OUR INVISIBLE ILLNESS... How we deal with Endometriosis ...
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- Опубликовано: 11 сен 2024
- Ovaries, cramps and periods, ... we’re talking about talking about it all and hopefully it helps you feel less alone. xo's ~ Tati
ENDOMETRIOSIS AWARENESS
The month of March brings women, families and medical communities together for Endometriosis Awareness Month. During this time, millions of people all over the world honor this month to recognize the 176 million women who suffer from this disease.
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Tati Westbrook
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All Rights Reserved © 2020, Tati Westbrook
Hi I'm Tati from GlamLifeGuru, thank you for watching my video, please be sure to check out my collection of makeup videos where you'll find my best beauty tips, tricks and favorites on everything from top luxury cosmetics to my favorite drugstore makeup. Whether you're looking for a new product review, tutorial, beauty tip, haul or perhaps even a giveaway, I hope you enjoy watching.
Ladies, never accept "it's all in your head". I heard that for 4 yrs before being diagnosed.
same here for around 8 years they kept telling me it was normal... You really have to be your own advocate.
Same! It’s been 3 years for me.
I heard that since age 12, was diagnosed until I was 34 (year ago )
1000% with you. Fight to be heard, and do not let them make you think nothing is wrong!
@Nina No it isn't, it's literally not in your head.
My gyn is a good friend of mine HOWEVER he once told me “nothing can hurt that bad”🤬
THEN, he came into radiology (where I worked) and was crying with a kidney stone. I leaned over and said “nothing can hurt that bad”👿
His attitude towards women’s pain changed that day😆
And that is why Sensitivity training in health care is so important !!
TalkLikeAHick2U I had a doctor who when I asked him to tell my boyfriend that yes I do have pain during sex, laughed at me and he told him that there is no reason for me to have pain.
Needless to say it was my last visit to him
I read an article that pain meds and so much more are not tested on female hormones. That certain Pain meds don’t even work on certain hormone levels. I don’t have Endo but I do have extremely adverse menstrual effects compounded by migraines. I got my period when I was 10.5 and thought I was dying. I would consistently miss 1-2 days of school, my flow was so heavy I would literally bleed through nighttime pads in an hour. I’ve gone through labour and I’d rather do that(40hrs straight back contractions-I had the epidural, and I had 1-2 degree tears) than have another period again.
I've had kidney stones for years and I always have several embedded within my kidneys that are routinely monitored. I can't tell you how many doctors and nurses have said to me, "But they're only really small." I finally asked one of them, "Have YOU ever passed a kidney stone?" Of course she hadn't, so I told her not to tell me a 5mm stone is "small" until she's passed one.
TalkLikeAHick2U 🙌🏼🙌🏼
As a student nurse wanting to specialise I gynaecology, hearing someone with this much of an audience talking about a hidden illness like this is amazing 💞💞
Thank you for sharing this Tati!
Goodluck with the job.
Good luck with nursing. Such an important field to go into. Appreciate you!
@@mynamnr3457 also one of the most rewarding 😃
@@Annie-jm1ox thank you! X
@@vleek07 thank you! X
Being a canadian and having universal health coverage, I mean saved my life for so many different reasons. Health is wealth.
Health coverage only covers (some of) the cost here, and we pay for that medical via taxes (it is not "free"). Also, SUPER important: just because we have 'universal healthcare' it does not mean that Canada has Universally wonderful, responsible, ethical, trustworthy, caring, non-arrogant, wise, compassionate, safe doctors (or healthcare workers).
As Canadians we need to be more truthful about what health coverage means (and what it does not include). We also need to listen that not everyone has the same experiences within Canada; it can vary wildly, and needs serious attention. We also have many other services (like the College of Physicians and Surgeons- which is supposed to be a safety net for patients to report to), but they are in no way a trustworthy, ethical, sound-running group.
Additionally, I had a full hysterectomy (hystereckingme) to address PCOS, and Endo (after having years of multiple surgeries to 'fix' the cysts/endo, and manage the pain)... The hysterectomy fixed that pain, but came with a host of other serious issues that have been debilitating, and depressing.
Physio chiro Is not covered, people suffering cause they can't pay...in canada not everything have benefits
@@infinite_verve I wish people in America knew and realized this!!! All these people who are trying to get free healthcare by voting in a crazy socialist president are thinking it's gonna be a free for all when it comes to medical care and college! Nothing in this world is really FREE!!!!!! how can people be so naive?! 😥😥😥
@@bjguz930 TRUTH. You end up waiting so long to get in and be seen by the doctor/specialist, a plethora of other problems develop by the time you finally see them.
@@teresachapman205 my goodness, that's such a scary thought! 😥😥
When Erika started talking about how they wouldn’t let her go home I teared up- I could feel that pain and embarrassment. I’m so sorry that happened 💔💔💔
As a high school junior I realized I had started during psychology and I tried to let my male teacher know I needed to use the restroom, seriously and he was like why. He wouldn't stop when I kept saying I needed to use the bathroom. Like...finally I said, I'm going to bleed all over if you don't let me go. Then he acted all embarrassed and was like "gosh too much". Yeah bro, it's too much.
I'm floored by that. If a kid feel like they need to go home, call their parent.
people need to take this very seriously
Crystal Smith I feel this so much I was in 4th grade and it use to happen all the time because I would just bleed soooo much. I finally got in birth control my freshman year of high school and that has helped some. But I’m 23 now and still not diagnosed
@@razz7898omigosh, that is so wrong. I'm so sorry, girl.
Tati, my wife suffered for years. Her Dr. in LA did exploratory surgery and then recommended Dr Redwine in. Bend OR. After 5 hours of arthroscopic surgery, she went home in two days and never had pain or issues again. She turned 66 today.
Bill Taylor Dr Redwine is very good, as well as Pr Possover.
Bill Taylor I am Australian and even I have heard of him all the way down here! He must be pretty special- good luck xo
And mother's , PLEASE listen to your daughters. My mom never understood my agony ,even after coming home with pink shorts covered in blood. Your school story does happen,& it's incrediby hard.
Hugs babe! 😭 I don't have Endo I have Lyme disease, but what a big difference it is when someone you love believes you!
My mom (and nobody else) never believed me, this was so hard for me :/
Kristi Stroschein my mom wouldn’t believe me and didn’t want me to go on BC cause she thought that I was going to use it for other purposes. I finally pushed for it and got what I needed but it was incredibly difficult.
Thanks for saying that. No one ever believed me, not even mom.
It's because of the lack of education, everyone believes the symptoms of menstruation are static across the board for everyone, and that anyone who is totally floored by their experience with menstruation because of Endo or other reasons is reacting dramatically to the same symptoms as a regular menstrual experience. It's infuriating the most to be NOT BELIEVED by other WOMEN 💔
"There's tension, there's tightness, there was pain in my eyes"
I FELT THAT.
