Guide to deaf culture (please don't take this too seriously)[OC] English/Español
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- Опубликовано: 7 сен 2024
- I hope you have enjoyed the video, please feel free to add things in the comments.
Link to my Gofundme for a second cochlear implant (please don't feel any obligation to donate):
gofund.me/6b07...
My Instagram: / nellefindlay
Nice video! Thank you for sharing with us and helping us understand more the deaf community, we need more awareness about disabled people in general, society tends to forget
Well done! Informative and funny. "There was a deaf boy... I think his name began with an L. Do you know him?" Lol!
I think you’re very funny (in a very good way). I used to go to Deaf events in Chicago and experienced some people who didn’t socialize with me because at that time I was learning sign language. But I am now involved in a Deaf church and many individuals are getting CIs. After leading the group in my church for a number of years, I have become friends with many in the Deaf community. Never heard of Deaf+. But I am blind in my right eye so I guess I’m part of that group!
Hi nelle💐yet another well thought out video! It seems I must be deaf plus but to this day I don't get why we have so many categories! All this big D & little d stuff goes over my head! Some deaf people hate technology & some won't let you be verbal! And as you say some see it as child abuse if you fit hearing aids or cochlear implants! If that's what some people think then it's up to them! I recently joined the cochlear implant UK Facebook page as I am getting close to asking to be referred! But my autistic side is scared I might not pass the cochlear people test & would be seen as a failure! But I can barely make out a word these days even with hearing aids,I cannot remember the last time I watched your video & could hear every word! For you a CI was not a gamble your hearing had got too bad! We should not be labelled deaf,HoH,hearing impaired etc!! My hearing chart says 110 dB loss in both ears so what does that make me? Deaf! Have you any idea when you hope to have the other ear implanted? All the while the go fund me is still up & running I will donate! Your making something of your life so an extra implant is more than needed! I found out most implants have 22 electrodes & one person had at least 6 deactivated! I would be curious & nosey how many working electrodes do you have! By all account you are doing well with speech,if you cannot hear your voice it can suffer like my speech! 💖💖💖
In my experience, the implant team were very supportive and didn't put any pressure on my to get the implant. I was also really nervous that my lip-reading ability would be too bad to get the implant or something, but it wasn't. The testing process was pretty intense and I was super worried that I wouldn't be eligible, but it turned out fine.
My cochlear implant has 22 electrodes and all of them are switched on and working. I got really lucky with that. To be honest though, people still have great results even with a few electrodes deactivated so I don't think that the specific number is really necessary to focus on.
Thank you very much for continuing to donate to my fundraiser.
Nelle :)
I woke up a few weeks ago with SSNHL. I don’t have answers yet but was quickly seen by ENT and am sort of waiting to see what happens after steroids. But anyway, I don’t have a hearing device yet and may not for a while? But I can still hear stuff, it’s moderate (for now, obviously may progress like yours and many others do). I had to run some errands and I had to tell someone I couldn’t hear them, and I felt I had to give them a reason I guess. So I said that I’m hard of hearing. Maybe you could add to the category: people who are new to hearing loss and don’t know where they fit yet 🤷♀️
I would like to add that I have found much comfort the past few days from watching your videos. You seem to have adapted really well, and it gives me confidence that whatever the future holds with this hearing loss, I can still be very satisfied with available options. Looking forward to more of your videos :)
Yes, absolutely. It took me ages to feel comfortable using the words 'deaf' or 'hard of hearing' because I wasn't sure whether my hearing loss would be permanent or if it was just a temporary issue.
For a while I would just say that 'I have hearing issues', because that felt like it made the most sense at the time.
good :)