The POTScast Episode 40: Misbehaving Mast Cells with Dr Lawrence Afrin
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- Опубликовано: 7 фев 2022
- Dr. Afrin, a world renown mast cell researcher and clinician, shares his insights on how misbehaving mast cells could account for a variety of POTS symptoms including the famous POTS flares. We hope you will join us!
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thank you for this! I didn't know there was a study about 17% - 20% of the population being susceptible to MCAS. makes so much sense considering we know about 1 in 5 people who have covid develop long covid. wow!
I have EDS, MCAS, dysautonomia and a few other things. Even being a nurse, I've had difficulty finding a physician who understands or wants to help. Very discouraging. I'm in a large metro area in Texas which is even more surprising ppl don't know how to help or how to accurately test.
You being a nurse, who knows the system...makes me question the whole system. I get the eyeball rolls, etc. Different yt channel said mcas was just recognized as a disease officially in 2016 but it's taken til the last few years to come out with information about it. It seems that since drs have specialized in so many different areas, they dont have to care about odd reactions, etc. Gastroenterologists just recently got involved because of the gi conditions. The problem now is trying to re-educate the drs. I'm thinking of printing out the research papers that involve mcas and the specific area (like ear, nose, throat drs) because symptoms involve those body parts. Instead of just describing the research...which I often cant remember specifically, esp in a short timed period of time. And then hand it to the drs as I describe my symptoms, etc. I've tried some of the therapies but so far I've gotten worse....reacting to more things than I had been reacting to...in the beginning 7 yrs ago.
And I still wonder how the heck did EDS/HSD ...got to be the syndrome where nobody seems to know anything. We must be the very unlucky ones!
Would be nice if i can find a doctor close to home who can and is willing to test for this
This was such a great episode. Love Dr Afrin.
if mast cells cotinue to make substances even when the trigger has gone another hypothesis is that senolitic cells/zombie cells are driving the symptoms.
I also have 24/7 symptoms. Thank you to Jill and Dr Afrin for all the incredible information. What are the diagnostics or lab work to confirm a mcas diagnosis?
Hi thank you for this podcast. I have a question. It is said that pots is episodic. However say if you haven't been treated for MCAS is it possible that POTS can be an everyday every second thing?
Absolutely. I think that Dr. Afrin was talking about the flares that are typical in POTS, in which you have episodes of greatly increased symptoms. It is not uncommon for people with POTS to have symptoms 24/7, unfortunately.
@@standinguptopots Thank you. I can relate to the 24/7 POTS symptoms. Trying to find an MCAS specialist in the UK is proving difficult but I keep having very severe reactions to histamine foods so I'm assuming there is a link with my POTS and potential MCAS