The first time I noticed I wasn’t having a “normal” period was in 8th grade and I asked to go to the nurse because I had really bad cramps. My teacher told me no because the nurse wasn’t there (my school couldn’t pay the nurse to come in everyday) and to go sit down but my cramps went down to my upper legs and I couldn’t sit in the chair so I had to go lay in the back of the classroom...only one person came to check on me and found a blanket for me. When I finally had some strength to get back up I was so dizzy and nauseous I almost passed out. A lot of kids in the class laughed at me because I had mascara running down my face :/ they never let me go home or at least get medicine. Thank you for posting this. There needs to be more awareness
This is horrible! I'm so sorry you had to go through this... :/ Hugs!!
That is so cruel! So sorry you had to go through that. Periods are bad enough as it is!
Madison Krull awwwe I’m so sorry that happend to u
When I hear horror stories like this, I realize going to an all-girls school was the best thing ever. 😥
oh that’s horrible. just be glad it’s over right? i hope ur getting better!! ❤️❤️
We should call these types of videos “Makeup Therapy Sessions.” Because that’s what these videos are for me 😊❤️❤️❤️
Marlene Ramirez same 👏🏼 same 👏🏼 same 👏🏼
I’m a medical student and I definitely think endometriosis is something that needs to be talked about a lot more so thank you so much for using ur platform so spread awareness! 😌❤️love ur videos x
Hibah Mirza 😘❤️❤️❤️
And this is just ONE of the very painful female medical issues women face!!
When Tati cries about health insurance; I also cry about health insurance.
Vote don't cry!!! Vote don't cry!!! Vote don't cry!!! Vote don't cry!!! Vote don't cry!!!
Same.
Crass Lass Crochet vote for health insurance!!
Bernie 2020, we need Medicare for all
as a woman with pcos, i really appreciate when women share their experiences and speak out against double standards. reproductive health is never discussed enough and that’s why so many women are suffering. love you tati 💖
I'm a fellow Cyster...sending positive vibes
I’m a Cyster as well... positive vibes to both of you!
i suffered with pcos for 12(?) years... wasn’t until 3 months ago that i finally got diagnosed. i was in agony and my periods were super irregular. i never knew i wasn’t “normal” because no one told me.
i’m so happy to see more awareness on the subject. although it’s still seriously lacking
Hey cysters
Same here. Hey girls 😊
This what two educated, humble women are supposed to do to the communities! Thankyou for this!
Tati isn’t educated. Good grief, pull your head out.
@@user-jc8py7dw7r She might not be educated, but as someone who has suffered from endo for years, you would have to agree she probably knows a whole lot more than the average person, wouldn't you say?
You both should start a foundation for endo!!! You’re a huge voice with a great message. Especially in the month of March part of halo proceeds could go to research or even women who are struggling to pay for doctor visits.
I would definitely support that 🥰💕
Leah Campos that’s a fantastic idea.
This would be amazing
Leah Campos I would buy everything!!
AMEN! There are so many women who can use this support system and won't feel so alone struggling.
Lol chill they don’t care that much
Don’t let doctors tell you that you’re just “constipated”. That was all I heard for years before finally being diagnosed by my godsend of an OB. Was such a relief to finally know I wasn’t “crazy” or making it up. Cried tears of joy just knowing that, even though I’m in constant pain every single day.
Stay strong ladies!
What did you do though? Did it help being diagnosed? Cause I am and I still need help
Yes i belive I have endo and I got many pelvic exams and wellness exams and they always say I am all good snd everhthing looks beautiful. But I am so convinced I have endo because when I turned 30 (im abotu to be 31) my body started feeling differently... I feel swollen inside and constipated and during ovulation I feel my ovaries inside of me.. I have never been pregnant and I'm married and not on birth control... I get my period every month but my cycle is like 35 days long. ... I am convinced that I have endo and everyone around me just says oh its normal. I have a referral for a pelvic ultrasound so we will see.
I’m so glad you’re speaking about this. I have endometriosis, stage 4, it’s so severe that it’s on my diaphragm and possibly in my lungs. I wish people understood how bad it can be. Girls, it’s NOT normal to be debilitated by your periods.
Karimac Mackers this. It’s not “just cramps” when you’re vomiting from one end and pouring blood from the other.
look at the second comment on this video plz
Anything that affects your ability to live your life, needs to be evaluated.
❤️
Sending my love x
TATI: Wiping tears with her Blendiful.
Made me cry
Samantha Long I cried as well 😢
I’ve always tried to describe it as “a flaming sword through my stomach and back” and hearing Erica say “burning piece of metal” just shocked me. I’ve never heard someone describe it like me
Same. I say burning metal and flaming rubberbands pulling on all my parts and bowels.
Kat Harness I started having symptoms recently and it felt exactly like that I always say it feels like a burning stabbing
I’m so sorry you’re having to go through this, I wouldn’t wish it on anyone ❤️
I usually explain it as Blackberry vines wrapped around my organs like a boa constrictor, and they're on fire.
I think I picked that because it's something people can somewhat imagine. If they've ever been caught on a vine or in a bush they can recall that, and then I tell them to take that pain and put it in their stomach and intestines that have a hot pain like when a sunburn is slapped.
I've tried the hot metal and not many get it, but when I've explained it like that I've had more people truly get it and take the pain seriously.
I actually had a coworker once who would check on "How tight" my vines were every now and then.
Just Two weeks ago me and a female friend tried to describe our male friend how cramps were like and she described It as a hot needle scraping her insides....I thought It was odd as I've never felt them like that....thanks to your comment going to tell her that she should go to the doctor since she thinks she just has a terrible period.
I love how much Erika is a part of your channel now. This was such an important video. Thank you.
Honestly when she mentioned the health insurance part that’s what I’m struggling with right now. I need to go to the doctor for everything , but I can’t cause it’s soo expensive.
maisha price vote!!! Vote blue!!
I'm so sorry for you guys. I just can't image my daily life without free healthcare :(
@@aleksandra3368 it really sucks. even if you have insurance it's still expensive.
Move to europe 🇪🇺
I know! I feel so bad for my parents because my medical supplies are expensive and one day I'm scared that we won't be able to afford it anymore
Thank you. Thank you. Thank you. Thank you, For making this video. Having Endo can be so lonely and you can feel so misunderstood. I was young when my Endo first became an issue and it took YEARS to find a doctor who took me seriously and more importantly took my symptoms seriously. Finally after trying hormones, Lupron, and several other treatments my Endo had become too aggressive and I had a hysterectomy. While it was sad and took time for me to grieve that loss, I know it was the healthiest choice I could have made. Thank you for using your platform and bringing awareness to a devistatingly under talked about disease! You are changing lives with this!
