye roll
The doctors only advocate patience. I was about 4-5 months in when I finally began to get movement. I found that doing the exercises to stretch my face, massage and acupuncture were my go-to. Not sure if it helped, but it "felt" like it helped.
I've now had it for a little over a year and will be doing an updated video on my progression. I'm sorry you are going through it, try not to let it get to you too much (easier said than done).. I know.
@@awanderingpalette thank you soo much for your reply. Oddly its nice to see and hear other peoples stories that have been or are going through it. I haven't really researched much on treatment options as doctors have told me to not rush anything and take my time, but with absolutely zero improvement 2 months in, my patience is wearing. I'd love to know about some PT excersices I could do to help stretch the muscles and such, just not sure if I need to wait for any natural movent to occur ( if it ever will). My issue in my head with it is,, "do I wait and see if it comes on it's own? Or do I get on top of potential treatments, such as acupunctuer, massage, electro therapy.. will it cause and uneccessary damage doing so if it will come on it's own.. Basically I'm over thinking it,, due to good reason as you would understand. Most people would want to find any solution to this problem lol.. Again though I do thank you so very much for your time to reply tome and for the fact you made this informative video!!! I hope all the best for your self. And I'll do my best to remain hopeful, motivated and to persevere through this anomaly!!
There is a video on RUclips about some of the exercises.
ruclips.net/video/I1IHWCgObsk/видео.html
Bells Palsy is really the same thing (minus the shingles) and found a couple of doctors that ran through facial exercises for palsy patients. I practiced daily trying to make a “kissy” face. Would try and open my eyes as much as possible then shut them. Ran through the alphabet, trying to emphasis every letter (especially the vowels).
It was four months for me until I saw improvement. I do think the acupuncture helped (and I HATE needles.. lol)
The acupuncturist that I went to, did all kinds of research to try and help me and she would concentrate on my face but also made sure she worked on the pressure points throughout my body.
Also; Sleep.. sleep as MUCH as you can, was told nerves heal but really really slowly.
I still have issues with my affected eye and can feel the tightness in my face somedays.
Look up Mike Shoreman, massive inspiration, he was diagnosed around the same time I was, his video will be hard to watch and I ugly cried but it helped, it helped to know that even though this “crap” happened to us, we are not alone.
My daughter RHS 37 days nothing change yet..Bravo for you💞😗🇬🇷
It took 6 months before I had change, unfortunately it takes time, lots of sleep and as little stress as possible. I hope she has a quick recovery ❤️🩹
@@awanderingpalette thank you for the hope end wishes thanks God every day .sorry for English
Kiss from Greece🇬🇷💞😍😗
You give me some hope
vaudreuil777 it does improve.. it is so damn hard though to get through it but don’t give up hope! Just sleep as much as you can. Let your body heal. I still have to do that. I’ve learned to listen to my body and know when I need to rest.
@@awanderingpalette Thanks!
Thanks for sharing. I had the first symptoms 2024-06-15 of RHS. I ended up in the hospital due to headache and earpain. It took a week to figure out it was RHS because the rash in the ear and facial paralysis showed up after a week. Once diagnosed i got antiviral and prednisolon for a week. Severe Vertigo and needed help to visit the bathroom. After two weeks finally home from the hospital. Still trying to understand what is going on. A lot of pain behind and below the ear.
You are very welcome and I am very sorry you were going for it. My best advice take naps every moment you can. I was thankfully recovering from knee surgery so I was able to nap and I think that was the biggest thing to help me recover. Less Stress.
Three months later and a bit better. The pain is almost gone. Facial paralysis is much better but still some problems with the eye. tinnitus has got worse and can not hear much on the affected ear. I hope it gets better. Vertigo is still a problem but not as bad as before.
@@ottofrost404 that’s awesome news! Take the win. I know your struggle but sounds like your body is healing, just take so much more time with RHS - as my doctor said, it’s miles of nerve damage and nerves heal very slow.
@@ottofrost404how many days yu feel pain continiously
@@awanderingpalette how many days you feel pain and how you know this is rhs syndrome any shingles appear on face plzz rply
Mine is 2 years in ..Prayers..I really need hope and more help
Have you reached out to your doctors? It's been over a year now and I still have issues. If you haven't tried acupuncture, I recommend, I think it was the main reason I did improve. As far as my doctors went, well they were truly not much help. Was told constantly..."you just need patience." One doc wanted to to surgery right away and I refused.
There is a facebook group for RHS you should join, it is the best thing I did mentally. Having the ability to discuss with others that understand and have the same problems, kept my sanity. If I were upset, it is a great place to let off that frustration and I knew those that are there, REALLY got it.
Sleep was also my biggest lifesaver, granted I was home recovering from knee surgery when this occurred so sleeping was not an issue, but I found that getting back to work was really what helped me increase my stamina, I no longer feel like I need a nap everyday (which is really amazing).
I am sorry you are going through this, RHS sucks, it really does.
hi! thanks so much for ur video abt RHS. u gave me some hope for the recovery. it has been my day 27 of RHS. did u take antiviral and steroid together rightaway? I was misdiagnosed bell's palsy at first and the doc didnt give me antiviral and rediagnosed RHS 12 days later and took the antiviral for 4 days. I also tried acupuncture at day 16 and still having it 3 times a week. But I am not getting any better...im so helpless... wt should i do now?
I didn't start the anti-virals until 14 days after it occured. It is definitely hard and frustrating, feels like no one understands (especially the doctors). I hate the word but you have to have patience. I'm 295 days in; about month 6 I really started to improve. I am still tight on the affected side, but I can smile more now. Make sure you sleep as much as you can. Nap often. Take breaks. Do you have vertigo or any other symptoms? Everyone seems to be different in regards to how quickly they recover. Check out the facebook support group for Ramsay Hunt, it is definitely a place you can vent, ask questions and feel like you are not the only one.
Awaken Your Joy Thank you! I read lots of researches about RHS, all of them stated that only about 50% can recover if the pailtient didnt take antivirals on time. I was really scared...I had vertigo before I was diagnosed. I am just having headache and tinnitus. I have joined the FB Group, really need to find someone who understand the pain...I have seen 5 doctors already, but only 1 can diagnose me as RHS......I hope u can get better soon❤️
kaylaho you too! It’s such a frustration when it feels like no one listens. Definitely keep up the fight. Call the doctor everytime you have questions. I hope you have a speedy recovery!!
Kaylaho did you recovered?
I'm 2 months into RHS.
How are you doing with it? My two-month mark was hard, felt like I would never recover. Month 4-6 I started seeing changes. Recommend getting plenty of rest in the first 6 months.
@@awanderingpalette Im slowly getting some movement in my face. A little bit of vertigo, not bad just a tad light headed. Sometimes i get tired in the middle of the day. The Zygomatic muscle in my face seems to be the last to get any movement.
Phil M that's good, I tried acupuncture. I was desperate for anything to help. I think it did. Right now I seem to be stuck.. Very slow improvement; about 80-90% recovered.
Has the eyebrows and forehead on your face worked
Quân Minh they are still not moving like they used to. About 75% recovered.
:)
; )