I don't know how I missed this video! Great information as always. Just had my sixth infusion of ocrevus this week and just being very cautious about being out and about. When I have to be I wear a mask. Love that the cool fall weather has arrived :-)
Dr Boster your video this morning made me think of another question, if someone with MS contracts the Covid virus are they at a greater risk of triggering a relapse?
I start Gilenya on June 4th. I am nervous and excited. I am also proud of myself following through. I was on Avonex for 2 years and I suffered severe depression and suicidal thoughts on this medication. I was in the process of changing doctors and my prescription ran out and I just stopped. I honestly felt better then I had in a very long time. So I was very reluctant to start any dmt. A couple years ago I was in the process of starting Gilenya and my blood test showed I had no chicken pox DNA, I know there is a medical term for this, so I had y be vaccinated and it ended up being a 12 week process. I just didn't care about it anymore. I was to depressed to care about anything then. I had been working at a restaurant that closed the end of January. So I took this as an opportunity to start Gilenya and get used to it and no have to worry about how it will effect my job. I just don't have one. I have also talked about it with my husband and he is going to watch out for me and side effects. I have had some severe side effects from a few medications. But I know now what is normal for me so I can hopefully recognize any thing that could be wrong. I have to say that I decided to get back on medication because of you. I watched a video of yours where you talked about how DMTs are not helping us today but years down the road. You used the example of how not being medicated now is like shooting holes in a support wall and how it will work until one day the wall collapse Thank you Dr. B!
Thank you so much for this! I appreciate all the info regarding COVID, it helps me sleep at night knowing that I'm not walking around with a target on my back due to MS.
I would love to see an update about all of this now that we have so much more data. Could you do a follow up of COVID-19 lessons learned in regards to Multiple Sclerosis patients? I am still terrified of getting it. I am greatly concerned about long haul given that having an EBV reactivation is a now a known risk factor. Hearing some real results from what you've seen in clinic would be wonderful. Thank you!
I am very delighted that I asked you to do this video. SO Many MS Patients and Care Partners need to know this information -- Regards, Stuart from MS Views and News (want to pin?)
Exactly my question. Cytokine storm is killing people with overactive immune systems . When having a cytokine storm, an immune suppressor is given to try to lower the cytokine storm
Thanks for the update! Covid has certainly messed up my dmt schedule. I'm going for my tysabri infusion later this week after missing months in a row. between all 3 of us in my family getting sick from late January through early March I was worried we had the virus. Having already pulling myself thro rebound disease 2 years ago(long story). I have zero desire to do that again. So my ? Would be what are you're thoughts on tysabri and immune suppression? I've been told different things and if love to hear ur opinion in these scary days. Minnesota is still unstable and on the rise but since restrictions have lifted slightly it's like no one cares anymore. My Neuro team feels the risk of waiting any longer is too high and the last "black hole" was apparently very close to "an area we don't want to see this since it can affect autonomic functions had it decided to manifest a few cm (here)". Quote from my Neuro while we reviewed the MRI I had after 5 mo w/o infusions. I'm feeling like I'm stuck between a rock and a hard place. Risk covid infection since I have many high risk factors? Or wait longer to infuse and risk rebound disease for a 2nd time? Any insight would be appreciated! Sorry this turned into a novella. My cog function sucks so I hope i made sense. Thanks for all you do!
Thank you for another informative video. I just had my first video follow up with my neurologist Friday. This was something she talked to me about. Maybe because I’m in Alaska and we have so few cases compared to national numbers I have no fear.
Hallo Aaron, thank you for explaining this. My husband is a high risk patient . He is over 60, has Diabetes Type 2, is overweight. So we are in self quarantine. I am only leaving the house for doctors appointments, physical therapy and groceries once a week. Wearing face masks, sanityzing my hands and changing clothes and towels regularly seems to help as well. But I am still afraid that we might catch the virus somewhere out there. Covid-19 has changed our life completely. I cannot visit my mother, I am not allowed to meet my grandchildren. My son couldn't come home fora visit, cause he is living in France and all borders were closed. All social events are forbidden. Hope you are safe and healthy! How is your clinic doing? Maybe you can film the clinic now as it's running?? Have a wonderful Tuesday, my best regards, Britta
@@AaronBosterMD - it's HUGE. I have heard so many differing "opinions" on this topic. To have something this definitive from an MS specialist is fantastic. I'll be amplifying this message through FUMS, Patients Getting Paid. MS.net, and Healthline. Thanks, as always.
Hello Dr. Boster. I have MS and work in a ltc facility. I have been in a wash out period and my Dr. wants to start me on a new medication. He is worried due to pandemic to start me on medications. What's your thoughts about working hand in hand with patients in LTC facilities or even hospitals while taking immunosuppressents?