Can I please ask you a few questions about your hysterectomy? My doctor and I are talking about it due to my endo.
Lindsy Peterson I’m so sorry you went through that. Luckily when I was diagnosed with it at 17 my mom was a L&D nurse and knew who to send me to. Luckily my dr was a pioneer in endometriosis and was the first dr to ever do the laparoscopy surgeon. He was incredibly understanding and treated his endo patients with such respect. I always feel so terrible for you girls who have to go years without being taken seriously.
Autumn Cone I’ve had a hysterectomy as well so if she doesn’t answer your questions, I can!
@@JackieAyyy Thank you so much. Did you keep your ovaries? Did your body start going through menopause?
@@autumnweldon7314 of course!
When she brought up the insurance issue I felt that. I’m in college and pay $200 a month and when I go to treatment for my condition it’s still $80 out of pocket per session. Ridiculous. Students should be insured. Not everyone is going to have parents with good insurance that they can stay under until their 26. Education is expensive and Students face the choice between health and degree every day.
This makes me feeling even more grateful for living in a country with a free education-system and universal healthcare. Sure, our taxes are high, but I never had to make the choice between education, doctors or food. And now I pay my taxes, so others don’t have to make that choice either in this country.
Sara Kelly that last sentence got me
@@muselil1440 where you from?
Shamelis Rosario I live in Denmark, Europe. The country with the highest taxes 😉
True and not everyone has parent that let them stay on their insurance either.
As a woman who deals with PCOS, I love to hear “Famous” people talk about all there issues! I wish you both the best! We love you 😻
I too have PCOS and it's always discouraging to hear stuff about having this condition. But end of the day, we gotta fight for life 🙂🤷♀️
Jessica Soares For sure. I couldn’t agree more
I have it too, I have a feeling I cant get pregnant.
@@Momofukudoodoowindu that's usually what they say... but my cousin sis had PCOS, but after marriage, she was able to have kids and her periods cycle was regular after that
pessimistic college student I personally know someone who has PCOS and was able to give birth to 4 kids. You can still get pregnant despite what Drs. say ❤️🌹.
I have pcos and two benign tumour in my uterus. I never had children, I'm forty and I have horrible cramps and migraines, but no one takes me seriously because "it's normal, women stuff". I just keep it to myself, but when I'm in serious pain I still have to hear that I'm beig "crabby", even under stressful work. My husband doesn't judge me or say nasty things, but other people just act like I'm a bitter woman. Which is not true, I'm a nice loving person, but sometimes under tons of pain I just can't keep a big smile all the time.
Badá Rock stay strong ❤️
I had horrible cramps that I went to urgent care and all the doc said was "Honestly some women just get cramps just because" Shrugged his shoulders and walked out. I was speechless
Aww I'm so sorry you have to go through this 🥺
Are you serious? I do not get those people. It is not normal, and migraines - people say: it is like you have just have a headache, take some pils - they do not undestand that it does not work and migraines are like a new torture you can do literally nothing. I have to admit that my cramps does not hurt so I can not understand you perfectly, but I have a cyst near my neck and my back are often in pain because it pushes to the nerve, my parents were like it is nothing, you should not watch yourself so much, I have pain too and have to go to the work and we think you have it because you exercise. The point is that people do not understand and think it is just pain, you are just woman, you are supposed to be in pain and feel stressed and be in tears, be overwhelmed by everything, yelling a lot because of nothing... and so on. And I must say: No, it is not normal!
You have my support. Try to find out if there is anything what helps you to feel better at least a little bit. And of course you can stare at those people like: you are the next one... And pease do not listen to them. I am sorry that you have to go through this.
I hated to do it but my total hysterectomy was life changing.
Tati, Erika, this has me in tears. I’m that girl in her twenties you were describing. I’m working close to full time and also in school full time. I’m drowning in credit card debt (from a family emergency), student loans, and living week to week. I’m consistently struggling with menstrual pain and uterine issues and I cannot figure out what’s going on. I’ve tried going to several different doctors and there’s no help. I’m also terrified of getting into more debt. Just today I went in to my campus clinic and had a horrible experience with a doctor basically dismissing all of my symptoms. When you told me, “you aren’t crazy, and you’re not a bad person for trying to survive,” I literally burst into tears. I’ve been needing to hear that for so long. I feel like I’m going crazy, and it’s all in my head. Thank you so much for making me feel seen. 💕
Praying for you. ❤
Have you seen an nook dr?
You're amazing and you can overcome anything. Take baby steps one day at a time. Praying for you.
Have you tried Planned Parenthood, contrary to what so many nincompoops believe, they do care for other gynecological problems, including endometriosis. Payment goes according to what you can afford, by the way.
Abigail Rose hang in there! I’m finally starting to see the light at the end of the debt tunnel. Love to you
It hit hard when you talked about the cost of medical help and have to choose between your survival or your health. I just didn't think about it since I can be hospitalized and not have to pay a single cent. Where you born make really a difference
Emma del bono where she lives*
So where are you born? 🧐
Yeah right? I live in Brazil and I don't have to pay for anything, even emergency surgeries. It should be normal everywhere
It does make a difference, this country is fine with lower middle class dying
It costs like $1000 for an ambulance ride... 😶
I was diagnosed with stage iv endometriosis after 6 years of seeing doctors. So many years spent trying to get pregnant being told I just had severe cramps. So happy that this disease is finally getting recognized so other women can get checked!
Thank you for speaking out about Endo❤️ when I was 17 I was diagnosed with Endo and I was still in a lot of pain months after the surgery and the doctor told my mom I was faking it to skip school and need to see a councilor. She told him "no she needs a better doctor" and hung up
Your mom is a real one
Your mom is a badass for being your advocate and you are so lucky to have her ❣
I really find it deplorable that one of the richest country's in the world does not have some type of universal health care to take care of their citizens. I could not imagine having to pick between eating for the month or a doctor's appointment or a trip to the ER. I could not fathom the loneliness a person must feel, dealing with illness and feeling like they had nowhere to turn.
Well said.
i clicked so fast, i’m so glad she is bringing awareness to this. all love and support to you both.
Nurse Erika really is a refreshing drink o water, love her energy
I am 42. I was misdiagnosed until I was in my late 30's. By the time I was diagnosed with endometriosis, there was no hope for me to get pregnant. That window would have been small many years earlier. Unfortunately the doctors here only cared about weight and thought that was the one and only thing affecting me. Me and a lot of other women I know. By the time I was in a place of wanting a child, the specialist said sorry there's nothing I can do. I was devastated and angry for years. Now I've made my peace with it. Technology and education about endometriosis has increased, as well as public awareness since I was fighting with the doctors here.
