The ethics of curing disability, My views.
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- Опубликовано: 6 июн 2024
- Thank you for watching. Please let me know what you think about this topic in the comments. Please remember to be kind when talking about this sensitive topic.
My Instagram: / nellefindlay
Hi, Nelle. Of all the comments you get, it is unlikely you remember any of mine. I've asked you about your ability to appreciate music with your implants, and so on. I'm not hearing impaired, and I'm much older than you are. But I kept checking up on you because I felt a kinship on some other level. The reason became clear when you shared your autism diagnosis in another video. We're part of the same neuro tribe. I was diagnosed at the age of 44 back in 2006 on that high end formerly called Asperger's syndrome. Like you, I've been grandfathered in under the ASD label. I had a late in life diagnosis because our end of the spectrum wasn't in the DSM or ICD until I was in my 30s. I was raised in the US by my British father and American mother, so I didn't know my UK family at all. When I first connected with them via FaceBook I learned there is autism all over my family tree. I live in the UK now. I left the US because, growing up and undiagnosed/untreated autistic, I was traumatised by a lifetime of teasing and bullying due to my social awkwardness common in people on the spectrum. Today, I live with complex PTSD because of it. The US is a nation of bullies and no place for people like us. But that's a story for my own channel when and if I get it set up. I like your videos, I hope you get monitised.
Thank you for your comment and sharing a bit about your life. I'm always interested to hear about other people's life experiences. I'm sorry that you were bullied at school, unfortunately that is not an experience unique to the US. Please let me know if you ever decide to make RUclips videos because I'd like to watch it. :)
Lovely analysis ❤
I really enjoyed this video and learned a lot. thank u!!
You're awesome!
loving this channel.
Cogitate implants absolutely fascinate me, I hope they can move the tech along more, so that people don't sound scary.
People don't really sound scary to me. At first everyone sounded like a dalek that had been sucking on helium, but now it just sounds like they're talking through an old radio.
Hi Nelle! This was a FANTASTIC video! You provided great and thoughtful points, especially about technology and diversity, that hopefully will spark a lot of conversation and definitely got me thinking! I am planning on making a response video to this, since it is a fascinating topic. I will let you know when it is finished.
Hi, I'm glad you enjoyed the video. I was a bit worried about posting it because it's such a controversial topic and I don't want to come across like I am the ultimate moral guru or something (because I am certainly not). I'd love to see your response video when it's ready. Please let me know when it's uploaded. :)
@@nellefindlay I will start filming one of the segments on Friday, and the script is already started. Like yours, it will be on-camera, which will be my first time doing so for a RUclips video, so hopefully I do okay. I'll also have additional video over that for demonstration purposes.
@@nellefindlay Hi Nelle! I am in the middle of working on the script, and I'm in the second section. As it turns out, part of the script will be explaining how hearing aids and cochlear implants work. Would you be okay if I used this sections of your other video that describe that as supplemental material?
@@nellefindlay I just finished the script! Now on to voice recording and filming, and then music production, titles, and editing!
Wow, you're putting a lot more effort into this that I put into my videos, feel free to use anything you like from my videos, I would really appreciate if you put a little credit in the description if you use anything.
I agree with a lot of the points given here. Most disabilities are inherently negative for the person with them. Even though you can learn to live with them and be happy in spite of them. I'm sure there's few people with debilitating disorders that would say they don't want a cure if one was possible. Personally, I'd take it in a heartbeat.
There's various sources of diversity and diseases are not one that is necessary for diversity to still exist.
Thank you for sharing your viewpoint. I think it's super interesting to have different perspectives.
I was born in a hearing family so I do feel I lost my hearing even tho it was in utero because communication difficulties.
Nelle , thank you for another informative video . I would like your opinion on your CI as regards to music appreciation . Has it improved or detracted the quality for you , tone wise I mean ? You are in a good position to pass on your personal viewpoint on this subject having both now and previously had two hearing aids. I`m finding professionals can speak with a bias one way or another depending on which field of audiology is their specialty , CI or hearing aids .
Hopefully Nelle will respond, but I can tell you at this stage listening to music through a CI is very disappointing.
If normal hearing is like listening to CD or DVD quality music, a hearing aid is like listening to music on an AM radio and listening to music through a CI is like listening to the music on those old 8-but computer games.
I believe you can do training to train your brain to better interpret the music, but I’ve never done it.
Good luck
But=bit
@@rusty- Thank you too for your input , I value all of it . I`m being interviewed in two days to be asked if I might consider CI . Listening to music is a relaxing pastime . It doesn`t matter If I don`t understand the words . Different to a conversation . I enjoy the melody which is perceivable . Also how do you find the sound mix between the two technologies coming into your head at the same time ?
@@trevorzealley729 no issues with the two technologies. Having a hearing aid in one ear really helps your brain to learn the information coming through the CI. Unfortunately, melody is not good with a CI. The words can be clear but I find all the notes are off frequency. With the hearing aid in one ear you at least have the benefit of some real tones to reference to. CIs are really designed for speech, for people who can't hear anything in an ear. If you can't hear in one ear (or both), I'd absolutely recommend it. If you still have some hearing that can be amplified with a hearing aid, I personally would stick with that until you can no longer hear with that ear. But obviously, I don't know your personal circumstances.
CI is amazing, life-changing technology that brings sounds to the deaf. Best wishes mate.
In general, I can hear music pretty well. It just sounds like some sort of ancient radio. If you compare it to normal hearing, it's not great, but when compared to what I could hear with hearing aids and a profound hearing loss (which was pretty much just a faint beat), I can hear a lot more now.
I have a video where I test my ability to hear pitch with a cochlear implant so you can get an idea for how well I perceive variation in pitch: ruclips.net/video/mMzW_6KsjuA/видео.html
Wow you’re beautiful, We’re the same, i got Asperger’s too! And very hearing impaired as well. I’m in the process of getting a cochlear implant soon! Really excited to be able to ear out of my right ear again hopefully. Unfortunately my left ear is going even with my hearing aids. Struggling but living day by day. It sucks no one can understand unless they have this disability. They see it as invisible.
As someone who got it.
Don't get it done not worth it sounds awful to say but if you do get it you'll find out why.
I personally have a good experience with having a cochlear implant. Good luck with the process. :)
@@nellefindlay i can hear almost perfect.. just everything else that comes with it is bs and I'm passing on my second one bye
I voted for this on your survey 😅