Doesn’t MS abruptly exacerbate the cytokines storm that kills patients with covid19? Doesn’t an overly active immune system kill you with a cytokine storm whereas a normal immune system does not develop the cytokine storm
What are the best vitamin supplements to take with multiple sclerosis? I’m aware of taking vitamin D but is there a best dosage and what other supplements are good?
You don't mention obesity as a risk factor. I was under the impression that a Covid-19 infection was an altogether riskier affair if one was clinically obese. BMI >30 . Is this correct?
He addressed this in videos in March. I recall that T cells fight infection so with Ocrevus depleting B cells, infection can still be fought, but watch videos yourself.
Outside of hospital to get blood tests they took my temperature many times. It was hot out but the scan thermometer said I had a temp of 100. Told to wait in the shade. Retested and temp had gone up. Yes I’m very heat sensitive with my MS. But I didn’t know it would raise my temp. What gives? Thanks.
Yeah with this pandemic we always scared and afraid to go out but you know we gotta go and buy stuff like groceries and stuff like that.... dealing with Ms is already bad so makes it worse with this pandemic going on
Question totally unrelated to this topic. What are your thoughts on Cosentyx for treating MS???? Another case of nature being too generous gifting MS an Psoriatic Arthritis.
Thank you for your video Dr. Boster. Now my wife recently had an Ocrevus transfusion. Would that put her at a more higher risk for a severe reaction to Covid 19? Would Ocrevus make her immunocompromised?
Thank you Dr Boster for all that you do.
My pleasure!
This is what I explained to my children and grandchildren.
Thank you Dr Booster. Glad you keep us informed during this pandemic
You bet!
Thanks for the ongoing care that you give and the education.
I don't know how I missed this video! Great information as always.
Just had my sixth infusion of ocrevus this week and just being very cautious about being out and about. When I have to be I wear a mask. Love that the cool fall weather has arrived :-)
Dr Boster your video this morning made me think of another question, if someone with MS contracts the Covid virus are they at a greater risk of triggering a relapse?
ruclips.net/video/XqQWlTOL4sY/видео.html
I start Gilenya on June 4th. I am nervous and excited. I am also proud of myself following through. I was on Avonex for 2 years and I suffered severe depression and suicidal thoughts on this medication. I was in the process of changing doctors and my prescription ran out and I just stopped. I honestly felt better then I had in a very long time. So I was very reluctant to start any dmt. A couple years ago I was in the process of starting Gilenya and my blood test showed I had no chicken pox DNA, I know there is a medical term for this, so I had y be vaccinated and it ended up being a 12 week process. I just didn't care about it anymore. I was to depressed to care about anything then. I had been working at a restaurant that closed the end of January. So I took this as an opportunity to start Gilenya and get used to it and no have to worry about how it will effect my job. I just don't have one. I have also talked about it with my husband and he is going to watch out for me and side effects. I have had some severe side effects from a few medications. But I know now what is normal for me so I can hopefully recognize any thing that could be wrong. I have to say that I decided to get back on medication because of you. I watched a video of yours where you talked about how DMTs are not helping us today but years down the road. You used the example of how not being medicated now is like shooting holes in a support wall and how it will work until one day the wall collapse Thank you Dr. B!
Thanks so much for the knowledge you provide ❤
Amazing video as always thank you very much Dr B. Be well stay well
Thank you so much for this! I appreciate all the info regarding COVID, it helps me sleep at night knowing that I'm not walking around with a target on my back due to MS.
I have been wondering these questions since day 1 of The New World. Thank you for answering!
you are very welcome phyr3fly!
I would love to see an update about all of this now that we have so much more data. Could you do a follow up of COVID-19 lessons learned in regards to Multiple Sclerosis patients?
I am still terrified of getting it. I am greatly concerned about long haul given that having an EBV reactivation is a now a known risk factor. Hearing some real results from what you've seen in clinic would be wonderful. Thank you!
Just finished lemtrada March 20th
I was wondering that exact thing. Thank you Dr.
I am very delighted that I asked you to do this video. SO Many MS Patients and Care Partners need to know this information -- Regards, Stuart from MS Views and News (want to pin?)
Jump to 1:00 to skip the intro stuff. Thanks for the video.
Thank you!? Aaron!!
Hey Doc. As usual, a wonderful video. Thanks for the clarification and reassurance. Please stay healthy ...we rely on you so much.
Love to River.
Thank you dr.
Thank u 💕. But Question are we at higher risk to get cytokine storm since our immunsystem already is in overdrive? Take care 💕🙏
Exactly my question. Cytokine storm is killing people with overactive immune systems . When having a cytokine storm, an immune suppressor is given to try to lower the cytokine storm
Shared EVERYWHERE! ❤️
Thank you for the video on Covid and ms.