Tati and Erica, thank you so much for opening your personal struggles to your audience. I can't imagine how hard it must be to talk about all of these issues, but please know how much it means to me and to women all over the world.
I'm "lucky". I have post-partum endo, meaning it started after my pregnancy. So I was able to have one child. Then I became infertile.
We need more women like you with a huge audience to reach the women whose doctors are failing them. I was one of those women and youtube helped get me through when my doctor kept telling me I was dramatic and it was all in my head. THANK GOD i went to the ER and they referred me to a gynecologist!!! The doctors who all turned me away have NEVER apologized for doubting me even after seeing the results for themselves. Anyway, thank you ladies because i truly beleive we need to keep sharing our stories ❤
Don’t have endo myself but the 7/9 doctors I have seen don’t have a clue what I have. So thank you for this video makes me feel like I am not alone in the struggle to find out what’s wrong with me, and for people thinking I am playing my symptoms. And for telling me that I can survive anything sometimes I honestly feel like giving up but to hear you two who have a somewhat similar story and are doing amazing makes me believe I can!
Thank you Tati and Erika xx
I also suffer from Endo! I had to have a full hysterectomy including my ovaries at 24. It threw me into menopause and my body has never been the same. I now have lupus, hashimoto's thyroid and ulcerative colitis. I feel your pain all too well. We are fighters!!! Sending you all my good vibes!!!💜🖤💜🖤🙌🙌🙌
I was also 24 going on 25 when I had my hysterectomy but they left my ovaries but now I'm mid 30s I've been experiencing pain again but I cant go through another surgery.
Maria, I’m so sorry you are going through that. The ovaries produce a lot of the hormones that cause/enhance endo- this is why mine were removed. Otherwise, the lesions would simply return. I hope you are able to one day get them removed or find a regimen that helps you! Sending love and support ❤️
I'm reading this from Spain, luckily we have every single medical thing for free, and it's really sad to see people out there who are in such financial problems because of health, it's insane, it shouldn't be like that anywhere in the world. It's HEALTH it's selling ours lives.
Wow let me move to Spain 😁
Yep, this America.
Still it's hella hard to get diagnosed, all my sisters have endo and polycystic ovaries, but they've been patronized, labelled as hypochondriac and so on... Here in Spain too, so yeah, it's great that it's free (don't get me wrong) but whats the use of it if they won't treat you?
I'm from Spain too🙋🏻♀️
I'm from NZ and we have free healthcare too. I count my lucky stars everyday I didn't have to pay for anything as it would have made the whole thing so much worse!!
Yes girl!!! Louder!! Thank you!! I have endo (stage 4) and only after 7years of infertility, pain, surgery, Fallopian tube removal, and rounds of IVF I have a wonderful brilliant miracle of a daughter. I still suffer from endo. Anyways long term fan and supporting you in this journey ❤️♥️🌈
Watching this and sobbing while nursing my own searing endo pain. I'm exhausted and bloated and I finally feel understood. Thank you for sharing.
Praying for you
Sending love ❤️❤️❤️
I know this all too well, you’re not alone. Sending love and healing.
The bloating is just the worse, basically needing maternity pants during your period is just wrong. But it's made me think. They should make "period pants". Not panties, pants. Ones that stretch in the right places but still look good.
I’m so sorry 😭💖 I know how you feel. Praying you make it through! That’s all we hope in those really bad moments
There definitely needs to be more discussion about invisible disorders. I've had migraines all my life, diagnosed by my pediatrician at 4, and I *still* hear "it's all in your head" and "oh, a headache?" 38 years later.
I was young.. throwing up in school monthly from the pain, having to be driven home from work because of it, in the ER every month.. basically looked at like a pill seeker..getting in trouble at work when I was an adult for missing work.. and then finally saw an OBGYN who diagnosed me with endo.
It’s awful what we have to go through just to get the diagnosis.
Thank you for sharing!
It feels like I'm seeing 2 Tati in 1 video HAHA. who's with me? 😂
Me 😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂❤
Omg yes I was so confused from a glance at the screenshot lmao I thought it was two tatis 😂
I know they’re both so beautiful
Just when I thought this video couldn’t get anymore empathetic... when you started crying about not having insurance. That’s me right now. As much as I want to have surgery so I can get to the root of this disease and not have to rely on medication, I know that’s realistically not an option for me.
One day I’ll be in a better place where I’ll have the financial means to finally fix my health but for now, I’ll just have to push through. But you made it, Tati. And that gives me hope. Thank you.
Queen Tati drying her tears with her blendiful is iconic, btw.
I had endo all my life and didn’t know it and didn’t know anything about. I was told I had PCOS. In July of 2019 I went to the ER for stomach pain and was diagnosed with stage 2 endo cancer. I have no children. I am a new subie I love your Chanel and content.
Dornita Herndon oh my goodness I hope you’re okay and getting all the help that you need. ❤️ sending positivity your way !
praying for you
Sending you more love and hugs ♥️🙏
I’m really sorry you had to experience this! Endo and endo cancer are not the same btw, just so you know!
I am so sorry you had to go through endo cancer, stay strong, you got this! But just so you know, your doctor wasn't wrong about the PCOS diagnosis.. PCOS can be a leading factor in the development of endo cancer.. Endo cancer and endometriosis are not related! But either way stay strong and keep fighting for your health!
I had to make the decision to have a full hysterectomy last year at 23 because of my severe case of Endometriosis, Adenomyosis, and PCOS. I want to thank you for sharing your stories and bringing awareness to Endo. I related to this so much and I know so many other women can too. Love you Tati!
I had one last September. I have no regrets. Wish I’d had the option sooner.
Christina Swindell couldn’t agree more!
I have severe PCOS have asked repeatedly for a hysterectomy. I'm 42. My insurance won't cover it unless I show up with cancerous cells be in my uterus. Etc. So I have extremely painful biopsies every 2 years. So many pcos symptoms would go away if I got a hysterectomy. But instead will give me meds for all these issues. Go figure. Having insurance isn't a guarantee either. And yes other countries may have healthcare but specialists are hard to get into let alone long waits! Ex. Canadians come down to USA to pay out of pocket for specialists because it's impossible where they live. Will die before they get in. I'm in medical field..... No system is perfect unfortunately 😕
Kelli Dolphinlover so sorry to hear this! I couldn’t agree more. The system is extremely flawed. Wishing you the best of luck! ❤️
Ooo gurll, I got my period in 6th grade too and mine was very heavy and we had to keep our pads in the nurses office bathroom, so I had to change mine almost every hour and she had the nerve to say “ you don’t need to change it every hour, stop coming in so often.” And it sucked. I was now embarrassed and scared to go in there. It was awful!
