Very good, clear concise and informative video. Could be improved if the soundtrack volume was turned down as the music obscures what's being said at some points in the interview.
My Cauda Equina Syndrome was caused by a virus so there is nothing to see on imaging. Other than the absence of back injury, I present absolutely classic CES. I got sick 8 years ago. My bowels came back to functionality, but my bladder dis not. My legs are very weak and I am mostly bed bound with pain. Thank you for a well done presentation. Look forward to seeing the results of your work. Thank you!
Ditch the bop-bop-bop-bop loud background music! Impossible to clearly hear him speak! I couldn't get past the 3 minute mark for the loud, annoying, background noise. So far did not hear anything different than any other source on CES.
Think I got the Equina.😕 Missed the sos window for emergency surgery. Waiting for the stamp on my hunch from spine surgeon. I have all the symptoms. Onwards and upwards, donkey. Adjust and adapt, right? EXCELLENT VIDEO, SIR! 🙏
I've had back pain for 5 years now its now causing my legs to have pain when i walk but getting no help from my doctors i need help, now effecting my legs
10:56 I had it twice last year, one surgery then 3 weeks later it happened again. It was thr worst time of my life! I was left after a positive mri scan, they failed to send me anywhere. 15 days later i had to call an ambulance as i became incontinent and numb, severe pain and couldn't feel my right foot. I have issues with S1/L5 as well as L4/L3/L2 and severe spinal stenosis. I'm 44 and now very limited in what i can do. I had only two physiotherapist appointments and thats it!
Hi doc I had an emergency surgery L5 S1 my badder stopped functioning before surgery after weeks I’m still on catheter n having problems in bowel movement saddle area still numb other than that don’t have any problems I’m 46 fit and healthy how long I’ll have to stay on catheter?
Good day, after my microdiscetomy L5S1 surgery last july 29,2021 im having my cauda equina syndrome. Thankfully i can walk, but right now im doing my straight catheter in order for me to pass urine. After 6months i will be going back for mg urodynamics exam. I just want to ask how do i be able to get back my urination, i have the sensation if my bladder is full but it needs a catheter to be able to drain it and thats what im doing in now.
The background music is very annoying and not necessary. It spoils the interview.
Thank you for your comment - this is helpful - we will re do with subtitles as well!
Great video, nice to see this expert talking about the need for integration of care for those of us living with this condition.
Very good, clear concise and informative video.
Could be improved if the soundtrack volume was turned down as the music obscures what's being said at some points in the interview.
Thank you - we will address this . We’ve had a few comments saying the same !
My Cauda Equina Syndrome was caused by a virus so there is nothing to see on imaging. Other than the absence of back injury, I present absolutely classic CES. I got sick 8 years ago. My bowels came back to functionality, but my bladder dis not. My legs are very weak and I am mostly bed bound with pain. Thank you for a well done presentation. Look forward to seeing the results of your work. Thank you!
Difficult to discern voice audio with music so loud.
Such a really good interview, so informative and he explained ces in understandable detail. Saving this video to help explain to DWP.
Thank you for your comment what a great idea - we’ll share that with our support group members !
I am an in-complete CES suffer. Just wanted to add my comment and say that this video was very good and also very helpful
I learnt so much from him!
Most enlightening video I have all the symptoms of CES and is seeking to address it urgently and thanks
Ditch the bop-bop-bop-bop loud background music! Impossible to clearly hear him speak! I couldn't get past the 3 minute mark for the loud, annoying, background noise. So far did not hear anything different than any other source on CES.
I Wish He Was Here .. 😐🇳🇿
Think I got the Equina.😕
Missed the sos window for emergency surgery.
Waiting for the stamp on my hunch from spine surgeon.
I have all the symptoms.
Onwards and upwards, donkey.
Adjust and adapt, right?
EXCELLENT VIDEO, SIR! 🙏
Cut the music!!!
I've had back pain for 5 years now its now causing my legs to have pain when i walk but getting no help from my doctors i need help, now effecting my legs
10:56
I had it twice last year, one surgery then 3 weeks later it happened again. It was thr worst time of my life! I was left after a positive mri scan, they failed to send me anywhere. 15 days later i had to call an ambulance as i became incontinent and numb, severe pain and couldn't feel my right foot. I have issues with S1/L5 as well as L4/L3/L2 and severe spinal stenosis. I'm 44 and now very limited in what i can do. I had only two physiotherapist appointments and thats it!
Did you sue them
@@aliceainscough1858 I am in the process now. It's extremely stressful 😕
Hi doc
I had an emergency surgery L5 S1 my badder stopped functioning before surgery after weeks I’m still on catheter n having problems in bowel movement saddle area still numb other than that don’t have any problems I’m 46 fit and healthy how long I’ll have to stay on catheter?
I have this and it’s a nightmare. I had emergency surgery but even after Surgery I suffer
Me too
How do you guy's still have pain?
@@eiraparker6987is your condition same
Good day, after my microdiscetomy L5S1 surgery last july 29,2021 im having my cauda equina syndrome. Thankfully i can walk, but right now im doing my straight catheter in order for me to pass urine. After 6months i will be going back for mg urodynamics exam. I just want to ask how do i be able to get back my urination, i have the sensation if my bladder is full but it needs a catheter to be able to drain it and thats what im doing in now.
Hello sir, from India I suffered from CES gone surgery past 8 months back but still on cathedral, can you please help
I'm also suffering from ces
What's ur age brother
Sandeep have you joined our Facebook support group via the website ? It’s called Cauda Equina Syndrome Support group ( based in UK )
@@deepakrathore7723 35
@@deepakrathore7723 can we have discussion
Great explanation..to my knowledge.."it starts developing roots" is inaccurate..aren't those cauda equina nerves there irrespective?
Is genital tingling a symptom?
Onset of equdia