Thanks for the update! Covid has certainly messed up my dmt schedule. I'm going for my tysabri infusion later this week after missing months in a row. between all 3 of us in my family getting sick from late January through early March I was worried we had the virus. Having already pulling myself thro rebound disease 2 years ago(long story). I have zero desire to do that again. So my ? Would be what are you're thoughts on tysabri and immune suppression? I've been told different things and if love to hear ur opinion in these scary days. Minnesota is still unstable and on the rise but since restrictions have lifted slightly it's like no one cares anymore. My Neuro team feels the risk of waiting any longer is too high and the last "black hole" was apparently very close to "an area we don't want to see this since it can affect autonomic functions had it decided to manifest a few cm (here)". Quote from my Neuro while we reviewed the MRI I had after 5 mo w/o infusions. I'm feeling like I'm stuck between a rock and a hard place. Risk covid infection since I have many high risk factors? Or wait longer to infuse and risk rebound disease for a 2nd time? Any insight would be appreciated! Sorry this turned into a novella. My cog function sucks so I hope i made sense. Thanks for all you do!
Thank you for another informative video. I just had my first video follow up with my neurologist Friday. This was something she talked to me about. Maybe because I’m in Alaska and we have so few cases compared to national numbers I have no fear.
Thank you for everything you do!
You're welcome Cindy! #StrongerTogether #WeHaveMS
Aaron Boster MD your the reason I have hope!
Hallo Aaron, thank you for explaining this. My husband is a high risk patient . He is over 60, has Diabetes Type 2, is overweight. So we are in self quarantine. I am only leaving the house for doctors appointments, physical therapy and groceries once a week. Wearing face masks, sanityzing my hands and changing clothes and towels regularly seems to help as well.
But I am still afraid that we might catch the virus somewhere out there.
Covid-19 has changed our life completely. I cannot visit my mother, I am not allowed to meet my grandchildren. My son couldn't come home fora visit, cause he is living in France and all borders were closed. All social events are forbidden.
Hope you are safe and healthy! How is your clinic doing? Maybe you can film the clinic now as it's running??
Have a wonderful Tuesday, my best regards, Britta
So good to know!!
its been a bit but i am here for the intro!
Awesome and to the point - as always
Thanks! I feel like it's an important point for folks to understand. #FUMS
@@AaronBosterMD - it's HUGE. I have heard so many differing "opinions" on this topic. To have something this definitive from an MS specialist is fantastic. I'll be amplifying this message through FUMS, Patients Getting Paid. MS.net, and Healthline. Thanks, as always.
Hello Dr. Boster. I have MS and work in a ltc facility. I have been in a wash out period and my Dr. wants to start me on a new medication. He is worried due to pandemic to start me on medications. What's your thoughts about working hand in hand with patients in LTC facilities or even hospitals while taking immunosuppressents?
Doesn’t MS abruptly exacerbate the cytokines storm that kills patients with covid19? Doesn’t an overly active immune system kill you with a cytokine storm whereas a normal immune system does not develop the cytokine storm
What are the best vitamin supplements to take with multiple sclerosis?
I’m aware of taking vitamin D but is there a best dosage and what other supplements are good?
You don't mention obesity as a risk factor. I was under the impression that a Covid-19 infection was an altogether riskier affair if one was clinically obese. BMI >30 . Is this correct?
yes. I plain forgot to include that risk factor. TY for brining it up Dom.
I’m on Ocrevus. Isn’t it an immune suppressant?
He addressed this in videos in March. I recall that T cells fight infection so with Ocrevus depleting B cells, infection can still be fought, but watch videos yourself.
I have hashimotos as well dd oies and this make me more likely to be a risk?
Outside of hospital to get blood tests they took my temperature many times. It was hot out but the scan thermometer said I had a temp of 100. Told to wait in the shade. Retested and temp had gone up. Yes I’m very heat sensitive with my MS. But I didn’t know it would raise my temp. What gives? Thanks.
Hello dr what about high risk hpv and Ms? Can you still get vaccination?
Yeah with this pandemic we always scared and afraid to go out but you know we gotta go and buy stuff like groceries and stuff like that.... dealing with Ms is already bad so makes it worse with this pandemic going on
Dr.,will Ocrevus make one more susceptible to said virus?
I think so but I am not the doctor
Question totally unrelated to this topic. What are your thoughts on Cosentyx for treating MS???? Another case of nature being too generous gifting MS an Psoriatic Arthritis.
Thank you for your video Dr. Boster. Now my wife recently had an Ocrevus transfusion. Would that put her at a more higher risk for a severe reaction to Covid 19? Would Ocrevus make her immunocompromised?
ruclips.net/video/eo_e-d2tJeg/видео.html
How do I get a consultation with you
Call 614-304-3444. You can find us online as well at BosterMS.com