WTF? You where not allowed to keep it in your school bag? Why? What kind of nurse was that? I would have asked if you are OK and recommended to see a gyn. I have pcos and totally understand the struggle of extreme heavy flows...
@@denia1594 the school I attended when I started my period, we weren't allowed to carry bags between classes. Had to go to our lockers for anything. It sucked regardless of periods, but was definitely made worse for it. Bled through clothes on multiple occasions. It was awful
@@samithprinklez1093 That is awful to hear, sending all my love wherever you are in life
When I hear these stories about health care in the States I feel very fortunate to live in Canada. We might have to wait for specialists etc but we never have to worry how to pay for it. We are fortunate. Many people who live here complain about wait times etc but have no idea what it must be like to not have it or have to worry about paying the bill. Hoping all the best for you always Tati!! 💕
My aunt was told she had IBS for the longest time ever while she actually had Ovarian Cancer and it was diagnosed so late that she passed away within a year..it has been 6 yrs now and it is really a very painful thing to happen to anyone
Sending Love and Best-Wishes to both of you from
Pakistan
I'm so very sorry for your loss.🙏😔😭 how horrific!
So sorry for your loss, such a sad tragedy loss hun.
Women's health awareness is important. I'm so sorry your family member was not given a proper investigation and diagnosis. Love to you from Australia💕 🤗🇦🇺💕
May Allah SWT bless her soul and make the hard times easy for you!
I am so so sorry to hear this. May Allah ease your pain, Aameen. ❤
I was diagnosed December 4th 2019. An emergency surgery led to my diagnosis and for me to have a 12cm mass removed on my right ovary. I was in such pain and at the time I didn’t know what it was from. Which is why I went to the ER and was told it was my gallbladder. It wasn’t. A beautiful nurse who was doing an ultrasound saw that something wasn’t right. She took matters in to her own hands and I’m glad she did. She decided to do a vaginal ultrasound and saw the mass. At the end of that surgery I was mass free but also down an ovary and Fallopian tube, I’m 30 with no children...yet. I was devastated. Then the diagnosis came. I just had a second surgery February 5th where they had to reopen all of my healing incisions for yet another cyst/mass removal and abdominal lymph node removal. It’s not something I ever thought I would have to go through but at the same time I do feel stronger and empowered to do so. I’m so happy more women are talking about this. It needs to be brought to our insurance companies and medical researchers attention. It’s not something we can help. We don’t do this to our selves. It’s not from living life a certain way. Thank you thank you. We can all help each other with communication
angie ramos so you just knew about it when you went to ER? What are your other symptoms?
e Rika exactly. It wasnt even a thought in my mind that I had endo. I work as a waitress in a very busy restaurant so symptoms I was having i blamed on my job and being on my feet all night. Symptoms including, lower back pain, fatigue, pressure/inflammation in my hips and knees. I also get headaches and nausea, but again just though it was because I wasn’t drinking enough water during my shift or eating during my shift. I’m looking back now and I can see the signs. I’ve been out of work for 2 weeks now and am experiencing the same things. Now I know it was mainly endo causing these issues and not just my occupation. What threw me at first is my cycle the last few years has only lasted about 3 days. It’s a painful and heavy three but usually not any longer than that.
That's exactly what happend two me, in my first surgery they removed the mass and most part of my left ovary and was diagnosed with Endometriosis. And an I had my second surgery after one year and it happend the same thing but now on my right ovary. And up until now still have horrible cramps.
I sincerely hope all goes well. Similar situation, but had a partial and then radical. Undiagnosed until age 37. My gynecologist thought it was a cyst that would go away. 5 years later and its grapefruit sized, full stage five endometriosis. I had a horrific bladder/urinary infection that I couldn't get rid of. A urologist sent me for an ultrasound and the tech almost fell over. I lost the tubes and 1.5 ovaries and everything the next year.
I wish the best of luck!
I had surgery 2 months ago which left me with 1 ovary down as well and I just turned 40 with no kids. I’m currently on birth control for 3 months then the doctor said that we can try to conceive.
I know what you both have been going through. I had endrometriosis. I got my period when I was 9. I suffered with very painfull periods. I was lucky that the doctor I went to listened to me, really listened. He did an exploratory operation. He told my husband that it was really bad and I probably wouldn't have children. They didn't tell me that. Three months later I called the doctor and told him I didn't get my period and I was throwing up. He said, you might have the flu. I knew that wasn't it. I went to see him he took a test and I was pregnant. He didn't know what to say. I went home and waited for my husband to come home. He hugged me and started to cry and he then told me they didn't think I would have children. I had 2 beautiful children and had to have a hysterectomy at age 28.
And that was O.K. So hang in there
girls things will get better. That was 56 yrs. ago.
Janet Rintone ❤️❤️
I love the way Erika looks at Tati when she talks and vice Versa. You can see how much they admire each other. ❤️
I’m so happy that you’re talking about endometriosis because my doctor and I are finally realizing that may be what I have going on and it’s so helpful hearing what other people have experienced 💗💗
Update: after finishing the video I was in tears because I’ve been getting diagnosed with IBS, getting Ibuprofen shoved down my throat, and told by 2 different doctors to just “wait it out”. I used to miss school constantly and work occasionally. Now that I’m out on my own and about to hopefully get my own health insurance, I relate to all of this so hard. Thank you for bringing light to this, no one ever wants to talk about women’s health and it’s so important 💘
My daughter had Endo surgery at 22. We are blessed she has a wonderful smart Dr.. 4 months later she was diagnosed with stage 3 triple negative breast cancer. She is fighting hard.
GOD bless her! She will get better! Stay strong!!!
valerie dunning Praying for your daughter!
@@ashmcdazzled thank you , Ashley McNair.
@@drina4706 I'm leaving it in God's loving hands. Thank you,Drina.
I am so so sorry. Stay strong!
Tati: *gets emotional* *proceeds to dab her tears with her blendiful*
That's when I knew she REALLY loves the blendiful!
no
Suzanne van Haaster what do u mean by no?
The amount of times that I was called a drug seeker and accused of being a drug addict is just ridiculous. When I had all the classic symptoms of endometriosis. I went to so many doctors, so many ER visits, so many specialists and it took me finally researching enough to find out about endometriosis on my own. Then when I went into the doctors they confirmed it. They made me feel like such an awful person.
I have endo as well and it's sad how so many of our stories are similar with "doctors didn't believe me", "people tell me it can't be that bad", "it took years to get a diagnosis", "everyone has a 'cure' to recommend you", etc etc. I cut friendships after my diagnosis for ppl that couldn't or wouldn't try to understand.
We all need to use our voice. Share on social media. I just got myself into a online study on endo once a month for the year. So there are people who are interested in it, but not really putting the word out there
“It’s like ‘Do not go there‘ and it’s like ‘I‘m gonna go there‘“ 😂 this video made me laugh, get angry, get emotional. This honesty and openness about a subject as serious as this is the best thing to raise awareness and reduce prejudices. I was recently diagnosed with an invisible illness as well that increases with the stress level after years of my skin issues, fatigue and cramps being brushed off.
I have so much respect for you ladies, you two rock! 💪🏼💕
I know is Tati’s channel, but I want to hear Erika to talk more when she comes!! ❤️❤️ thank you ladies for sharing, this is very powerful!
Witty Kaly hope she have her own channel too!
I'm still shocked by the difference in health care systems between the USA and Australia where I live! I'm so grateful to the Medicare system. xoxo
I'm French and although our system is heavily flawed, I'm still deeply and forever grateful for healthcare...
I’ve barely started this video and I’m crying. The fact that someone I look up to has the same problems I do. Makes me feel less alone in this journey
I only have PCOS, but I still feel like this is relevant, and I’m so thankful there are other understanding people, who are making others aware of these types of illnesses!
Same here! I asked my gyn when I was 16 that my periods where very irregular and she just said it was normal and some women are just like that...started taking birth control and did not even think about it anymore...years later I met my husband and stopped with birth control....extremely irregular, long and heavy periods followed and no pregnancy.... took years and a specialist to finally get diagnosed....I think my case is bad, as I struggle to get pregnant, even after finally knowing the cause.... But when I hear about Endometriosis I am so gradeful and I feel so sorry for all of the girls and women suffering like this. To have this level of physical pain added to the mental stress of trying to convince must be very hard 😢
Deni A I haven’t had a period for over 2 years. I found out about PCOS from the fact I had breast milk and wasn’t pregnant! I don’t really ovulate, so I know when/should I try for a baby, it’s going to take a lot of time and patience. Which with PCOS my emotions are so all over the place that I don’t think I’ll cope well with it!
I have PCOS too, but like endo we are told it’s just a period get over it. I had horrible periods growing up before I went irregular, but PCOS is hard. Endo is too. I think people need to talk more about it to end the stigma.
@@keannehall607 Are you getting treated? As a fellow PCOS sufferer here. It's important to seek treatment. PCOS only gets worse if you don't treat it. But like Tati and Erika say, if you can, get plenty of opinions.
There are also many good forums and groups out there that can give you support and help you find what treatments and/or lifestyle changes work best for you.
I suffer from PCOS too and totally feel the same way! ☹
I’m an endo warrior too currently trying to conceive. It’s so hard and I empathise on another level. Sending love 💛
I hope things work out well for you ❤
It will happen! Hang in there 💛 we tried for 3 years then I finally had endo. Surgery, was pregnant 4 months after.
Sending good vibes your way! 🙏🏻I had two failed embryo transfers, and then I had the surgery, and guess what? The next embryo took! 💙
I've had 8 surgeries now. Still no baby but I am confident they got all the endo last surgery. We keep being told now there's no reason we cant conceive and my husband checked out perfect but still....no baby.
I suffer from fibromyalgia everyday. Thank you for shedding a light on invisible illnesses 🙏🏻
People: "Oh you must be 3 months pregnant... what's the name?" Me: "Endometriosis."
they think you're only three months pregnant but yet have a name already? 🤨
Nikol Stowell i knew the boy and girl name of my baby 2 weeks after finding out i was pregnant 🤷🏼♀️
Most of my life until 30 post hysterectomy.
I had a woman yesterday ask when I'm due. 🙄
“I’ll deal with me after I deal with you” that hits home
I am so glad that I live in a country where periods and everything surrounding it isn't a taboo. And omg... The American healthcare system is insane... who had the idea to make survival a business. It's horrible.
Julys Targaryen same here. I’m so grateful for the NHS and I pray nothing happens to it, especially after hearing a lot of people saying they can’t afford health bills
Where are you from? & can you give a brief about your healthcare system. How does it work?
sonia valencia I live in Canada and our health care is free but since it’s free, we pay higher taxes then the USA does.
I live in New Zealand and we have a funded health system too, literally cannot imagine not being able to get help when you need it so badly... 😥
Americans - please please please vote!!! It's literally the only way to ever fix this
Oh my gosh, stop I'm holding back tears and I'm only 9 minutes in. For the first time EVER I finally feel understood and like I'm not alone. Thank you Tati and nurse Ericka, your journey is more than make up. I hope you see that! Love you so so much!
I’ve had endo my whole life. It was found by accident during a different surgery. Quickly explained all my pain. I had three laparoscopies that did nothing before finding a specialist that knew what she was doing. That specialist did surgery and it helped immensely. She also told me there was a good chance I wouldn’t be able to have children. I have a beautiful daughter. Never give up hope.❤️
Did you have to do any special things to get pregnant? I have had 4 laparoscopic surgeries and my appendix removed because endo was on it and I keep having miscarriages! They told me after this last surgery that the next time they are just removing everything - I’ll be 30 in April and I still haven’t gotten my precious baby....I was so super happy and beyond excited when I found out I was pregnant this last oct but I lost it thanksgiving week and I have just been devastated ever since! Any advice?
I think Erika is such an incredible woman. She’s so honest and down to earth. It’s so nice to see genuine people on RUclips. I can relate to her so much. Thank you, Erika for helping people every day. You’re incredibly strong.
I feel like we are blessed in the Netherlands for such a good healthsystem.. I feel sorry to hear your story about doubting to go to a doctor (I can't even imagine to doubt something like that). You health must be the one priority and not your job.. Glad you did go to the doctor Tati!
That is common in America. Women are doubted and their pain is dismissed by doctors.
Same in the UK - the NHS is amazing tho really underfunded and understaffed.
🤬 What a bunch of crap. Save your fairy tales about our health system for places where no other Dutch people can read them.
This doesn't go for all dutch people at all... The health care system in the Netherlands is not that great as u pretend it is
in Kazakhstan i have to have a second opinion or even third opinion...the healthcare system is that bad
My mom has been suffering for years and has finally had the hysterectomy she has been begging for for years. She 4 weeks into recovery and even though she is suffering from the surgery itself she is at peace knowing THAT pain has finally gone. It was absolute agony for her. Stress is a huge factor! If you feel something is wrong it usually is.
Shania. My mom has the exact experience as yours and she also had an hysterectomy. Relieving...
i want one, one day, but my dr. is really not for it. hoping i can change her mind once i am ready for the surgery. its the only thing that also helped my mom.
@@mjl3753 if you think it will do you good dont let anyone put you of.
I’ve got PCOS and I put on an entire dress size around my period! I literally have a period wardrobe... I love hearing these stories, I love that we can feel confident enough to talk to each other!
I’ve struggled with horrific and debilitating periods forever (I’m in my 20’s now). Can’t stand up, curled up on the floor, severe hot flashes, vomiting, excruciating pain, severe bloating, fatigue, skipping class, calling off work, having to schedule my life around my expected period date each month... Every time I just get told to take ibuprofen. I came across an article last year where, for the first time ever, I read that this is NOT normal and it really changed my perspective. The fact that this gets so easily brushed off is disturbing. I don’t know whether I have endo but I’ve been suspecting it. I mean what the heck else could cause this? It’s just discouraging that it is difficult to diagnose endometriosis without doing surgery. Thank you for talking about this.
same!!!
I started my period yesterday and was in so much pain as I usually am. I am so glad she is bringing this up. I've had multiple doctors brush it off or just push birth control without bothering to find the main issue, but I'm now ready to pursue answers more aggressively than I have. Thank you for this.
Melissa w. Literally same! Heating pad can't get hot enough
Be your own advocate! Seek 2nd opinions if possible and keep track of the pain and write down your questions and bring it with you to your appointment. Do not let doctors think they know everything about your body! They’re not in there feeling what you feel. 🙁 I’m so sorry you’re going through that
I was diagnosed at 16, I felt alone none of my peers and even adults didn’t know what endo was. Awareness is so important, one of the reasons I made a video about my endo story. 🥰 it’s so nice watching others and hearing stories of other people with endo.
I'd like to really thank both of you, because this video has been so therapeutic for me. I've had to fight with doctors for years now to get my pain recognized, and it's still a battle, but this video gave me courage and strength so thank you.
I live in Canada and so my experience with healthcare in terms of cost is different, but in terms of being listened to by doctors it's one and the same. It's really hard to fight in a system where doctors have a "it's not my job to tell you what you have, it's my job to tell you what you don't have" mentality. This makes getting a diagnosis and answers so much harder and tiring, so thank you for speaking out on this.
I had undiagnosed gallstones in my early 20’s for THREE YEARS!! I was to the ER several times a month literally screaming in pain & Drs sent me home w meds and made me feel crazy. I finally went to an ER on vacation in a different state and they LISTENED, took tests and found what was wrong with me. I cried tears of joy to be validated.. it’s been 10+ years since my gallbladder was removed and I still panic a little anytime I get a weird stomach pain!
Same thing happened to my dad they told him he had muscle spasms!!! He and I both got our gallbladders out the same year - This is also why I am Anti Vax
Sounds similar to what happened to me. And then even after I was diagnosed, none of my doctors ever wanted to do anything about it (there was always someone else worse off who needed that surgery slot) until I finally came into the ER completely jaundiced, my liver backing up into my body and my kidney's shutting down. :(
Do you get phantom attacks too? I get them a couple times a year and while they don't hurt as bad as when I actually had a gallbladder, but they can be pretty painful :'(
I have endo and pcos. I have been I'll for years. I'm nearly 21 and I have just been confirmed to have gallstones after all this time x
Vanessa Sky they told me I had gastritis
Gall bladder pain is terrible
I went to a doctor for my endocrine issues. He tried to convince me I had endometriosis, tried to force me to have surgery, but my gut was telling me that wasn’t right, my pain wasn’t the same. Got a second opinion, was diagnosed with PCOS and given a treatment plan, and that was spot on. 2nd opinions are SO important!
What kind if treatment plan?
100%.
I STARTED TEARING UP ONCE YOU MENTIONED INSURANCE ❤️🙏🏽🙏🏽
I couldn't help to burst on tears when you started talking about the struggle with insurance... I've been feeling that something is wrong with my uterus basically since I got married 4 years ago, but we don't have enough money to go with the specialist, my husband and I are trying to make it with our busines (a printing house) and I work as a kindergarten teacher -work that sadly doesn't have the best pay in my country so we can barely pay the bills and buy some groceries, mostly because we are already spending on my husband's health issues (he has two different ear conditions). Most of the time I can take it, I try to stay positive because I trust God has control over our situation, but my husband's emotional state goes up and down and I have to be his support, and Idk sometimes everything feels too heavy to carry it on my shoulders.Thank you for sharing your experience and remind me that I am not the only one with a situation like this, God bless you and your beautiful family
Crystal Alvarez thanks for sharing. I'll keep you my prayers 🙌🏻
@@holabril thank you so much💕, God bless you
I pray God takes that weight from your shoulders and fills it with joy & strength. What you are doing for your husband is beautiful and commendable. You are a strong, courageous wife. I myself have mental struggles due to my health issues and if it weren’t for God and the help from my partner, I wouldn’t be alive today. God Bless you💕
This made me tear up and I'm not an emotional person. I really hope you find peace and relief.
Crystal Alvarez Willl keep you in my prayers. Have faith that things will turn around for the better; stay strong! ❤️
Hey Tati thank you so much for speaking on this topic I’m 15 and was diagnosed with endo at 14 when I saw that you made this video I cried because I look up to you so much and you shinning a light on this issue made me so exited again thank you so much ❤️❤️❤️
Tell me what you want but a system where you have to choose between suffering pain or bankruptcy is broken.
I think so too. I can't even imagine a situation like that because I live in Germany and our system is completely different.
I mean it's not perfect at all and I'm not an expert but at least most people have the possibility to see a doctor and not having to worry about the price.
That's why we have health insurance to pay for most of the cost.
👏👏👏And yet they have the audacity to call themselves the best country in the world 🙄
I was dismissed for over 10 years before finally being diagnosed with endometriosis and PCOS.
I’m 17. I got my first period when I was 13. I’ve been going to doctors and specialists for years now since then with these exact symptoms and not ONE has said anything about endo. I know you can’t self-diagnose but this is exactly what I go through every time my period comes around and no one besides my family (all the females in my family suffer with menstrual related illnesses) understands what I’m going through. This made me feel so validated like I’m not being dramatic. I’m not doing it for attention. I’m genuinely exhausted and in pain. Thank you so much for doing this. ❤️ hopefully I can bring this up to my doctor and something can be done about it!
Hi Hannah! Let me just tell you that if you leave a doctors appointment not feeling understood, that doctor is no good! Empathy makes a good doctor, and if your concerns are not being met, then move on to another One!
Reallly hope you find someone who understands you! 😉
Catarina Garcia oh my goodness! Thank you so much for your kind words. ❤️ it means so much to me. Truly.
Ask to start with an abdominal ultrasound to look for signs of inflammation. For a definitive diagnosis they can do a laproscopic "look" into your abdomen. It sounds invasive but it's a small hole (usually about 5cm) they put a little canera in and they can actually see the endo in your abdomen. If your insurance will cover it, of course.
I feel the same way, I'm only 15 but I've had the same problems since i was 11.
I love that you are bringing awareness to endometriosis. I have had it since I was 17/18 (now 30). It runs in my family, my mom had it as well. Hers got so bad that she had to have a full hysterectomy at 29 from it. The symptoms everything yall are talking about I can 100% relate to! Many women are affected by endometriosis and dont realize it, or dont realize that certain things they are experiencing are because of it. Wishing you the best with everything!!! ❤
I’m a guy and still watched this video. Sending good vibes to everyone 🙌🏼 love you all and stay strong girls!
Tysm God bless you
Thank you for wanting to learn about things which they may not pertain to your own body, but which will make you a great partner in crime as a friend, boyfriend or husband if not already so. All men should be as hungry for knowledge as you.
undomiel152003 Thank you for the comment that is very sweet of you! I wanted to take some time to listen to this video and understand other people’s struggles. And also send out some positivity to anyone who came across my comment. Thank you very much!! ❤️
When I was 16, I had an amazing gyno who really listened to me and she did research and came back and told me she thought I had endo. She started treating me. My life has significantly changed since then. Since I was 13 I thought maybe I was just different cause my periods lasted 7-10 days and went through massive amounts of pads and tampons. I remember at 16 crying to my mom cause I had been having period pains for 2 weeks and she immediately took me to her gyno and I am so thankful that I caught it early.
Sounds like people when I talk about my ppd. “It’s not that bad.” “Don’t focus on it.” “ it will get better.” Just everything you don’t say to someone that’s just had a baby that’s having a hard time.
I had really bad PPD with panic attacks that would last for hours to a whole day. It was horrible and I waited so long to get to finally see a psychiatrist and get on the right dose of medication. I really benefitted from the talk therapy and my meds have kept my panic attacks at bay the past yr and a half. Please seek professional help if possible 🙏 and keep telling others how you are feeling, you aren't alone ❤️
I had horrible PPD until I cut out Gluten 3 years ago!
angi o I have a lot of support. I have my state nurse that I see every month. I have my Wic social worker. I see my counselor every week. And I have my doula from the state with postpartum hours. As well I’m on the right medication. It’s just my postpartum and lack or sleep. You don’t realize how can you can get until you aren’t getting adequate.
Haley * thanks I appreciate it. From all you ladies. That I love being a supporter of Tati. That’s a sisterhood here.
You’re not alone girl! It sounds cheesy, but it truly does get better. I’ve found counselling has helped so much.
I just want to let you know how much I love you and respect you. Over the last 9 months I lost my health insurance, while also selling makeup making less than $15 an hour and doing a bunch of other odd jobs. At the same time, I've developed a lot of physical health issues that are still undiagnosed. Hearing you talk about messing up in your early 20s and dealing with that and trying to survive is just so comforting and helpful, because honestly it you feel so lonely and tiring and hard to function at times to keep fighting. Just know that your videos have always been a light for me for the last 7 years, but in the 9 months especially you have really been there.
ENDO Sisters!!!! Thank you for sharing- have lived and suffered with this for over 20 years and been so misunderstood for so long. Sending love and healing to you both. 💛💛💛💛💛💛💛💛💛💛💛💛💛💛💛
Crying because I’m having my surgery April 10 to find out if I officially have it. I’ve had EXACT symptoms you guys are talking about and never knew why and I finally don’t feel freaking crazy. IM NOT CRAZY
I'm literally at home recovering from Endo surgery while watching this video. Thank you so much for using your platform to bring attention to Endo. You and Erika being so positive about dealing with your Endo struggles is truly inspiring. So much love for you and everything you do Tati. Thank you. 💛
Same!
An immense thank you for having the courage to discuss this issue. I am myself a nurse who has seen a lot of women go through this journey (and I work in the ER...). Please keep doing you, working towards your goals, whatever they may be. Videos are more than just makeup. They are about communities. This is a great one to be apart of.
So I’m fighting Stage 3 Uterine Cancer. I am so tired of hearing “at least it’s the “good” cancer or “but you look so good”. I understand how it feels to be fighting something others don’t understand. I wish you luck on your journey.
Karen Rudolph I am so sorry you are dealing with that! I had to have a biopsy done to check for thyroid cancer and during those 3 weeks while I waited for results (they ended up being negative) and all anyone told me was “well that’s an easy cancer.” It’s still freaking CANCER!! So know that it’s not just you’d dealt with that. Blessings that you heal completely ♥️
I heard the same things when diagnosed with BC. People are ignorant.
I wish you well.
Karen I’m so sorry that you’re going through that!! Stay strong 💪🏻❤️❤️
I’m praying for you!!
I’m so sorry.
This video is incredible and exactly what the world needs to see! I have Endometriosis and have been in pain since I was 12 but was only diagnosed in 2017. It’s a hard battle but you can definitely overcome and get through it. It’s amazing to talk about it, be apart of Facebook support groups and find a doctor that ACTUALLY listens. I’m from Australia and thankfully our medical system is pretty good (I have private health) but it’s still expensive and time consuming. Girls, we need to stick together, offer support to each other and understand we are all going through struggles. 💛💛💛⭐️
Thank you for this. I have stage 4 endo and there needs to be more awareness 💛 its literally so scary that doctors don’t even know what this is still..this literally is the worst illness cause people won’t believe you since “you look fine”. Just..thank you 💛
I was diagnosed with an ovarian cyst last year, I was in so much pain it made me physically ill. I'm so so grateful and fortunate that I live in Australia and my trip to the ER and all the scans and ultrasounds didn't cost me anything out of pocket. I can't imagine how awful and stressful and frustrating it must be to have to decide between paying your rent or getting treatment for excruciating pain
A year and a half ago, I went to the ER with 10/10 pain, and the male doctor told me I had a softball sized cyst on my right ovary. He told me to go home and take some aspirin. I felt so defeated. I eventually got a gynocologist to look at my cyst and she told me I needed to have it surgically removed or I was going to lose my ovary. And I was terrified because I couldn't afford missing work let alone having surgery. You know the healthcare system is messed up when you're less worried about what's wrong in your body and more worried about how you're gonna pay to take care of it.
I’m in tears, I’ve been suffering from IBS and the whole medical experience was miserable. And I still struggle in silence daily cause it’s hard to understand. Love you guys for being so open.